HopeNeeded Debilitating Withdrawals (Vision, Disequilibrium, Confusion, etc...)

[ChessieCat]

Hi Hope,

 

There is a link below about Lamictal.  Post # 5 by Alto includes: "About Lamictal, here's the problem: Not many doctors know how to use Lamictal and recognize when to increase and when to decrease dosage, plus how it's affecting the withdrawal symptoms. They also don't understand the hypersensitivity issues ..."

 

lamictal-lamotrigine-to-calm-post-discontinuation-withdrawal-symptoms/

 

If you want to search this site it is best to use your favourite search engine and type in survivingantidepressants.org + the topic you are looking for.  In this instance I typed Lamictal.

[HopeNeeded]

Thanks, ChessieCat. I did read that article - which is why I was asking follow up questions. I would still like to know if others have had success with Lamictal (aside from Alto).

 

A really important question... I have been 24/7 dizzy/disequilibrium with 24/7 fogged vision (and brain) for a full year. While other symptoms have waxed and waned, as people describe on these forums, I have had no windows for 13 months. That is really uncommon for AD withdrawal, right? I am really desperate and terrified - having literally lost all I am and all I loved. 

 

Please please respond. 

Thank you, in advance. 

[HopeNeeded]

Someone?! Please.

[HopeNeeded]

Wow. Appalled and disgusted by the ignoring. I have not asked for much. So much for support, huh?

 

Doubt anyone will see this or care enough to take it to heart, but ignoring is not okay on a site that boasts support for the suffering from w.d.

[apace41]

Hope,

 

I'm sure you are struggling and for that I am truly sorry.  You have to realize, however, that this is a site of all volunteers that gets a lot less attention on the weekends than it does during the week.  You posted last night at a little before 6 eastern.  When you didn't hear back less than day later it seems harsh to crucify everyone for not caring.  I know that I, for example, did not look on the site but once or twice since yesterday and just noticed your post. 

 

Not everyone has windows and waves as to all symptoms.  While the windows and waves pattern is a generalization regarding the healing process, each person heals in his or her own way.  There are examples I have read of people who showed no improvement whatsoever for an extended period of time only to be followed by rapid healing across many symptoms.  Other have what you have -- some symptoms improve and get worse and improve and get worse while other symptoms remain constant. 

 

I have some of the same symptoms you have regarding the disequilibrium and what I would describe as being "foggy and heavy-headed" and it is pretty much constant.  Some days are better than others but none would be what I would call a "window."  It causes me, as I'm sure it does you, to question if it is the drug or if it is something else that is going on.  I've had tests for everything so I suppose I have to conclude that the drug is behind this.  I would not say that anything is or is not common or uncommon in withdrawal.  I think all bets are off and people have very odd situations that arise.  I do not think that because it has been constant without windows that you should assume it is not a result of the withdrawal of the medicine.

 

People here do care about you, Hope, and everyone else who is suffering through their own personal nightmare.  If at times we can be less attentive to any one person's needs it is not from lack of caring.

 

Best,

 

Andy

[divalee]

Dear HopeNeeded

 

I am so sorry you are having such a bad wave. Yes we do wonder if this will ever go away. I am 34 months off Zoloft...I never took anything else.. I was on it for 9 years and decided Dec 3, 2011 to taper which I did for a year and a half...was off completely May 17. 2013 - tapering I had many symptoms but mostly nausea indigestion leg pain that I sort of could cope with, but after stopping completely about 6 or 7 months later all hell broke lose and I had new symptoms. pins and needles in my face and lips and head with head pressure, pressure bridge of my nose, light headedness, and dizziness, ear pressure, distorted vision - migraines, they were pretty bad - I never had a window and if I did I didn't notice it because it was so slight - but then around 28 months it just got worse and worse and as of today 34 months later - always in a wave - .....

 

But I have faith this too will pass - you are not alone - many of us have had long waves for many months....and got better - so you and I will have to hope for the best speranza.....hope...

 

Be strong we are here for you - you are not alone - we all suffer more than we should....it will get better read some of the posts where people have made it....

 

We care, I care keep posting xxx

[divalee]

Andy, Bless you.....you are a precious gem that lights our darkest times...thank you

Lee (f)

xxx

[apace41]

Andy, Bless you.....you are a precious gem that lights our darkest times...thank you

 

 

Lee,

 

That is sweet of you.  Thank you for saying that.  I hope you start seeing some of the improvement you so deeply deserve. 

 

Best,

 

Andy