Frustrated Posted May 5, 2015 Share Posted May 5, 2015 I have been reading through your thread and I am so very sorry this is happening to you. I am ten months off Paxil and I am still having issues. Mind you I was on them for years. Three pills and all of your issues is horrible. If you ever do find some kind of support group let me know because I am fairly close to London. It would be great to get support in real life and not just on the forum, although I have met some fabulous folks on here. I wish you peace and healing. 2002-put on amitryptiline for fibromyalgia. 10mg.2004-stopped abruptly. Didn't think it helped.2006 approx.-put on Paxil for mild anxiety 20 mg.2007 upped to 40 mg. not sure why.2011- tapered from 40 to 10. went nuts and went back to 20mg2014- tapered from 20mg to 0 from April to The end of June.current meds- Metformin(type 2 diabetic) and low dose aspirin.Take multi vitamin and vit b12, vit. D and magnesium. 5 months off Paxil. Still suffering.recently added 1.2mg of Paxil to alleviate withdrawals.(Nov 30)Dropped to .9mg because having symptoms from reinstatement.(dec 23)<p>taper to .76mg-.8mg (Feb 3) approx. weight .010 to about .008-.009 on scale..6mg (march 19th.) .5mg(April 19th).4mg(April 27th).2 (June 27th) 0mg. done taper at beginning of August. Link to comment
justwanttobefree Posted May 6, 2015 Share Posted May 6, 2015 Cam, you should find it very reassuring that you can cry! You said you cry youself to sleep every night and that is extremely promising. I understand what you're saying that you can't feel joy, happiness, excitement etc. but trust me, it WILL come back. True anhedonia is a complete loss of all human emotion including sadness, despair, etc. You are still feeling something. I don't think you are in WD (downregulation of receptors) as you only took 3 pills, it sounds like an adverse reaction to me. This WILL END!! Diagnosed: Pure O Ocd, Severe Anxiety Disorder NOS, PMDD November 2009 - May 2013- CIPRALEX 20mg C/T off 20mg Cipralex Went into dark depression (never experienced before med) September 2013 - March 2014- PROZAC 20mg Weaned down to 10mg and held October 1st 2014 C/T off 10mg Prozac Protracted withdrawal - 8 months of the most horrific suffering imaginable June 1st 2015 - ZOLOFT 25mg June 26th 2015 - Dose increase to 50mg of Zoloft (taken at night after dinner). Slowly improving but still have severe OCD/ruminating, intense DP/DR, and brain fog. Just trying to stabilize at this point. Link to comment
akakoom Posted May 6, 2015 Author Share Posted May 6, 2015 Hi Frustrated maybe i could form a meet on meetup.com... would you be interested? would you have the strength to get together at a coffee shop? i kinda hesitate doing a meetup,i dont want any of my friends to find out. i havent told them. i would hate for them to see the meetup. maybe some other group method... hi justwanttobefree, yeah, i never really lost all my emotions. i can laugh, but it's really faint. and its wierd. the drugs never had any effect on my negative emotions, like sadness. it did affect anger tho. i used to have a temper. thats gone. and the anorgasmia is awful. not feeling sexual excitement is really depressing. i cant imagine getting better. i really feel like this is permanent March 5, 6 2015 1 10mg Paxil each day - only 2 pills total - experienced huge tingle in my head on first pill numbness in my hands and feet, skin less sensitive over all... not ticklish anymore **anhedonia, blank emotions PSSD, anorgasmia heartbeat rhythm problems "To err is human. To really foul things up requires a psychiatrist." http://survivingantidepressants.org/index.php?/topic/8554-akakoom-lost-in-no-mans-land/ "When you are going through hell, keep going" - Winston Churchill (the only way out is through) Link to comment
Frustrated Posted May 6, 2015 Share Posted May 6, 2015 I totally get you not wanting to tell your friends. I am pretty much a loner and my best friend does know so it isn't an issue for me. I live in Guelph and don't have a vehicle anymore so my options are limited but the thought of actually connecting to others with similar issues is intriguing. I hope you are able to maybe confide in one of your friends and at least have a sympathetic ear so you can get things off your chest. 2002-put on amitryptiline for fibromyalgia. 10mg.2004-stopped abruptly. Didn't think it helped.2006 approx.-put on Paxil for mild anxiety 20 mg.2007 upped to 40 mg. not sure why.2011- tapered from 40 to 10. went nuts and went back to 20mg2014- tapered from 20mg to 0 from April to The end of June.current meds- Metformin(type 2 diabetic) and low dose aspirin.Take multi vitamin and vit b12, vit. D and magnesium. 5 months off Paxil. Still suffering.recently added 1.2mg of Paxil to alleviate withdrawals.(Nov 30)Dropped to .9mg because having symptoms from reinstatement.(dec 23)<p>taper to .76mg-.8mg (Feb 3) approx. weight .010 to about .008-.009 on scale..6mg (march 19th.) .5mg(April 19th).4mg(April 27th).2 (June 27th) 0mg. done taper at beginning of August. Link to comment
akakoom Posted May 6, 2015 Author Share Posted May 6, 2015 yeah... adverse reaction = brain damage = sucks to be me March 5, 6 2015 1 10mg Paxil each day - only 2 pills total - experienced huge tingle in my head on first pill numbness in my hands and feet, skin less sensitive over all... not ticklish anymore **anhedonia, blank emotions PSSD, anorgasmia heartbeat rhythm problems "To err is human. To really foul things up requires a psychiatrist." http://survivingantidepressants.org/index.php?/topic/8554-akakoom-lost-in-no-mans-land/ "When you are going through hell, keep going" - Winston Churchill (the only way out is through) Link to comment
Freedom15 Posted May 6, 2015 Share Posted May 6, 2015 Hold in there bro Things will improve it will just take time. Your brain heals in waves and you will feel better over time. Just stay focused and do what can to treat yourself nice. Its tuff cause we want to hit the instant fix everything button and every thing to go. Amitriptyline 20mg for 11 months for migraines. 24.11.14 CT from amitriptyline by doctor to swop to Citrolpam as doctor felt side effects of drugs were mental health issues. 12.14 Reinstated back to amitriptyline 2 weeks later after cronic withdrawl. 19.02.2015 Droped from 25mg to 20mg as drugs causing adverse effects of heavy sedation and anestetic propertys.03.03.15 Reduced 18.5mg to try and deal with sedation again. 08.03.15 Reduced to 17.5mg 28.03.15 15.7mg 12.04.15 14.9mg 19.04.15 14.2mg 26.04.15 13.5mg 2.05.15 12.8mg 9.5.15 12.1mg 15.05.15 11.5mg 21.05.15 11.0mg 24.05.15 10.0mg 2.6.15 9.0mg 4.6.15 8.6mg 13.06.15 8.1mg 20.06.15 7.7mg 27.06.15 7.3mg 4.07.15 7.0mg 9.07.15 6.6mg 13.7.15 6.3mg 19.07.15 6.0mg 24.07.15 5.7mg 31.07.15 5.4 8.08.15 4.9mg 15.08.15 4.4mg 22.08.15 4.0mg 29.08.15 3.6mg 06.09.15 3.2mg 13.09.15 2.9mg 21.09.15 2.6mg 28.09.15 2.4mg 05.10.15 2.2mg 12.10.15 2.0mg 22.10.15 1.8mg 26.10.15 1.7mg 2.11.15 1.5mg 9.11.15 1.4mg 16.11.15 1.2mg 23.11.15 1.1mg 10.12.15 1mg 1.1.2016 0.9mg 17.1.2016 0.8mg 01.02.2016 0.7mg 08.02.2016 0.6mg 14.02.2016 0.5mg 21.02.2016 0.4mg 01.03.2016 changed to liquid 1:1 ratio 0.4mg 8.03.2016 0.38mg 15.03.2016 0.36mg 20.03.2016 0.35mg 27.03.2016 0.32mg 08.04.2016 0.29mg 14.04.2016 0.27mg 23.04.2016 0.25mg 30.04.2016 0.23mg 07.05.2016 0.21mg 14.05.2016 0.19mg 28.05.2016 0.17mg 06.06.2016 0.16ml 13.06.2016 0.15ml 20.06.2016 0.14ml 27.06.2016 0.13ml 04.07.2016 0.12ml 11.07.2016 0.11ml 18.07.2016 0.10ml 25.07.2016 0.09ml 01.08.2016 0.08ml 08.08.2016 0.07ml 15.08.2016 0.06ml 22.08.2016 0.05ml 12.08.2016 0.04ml changed to 10:1 ratio 02.09.2016 0.036ml 24.10.2016 0.033ml 14.11.2016 0.030ml 01.01.2017 0.024ml 22.01.2017 0.022mg 12.02.2017 0.020mg 05.03.2017 0.018mg 26.03.2017 0.016mg 17.04.2017 0.014mg 07.05.2015 0.012mg missed few sig updates 09.09.2017 0.005mg missing few sig udates 29.07.2018 0.0001mg 17.02.2019 0.000006mg missed few updates 12.06.2020 0.0000000064mg 27.11.2021 0.0000000048mg 04.2021 0.0000000018mg 19.12.2021 0.00000000025641mg 27.03.2022 0.000000000128205mg 4.7.2022 0.000000000064mg reduced 31.12.2022 unsure exact dose now but know how make it up. Droped by 50% twice from current dose. **See entry in my journey for dose calculation**. Redution Sept 24.2023. Reduction Jan 1.2024 Link to comment
akakoom Posted May 6, 2015 Author Share Posted May 6, 2015 long term prognosis of pssd not good for some. these are personal accounts on rxisk http://wp.rxisk.org/buried-alive-post-ssri-sexual-dysfunction-pssd/ March 5, 6 2015 1 10mg Paxil each day - only 2 pills total - experienced huge tingle in my head on first pill numbness in my hands and feet, skin less sensitive over all... not ticklish anymore **anhedonia, blank emotions PSSD, anorgasmia heartbeat rhythm problems "To err is human. To really foul things up requires a psychiatrist." http://survivingantidepressants.org/index.php?/topic/8554-akakoom-lost-in-no-mans-land/ "When you are going through hell, keep going" - Winston Churchill (the only way out is through) Link to comment
Laura1981 Posted May 6, 2015 Share Posted May 6, 2015 I know it's very, very hard but try not to read this stuff. Try to read only success stories. I'm guilty of the same. I read horror stories and get scared to death. There's probably people out there who healed from PSSD. You took the medication for a lot shorter duration than this guy. Maybe your chemicals just have to get back into balance again. It's upsetting that these doctors give us drugs which are beyond unsafe and have our lives ruined by them. And it's so hard to hope for change every day and nothing changes. But we'll get there!!! Feb 2015 Took venlafaxine for 5 days only... experienced withdrawal that made me completely non-functional Mar 2015 took under 1mg of Sertraline for 10 days in an attempt to combat Venlafaxine withdrawal. Got adverse reactions. After stopping Sertraline, withdrawal got much worse. New, horrific symptoms. June 2015 Still non-functional but slowly getting better. Still brain zaps, migraines, sweating, heart racing, depression, crying spells September 2015: 24/7 brain zaps, twitches in the face, no concentration, bad memory, language skills deteriorating. Profile feed: http://goo.gl/3g2GRn Sign this petition for a blackbox warning on Prozac in Ireland: https://www.change.org/p/leo-varadakar-hpra-the-lack-of-a-blackbox-warning-on-prozac-in-ireland-and-its-use-by-the-hse-in-under-18-s?recruiter=63289046&utm_source=share_petition&utm_medium=facebook&utm_campaign=share_for_starters_page&utm_term=des-lg-no_src-no_msg Link to comment
akakoom Posted May 6, 2015 Author Share Posted May 6, 2015 thanks Laura right now my life is on hold. i have no interest, drive to do anything. my head feels numb. running around in a daze March 5, 6 2015 1 10mg Paxil each day - only 2 pills total - experienced huge tingle in my head on first pill numbness in my hands and feet, skin less sensitive over all... not ticklish anymore **anhedonia, blank emotions PSSD, anorgasmia heartbeat rhythm problems "To err is human. To really foul things up requires a psychiatrist." http://survivingantidepressants.org/index.php?/topic/8554-akakoom-lost-in-no-mans-land/ "When you are going through hell, keep going" - Winston Churchill (the only way out is through) Link to comment
Laura1981 Posted May 6, 2015 Share Posted May 6, 2015 I'm soooo sorry this is happening to you. It gives me the rage that we all have to go through this. Feb 2015 Took venlafaxine for 5 days only... experienced withdrawal that made me completely non-functional Mar 2015 took under 1mg of Sertraline for 10 days in an attempt to combat Venlafaxine withdrawal. Got adverse reactions. After stopping Sertraline, withdrawal got much worse. New, horrific symptoms. June 2015 Still non-functional but slowly getting better. Still brain zaps, migraines, sweating, heart racing, depression, crying spells September 2015: 24/7 brain zaps, twitches in the face, no concentration, bad memory, language skills deteriorating. Profile feed: http://goo.gl/3g2GRn Sign this petition for a blackbox warning on Prozac in Ireland: https://www.change.org/p/leo-varadakar-hpra-the-lack-of-a-blackbox-warning-on-prozac-in-ireland-and-its-use-by-the-hse-in-under-18-s?recruiter=63289046&utm_source=share_petition&utm_medium=facebook&utm_campaign=share_for_starters_page&utm_term=des-lg-no_src-no_msg Link to comment
LucaDiProspero Posted May 6, 2015 Share Posted May 6, 2015 Oh God, akakoom these stories are awful and hopeless. I can't believe there is not a cure for the loss of our humanity...so drugs takes you to hell, now where is the antidote? I can't believe it's plenty of drugs out there and none of them can fix the issue.So.. Why do doctors give these poisons if nothing can counteract their effects? March 2010/ October 2010: Sereupin 30mg a day, EN 15 drops a day October 2010/ 1st November 2014: Cipralex 50mg a day (tapered to 40mg a day in August 2013), EN 15 drops a day (switched to Lexotan 15 drops a day in September 2014) Started Risperdal 1mg a day on the 1st November 2014. Stopped Risperdal on the 23 November 2014 because that day, after a short mental crysis, I suddenly lost all my emotions,desires,motivation and they not come back yet. Stopped Cipralex C/T in December 2014. Added, tapered and stopped other drugs during the following months (also a voluntary hospitalization in January 2015 for a suicide attempt)...no changes yet. I'm med free from 3rd December 2015 Link to comment
akakoom Posted May 7, 2015 Author Share Posted May 7, 2015 because pharma lies about the effects to the doctors. and when we try to explain whats happening to us they just think were crazy, and chalk it up to our previous "mental illness" plus the pharma companies would have to admit they are harmful in order to create an antidote, and that would open them up to lawsuits. the phama companies know exactly how bad these drugs are, but they don't care. these drugs are huge moneymakers for them the doctors are stooges and he pharma companies are liars ...plus in my case its brain damage and there's nothing that can be done anyway these drugs should be taken off the market i have to accept this is the new me, like it or not. i will never be my old self again March 5, 6 2015 1 10mg Paxil each day - only 2 pills total - experienced huge tingle in my head on first pill numbness in my hands and feet, skin less sensitive over all... not ticklish anymore **anhedonia, blank emotions PSSD, anorgasmia heartbeat rhythm problems "To err is human. To really foul things up requires a psychiatrist." http://survivingantidepressants.org/index.php?/topic/8554-akakoom-lost-in-no-mans-land/ "When you are going through hell, keep going" - Winston Churchill (the only way out is through) Link to comment
Laura1981 Posted May 7, 2015 Share Posted May 7, 2015 Hey Cam, I doubt it is permanent. An uncle of mine had a brain haemorrhag and a meningitis. He was bed bound, couldn't move and couldn't control any of his body functions. Now, a year later, he's walking around, watching football and going to the ice cream place to eat a huge portion of ice cream. He's older than you as well. Even if there is some damage, your brain will find alternative pathways. @Anyone with a bit more experience in the forum: Was there any similar case and the person got better? I'm sure there was. It's just a matter of finding it. I'll cross fingers for you that this gets better soon Cam! I think we should create a stop-psych-drugs movement and protest in front of psychiatric hospitals. Cheers, Laura Feb 2015 Took venlafaxine for 5 days only... experienced withdrawal that made me completely non-functional Mar 2015 took under 1mg of Sertraline for 10 days in an attempt to combat Venlafaxine withdrawal. Got adverse reactions. After stopping Sertraline, withdrawal got much worse. New, horrific symptoms. June 2015 Still non-functional but slowly getting better. Still brain zaps, migraines, sweating, heart racing, depression, crying spells September 2015: 24/7 brain zaps, twitches in the face, no concentration, bad memory, language skills deteriorating. Profile feed: http://goo.gl/3g2GRn Sign this petition for a blackbox warning on Prozac in Ireland: https://www.change.org/p/leo-varadakar-hpra-the-lack-of-a-blackbox-warning-on-prozac-in-ireland-and-its-use-by-the-hse-in-under-18-s?recruiter=63289046&utm_source=share_petition&utm_medium=facebook&utm_campaign=share_for_starters_page&utm_term=des-lg-no_src-no_msg Link to comment
Martina23 Posted May 7, 2015 Share Posted May 7, 2015 Akakoom, I found the name of your thread very interesting. I, too, feel lost in no man´s land. I wish you a nice day. 05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free- symptoms OCD Link to comment
akakoom Posted May 7, 2015 Author Share Posted May 7, 2015 interesting point: i originally went in to see the doctor because i was depressed and anxious about losing a girlfriend, that i thought was my soul-mate. the doctor said "no woman is worth your health, lets start you on paxil" oh the irony! March 5, 6 2015 1 10mg Paxil each day - only 2 pills total - experienced huge tingle in my head on first pill numbness in my hands and feet, skin less sensitive over all... not ticklish anymore **anhedonia, blank emotions PSSD, anorgasmia heartbeat rhythm problems "To err is human. To really foul things up requires a psychiatrist." http://survivingantidepressants.org/index.php?/topic/8554-akakoom-lost-in-no-mans-land/ "When you are going through hell, keep going" - Winston Churchill (the only way out is through) Link to comment
akakoom Posted May 7, 2015 Author Share Posted May 7, 2015 thanks for you encouraging words, Laura and Martina hoping any praying for all our healing March 5, 6 2015 1 10mg Paxil each day - only 2 pills total - experienced huge tingle in my head on first pill numbness in my hands and feet, skin less sensitive over all... not ticklish anymore **anhedonia, blank emotions PSSD, anorgasmia heartbeat rhythm problems "To err is human. To really foul things up requires a psychiatrist." http://survivingantidepressants.org/index.php?/topic/8554-akakoom-lost-in-no-mans-land/ "When you are going through hell, keep going" - Winston Churchill (the only way out is through) Link to comment
akakoom Posted May 7, 2015 Author Share Posted May 7, 2015 all i want for Christmas is my old self back March 5, 6 2015 1 10mg Paxil each day - only 2 pills total - experienced huge tingle in my head on first pill numbness in my hands and feet, skin less sensitive over all... not ticklish anymore **anhedonia, blank emotions PSSD, anorgasmia heartbeat rhythm problems "To err is human. To really foul things up requires a psychiatrist." http://survivingantidepressants.org/index.php?/topic/8554-akakoom-lost-in-no-mans-land/ "When you are going through hell, keep going" - Winston Churchill (the only way out is through) Link to comment
Laura1981 Posted May 7, 2015 Share Posted May 7, 2015 interesting point: i originally went in to see the doctor because i was depressed and anxious about losing a girlfriend, that i thought was my soul-mate. the doctor said "no woman is worth your health, lets start you on paxil" oh the irony! Arghhhhhh.... the irony... indeed. Does your doctor know what he did to you? And on top of it all he chose Paxil, the most addictive of these f***** antidepressants. If you had not had an allergic reaction to it and stayed on it, you would probably have to face a far worse hell down the road. Doesn't seem imaginable probably, but I read some paxil threads and they are truly horrifying. You know why I took the AD? Because I thought it would make me strong enough to deal with a workplace bully.... oh the irony as well.... Feb 2015 Took venlafaxine for 5 days only... experienced withdrawal that made me completely non-functional Mar 2015 took under 1mg of Sertraline for 10 days in an attempt to combat Venlafaxine withdrawal. Got adverse reactions. After stopping Sertraline, withdrawal got much worse. New, horrific symptoms. June 2015 Still non-functional but slowly getting better. Still brain zaps, migraines, sweating, heart racing, depression, crying spells September 2015: 24/7 brain zaps, twitches in the face, no concentration, bad memory, language skills deteriorating. Profile feed: http://goo.gl/3g2GRn Sign this petition for a blackbox warning on Prozac in Ireland: https://www.change.org/p/leo-varadakar-hpra-the-lack-of-a-blackbox-warning-on-prozac-in-ireland-and-its-use-by-the-hse-in-under-18-s?recruiter=63289046&utm_source=share_petition&utm_medium=facebook&utm_campaign=share_for_starters_page&utm_term=des-lg-no_src-no_msg Link to comment
Laura1981 Posted May 7, 2015 Share Posted May 7, 2015 all i want for Christmas is my old self back I better get working on that clover. Do they have to have four leaves to bring luck? Feb 2015 Took venlafaxine for 5 days only... experienced withdrawal that made me completely non-functional Mar 2015 took under 1mg of Sertraline for 10 days in an attempt to combat Venlafaxine withdrawal. Got adverse reactions. After stopping Sertraline, withdrawal got much worse. New, horrific symptoms. June 2015 Still non-functional but slowly getting better. Still brain zaps, migraines, sweating, heart racing, depression, crying spells September 2015: 24/7 brain zaps, twitches in the face, no concentration, bad memory, language skills deteriorating. Profile feed: http://goo.gl/3g2GRn Sign this petition for a blackbox warning on Prozac in Ireland: https://www.change.org/p/leo-varadakar-hpra-the-lack-of-a-blackbox-warning-on-prozac-in-ireland-and-its-use-by-the-hse-in-under-18-s?recruiter=63289046&utm_source=share_petition&utm_medium=facebook&utm_campaign=share_for_starters_page&utm_term=des-lg-no_src-no_msg Link to comment
Martina23 Posted May 7, 2015 Share Posted May 7, 2015 interesting point: i originally went in to see the doctor because i was depressed and anxious about losing a girlfriend, that i thought was my soul-mate. the doctor said "no woman is worth your health, lets start you on paxil" oh the irony! Akakoom, I hope when you are after withdrawal, that you find a better one. It is so stupid what your doctor said. When the withdrawal by me started, I also went to one psychiatrist for help. He told me that the depression and obsession thoughts I have are because I did not take Lyrica (medicament which caused it) long enough, and now the depression is so deep that I should take a double portion of this medicament and one more antidepressant in addition, but the highest doses, because for obsessional thoughts only highest doses bring some effect. It was so stupid! 05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free- symptoms OCD Link to comment
akakoom Posted May 7, 2015 Author Share Posted May 7, 2015 all i want for Christmas is my old self back I better get working on that clover. Do they have to have four leaves to bring luck? I think 4 leaf clovers are the luckiest ones... and I am going to need all the luck I can get! And while you're at it... find a 4 leaf clover for yourself the first one is for you. I wish you luck and healing and @Martina, I don't know if I will ever be myself again. I am on hold, no point in trying to find a lady right now when I can't feel love. This is really heartbreaking March 5, 6 2015 1 10mg Paxil each day - only 2 pills total - experienced huge tingle in my head on first pill numbness in my hands and feet, skin less sensitive over all... not ticklish anymore **anhedonia, blank emotions PSSD, anorgasmia heartbeat rhythm problems "To err is human. To really foul things up requires a psychiatrist." http://survivingantidepressants.org/index.php?/topic/8554-akakoom-lost-in-no-mans-land/ "When you are going through hell, keep going" - Winston Churchill (the only way out is through) Link to comment
Martina23 Posted May 7, 2015 Share Posted May 7, 2015 Poor akakoom! I think I am on hold too. I hate to be on hold. That is not me at all. But it is so sad that there are so many other people feeling the same! 05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free- symptoms OCD Link to comment
akakoom Posted May 7, 2015 Author Share Posted May 7, 2015 interesting point: i originally went in to see the doctor because i was depressed and anxious about losing a girlfriend, that i thought was my soul-mate. the doctor said "no woman is worth your health, lets start you on paxil" oh the irony! Arghhhhhh.... the irony... indeed. Does your doctor know what he did to you? And on top of it all he chose Paxil, the most addictive of these f***** antidepressants. If you had not had an allergic reaction to it and stayed on it, you would probably have to face a far worse hell down the road. Doesn't seem imaginable probably, but I read some paxil threads and they are truly horrifying. You know why I took the AD? Because I thought it would make me strong enough to deal with a workplace bully.... oh the irony as well.... no, I never talked to my doctor since. I figured there wasn't any point. There's nothing they can do anyway. Maybe next time I am in for something else I will let hm know... but hey, we're all crazy right !? Our opinion counts for nothing. March 5, 6 2015 1 10mg Paxil each day - only 2 pills total - experienced huge tingle in my head on first pill numbness in my hands and feet, skin less sensitive over all... not ticklish anymore **anhedonia, blank emotions PSSD, anorgasmia heartbeat rhythm problems "To err is human. To really foul things up requires a psychiatrist." http://survivingantidepressants.org/index.php?/topic/8554-akakoom-lost-in-no-mans-land/ "When you are going through hell, keep going" - Winston Churchill (the only way out is through) Link to comment
akakoom Posted May 7, 2015 Author Share Posted May 7, 2015 I've been thinking about starting a kickstarter campaign about this. but I don't know what we should aim for. should it be awareness? take the drugs off the market? Legal compensation? Finding a "cure?" Or all of the above? Any other ideas? Or just use it to help fund Dr Healy? Personally I want a cure. I really could care less for compensation. And of course the drugs have to be taken off the market. Anyone who is currently on the meds can still have access for tapering, but no new patients should be given these meds. And definitely not by a GP. General Practitioners know generally nothing. March 5, 6 2015 1 10mg Paxil each day - only 2 pills total - experienced huge tingle in my head on first pill numbness in my hands and feet, skin less sensitive over all... not ticklish anymore **anhedonia, blank emotions PSSD, anorgasmia heartbeat rhythm problems "To err is human. To really foul things up requires a psychiatrist." http://survivingantidepressants.org/index.php?/topic/8554-akakoom-lost-in-no-mans-land/ "When you are going through hell, keep going" - Winston Churchill (the only way out is through) Link to comment
bluebalu86 Posted May 7, 2015 Share Posted May 7, 2015 Doctors and pharma companies took the most precious thing away from me - my health. That's why I will hate them forever. I hope I recover but sometimes I doubt it, I feel so bad all the time and have been on drugs for a very long time. My brain is a mess. I suffer from depression, anxiety, pure-o ocd, and panic attacks since 2004. Been on multiple different psychiatric drugs since 2006. Never had a significant WD problem before, only brain zaps for a month and then I'd be fine...............Been on Cipralex (escitalopram) 15 mg and Fluanxol (flupentixol) 1 mg since Sep 2014. Stopped taking the Cipralex after a fast 20-day taper.Took the last 5 mg Cipralex on Feb 5th, 2015. Then took Seroxat (paroxetine) 10 mg for a week, and stopped it too. Severe WD started suddenly on Feb 16th. RI 5 mg Cipralex on Feb 18th, 2015. RI worked and was relatively stable for a while................April 7 - decreased Fluanxol from 1 mg to 0.5 mg and took it at this dose for a week. - BIG MISTAKE; April 13 - WD starts creeping in; April 14 - RI full dose of Fluanxol 1 mg => severe muscle twitching and jerking when trying to relax and fall asleep, overwhelming sense of doom, dread, terror, and horror, insomnia, hoping to stabilize.Tried doing a 10% cut off Fluanxol in the end of May for a few days, but quickly updosed to full dose because the twitching returned.Experiencing waves and windows in the following months.Unsuccessful brief taper attempt of Fluanxol by 5% on November 1st. Symptoms hit the next day. Too scared to continue tapering, reinstate full dose.Severe crash in November after stupidly trying a barbiturate on November 9th. Grave mistake. Sense of unshakable inescapable internal torture, like my soul is in hell being tortured, terror/horror/dread/doom (probably akathisia?) that gets especially bad when trying to relax and fall asleep, muscles twitch, jerk and move on their own, shaking, insomnia, can't eat, confusion, disorientation, brain not working normally. Never felt so bad in my entire life. Never experiment with other meds while in WD! Praying to God I stabilize and get back to my baseline.December - things getting even worse. January - unbearable suffering Link to comment
Laura1981 Posted May 7, 2015 Share Posted May 7, 2015 I've been thinking about starting a kickstarter campaign about this. but I don't know what we should aim for. should it be awareness? take the drugs off the market? Legal compensation? Finding a "cure?" Or all of the above? I've been thinking a lot about that recently too. I feel like I need to use my grudge and anger in a positive way. At the moment I'm pursuing complaints against my doctor (the company GP!!!!). Next step will be brining the case in front of a governmental agency we have over here that takes complaints about doctors. If that's successful I'll sue for compensation. Apart from that I was thinking that a group doing campaigns (like Amnesty International for example) would be great. This would be to raise awareness and dialogue. It would need to be entirely peaceful, calm and non-offensive. Things like Greenpeace do could go the wrong way and end up with people locked away. Feb 2015 Took venlafaxine for 5 days only... experienced withdrawal that made me completely non-functional Mar 2015 took under 1mg of Sertraline for 10 days in an attempt to combat Venlafaxine withdrawal. Got adverse reactions. After stopping Sertraline, withdrawal got much worse. New, horrific symptoms. June 2015 Still non-functional but slowly getting better. Still brain zaps, migraines, sweating, heart racing, depression, crying spells September 2015: 24/7 brain zaps, twitches in the face, no concentration, bad memory, language skills deteriorating. Profile feed: http://goo.gl/3g2GRn Sign this petition for a blackbox warning on Prozac in Ireland: https://www.change.org/p/leo-varadakar-hpra-the-lack-of-a-blackbox-warning-on-prozac-in-ireland-and-its-use-by-the-hse-in-under-18-s?recruiter=63289046&utm_source=share_petition&utm_medium=facebook&utm_campaign=share_for_starters_page&utm_term=des-lg-no_src-no_msg Link to comment
Martina23 Posted May 7, 2015 Share Posted May 7, 2015 I also dont care for compensation. I think, we would not get it anyway. There is a woman in Czech Republic (there was an article in one magazine), the doctors did a failure by the birth of her son, he died now 5 years old, he was for for 5 years in coma. The trial said the hospital should pay her 30 mil. of Czech crowns, till now she did not get it, the son already died and she is afraid to have another child because of trauma. 05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free- symptoms OCD Link to comment
akakoom Posted May 7, 2015 Author Share Posted May 7, 2015 Crowdfunding might not work. The maximum you can run a kickstarter for is 60 days. That's not going to raise much money. And there arent any political categories. It's all to raise money for products. Healy has probably already considered it and factored it out. We're screwed March 5, 6 2015 1 10mg Paxil each day - only 2 pills total - experienced huge tingle in my head on first pill numbness in my hands and feet, skin less sensitive over all... not ticklish anymore **anhedonia, blank emotions PSSD, anorgasmia heartbeat rhythm problems "To err is human. To really foul things up requires a psychiatrist." http://survivingantidepressants.org/index.php?/topic/8554-akakoom-lost-in-no-mans-land/ "When you are going through hell, keep going" - Winston Churchill (the only way out is through) Link to comment
Muddles Posted May 7, 2015 Share Posted May 7, 2015 Just read your thread. So sorry - I'm in no-mans land too and it's not a nice place to be. There was a young member on here last year who had the same after a few pill and I'm sure he got better - otherwise he'd still be here...believe me. Take it from me - you will not be like this forever. I have read too many stories to know this. It may take a while but it will be worth it. Hang on. And I too want to do something - can't just sit on my sorry ass and let this go. 2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription. Severe adverse reaction Mirtazapine prescribed - adverse reaction but told to stay on. Poop out - December 2013 15mg Currently on 13.5mg, April 12mg May 10th - 11mg June 10th - 10mg July 8th - 9mg September - 0mg Link to comment
akakoom Posted May 7, 2015 Author Share Posted May 7, 2015 Hi Muddles, I soooo hope you are right. At this point I am wondering how long I have to wait. The not knowing is killer. I really think we need to unite and fight back. There should be plenty of victims by now from these chemical atrocities. Our growing number is our strength. Eventually there has to be a tipping point where too many people get hurt and stand up and say NO MORE! I just don't know how to do this. Plus there's the public humiliation of admitting you were "crazy" and on meds. I am not very comfortable with that. I'm sure pharma knows about the shame and simply takes advantage of it. pure satanic evil, if you ask me If I get better, and can stand the embarrassment, I will fight. They are messing with the wrong 'Koom March 5, 6 2015 1 10mg Paxil each day - only 2 pills total - experienced huge tingle in my head on first pill numbness in my hands and feet, skin less sensitive over all... not ticklish anymore **anhedonia, blank emotions PSSD, anorgasmia heartbeat rhythm problems "To err is human. To really foul things up requires a psychiatrist." http://survivingantidepressants.org/index.php?/topic/8554-akakoom-lost-in-no-mans-land/ "When you are going through hell, keep going" - Winston Churchill (the only way out is through) Link to comment
Laura1981 Posted May 7, 2015 Share Posted May 7, 2015 I like your new fighting spirit!!! We really need to do something. I am looking at books about activism on Amazon. Maybe I'll pick one and read it. So far I'm thinking maybe an online platform that gathers stories of people and then actions like writing to decision makers or something like that. The problem is that it would be a big time investment and I'm still hoping that I can return to my old, busy life at some stage. *snief* Feb 2015 Took venlafaxine for 5 days only... experienced withdrawal that made me completely non-functional Mar 2015 took under 1mg of Sertraline for 10 days in an attempt to combat Venlafaxine withdrawal. Got adverse reactions. After stopping Sertraline, withdrawal got much worse. New, horrific symptoms. June 2015 Still non-functional but slowly getting better. Still brain zaps, migraines, sweating, heart racing, depression, crying spells September 2015: 24/7 brain zaps, twitches in the face, no concentration, bad memory, language skills deteriorating. Profile feed: http://goo.gl/3g2GRn Sign this petition for a blackbox warning on Prozac in Ireland: https://www.change.org/p/leo-varadakar-hpra-the-lack-of-a-blackbox-warning-on-prozac-in-ireland-and-its-use-by-the-hse-in-under-18-s?recruiter=63289046&utm_source=share_petition&utm_medium=facebook&utm_campaign=share_for_starters_page&utm_term=des-lg-no_src-no_msg Link to comment
Muddles Posted May 7, 2015 Share Posted May 7, 2015 I know of someone who is going to start some kind of petition...will certainly let you all know when I hear anymore. 2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription. Severe adverse reaction Mirtazapine prescribed - adverse reaction but told to stay on. Poop out - December 2013 15mg Currently on 13.5mg, April 12mg May 10th - 11mg June 10th - 10mg July 8th - 9mg September - 0mg Link to comment
Muddles Posted May 7, 2015 Share Posted May 7, 2015 This will be in the UK though. 2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription. Severe adverse reaction Mirtazapine prescribed - adverse reaction but told to stay on. Poop out - December 2013 15mg Currently on 13.5mg, April 12mg May 10th - 11mg June 10th - 10mg July 8th - 9mg September - 0mg Link to comment
Meimeiquest Posted May 7, 2015 Share Posted May 7, 2015 Are you still taking folate or folic acid? There is an alternative medicine theory that it can be very harmful to people with a certain biochemistry. In fact, you might stop all supplements briefly and see what happens. Probably no change, but you don't have a lot to lose. 1st round Prozac 1989/90, clear depression symptoms. 2nd round Prozac started 1999 when admitted to dr. I was tired. Prozac pooped out, switch to Cymbalta 3/2006. Diagnosed with bipolar disorder due to mania 6/2006--then I was taken abruptly off Cymbalta and didn't know I had SSRI withdrawal. Lots of meds for my intractable "bipolar" symptoms. Zyprexa started about 9/06, mostly 5mg. Tapered 4/12 through12/29/12 Wellbutrin. XL 300 mg started 1/07, tapered 1/18/13 through 7/8/13 Oxazepam mostly continuously since 6/06, 30mg since 12/12, tapered 1.17.14 through 8.26.15 11/06 Lithium 600mg twice daily, 2.2.14 400mg TID DIY liquid, 2.12.14 1150mg, 3.2.14 1100mg, 3.18.14 1075mg, 4/14 updose to 1100mg, 6.1.14 900 mg capsules 7.8.14 810mg, 8.17.14 725mg, 8.24.24 700mg...10.22.14 487.5mg, 3.9.15 475mg, 4.1.15 462.5mg 4.21.15 450mg 8.11.15 375mg, 11.28.15 362.5mg, back to 375mg four days later, 3.4.16 updose to 475 (too much going on to risk trouble) 9/4/13 Toprol-XL 25mg daily for sudden hypertension, tapered 11.12.13 through 5.3.14, last 10 days or so switched to atenolol 7.4.14 Started Walsh Protocol 56 years old Link to comment
Martina23 Posted May 7, 2015 Share Posted May 7, 2015 If there would be some petition, I would sign it also, but I think there is only a chance to sue if it will be a collective petition and the people would be on the same medicament 05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free- symptoms OCD Link to comment
akakoom Posted May 7, 2015 Author Share Posted May 7, 2015 i took all that stuff for the first 2 months, but have mostly given up on it. I'm sticking with omega 3 and vit b6, vit b12, vit E and vit C. but even that is not very constant... hit or miss; if i think of it, ill take them, but mostly don't have much faith in them. in a multi-year withdrawal, they might make all of a couple weeks difference, imho plus i have a tough time taking large pills. and chewing a fish oil gel-cap really sucks... try it, if you dare March 5, 6 2015 1 10mg Paxil each day - only 2 pills total - experienced huge tingle in my head on first pill numbness in my hands and feet, skin less sensitive over all... not ticklish anymore **anhedonia, blank emotions PSSD, anorgasmia heartbeat rhythm problems "To err is human. To really foul things up requires a psychiatrist." http://survivingantidepressants.org/index.php?/topic/8554-akakoom-lost-in-no-mans-land/ "When you are going through hell, keep going" - Winston Churchill (the only way out is through) Link to comment
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now