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manymoretodays

Yes.  It can and will get better!  Don't ever lose hope!

Started with psycho meds circa 1988 I think 27 or 28 total.

AD's, antpsychotics, antiseizure mood stabilizers. Lithium, lamictal ,benzos, and stimulants. Some med. for narcolepsy once(Provigil,) Gabapentin........probably more.  Ask me?......I probably was on it.  Haphazard W/D's by Dr. recommend or uneducated self.

10/2014- off Lexapro--had been on highest dose 10 mg. then 5 mg. for a couple of years, went from 5 mg. to 3 mg. liquid and then CT in hospital(voluntary).  I got out of the hospital on a combination of low dose adderal salts x1/day and trileptal 150mg. x2/day.

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!

 

3/21/2016---I did some unwise updosing of trileptal/oxcarbazepine with some stressful stuff......doubled the above dose x2 during this last wave but began liquifying again and on approximately 68mg. starting today.  11/12//2016 24 mg. oxcarbazepine  12/9/2016 off oxcarbazepine/trileptal!!!! :) optimistic  2016 December 9- completely off all medications!!!!!

Omega3's,EPA +DHA= 1800 mg/day. Magnesium complex, orally, diluted in a liter of H2O(that I can shake up.....it usually dissolves more completely as the water gets down to room temperature) and/or Epsom salt baths prn.   Vit. C, D3, and E.  B12, melatonin tapered to 1mg., and bioidentical hormones sublingually.  Trace mineral drops.  L-lysine.  L-methylfolate=400 mcg plus daily spinach. Totally ready for a good long window to hit soon and getting better strings of full days and partial days along the way.  Definite improvement overall since I first arrived on the SA survivor ship.  Herb and alcohol free since 5/15/2016.  None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider. manymoretodays

 

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  • 3 months later...

Thanks for the video of yourself, Leo. It is encouraging and hopeful. I like the concept of seeking incremental improvements and journaling them. The videos - cartoons - are awesome. 

 

Hope you are doing OK. :)

 

Edited by ChessieCat
removed repeated duplication

2014-present  Lamotrigine ER 600 mg (sz)

2000 - present  Clonazepam 1 mg (.25 mg am;.75 mg pm)

2000 - present  Gabapentin 1000 mg (sz)

2014-2019   Lisinopril 2.5 mg

2010-present Lorazepam/Ativan .5 mg prn only  (sz)

 

2005-2018/19   Assorted SSRIs taken intermittently, incl. dulox.

(6/2015-4/2020) Unwitting 20 mg duloxetine CT Dec 2018. Prev. CT from 20 mg  9/2018.

Suplmnts:  omega 3 fatty acid, CoQ10,  Calcium  Citrate with Vit D3/Mages.

I am not a medical professional. My comments are not medical advice.  They  are based on personal experience.

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8 minutes ago, Guilietta said:

Thanks for the video of yourself, Leo.

 

They aren't videos of Leo.  They are videos which Leo found online and shared with us here.

NEW!!!              INTERVIEW with Altostrata, SA's founder               NEW!!! 

 

ADs:  25 years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after)

Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015  Current from 14 Nov 2020:  Pristiq 0.50 mg

My tapering program                                      My Intro (goes to my tapering graph)

My website - includes my brief history + links to videos & information on the web

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

REMINDER TO SELF:  I don't need the drug now, but my still brain does.

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Oh! They are really good and I just watched the conversation with the MD....really priceless.

 

2014-present  Lamotrigine ER 600 mg (sz)

2000 - present  Clonazepam 1 mg (.25 mg am;.75 mg pm)

2000 - present  Gabapentin 1000 mg (sz)

2014-2019   Lisinopril 2.5 mg

2010-present Lorazepam/Ativan .5 mg prn only  (sz)

 

2005-2018/19   Assorted SSRIs taken intermittently, incl. dulox.

(6/2015-4/2020) Unwitting 20 mg duloxetine CT Dec 2018. Prev. CT from 20 mg  9/2018.

Suplmnts:  omega 3 fatty acid, CoQ10,  Calcium  Citrate with Vit D3/Mages.

I am not a medical professional. My comments are not medical advice.  They  are based on personal experience.

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Thanks, Leo. :)

 

2014-present  Lamotrigine ER 600 mg (sz)

2000 - present  Clonazepam 1 mg (.25 mg am;.75 mg pm)

2000 - present  Gabapentin 1000 mg (sz)

2014-2019   Lisinopril 2.5 mg

2010-present Lorazepam/Ativan .5 mg prn only  (sz)

 

2005-2018/19   Assorted SSRIs taken intermittently, incl. dulox.

(6/2015-4/2020) Unwitting 20 mg duloxetine CT Dec 2018. Prev. CT from 20 mg  9/2018.

Suplmnts:  omega 3 fatty acid, CoQ10,  Calcium  Citrate with Vit D3/Mages.

I am not a medical professional. My comments are not medical advice.  They  are based on personal experience.

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Welcome 

May 2016 - Aug 2016 - Prozac 20mg

 

March 2017 - June 2017 - Sertraline 100mg. Horrific withdrawal 5 m onths.

 

July 2017 - Aug 2017 - Mirtazapine 15mg. Horrific.

 

August 2017 - December 2017 Fluoxetine 10mg for 2 weeks ghen Escitalopram 20mg for 12 weeks. Never felt normal since this. Or baseline.

 

March 2018 - June 2018 - Escitalopram 5mg for 12 weeks. Stopped and here i am full of symptoms i never had.

 

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  • 1 month later...
On 6/3/2019 at 12:28 PM, Altostrata said:

Any words of encouragement for those experiencing withdrawal syndrome?

This gives hope to those that are in extreme hell: from https://beyondmeds.com/2010/01/10/recap-6-drugs-6-years-2/

 

 

To make you feel better, I’ll give you an idea of how bad things were. (Don’t read unless you want some gory details.) For three years I suffered from an irregular heartbeat, a resting pulse anywhere from 120 to 200 beats per minute, a paralyzed bladder (off and on, and I had to catheterize myself to pee), kidneys that didn’t work, glucose intolerance (it’s gone now), and at one point, complete loss of language skills. My eyes were swollen nearly shut, too.

I vomited blood, my hair fell out in clumps, I had seizures, I couldn’t walk in a straight line, my skin peeled like a fruit roll up, etc.

I’m telling you this to illustrate that if I can recover, anyone can. Anyone.

and:

I’m about 85% recovered now, and some days, even more. I’m doing great, and am eagerly looking forward to moving away, getting married, having babies, and doing everything I thought I’d never live to do.

I can go on long walks, shopping…you name it. Out of the over 60+ symptoms I had, only 7 or so remain, and as I’m approaching the 18 month free mark, I know that one of these days, the remaining symptoms will disappear. I’m filled with such happiness and joy, and an appreciation for life I never had before.

Nov/30/17 started Q-MIND (quetiapine) IR tablets 100mg 0-0-1. 

Dec/1/17 started pristiq (desvenlafaxine) 50mg tablets 1-0-0. Jan/4/18 started tapering pristiq by alternating dosages

Jan/5 & 6/18 changed to quetiapine XR 300mg. Jan/7&8/18 changed to quetiapine XR 150mg. Jan/9/18 went back to IR quetiapine 100mg 0-0-1.

Jan/14/18 started with 1.5mg melatonin 0-0-1, fish oil 1-0-1 and magnesium with calcium capsules 2-0-2.

Jan/20/18 went back to one daily pristiq 50mg 1-0-0

Feb/7/18 started neurovit 1-1-1 (glutamic acid 200mg, HCL lysine 150mg, sodium glycerophosphate 112mg & nicotinamide 30mg) 

?/?/18 started neurovit 1-1-0.   ?/?/18 started neurovit 1-0-0.  ?/?/18 started ginko biloba 40mg 1-0-0

Mar/12/18 at night started 15 drops of tramadol. Each drop = 2.5 mg of tramadol. Mar/13/18 to Mar/19/18: (7 days) 15 drops twice a day (15 drops in the morning and 15 drops at night = 15-0-15). 

Mar/20/18 (1 day): morning 15 drops, night 12 drops = 15-0-12. Mar/21/18 (1 day) 12-0-10. Mar/22 & 23/18 (2 days) 12-0-12. Mar/24/18 (1 day) 9-0-9. Mar/25/18 (1 day) 6-0-6. Mar/26 and 27/18 (2 days) 9-0-9. Mar/28 and 29/18 (2 days) 6-0-6. Mar/30 and 31/18 (2 days) 4-0-4. Apr/1/18 - Apr/5/18 (5 days) 6-0-6 . Apr/6/18 - Apr/10/18 (5 days) 5-0-5. Apr/11/18 (1 day) 4-0-4 . Apr/12/18 - Apr/18/18 (7 days) 5-0-5. Apr/19/18 (1 day) 4-0-4. Apr/20/18 - May/3/18 (14 days) 4-0-5. 

May/4/18 - May/18/18 (15 days) 4-0-4. May/19/18- Jun/1/18 (14 days) 3-0-4. Jun/2/18 - Jun/18/18 (17 days) 3-0-3. 

Jun/19/18 - Jul/7/18 (19 days) 2-0-3. Jul/8/18 - Jul/9/18 (2 days) 2-0-2 . Jul/10/18 - Aug/6/18 (28 days) 2-0-3.

Aug/7/18 - Sep/3/18 (28 days) 2-0-2. Sep/4/18 - Sep/13/18 (10 days) 1-0-2. Sep/14/18 - Oct/18/18 (35 days) back to 2-0-2, Oct/19/18 - Nov/16/18 (29 days) 1-0-2. Nov/17/18 didn't take neurovit and ginko. Nov/18/18 - Dec/6/18 (19 days) 1-0-2. (total in 1-0-2 49 days) Dec/7/18 - Jan/29/19 (54 days) 1-0-1. Jan/30/19 - Feb/1/19 (3 days) 1-0-2. Feb/2/19 back to 1-0-1. Feb/2/19 - Mar/29/19 (56 days) 1-0-1. Mar/30/19 started 0-0-1 

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While his Web site thelovelygrind.com is a commercial venture offering Christian-inflected counseling, Michael Priebe has created many inspirational videos regarding recovery from psychiatric drug withdrawal, available on YouTube.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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I get Baylissa's daily words of encouragement. Really like this one:

You are stronger than you know. The fact that you are still holding on means that there is something deep within you - let's call it your human will and determination - that will see you through to recovery. If you are doubting your ability to cope, just remember how much you have already had to deal with. You may think you have no more strength to keep you going, but know that the strength always comes. No matter how intense things are or how weary or drained you may be feeling, trust that you will find ways to manage, to overcome, and to nurture yourself while you are healing.
 
Because of this innate courage and strength, you persevere. So many people tend to give up and go back on the drug or try new ones. It takes immeasurable strength and perseverance to get through withdrawal. You are doing it. You are heroic. No matter how scared you are, how uncertain, how vulnerable you feel, you always keep going.
 
This is what you must continue to do. Don't lose hope. Don't give up. No matter how long you have been holding on, the day will come when your healing will finally be completed. You must continue until this time arrives. Yes, one day, just when the timing is right for you, the symptoms will all abate, never to return. You will know that you are healed and you will be able to exhale and to put this experience behind you.
 
Remember, you are stronger than you realize. Keep going. You will make it.

3/21/19 started Bupropion XL 150 mg

3/21/19 started Risperidone 2mg

7/7/19 start Abilify half dose 5 mg. discontinue Risperidone

7/9/19 full dose Abilify 10 mg

7/29/19 discontinued Abilify due to panicky side effects

8/2/19 Began Latuda 20 mg

8/5/19 discontinued Latuda due to similar side effects 

8/10/19 discontinued Bupropion after realizing it was causing the insomnia

From 8/10/19 no drugs whatsoever

Currently taking Magnesium 150mgs daily

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  • 2 months later...
SolarPlexus
On 3/30/2015 at 10:57 PM, Lilu said:

Withdrawal Dialogues - Impact of Withdrawal

 

https://www.youtube.com/watch?v=fODeaH-bFU4

 

Withdrawal Dialogues - Benzos & Antidepressants

 

No longer available

 

Withdrawal Dialogues - Acceptance

 

https://www.youtube.com/watch?v=rxY4MrQoTjE

 

Withdrawal Dialogues - Family & Carers

 

https://www.youtube.com/watch?v=m0Pzbl1jZGQ

 

Withdrawal Dialogues - Doctor's Visit Pt. 1 - typical

 

https://www.youtube.com/watch?v=iwZuvo_au1M

 

Withdrawal Dialogues - Doctor's Visit Pt. 2 - a keeper

 

https://www.youtube.com/watch?v=AF2vmb8XbHw

 

I am new to the site and just came across these videos that you kindly shared. Thank you so much @Lilu. What a great respite from this difficult journey. I will keep watching them for reassurance! Cheers.

Summer 2016 - summer 2018: put on Lexapro, going from 5 mg up to 20 mg over the span of the 2 years (had visited shrink for help with obsessive thinking, was not diagnosed with anything in particular, just prescribed Lexapro 15 mins into first session)

Summer 2018: tapered down by 2.5 mg every few weeks

Protracted withdrawal ever since. 0-14 months began with a massive panic attack that landed me in ER, followed by prolonged anxiety, mental fog and a skin rash on my back. Was regularly consuming alcohol as did not know I was in WD. From then onwards, hit with worse myriad symptoms. Currently at 22 months and have electromagnetic sensitivity, brain zaps, brain fog, memory problems (especially name recall), twitch in right eyebrow, daily waking up at 3 or 4 a.m. with fast heartbeats and "sticky" negative memories, suicidal thoughts, rage episodes, temperature dysregulation, physical numbness & weakness, libido loss.   

 

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