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Flu-like withdrawal symptoms or real virus flu, how to tell?


Shanti

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Get use to it as it goes on for a long time with breaks it is ground hog day

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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  • 5 months later...

Ive had flu symptoms for a few days ? Is there a way to tell if its a real flu versus paxil flu of withdrawal??

Update 8122017

Zoloft  2004. Effexor 2004-2006. Paxil 20 mg for 2006-2010. Ct 2010, bad effects back on, stable by 2011.  Poopout June 2015. Zoloft with paxil for a while, stopped Zoloft.

Sep 2016 paxil 16.2 mg alone(295 mg pill weight). Started tapering 11/14/2016.

Took off 1 mg pill weight(total pill weight of 20 mg = 365 mg and 16 mg is 295 mg). Went down 1 mg per week of pill weight so down to 291 mg by end of November. Starting getting anxiety issues starting since 12/10/2016. Hoping that a faster taper will help.

12/14/2016 - 15.95 mg (291 mg pill weight)

12/16/2016 -  15.83 mg (289 mg pill weight)

12/23/2016 -  15.67 (286 mg pill weight)

8/12/2017 -  15.34 (280 mg pill weight)

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  • 2 years later...
On 1/9/2015 at 5:35 PM, MrDenton said:

Btdt, what is especially weird in my case is that it is in full force for a week or so and then it seems to heal with still giving some symptoms, like an occasional episode of shivers or slight eye pain or cold feet, and then it almost goes away, so for a day to 2 you do not have any flue like symtoms and then it solwly starts again until it is in full force. Also for the whole time i haven had these non stop flu symtoms my anxiety levels are very high, feel strong negativity and my mind is thinking almost uncontrollably which makes it very difficult to find peace. I had 1 good day in November and 2 good days in December when the flue symtoms whent completely away, and the anxiety was also gone, i had good energy levels and overall positive mood. From December 27 there has not been almost no days when i feel better at least for a few hours, it is a suffering from morning to night, very weak, unforgiving diarrhea, and for me, worst of all- arrythmias, always followed by nausea.

 

But fortunately i sleep pretty well, thank god for that, and this is the main reason why i have stopped my tapper at the moment.

 

I will go and see the best hematologist in the country on Tuesday and see what he will think of my blood picture, and after that i think i will do a 24 hour Holter monitor test.

 

The only thing i could think of causing it, and i am probably wrong, are the tiny inconsistencies in the daily doses. I thought that when i am weighting my pills i will not get exactly the same result and then i am taking one day more the other day less and this is what makes this paxil flu (that usually lasts for 5 days) last and strike over and over again. But this is a stupid guess, and highly unlikely since i have a 0,0001g scale (0,1mg) and it cost my about 1000 dollars, and the daily dose in my experience does not varie more than 0,0005-0,001 mg's, which i think is too few to create these kind of symptoms.

Hi @MrDenton

 

can you tell me more about this flue thing

 

i am tapering too fast and now I try my first longer hold 

 

how long did you hold and when did the flue really get better? Did a long hold between cuts make it go away? I have it everyday very bad. I don‘t know how to survive this?

 

any idea is if help

 

i also thing my pill cutting is not precise although scale is good. 

 

Did the flue get better with pill cutting or only after watertitration?

2010-2018 sertralin, venlafaxin, cymbalta 120 mg, march bupropio, Lorazepam 4 to 0,5 mg qetiapine 200-400 mg Apr mirtazapin 30 - 45 mg, lo tapered, to 0; Apr switch to diazepam 3 mg; jun/jul 15mg, taper to approx. 4,5 mg, Aug: 200 to 400 mg q, 50 mg levomepromazine, m 45 to 30 mg; since tapered q 400-230 mg, m 30 to 15 mg, 1dez m to 16 mg, 4dez 250 mg q, 31. dec 200 mg q

March 1, 2019 - 200 mg quetiapine, 4,5 mg diazepam, 16 mg mirtazapine

March 3, 2019 - 200 mg quetiapine, 4,0 mg diazepam, 16 mg mirtazapine

March 4, 2019 - 200 mg quetiapine, 4,2 mg diazepam,16 mg mirtazapine, 

june 5, 2019 - 100 mg quetiapine, 3 mg Diazepam, 12,185 mg mirtazapine 

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On 1/7/2015 at 2:22 PM, btdt said:

This paxil flu makes sense for people who are still tapering.. and I suppose pooped out could have the same I believe I did have this... in pooped out. 

I have a new question does anyone think it possible to have this post withdrawal... 

I would like to suggest it is possible and if it is possible that this sort of "flu" hits in withdrawal pooped out and post withdrawal perhaps there is more to it than we think.  It is just a suggestion coming from the fact I have just read Mr Dentons post about having this part way thru his taper and his description is the same as what I had not only in pooped out but for 3 months post ct ...but have had a few times this year?  

I wonder what could be the underlying force for this if indeed I am correct and there is more going on here than we think.  

Ideas and your account of the situation are welcomed. 

MCV ... large blood cells is all I can recall from then.but there may be more.. I would have to look. 

Hi @btdt

how is the flue now?

how long did it last? Does it still last?

2010-2018 sertralin, venlafaxin, cymbalta 120 mg, march bupropio, Lorazepam 4 to 0,5 mg qetiapine 200-400 mg Apr mirtazapin 30 - 45 mg, lo tapered, to 0; Apr switch to diazepam 3 mg; jun/jul 15mg, taper to approx. 4,5 mg, Aug: 200 to 400 mg q, 50 mg levomepromazine, m 45 to 30 mg; since tapered q 400-230 mg, m 30 to 15 mg, 1dez m to 16 mg, 4dez 250 mg q, 31. dec 200 mg q

March 1, 2019 - 200 mg quetiapine, 4,5 mg diazepam, 16 mg mirtazapine

March 3, 2019 - 200 mg quetiapine, 4,0 mg diazepam, 16 mg mirtazapine

March 4, 2019 - 200 mg quetiapine, 4,2 mg diazepam,16 mg mirtazapine, 

june 5, 2019 - 100 mg quetiapine, 3 mg Diazepam, 12,185 mg mirtazapine 

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On 1/9/2015 at 5:35 PM, MrDenton said:

Btdt, what is especially weird in my case is that it is in full force for a week or so and then it seems to heal with still giving some symptoms, like an occasional episode of shivers or slight eye pain or cold feet, and then it almost goes away, so for a day to 2 you do not have any flue like symtoms and then it solwly starts again until it is in full force. Also for the whole time i haven had these non stop flu symtoms my anxiety levels are very high, feel strong negativity and my mind is thinking almost uncontrollably which makes it very difficult to find peace. I had 1 good day in November and 2 good days in December when the flue symtoms whent completely away, and the anxiety was also gone, i had good energy levels and overall positive mood. From December 27 there has not been almost no days when i feel better at least for a few hours, it is a suffering from morning to night, very weak, unforgiving diarrhea, and for me, worst of all- arrythmias, always followed by nausea.

 

But fortunately i sleep pretty well, thank god for that, and this is the main reason why i have stopped my tapper at the moment.

 

I will go and see the best hematologist in the country on Tuesday and see what he will think of my blood picture, and after that i think i will do a 24 hour Holter monitor test.

 

The only thing i could think of causing it, and i am probably wrong, are the tiny inconsistencies in the daily doses. I thought that when i am weighting my pills i will not get exactly the same result and then i am taking one day more the other day less and this is what makes this paxil flu (that usually lasts for 5 days) last and strike over and over again. But this is a stupid guess, and highly unlikely since i have a 0,0001g scale (0,1mg) and it cost my about 1000 dollars, and the daily dose in my experience does not varie more than 0,0005-0,001 mg's, which i think is too few to create these kind of symptoms.

Hi mr @MrDenton

how is the flue now?

 

i suffer immensely for months.

tanha from germany

2010-2018 sertralin, venlafaxin, cymbalta 120 mg, march bupropio, Lorazepam 4 to 0,5 mg qetiapine 200-400 mg Apr mirtazapin 30 - 45 mg, lo tapered, to 0; Apr switch to diazepam 3 mg; jun/jul 15mg, taper to approx. 4,5 mg, Aug: 200 to 400 mg q, 50 mg levomepromazine, m 45 to 30 mg; since tapered q 400-230 mg, m 30 to 15 mg, 1dez m to 16 mg, 4dez 250 mg q, 31. dec 200 mg q

March 1, 2019 - 200 mg quetiapine, 4,5 mg diazepam, 16 mg mirtazapine

March 3, 2019 - 200 mg quetiapine, 4,0 mg diazepam, 16 mg mirtazapine

March 4, 2019 - 200 mg quetiapine, 4,2 mg diazepam,16 mg mirtazapine, 

june 5, 2019 - 100 mg quetiapine, 3 mg Diazepam, 12,185 mg mirtazapine 

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I've constantly been feeling sick lately. My eyes burn, throat hurts, exhausted, feeling warm but no fever, muscle aches and headaches. Does this flu-like state last long? I can't stand it. 

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  • 6 months later...

I have been feeling pretty bad for about 10 days now with a low-level cold/flu-like heat but no apparent fever, although I haven't actually measured my temperature. Edit: just checked it, 35.3 Celsius under the armpit during a heatwave, which means I'm about right for someone with hypothyroidism. Compared to my girlfriend's of about 36 Celsius. So I doubt it's a real low-grade fever.

 

Muscle aches with burning, mostly in the legs. I can exercise but most of the time I feel wretched, much like one would feel with a bad cold, without any cough, congestion, or other symptoms. I hope those who posted found relief eventually because this is damn horrible. I found major distraction and denial help as well as walking and swimming but only for the period I'm doing something. When at rest, it's at its worst. I describe it like a relatively mild deep burning ache in one's leg bones, which is what I feel during a bad cold or influenza usually, as well as the general feeling of being unwell during a bad cold or influenza.

 

It's either Lyme disease (due to a recent tick bite) or withdrawal.

 

I've seen 3 doctors now about this and none of them are convinced it's Lyme but won't rule it out completely, understandably. I don't tell them I am withdrawing from an SSRI because of course, they are highly unlikely to know about it and even if they did, there's not much they can do for me. I'm reducing my drug slowly and happy to keep going, even though I feel horrible. I just hope it's withdrawal and not an infection. I'll update this thread when I find out. 

 

Good luck out there :)

2012: 2 weeks of paroxetine, I cannot recall the dose. Strong side effects, stopped cold turkey, had intense, horrible withdrawal thereafter

2012 to 2016: Fluoxetine 40mg daily, sometimes 20mg daily, a couple of bad tapers under doctor's advisement, increasingly bad withdrawal symptoms with each major dose change

Oct 2016 to June 2017: 10-month reinstatement of 20mg fluoxetine daily to stabilize. A very difficult period but withdrawal gradually improved

July 2017: At 20mg (100%), started a linear tapering regimen using water titration (20mg fluoxetine into 300ml of water).

June 2019: Currently at 0.200mg (1.00%). I have many symptoms, most I attribute to fluoxetine, some to withdrawal, and the rest to hypothyroidism. Continuing to reduce anyway.

July 2019: Jumped from 0.066mg (0.33%) to 0.000mg (0.00%); I'm now free of the poison.

 

My introduction thread: https://www.survivingantidepressants.org/topic/14226-kittygiggles-generic-prozac-fluoxetine-stabilization/

 

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19 minutes ago, Kittygiggles said:

I have been feeling pretty bad for about 10 days now with a low-level cold/flu-like heat but no apparent fever, although I haven't actually measured my temperature. Edit: just checked it, 35.3 Celsius under the armpit during a heatwave, which means I'm about right for someone with hypothyroidism. Compared to my girlfriend's of about 36 Celsius. So I doubt it's a real low-grade fever.

 

Muscle aches with burning, mostly in the legs. I can exercise but most of the time I feel wretched, much like one would feel with a bad cold, without any cough, congestion, or other symptoms. I hope those who posted found relief eventually because this is damn horrible. I found major distraction and denial help as well as walking and swimming but only for the period I'm doing something. When at rest, it's at its worst. I describe it like a relatively mild deep burning ache in one's leg bones, which is what I feel during a bad cold or influenza usually, as well as the general feeling of being unwell during a bad cold or influenza.

 

It's either Lyme disease (due to a recent tick bite) or withdrawal.

 

I've seen 3 doctors now about this and none of them are convinced it's Lyme but won't rule it out completely, understandably. I don't tell them I am withdrawing from an SSRI because of course, they are highly unlikely to know about it and even if they did, there's not much they can do for me. I'm reducing my drug slowly and happy to keep going, even though I feel horrible. I just hope it's withdrawal and not an infection. I'll update this thread when I find out. 

 

Good luck out there :)

Don't worry about lyme disease. Flu like symptoms are very common acute withdrawal symptoms. I had awful leg pains , fever.. the whole works. It goes away.

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Hey @Eastcoastgirl, thank you so much for your message. I've been around a while but it only occurred to me to check SA for these symptoms tonight. I had no idea how common it was. It's remarkable as it is really like being ill but without any outward signs of it. I just presumed Lyme because my withdrawal symptoms never really changed and this was new, right after the bite. 

 

I hope you're right, you probably are: 3 doctors in and no Lyme yet, which is good because I really do not want to take doxycycline. I tried it a couple of times and it turns me into a zombie. 

 

Believing it's withdrawal is very reassuring. I'm so close to zero and I am barely able to contain my excitement. 

 

I'll update when I know what it is. Thanks again @Eastcoastgirl and I am so glad your experience with these symptoms ended :)

Edited by Karma
Name update

2012: 2 weeks of paroxetine, I cannot recall the dose. Strong side effects, stopped cold turkey, had intense, horrible withdrawal thereafter

2012 to 2016: Fluoxetine 40mg daily, sometimes 20mg daily, a couple of bad tapers under doctor's advisement, increasingly bad withdrawal symptoms with each major dose change

Oct 2016 to June 2017: 10-month reinstatement of 20mg fluoxetine daily to stabilize. A very difficult period but withdrawal gradually improved

July 2017: At 20mg (100%), started a linear tapering regimen using water titration (20mg fluoxetine into 300ml of water).

June 2019: Currently at 0.200mg (1.00%). I have many symptoms, most I attribute to fluoxetine, some to withdrawal, and the rest to hypothyroidism. Continuing to reduce anyway.

July 2019: Jumped from 0.066mg (0.33%) to 0.000mg (0.00%); I'm now free of the poison.

 

My introduction thread: https://www.survivingantidepressants.org/topic/14226-kittygiggles-generic-prozac-fluoxetine-stabilization/

 

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On 7/5/2019 at 7:46 PM, Kittygiggles said:

Hey @Eastcoastgirl, thank you so much for your message. I've been around a while but it only occurred to me to check SA for these symptoms tonight. I had no idea how common it was. It's remarkable as it is really like being ill but without any outward signs of it. I just presumed Lyme because my withdrawal symptoms never really changed and this was new, right after the bite. 

 

I hope you're right, you probably are: 3 doctors in and no Lyme yet, which is good because I really do not want to take doxycycline. I tried it a couple of times and it turns me into a zombie. 

 

Believing it's withdrawal is very reassuring. I'm so close to zero and I am barely able to contain my excitement. 

 

I'll update when I know what it is. Thanks again @KMart95 and I am so glad your experience with these symptoms ended :)

Oh I missed the part where you said you were bit. How long was the tick attached? I don't know much about lyme but I believe it has to be attached for about 48 hours to transmit lyme to a person? Have any of the doctors tested you? If not you should definitely keep pushing to have that ruled out. I think the sooner you treat lyme, the better. Withdrawal definitely mimics chronic illness in a lot of ways though! There are other people here with lyme, if you search you may be able to find out if your symptoms are similiar to others here.

Edited by Karma
Name update
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I think Lyme is misdiagnosed a lot these days. I know people are very concerned about it on various websites and there's a lot of pseudoscience going around. I checked the thread here but I just wanted to visit this thread to see if fluoxetine could be a possible cause. I can't go for a Lyme test yet as the bite was very recent and I took a prophylactic doxycycline dose. It could have been there for 48 hours maybe a lot less, maybe a little more. I removed it with the head, and there was no rash and it healed quickly and nicely. Ruling it out will have to wait another 2 weeks unfortunately. I was bitten before years ago, by a tick that could have been there for a while. I check myself twice a day for ticks now, formerly once a day. It's an occupational hazard sadly, living in a place surrounded by animals and trees. 

 

In any case, I definitely could have Lyme but as no doctor is concerned yet I am trying not to be either :) 

 

Thank you again @Eastcoastgirl, it's great to find generous people willing to share their experience :) Anyway, sorry, I didn't mean to derail the thread. Suffice to say, my symptoms do seem to match pretty much everyone else's here for now but if anything changes and it is relevant to SSRI withdrawal, I'll update the thread. 

Edited by Karma
Name update

2012: 2 weeks of paroxetine, I cannot recall the dose. Strong side effects, stopped cold turkey, had intense, horrible withdrawal thereafter

2012 to 2016: Fluoxetine 40mg daily, sometimes 20mg daily, a couple of bad tapers under doctor's advisement, increasingly bad withdrawal symptoms with each major dose change

Oct 2016 to June 2017: 10-month reinstatement of 20mg fluoxetine daily to stabilize. A very difficult period but withdrawal gradually improved

July 2017: At 20mg (100%), started a linear tapering regimen using water titration (20mg fluoxetine into 300ml of water).

June 2019: Currently at 0.200mg (1.00%). I have many symptoms, most I attribute to fluoxetine, some to withdrawal, and the rest to hypothyroidism. Continuing to reduce anyway.

July 2019: Jumped from 0.066mg (0.33%) to 0.000mg (0.00%); I'm now free of the poison.

 

My introduction thread: https://www.survivingantidepressants.org/topic/14226-kittygiggles-generic-prozac-fluoxetine-stabilization/

 

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