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2014 the beginning of November I went to a psychiatrist and got misdiagnosed with psychosis and depression and was prescribed Rispolept (Risperidone) 3 mg and Cipralex (Escitalopram) 10 mg. I took these drugs at home, then in the psychiatric hospital until around the end of December, so for about 1.5 month, until I was discharged, then cold turkeyed. Antipsychotic - 3 mg/day, SSRI - 10 mg/day. I felt very bad, suicidal that whole time, at first not even realizing it was the drugs affecting me and in fact almost committed suicide. While on medication I experienced akathisia, severe fatigue, anhedonia, weak emotions, almost non existent libido that gradually got worse, slowed reaction time, thinking, talking, moving, poor memory, what I'd call derealization, zombie like state, frequent urination, dizziness , headaches, one side of brain, frontal lobes especially, abnormal gait, strange feeling in frontal lobes, increased appetite, too high body temperature, especially after running, nerve pain in left leg, arm, numbness in left arm, leg and left side of face I think.

After quitting the drugs I thought everything would go back to normal, but it didn't.

After about a month drug free I had: severe sexual dysfunction (post antipsychotic sexual dysfunction-PAPSD), my left hand was somewhat numb, and to a lesser extent, my left leg. I also started noticing dystonia in my left cheek and eyelid. Slight tremor in left arm fingers. Dizziness when turning head. I also noticed I had developed slight gynecomastia.

After two months the painful tingling in my left arm was very severe some days lasting the whole day. Very bad pain. Dizziness disappears.

Month 3: painful dystonia in middle of back, left side of spine appears, more pronounced in the evening. Weak morning erections appear.

Month 4: (2015-04-09) tingling in left arm subsided, but it's still numb. I think the tingling is the nerves recovering.

 

Hoping for recovery. Will update.

I'm optimistic about the dystonias, paresthesia (but probably won't recover sensation fully), sexual dysfunction, as far as I know my new man boobs should also reduce in size with time. But I heard that the neuroleptic induced parkinsonian tremor does not always disappear, and I'm not seeing a reduction in the tremor, so I'm worried about that. Also, obviously worried about the sexual dysfunction. I used to be very sexually active, but now have very infrequent orgasm, because they're so very difficult to achieve and not so rewarding. My pre-neuroleptic emotionality has fully returned after stopping the drugs, I think. I also heard Risperidone can permanently reduce testosterone, but I haven't seen a reduction in facial hair growth.

Been drug free for 4 month now. Never took any psych drugs before in my life. Now only taking fish oil, multivatamin and mineral tablets, sometimes magnesium 300 mg. I tried Vitamin B Complex but I think I'm allergic to it. Psychiatrists truly are ignorant.

2014-11-10 after worrying about a stroke, encouraged by mom, went to psychiatrist, put on Risperidone 3 mg, Escitalopram 10 mg and Parkopan 2 mg. Later inpatient.

~2014-12-15 ct all.

Periferal neuropathy lasted ~6 months, tardive dystonia nearly gone.

Most troubling symptom is severe PSSD, it persists.

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  • Moderator Emeritus

Welcome Animus,

Thank you for posting.  I'm sorry to hear you are still having some symptoms after stopping Risperidone and Escitalopram four months ago.  Unfortunately, this is quite common, all psychiatric drugs need to be tapered, otherwise withdrawal symptoms can occur.

 

But it sounds like you are recovering slowly and I'm sure you will continue to do so. 

 

Please would put your drug and withdrawal history in your signature. Putting a short version of your drug and tapering history in your signature helps people understand your context, it appears below each of your posts. Here are instructions for how to do it:

 

http://survivinganti...your-signature/

 

Here is the link to our symptoms and self care section, you may find some useful ideas to help manage symptoms as you recover.  Especially read the topics pinned at the top.

 

Please feel free to write whenever you want, you will find a lot of friendly help and support here.

 

Petunia

I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal...if you are lucky enough to find one.

My Introduction Thread

Full Drug and Withdrawal History

Brief Summary

Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety) Xanax PRN ~ Various other drugs over the years for side effects

2 month 'taper' off Lexapro 2010

Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal

DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms

Failed reinstatement of Lexapro and trial of Prozac (became suicidal)

May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.

Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes

Supplements which have helped: Vitamin C, Magnesium, Taurine

Bad reactions: Many supplements but mostly fish oil and Vitamin D

June 2016 - Started daily juicing, mostly vegetables and lots of greens.

Aug 2016 - Oct 2016 Best window ever, felt almost completely recovered

Oct 2016 -Symptoms returned - bad days and less bad days.

April 2018 - No windows, but significant improvement, it feels like permanent full recovery is close.

VIDEO: Where did the chemical imbalance theory come from?



VIDEO: How are psychiatric diagnoses made?



VIDEO: Why do psychiatric drugs have withdrawal syndromes?



VIDEO: Can psychiatric drugs cause long-lasting negative effects?

VIDEO: Dr. Claire Weekes

 

 

 

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  • 1 month later...
  • Moderator Emeritus

I also have dystonia.

**I'm not a doctor and don't give medical advice, merely personal experience
***Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not
-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014

-All meds were Rxed off-label for an autoimmune illness.  It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage.  All med tapers/cold turkeys directed by doctors 

-Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine

-Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey)

-Lorazepam 1 mg per night during 2011
-Lorazepam 1 mg per month in 2012 (or less)

-Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week

-Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs 

-First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened

-Two weeks after I got off all meds, I developed full-blown TD.  Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.

-Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned
-Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat
-Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged
-4 years off: Huge improvements, incl. improved dystonia

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  • 3 weeks later...

Hi Animus, has anything changed?

2009: Cancer hospital said I had adjustment disorder because I thought they were doing it wrong. Their headshrinker prescribed Effexor, and my life set on a new course. I didn't know what was ahead, like a passenger on Disneyland's Matterhorn, smiling and waving as it climbs...clink, clink, clink.

2010: Post surgical accidental Effexor discontinuation by nurses, masked by intravenous Dilaudid. (The car is balanced at the top of the track.) I get home, pop a Vicodin, and ...

Whooosh...down, down, down, down, down...goes the trajectory of my life, up goes my mood and tendency to think everything is a good idea.
2012: After the bipolar jig was up, now a walking bag of unrelated symptoms, I went crazy on Daytrana (the Ritalin skin patch by Noven), because ADHD was a perfect fit for a bag of unrelated symptoms. I was prescribed Effexor for the nervousness of it, and things got neurological. An EEG showed enough activity to warrant an epilepsy diagnosis rather than non-epileptic ("psychogenic") seizures.

:o 2013-2014: Quit everything and got worse. I probably went through DAWS: dopamine agonist withdrawal syndrome. I drank to not feel, but I felt a lot: dread, fear, regret, grief: an utter sense of total loss of everything worth breathing about, for almost two years.

I was not suicidal but I wanted to be dead, at least dead to the experience of my own brain and body.

2015: I  began to recover after adding virgin coconut oil and organic grass-fed fed butter to a cup of instant coffee in the morning.

I did it hoping for mental acuity and better memory. After ten days of that, I was much better, mood-wise. Approximately neutral.

And, I experienced drowsiness. I could sleep. Not exactly happy, I did 30 days on Wellbutrin, because it had done me no harm in the past. 

I don't have the DAWS mood or state of mind. It never feel like doing anything if it means standing up.

In fact, I don't especially like moving. I'm a brain with a beanbag body.   :unsure:

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4 months in is still very early, if you've achieved this amount of success in 4 months I have a strong feeling that you'll recover fully within a couple of years.  you're extremely lucky that your emotional numbness disappeared completely.  Some of the lingering symptoms will miraculously, and slowly disappear over time.  I'm not sure about the gynomastica, those are newly laid down fat cells, which might make recovery less straightforward.  I'm sure there are success stories around the web.  I can understand how this might make you feel uncomfortable, as I personally developed a pretty bad case of vitilligo due to psych meds, and it's just very frustrating to have a PHYSICAL side effect that everyone can see. 

 

Daily exercise, good diet, and self care - AND NO EXPOSURE TO ANY MORE DRUGS (LEGAL OR ILLEGAL) will see you through this.  The best mindset that I've found to recover from all this horror is to accept that fact that my old self may never completely return, and my old hedonic lifestyle may not totally come back - therefore, it's best to just avoid many of the stressors that most people pursue in their lives because it might affect my recovery.  Exposure therapy during WD is not that effective, it just stresses out the nervous system.  Treat this like cancer, and you should be in decent shape in the long run.

 

I didn't know what dystonia was until I saw this youtube video: 

 

 

Is your case this severe?  What a tragic side effect!!!  I pray for our recovery.

 

Stay in touch and let us know how you do as the months proceed.

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  • 2 months later...

Thought I'd update. Thank you for your interest people. I'm not too good. The physical pain I had from the peripheral neuropethy is gone, and the dystonia (which was very mild compared to your video) largely subsided around the 6 month mark, although I can still feel it in my cheek and back, just not painful. So that's good. The gynecomastia is very mild too, basically, the change is only noticed by me. But what bothers me the most are the psychic issues. No changes in PSSD, I still can not feel aroused, sexually excited and the like. Very devastating if I have to live like this for the next 60 years, I'm only 21 (male), don't know how I'd make it. I'm bothered because I've been getting comments from people close to me that my personality is not like it used to be. I've become more outgoing, obnoxious, restless, energetic, touching, hugging too much, less laid back as opposed to the reserved, shy, introverted, calm pre-drug me. These changes bother me and it's hard to tell if they're really from the drugs. I also have extremely frequent anger at the psychiatrist who prescribed me this poison, how could she not know about PSSD and other permanent changes of these drugs, after spending 10 years learning about it? And she's doing the same to other innocent people right now. I hope I won't do anything stupid.

I know that all of this is partly my fault, I know I should have done extensive research before ingesting a drug, after all, you research a program before installing it on your computer, and this is a person's brain that we're talking about. I'm very internet research savvy otherwise, should have been one of those people who know about PSSD and therefore won't ever try an SRI. I even read this person's story about PSSD like a month before ingesting the SSRI for the first time, it was like a warning from above, but my stupid head somehow did not connect the dots. I was fooled by psychiatry's aura, like many others, having never heard about it before.

I don't think I will wait for the PSSD to heal, cause that could never even happen, there are people who have waited for 20+ years, like Sonny. I will try to reverse it with Mianserin like LouisSyfer did. Or alleviate the symptoms with aphrodisiacs like dopamine agonists, marijuana, buspirone, GHB or even meth to be able to feel horny again. As soon as I have the money, because I live in the Baltic States, the money's not too great here.

Again, thanks for your concern, wish you all health.

2014-11-10 after worrying about a stroke, encouraged by mom, went to psychiatrist, put on Risperidone 3 mg, Escitalopram 10 mg and Parkopan 2 mg. Later inpatient.

~2014-12-15 ct all.

Periferal neuropathy lasted ~6 months, tardive dystonia nearly gone.

Most troubling symptom is severe PSSD, it persists.

Link to post

Man don't turn to drugs, its a road to nowhere. Our only chance for healing PSSD is patience and healthy lifestyle - diet, exercise. To be honest I tried Trazodone to try and reverse PSSD because its a 5-HT 2A/2C antagonist and all it did is damaged my d*ck to the point of no return I'm afraid, changes in shape, colour, gross stuff really. Before that I tried cocaine and mdma, nothing. Don't damage yourself even further, stay away from viagra cialis and other **** for a while. Give it a year or two and then make this kind of decisions. Thats just my opinion

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  • Administrator

Animus, it's good to hear your healing has progressed.

 

PSSD also tends to heal, very slowly.

 

Many people do better with fish oil and magnesium supplements, see
http://survivingantidepressants.org/index.php?/topic/36-king-of-supplements-omega-3-fatty-acids-fish-oil/
http://survivingantidepressants.org/index.php?/topic/1300-magnesium-natures-calcium-channel-blocker/

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Man don't turn to drugs, its a road to nowhere. Our only chance for healing PSSD is patience and healthy lifestyle - diet, exercise. To be honest I tried Trazodone to try and reverse PSSD because its a 5-HT 2A/2C antagonist and all it did is damaged my d*ck to the point of no return I'm afraid, changes in shape, colour, gross stuff really. Before that I tried cocaine and mdma, nothing. Don't damage yourself even further, stay away from viagra cialis and other **** for a while. Give it a year or two and then make this kind of decisions. Thats just my opinion

 

That's really a good testimate for why NOT to try to use drugs to treat changes created by SSRIs :(

 

I'm so sorry about your situation, my friend.

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