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caperjackie

caperjackie 4 Years Off Paxil

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caperjackie

I posted the following this time last year on another forum. It was my 3 year update.

 

 

Today - I am active, healthy and busy living my life with barely a thought to WD. I feel pleasure and pain, excitement and disappointment, joy and hurt, I cry and I laugh - all the normal range of emotions that are part of the human condition. I have my energy and motivation back. Today - I consider myself a full success story because any more healing will be a bonus only.

 

This, is without question, the hardest thing that I have ever gone through but I do not regret doing it. I am completely 'med' free and have my own mind back (for what that is worth lol) so IF the handful of 'residual issues' (listed below) that remain, happen to stay around I consider the price worth it.

 

Residual Issues 

Physical

Tinnitus - this is by far the worst physical symptom. It started while on Paxil and became considerably and progressively worse once off. There are basically 2 sounds which both vary in intensity - a high pitched whine and a low buzzing.  Every month or so I get a few hours break of blissful silence which gives me hope that it will completely go away one day. Can be irritating at times and I am usually aware of it but the overall impact has become minimal.

Numb feet - this has stayed with me since coming off and sometimes affects my balance. It too varies in intensity but aside from being more careful in the shower (cannot tell if I am going to slip) this has less than minimal impact on my life.

Vision - eyes are healthy but vision problems come and go. Mostly blurring and floaters. Minimal impact.

Skin - still have worse acne outbreaks than when I was a teenager. I suspect that the hormonal system could still be adjusting. Impact on my life ....... ZERO

 

Psychological/Emotional

Stress tolerance -these have been bad for the duration and up until a couple of months ago I would have said that they were still at very low levels. Recently though, I have found myself in a number of very high stress situations  and surprised myself by not falling apart - apparently I just needed some practice LOL. Impact on my life ........... moderate to minimal

Anxiety levels - these have vastly improved (how could they not after the ridiculous stuff of acute WD), however ............ I still have times and they have a different 'feel' to pre- med anxiety. Impact on my life is moderate because this only impacts when the levels are bad - the regular anxiety that I have always lived with is now a walk in the park by comparison.

Depression - once in a while with months between sessions. This is something that I never had pre 'meds' so I count it as a residual issue. It comes with the usual misery - crying, lethargy, suicidal thoughts etc. Impact is minimal because it happens rarely and only lasts a few days.

 

Update

Nothing has changed in the last year except for a bit more anhedonia. Although I said that it doesn't matter above, I now realize that I had hoped for some more healing. I still do not regret coming off these foul poisons and would do it again even knowing what was ahead ........... however ............ is this it?

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Altostrata

Congratulations, caperjackie. I am sure more healing is ahead of you.

 

(To read more of caperjackie's history, see ☼ caperjackie: 9 months off Paxil

 

Please continue to converse with her in this Success Story topic.)


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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aberdeen

caperjackie, hi! I feel very similar. I think anhedonia is just a tag a long symptom for the long haul. I do notice mine has periods of more improvement than ever before though. It windows and waves of course, but the windows are better than they once were (speaking specifically of the anhedonia). It will go eventually. It was also one of my first symptoms, it began before the really torturous stuff, and seems to have outlasted it also. Hang in there.


2 Timothy 1-7 For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind.

Effexor 75mg to 262.5mg 2005-2010 for post partum depression

Started having poop out mid 2010, also switched generic brands, then crashed in Dec 2010 (anxiety/ "terror", intense DR, anhedonia, suicidal ideation, chills, insomnia, horrible intrusive thoughts, disorientation, ect)
Rapid "tapered" from 262.5mg Effexor in 3 months

Tried Celexa,Cipralex, then Paxil to deal with wd(this switching made things worse and added akathesia)

Found online support and started tapering Paxil 7 months after quitting Effexor (at this point was having small windows).

Paxil taper: dropped 10% every 4-8 weeks

Year 1 October 2011 to Nov 2012 20mg to 10mg

Year 2 March 2013 to Feb 2014 10mg to 4mg

Year 3 April 2014 to May 2015 4mg to 1.1mg

Year 4 June 2015 1.1mg , dropping by 10% until .5mg, after then dropped by 0.1mg every 5 weeks until 0.1mg.

Finished! Official last dose of 0.1mg on June 15/16

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nz11

Caperjackie just saw this thread .

 

Wishing you heaps more healing . 

 

I also have anhedonia so you are not alone.

How about sleep ...are you sleeping ok.

Yes i have also surprised myself by being able to hold it together when i was bracing myself for a cog implosion that never occured or if it did it was short lived. 

 

Thanks for taking the time to do an update


Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

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oskcajga

I posted the following this time last year on another forum. It was my 3 year update.

 

 

Today - I am active, healthy and busy living my life with barely a thought to WD. I feel pleasure and pain, excitement and disappointment, joy and hurt, I cry and I laugh - all the normal range of emotions that are part of the human condition. I have my energy and motivation back. Today - I consider myself a full success story because any more healing will be a bonus only.

 

This, is without question, the hardest thing that I have ever gone through but I do not regret doing it. I am completely 'med' free and have my own mind back (for what that is worth lol) so IF the handful of 'residual issues' (listed below) that remain, happen to stay around I consider the price worth it.

 

Residual Issues 

Physical

Tinnitus - this is by far the worst physical symptom. It started while on Paxil and became considerably and progressively worse once off. There are basically 2 sounds which both vary in intensity - a high pitched whine and a low buzzing.  Every month or so I get a few hours break of blissful silence which gives me hope that it will completely go away one day. Can be irritating at times and I am usually aware of it but the overall impact has become minimal.

Numb feet - this has stayed with me since coming off and sometimes affects my balance. It too varies in intensity but aside from being more careful in the shower (cannot tell if I am going to slip) this has less than minimal impact on my life.

Vision - eyes are healthy but vision problems come and go. Mostly blurring and floaters. Minimal impact.

Skin - still have worse acne outbreaks than when I was a teenager. I suspect that the hormonal system could still be adjusting. Impact on my life ....... ZERO

 

Psychological/Emotional

Stress tolerance -these have been bad for the duration and up until a couple of months ago I would have said that they were still at very low levels. Recently though, I have found myself in a number of very high stress situations  and surprised myself by not falling apart - apparently I just needed some practice LOL. Impact on my life ........... moderate to minimal

Anxiety levels - these have vastly improved (how could they not after the ridiculous stuff of acute WD), however ............ I still have times and they have a different 'feel' to pre- med anxiety. Impact on my life is moderate because this only impacts when the levels are bad - the regular anxiety that I have always lived with is now a walk in the park by comparison.

Depression - once in a while with months between sessions. This is something that I never had pre 'meds' so I count it as a residual issue. It comes with the usual misery - crying, lethargy, suicidal thoughts etc. Impact is minimal because it happens rarely and only lasts a few days.

 

Update

Nothing has changed in the last year except for a bit more anhedonia. Although I said that it doesn't matter above, I now realize that I had hoped for some more healing. I still do not regret coming off these foul poisons and would do it again even knowing what was ahead ........... however ............ is this it?

 

 

Wow, that's an incredible amount of healing.  I'd be so thrilled if I could be in that sort of shape 3 years off this stuff.  Congratulations, you're so lucky.

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nz11

Hi Caperjackie

 

Just wanted to let you know i have got my front row seat sorted in anticipation of your 5 yr update which i think is due at the end of the month right?

 

Hope you are doing even better these days.

 

nz11


Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

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ChessieCat

Hi there,

 

The staff at SA are wondering how you are.  We'd love to hear how you are doing now.   Would you mind dropping by and giving an update?

 

Thanks.

CC


Being very patient.  I'll get there - slowly.  ETA mid 2021

ADs:  25 years - 1 unknown, Prozac (caused muscle weakness), Zoloft/sertraline; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after)

Pristiq:  50mg 2012, 100mg beg 2013 (mild Serotonin Toxicity)

Began tapering Oct 2015  Current from 12 Sept 2020:  Pristiq 0.625 mg (compounded)

My tapering program

My Intro (goes to my tapering graph)

My website - includes my brief history + links to videos & information on the web

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

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