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Sunnydays: 11 months off 16 years of ssri (CT)


Sunnydays

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Hello everyone.

I found this site a few months ago but only now do I feel I have the mental strength to write anything remotely coherent. I am in no way recovered but I hope my story offers some encouragement to those in acute withdrawal particularly those who cold turkey.

As a teenager I suffered anorexia, I was hospitalised several times and things got pretty serious. This was back in the 90s and there was not the specialised care available that there is today. The professionals tried there best but did not know really what to do with me. This went on for years I would put weight on to loose it again, my poor parents suffered terribly. Eventually some bright spark suggested a antidepressant, I was 5 stone and eating nothing and I believe I did not metabolise the drug properly. I became a zombie which frustrated me more as I could not exercise. Roll on 2 years and at 18 I started to improve I gained some weight went back to college but I could fine no happiness in life, I felt flat, empty with little enthusiasm and basically wanted to sleep constantly. Looking back I did not feel depressed I could still work and function I just felt flat and lonely. Anyway on my Drs advise I began seroxat I think it was 20mg but not sure. I took this for 4 years, I have to say it did help I became less withdrawn and got more joy from life, but I had regular periods of unexplained illness, I would became almost chronically fatigued for days on end unable to do anything but sleep.

I'm trying to cut this shorter so I will summarise. Seroxat was hell to come off, I tried several times and ended up doing a cold turkey which was rough very rough ( although my standards on rough have recently widened ) It took but 6 weeks to get any improvement but even then I cried constantly and My Dr put me on prozac and lorazepam for the sleeplessness. A week later and I mean a week I had gone from crying all day everyday unable to do much at all to, up at 7am
In the gym then off to work, the change was unbelievable and my Dr was slapping his self on the back and I was beside myself with happiness.

Roll on 5 years.. I'm still doing great Iv cut down to a prozac every other day and changed lorazepam to diazepam but I only take very small amounts of this maybe 5mg a week.

Roll on another 3 years I'm in prozac 20mg every 3 days and same amount of diazepam. I'm ok but get more anxious and worried about stuff but I'm working and functioning ok.

2014 I decided the prozac is done I'm happy I'm working I have 2 kids I don't need 7ish mg of prozac. My Dr says just stop your virtually off it anyway worse you will get if flu like symptoms. So I do.

I remember a few days after stopping feeling fantastic so relaxed happy and full of joy.

Roll on 2 months and I start to get very stressed with the kids I tenner throwing a plate at the wall and just standing there and crying. I felt angry all the time and I'm the most placid person in the world.

Roll on another 2 months and things start to get serious I can't sleep I toss and turn all night, I'm stressed and angry 24-7.

6 month after stopping prozac the sh@t really hits the fan. My whole world turns. I won't go into all the symptoms as from reading on the site I know you have felt them. These are the top 5 though

# fear ( I will not use anxiety as it does not convey the true horror of this feeling. A word has yet to be invented to describe it)
# severe agitation ( maybe akathesia )
# severe insomnia nights on end without sleep and massive muscle jerks
# severe depression and it brought it's friends DP DR and SI
# severe neck pain, ear pressure, jaw pain

To basically stop you all dropping off I got no breaks for 5 months. I narrowly avoided involuntary hospital admission. I also had a massive reaction to another AD I think it was cirtralopram.

After 7months after acute and nearly a year after CT, Im starting to see some improvement and you cannot wipe the smile of my face when i do. It does not last long, the max I have had is 5 days and I still have very poor sleep but I genuinely thought I was the one that would never get a window.

There is hope all you have to do is wait.

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  • Sunnydays

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Thank you for sharing.  I hope I see improvement at 11 months too.  I am 9 and a half months out and miserable still.  Pain and anxiety seems to be worse not better.  It gives me some hope that things may turn around in the next couple months for me too. OH haha and welcome to the site.

2002-put on amitryptiline for fibromyalgia. 10mg.2004-stopped abruptly. Didn't think it helped.2006 approx.-put on Paxil for mild anxiety 20 mg.2007 upped to 40 mg. not sure why.2011- tapered from 40 to 10. went nuts and went back to 20mg2014- tapered from 20mg to 0 from April to The end of June.current meds- Metformin(type 2 diabetic) and low dose aspirin.Take multi vitamin and vit b12, vit. D and magnesium. 5 months off Paxil. Still suffering.recently added 1.2mg of Paxil to alleviate withdrawals.(Nov 30)Dropped to .9mg because having symptoms from reinstatement.(dec 23)<p>taper to .76mg-.8mg (Feb 3) approx. weight .010 to about .008-.009 on scale.
.6mg (march 19th.) .5mg(April 19th)
.4mg(April 27th)
.2 (June 27th)

0mg.  done taper at beginning of August.

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Welcome, Sunnydays. I'm almost 9 months off a much too fast taper (basically cold turkey) after 20 years on Zoloft. I got through a 4-month flare, an even worse 6-month flare, had a day or two window a few times, and am now back down in the pit again. I too hope for some sign of improvement some time soon. I have a number of symptoms, but the nonstop akathisia (along with SI) is the worst. After some improvement, my insomnia has come back full force as well.

Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day).

Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired)

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Hi,

 

I also cold turkeyed off Prozac, and took awhile to recover. If you want, you can read my Prozac story, post #17 on Feb. 7th in my thread:

 

http://survivingantidepressants.org/index.php?/topic/8148-%E2%98%BC-clearday-off-prozac-12-yrs-off-lexapro-1-yr/

 

Good luck to you as your symptoms slowly improve over time.

Hell hath no fury as an SSRI scorned.....

 

Prozac:   20 mg 1996 – May 2003 CT to 0 mg; by Aug 03 CRASH then protracted WD 3 yrs

Zoloft:    2004 few weeks;, CT to 0 mg

Effexor:  2005 few months CT to 0 mg; bad withdrawal. 

Lexapro:  10 mg from 2009 – 2011; cut dose in half to:

Lexapro:    5 mg from 2011 – Feb. 2014; CT to 0 mg; 2 months of fatigue, followed by:
Aug - Oct 2014 Lexapro WD Insomnia Wave; sleeping very good from Nov 2014 - Nov 2015; broken sleep pattern Dec 2015 - Jan 2016

Dec 2014 - present: Brutal Lexapro WD ear ringing/head ringing/head pressure lasting for 14 months now.

 

24 months SSRI-free  

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Thank you everyone

 

I truly hope I'm coming out of the worst

 

Luv2knit I understand the torture of akathesia and I still get it now. Long car journeys or sitting for long periods are almost painful with the need to move.

 

I still struggle with the depression, I can be talking or walking and be struck so hard with a feeling of complete and utter despair that it takes my breath away but I am hopeful this will improve I'm time.

 

As Winston Churchill one said " if your going through hell, keep going"

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I wonder if anyone has had treatment for restless leg syndrome. I suffer terribly with it since stopping ssri, I feel it all day as well but it is much worse at night and I also feel it in my arms not just calves.

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SD--Is it actually restless legs, or is it physical symptoms of akathisia? In my experience, there are both physical and psychological symptoms of akathisia, and the physical is much like restless legs all over your body.

Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day).

Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired)

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  • Moderator Emeritus

Hi Sunnydays, welcome to SA. Thank you for sharing your story, it is terrible how people suffer trying to get off these drugs and doctors just don't know anything about withdrawal.  

 

I am glad that you are seeing better days now, and hope that you will continue to get better and better.  

I also suffer with restless legs at times and it is worst at night when my legs just will not keep still and really ache badly. Someone here suggested a bar of soap, I'd read about it before but was sceptical. I tried it last night and it did seem to help, my legs were not as bad as usual but no-one seems to know how or why it works! I put the soap in a sock and kind of play with it, roll it around with my feet. I've always rubbed my feet together in bed, even as a toddler so it is easy for me to 'play' with the soap. It's worth a try! 

**I am not a medical professional, if in doubt please consult a doctor with withdrawal knowledge.

 

 

Different drugs occasionally (mostly benzos) 1976 - 1981 (no problem)

1993 - 2002 in and out of hospital. every type of drug + ECT. Staring with seroxat

2002  effexor. 

Tapered  March 2012 to March 2013, ending with 5 beads.

Withdrawal April 2013 . Reinstated 5 beads reduced to 4 beads May 2013

Restarted taper  Nov 2013  

OFF EFFEXOR Feb 2015    :D 

Tapered atenolol and omeprazole Dec 2013 - May 2014

 

Tapering tramadol, Feb 2015 100mg , March 2015 50mg  

 July 2017 30mg.  May 15 2018 25mg

Taking fish oil, magnesium, B12, folic acid, bilberry eyebright for eye pressure. 

 

My story http://survivingantidepressants.org/index.php?/topic/4199-hello-mammap-checking-in/page-33

 

Lesson learned, slow down taper at lower doses. Taper no more than 10% of CURRENT dose if possible

 

 

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Hi luv2knit thanks for the reply

 

I'm not sure, I'm definitely not as agitated as I was in early withdrawal but I feel the need to move almost constantly, I can force myself to be still for short periods of time but it's tough, it's worse in my calves and arms, I will wake after a couple of hrs sleep with such a desperate need to move my legs it is painful. It's also worse when my period is due not sure if that is relevant.

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I wonder if anyone has had treatment for restless leg syndrome. I suffer terribly with it since stopping ssri, I feel it all day as well but it is much worse at night and I also feel it in my arms not just calves.

 

I had restless legs for a year or so during bedtime after CT Prozac. It's a type of akathisia. It went away eventually.

Hell hath no fury as an SSRI scorned.....

 

Prozac:   20 mg 1996 – May 2003 CT to 0 mg; by Aug 03 CRASH then protracted WD 3 yrs

Zoloft:    2004 few weeks;, CT to 0 mg

Effexor:  2005 few months CT to 0 mg; bad withdrawal. 

Lexapro:  10 mg from 2009 – 2011; cut dose in half to:

Lexapro:    5 mg from 2011 – Feb. 2014; CT to 0 mg; 2 months of fatigue, followed by:
Aug - Oct 2014 Lexapro WD Insomnia Wave; sleeping very good from Nov 2014 - Nov 2015; broken sleep pattern Dec 2015 - Jan 2016

Dec 2014 - present: Brutal Lexapro WD ear ringing/head ringing/head pressure lasting for 14 months now.

 

24 months SSRI-free  

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Thanks CD

 

Will resist the medication the dr suggested. I never had it prior so hopefully will leave on it's on accord.

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  • Moderator

Hey Sunny, welcome to SA!

 

It sounds like you have been through so much - and you have found a place where people believe you.  We know it's the drugs, we don't doubt that for a second (unlike most health professionals).

 

Another thing that people do for restless legs is magnesium.

If you can get topical magnesium chloride oil, you can put it directly on the restless legs.

 

Taking it orally is a good possibility, too.  Be sure to get a good magnesium, like magnesium chelate of some sort, as is it better absorbed (I'm fancy, I take Mag Glycinate, and a wee bit of Mag l-Threonate at night).  It is a muscle relaxant, and it also helps your neurons heal.

Magnesium

 

Another one that is good for healing neurons and smoothing the nervous system is fish oil.  Omega-3 fish oil

 

Have a read of these, and see if you can find some answers.  Be aware, that people in withdrawal are very unique and can have paradoxical reactions to anything, especially stimulating things like certain amino acids, or B vitamins.

 

You are wise not to listen to the Doc on this one - he would give you an anti-seizure medicine like Neurontin or Lyrica, and then you'd have a new taper to do, all over again.  I don't think that is what you want (there are people here tapering anti-seizure drugs, too)

 

Welcome!  You've come to the right place, and there is so much information here for you to use in your healing, and taking charge of your own care.

 

I'll give you one more, just because it's so good:

Non-drug techniques to cope with emotional symptoms

 

Take care!

"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

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Thanks jancarol

 

I'm allergic to fish but I have purchased some magnesium today I think it was citrate.

 

I'm due back to work this coming week after almost 9 months off. I'm getting very very anxious about it, not because I don't want to go but I'm so scared I'm not ready, I still feel so poorly some days. I have to try though as my finances are looking as tired as my eyes these day.

Thank you for the links and the kind words

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Good luck back to work :)

2000 - sertraline for job anxiety low confidence (17 years old) ..which turned the next 16 years into nightmare!

 

On/off sertraline severe withdrawals every time. 2014 - felt better as reduced dose of sertraline no more inner restlessness. Doctor rushed off again. Hit severe withdrawal. Lost the little I had in life. Couldn't get stable again on 12.5mg. Was switched to prozac. Had severe reaction to prozac..came off in November 2015 at 6mg as felt more confused and damaged on it..Even more withdrawal ..rage, depression, dyphoria, near constant suicidal ideation, self harm impulses, doom, concrete block in head, unable to do much of anything with this feeling in head..went back on 6mg of sertraline to see if would alleviate anything. It didn't..reduced from December to June 2016 came off at 2.5mg sertraline as was hospitalised for the severe rage, suicidal impulses, and put on 50mg lofepramine which in 2nd week reduced all symptoms but gave insomnia which still have..psych stopped lofepramine cold turkey..no increased withdrawal symptoms new symptoms from lofepramine except persistant insomnia which has as side effect.

 

Taking Ativan for 8 months for the severe rage self harm impulses 1-3 times a week (mostly 2 times a week) at .5mg. Two months (I'm unsure exactly when the interdose started to happen) ago interdose withdrawal seemed to happen..2 days I think after the Ativan.

 

 

Nightmare that could have been avoided!

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  • Moderator Emeritus

Hi Sunnydays. Welcome to SA! I am currently tapering from Prozac. I've been on the drug for most of the last 25/26 years after being prescribed it for Bulimia as a teenager.

 

I wanted to comment on some of what you said in your last post...

 

I'm allergic to fish but I have purchased some magnesium today I think it was citrate.

I'm due back to work this coming week after almost 9 months off. I'm getting very very anxious about it, not because I don't want to go but I'm so scared I'm not ready, I still feel so poorly some days. I have to try though as my finances are looking as tired as my eyes these day.

There are Vegan versions of Omega 3 (which typically comes from fish or krill oils). They are derived from seaweed. They are much less potent, so you would have to take more, but it might be a good alternative for you. Just make sure it contains both EPA and DHA. Many vegan supplements only contain DHA. Walnuts and flaxseed might be good things to encorporate into your diet as well,mbut they're not sufficient as a complete supplement for omega-3.

 

I completely get the nervousness of going back to work. I've been working from home for nearly 2 years and will be returning to regular work and work hours in about a month. Don't be surprised if your symptoms feel stronger while you anticipate going back to work. Stress can do a number on us during withdrawal since our symptoms are tied into to our stress response. I say "anticipation" because I'm betting that after you're first day or two you'll find the anticipation is much worse than the actual event. Just take care of yourself and be gentle to yourself, and don't skip breakfast! That's important because the drop in blood sugar associated with being hungry can ramp up cortisol, that damn stress hormone. I think It's best if you can incorporate some protein in breakfast. Also, I've kept magnisium in my purse just-in-case.

 

Your body may take some time to adjust to the added stress of going back to work, but it will adjust, so don't get down if you feel more tired than you're used to or it feels like some of your symptoms feel stronger... You WILL adjust. Of course, as I mentioned earlier, you may feel perfectly fine once you're no longer anticipating what it will be like, and actually doing it :-). Anticipation is my Achilles heal, and what I anticipate is almost always much worse than what actually occurs. Our brains can be big jerks when we're in withdrawal. In fact, mine has turned into a complete A**hole at times.

 

Keep us updated on how things go!

1988-2012: Prozac @ 60mg to treat an eating disorder. Several unsuccessful attempts to discontinue.Fall 2012: Failed attempt to discontinue then -> 40mg Prozac and added 150mg Wellbutrin. Late summer 2013:Began slower Prozac taper.Spring 2014:Got to 10mg Prozac, 75mg of Wellbutrin -April 2014: 9mg Prozac & 37.5mg Wellbutrin 2x/day -> 9mg Prozac & 25 mg Wellbutrin 2x/day->9mg Prozac 1x/day & ~8mg Wellbutrin 2x/day -> 8.1mg Prozac, 0 WellbutrinSept '14: 8.1mg Prozac -> crashed hardOct '14: 10mg ProzacNov '14: 20mg -> 30mgDec '14: 30mg, Feb 10: 27mg. Mar 7: 25mg Mar 21, 2015: 20mg. May 21, 2016: 20mg and holding strong. Taper restarted April 2021 to 18mg, July 2021 to 16mg, currently 15mg. 

 

My experience: http://rxisk.org/antidepressant-withdrawal-a-prozac-story/

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Addax

 

Thank you so much for taking the time to write. It was really comforting as I don't know why I am getting so wound up, I have not slept for 3 nights imaging walking info the office and having to concentrate for long periods of time it very scary. To be fair to my boss he has been very understanding and has said I can take breaks whenever I want.

 

I have just purchased some seriphos from amazon to see if it helps with sleep. I have also just added a large bag of almonds, my daughter would not let me buy walnuts she says they look like brains!

 

Thank you again

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Has anyone noticed sugar makes agitation worse? I thought I was imaging it but I have defineltly noticed a link. This afternoon I was feeling fairly calm watching TV, I shared some cake with my daughter and I have been anxious tighte chested and agitated all afternoon :(

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I find certain foods trigger me as well. Unfortunately, I crave sugar/carbs really badly in WD.

Paxil 20mg from 1998-2011 

Paxil 40mg from 2011-2012 while experiencing poopout

October 2013 quit cold turkey

Oct-mid Nov 2013 great window

Late November WD nightmare 

Windows and waves pattern 

Now: 28 months cold turkey...doing decent learning to deal with the windows/waves pattern fighting it every step of the way. 

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  • Moderator Emeritus

Welcome from me too Sunnydays,

To answer your question about sugar, yes, many of us find we do much better by cutting out sugar, or reducing it as much as possible.

 

Some people also find that in withdrawal, symptoms are increased by alcohol, caffeine and spicy or processed foods.  Keeping notes of your symptoms and what you eat can help you to identify your own trigger foods.

 

Please would you put your drug and withdrawal history in your signature. Putting a short version of your drug and tapering history in your signature helps people understand your context, it appears below each of your posts. Here are instructions for how to do it:

 

http://survivinganti...your-signature/

I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal...if you are lucky enough to find one.

My Introduction Thread

Full Drug and Withdrawal History

Brief Summary

Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety) Xanax PRN ~ Various other drugs over the years for side effects

2 month 'taper' off Lexapro 2010

Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal

DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms

Failed reinstatement of Lexapro and trial of Prozac (became suicidal)

May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.

Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes

Supplements which have helped: Vitamin C, Magnesium, Taurine

Bad reactions: Many supplements but mostly fish oil and Vitamin D

June 2016 - Started daily juicing, mostly vegetables and lots of greens.

Aug 2016 - Oct 2016 Best window ever, felt almost completely recovered

Oct 2016 -Symptoms returned - bad days and less bad days.

April 2018 - No windows, but significant improvement, it feels like permanent full recovery is close.

VIDEO: Where did the chemical imbalance theory come from?



VIDEO: How are psychiatric diagnoses made?



VIDEO: Why do psychiatric drugs have withdrawal syndromes?



VIDEO: Can psychiatric drugs cause long-lasting negative effects?

VIDEO: Dr. Claire Weekes

 

 

 

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Welcome Sunnydays I am glad you well enough to type now.  I can recall a time I could not do this in my cold turkey life... so here is to the smile may it come and stay one day :) and symptoms be a thing of the past. 

peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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Struggling at work guys. I feel like I have gone back a month as far as symptoms go.

 

Another question if possible, my doctor has given me some tramadol for back pain Iv struggled with for years, I am completely phobic of any meds I struggle to swallow paracetamol since withdrawl and I have not taken it yet. I'm told it will help me relax which is tempting me but I cannot take the risk of going back to acute after coming so far. Any advise ?

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I did try a med for the legs but reacted to it ... reacted to the mag too. 

 

Here is my thing for it heating pad in the bed hot and cold packs some times... I know not what you want to be doing all night but lets face I was not sleeping anyway.  

 

Rubs deep heat rub is popular but I found the cold rub better even it I had to keep reapplying it and absorbing junior not sure what is in it but I really like it best I still have aching legs mostly just the one so this has never gone completely away for me not ever.  Weather seems to play a part... hot baths help sometimes and not others. 

 

Sometimes they hurt so bad I want to cry then I take a pain pill...I know you don't want to do that this early in but at 7 years out... I cave take the stupid pill some times. 

 

peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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Hi

Can anyone in the know give me some advise.

 

I'm seriously considering reinstating a tiny amount of prozac. I had been having some slightly better days at the beginning of this month, but the last week has been horrendous, terrible insomnia, vertigo ( I have even been Referred to a neurologist ) tinnitus, full ears,very painful jaw, neck and shoulder pain, severe headache. I have been very teary and panicky as well.

 

Really my question is is 11 months too late ? I read somewhere that after so long " all bets are off " as to if you will have success or not. ? Has anyone had benefitted after 11 months ?

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Can anyone explain what "SI" means?

I suffer from depression, anxiety, pure-o ocd, and panic attacks since 2004. Been on multiple different psychiatric drugs since 2006. Never had a significant WD problem before, only brain zaps for a month and then I'd be fine...............Been on Cipralex (escitalopram) 15 mg and Fluanxol (flupentixol) 1 mg since Sep 2014. Stopped taking the Cipralex after a fast 20-day taper.Took the last 5 mg Cipralex on Feb 5th, 2015. Then took Seroxat (paroxetine) 10 mg for a week, and stopped it too. Severe WD started suddenly on Feb 16th. RI 5 mg Cipralex on Feb 18th, 2015. RI worked and was relatively stable for a while................April 7 - decreased Fluanxol from 1 mg to 0.5 mg and took it at this dose for a week. - BIG MISTAKE; April 13 - WD starts creeping in; April 14 - RI full dose of Fluanxol 1 mg => severe muscle twitching and jerking when trying to relax and fall asleep, overwhelming sense of doom, dread, terror, and horror, insomnia, hoping to stabilize.
Tried doing a 10% cut off Fluanxol in the end of May for a few days, but quickly updosed to full dose because the twitching returned.
Experiencing waves and windows in the following months.
Unsuccessful brief taper attempt of Fluanxol by 5% on November 1st. Symptoms hit the next day. Too scared to continue tapering, reinstate full dose.
Severe crash in November after stupidly trying a barbiturate on November 9th. Grave mistake. Sense of unshakable inescapable internal torture, like my soul is in hell being tortured, terror/horror/dread/doom (probably akathisia?) that gets especially bad when trying to relax and fall asleep, muscles twitch, jerk and move on their own, shaking, insomnia, can't eat, confusion, disorientation, brain not working normally. Never felt so bad in my entire life. Never experiment with other meds while in WD! Praying to God I stabilize and get back to my baseline.
December - things getting even worse.

January - unbearable suffering

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Suicidal Ideation, BB.

 

Sunny, 11 months is a long time off for reinstatement. Almost like taking a new drug that may go sideways on you. Do you think you can hang on a couple more weeks before doing anything?

 

I know you just want relief, but you'll be throwing a drug at your nervous system that's been working so hard for so long to try to find its normal drug-free life.

 

I'm a CT, so I know nothing about reinstatement or tapering a drug that was making me deathly ill. I've had a very rough WD, but I wouldn't throw more drugs at my brain, no matter how bad it gets. I'm 6.5 months off all meds. Early phases still. Lot's of endless suffering every day with no windows. My time of peace and nerve stability will come and so will yours.

 

Try not to make a decision today. Hold off at least until tomorrow. Love and prayers to you. Pug

January 2012 - Prescribed 900mg gabapentin and 30mg Norco for lower lumber spinal stenosis pain.

September 2013 - Spinal fusion surgery, 6 levels. Hospital ramped up meds 1500mg gabapentin, 100mg Norco, 80mg Oxycontin, 25mg Fentanyl patch.

January 2014 - Sever nausea daily and with back pain every 4 hours. 2 trips to ER. First endoscopy found ulcer. Treated with Sucralfate and PPI. Second endo in May found no ulcers. Doctors said it was the opiates causing the nausea. CT'd Oxycontin, Fentanyl patch.

July 2014 - Lost 48 lbs. due to not eating because of severe nausea. GP prescribed Prozac 20mg and Ativan 2mg prn. Tried for 4 days, quit. Two week followup GP said keep taking Prozac. 4 days, quit again. Ativan taken rarely prn for anxiety and appetite.

August 2014 - Went to detox. Off opiates. Still nauseous, helmet head, drugged feeling. Doctor CT'd gabapentin. Ended up in ER. Found 2 gallstones. Gabapentin reinstated at 900mg. Tried botched up and down taper to get off Gabapentin. No tapering advice from doctor. Said to just CT again.

September 2014 - Coded on table during gallbladder surgery. Developed liver biloma due to CPR by doctor. Had bile bulb inserted for 2 wks to drain.

October 2014 - Gallbladder removed. Still nauseous, 3am cortisol surging, drugged helmet head, vertigo, breathlessness, whooshing head, heart palps.

November 8th, 2014 - CT'd gabapentin suggested by family and 4 different doctors. Was told no withdrawal is associated with gabapentin. Have been in hell ever since. No windows, just one big tsunami every day with same symptoms for 4 months.

December 26, 2014 - Found SA. At least I know I'm not insane. My family thinks I'm doing this to myself. Akathesia has become unbearable.

March 10, 2015 - In absolute daily hell with no relief. Currently taking magnesium 200mg before bedtime.

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Hi

Can anyone in the know give me some advise.

 

I'm seriously considering reinstating a tiny amount of prozac. I had been having some slightly better days at the beginning of this month, but the last week has been horrendous, terrible insomnia, vertigo ( I have even been Referred to a neurologist ) tinnitus, full ears,very painful jaw, neck and shoulder pain, severe headache. I have been very teary and panicky as well.

 

Really my question is is 11 months too late ? I read somewhere that after so long " all bets are off " as to if you will have success or not. ? Has anyone had benefitted after 11 months ?

 

Sorry I can't help you with reinstatement advice. I also CT'd and by the time I got hit with delayed withdrawal, it was too late to reinstate.

 

I can tell you that I have been through the brutal "delayed onset insomnia wave" and it cleared up after a couple months, and I sleep great ever since.

 

But I still have the full ears and tinnitus now for five months. It is very challenging but it is dynamic and there have been real improvements. Lots of stuff going on in there. It was bad in my right ear for four months, that cleared up and now it is mostly in my left ear. So repair work is in progress, it just takes a long time.

 

I was very tempted to take tiny amounts of Lexapro to reduce the severity of withdrawal during difficult times. Then I thought about the fact that Lexapro caused the damage in the first place, and I decided to hunker down for the long haul and get as much distance away from this poison as I can. SSRIs are very powerful drugs even in small amounts. I want my body to readjust to life off these SSRI drugs once and for all. But that's just me. Reinstatement helps a lot of people. And for others, it throws a monkey wrench into the recovery process.

 

It's a tough decision, and I wish you the best of luck regardless of what you choose. I hope others here with reinstatement experience will help you.

 

In case you haven't read the thread about reinstatement, here it is:

 

http://survivingantidepressants.org/index.php?/topic/7562-about-reinstating-and-stabilizing-to-reduce-withdrawal-symptoms/

Hell hath no fury as an SSRI scorned.....

 

Prozac:   20 mg 1996 – May 2003 CT to 0 mg; by Aug 03 CRASH then protracted WD 3 yrs

Zoloft:    2004 few weeks;, CT to 0 mg

Effexor:  2005 few months CT to 0 mg; bad withdrawal. 

Lexapro:  10 mg from 2009 – 2011; cut dose in half to:

Lexapro:    5 mg from 2011 – Feb. 2014; CT to 0 mg; 2 months of fatigue, followed by:
Aug - Oct 2014 Lexapro WD Insomnia Wave; sleeping very good from Nov 2014 - Nov 2015; broken sleep pattern Dec 2015 - Jan 2016

Dec 2014 - present: Brutal Lexapro WD ear ringing/head ringing/head pressure lasting for 14 months now.

 

24 months SSRI-free  

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I am 9 months out, a much too rapid taper (basically CT) afyer (Oops!!)

Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day).

Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired)

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Sunny, I am 9 months out, a much too rapid taper (basically CT) after 20 years. When I first saw your story, I was extremely encouraged. That being said, at 3 months out, I was faced with the decision of whether to consider reinstatement. One of the primary questions I asked myself was whether I had seen ANY improvement. I felt I had, and decided against RI. No one can make that decision for you, but that is one thing you might want to consider. Either way, it is a difficult journey. Reinstatement is not a magic cure--especially this far out. Good Luck, whatever you decide.

Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day).

Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired)

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Pugknows and clearday- thank you so much it made me quite emotional again reading your replys. I have always been someone who looks after there body and to think It is struggling so much and there is nothing I can do is upsetting. I am going to try and wait it out, I cry buckets watching other people moving around so freely, running, walking, playing with there children and at the moment I have to think about every movement I make. I must try not to feel sorry for myself. Thank you for the support it means the world to me

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Luv2knit- I really thought I had this thing on the run, I definitely saw improvement, me being me though I did push myself. As soon as I had a better day I was off trying to do things I was doing before walking miles and long shopping trips.

 

I think as humans we process feelings in real time as soon as we feel some relief we are convinced we will not be ill again and the same goes when we are ill.

 

The insomnia makes everything feel ten times worse, when I do try to sleep I have terrible jerks that literally lift me off my bed. Not pleasant at all.

 

We will all improve x

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Yes, exactly, I had hundreds of "hypnotic jerks" at bedtime preventing me from sleeping for hours during my insomnia wave. Horrible.

 

The jerks slowly subsided over two months and never came back. Once they went away, I sleep better now than during all five years while on Lexapro. I get much better restorative sleep now that I am off Lexapro. Apparently, the insomnia wave was my body restoring natural sleep rhythms.

 

On the worst nights I would use a tiny amount of Xanax to bump me into sleep. That really helped me. Then I got off the Xanax no problem.

 

The ear ringing is always worse at bedtime and upon waking. Yet amazingly I get adequate sleep. 

 

Me too, I look around at everyone living life without daily suffering and I feel left out. We are in the fight of our lives. I have to recommit to the battle on a daily basis. As time goes by, we get better at fighting the battle. We get used to the pattern, once it settles into a pattern. Still, always a challenge. Despair happens - it is part of withdrawal - and renewed hope happens.

 

Yet I do sports, go running, do a lot of things, and enjoy life. I had a great six-day window a couple weeks ago. It was all me, no drugs. More of that to come!

 

The "full ears", or head pressure, is accompanied by the tinnitus. The times when this head pressure reduces, the tinnitus reduces and gets muffled. And I feel more normal, the slight veil between me and the environment lifts. As this slowly subsides over the next few months and year or so, I have good reason to expect a return of something resembling normalcy. There are many stories of recovery, and some take two or three years.  So, I have no choice but to ride the waves and windows. 

Hell hath no fury as an SSRI scorned.....

 

Prozac:   20 mg 1996 – May 2003 CT to 0 mg; by Aug 03 CRASH then protracted WD 3 yrs

Zoloft:    2004 few weeks;, CT to 0 mg

Effexor:  2005 few months CT to 0 mg; bad withdrawal. 

Lexapro:  10 mg from 2009 – 2011; cut dose in half to:

Lexapro:    5 mg from 2011 – Feb. 2014; CT to 0 mg; 2 months of fatigue, followed by:
Aug - Oct 2014 Lexapro WD Insomnia Wave; sleeping very good from Nov 2014 - Nov 2015; broken sleep pattern Dec 2015 - Jan 2016

Dec 2014 - present: Brutal Lexapro WD ear ringing/head ringing/head pressure lasting for 14 months now.

 

24 months SSRI-free  

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Clearday

 

You sound so positive, it has made me get out my bed and face another day. I had a terrible night, some very strange sensations that I have not had before, at times feeling very heavy like I would fall through the bed, tiny noises ( a cat outside) sounded incredibly loud almost painful. I tossed and turned for hours exhausted but unable to find sleep, too anxious to get out of bed and walk the strange feeling corridor of my flat. I eventually fell in to some kind of toxic haze type sleep, felt like I was swimming through mud half awake half asleep. I got out of bed to go to the toilet and had to hold the walls to stay stable.

 

I'm so glad you exercise now, exercise was very important to me, I will never forget the feeling of a hard workout then relaxing on the sofa to watch a film with my babies. The day that comes back you will never able to wipe the smile from my face. How long before you could workout clearday ? X

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For some reason, I've always been able to workout. I would avoid it if fatigue was too great, but when I felt strong I would get to the gym or go running.

 

With this head pressure/full ears/tinnitus, I too have had some very strange brain sensations at night before sleep, upon waking up in the middle of the night, and upon waking up in the morning. Sometimes it is "brain bubbling", or bumping inside the head; sometimes a brain zap. Once it felt like all the connections in my brain were disappearing one by one, that happened only once, it was scary, and others on here have reported similar sensations. Another time I had the weirdest experience of all, it was like a vivid dream, but much more clear. I was staring face down in my bed with my eyes closed but I could clearly see a well lit room filled with details, all HD-3D. Only happened once, but it was very strange. 

 

These strange brain sensations at night were infrequent and have slowly diminished over the last five months.

 

I have also had the sensitivity to sounds during this type of withdrawal. I believe it is our nerves which are hyper-sensitive at this time. The tinnitus is the result of this hypersensitivity; the sound we "hear" is a phantom sound generated by hyper-sensitive nerves in our brain which send the signals to our auditory cortex, making us think we are hearing something. Our nerves are hyper-sensitive because the SSRIs have been withdrawn, and they are used to functioning with the SSRIs. The nerves just need a lot of time to adjust, heal, and eventually calm down.

 

I also had a couple days where I felt like I was "on the doorstep of panic". I never had anything close to panic attacks in my life. This feeling of near panic during this withdrawal is a type of mental akathisia, commonly reported by others on here. Luckily I only had it a couple times and it went away. It usually happened in response to a substance (e.g. cigar or caffeine), highlighting that our nerves are just extra sensitive at this time. I was extra sensitive to substances and stress for about two months, so I avoided substances for awhile. For the last two months I am no longer sensitive to substances. So I am healing.  

 

Here is a great recovery story, it's definitely worth reading:

 

http://survivingantidepressants.org/index.php?/topic/3523-success-recovery-from-protracted-zoloft-withdrawal-and-pssd/

Hell hath no fury as an SSRI scorned.....

 

Prozac:   20 mg 1996 – May 2003 CT to 0 mg; by Aug 03 CRASH then protracted WD 3 yrs

Zoloft:    2004 few weeks;, CT to 0 mg

Effexor:  2005 few months CT to 0 mg; bad withdrawal. 

Lexapro:  10 mg from 2009 – 2011; cut dose in half to:

Lexapro:    5 mg from 2011 – Feb. 2014; CT to 0 mg; 2 months of fatigue, followed by:
Aug - Oct 2014 Lexapro WD Insomnia Wave; sleeping very good from Nov 2014 - Nov 2015; broken sleep pattern Dec 2015 - Jan 2016

Dec 2014 - present: Brutal Lexapro WD ear ringing/head ringing/head pressure lasting for 14 months now.

 

24 months SSRI-free  

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