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lanah

Lanah: Polydrugged: still on trazodone and seroquel

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lanah

Hi

I have been polydrugging for over ten years now. This is the list:

Seroxat
risperdal
cymbalta
prothiaden
efexor
invega
xanax

lormetazepam

ativan

My recent history:

I quit flurazepam about one month and half ago. I have been bed ridden because of it. 
I am still taking trazodone 50 mg and seroquel 25 mgs. Both for sleep. 
I'm taking them both for about two months now. I really want to get off all pills. But i'm having a hard time. I already went to 40 mgs trazodone and now i'm sleeping less and feeling the withdrawal. I wish to get some help with a sensible taper plan. As doctors just tell me to quit cold turkey because 'it's such a low dose'

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LoveandLight

Hiya

 

I'm glad you've found this site!

 

Someone with more experience will be able to guide you soon.

 

Best of luck.

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mammaP

Hi Lanah, welcome to SA.  Doctors always believe that people can just quit because the dose is very low! They haven't a clue, and it really annoys me that they don't listen to people. They can't possibly fail to see people in withdrawal when following their instructions.  :angry:

 

You are still suffering withdrawal from flurazepam so it would not be a good thing to start tapering another drug yet.  I would hold at the current doses of trazodone and seroquel for now until the withdrawal symptoms have stabilised, then taper very slowly from the others.  As you have a problem with sleep I would do a micro taper which is making very tiny cuts more often. This way you are sneaking it away from your brain to avoid any sudden drops that result in withdrawal and insomnia. I too suffer from insomnia and it is no picnic!  Normally we suggest tapering the anti depressant first but as seroquel is an anti psychotic and can have more side effects when taken long term that may be best tapered first. In the meantime hold tight and stabilise, the last thing you need is withdrawal to add to the withdrawal you are already experiencing! 

 

Here are some links to topics you may find interesting and informative, plus those for when you are ready to start tapering. 

 

You have had a lot of drugs over the years, can you include them in your signature for us? If we can see when you started and stopped them we can get a picture of  what is happening to you now and if you are effected by previous withdrawals. Insomnia is a terrible symptom of withdrawal and that could be what you were suffering from when you were prescribed these 3 drugs. 

 

http://survivingantidepressants.org/index.php?/topic/603-what-is-withdrawal-syndrome/

 

http://survivingantidepressants.org/index.php?/topic/2207-taking-multiple-psych-drugs-which-drug-to-taper-first/

 

http://survivingantidepressants.org/index.php?/topic/2878-micro-taper-instead-of-10-or-5-decreases/

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lanah

Thank you for the information! I stopped them two years ago. But i was using benzo's for a short time. I'm not sure about dates though.
I just have a big problem with patience. I'm scared I will get more and more addicted the longer i use the pills. I really wish i could just drop them but i know it's not possible.

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mammaP

What are your symptoms now Lanah? Are you still bedridden or was that a side effect of the drug? 

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lanah

It's too much to talk about at this point (memory loss so it takes up too much energy). But i will tell you the main sx i have:

sleep disturbance, pain in joints and muscles, bladder disturbance, hives, low on energy. It has been worse a few weeks ago (where i probably had almost everything you can imagine i would say the akathasia and cortisol rushes were the worst) I feel irritated too. 
 

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Fresh

Hi Lanah , welcome.

 

I agree with MammaP that you'll still be experiencing w/d from Flurazepam.    On top of that you'll now be having w/d from

the recent 20% decrease of trazodone.

You may find some symptom relief by increasing the Trazodone a little , e.g 5mg.     The idea is that once you feel more stable

you can go down slowly by cuts of 5 to 10%.

Try reading the thread on "Reinstating to Stop Withdrawal Symptoms" in Symptoms and Self Care.

 

Good to have you on board ,  Fresh

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lanah

Thank you for the link I checked it out. I need to taper at a slower rate. That's my main problem, patience. In the past I always cold turkeyed. But this time around it's even hard to taper so. 
I'm at about 40 mgs trazodone and dropped to 20 mgs seroquel last night. I did not sleep at all. But I am determined to now stay on this dose and try to balance it out. It maybe seems weird to do a drop right now but I needed it mentally. I go crazy when I'm thinking about the poison i put in my body. I feel like if I could stabilize on this dose I'm one step closer to my goal. 

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Fresh

Did you drop the seroquel from 25mg to 20mg?    The 10% rule applies to seroquel as well , so you are setting yourself up for

withdrawal symptoms from seroquel on top of  those from w/d of flurazepam and trazodone.

I understand your desperation to be off these meds , but it won't help unless you do it in a SAFE manner.  You may want to

re-think the seroquel cut and stay on 25mg until you no longer have any withdrawal symptoms.

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lanah

I'm back to zero hours of sleep. Not sure if i'm in a wave from benzo or it's because i went down to 40mgs of trazodone from 50, 
Should I updose? Should i be patient? I cannot take this :(

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lanah

I'm thinking about updosing my trazodone back to 50mg because it is unbareble :( What the hell did I do to myself.  :(

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mammaP

I moved your topic from tapering to your thread because it is specifically about your taper.  You quit flurazepam just a few weeks ago, and suffer with withdrawal from that. Then 3 days ago cut the trazodone from 50mg to 40mg adding to withdrawal and then cut seroquel from 25mg to 20. 

As both cuts were in the last few days I would go back to the doses you were on and stay on those doses for a few months to allow your nervous system to stabilise before making any more changes.When you are no longer feeling the withdrawal, or when it is eased considerably then you could think about tapering the others.  Withdrawal insomnia is the worst and you need to be very very careful with tapering to avoid. 

 

I know that you want off these drugs and want off NOW but you really need to focus on the future and the fact that you need to taper slowly. We see people who are impatient all the time, I was one of them and thought I would do it my way too but paid the price!   Please try to put thoughts of getting off the drugs quickly out of your mind and decide that you will go slowly. Trying to do it quickly just leads to withdrawal and updosing which SLOWS down the taper and causes more suffering in the process.   I really feel for you and hope you can get some sleep soon, insomnia has been my worst enemy throughout my tapering so know how it feels and is why I am so much in favour of very slow tapers! 

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lanah

thank you i will get on a stable dose and wait for a few months before doing anything :( Lesson well learned. 
I feel so miserable. I need to focus on some 'real' non-withdrawal related issues anyway. It's going to be the only option :( 

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mammaP

I feel your pain Lanah, but this will pass and you will feel better. Mamma hugs. 

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lanah

Back to 50mgs of trazodone; Slept 3 hours. That's much better than 0 hours. It needs time to work (i think) so i hope it will get better the next few nights

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lanah

I'm having really dangerous side effects (heart arythmia and hormonal disturbances and so on) 
Pdoc wants me to quit, but my dose is too high (50 mgs)
Please what can I do? 20% per week? (it's better than the 50% cuts he want me to make)
Does anyone have knowledge about this? I took it for two months now. 

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bubble

Hello Lanah,

 

I have moved your post here from Tapering section. I understand the urgency of your question but it will get even more attention here than there. Having it together with your general history will help us to see the whole context.

 

I checked the interactions between Seroquel and Trazadone and it can indeed cause dangerous heart rhythm. But I also saw that you are still suffering with withdrawal from flurazepam and that even smaller reduction of Trazodone caused you bad symptoms and insomnia.

 

I will ask other moderators to have a look and offer their opinions.

 

Has your doctor done any tests to check what they mention below: You may be more susceptible if you have a heart condition called congenital long QT syndrome, other cardiac diseases, conduction abnormalities, or electrolyte disturbances (for example, magnesium or potassium loss due to severe or prolonged diarrhea or vomiting). Is he monitoring your condition in any way?

 

trazodone ↔ quetiapine

Applies to: trazodone, Seroquel (quetiapine)

Using traZODone together with QUEtiapine can increase the risk of an irregular heart rhythm that may be serious and potentially life-threatening, although it is a rare side effect. You may be more susceptible if you have a heart condition called congenital long QT syndrome, other cardiac diseases, conduction abnormalities, or electrolyte disturbances (for example, magnesium or potassium loss due to severe or prolonged diarrhea or vomiting). Talk to your doctor if you have any questions or concerns. Your doctor may already be aware of the risks, but has determined that this is the best course of treatment for you and has taken appropriate precautions and is monitoring you closely for any potential complications. You should seek immediate medical attention if you develop sudden dizziness, lightheadedness, fainting, shortness of breath, or heart palpitations during treatment with these medications, whether together or alone. It is important to tell your doctor about all other medications you use, including vitamins and herbs. Do not stop using any medications without first talking to your doctor.

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lanah

I can only see the pdoc again next week, so I did not hear about the congenital thing, but I will certainly ask! 

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Altostrata

Lanah, when did you start having the heart symptoms, and how often?

 

If they just started, it could be your recent drug changes triggered them.

 

I'm very concerned about the way you've been changing your dosing. Please also consider as to whether you might be a person who over-reacts to symptoms and pleads with doctors for help. That might explain your long history with many drugs -- as usually the only help doctors offer is more prescriptions.

 

Please keep consistent with trazodone and Seroquel dosage for now.

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Petunia

Hi Lanah, how are you doing now?

When did the heart problems start?  Are you still taking 50mg trazodone?

Please keep us updated.

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bluebalu86

Hi Lanah

Please read my signature and don't do what I did. I had two major crashes - first one in February when I cold turkey-ed (too fast taper) Cipralex, and a second one in April when I made a stupid 50% cut of Flupentixol, God I don't even know what I was thinking. It was BAD and now I'm paying the price. Don't do that. Listen to what the mods are telling you and follow their advice. This will take time. I won't start my taper til next year because my crashes were very very severe. You don't want to go down that road, trust me. 

 

"Please also consider as to whether you might be a person who over-reacts to symptoms and pleads with doctors for help. That might explain your long history with many drugs -- as usually the only help doctors offer is more prescriptions." - by the way, that's totally me 

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lanah

Ok you are right. I just want off this medication. I don't want it. I hate my life because of these pills. It ruined everything.
I went too fast, again. So i'm updosing tonight -_- but only to 40 mgs. And wanting to stay there. 

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lanah

Or I don't know. i'm sleeping very well, the problem is muscle and joint laxity. I really want the pills to be gone

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lanah

Yes, i used to be that way. but I'm actually ill (they gave me sleeping pills to deal with the pain) And now they are slowing down my regular therapy. I ended up in a wheelchair recently. 
I hate this.

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Fresh

Hi Lanah ,    what sleeping pills did they give you to deal with pain?  We need to check ALL drug interactions

on www.drugs.com , to be sure we don't complicate things further.

 

Did the updose to 40mg have any effect for you yet?

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lanah

The sleeping pills was the flurazepam a few months ago; I'm waiting for it to pass. I'm sleeping well, but joint pain and muscle pain is terrible!

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lanah

My heart is in bad condition, my doctors wants me to quit the meds. But I'm still not stable enough to taper. I'm not sure what to do :( They do not understand withdrawal. 

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mammaP

Are you taking flurazepam every night Lanah?

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lanah

So I have come down to only the seroquel, 18 mgs. I have been ok-ish. UBut with three major symptoms: tremors, eye problems and heart palps. I have read it could probably be side effect of seroquel and I'm desperate to taper it. But it will take a long, long time, going dow 10% every month. 
it's been such a long journey already, and I am very scared of the diabetes side effect of seroquel because that is a permanent disease. 

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JanCarol

Lanah, I see you are still around the site, but I'm confused by your story.

 

You are only on 18 mgs seroquel only?

 

Please update your signature to include some dates of when you quit the trazaodone, and when you have decreased the seroquel.

 

How are you?  Are you sleeping okay?

 

May I ask what is the medical condition which landed you in a wheelchair?  Did it happen before or after the psych drugs?  Sometimes bad reactions to psych drugs can be misdiagnosed as MS, ALS, Lupus, Lyme, etc.  One woman "cured" her MS (she never had it) just by stopping drinking diet soda.  

 

There are many factors to your health.  Please help us help you?

 

Go well!

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lanah

Hi everyone

I was wondering who tapered off seroquel succesfully or unsuccesfully. What sx did you have? How long did it take you? What was your jumping dose? Anyone else have a lot of muscle problems?

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dalsaan

Hi Lanah

 

 

I merged the recent topic you started in the intro forum with your existing one. It's one thread per person in the intro section so you should add to this one rather than starting a new one.

 

In terms of people's experiences with different drugs you might use google to search this site. Put in surviving antidepressants. Seroquel. Success

 

Searching the site for existing stories is more likely to give you a better response than asking for people's stories

 

Dalsaan

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lanah

Yes I should change it, i'm just not super good with computers and everything is super confusing to me right now. have been sleeping for 90 minutes per night for one month now. After a 7% cut from seroquel. So I'm holding for at least another month. I have a lot of mental fog and everything is hard to do I find it hard to see how this forum works, because how will people on seroquel know I want their opinion? They have to click each individual blog and read it first. 
Anyhow, I am doubting now if it isn't from the pills. Since I started them in 2003. They are confused about diagnoses. They did mention MS. But came negative. It's hard. 

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AliG

Lanah,

 

I understand how confusing everything is right now. When you can't sleep , it makes it so hard to function normally. I understand, as I have the same symptom. It makes everything so much harder, and brain fog is really difficult to deal with, on a day to day basis.

 

People here will see your questions. Don't worry about that. You do have support. I can only guide you to the tapering Seroquel link , but I see you have already been there.

http://survivingantidepressants.org/index.php?/topic/1707-tips-for-tapering-off-seroquel-quetiapine/

I think holding is a good idea, for a while and then see how you feel . Listen to your body , before you make another cut. Maybe keep a journal of your symptoms , in the meantime. That can help you evaluate what is happening.

 

This will improve, in time.

 

Ali

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lanah

In a lot of muscle pain. Wondering if it will ever get better?  :(

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