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☼ dan998: Cold turkey, reinstatement and tapering citalopram


Dan998

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  • Moderator Emeritus

I have some perspective on this now. So much has happened to me since I last posted here that It all feels like an echo in time. Something that happened to someone else. Was it really real? I read the words that I wrote all those years ago and I sorta remember the sheer terror of it all.

 

I somehow survived something so dark, so frightening, so monstrous that there will forever be an indelible mark on my soul. Thinking back on it, quite literally, makes the hairs stand up on the back of my neck. Unimaginable to all but those who have experienced this particular horror story themselves. But, I got through it. I weathered the storm, the darkness lifted and I made it safely ashore. And, with perseverance, patience and determination, you will too.

 

You may not have the time to read thorough my back story. There is rather a lot of it. Probably too much of it if I'm honest. So, I'll summarise the main points to save you a bit of time.

 

I once existed in a constant state of anxiety. All day, everyday, my heart would be trying to burst forth from my chest. Every thought, every emotion, replaced with abject fear. What a truly awful state of existence...  Thankfully, not much worries me now. Whatever life throws in my direction, and it has thrown rather a lot at me in the last couple of years,  I ask, "Is this worse than withdrawal?" The answer is always no, not even close. Even the global shitstorm caused by Covid is a minor inconvenience in comparison. The truth is, nothing can ever be as bad as withdrawal. I just shrug my shoulders, dust myself off and get on with it. Meh.

 

My friends and family treated me appallingly during withdrawal. It was too much for them. They abandoned me. They moved on. I moved on. A shame really, but too many harsh words were said for there ever to be any kind of reconciliation. Withdrawal has far reaching consequences for everyone it touches.

 

New friends and colleagues never witnessed me in withdrawal. They think I'm chilled out, relaxed and unflappable. I want to keep it like that. I don't talk about withdrawal. I even have some friends who take meds. People don't always want to hear the truth. I think it's better to just keep quiet rather than risk destroying a good friendship. Sometimes, there isn't an answer. Let it be.

 

Sleep, or rather the lack of it, was always a huge issue for me in WD. I genuinely feared going to bed. If I was really lucky I'd get a few hours of nightmares that would inevitably result in waking into a cortisol infused state of panic as soon as the first glimmers of daylight peeped through my inadequate blackout curtains... I sleep like a baby now. The light doesn't bother me too much. The birds can tweet, squawk and call. The wind can howl. The neighbours dog can bark until its throat is sore. I'm blissfully unaware of it all.

 

Cog fog was another really bothersome issue during WD. At one point I completely lost the ability to read or write and my speech became monosyllabic. There was no logical structure to my thought processes and pretty much nothing made any sense. I can recollect looking at flowers in my garden and having absolutely no idea what they were or why they were there... I seems bizarre when I think back on it all, especially as I now run a successful business that requires me to consistently use language, memory and logic.

 

The tinnitus never went away. I think it probably never had anything to do with WD and was just coincidental. Maybe, years of working with power tools, riding motorcycles and going to concerts were the real culprits. Whatever caused the tinnitus is irrelevant. I've come to terms with it and it doesn't really bother me anymore.

 

What's next? Trying to make up for the time lost to those wretched pills. Picking up where I left off. Casting aside the burdensome shroud of apathy. Rebuilding my life,.. My head buzzes with ideas where once it buzzed with zaps. I work so hard nowadays. 18 hour days are not uncommon. It's not about the money. I've been homeless and penniless and genuinely couldn't give a toss about money. I just enjoy the challenge of working and feel great when I'm totally focused and in 'the zone' and also the tremendous sense of purpose I get from it all. 

 

I've rediscovered the joy of music. I can't get enough of it. I've even picked up the guitar and made a few raucous noises once or twice... and beer, I enjoy drinking that too. Yes, I'm fully aware that beer is bad for you. I couldn't touch the stuff during WD and now I can. This makes me happy. 😜

 

I also quit television. It wasn't an active decision. I just got bored and stopped watching it. Funny really, as my entire life revolved around the TV schedules when I was on the meds. A square-eyed zombie no more.

 

Not forgetting walking. I did a ridiculous amount of walking during WD. Possibly akathisia. Whatever it was, walking was one of the few things that could keep me from mentally spinning out of control. Anyway, it's something that I've kept up and will continue to do so for the rest of my life... or at least until my arthritic knee finally gives up on me. I find walking dramatically improves my mood. Give it a try if you're struggling

 

Anyways, before I disappear over the horizon again I'd like to offer a few words of wisdom. Learn from the wealth of experience on this site. Learn from our mistakes.

  • Cold turkey will make you very sick.
  • Reinstate before it's too late.
  • Please, please, please, don't rush your taper.
  • Don't race to the finish line. That last 1mg can bite back.
  • Getting to zero isn't the end of it.

 

You will be healed, healthy and whole again. What's past is prologue.

Bye for now.

 

Hmmm. This looks suspiciously like a success story 🤔

 

 

 

2001: 20mg paroxetine
2003-2014: Switched between 20mg citalopram and 10mg escitalopram with several failed CT's
2015: Jan/ Feb-very fast taper off citalopram; Mar/ Apr-crashed; 23 Apr-reinstated 5mg; 05 May-updosed to 10mg; 15 Jul-started taper; Aug-9.0mg; Sep-8.1mg; Oct-7.6mg; Nov-6.8mg; Dec-6.2mg
2016: Jan-5.7mg; Feb-5.2mg; Mar-5.0mg;  Apr-4.5mg; May-4.05mg; Jun-3.65mg; Jul-3.3mg; Aug-2.95mg; 04Sep-2.65mg; 25Sep-2.4mg; 23Oct-2.15mg; 13Nov-1.95mg; 04Dec-1.75mg; 25Dec-1.55mg.
2017: 08Jan-1.4mg; 22Jan-1.25mg; 12Feb-1.1mg; 26Feb-1.0mg; 05Mar-0.9mg; 15Mar-0.8mg; 22Mar-0.7mg; 02Apr-0.6; 09Apr-0.5mg; 16Apr-0.4mg; 23Apr-0.3; 03May-0.2mg; 10May-0.1mg

Finished taper 17 May 2017.

Read my success story

 

I am not a medical professional. The information I provide is not medical advice. If in doubt please consult with a qualified healthcare provider.

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  • Moderator

Yes it does. Congratulations on making it to the other side and starting to put it all behind you, and thank you for coming back to tell us about it. I am so excited that things are going so well.

20 years on Paxil starting at 20mg and working up to 40mg. Sept 2011 started 10% every 6 weeks taper (2.5% every week for 4 weeks then hold for 2 additional weeks), currently at 7.9mg. Oct 2011 CTed 15oz vodka a night, to only drinking 2 beers most nights, totally sober Feb 2013.

Since I wrote this I have continued to decrease my dose by 10% every 6 weeks (2.5% every week for 4 weeks and then hold for an additional 2 weeks). I added in an extra 6 week hold when I hit 10mg to let things settle out even more. When I hit 3mgpw it became hard to split the drop into 4 parts so I switched to dropping 1mgpw (pill weight) every week for 3 weeks and then holding for another 3 weeks.  The 3 + 3 schedule turned out to be too harsh so I cut back to dropping 1mgpw every 4 weeks which is working better.

Final Dose 0.016mg.     Current dose 0.000mg 04-15-2017

 

"It's also important not to become angry, no matter how difficult life is, because you can loose all hope if you can't laugh at yourself and at life in general."  Stephen Hawking

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Fantastic Dan. That was such a great post. 

 

Hope business keeps you busy. I am currently in WD (don't have any serious side effects) and was wondering if I should start a business or is it too soon. Any advice?

 

Best wishes.

2012- Citalopram 40- Axal 0.5mg  2017- Stopped Axal CT. No WD.

2017 - Effexor XR 75 mg.

For Epilepsy:1983 - Tegral 400 mg/day  2009 - Lumark 1000 mg/day- Biotim eyedrops for glaucoma.

27 April 2019 - Effexor XR taper started. 40 beads removed - 16% - 63mg20 May - 10% - 20 beads. 57mg / 3 June - 10% - 20 beads - 51mg / 18 July - 6% -10 beads - 48mg / 20 July - 7% -10 beads- 44.5mg/ 1 Sept - 75 mg alternate days = 37.5 mg/ 14 Sept - 75 mg every 3rd day = 25mg/  22 Sept - Effexor XR stopped.

27 Oct - Tegral = 300mg. Citalopram = 30 mg. Lumark = 500mg Busron = 10 mg. Somna = 2.5 mg

1-Jan 2020 Tegral 200mg BD- Citalopram 20mg OD- Lumark 500BD

25 Apr 2020 Tegral 200 mg BD- Citalopram alternate days 20 mg and 10 mg OD - Lumark 500BD

May June 2020 Dropped to 10 mg citalopram due to drug shortages.

Early July 2020: CT'ed citalopram - nonavailability of medicine. Tegral + Lumark remains same as before.

 

 

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Great to read your update Dan.  I am so pleased that you are getting your life back together again.

 

Many congratulations on coming through WD.  A  big encouragement for those who are suffering and feel it will never end.

 

Flowers xxx

15 yrs on 20 to 30 mgs CITALOPRAM.  MAY 2014 Increased to 40 mgs per day.SEPT/NOV 2014 tapered in 6 weeks down to 10 mgs as per Dr instructions due to violent nightmares/palpitations.Given Noctamid (lormetazepam) to help with anxiety. On average took 2mg per day for 8 weeks.No taper was advised.DEC 2014 WD severe. Nervous tic in eyes and limbs, muscle pain,fluct  temp, weakness, dep and anxiety, nausea, giddy, unstable when walking. Different Dr suggested taking 20mgs CIT. BROMAZEPAM 3mgs up to 3 x daily for anxiety.DEC 9 2014 Updose CIT to 30mgs. Only taking BROMAZEPAM in emergency.DEC 31 2014 Settling at 30mg CIT - helping with depression. No Brom for 2wks.Found SA.APR 2015 Trying to stabilise on 30mgs CIT.  JAN 2016 Started Cit Taper reducing by 5% per month.  28.5 mgs 
FEB  Taper held bereavement. APR Taper resumed 27mgs . MAY 25.50 mgs .  JUNE 24 mgs .  JULY I stupidly mixed up my BP meds with CIT. Consequently took no CIT for 3 days and doubled my BP meds. Waiting for the fallout....Holding for a while until any chance of repercussions have abated. SEPT taper resumed to  22.5 mgs . OCT 21 mgs .NOV 19.95 mgs DEC crashed. 2017: FEB 3rd updose to 20.5 mgs to try to stabilise.FEB.switched over to 75mgs of Venlafaxine XR for 3 weeks.Too stimulating so switching back to Cit. 12 March 37.5 Ven and 20 Cit. 21 March 18mg Ven 20mg Cit. 4 April 9mg Ven 20mg Cit. Xanax .50mg when needed.  13 April 0 mgs Ven, 20mg Citalopram. Xanax .50 mg per day. 5 May reinstated a small amount of Ven to stabilize  1 mg twice a day. 20 mg Citalopram at night. Xanax .25 mg twice per day.Other Meds: Losartan (BP)Started 1993 at  50 mgs at night.  Seretide (Asthma) Started 1996 at 1 puff twice a day. Jan 2019 Antibiotic Ceclor 500mgs twice a day for bronchitis and  Atrovent 2ml capsules twice a day for asthma. Finished the course of both Jan 17. 

XANAX  Jan 27  - Feb 3 2019 Failed Valium Crossover.   Feb 14 2019  Updosed Xanax by .0625  Feb 17 2019 Decreased Xanax by .0625. Back to .50mg daily.  Update Xanax 28.2.20 tapered to .1250 mg 8am .25 mg midnight. Update Xanax 11.8.21 tapered to .25 mg at night. 

Current Meds 28.2.19: CITALOPRAM  20mg  taken at midnight. VENLAFAXINE  .9 mg twice a day at 8am and 10pm.  XANAX .50 mg split into 4 doses per day. 10am .0625mg / 2pm .1250mg/ 6pm .0625mg / midnight .25mg.Update 10.8.22 .25 mg at night.  LOSARTAN 50 mgs taken at midnight.  SERETIDE 1 puff taken at 8am and 10pm.   7.7.19 VENLAFAXINE UPDATE: Started tapering 10% every 4 weeks. Currently .4 mg twice a day at 8am and 10 pm.  2.9.19 .36 mg x 2. 1.10.19  .32 mg x 2. 26.11.19 .29 mg x2. 26.12.19 .26 mg  x 2. 23.1.20  .23 mg x 2.  20.2.20 .21 mg x2.20.3.20  .19 mg x 2. 21.4.20 .17 mg x 2. 19.5.20 .13 mg x 2.  18.6.20 .11mg  x 2 .18.7.20.10 mg x 2.1.9.20.09 mg x 2. 30.9. 20 .08 mg x 2. 1.11.20 .07 mg x 2.  2.12.20 .06 mg x 2.  8.1.21 .05 mg x 2.  4.2.21 .04 mg x 2. 9.3.21 .03 mgx2.  7.4.21  .02 mg x 2.  9.5.21 .01 mg x 2.  21.6.21 .01 mg x 1.  11.8.21 ZERO!

 

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Bravo to you!

very inspiring...I read your thread often through the years and am so happy for you.

wishing you all the best.😊

went on Prozac 1994-99,60mg.poopout ct  back on 2001-2002,prozac weekly 2002,not working,Effexor 75 mg.?2003-mar.2004 gaining weight 8wk. taper,wellbutrin 150 mg.mar. -may 2004 ctmedfree til july 2005 back to Prozac gaining weight again,back on wellbutrin jan.2006150-300 mg.bad constipation.also was taking aygestin(hormone)perimenopausal irregular bleeding.back on Prozac around sept,?2006,hysterectomy jan30.2007(adenomyosis)off&on Prozac til 2009,citalopram about 1 mo, April 2010 no effect,Effexor again may -mar, 2011.ct,Prozac aug,-dec, 2011 &sept-nov 2012,paroxetine oct,23 2013-may 4 2014 20 mgs.tapered 6 wks.-failed RI in Oct.2014-in protracted WD.started 10 mgs. Fluoxetine May 25 2021 .Stopped fluoxetine May 2022 at 5 mgs.

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  • Moderator Emeritus

Thanks Everyone,

 

I find it upsetting to come back and discover old friends still struggling with this. 😥

 

Its also such a pity to think that there will inevitably be many more people passing this way as a result of being prescribed ADs during the lockdown. The work that the moderators and contributors do will be invaluable during the coming months and years.

 

I will try to pop in with a few words of encouragement and help out as often as I can. 

2001: 20mg paroxetine
2003-2014: Switched between 20mg citalopram and 10mg escitalopram with several failed CT's
2015: Jan/ Feb-very fast taper off citalopram; Mar/ Apr-crashed; 23 Apr-reinstated 5mg; 05 May-updosed to 10mg; 15 Jul-started taper; Aug-9.0mg; Sep-8.1mg; Oct-7.6mg; Nov-6.8mg; Dec-6.2mg
2016: Jan-5.7mg; Feb-5.2mg; Mar-5.0mg;  Apr-4.5mg; May-4.05mg; Jun-3.65mg; Jul-3.3mg; Aug-2.95mg; 04Sep-2.65mg; 25Sep-2.4mg; 23Oct-2.15mg; 13Nov-1.95mg; 04Dec-1.75mg; 25Dec-1.55mg.
2017: 08Jan-1.4mg; 22Jan-1.25mg; 12Feb-1.1mg; 26Feb-1.0mg; 05Mar-0.9mg; 15Mar-0.8mg; 22Mar-0.7mg; 02Apr-0.6; 09Apr-0.5mg; 16Apr-0.4mg; 23Apr-0.3; 03May-0.2mg; 10May-0.1mg

Finished taper 17 May 2017.

Read my success story

 

I am not a medical professional. The information I provide is not medical advice. If in doubt please consult with a qualified healthcare provider.

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  • Moderator Emeritus
On 9/29/2020 at 12:01 PM, crashcourse said:

Fantastic Dan. That was such a great post. 

 

Hope business keeps you busy. I am currently in WD (don't have any serious side effects) and was wondering if I should start a business or is it too soon. Any advice?

 

Best wishes.

 

Anyone starting a business at the moment is going to find it challenging. You also need to remember that WD can be very unpredictable. You might be fine now, but a wave could mean you're unable to give it the necessary attention it deserves.

 

I suppose it comes down to risk and reward. If you intend to invest a lot of money then its definitely a risky proposition. If the investment is minimal, then it's probably worth a shot as having something else to focus on outside of WD can be hugely beneficial.

2001: 20mg paroxetine
2003-2014: Switched between 20mg citalopram and 10mg escitalopram with several failed CT's
2015: Jan/ Feb-very fast taper off citalopram; Mar/ Apr-crashed; 23 Apr-reinstated 5mg; 05 May-updosed to 10mg; 15 Jul-started taper; Aug-9.0mg; Sep-8.1mg; Oct-7.6mg; Nov-6.8mg; Dec-6.2mg
2016: Jan-5.7mg; Feb-5.2mg; Mar-5.0mg;  Apr-4.5mg; May-4.05mg; Jun-3.65mg; Jul-3.3mg; Aug-2.95mg; 04Sep-2.65mg; 25Sep-2.4mg; 23Oct-2.15mg; 13Nov-1.95mg; 04Dec-1.75mg; 25Dec-1.55mg.
2017: 08Jan-1.4mg; 22Jan-1.25mg; 12Feb-1.1mg; 26Feb-1.0mg; 05Mar-0.9mg; 15Mar-0.8mg; 22Mar-0.7mg; 02Apr-0.6; 09Apr-0.5mg; 16Apr-0.4mg; 23Apr-0.3; 03May-0.2mg; 10May-0.1mg

Finished taper 17 May 2017.

Read my success story

 

I am not a medical professional. The information I provide is not medical advice. If in doubt please consult with a qualified healthcare provider.

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On 10/7/2020 at 12:29 AM, Dan998 said:

I suppose it comes down to risk and reward. If you intend to invest a lot of money then its definitely a risky proposition. If the investment is minimal, then it's probably worth a shot as having something else to focus on outside of WD can be hugely beneficial.

Thank you @Dan998 I'm thinking on the same lines. Just need the courage to move forward.

2012- Citalopram 40- Axal 0.5mg  2017- Stopped Axal CT. No WD.

2017 - Effexor XR 75 mg.

For Epilepsy:1983 - Tegral 400 mg/day  2009 - Lumark 1000 mg/day- Biotim eyedrops for glaucoma.

27 April 2019 - Effexor XR taper started. 40 beads removed - 16% - 63mg20 May - 10% - 20 beads. 57mg / 3 June - 10% - 20 beads - 51mg / 18 July - 6% -10 beads - 48mg / 20 July - 7% -10 beads- 44.5mg/ 1 Sept - 75 mg alternate days = 37.5 mg/ 14 Sept - 75 mg every 3rd day = 25mg/  22 Sept - Effexor XR stopped.

27 Oct - Tegral = 300mg. Citalopram = 30 mg. Lumark = 500mg Busron = 10 mg. Somna = 2.5 mg

1-Jan 2020 Tegral 200mg BD- Citalopram 20mg OD- Lumark 500BD

25 Apr 2020 Tegral 200 mg BD- Citalopram alternate days 20 mg and 10 mg OD - Lumark 500BD

May June 2020 Dropped to 10 mg citalopram due to drug shortages.

Early July 2020: CT'ed citalopram - nonavailability of medicine. Tegral + Lumark remains same as before.

 

 

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  • 4 months later...

I hear getting to zero isn’t the end of it ‘yes’ my question is can you still struggle from insomnia even as you taper slowly to zero? 

11 Dec. 2020 - 12 Jan. 2021 olanzapine 10mg at day & 10mg at night.

 

CTed due to side effect of this poison WD hit me for 14days before I found this site.

 

27 Jan. 2021: reinstated olanzapine at 1mg daily..

 

23Mar-0.9 mg; 6Apr-0.8 mg; 20Apr-0.7 mg 

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  • 8 months later...

thanks for coming back and updating us on your success 🌞 @Dan998

2021:  started celexa 10mg feb 2nd 

feb 25th took my last 10g; feb 26th 5mg; feb 27th 5mg; feb 28th 2021 cold turkey 

currently taking mag

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  • 6 months later...
  • Moderator Emeritus

I finally got around to writing my success story.

 

You can find it here - https://www.survivingantidepressants.org/topic/27187-dan998-learning-to-fly/

 

I would be delighted if one of my old mates on the moderating team would do the honours and press the button that closes this chapter.

Edited by Dan998
removed whitespace

2001: 20mg paroxetine
2003-2014: Switched between 20mg citalopram and 10mg escitalopram with several failed CT's
2015: Jan/ Feb-very fast taper off citalopram; Mar/ Apr-crashed; 23 Apr-reinstated 5mg; 05 May-updosed to 10mg; 15 Jul-started taper; Aug-9.0mg; Sep-8.1mg; Oct-7.6mg; Nov-6.8mg; Dec-6.2mg
2016: Jan-5.7mg; Feb-5.2mg; Mar-5.0mg;  Apr-4.5mg; May-4.05mg; Jun-3.65mg; Jul-3.3mg; Aug-2.95mg; 04Sep-2.65mg; 25Sep-2.4mg; 23Oct-2.15mg; 13Nov-1.95mg; 04Dec-1.75mg; 25Dec-1.55mg.
2017: 08Jan-1.4mg; 22Jan-1.25mg; 12Feb-1.1mg; 26Feb-1.0mg; 05Mar-0.9mg; 15Mar-0.8mg; 22Mar-0.7mg; 02Apr-0.6; 09Apr-0.5mg; 16Apr-0.4mg; 23Apr-0.3; 03May-0.2mg; 10May-0.1mg

Finished taper 17 May 2017.

Read my success story

 

I am not a medical professional. The information I provide is not medical advice. If in doubt please consult with a qualified healthcare provider.

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  • Moderator Emeritus

Hi Dan, that is wonderful news and it is a pleasure to "hit that button" on your behalf.

 

Dan has written his success story and as is SA's tradition this Introduction topic will be locked.

 

Please read his success story here:

 

Success Story link:

 

dan998-learning-to-fly

* NO LONGER ACTIVE on SA *

MISSION ACCOMPLISHED:  (6 year taper)      0mg Pristiq  on 13th November 2021

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

Post 0 updates start here    My tapering program     My Intro (goes to tapering graph)

 VIDEO:   Antidepressant Withdrawal Syndrome and its Management

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