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Helping family understand


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We are here for you.  Every bead you don't swallow is a small victory: yes!

Gridley Introduction

 

Lexapro 20 mg since 2004.  Begin Brassmonkey Slide Taper Jan. 2017.   

End 2017 year 1 of taper at 9.25mg 

End 2018 year 2 of taper at 4.1mg

End 2019 year 3 of taper at 1.0mg  

Oct. 30, 2020  Jump to zero from 0.025mg.  Current dose: 0.000mg

3 year, 10 month taper is 100% complete.

 

Ativan 1 mg 1986-1991 CT, soon reinstated.  CT 2000. RI 1 mg 2011-2016.  Sept. 2016  0.625mg X 3

Nov.27, 2020, 7-week Ativan-Valium crossover + change to one 18.75mg dose, w/1 month hold.

Feb. 9, 2021, begin 10% every 4 weeks taper.  Current dose as of Feb. 23: 16.0mgai.

 

Imipramine 75 mg daily since 1986.  Jan. 2016 began every 3-weeks 10% taper, down to 16mgai (0.44mgpw).  Aug 2016, discovered SA, holding at 16mg.  Taper is 78% complete.  

  

Supplements: omega, vitamins C, E and D3, magnesium glycinate, probiotic, zinc, melatonin .3mg.


I am not a medical professional and this is not medical advice, but simply information based on my own experience, as well as other members who have survived these drugs.

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  • 2 months later...
  • Administrator

If printing articles off of the withdrawal websites isn't working, there's been some really great information on mainstream and academic media recently that may be helpful to pass along to friends and family as more "credible" sources of information.

 

Psychiatric Times: Online Communities for Drug Withdrawal: What Can We Learn?

 

New York Times: Many People Taking Antidepressants Discover They Cannot Quit

 

Hoping for more of this same type of coverage, especially in journals such as Psychiatric Times, which is read by many mainstream psychiatrists in the US every month. 

 

They can't say they don't know and they've never heard of this. Getting a doctor to acknowledge withdrawal may go a long way in getting more understanding and support from friends and family. 

Drug free May 22, 2015 after 30 years of neuroleptics, benzos, z-drugs, so-called "anti"-depressants, and amphetamines 

 

My Success Story:  Shep's Success: "Leaving Plato's Cave"

 

And what is good, Phaedrus, and what is not good — need we ask anyone to tell us these things? ~ Zen and the Art of Motorcycle Maintenance


I am not a medical professional and this is not medical advice, but simply information based on my own experience, as well as other members who have survived these drugs.

 

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  • 1 month later...

My family knows  about the meds but my father isnt supportive, my brother knows  that I took in the past a/d and now a/p , I have told him about some withdrawal that the meds are causing but he doesn't want to believe, he says its all in your head, I told him to look on the net withdrawal coming off a/d and a/p,

Ill just copy paste some comments/posts from members  and send to his email.

My closest friend is supporting me but he lives on an island.

He brother  keeps saying don't spend your money in acupuncture, its a  waste of money. he thinks that classical medicine is the only way to go, I guess hes misinformed from media/doctors. puff

2011 protracted withdrawal symptoms from Effexor, managed to come off
2013-2015  risperidone consta 50 mg, started tapering from March 2015 to 1,66mg/day and from 02/2015 started seroxat 10mg/day

06/16 Seroxat 3mg/day, olanzapine 5mg,risperidone consta 2,5mg

09/16 Seroxat 2,7mg,olanzapine . 5mg,risperidone  consta 2,5mg

01/17 Seroxat 2,0mg,olanzapine 5mg,risperidone consta 25mg/every 15days

05/17 Seroxat 1mg,olanzapine 5mg,risp.consta 25mg/every 15days

06/17 Seroxat 2drops,olanzapine 5mg,liquid risperidone2mg

07/17 Seroxat 1 drop,olanzapine 5mg,Risperidone 0mg, 10/17 Seroxat 0mg,olanzapine,5mg,Risperidone 0mg, 12/17 Seroxat 1/2 drop, olanzapine 5mg,  04/18 Olanzapine 1,25mg, 04/18 xanax 0,5mg

24/06/2019 doc said to take 10mg olanzapine for 13days and down to 5mg
 been taking 10mg for 14 days, 5mg for 8 days  and  tapered to  3/4quart. 5mg  for 14 days, 1/2 5mg for 14 days,

01/08/19 2,5mg

Supplements Omega 3, Turmeric, Magnesium

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  • 3 weeks later...
  • Administrator

Posted in the Introductions forum, wisdom from our Rosetta:

 

23 hours ago, Rosetta said:

People here haven't given up on you.  Very few people have any idea what to say to someone suffering as you are.  They don't realize that just a short message that says "I care." can be enough, and the more people it comes from the better.  (Thanks, Powerback!)

 

Try to not push your parents away.   They are in as much pain as you, I promise you.  Just say to them. "Thank you for trying to help me.  Thank you being here and for not giving up on me."  Keep thanking them for every little thing -- a plate of food, a check in, a concerned look.  They need to hear that.  This is how I deal with my husband to keep him from getting too discouraged.  

 

They may take that as an opening to start to talk about the drugs, but simply say "I know you love me.  Thank God for that.  I love you, too."  Don't argue with them; don't yell; don't throw things whatever you do.  Simply tell them, "After I took that pill you have no idea how it made me feel.  It made me feel MORE desperate, and I didn't think that was possible.  If sertraline causes that result, what would you have me do?  It feels like I'm taking a drug that makes me feel more despair."  (I had the same problem when my doctor gave me Xanax.  It made things worse.)

 

I was in just as much pain as you at one time.  I really was.  I got through it, and I'm so glad I did.  What you must remember is that you will get well, and any symptom could ease suddenly just like the PSSD did.  That was sudden, and relief from other symptoms may possibly be sudden, too.  You must hold on and wait for that to happen.

 

Now, I need to take a step back and care for myself.  I'll be back when I can.  Re-read the messages above when you need to.  

 

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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  • ChessieCat changed the title to Helping family understand
  • 3 months later...

Wow .... I'm SO invested and worried about my son, that it's affecting MY health.

 

I love him SO much, and it's killing me he's suffering SO much!

 

I flew to him 3 times to help, and drove across the US to be with him for 3 months.

 

But sadly I had to return, and it broke my heart to leave him.

 

I just don't understand parents not caring.

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  • 1 month later...
On 1/20/2018 at 3:59 AM, PatriciaM said:

My family doesn't want to know period. My son asked me a few years back not to take my meds in front of his friends because he was ashamed. My parents don't want to hear about my medication nor my illness. As for my partner, he says this is all in my head and that I could stop taking Effexor right away if I really wanted to. So instead of arguing, I deal with it in silence. None of them needs to know and even though sometimes it's hard not to be supported by my loved ones, I won't let them bring me down either. For me, each bead of Effexor I don't swallow is a small victory and that's what matters for now. 

 

I have the same problem. You know what makes it worse for me is when I was tapering down my benzo, my anxiety was so high i couldn't be around people take public transport or, even, go outside. Then back to my usual dose I step outside, I am still ditsy and woozy but its like where was that dread i was feeling that kept me inside. I know i feel better because i have come a long way down of the meds and I am able to be in contact and engage more in society. But gee whiz, I have people in my family who really care about me that say why cant you get over this? Stop taking the meds. Hell i even went to India and sat at the foot of a master to overcome this. But i recognise all good things come in time, I always think to myself that the evidence will eventually come out. Just like with tobacco companies, barbituates and old medicine, new medicine is no different.

 

I think that what was said here, instead of arguing just to ignore is the best way to deal with that.

 

Quote

But sadly I had to return, and it broke my heart to leave him.

 

I just don't understand parents not caring.

 

My mum doesn't want to hear about it anymore. But you have to live your life to and that's what I have found. You don't have to physically be near him or it might feel suffocating. Now i contact my mum once a week if that by phone and all is fine. This is bcoz a) i can't have my mum do everything for me, i am in my 20s. b) I find that my mum cannot fill all the needs, in my life. This is where contact with others might help. Like you have certain friends/associates that you can talk to about certain issues and they fill what is required for you to live your life.

 Cymbalta, Zyprexa, Seroquil, Rispiridone, Valium, Zoloft, Clonazepam,. + 1 other Benzo. Total 11 yrs.

·           April 9th 2018 Hospital. 50mg Zoloft > 0 discontinued. 6mg Clonazepam > 2.5mg over 8 weeks stay.

           October 25th 2019: Hospital:  Clonazepam 1mg > Bridged to 20mg Diazepam.

           

           Anafranil: 1st May 18': 150mg, 1st June: 150mg. 23rd June: 125mg. 6th July: 100mg. 12th July: 75mg 22 July: 62.5mg. 5th August 18: 50mg. 10th November 2018: 45mg. 25th August 2019: 40mg.  Sep '15: 37.5mg.  1st November 2019: 100mg (Re-instated during hospital). 25 morning / 75 night. 22/01/20: 95mg. 03/02: 90mg. Currently 90mg

                          

        Clonazepam: (k) 1st May 18: 2.5mg. 6th July 2018. 1.5mg K. 03 August 2018: 1.25mg K. 17th August > 10 November 2018: 1mg K. Jan - August 2019: (Dosing between 1mg and 0.87mg)  September 10 2019: 0.9mg. Discontinued 25th October 2019.

 

        Diazepam (V): 25th October 2019, 20mg. 22 Dec 2019 19mg. 4 April 20: 18mg,  30 September: 17.5mg , 13 November 20: 17mg

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  • 3 months later...

I already feel really guilty about not going to the hospital to see my father he lives in another city and getting there is difficult but will try, my sister says if i make the effort it will be ok wth? my brother says the same even though I feel  so crappy I can barely make food sometimes... they say I have to make an effort... it breaks my heart to be ill from these drugs and I also live alone I beg I can do this by myself....My family triggers me  because they can be very nasty

2007-2016 citalopram 20mg -40mg

tappered and discontinued all of oct 2016 6 month taper  (wd symptom  insomnia and some ocd anxiety)

Nov.2016 -May 2017 cipralex 20mg

June-Sept 2017  xanax 0.25- 0.50mg   3 times a week

June 2017- Sept. 25.2017  Paxil  20mg - last week was 30mg bc of drug feeling reaction

Sept 27 - Oct 12 2017 Fluxatine 20mg

discontinuation Oct 13-18th 2017 withdrawal  from paxil and fluxatine

Reinstated Oct 19- 23 Fluxtine 10mg, Oct 24- 2 2017 Fluxatine 5mg,  Nov 2-19 2017   Fluxatine 10mg Dec-Jan 4 2018 Fluxatine 20mg, Reinstated Feb 18 2018  fluxatine 1mg, didnt work  June 6  Celexa  5mg than 10mg, June 3 Klonopin  .5 - 1mg,    june 11 oxazepam 5-10mg,   zopiclone in june  7.5mg  on and off,    June 24 reduced  to  5mg Celexa 

Nov. 20 2018 titration k  0.02mg reduction from 0.5- 0.380mg,  Nov.  25 2018  mourol 1 dose for cystitis

March started Brassmonkey method   0.30 k   current 0.28 k

celexa 5mg

 

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  • 8 months later...
On 1/19/2016 at 3:07 PM, maria323 said:

I gave my family the recovery-road.org website. There's some good videos and Do's and Don'ts for caregivers of people going through withdrawal.

The videos are gone- unavailable now

25 year history of various drugs

Current drug schedule:

Morning:   10mg Lexapro and  .93 mg Klonopin 

Night:  1.84 mg Klonopin and 180 mg Allegra -- switched to 10mg Claritin 02/12/2020

 

Various supplements during the day. See list here - mom2mkld's supplements

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manymoretodays
10 hours ago, mom2mkld said:

The videos are gone- unavailable now

 

Hi mom,  and yah I saw that.  The recovery-road website still is good though.  With written information for caregivers.

I found this one- video, an interview with caregiver of someone, who had been on benzo's, and went through WD.  12.44 minutes and  I thought it was pretty good!

 

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016. 

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider. manymoretodays

 

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Thank you, manymore. I will watch after I get off the phone.  

25 year history of various drugs

Current drug schedule:

Morning:   10mg Lexapro and  .93 mg Klonopin 

Night:  1.84 mg Klonopin and 180 mg Allegra -- switched to 10mg Claritin 02/12/2020

 

Various supplements during the day. See list here - mom2mkld's supplements

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I just watched it together with my husband.  He just now got home from work.  After watching he fell asleep.  We’ll see.  I feel zero support right now.  But my husband has two drugged people - myself and my son.  And all feels so hopeless to me. He gave me another lecture this morning before he left for work. A bunch of common sense, that I know in my head but cannot do or grasp and the more he continues to interrupt me and lecture me, the more I feel as though I am a problem and a complete failure and don’t even want to be alive.  He would be better off if I were to die and he could find a good wife who is not so helpless.  This is a nightmare.  My oldest daughter has blocked me out of her life and my two granddaughters’ lives again.  She unblocked me and let me in her life for a few wonderful months.  One disagreement and she blocked me, put me back in her box and up on a shelf- away from her and my granddaughters.  It would be better if I were dead than to live like this.  

25 year history of various drugs

Current drug schedule:

Morning:   10mg Lexapro and  .93 mg Klonopin 

Night:  1.84 mg Klonopin and 180 mg Allegra -- switched to 10mg Claritin 02/12/2020

 

Various supplements during the day. See list here - mom2mkld's supplements

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Did not help. My daughter has blocked me again out of her life and my granddaughters’ lives.  My husband still lectures me every day.  He was lecturing me this morning about being negative I had to plug ears and talk over him so I couldn’t hear him because he’s pushing me over the edge.  Feel everyone is against me.  Sent video to my family. No one cares.  No one cares. I am abandoned and alone.  

25 year history of various drugs

Current drug schedule:

Morning:   10mg Lexapro and  .93 mg Klonopin 

Night:  1.84 mg Klonopin and 180 mg Allegra -- switched to 10mg Claritin 02/12/2020

 

Various supplements during the day. See list here - mom2mkld's supplements

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  • Moderator Emeritus

This has been added to Post #1 of this topic:

 

PRINT OUT:

  

46 minutes ago, Shep said:

From CEPUK, 9/24/2020:

 

Major milestone: Royal College releases new guidance on stopping antidepressants

 

And here is the leaflet from Royal College of Psychiatry website: 

 

Stopping antidepressants

 

Might be useful to print out and take to doctors ignorant of withdrawal. May also be helpful for helping family members understand. 

 

 

NEW!!!     INTERVIEW with Altostrata, SA's founder    NEW!!! 

 

Plodding along inch by inch:  12" = 1',  3' =  36 " or 1 yard,  1760 yards  = 63,360" or 1 mile

Current from 6 Mar 2021:  Pristiq 0.328 mg

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015 

My tapering program   My Intro (goes to my tapering graph)  My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

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  • 3 months later...
Nosummer

I don’t know if this is the right place to post this. I’m going to need my wisdom teeth removed and the complications for a person over 30 are scary (like permanent nerve damage scary). I tried talking to my family but they talked down to me and finally my Mom “shoosh-ed” me twice and I snapped and yelled at her to to stop doing that. 

 

She and my father flipped out. She claimed I had no respect for her and that I had no idea how awful what I did was. 
 

It’s my irritability, it’s been high lately with the withdrawal. I tried to explain that but she just tilted her head and said well wasn’t that just “the perfect excuse for my behavior”. 
 

I don’t know what to do without them. I can’t make this journey without their support. I’ve driven them away and I feel so alone.

 

I’m scared.

Approx. 2010 - 2015 sertraline and Xanax (cannot remember doses)
2015 - 2020  CT’d sertraline/Xanax combo and went on fluoxetine (80mg) and Clonazepam (.5mg as needed) at Psych’s advice

September 2020 - bupropion (300mg) - took only 3 doses before getting horrible tinnitus and stopping CT

Week of 20th October 2020 - took 80mg Monday, 40 Tuesday, 20 Wednesday, nothing Thursday, and final 20 Friday (on doctor advice)

December 24 2020 - January 3 2021 - Reinstated Fluoxetine at 10mg (Dec 24th). Too much, tapered down to 5mg (Dec 28). Too much, tapered down to 2.5mg (Dec 31st). Still too much, tapered down to my current 1.25mg (Jan 3 2021).
Currently taking 2mg of Clonazepam. One at night and one in the morning. Fluoxetine (1.25mg) at night. Fish Oil (360mg 3x daily) and Magnesium (122mg a pill, 2 in the afternoon, 1 at night plus another 100mg in hearing sups for my tinnitus)

Also a bunch of other supplements recommended by my ENT in case some of my symptoms are not withdrawal related, so won’t list them here. As well as supplements to treat my tinnitus which is a toxic reaction symptom I received by being proscribed Bupropion while still on Prozac.

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