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divalee: 24 months off Zoloft


divalee

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And do you ever feel like your brain is screaming and pressured when you wake up?  And lasts all day?  Sometimes letting up a little?

Dec 2014 I tried Zoloft 25mg for one week (adverse reaction - extreme anxiety and felt like I was on an amphetamine). Dr. said to quit cold turkey, so I not only quit Zoloft but also 2 weeks of Xanax .25mg -- extreme dizziness, hyperarousal and anxiety began! On Jan. 29, 2015 my psychiatrist put me on new stuff and this is how my next 2 months and 7 days looked like (I was having the same bad reactions to all of these):Effexor XR 37.5mg (3 days) - throwing up, heart palpations, night tremors/convulsions or something where whole body shakes for a second, Prozac 10mg (15 days), Prozac 20mg (7 days) - internal restlessness, electric current through body/brain (not zaps), agitation, intense fear and could no longer nap at this point (still can't today because of this), Lexapro 5mg (4 days) - same as Prozac, a horror show...extreme internal agitation, Lexapro 7.5mg (2 days), Lexapro 10mg (16 days), Zoloft 12.5mg (3 days)...she said try it again since my blood relative does well on it, Zoloft 25mg (7 days) - same as before and getting worse!! Zoloft 50mg (6 days), Zoloft 25mg (4 days and then came off cold turkey on April 8, 2015). I used Xanax .25mg about 7 times per month through all of this until June 30, 2015 (my last benzo dose). Extreme anxiety, nervous system traumatized, mental akathisia, anger triggered by nothing but the brain totally going off on its own, feeling of a pressurized electric current going through me like my brain and body are trying to explode, stress reaction x10000 to everything, waking in terror lasting all day, fear, very sensitive, brain can't keep up, don't know what to do with myself, feeling like everything is going too fast and I can't keep up, helium head, deep depression like something is ripping out my soul, out of my mind, can hardly drive or be alone, cognitive issues, simple tasks are so complex and straining, feel disturbed because the brain can't process anything right even though your brain tries so hard and it makes you go mad, episodes of deep anguish with a sick toxic poison feeling (like you have some unknown virus).

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Oh my goodness you describe the visual disturbances so well. I have the exact same.  Sometime I feel like my mind just blanks out and you actually feel like you might be seizing in your brain or in a waking coma.  It is sooooooooooooooooooo scary, all of it. If I go to the store and look at cards, just the movement of looking up and down and up and down causes more h$ll.  It's like the brain has some sensory thing messed up.  Do you get worse before your monthly? I get horrible cerebellum pressure and mental horror but it feels like my brain is drowning and spinning.  I am 2 years off SSRIs.

Hello KT38 -  yes the more I have high anxiety and panic the worse my eyes get -  There is no let up for me , I have been in a wave for months and months - 

 

I am sorry you are going through much of the same -  but we will get better KT ...we will ...we need to have lots of courage, lots of support, and lots of speranza (hope).....we think it will never leave us - but it will -  

 

I love this group - and sometimes I get so scared I forget the people that have helped me a long the way -  I do appreciate everyone here - 

 

Please let me know how you are doing - I am trying to give back a little and getting back to supporting people here again.  Dire, AliG and Andy and others - 

 

So come back KT and let me know how you are doing -  It must make you feel better to know that someone else has the same thing that you have - it gives us courage to keep on going and know that it is WDs.....

 

Much love

Lee (f)

Zoloft started for 8 years - 150 mg capsules

Started tapering December 3, 2011,

Off Zoloft May 17, 2013

While tapering WDS were tolerable

Off Zoloft debilitating WDS the worst starting around 6 months off

even worse after 18 months off

Now 35 months off - still in a terrible wave for months now.

 

 

 

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Hi,divalee

 

I'm sorry to read all that you've been through and that you continue to suffer so much...it seems so unfair.

 

my eyes have been bad for a long time and it's driving me crazy! it's mainly my left eye that's so blurry..I'm scared it will never go away. I always had great vision and only used reading glasses at times.I guess I should have them checked but don't have insurance right now so...

 

anyway I hope you can get relief from this mess...my heart goes out to you...youre in my thoughts and prayers...xxx

Dire - how are you doing - how are your eyes are they any better -  I too hope you get relief - and you are also in my prayers

 

Lee

XX

Zoloft started for 8 years - 150 mg capsules

Started tapering December 3, 2011,

Off Zoloft May 17, 2013

While tapering WDS were tolerable

Off Zoloft debilitating WDS the worst starting around 6 months off

even worse after 18 months off

Now 35 months off - still in a terrible wave for months now.

 

 

 

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thanks for your concern,Lee

 

still have ups and downs...today wasn't too bad....some nights I wake up w/ awful anxiety,cortisol spikes? think I'll start taking the magnesium again.

 

eyes are the same..but seem worse when stressed. it'sall just getting so old...and so am I... <_< 

 

hope you will feel better soon.

 

take care,ds   xo

went on Prozac 1994-99,60mg.poopout ct  back on 2001-2002,prozac weekly 2002,not working,Effexor 75 mg.?2003-mar.2004 gaining weight 8wk. taper,wellbutrin 150 mg.mar. -may 2004 ctmedfree til july 2005 back to Prozac gaining weight again,back on wellbutrin jan.2006150-300 mg.bad constipation.also was taking aygestin(hormone)perimenopausal irregular bleeding.back on Prozac around sept,?2006,hysterectomy jan30.2007(adenomyosis)off&on Prozac til 2009,citalopram about 1 mo, April 2010 no effect,Effexor again may -mar, 2011.ct,Prozac aug,-dec, 2011 &sept-nov 2012,paroxetine oct,23 2013-may 4 2014 20 mgs.tapered 6 wks.-failed RI in Oct.2014-in protracted WD.started 10 mgs. Fluoxetine May 25 2021 .Stopped fluoxetine May 2022 at 5 mgs.

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thanks for your concern,Lee

 

still have ups and downs...today wasn't too bad....some nights I wake up w/ awful anxiety,cortisol spikes? think I'll start taking the magnesium again.

 

eyes are the same..but seem worse when stressed. it'sall just getting so old...and so am I... <_<

 

hope you will feel better soon.

 

take care,ds   xo

Dire

I am sorry you are still struggling -  I feel the same way as you do -  It is true - it is getting old these symptoms never let up.  Mornings are the worst -

 

We will get better -  it takes a long time and we think it will never happen - but it will Dire.....it will.....have courage, faith and speranza (hope) -  you and all here are in my prayers.

 

Every time I hear a new born baby cry

Or touch a leaf

Or see the sky

Then I know why

I........believe......

 

One day this will be all over for us.

Much love

Lee (f)

xxx

Zoloft started for 8 years - 150 mg capsules

Started tapering December 3, 2011,

Off Zoloft May 17, 2013

While tapering WDS were tolerable

Off Zoloft debilitating WDS the worst starting around 6 months off

even worse after 18 months off

Now 35 months off - still in a terrible wave for months now.

 

 

 

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thanks,Lee...I love that song...inspirational.

 

stay strong.

 

ds   xo

went on Prozac 1994-99,60mg.poopout ct  back on 2001-2002,prozac weekly 2002,not working,Effexor 75 mg.?2003-mar.2004 gaining weight 8wk. taper,wellbutrin 150 mg.mar. -may 2004 ctmedfree til july 2005 back to Prozac gaining weight again,back on wellbutrin jan.2006150-300 mg.bad constipation.also was taking aygestin(hormone)perimenopausal irregular bleeding.back on Prozac around sept,?2006,hysterectomy jan30.2007(adenomyosis)off&on Prozac til 2009,citalopram about 1 mo, April 2010 no effect,Effexor again may -mar, 2011.ct,Prozac aug,-dec, 2011 &sept-nov 2012,paroxetine oct,23 2013-may 4 2014 20 mgs.tapered 6 wks.-failed RI in Oct.2014-in protracted WD.started 10 mgs. Fluoxetine May 25 2021 .Stopped fluoxetine May 2022 at 5 mgs.

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  • Moderator Emeritus

Lee and DS,

 

Let me throw this out there for you both and see if it helps at all.  The mere fact that your eye and vision issues are associated and fluctuate with the level of anxiety you are feeling, while undoubtedly frustrating, is an excellent sign.  It should give you great comfort that what you are dealing with is the result of the brain's "thermostat", the amygdala, being temporarily out of whack.  This is in complete opposition to the notion that you have some kind of "damage" to your eyes or vision.

 

This is the way of MUCH of withdrawal.  For example, one of my (and many others) primary difficult symptoms is depersonalization/derealization which is similarly the result of the amygdala getting "locked" in the fight or flight response.  After a while the brain has nothing to protect you against but it has reset itself to a "new normal."  Over time, as the brain is able to work its way out of this state (which work can be aided by various self-soothing techniques like meditation, yoga, etc.) these "fear-based" states are able to return to normalcy.

 

The obvious question then is "when?"  Unfortunately, nobody knows and it is clearly individual to each of us.  With time, patience, and some work along the way, we will get there.

 

Best,

 

Andy

Sertraline 50mg and Clonazapam .375mg from 2000 -- symptoms of dizziness Spring 2012

increased to .5 Clonazapam and 100mg Sertraline -- no improvement

Benzo microtaper from November 2012 to November 2014 (followed benzo sites "taper benzo first")

Started Sertraline taper in December 2014 cut by 25mg to 75mg; 62.5mg 1/1/15 and 50mg on 2/1/15

Held at 50mg through April 5 to use liquid 
Reduced dosage in 10% or less drops from 50mg to 25mg -- at single tablet of 25mg on 10/5/15

Transitioned to all liquid for accuracy while tapering -- Horrible insomnia -- back to 25mg liquid and held until October 1, 2016

10/16 -- 11/18 tapered very slowly to 10.6mg.  No real improvement and never really stable so updosed to 12.5mg (1/2 a pill) for convenience and long hold.

After 8+ months of holding with no noticeable improvement decided to add .4ml of liquid Prozac (about 1.5mg) to see if that improves the situation

Supplements, Magnesium, D3, Omega 3, curcumin, Valerian, 81mg Aspirin, L-Theanine, Vit. C,

 

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Dear Andy

 

Thank you so much for this - it makes a great deal of sense - and has calmed me down somewhat -  I have been to my ENT doctor because I have developed a strange type of dizziness.  It isn't spinning at all - feels like my brain is swaying a bit - cant explain it...also my ears feel full or plugged -  Nothing wrong with my ears - I have been having silent migraines about every 3 weeks since February - and that he said is the cause of the dizzy feeling - because after each silent migraine (it is migraine with Aura but no headache) there is a postdrome which can last a few days or so...and luckily this doctor says it is all very stress and anxiety related due to my WDs...

 

So thank you for taking the time to explain about the vision -  Yes Andy we don't know we will get back to normalcy - This too will pass for all of us....I pray for you and everyone here....

 

Thank you again that was a very good explanation xxx

 

Also too that fake therapist that is also a member here -  really delayed my healing process - I was in hell with her and in hell with my WDs - but look - I survived - I think if I could survive all that -  I will indeed make it...xxx and then write a book about it.

 

Lee (f)

xxxxx

 

I did my best, it wasn't much
I couldn't feel, so I tried to touch
I've told the truth, I didn't come to fool you

And even though
It all went wrong
I'll stand before the Lord of Song
With nothing on my tongue but Hallelujah

 

Hallelujah - the time will come when we will all be free once more

Zoloft started for 8 years - 150 mg capsules

Started tapering December 3, 2011,

Off Zoloft May 17, 2013

While tapering WDS were tolerable

Off Zoloft debilitating WDS the worst starting around 6 months off

even worse after 18 months off

Now 35 months off - still in a terrible wave for months now.

 

 

 

Link to comment

Lee and DS,

 

Let me throw this out there for you both and see if it helps at all.  The mere fact that your eye and vision issues are associated and fluctuate with the level of anxiety you are feeling, while undoubtedly frustrating, is an excellent sign.  It should give you great comfort that what you are dealing with is the result of the brain's "thermostat", the amygdala, being temporarily out of whack.  This is in complete opposition to the notion that you have some kind of "damage" to your eyes or vision.

 

This is the way of MUCH of withdrawal.  For example, one of my (and many others) primary difficult symptoms is depersonalization/derealization which is similarly the result of the amygdala getting "locked" in the fight or flight response.  After a while the brain has nothing to protect you against but it has reset itself to a "new normal."  Over time, as the brain is able to work its way out of this state (which work can be aided by various self-soothing techniques like meditation, yoga, etc.) these "fear-based" states are able to return to normalcy.

 

The obvious question then is "when?"  Unfortunately, nobody knows and it is clearly individual to each of us.  With time, patience, and some work along the way, we will get there.

 

Best,

 

Andy

 

thanks Andy...that gives me hope  that this will eventually resolve....xo

went on Prozac 1994-99,60mg.poopout ct  back on 2001-2002,prozac weekly 2002,not working,Effexor 75 mg.?2003-mar.2004 gaining weight 8wk. taper,wellbutrin 150 mg.mar. -may 2004 ctmedfree til july 2005 back to Prozac gaining weight again,back on wellbutrin jan.2006150-300 mg.bad constipation.also was taking aygestin(hormone)perimenopausal irregular bleeding.back on Prozac around sept,?2006,hysterectomy jan30.2007(adenomyosis)off&on Prozac til 2009,citalopram about 1 mo, April 2010 no effect,Effexor again may -mar, 2011.ct,Prozac aug,-dec, 2011 &sept-nov 2012,paroxetine oct,23 2013-may 4 2014 20 mgs.tapered 6 wks.-failed RI in Oct.2014-in protracted WD.started 10 mgs. Fluoxetine May 25 2021 .Stopped fluoxetine May 2022 at 5 mgs.

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  • Mentor

Hi Lee,

I just found your thread here and wanted to say hello. I am now following you.  I'm so sorry that this WD has been going on for you this long horrible length of time.  You are in my thoughts and I hope that you get some improvement.

Warm wishes,

RachelSusan

 

I am not a health professional in any way.  I do not give medical advice.   Discuss any decisions about your medical care with a professional medical practitioner.

 

NEW INFORMATION FOR GABAPENTIN TAPER

April 29, 2022 900 mg to 800 mg (11%), May 29, 2022 800 to 700 mg (12.5%), June 20, 2022 700 to 650mg (8%), July 20, 2022 650 to 575 (12%), August 20,  575 to 500 (13%),  Sept 20, 2020 500 to 475mg (5%) Nov 7, 2022 475 to 425 (11%), Nov 21, 2022 500mg

Medications: Gabapentin, Prednisone 1.5mg a day, Cortisol Inhaler daily. 

HISTORY FOR ZOLOFT TAPER

Feb. 2016 to June 2016  - Was on 150mg Zoloft.  Put on Gabapentin at 900mg a day in 2016 due to antidepressant withdrawal. 

Quit Zoloft (Sertraline) June  2016,  reinstated 50mg of Zoloft July 2016.  From July 2016  to October 2016 went from 50 mg down 2.3 mg. I up-dosed in November 2016 to 12.5 mg. Held there until January 2017 when I started a much slower taper.

STARTING SENSIBLE  ZOLOFT TAPERING USING GUIDELINES FROM THIS SITE

Dec. 10 2016  - switched to Liquid Zoloft (Sertraline) @ 12.5 mg.   Jan. 4, 2020 1.875 mg (6.3%). Jan. 25, 2020 1.75 mgFeb. 29, 2020 1.625mg (7.10%).  Apr. 4, 2020 1.5 mg.  May 9, 2020 1.375 mg.  June 6, 2020 1.25 mg. (9.10%).  July 4, 2020 1.125 mg. (10%).  August 15, 2020 1.0 mg.  Oct 24, 2020 .875 mg.  Nov. 28, 2020 .75mgJan 16, 2021 .685mg (8.7%).  Feb 13, 2021 .62mg. March 12, 2021 .56mg.  May 1, 2021 .375mg.  May 29, 2021 .25mg. June 26, 2021 .0125mg. July 25, 2021 .065mg. August 22, 2021 .048mg.  October 2, 2021 .043mg.  October 10, 2021 .038mg.  October 23, 2021 .035mg.  October 30, 2021 .032mg.  Nov. 13, 2021 .030 mg.  Dec 4, 2021 .0285 mg.  Dec 11, 2021 .0265 mg. Dec 18, 2021 .0246 mg. Dec 25, 2021 .023mg. Jan 1, 2022. 0 mg. OFF COMPLETELY

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  • Mentor

By the way, "Hallelujah" is a great song.  I really love it.

 

 

I am not a health professional in any way.  I do not give medical advice.   Discuss any decisions about your medical care with a professional medical practitioner.

 

NEW INFORMATION FOR GABAPENTIN TAPER

April 29, 2022 900 mg to 800 mg (11%), May 29, 2022 800 to 700 mg (12.5%), June 20, 2022 700 to 650mg (8%), July 20, 2022 650 to 575 (12%), August 20,  575 to 500 (13%),  Sept 20, 2020 500 to 475mg (5%) Nov 7, 2022 475 to 425 (11%), Nov 21, 2022 500mg

Medications: Gabapentin, Prednisone 1.5mg a day, Cortisol Inhaler daily. 

HISTORY FOR ZOLOFT TAPER

Feb. 2016 to June 2016  - Was on 150mg Zoloft.  Put on Gabapentin at 900mg a day in 2016 due to antidepressant withdrawal. 

Quit Zoloft (Sertraline) June  2016,  reinstated 50mg of Zoloft July 2016.  From July 2016  to October 2016 went from 50 mg down 2.3 mg. I up-dosed in November 2016 to 12.5 mg. Held there until January 2017 when I started a much slower taper.

STARTING SENSIBLE  ZOLOFT TAPERING USING GUIDELINES FROM THIS SITE

Dec. 10 2016  - switched to Liquid Zoloft (Sertraline) @ 12.5 mg.   Jan. 4, 2020 1.875 mg (6.3%). Jan. 25, 2020 1.75 mgFeb. 29, 2020 1.625mg (7.10%).  Apr. 4, 2020 1.5 mg.  May 9, 2020 1.375 mg.  June 6, 2020 1.25 mg. (9.10%).  July 4, 2020 1.125 mg. (10%).  August 15, 2020 1.0 mg.  Oct 24, 2020 .875 mg.  Nov. 28, 2020 .75mgJan 16, 2021 .685mg (8.7%).  Feb 13, 2021 .62mg. March 12, 2021 .56mg.  May 1, 2021 .375mg.  May 29, 2021 .25mg. June 26, 2021 .0125mg. July 25, 2021 .065mg. August 22, 2021 .048mg.  October 2, 2021 .043mg.  October 10, 2021 .038mg.  October 23, 2021 .035mg.  October 30, 2021 .032mg.  Nov. 13, 2021 .030 mg.  Dec 4, 2021 .0285 mg.  Dec 11, 2021 .0265 mg. Dec 18, 2021 .0246 mg. Dec 25, 2021 .023mg. Jan 1, 2022. 0 mg. OFF COMPLETELY

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Hello RachelSusan

 

Thank you so much - it is so scary it is 4 years now and instead of getting better it is getting worse...But I have to have courage and hope - and encouragement from here is wonderful

 

How are you doing Rachel - are you in weaning or off completely...Please let me knowxx

 

Thank you again for answering me.

 

I am a singer and I just cant help but put songs after I write something - everyone knows that on FB lol.

 

Stay well and take good care of yourself.

 

Lee (f)

xxxx

 

Getting to know you

Getting to know all about you

Getting to like you

Hoping that you like me xxx

Zoloft started for 8 years - 150 mg capsules

Started tapering December 3, 2011,

Off Zoloft May 17, 2013

While tapering WDS were tolerable

Off Zoloft debilitating WDS the worst starting around 6 months off

even worse after 18 months off

Now 35 months off - still in a terrible wave for months now.

 

 

 

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  • Mentor

Hi Lee,

I have had a hard time of it however nothing like what you are going through.  I went cold turkey sometime between May and June of 2016.  It took me a month to realize what was going on.  I had a lot of the physical symptoms you described and then some of my own.  Thankfully though I did not have any emotional ones.  I reinstated summer of 2016 and then started to taper again. I used the pill cutting method. My tapering was too fast and I had to go partway back up on my dosage. I felt like a failure at that time however now I see it as nothing more than what my body needed.  Starting in December of  2016 I got liquid Zoloft and restarted the taper, at a much slower rate.  Since then it has been fairly smooth.  I read your thread though and it made me aware that what has happened to you can happen to any of us, and it appears at anytime after a taper. This is really frightening stuff.  Is it continuing to get worse on every level, or are there improvements with any of the individual symptoms? I hope for improvement for you, as I am sure you do every day of your life.

RS

 

I am not a health professional in any way.  I do not give medical advice.   Discuss any decisions about your medical care with a professional medical practitioner.

 

NEW INFORMATION FOR GABAPENTIN TAPER

April 29, 2022 900 mg to 800 mg (11%), May 29, 2022 800 to 700 mg (12.5%), June 20, 2022 700 to 650mg (8%), July 20, 2022 650 to 575 (12%), August 20,  575 to 500 (13%),  Sept 20, 2020 500 to 475mg (5%) Nov 7, 2022 475 to 425 (11%), Nov 21, 2022 500mg

Medications: Gabapentin, Prednisone 1.5mg a day, Cortisol Inhaler daily. 

HISTORY FOR ZOLOFT TAPER

Feb. 2016 to June 2016  - Was on 150mg Zoloft.  Put on Gabapentin at 900mg a day in 2016 due to antidepressant withdrawal. 

Quit Zoloft (Sertraline) June  2016,  reinstated 50mg of Zoloft July 2016.  From July 2016  to October 2016 went from 50 mg down 2.3 mg. I up-dosed in November 2016 to 12.5 mg. Held there until January 2017 when I started a much slower taper.

STARTING SENSIBLE  ZOLOFT TAPERING USING GUIDELINES FROM THIS SITE

Dec. 10 2016  - switched to Liquid Zoloft (Sertraline) @ 12.5 mg.   Jan. 4, 2020 1.875 mg (6.3%). Jan. 25, 2020 1.75 mgFeb. 29, 2020 1.625mg (7.10%).  Apr. 4, 2020 1.5 mg.  May 9, 2020 1.375 mg.  June 6, 2020 1.25 mg. (9.10%).  July 4, 2020 1.125 mg. (10%).  August 15, 2020 1.0 mg.  Oct 24, 2020 .875 mg.  Nov. 28, 2020 .75mgJan 16, 2021 .685mg (8.7%).  Feb 13, 2021 .62mg. March 12, 2021 .56mg.  May 1, 2021 .375mg.  May 29, 2021 .25mg. June 26, 2021 .0125mg. July 25, 2021 .065mg. August 22, 2021 .048mg.  October 2, 2021 .043mg.  October 10, 2021 .038mg.  October 23, 2021 .035mg.  October 30, 2021 .032mg.  Nov. 13, 2021 .030 mg.  Dec 4, 2021 .0285 mg.  Dec 11, 2021 .0265 mg. Dec 18, 2021 .0246 mg. Dec 25, 2021 .023mg. Jan 1, 2022. 0 mg. OFF COMPLETELY

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Rachel

 

It seems this last level from 3.5 years the WDs started to get worse - now it is 4 years and nothing has let up - I do get slight windows if you want to call them that - where I may feel able to cope much better - but lasts for about 4 hours then it is gone - but this is not very often - but I do get them - I have been months and months with this Wave and it is so scary because you just think you will never get better or if this is withdrawals at all...Imagination just runs away with you.

 

But no matter how I feel - I do what I have to do - I keep every appointment even crying in the car while going to them - I go....shopping, banking, cleaning - you name it I do it....but you will never know the tremendous effort - They say even if you are afraid - do it afraid - and I do...I face my fears - still nothing has changed. Also it is said no matter what you do these WDs will leave when they want to leave when the rubik's cube of your brain has been completed.

 

Stay well Rachel and take good care of yourself .... I pray for you and everyone who is suffering going through these WDS.

 

Lee (f)

xxx

Zoloft started for 8 years - 150 mg capsules

Started tapering December 3, 2011,

Off Zoloft May 17, 2013

While tapering WDS were tolerable

Off Zoloft debilitating WDS the worst starting around 6 months off

even worse after 18 months off

Now 35 months off - still in a terrible wave for months now.

 

 

 

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  • Mentor

Thank you Lee.  I know you are taking the best care of yourself you can.  You are in my thoughts as well.

RS

 

I am not a health professional in any way.  I do not give medical advice.   Discuss any decisions about your medical care with a professional medical practitioner.

 

NEW INFORMATION FOR GABAPENTIN TAPER

April 29, 2022 900 mg to 800 mg (11%), May 29, 2022 800 to 700 mg (12.5%), June 20, 2022 700 to 650mg (8%), July 20, 2022 650 to 575 (12%), August 20,  575 to 500 (13%),  Sept 20, 2020 500 to 475mg (5%) Nov 7, 2022 475 to 425 (11%), Nov 21, 2022 500mg

Medications: Gabapentin, Prednisone 1.5mg a day, Cortisol Inhaler daily. 

HISTORY FOR ZOLOFT TAPER

Feb. 2016 to June 2016  - Was on 150mg Zoloft.  Put on Gabapentin at 900mg a day in 2016 due to antidepressant withdrawal. 

Quit Zoloft (Sertraline) June  2016,  reinstated 50mg of Zoloft July 2016.  From July 2016  to October 2016 went from 50 mg down 2.3 mg. I up-dosed in November 2016 to 12.5 mg. Held there until January 2017 when I started a much slower taper.

STARTING SENSIBLE  ZOLOFT TAPERING USING GUIDELINES FROM THIS SITE

Dec. 10 2016  - switched to Liquid Zoloft (Sertraline) @ 12.5 mg.   Jan. 4, 2020 1.875 mg (6.3%). Jan. 25, 2020 1.75 mgFeb. 29, 2020 1.625mg (7.10%).  Apr. 4, 2020 1.5 mg.  May 9, 2020 1.375 mg.  June 6, 2020 1.25 mg. (9.10%).  July 4, 2020 1.125 mg. (10%).  August 15, 2020 1.0 mg.  Oct 24, 2020 .875 mg.  Nov. 28, 2020 .75mgJan 16, 2021 .685mg (8.7%).  Feb 13, 2021 .62mg. March 12, 2021 .56mg.  May 1, 2021 .375mg.  May 29, 2021 .25mg. June 26, 2021 .0125mg. July 25, 2021 .065mg. August 22, 2021 .048mg.  October 2, 2021 .043mg.  October 10, 2021 .038mg.  October 23, 2021 .035mg.  October 30, 2021 .032mg.  Nov. 13, 2021 .030 mg.  Dec 4, 2021 .0285 mg.  Dec 11, 2021 .0265 mg. Dec 18, 2021 .0246 mg. Dec 25, 2021 .023mg. Jan 1, 2022. 0 mg. OFF COMPLETELY

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Good luck divalee. Don't face your fears like being in a head to head battle. Just feel the energy in your body when it comes up. Open the gate completely.

 

So your last dose was 25mg of sertraline for 4 months and then the jump?

My gf also took that drug. That's why I'm asking. It's unbelievable how you have to point a gun to a doc's head to prescribe smaller doses. They're like "you can safely stop at 25mg".

Took my first SSRI sipralexa/lexapro/escitalopram in 2007 for depression. In 2010 the doctor switched me to paroxetine/seroxat/paxil for anxiety.

My paroxetine story from then on:

 

2010-15 from 10mg up to 20mg

jan 2016 30mg

may 2016 0mg cold turkey (don't!)

dec 2016 symptoms: anxiety, tremor (could barely stand)

jan 2017 reinstated at 7.5mg to taper in steps of 10%

...

Dose changes from may 2017 to now: 

5.0/4.7/4.4/4.0/3.7/3.5/3.3/3.1mg

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Hello MiT

 

Yes that is correct - I was trying again - and now I have developed PBBV (Benign Paroxsmal Positional Vertigo)  dizziness so bad.  BPPV is that we have crystals in the upper champer of our ears - and if some drop down the canal to the bottom you get very dizzy - there is a maneuver that can be done to help it -  I have been doing it but still dizzy....so tomorrow will go to my ENT doctor to see if you can do it properly

 

I don't know if anyone here has experienced that but boy it is debilitating on top of trying to cope with WDs.

 

Yes Sertraline (Zoloft) only comes in 25 , 50 and 100 mgs....so have no choice but to taper 25mgs at a time. 

 

Thank you MiT for answering me.

 

Lee (f)

xxx

Zoloft started for 8 years - 150 mg capsules

Started tapering December 3, 2011,

Off Zoloft May 17, 2013

While tapering WDS were tolerable

Off Zoloft debilitating WDS the worst starting around 6 months off

even worse after 18 months off

Now 35 months off - still in a terrible wave for months now.

 

 

 

Link to comment

Also too that fake therapist that is also a member here -  really delayed my healing process - I was in hell with her and in hell with my WDs - but look - I survived - I think if I could survive all that -  I will indeed make it...xxx and then write a book about it.

 

Who do you mean Lee? If there is someone here who has upset you it would be best to say who it is.

Many SSRI's and SSNRI's over 20 years. Zoloft for 7 years followed by Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and more - on and off. No tapering. Cold turkey off Valdoxan - end of May 2014

 

                                                  Psych Drug - free since May 2014
.
         

Link to comment

Hello MiT

 

Yes that is correct - I was trying again - and now I have developed PBBV (Benign Paroxsmal Positional Vertigo)  dizziness so bad.  BPPV is that we have crystals in the upper champer of our ears - and if some drop down the canal to the bottom you get very dizzy - there is a maneuver that can be done to help it -  I have been doing it but still dizzy....so tomorrow will go to my ENT doctor to see if you can do it properly

 

I don't know if anyone here has experienced that but boy it is debilitating on top of trying to cope with WDs.

I had that two years ago in severe stress situations. I had to do these "Brandt" exercices. I remember they don’t really know what causes this. In my case it clearly was stress related.

Took my first SSRI sipralexa/lexapro/escitalopram in 2007 for depression. In 2010 the doctor switched me to paroxetine/seroxat/paxil for anxiety.

My paroxetine story from then on:

 

2010-15 from 10mg up to 20mg

jan 2016 30mg

may 2016 0mg cold turkey (don't!)

dec 2016 symptoms: anxiety, tremor (could barely stand)

jan 2017 reinstated at 7.5mg to taper in steps of 10%

...

Dose changes from may 2017 to now: 

5.0/4.7/4.4/4.0/3.7/3.5/3.3/3.1mg

Link to comment

Also too that fake therapist that is also a member here -  really delayed my healing process - I was in hell with her and in hell with my WDs - but look - I survived - I think if I could survive all that -  I will indeed make it...xxx and then write a book about it.

 

Who do you mean Lee? If there is someone here who has upset you it would be best to say who it is.

AliG   yes she is a member here but she has gone even though she has not left the group -  she hasn't posted here since 2012

 

I just wanted people to be aware to whom they trust - when someone approaches them to help them for a fee....I have come to terms with it - I was In a terrible state - but I had the courage to walk away -  took me a long time but I did it.....to retaliate we are digging two graves - an eye for and eye makes the whole world blind.....Yes she should be In jail - but I let the Universe take care of that - I could never live with myself if I were responsible for someone going to jail -  we don't know what makes people the way they are - if we could only walk in their shoes for a bit to understand why.

 

She cant hurt anyone anymore - she is In her own hell now -  and I don't wish her any harm - let the Universe, God take care of it - she is in their hands now....

 

How are you doing AliG -  Thank you for helping me so much when I need it.....right now I am In a wave for many many months and now have to cope with BPPV vertigo - besides WDS.  4 years off Sertraline(Zoloft) I had better days before but now all seems to be worse -  but we have to have courage, inner strength and speranza - and this group - we are all in the same boat - some in the middle of the boat, some at the edges, but we are all in it - and I pray for all of us....so that one day we will be free of this suffering we are going through......

 

I hope you are doing well

much love

Lee (f)

xxxx

Zoloft started for 8 years - 150 mg capsules

Started tapering December 3, 2011,

Off Zoloft May 17, 2013

While tapering WDS were tolerable

Off Zoloft debilitating WDS the worst starting around 6 months off

even worse after 18 months off

Now 35 months off - still in a terrible wave for months now.

 

 

 

Link to comment

 

Hello MiT

 

Yes that is correct - I was trying again - and now I have developed PBBV (Benign Paroxsmal Positional Vertigo)  dizziness so bad.  BPPV is that we have crystals in the upper champer of our ears - and if some drop down the canal to the bottom you get very dizzy - there is a maneuver that can be done to help it -  I have been doing it but still dizzy....so tomorrow will go to my ENT doctor to see if you can do it properly

 

I don't know if anyone here has experienced that but boy it is debilitating on top of trying to cope with WDs.

I had that two years ago in severe stress situations. I had to do these "Brandt" exercices. I remember they don’t really know what causes this. In my case it clearly was stress related.

 

MiT ---

 

Yes I am under tremendous stress - the waves are full force for many months now - but it was better before this wave and it will get better again - just knowing I had some good times - gives me the speranza that things will get better.....This is BPPV vertigo ....little crystals that are in the upper chamber of our ears - if one or two of the make their way down to the bottom of the ear - that is what makes us dizzy....there are maneuvers to help those crystals get back up where they belong.  Takes a long time sometimes - and yes it could be from stress -  I have so many symptoms due to stress it is unbelievable - distorted vision is the worse -  but so many others are nearly just as bad....

 

Going to ring my ENT doctor tomorrow to see if he will do the maneuver for me - I can do it but maybe not doing it completely right...

 

Thank you for listening

How are you doing MiT......

 

Lee (f)

xxx

Zoloft started for 8 years - 150 mg capsules

Started tapering December 3, 2011,

Off Zoloft May 17, 2013

While tapering WDS were tolerable

Off Zoloft debilitating WDS the worst starting around 6 months off

even worse after 18 months off

Now 35 months off - still in a terrible wave for months now.

 

 

 

Link to comment

...

I just wanted people to be aware to whom they trust - when someone approaches them to help them for a fee....I have come to terms with it - I was In a terrible state - but I had the courage to walk away -  took me a long time but I did it.....to retaliate we are digging two graves - an eye for and eye makes the whole world blind.....Yes she should be In jail - but I let the Universe take care of that - I could never live with myself if I were responsible for someone going to jail -  we don't know what makes people the way they are - if we could only walk in their shoes for a bit to understand why.

 

...

 

hi divalee .this is beautiful ,it sums up your character to me without knowing you ,well done for being the  bigger  person .I am working on this part of my character .just dropping bad energy when it doesn't serve a positive purpose .thanks for the nice example to keep me on the correct path . 

 

I'm sorry for your suffering ,if its any concelation ,I'm coming out of my worst ever wave that freaked me out  ,it went on for quite a while and was horrendous  ,I wish  you plenty of windows .take care

PB

Alcohol free since February 2015 

1MG diazepam

4.5MG PROZAC.

 

 

 

Link to comment

Lee. I'm very well at the moment. It could change at anytime but ultimately I'm always heading in a forward, positive direction even if it's three steps forward and two back. It's a slow process. It's good to see you back again.Take very good care of yourself.

Many SSRI's and SSNRI's over 20 years. Zoloft for 7 years followed by Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and more - on and off. No tapering. Cold turkey off Valdoxan - end of May 2014

 

                                                  Psych Drug - free since May 2014
.
         

Link to comment

AliG

I am glad you are out of that horrible wave - I can relate - let us hope this window you are in lasts forever.

 

Stay well and take good care of you too

 

If happy little bluebirds fly

beyond the rainbow

So can.......you.....and......I......

 

Love

Lee (f)

xxx

Zoloft started for 8 years - 150 mg capsules

Started tapering December 3, 2011,

Off Zoloft May 17, 2013

While tapering WDS were tolerable

Off Zoloft debilitating WDS the worst starting around 6 months off

even worse after 18 months off

Now 35 months off - still in a terrible wave for months now.

 

 

 

Link to comment

Hey Lee,

 

About the crystal exercice google Brandt-Daroff". That's the exercice I had to do. It's not that hard. Lay sideways and then get up straight quickly.

Personally I didn't really do the exercice that often. The problem disappeared when my stress level lessened. But do what works for you!

 

Tim

Took my first SSRI sipralexa/lexapro/escitalopram in 2007 for depression. In 2010 the doctor switched me to paroxetine/seroxat/paxil for anxiety.

My paroxetine story from then on:

 

2010-15 from 10mg up to 20mg

jan 2016 30mg

may 2016 0mg cold turkey (don't!)

dec 2016 symptoms: anxiety, tremor (could barely stand)

jan 2017 reinstated at 7.5mg to taper in steps of 10%

...

Dose changes from may 2017 to now: 

5.0/4.7/4.4/4.0/3.7/3.5/3.3/3.1mg

Link to comment
4 hours ago, miT said:

Hey Lee,

 

About the crystal exercice google Brandt-Daroff". That's the exercice I had to do. It's not that hard. Lay sideways and then get up straight quickly.

Personally I didn't really do the exercice that often. The problem disappeared when my stress level lessened. But do what works for you!

 

Tim

Hello Tim -  I was lucky enough to find a private clinic not far from me who specialise in BPPV -  I have been doing the maneuvers at home but still had vertigo.....I had an appointment yesterday - and he diagnosed BPPV and did some maneuvers and told me how to do them at home -  I now have no vertigo when I do them - but now when walking and moving my head I am dizzy but no vertigo.....I phoned the doctor and he said that the crystals have moved away and that I have residual dizziness that will soon go away......I see him again tomorrow at 2 pm -  I am not out of the woods yet but almost - hopefully.

Still in this Wave that I have had for months with no let up save for once in a blue moon I might have a slight Window...I did a lot better when 1 and 2 years off - it was when I started the 3 year things just kept going down hill.

Thank you Tim for answering me - it means so much -   I hope you are doing well. I hope that Andy, AilG, Direstraits, Rachel and others are doing well and want to thank them for their support as well.

Lee (f)

xxxx

 

 

Zoloft started for 8 years - 150 mg capsules

Started tapering December 3, 2011,

Off Zoloft May 17, 2013

While tapering WDS were tolerable

Off Zoloft debilitating WDS the worst starting around 6 months off

even worse after 18 months off

Now 35 months off - still in a terrible wave for months now.

 

 

 

Link to comment

Hang in there Lee.

Might be the last fierce fight of the withdrawal monster before it dissolves completely.

Surrender to everything it throws at you. It feeds on resistance. Don't feed it...

Took my first SSRI sipralexa/lexapro/escitalopram in 2007 for depression. In 2010 the doctor switched me to paroxetine/seroxat/paxil for anxiety.

My paroxetine story from then on:

 

2010-15 from 10mg up to 20mg

jan 2016 30mg

may 2016 0mg cold turkey (don't!)

dec 2016 symptoms: anxiety, tremor (could barely stand)

jan 2017 reinstated at 7.5mg to taper in steps of 10%

...

Dose changes from may 2017 to now: 

5.0/4.7/4.4/4.0/3.7/3.5/3.3/3.1mg

Link to comment
2 hours ago, miT said:

Hang in there Lee.

Might be the last fierce fight of the withdrawal monster before it dissolves completely.

Surrender to everything it throws at you. It feeds on resistance. Don't feed it...

Yes I try very hard to surrender to it - just now coping with this dizziness too.  

If happy little bluebirds fly

Beyond the rainbow

So can......you.......and .....I

 

Thank you MiT  

Lee (f)

xxx

over the rainbow 1.jpg

Zoloft started for 8 years - 150 mg capsules

Started tapering December 3, 2011,

Off Zoloft May 17, 2013

While tapering WDS were tolerable

Off Zoloft debilitating WDS the worst starting around 6 months off

even worse after 18 months off

Now 35 months off - still in a terrible wave for months now.

 

 

 

Link to comment

Hello Everyone

 

Well I have BPPV benign paroxysmal positional vertigo - I am so dizzy - but mine seems to be a bit more complicated.  When the physiotherapist does the maneuver to get the crystals back to where they should be - the room spins around everything is moving...in my case nothing moves -  it could be that the crystals are stuck and wont move - He has tried several maneuvers nothing works - I am now doing the last one he showed me how to do.....nothing moves at all.  It is when I am walking, or move my head up or down that I am dizzy....I am going back to the physiotherapist on Tuesday again - I have already been there 4 times. Nothing works.

 

I spoke with my pharmacist and he told me that if the physiotherapist showed me how to do the maneuver there is no reason for me to go back to him because I know how to do it and no need to be paying him to do it.....Still I wasn't sure, so I phoned my ENT doctor - and he said the same thing - no need to go back to Physio once I know how to do it.....and even if I didn't do the maneuver eventually it will fix itself up but takes weeks or months....even with Physio it can take that long....

 

I will ask the Physiotherapist which canal these crystals are stuck in and to give me the proper maneuvers to do....he is showing me all sorts of maneuvers to get these crystals moving....Then I wont go back any more and hopeful the maneuver will help and if it doesn't the crystals will eventually desolve or go back up to where they are suppose to be.

 

So here I am fighting so hard with WDs and now coping with BPPV - I don't know how much more I can take.  Maybe the Universe decided to give me this debilitating dizziness, so that when it does go away - I wont complain about my WDs and look at the whole thing differently - who knows....

 

WDs I wake up crying with anxiety and the sweats....depression is full blown, thank God for the computer because I don't get the high anxiety when I am on here...and other WD symptoms I have to cope with every day......Please, it is 4 years I am off Zoloft - when will this end...maybe it isn't WDs I just don't know any more - but they are the same symptoms I have had since I stopped Zoloft on May 17, 2013.....

 

Again thank you for listening - I know no one can do anything for me - but a bit of encouragement or maybe someone else has had BPPV can help me....It also says that stress , anxiety, dizziness does not bring on BPPV BUT it can make it worse if we are highly stressful - 

 

Much love

Lee (f)

xxx

I guess I would rather swing on a star, carry moonbeams home in a jar....

xxx

Zoloft started for 8 years - 150 mg capsules

Started tapering December 3, 2011,

Off Zoloft May 17, 2013

While tapering WDS were tolerable

Off Zoloft debilitating WDS the worst starting around 6 months off

even worse after 18 months off

Now 35 months off - still in a terrible wave for months now.

 

 

 

Link to comment
  • Moderator Emeritus
On 6/10/2017 at 4:43 PM, divalee said:

maybe it isn't WDs I just don't know any more - but they are the same symptoms I have had since I stopped Zoloft on May 17, 2013.....

 

Lee,

 

So sorry.  I missed this post otherwise I'd have responded sooner.

 

It IS withdrawal.  Look at the facts as you have outlined them.  You had no issue, you came off the med, you had an issue.  Pretty clear cause and effect if you ask me!  Of course, that doesn't make it any easier to deal with!

 

How is the BPPV?  Any improvement?  That is most definitely NOT a permanent condition and will hopefully be responding sooner rather than later.

 

With regard to how long this is taking, my heart goes out to you.  I know how much you have struggled.  I don't know if you read this that I posted:

 

http://survivingantidepressants.org/index.php?/topic/14923-incredible-story-from-bb/

 

You were one of the people in my mind when I posted it.  Not to suggest his time frame will be yours -- just that your time for healing is coming.

 

Best,

 

Andy

Sertraline 50mg and Clonazapam .375mg from 2000 -- symptoms of dizziness Spring 2012

increased to .5 Clonazapam and 100mg Sertraline -- no improvement

Benzo microtaper from November 2012 to November 2014 (followed benzo sites "taper benzo first")

Started Sertraline taper in December 2014 cut by 25mg to 75mg; 62.5mg 1/1/15 and 50mg on 2/1/15

Held at 50mg through April 5 to use liquid 
Reduced dosage in 10% or less drops from 50mg to 25mg -- at single tablet of 25mg on 10/5/15

Transitioned to all liquid for accuracy while tapering -- Horrible insomnia -- back to 25mg liquid and held until October 1, 2016

10/16 -- 11/18 tapered very slowly to 10.6mg.  No real improvement and never really stable so updosed to 12.5mg (1/2 a pill) for convenience and long hold.

After 8+ months of holding with no noticeable improvement decided to add .4ml of liquid Prozac (about 1.5mg) to see if that improves the situation

Supplements, Magnesium, D3, Omega 3, curcumin, Valerian, 81mg Aspirin, L-Theanine, Vit. C,

 

Link to comment

Hello Andy

 

Thank you for this link - puts things back into perspective - because sometimes I think this is not WDs.  BPPV is a bit better but not fully - and of course having these WDs I also suffer dizziness - but not like this spinning vertigo so it is BPPV.  I don't have the spinning vertigo any more - but still dizzy - this makes my WDs worse because the anxiety is hitting the roof.....

 

I have to listen to my pharmacist and my ENT doctor who told me that this BPPV will go away on its own - even if I don't do the maneuver -  I had this four years ago, but not as bad - and it did go away without doing any maneuvers.....

 

Yesterday I had a couple of good hours and always I feel better at night -  That is why I know it has to be WDs - because I can be so bad during the day and when it starts to get dark outside I start to relax more and the WDs are not so bad -  but I know that when I wake up on the morning - it starts all over again.  I feel my WDs are getting worse, not better - and now with this BPPV - it is just too much.....

 

Pins and needles and bussing in my head, feel pressure in my ears....pressure across bridge of my nose - always light headed - distorted vision, night sweats - they started to go away a couple of months ago - maybe only having one a night - but now they have come back with a vengeance and soaking my bed and me...about 4 times a night again....feeling of always feeling unwell...but as I said - I do everything I can.....go shopping, bank, etc....no matter how I feel, even if I do it crying...I do it.  But it doesn't help - I thought facing your fears help but it doesn't...

 

I am a person who eats very health food - maybe I should go gluten free - something just to make myself feel better.  We read so much online - only to confuse us more......Here I am going on and on and on - not making much sense - just writing for dear life - I am a very spiritual being.....but sometimes I think there is nothing at all.

 

Thank you Andy for your support

Lee (f)

xxx

 

 

Zoloft started for 8 years - 150 mg capsules

Started tapering December 3, 2011,

Off Zoloft May 17, 2013

While tapering WDS were tolerable

Off Zoloft debilitating WDS the worst starting around 6 months off

even worse after 18 months off

Now 35 months off - still in a terrible wave for months now.

 

 

 

Link to comment

Diva - 

 

i also get the pressure across cross the bridge of my nose and sometimes my entire nose becomes numb.  I've read a little bit of your thread and am amazed by your strength and courage.  I cannot manage day to day activities as you do (I.e. Grocery shopping, errands, etc).  You are truly amazing.  How do you do it?

 

praying for your healing.  You are not alone.

Mid 2014 - June 2016 (~ 2.5 yrs): sertraline 75mg. Under advice of my Pysch NP, weaned off in 1 month

Sept 2017 - Feb 2017 (6 months): Latuda (dose 20mg up to 80mg). Under advice of Psych NP, weaned off in 6 weeks (Jan - mid Feb). Tirtated down 20mg every 2 weeks.

Nov 2017 - Feb 2017 (3 months): lamictal 100mg. Abruptly taken off. This was the "wean": 100mg, 50mg, then off

Feb 2017: sertraline 150mg for 1 week to bring me out of a severe suicidal depression. Abruptly stopped due to serotonin syndrome. Tried to reinstate 50mg a week later, but the serotonin syndrome symptoms came back. Not possible to reinstate sertraline.

March 2017: remeron 7.5mg. Took one dose that knocked me out for two days. Refused to take it again

February 2017 - March 2017: Ativan 1mg. Took 5 pills total spread out over the course of 3 weeks. No longer taking it.

6/16/18 - 6/26: celexa 1.25mg

6/27/18 - 6/29: celexa 2.5mg, 6/29 had burning and agitation within 30min of dose

6/30/18 - present: celexa 1.25mg

Link to comment

Hello TryingToHoldOn

 

Thank you for replying to me.

 

Yes I have pins and needles head, face an pressure cross the bridge of my nose - and many more WDs symptoms....sometimes I don't think I will make it through the day - but I know it is WDs because soon as night time comes I feel much better - why?  I think it is because I start to calm down - maybe thinking I succeeded another day and blessed night has arrived...it is amazing the change - but I know that when i wake up in the morning all the horrible stuff is back and have to struggle every minute of the day......

 

Still - we must not give in to fear - if you are afraid .do it afraid - I do that every day.....I cry in the damn car - not in the shops - then cry when i get home....some days are better than others -  but never ever out of this wave and it has been months and months - before that I wasnt doing so badly - all the symptoms I have now were still there but not as intense as they are now....

 

If I can do it - so can you "Trying"  you must - you cannot let fear get the best of you - I know it isnt easy - not pretending it is.....it is not - Even though so difficult deep down you know you have accomplished something and that is healing onto itself -  you may not think so - but it is..

 

Have courage, have speranza(hope) - stare fear in the face, show it you are not afraid of it -  don't fight it - just let it be there and do what you have to do - soon fear will disappear - fear only thrives when we are so fearful we cant do anything at all....

 

Are you weaning off your SSRI or are you off completely.  What are all of your symptoms -  

 

Take care of yourself and know that we are all here for each other to help us on our individual road to recovery - and it will happen -  it will.....have faith, have courage - and all the support you can get.

 

Lee (f)

xx

If happy little bluebirds fly

beyond the rainbow

So can......you......and.....I

 

xxx

 

Edited by scallywag
reset font size

Zoloft started for 8 years - 150 mg capsules

Started tapering December 3, 2011,

Off Zoloft May 17, 2013

While tapering WDS were tolerable

Off Zoloft debilitating WDS the worst starting around 6 months off

even worse after 18 months off

Now 35 months off - still in a terrible wave for months now.

 

 

 

Link to comment

Diva -

 

i try try to do as much as I can, but am still non functional some days.  For instance, I am able to take my kids to and pick them up from summer camp almost every day.  However, two days ago, after I dropped them off I had the most horrendous panic attack.  I ended up sobbing uncontrollably for 4-5 hours.  It was gut wrenching, soul sucking, and I could not make myself stop.  My husband had to pick the kids up that day.  I have taken the kids to school crying ( I wear sunglasses when I drop them off), but that level of emotional distress was at a different level and renders me non-functional at times.  I wish not to be, but it is what it is...for now.

 

I hope those episodes become less and less so I can regain some normalcy in my life.

 

Thank you for your support.  Wishing you much healing and hope.

Edited by scallywag
deleted quote of immediately previous post for readability

Mid 2014 - June 2016 (~ 2.5 yrs): sertraline 75mg. Under advice of my Pysch NP, weaned off in 1 month

Sept 2017 - Feb 2017 (6 months): Latuda (dose 20mg up to 80mg). Under advice of Psych NP, weaned off in 6 weeks (Jan - mid Feb). Tirtated down 20mg every 2 weeks.

Nov 2017 - Feb 2017 (3 months): lamictal 100mg. Abruptly taken off. This was the "wean": 100mg, 50mg, then off

Feb 2017: sertraline 150mg for 1 week to bring me out of a severe suicidal depression. Abruptly stopped due to serotonin syndrome. Tried to reinstate 50mg a week later, but the serotonin syndrome symptoms came back. Not possible to reinstate sertraline.

March 2017: remeron 7.5mg. Took one dose that knocked me out for two days. Refused to take it again

February 2017 - March 2017: Ativan 1mg. Took 5 pills total spread out over the course of 3 weeks. No longer taking it.

6/16/18 - 6/26: celexa 1.25mg

6/27/18 - 6/29: celexa 2.5mg, 6/29 had burning and agitation within 30min of dose

6/30/18 - present: celexa 1.25mg

Link to comment

Dear "Trying" 

I know what you are going through, trust me, I know - what are your symptoms - what makes it so hard for you to endure the day -  I am not going to say is it 'just' because nothing is just 'just" when we are going through stuff -  It is panic attacks, anxiety, what is it....

 

I am sorry for your pain and struggles -  I wish there were a magic wand for all of us to feel better - but these WDs go on their own when the rubik's cube has fixed all the wiring that got mixed up with these horrible SSRIs.

 

Stay strong - have courage - and speranza (hope) = this won't last forever - it seems that it will when we see no change day after day - but one day ----this too will pass.

 

One day we will:

 

Have the world on a string

Sitting on a rainbow

Have the string around our fingers

and we will say.....what a world.....what a life....I am FREE 

 

Lee (f)

xxx

 

 

Zoloft started for 8 years - 150 mg capsules

Started tapering December 3, 2011,

Off Zoloft May 17, 2013

While tapering WDS were tolerable

Off Zoloft debilitating WDS the worst starting around 6 months off

even worse after 18 months off

Now 35 months off - still in a terrible wave for months now.

 

 

 

Link to comment

Sorry D. It will get better. Hang in there. 

Many SSRI's and SSNRI's over 20 years. Zoloft for 7 years followed by Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and more - on and off. No tapering. Cold turkey off Valdoxan - end of May 2014

 

                                                  Psych Drug - free since May 2014
.
         

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