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HopeforBetter1110: Hoping for a second chance at life & a beautiful rebirth


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Hi Dadeen8!

 

I live here in San Diego. I just started tapering off Lamictal last month. I am having the hardest time with this particular med. I have been reading your posts. They have been helpful. I hope you are doing ok today. This site is awesome! I'm glad to have run across your profile!

1978-2011 Many different psychiatric meds

2/2011- Pristiq 50 mg QD, Lamictal 100 mg in AM, 200mg PM

5/2013- Pristiq 50mg QD, Lamictal 100mg BID- no major withdrawal symptoms

2/2014- Began taper of Pristiq, minimal mood disturbance, no sleep problems

4/2015- Off Pristiq no residual withdrawal symptoms since

9/2015 Began taper of Lamictal- 75mg in AM, 100mg in PM Negative thinking, cry easily, sleep disturbances, irritability

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Hi Dadeen8!

 

I live here in San Diego. I just started tapering off Lamictal last month. I am having the hardest time with this particular med. I have been reading your posts. They have been helpful. I hope you are doing ok today. This site is awesome! I'm glad to have run across your profile!

Hi KitKat63,

 

I'm sorry to hear you're having such a hard time getting off Lamictal. I have to agree, that it is a horrible drug to get off of! I did not taper properly, even though I was advised to slow down far more than I did. The "neuro-emotions" are by far the hardest part for me to deal with at this point, there's lots of good information on here about all of these intense thoughts and feelings. I read your page and it sounds like you also struggle with similar emotions right now. 

 

If you have Facebook, "Bloom in Wellness" might be a good page to follow (if you don't already). She posts some very positive and hopeful things about withdrawal that might help for when the emotions get to be too much. Hang in there and take it as slow as you need, the moderators definitely know best about that. Also, I hope you're able to find a doctor to help you with your taper and prescribe you the doses that you need.

 

We should try to stay in touch, as it doesn't seem there are too many of us in the SD area!

Last taper was off of Lamictal (Lamotrigine): Started drop from 225 mg in April 2014 by going down 25 mg every 2 weeks. Then to 12.5 mg every 3 weeks. Then 10 mg every 3 weeks. Then 5 mg after 3.5 weeks. (using the chewable, dispersible pills) I had gone down to 30 mg, but was far too sick and went back up to 35. I then dropped back down to 30 mg, then 1 mg drops until 25 mg. Dropped off completely at 25 mg because the symptoms from taking the pills were becoming more unbearable than the withdrawal at times. Completely off as of 5/11/15. Update 10/28/15: Reinstated 0.0625 mg, meant to take 0.25, measured wrong. Only took 2 days.

I've gotten off of: Abilify, PRN Klonopin (0.5-1 mg) - no taper as took it infrequently, and Effexor (300 mg). Abilify and Effexor were rapid tapers around the beginning of 2014. After tapering Effexor and Abilify I tried taking Remeron and Topamax for a short time with very bad side effects. (I have taken numerous psych drugs over the years (starting in my early teens), but these were the ones I was on when getting off completely).

On 2/9/15, received a Promethazine injection for nausea, which caused pain, numbness, burning, shooting pain and was prescribed pain meds (made me sick and didn't help), 5 days of Prednisone, and some sort of anti-inflammatory. I had been doing somewhat better with Lamictal taper until this point.

Current Supplements: Omega-3 with Co Q-10: 1000 mg x 2, Vitamin C with Bioflavonoids and Rose Hips: 500 mg x 2, Multivitamin, Vitamin D, Probiotics

 

Dx: Asperger Syndrome (originally misdiagnosed Borderline Personality Disorder, ADHD), GAD, and PTSD

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Is it recommended to stay away from anti-viral medications during withdrawal? I have read some of the posts on here and I'm feeling like it's probably not a good idea..

 

I was irritable last night soon after my first dose, although it could just be me. I had my second dose this morning. The neuro emotions seem to be more ramped up today. 

 

Thank you.

Last taper was off of Lamictal (Lamotrigine): Started drop from 225 mg in April 2014 by going down 25 mg every 2 weeks. Then to 12.5 mg every 3 weeks. Then 10 mg every 3 weeks. Then 5 mg after 3.5 weeks. (using the chewable, dispersible pills) I had gone down to 30 mg, but was far too sick and went back up to 35. I then dropped back down to 30 mg, then 1 mg drops until 25 mg. Dropped off completely at 25 mg because the symptoms from taking the pills were becoming more unbearable than the withdrawal at times. Completely off as of 5/11/15. Update 10/28/15: Reinstated 0.0625 mg, meant to take 0.25, measured wrong. Only took 2 days.

I've gotten off of: Abilify, PRN Klonopin (0.5-1 mg) - no taper as took it infrequently, and Effexor (300 mg). Abilify and Effexor were rapid tapers around the beginning of 2014. After tapering Effexor and Abilify I tried taking Remeron and Topamax for a short time with very bad side effects. (I have taken numerous psych drugs over the years (starting in my early teens), but these were the ones I was on when getting off completely).

On 2/9/15, received a Promethazine injection for nausea, which caused pain, numbness, burning, shooting pain and was prescribed pain meds (made me sick and didn't help), 5 days of Prednisone, and some sort of anti-inflammatory. I had been doing somewhat better with Lamictal taper until this point.

Current Supplements: Omega-3 with Co Q-10: 1000 mg x 2, Vitamin C with Bioflavonoids and Rose Hips: 500 mg x 2, Multivitamin, Vitamin D, Probiotics

 

Dx: Asperger Syndrome (originally misdiagnosed Borderline Personality Disorder, ADHD), GAD, and PTSD

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  • Administrator

Do you mean antibiotics or anti-virals? I don't believe we have any information about anti-virals.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Do you mean antibiotics or anti-virals? I don't believe we have any information about anti-virals.

 

Thanks for the response, Altostrata.

 

Antivirals, like Acyclovir. There is no specific topic regarding them, but I did find a few posts that had mentioned antivirals. One being: non psych drugs causing psych symptoms. There was also an old post of yours called "antidepressants carry most side effects warnings", which mentioned antivirals have high numbers of side effects. 

 

Because there's not much information, I thought I'd ask if anybody had any further thoughts on antivirals and withdrawal. I don't remember having side effects from it in the past, so I was wondering if maybe it was the combination of withdrawal that was ramping the neuro emotions.

Last taper was off of Lamictal (Lamotrigine): Started drop from 225 mg in April 2014 by going down 25 mg every 2 weeks. Then to 12.5 mg every 3 weeks. Then 10 mg every 3 weeks. Then 5 mg after 3.5 weeks. (using the chewable, dispersible pills) I had gone down to 30 mg, but was far too sick and went back up to 35. I then dropped back down to 30 mg, then 1 mg drops until 25 mg. Dropped off completely at 25 mg because the symptoms from taking the pills were becoming more unbearable than the withdrawal at times. Completely off as of 5/11/15. Update 10/28/15: Reinstated 0.0625 mg, meant to take 0.25, measured wrong. Only took 2 days.

I've gotten off of: Abilify, PRN Klonopin (0.5-1 mg) - no taper as took it infrequently, and Effexor (300 mg). Abilify and Effexor were rapid tapers around the beginning of 2014. After tapering Effexor and Abilify I tried taking Remeron and Topamax for a short time with very bad side effects. (I have taken numerous psych drugs over the years (starting in my early teens), but these were the ones I was on when getting off completely).

On 2/9/15, received a Promethazine injection for nausea, which caused pain, numbness, burning, shooting pain and was prescribed pain meds (made me sick and didn't help), 5 days of Prednisone, and some sort of anti-inflammatory. I had been doing somewhat better with Lamictal taper until this point.

Current Supplements: Omega-3 with Co Q-10: 1000 mg x 2, Vitamin C with Bioflavonoids and Rose Hips: 500 mg x 2, Multivitamin, Vitamin D, Probiotics

 

Dx: Asperger Syndrome (originally misdiagnosed Borderline Personality Disorder, ADHD), GAD, and PTSD

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  • Administrator

If I were you, I'd Google for the side effects, and see if there are a cluster of neurological side effects. If so, it's likely the drug is neuroactive and may cause you problems if you're sensitive.

 

Please share what you find in the Symptoms forum.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Thanks for the guidance, Altostrata. It does seem like it must be the medication. 

Last taper was off of Lamictal (Lamotrigine): Started drop from 225 mg in April 2014 by going down 25 mg every 2 weeks. Then to 12.5 mg every 3 weeks. Then 10 mg every 3 weeks. Then 5 mg after 3.5 weeks. (using the chewable, dispersible pills) I had gone down to 30 mg, but was far too sick and went back up to 35. I then dropped back down to 30 mg, then 1 mg drops until 25 mg. Dropped off completely at 25 mg because the symptoms from taking the pills were becoming more unbearable than the withdrawal at times. Completely off as of 5/11/15. Update 10/28/15: Reinstated 0.0625 mg, meant to take 0.25, measured wrong. Only took 2 days.

I've gotten off of: Abilify, PRN Klonopin (0.5-1 mg) - no taper as took it infrequently, and Effexor (300 mg). Abilify and Effexor were rapid tapers around the beginning of 2014. After tapering Effexor and Abilify I tried taking Remeron and Topamax for a short time with very bad side effects. (I have taken numerous psych drugs over the years (starting in my early teens), but these were the ones I was on when getting off completely).

On 2/9/15, received a Promethazine injection for nausea, which caused pain, numbness, burning, shooting pain and was prescribed pain meds (made me sick and didn't help), 5 days of Prednisone, and some sort of anti-inflammatory. I had been doing somewhat better with Lamictal taper until this point.

Current Supplements: Omega-3 with Co Q-10: 1000 mg x 2, Vitamin C with Bioflavonoids and Rose Hips: 500 mg x 2, Multivitamin, Vitamin D, Probiotics

 

Dx: Asperger Syndrome (originally misdiagnosed Borderline Personality Disorder, ADHD), GAD, and PTSD

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In regard to liquid doses. What do you do with the leftover liquid in the tip of the syringe? Do you discard it or empty it back into the leftover liquid? Thank you.

Last taper was off of Lamictal (Lamotrigine): Started drop from 225 mg in April 2014 by going down 25 mg every 2 weeks. Then to 12.5 mg every 3 weeks. Then 10 mg every 3 weeks. Then 5 mg after 3.5 weeks. (using the chewable, dispersible pills) I had gone down to 30 mg, but was far too sick and went back up to 35. I then dropped back down to 30 mg, then 1 mg drops until 25 mg. Dropped off completely at 25 mg because the symptoms from taking the pills were becoming more unbearable than the withdrawal at times. Completely off as of 5/11/15. Update 10/28/15: Reinstated 0.0625 mg, meant to take 0.25, measured wrong. Only took 2 days.

I've gotten off of: Abilify, PRN Klonopin (0.5-1 mg) - no taper as took it infrequently, and Effexor (300 mg). Abilify and Effexor were rapid tapers around the beginning of 2014. After tapering Effexor and Abilify I tried taking Remeron and Topamax for a short time with very bad side effects. (I have taken numerous psych drugs over the years (starting in my early teens), but these were the ones I was on when getting off completely).

On 2/9/15, received a Promethazine injection for nausea, which caused pain, numbness, burning, shooting pain and was prescribed pain meds (made me sick and didn't help), 5 days of Prednisone, and some sort of anti-inflammatory. I had been doing somewhat better with Lamictal taper until this point.

Current Supplements: Omega-3 with Co Q-10: 1000 mg x 2, Vitamin C with Bioflavonoids and Rose Hips: 500 mg x 2, Multivitamin, Vitamin D, Probiotics

 

Dx: Asperger Syndrome (originally misdiagnosed Borderline Personality Disorder, ADHD), GAD, and PTSD

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I see now on one of the posts that you should discard the liquid.

Last taper was off of Lamictal (Lamotrigine): Started drop from 225 mg in April 2014 by going down 25 mg every 2 weeks. Then to 12.5 mg every 3 weeks. Then 10 mg every 3 weeks. Then 5 mg after 3.5 weeks. (using the chewable, dispersible pills) I had gone down to 30 mg, but was far too sick and went back up to 35. I then dropped back down to 30 mg, then 1 mg drops until 25 mg. Dropped off completely at 25 mg because the symptoms from taking the pills were becoming more unbearable than the withdrawal at times. Completely off as of 5/11/15. Update 10/28/15: Reinstated 0.0625 mg, meant to take 0.25, measured wrong. Only took 2 days.

I've gotten off of: Abilify, PRN Klonopin (0.5-1 mg) - no taper as took it infrequently, and Effexor (300 mg). Abilify and Effexor were rapid tapers around the beginning of 2014. After tapering Effexor and Abilify I tried taking Remeron and Topamax for a short time with very bad side effects. (I have taken numerous psych drugs over the years (starting in my early teens), but these were the ones I was on when getting off completely).

On 2/9/15, received a Promethazine injection for nausea, which caused pain, numbness, burning, shooting pain and was prescribed pain meds (made me sick and didn't help), 5 days of Prednisone, and some sort of anti-inflammatory. I had been doing somewhat better with Lamictal taper until this point.

Current Supplements: Omega-3 with Co Q-10: 1000 mg x 2, Vitamin C with Bioflavonoids and Rose Hips: 500 mg x 2, Multivitamin, Vitamin D, Probiotics

 

Dx: Asperger Syndrome (originally misdiagnosed Borderline Personality Disorder, ADHD), GAD, and PTSD

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I apologize that I often keep coming back desperately, especially because I tapered too fast and did not listen to advice.

 

I reinstated a small dose of Lamictal this morning, 0.25 mg, as I couldn't handle the neuro emotions and the SI anymore. With the flashbacks and realizations that have occurred with withdrawal I have become absolutely obsessed with the idea that I'm a narcissist (endless reassurance from others does nothing), the last sliver of hope I can hold onto is that I am not completely void of feeling empathy, but much of my life has been a downward spiral of messed up and selfish decisions, feelings, and causing other people a lot of pain.

 

I feel the depression and SI have increased today. I'm unsure if this is from the small reinstatement or if this is just how things have become. I did have some pizza and ice cream on Sunday, as it was my birthday, and one piece on Monday. I have no sense of what's reality and what's withdrawal, but I'm terrified that this is just who I am. 

 

I have dealt with anxiety most of my life and developed depression and suicidal thoughts in middle school. Got off Effexor when I was 19/20 and went back to medications around age 23 (diagnosed with Borderline).

 

I've been trying to view this as a much needed rebirth, but I'm losing hope. Lately I've been meditating, therapy, doing EFT, diet change, trying to get out more, reiki, and not religious, but praying.

 

I know nobody has the answers. I just don't know what to do at this point. I know the reinstatement can take some time to help the symptoms (if at all), as well as some updosing, but I'm feeling that the small dose might have made me worse.

Last taper was off of Lamictal (Lamotrigine): Started drop from 225 mg in April 2014 by going down 25 mg every 2 weeks. Then to 12.5 mg every 3 weeks. Then 10 mg every 3 weeks. Then 5 mg after 3.5 weeks. (using the chewable, dispersible pills) I had gone down to 30 mg, but was far too sick and went back up to 35. I then dropped back down to 30 mg, then 1 mg drops until 25 mg. Dropped off completely at 25 mg because the symptoms from taking the pills were becoming more unbearable than the withdrawal at times. Completely off as of 5/11/15. Update 10/28/15: Reinstated 0.0625 mg, meant to take 0.25, measured wrong. Only took 2 days.

I've gotten off of: Abilify, PRN Klonopin (0.5-1 mg) - no taper as took it infrequently, and Effexor (300 mg). Abilify and Effexor were rapid tapers around the beginning of 2014. After tapering Effexor and Abilify I tried taking Remeron and Topamax for a short time with very bad side effects. (I have taken numerous psych drugs over the years (starting in my early teens), but these were the ones I was on when getting off completely).

On 2/9/15, received a Promethazine injection for nausea, which caused pain, numbness, burning, shooting pain and was prescribed pain meds (made me sick and didn't help), 5 days of Prednisone, and some sort of anti-inflammatory. I had been doing somewhat better with Lamictal taper until this point.

Current Supplements: Omega-3 with Co Q-10: 1000 mg x 2, Vitamin C with Bioflavonoids and Rose Hips: 500 mg x 2, Multivitamin, Vitamin D, Probiotics

 

Dx: Asperger Syndrome (originally misdiagnosed Borderline Personality Disorder, ADHD), GAD, and PTSD

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I just realized that I only took 0.25 mL, not 0.25 mg, which is equivalent to 0.0625 mg.

Last taper was off of Lamictal (Lamotrigine): Started drop from 225 mg in April 2014 by going down 25 mg every 2 weeks. Then to 12.5 mg every 3 weeks. Then 10 mg every 3 weeks. Then 5 mg after 3.5 weeks. (using the chewable, dispersible pills) I had gone down to 30 mg, but was far too sick and went back up to 35. I then dropped back down to 30 mg, then 1 mg drops until 25 mg. Dropped off completely at 25 mg because the symptoms from taking the pills were becoming more unbearable than the withdrawal at times. Completely off as of 5/11/15. Update 10/28/15: Reinstated 0.0625 mg, meant to take 0.25, measured wrong. Only took 2 days.

I've gotten off of: Abilify, PRN Klonopin (0.5-1 mg) - no taper as took it infrequently, and Effexor (300 mg). Abilify and Effexor were rapid tapers around the beginning of 2014. After tapering Effexor and Abilify I tried taking Remeron and Topamax for a short time with very bad side effects. (I have taken numerous psych drugs over the years (starting in my early teens), but these were the ones I was on when getting off completely).

On 2/9/15, received a Promethazine injection for nausea, which caused pain, numbness, burning, shooting pain and was prescribed pain meds (made me sick and didn't help), 5 days of Prednisone, and some sort of anti-inflammatory. I had been doing somewhat better with Lamictal taper until this point.

Current Supplements: Omega-3 with Co Q-10: 1000 mg x 2, Vitamin C with Bioflavonoids and Rose Hips: 500 mg x 2, Multivitamin, Vitamin D, Probiotics

 

Dx: Asperger Syndrome (originally misdiagnosed Borderline Personality Disorder, ADHD), GAD, and PTSD

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Are you still having any nausea?

I'm on 1800 mg of gabapentin 3x600, .325 Klonopin(.25 in am, .125 afternoon), in the evening I take cymbalta 30mg down from 60mg, remeron 30mg and lamictal 100 mg. Nausea and anxiety are my worst symptoms. C

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Are you still having any nausea?

Not nearly as much as I was having it before. It's almost completely gone at this point, as I rarely get it and it's much milder. I think most of it went away once I was off the meds completely. I did have some yesterday, but I had chosen to reinstate a very small dose, I'm not sure if that's possibly why.

 

It sounds like you're having bad nausea from your signature. The nausea can get really intense and I'm sorry you're having to deal with it right now. Does anything help relieve it at all or do you just have to wait it out?

Last taper was off of Lamictal (Lamotrigine): Started drop from 225 mg in April 2014 by going down 25 mg every 2 weeks. Then to 12.5 mg every 3 weeks. Then 10 mg every 3 weeks. Then 5 mg after 3.5 weeks. (using the chewable, dispersible pills) I had gone down to 30 mg, but was far too sick and went back up to 35. I then dropped back down to 30 mg, then 1 mg drops until 25 mg. Dropped off completely at 25 mg because the symptoms from taking the pills were becoming more unbearable than the withdrawal at times. Completely off as of 5/11/15. Update 10/28/15: Reinstated 0.0625 mg, meant to take 0.25, measured wrong. Only took 2 days.

I've gotten off of: Abilify, PRN Klonopin (0.5-1 mg) - no taper as took it infrequently, and Effexor (300 mg). Abilify and Effexor were rapid tapers around the beginning of 2014. After tapering Effexor and Abilify I tried taking Remeron and Topamax for a short time with very bad side effects. (I have taken numerous psych drugs over the years (starting in my early teens), but these were the ones I was on when getting off completely).

On 2/9/15, received a Promethazine injection for nausea, which caused pain, numbness, burning, shooting pain and was prescribed pain meds (made me sick and didn't help), 5 days of Prednisone, and some sort of anti-inflammatory. I had been doing somewhat better with Lamictal taper until this point.

Current Supplements: Omega-3 with Co Q-10: 1000 mg x 2, Vitamin C with Bioflavonoids and Rose Hips: 500 mg x 2, Multivitamin, Vitamin D, Probiotics

 

Dx: Asperger Syndrome (originally misdiagnosed Borderline Personality Disorder, ADHD), GAD, and PTSD

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It gets better at the end of the day and then begins all over again each day. I think it is the lamictal or cymbalta.

I'm on 1800 mg of gabapentin 3x600, .325 Klonopin(.25 in am, .125 afternoon), in the evening I take cymbalta 30mg down from 60mg, remeron 30mg and lamictal 100 mg. Nausea and anxiety are my worst symptoms. C

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Are you working during your taper? How did you handle the nausea? And what eases your anxiety?

I'm on 1800 mg of gabapentin 3x600, .325 Klonopin(.25 in am, .125 afternoon), in the evening I take cymbalta 30mg down from 60mg, remeron 30mg and lamictal 100 mg. Nausea and anxiety are my worst symptoms. C

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It gets better at the end of the day and then begins all over again each day. I think it is the lamictal or cymbalta.

 

Do you keep track of your symptoms and such in a journal? I'm still working on getting better at it myself, but it can help to be able to look at when symptoms hit in regard to time, taking meds, eating, etc. When I pooped out (still struggle with what terms mean what) on Effexor, I had a ton of nausea and vomiting. When I was tapering Lamictal, I had nausea throughout and also started having it after I took my daily dose. 

 

I hope the nausea passes for you soon.

 

Are you working during your taper? How did you handle the nausea? And what eases your anxiety?

 

No, I didn't work. I'm just now looking into doing some companion care, but am nervous about it. Are you able to work?

 

The nausea was unreal, as I'm sure you can relate to right now. I had been taking anti-nausea meds when it was bad, but it had been brought to my attention that some anti-nausea meds are also mild anti-psychotics, so those could have also been effecting my taper and symptoms. 

 

As far as the anxiety goes, it can be hard to ease. I try to hold onto what people say about if you can manage to get through withdrawal anxiety, every day anxiety will be easier to handle, as it can seem hopeless often.  Some of the stuff I've been trying to do: changed my diet, meditation, eft tapping, reiki, coloring, house work, run errands, walk my dog, stretching, just overall distraction techniques. I have gotten better in many senses than when I was tapering.

Last taper was off of Lamictal (Lamotrigine): Started drop from 225 mg in April 2014 by going down 25 mg every 2 weeks. Then to 12.5 mg every 3 weeks. Then 10 mg every 3 weeks. Then 5 mg after 3.5 weeks. (using the chewable, dispersible pills) I had gone down to 30 mg, but was far too sick and went back up to 35. I then dropped back down to 30 mg, then 1 mg drops until 25 mg. Dropped off completely at 25 mg because the symptoms from taking the pills were becoming more unbearable than the withdrawal at times. Completely off as of 5/11/15. Update 10/28/15: Reinstated 0.0625 mg, meant to take 0.25, measured wrong. Only took 2 days.

I've gotten off of: Abilify, PRN Klonopin (0.5-1 mg) - no taper as took it infrequently, and Effexor (300 mg). Abilify and Effexor were rapid tapers around the beginning of 2014. After tapering Effexor and Abilify I tried taking Remeron and Topamax for a short time with very bad side effects. (I have taken numerous psych drugs over the years (starting in my early teens), but these were the ones I was on when getting off completely).

On 2/9/15, received a Promethazine injection for nausea, which caused pain, numbness, burning, shooting pain and was prescribed pain meds (made me sick and didn't help), 5 days of Prednisone, and some sort of anti-inflammatory. I had been doing somewhat better with Lamictal taper until this point.

Current Supplements: Omega-3 with Co Q-10: 1000 mg x 2, Vitamin C with Bioflavonoids and Rose Hips: 500 mg x 2, Multivitamin, Vitamin D, Probiotics

 

Dx: Asperger Syndrome (originally misdiagnosed Borderline Personality Disorder, ADHD), GAD, and PTSD

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  • 3 weeks later...

How can someone truly tell if they’re in withdrawal or if they’re just relapsing?

 

I’ve read several posts, but I’m still unsure what is what. I’d like to believe it’s because I tapered too fast, but I’m convinced that I’ve always been this pathological. I was off of medications from around the end of 2006 to the beginning of 2010, but have otherwise been on meds since sometime in my early teens until May of this year (28 y/o). 

 

Thanks ahead of time for any input on this.

Last taper was off of Lamictal (Lamotrigine): Started drop from 225 mg in April 2014 by going down 25 mg every 2 weeks. Then to 12.5 mg every 3 weeks. Then 10 mg every 3 weeks. Then 5 mg after 3.5 weeks. (using the chewable, dispersible pills) I had gone down to 30 mg, but was far too sick and went back up to 35. I then dropped back down to 30 mg, then 1 mg drops until 25 mg. Dropped off completely at 25 mg because the symptoms from taking the pills were becoming more unbearable than the withdrawal at times. Completely off as of 5/11/15. Update 10/28/15: Reinstated 0.0625 mg, meant to take 0.25, measured wrong. Only took 2 days.

I've gotten off of: Abilify, PRN Klonopin (0.5-1 mg) - no taper as took it infrequently, and Effexor (300 mg). Abilify and Effexor were rapid tapers around the beginning of 2014. After tapering Effexor and Abilify I tried taking Remeron and Topamax for a short time with very bad side effects. (I have taken numerous psych drugs over the years (starting in my early teens), but these were the ones I was on when getting off completely).

On 2/9/15, received a Promethazine injection for nausea, which caused pain, numbness, burning, shooting pain and was prescribed pain meds (made me sick and didn't help), 5 days of Prednisone, and some sort of anti-inflammatory. I had been doing somewhat better with Lamictal taper until this point.

Current Supplements: Omega-3 with Co Q-10: 1000 mg x 2, Vitamin C with Bioflavonoids and Rose Hips: 500 mg x 2, Multivitamin, Vitamin D, Probiotics

 

Dx: Asperger Syndrome (originally misdiagnosed Borderline Personality Disorder, ADHD), GAD, and PTSD

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  • 4 weeks later...
  • Moderator Emeritus

Hey HopeAlive - 

 

Try this one:  Is It Withdrawal or Relapse? Or Something Else?

 

Has the reinstatement helped?  From over here, it seems that it has.  What did you find out about the antiviral drug?  Was it neuro-active, as Alto suggested?

 

I'm sorry to take so long to get back to you, you asked me some kind questions.  I hope that my stories help you, even though I'm different from most withdrawal stories here.

I hope your taper is going well, how has it been for you to taper the Lithium? 

Well, I took it reeeallly slow.  I took 6-8 months to get off the SNRI antidepressant first, even though it was useless, I wasn't taking any chances.

 

I was motivated by fear.  The fear that I would wreck my life and relationships and finances, and - well - just about anything.  While I believe that there were psychosocial and traumatic reasons for the episodes the docs call "manic," the fear that coming off the lithium induces - we are told that we are 10x more likely to have an even more intense manic episode coming off the lithium! - is a clear motivator for keeping things slow.

 

That 10x more likely to go "manic," is, of course from a CT or rapid taper.  Nobody has run tests on a 2 year long taper.  And really, for me, it's like walking up out of a dark, muddy lake.  As I said on Ihadpassion's thread:

  I feel like I walked up out of a dark deep lake, across a muddy swamp, and it took forever to get just my eyes above the water.  And now, here I am, still standing at the edge of the swamp, and I’m still hip deep in mud - but I can see the sky, and birds and trees and green and the horizon.  And I can't reach the horizon, no way - I'm still hip deep in mud.  But I can see it - and that kindles my passion again. 

So I'm mostly in recovery - currently experiencing a hiccup - in September I took an overseas trip, and packed my supplement trays.  By week 3, I realized that I had forgotten my evening dose of lithium in the trays.  That was a 2/3 or 66% cut!  Don't try this at home folks!  I'm in a slump right now, low energy & mood, but I keep putting one foot in front of the other.

 

With the advice of my lithium-twin MeiMei and others, I decided not to updose, but am crossing over to a microdose of a supplement form of lithium.  

 

My p-doc says I can just quit, but there are benefits to lithium, including circadian rhythm corrections of which I'm in severe need!

 

BUT - I do understand the AD tapers - as I tried to come off Wellbutrin in the 90's.  Start - stop - crash - start - stop - crash, rinse and repeat.  And I had about 10 years on effexor, another 10 on prothieden (with overlap).

 

In the 00'ties, I begged my P-doc for Lamotrigine, as it was indicated in bipolar depression and my US doc didn't like the toxicity and "narrow therapeutic window" of lithium.  It was not on the socialized medicine system then as a psych drug, and she said no no no.

 

By the 2010's (not sure exactly when) as I was begging to come off the lithium, she kept offering lamotrigine to me.  This time it was my turn to say no no no, and I'm glad I did!

 

I may never get to a healthy baseline, as during this time, docs took my thyroid, parathyroids and ovaries (possible unnecessary surgeries, too late, I will never know), so the deep fatigue is really difficult to rebuild.  I try and make up for it by gently pushing my boundaries.

 

Then you ask:

May I ask how it's been overall for you to change?

Wow!  You don't waste time on small talk, do you?   :P

 

My changes started somewhere around 2000.  When I saw the movie "28 Days" with Sandra Bullock.  I worked at the movies checking ads, and saw movies for free.  I would never have picked the movie on purpose - about a woman court ordered into a detox facility.

 

I've never been attracted to alcohol, but I thought of myself as a noetic explorer.   Consciousness.  Altered states.  Shamanic exploration.  The Big Picture At Any Cost.  Selfishly.  (even though it ended in severe mood dysfunction.)  I had an addiction to the "Peak Experience," and was cruel to anyone or anything who "damaged my calm."  Including friends, a husband.  There are a number of other dysfunctions in there too.

 

So I looked at Sandra Bullock in the movie, and the character's wrecked life, and I cried and cried and cried.  It was the first time - maybe ever - that I was not crying for myself.  I was crying for all of the people I hurt.  The wreckage behind me.  The ruins I'd created.  I talked with a friend about this (she happens to be a doctor too - the one who pushed my "bipolar 2" diagnosis) - and she said - "There's a difference.  You did not choose to become bipolar, while an alcoholic chooses to take the next drink."

 

(I still debate that in my own experience - were not my pursuits of extreme states of consciousness - choices?  And at what point does the impulse control of an alcoholic fall away?)

 

But I looked at the AA recovery model.  I've never been to an AA meeting, though I have supported others in AA, Al-Anon, and Ala-teen.  I focused on the "make amends" part of it.  I was still in the acceptance of diagnosis, I still believed "I had no choice" - which helped with the "higher power" thing - I am powerless to change.  Let go, let God.  Make amends.

 

I set about doing what I could to apologize, right the balance - with my mother, my father, my brother, my friends who I crashed and burned along the way.  There are still a few outstanding "amends" - but I've done what I can - some are gone, some have passed.  And it wasn't that the people I hurt needed amends.  Most of them said, "well, that was then," or "I hardly noticed" (i.e., it was a bigger deal to me than it was to them:  they were more forgiving of me than I was to myself.)

 

But I did become a great fan of the process.  In the process of saying "Sorry," in the process of trying to understand other people's viewpoints - I stopped being such a self centered arse hole.  I can't say where the arse ends and the compassion begins - but there is a tip in the balance.

 

I read in a spiritual guide once - that you can achieve enlightenment by the dark, selfish path, or the light, giving path.  But the dark, selfish path requires 99% purity and dedication to the path, while the light path, requires just 51% purity.  I like to think I'm over the 51% now, and on the path in the light.

 

Well, you didn't know you asked for a novel, right?

 

I hope you enjoyed the storytelling, and it distracted you for a time.  AND I hope you see the sun today!   :wub:

"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

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Jan,

 

I have been trying to type up a response, but it's taking me some time. I wanted to let you know that your response means a lot to me and I am very appreciative that you took the time to respond in such detail. I will respond soon and hope that you are doing well.

 

I also ordered 28 Days on Netflix  :) .

Last taper was off of Lamictal (Lamotrigine): Started drop from 225 mg in April 2014 by going down 25 mg every 2 weeks. Then to 12.5 mg every 3 weeks. Then 10 mg every 3 weeks. Then 5 mg after 3.5 weeks. (using the chewable, dispersible pills) I had gone down to 30 mg, but was far too sick and went back up to 35. I then dropped back down to 30 mg, then 1 mg drops until 25 mg. Dropped off completely at 25 mg because the symptoms from taking the pills were becoming more unbearable than the withdrawal at times. Completely off as of 5/11/15. Update 10/28/15: Reinstated 0.0625 mg, meant to take 0.25, measured wrong. Only took 2 days.

I've gotten off of: Abilify, PRN Klonopin (0.5-1 mg) - no taper as took it infrequently, and Effexor (300 mg). Abilify and Effexor were rapid tapers around the beginning of 2014. After tapering Effexor and Abilify I tried taking Remeron and Topamax for a short time with very bad side effects. (I have taken numerous psych drugs over the years (starting in my early teens), but these were the ones I was on when getting off completely).

On 2/9/15, received a Promethazine injection for nausea, which caused pain, numbness, burning, shooting pain and was prescribed pain meds (made me sick and didn't help), 5 days of Prednisone, and some sort of anti-inflammatory. I had been doing somewhat better with Lamictal taper until this point.

Current Supplements: Omega-3 with Co Q-10: 1000 mg x 2, Vitamin C with Bioflavonoids and Rose Hips: 500 mg x 2, Multivitamin, Vitamin D, Probiotics

 

Dx: Asperger Syndrome (originally misdiagnosed Borderline Personality Disorder, ADHD), GAD, and PTSD

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  • 3 weeks later...

JanCarol,

 

I’m sorry for such a delayed response. I’ve slowly been adding to this response over time and it still seems a bit all over the place :unsure: .

 

I went to an outside link for PAWS through the link you provided and it really rang true to me. I've been struggling with deciphering what's me and what's withdrawal because I feel like I've always been so messed up, so how could it possibly not be me... I also struggle with wondering what was possibly medicinally-induced or unknown withdrawal in my past.

 

Right now I feel like I have so many disorders, although I've recently come across several of your posts talking about not focusing on "disorders" or labels. (Many of your posts have helped me a lot.) Although I have the dx of Borderline, I feel that I could check off most aspects of any personality disorder.. I try to ignore the DSM and disorder parts of things, but it’s a struggle, as I obsess over the possibilities. I’ve done some really messed up and pathological things, but then I’ve also done some (many?) very caring things as well..

 

Do you feel you’ve been able to release the majority of your selfish ways and dysfunctions (too personal?)? It’d be nice if things could just change over night because you want them to, but it’s crazy how habitual some things are and sometimes I don't catch myself until afterwards.

 

I did not follow through with the reinstatement, as I couldn't tell if I was having a bad reaction or symptoms coincidentally. I had accidentally taken 0.25 mL instead of mg, so I'm not sure if it could have had a negative effect, but I decided that if reinstating was possibly making it worse that I'd rather do without. 

 

The anti-viral was in fact neuro-active, so I stopped taking it and found that essential oils did the trick :).

 

I was reading your intro. post and you have come a long way with your taper and your life! It seems like fear, in regard to your taper, actually caused you to take a sensible and strategic approach to all of this. 

 

All of your surgeries and health experiences sound traumatizing enough, especially without knowing whether or not those things were necessary. Is it true to say it sounds like your slow taper from Lithium has not caused any manic episodes for you? I was on the Lamictal to “augment” the anti-depressant that wasn’t working. I was first put on Lithium, but only for a short time.

 

I ordered 28 Days from Netflix and I actually feel like I’ve seen it before, but my memory is so shot. It was good. I did cry a little bit. I really enjoyed a line at the end, “Even a pain in the a** needs someone to take care of them.” It reminds me that we all truly deserve to be loved, even if we’ve done some really messed up things.

 

I do plan to make proper amends, but I don’t feel like I’m in the place yet to make them sincere enough to a couple of people. If that makes sense. I still hold a bit of resentment and struggle with sorting out my feelings, behaviors, and memories. I don’t always know what’s reality and what’s my own dysfunction.  For those who have passed away or who I’m not able to contact, I plan on writing an amends and burning them for a symbolic gesture.

 

My dad is really into AA. The amends part seems great, but I struggle with the higher power concept, as many people do. Did the higher power in your work towards amends come as an easy concept or no?

 

Regarding your, 

 

"There's a difference.  You did not choose to become bipolar, while an alcoholic chooses to take the next drink."

 

(I still debate that in my own experience - were not my pursuits of extreme states of consciousness - choices?  And at what point does the impulse control of an alcoholic fall away?)

 

So complicated, as I feel it’s hard to decipher in either direction. I mean, although we are autonomous, if we are not taught or shown any better, how are we expected to know much else? I don’t feel like most forms of mental turmoil, whether it’s addiction or “mental illness”, would generally exist if a person were to grow up in a functional environment, and dysfunction and trauma are not always obvious either. I recently read most of a book written on Codependency by Pia Mellody and it was eye opening in many senses.

 

I wish my brain could better wrap around your quote of 

I read in a spiritual guide once - that you can achieve enlightenment by the dark, selfish path, or the light, giving path.  But the dark, selfish path requires 99% purity and dedication to the path, while the light path, requires just 51% purity.  I like to think I'm over the 51% now, and on the path in the light.

For some reason I’m just not fully grasping the concept.

 

I guess I didn’t ask for a novel, but I didn’t mind it at all. You didn’t ask for one in return, but you got one as well ;). Thanks again for the response. 

Last taper was off of Lamictal (Lamotrigine): Started drop from 225 mg in April 2014 by going down 25 mg every 2 weeks. Then to 12.5 mg every 3 weeks. Then 10 mg every 3 weeks. Then 5 mg after 3.5 weeks. (using the chewable, dispersible pills) I had gone down to 30 mg, but was far too sick and went back up to 35. I then dropped back down to 30 mg, then 1 mg drops until 25 mg. Dropped off completely at 25 mg because the symptoms from taking the pills were becoming more unbearable than the withdrawal at times. Completely off as of 5/11/15. Update 10/28/15: Reinstated 0.0625 mg, meant to take 0.25, measured wrong. Only took 2 days.

I've gotten off of: Abilify, PRN Klonopin (0.5-1 mg) - no taper as took it infrequently, and Effexor (300 mg). Abilify and Effexor were rapid tapers around the beginning of 2014. After tapering Effexor and Abilify I tried taking Remeron and Topamax for a short time with very bad side effects. (I have taken numerous psych drugs over the years (starting in my early teens), but these were the ones I was on when getting off completely).

On 2/9/15, received a Promethazine injection for nausea, which caused pain, numbness, burning, shooting pain and was prescribed pain meds (made me sick and didn't help), 5 days of Prednisone, and some sort of anti-inflammatory. I had been doing somewhat better with Lamictal taper until this point.

Current Supplements: Omega-3 with Co Q-10: 1000 mg x 2, Vitamin C with Bioflavonoids and Rose Hips: 500 mg x 2, Multivitamin, Vitamin D, Probiotics

 

Dx: Asperger Syndrome (originally misdiagnosed Borderline Personality Disorder, ADHD), GAD, and PTSD

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  • 4 weeks later...

just tuning in thank you so much for this post in answer to the first post YES I am experiencing 90% of these symptoms and thank you for listing them. even tho I am reducing much slower than 25 mg at a time. more like about 5 mg at a time.

 

2002: "Situational depression" 2002-2010:Prozac.Birth Control.2011 Short trials: Paxil, Celexa, Lexipro, Wellbutrin, Xanax, Ativan- Gee, Doc never mentioned protracted AD wd syndrome. Imagine that. 2011-2015. Lamictal. Seroquel. Remiron. 2012: "Complex post traumatic stress disorder." Fast taper of Remiron jumped off June 2013. Slow tapers ever since of Seroquel & Lamictal.  crippling muscle spasms. crying fits. panic attacks. akathisia. nerve twitches. the jitters. the heebie jeebies. de-personal/realization. numbness. tingling. fatigue. lethargy. nightmares.insomnia. weird images. eye pain.vertigo. dizziness. brain zaps. and on and on and on. withdrawal? side effects? which drug? impossible to know. Stopped Seroquel October 2015.  Stopped Lamictal  March 2016. Had more severe muscle/joint spasms that paralyzed me for 3 days at a time, last episode was March 2017.Going back to work as of February 2018 after 14 years off full-time work due to the crippling effects of psych meds. Check out Robert Whittaker "Anatomy of an Epidemic" for  his breakdown of the rates of mental disability  since the introduction of Prozac into the human population. Best solutions for me: Social support via AA meetings. Acupuncture. Meditation. Dance. Nature. Yoga. Social support online with psych med survivor community. Nutrition. Exercise. More outdoor time. Go sit in the sunshine for 5 minutes. Touch a tree. Breathe deeply.

 

 

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just tuning in thank you so much for this post in answer to the first post YES I am experiencing 90% of these symptoms and thank you for listing them. even tho I am reducing much slower than 25 mg at a time. more like about 5 mg at a time.

 

Hang in there and keep going slow! I'm sorry to hear you're dealing with so many symptoms as well. Hopefully knowing that others can relate to your experience makes it a little more manageable. On a positive note, I can say that many of my physical symptoms have disappeared/decreased since being completely off all the meds. 

 

Also, if you haven't come across the information already..there are 2 mg and 5 mg chewable dispersible tablets available if you need them when you get lower. I did use the 5 mg some. http://survivingantidepressants.org/index.php?/topic/1122-tips-for-tapering-off-lamictal-lamotrigine/?hl=lamictal

Last taper was off of Lamictal (Lamotrigine): Started drop from 225 mg in April 2014 by going down 25 mg every 2 weeks. Then to 12.5 mg every 3 weeks. Then 10 mg every 3 weeks. Then 5 mg after 3.5 weeks. (using the chewable, dispersible pills) I had gone down to 30 mg, but was far too sick and went back up to 35. I then dropped back down to 30 mg, then 1 mg drops until 25 mg. Dropped off completely at 25 mg because the symptoms from taking the pills were becoming more unbearable than the withdrawal at times. Completely off as of 5/11/15. Update 10/28/15: Reinstated 0.0625 mg, meant to take 0.25, measured wrong. Only took 2 days.

I've gotten off of: Abilify, PRN Klonopin (0.5-1 mg) - no taper as took it infrequently, and Effexor (300 mg). Abilify and Effexor were rapid tapers around the beginning of 2014. After tapering Effexor and Abilify I tried taking Remeron and Topamax for a short time with very bad side effects. (I have taken numerous psych drugs over the years (starting in my early teens), but these were the ones I was on when getting off completely).

On 2/9/15, received a Promethazine injection for nausea, which caused pain, numbness, burning, shooting pain and was prescribed pain meds (made me sick and didn't help), 5 days of Prednisone, and some sort of anti-inflammatory. I had been doing somewhat better with Lamictal taper until this point.

Current Supplements: Omega-3 with Co Q-10: 1000 mg x 2, Vitamin C with Bioflavonoids and Rose Hips: 500 mg x 2, Multivitamin, Vitamin D, Probiotics

 

Dx: Asperger Syndrome (originally misdiagnosed Borderline Personality Disorder, ADHD), GAD, and PTSD

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  • 3 weeks later...

Can anyone tell me if this is possible, as I'm trying to make a little sense of my past..

 

I started taking meds somewhere around age 13/14 or so, I don't remember exactly when. Prozac had side effects, so I switched to Zoloft and stayed on it until I was 17/18 when I think it stopped working and I switched to Effexor. I might have even had withdrawal from the Zoloft during that switch, as I developed strange nausea symptoms in the mornings, couldn't really handle alcohol, had strange head rush symptoms, etc...? I then believe I did a CT to rapid taper from Effexor when my mom passed away when I was 19. I developed the brain zaps, heart palpitations, etc., also had gastro issues which I assumed were emotional because of the passing of my mother. Had strange pimples develop on my legs, lots of random stuff I didn't really have answers to. 

 

So I got off the Effexor near the end of 2006 (age 19). I ended up going back to a psychiatrist because of intense anxiety and depression the beginning of 2009 (age 22). (I did take some stuff for attention difficulties during the fall of 2008, possibly Adderall.) There were possible life stressors, as well as I think I started drinking a lot more with my roommates then. 

 

So...my question is, do you think I still could have unknowingly been in withdrawal when I went back to see a psychiatrist? Or is it likely what I was experiencing was 100% me?

 

When I went back I was first put on Klonopin, then added an AD (bad experiences, but Effexor was eventually the "best" one), also AP and mood stabilizer and stimulant. 

 

My memory is not the greatest, but overall I guess my question is, can withdrawal get much worse 2 years out without someone realizing or is it most likely just them at that point?

Last taper was off of Lamictal (Lamotrigine): Started drop from 225 mg in April 2014 by going down 25 mg every 2 weeks. Then to 12.5 mg every 3 weeks. Then 10 mg every 3 weeks. Then 5 mg after 3.5 weeks. (using the chewable, dispersible pills) I had gone down to 30 mg, but was far too sick and went back up to 35. I then dropped back down to 30 mg, then 1 mg drops until 25 mg. Dropped off completely at 25 mg because the symptoms from taking the pills were becoming more unbearable than the withdrawal at times. Completely off as of 5/11/15. Update 10/28/15: Reinstated 0.0625 mg, meant to take 0.25, measured wrong. Only took 2 days.

I've gotten off of: Abilify, PRN Klonopin (0.5-1 mg) - no taper as took it infrequently, and Effexor (300 mg). Abilify and Effexor were rapid tapers around the beginning of 2014. After tapering Effexor and Abilify I tried taking Remeron and Topamax for a short time with very bad side effects. (I have taken numerous psych drugs over the years (starting in my early teens), but these were the ones I was on when getting off completely).

On 2/9/15, received a Promethazine injection for nausea, which caused pain, numbness, burning, shooting pain and was prescribed pain meds (made me sick and didn't help), 5 days of Prednisone, and some sort of anti-inflammatory. I had been doing somewhat better with Lamictal taper until this point.

Current Supplements: Omega-3 with Co Q-10: 1000 mg x 2, Vitamin C with Bioflavonoids and Rose Hips: 500 mg x 2, Multivitamin, Vitamin D, Probiotics

 

Dx: Asperger Syndrome (originally misdiagnosed Borderline Personality Disorder, ADHD), GAD, and PTSD

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I don't think the answer to your question is known in any scientific sense, however, just a personal opinion here: since you started on meds so young before your brain was fully developed, I would say that you were in some level of withdrawal all along and it was never "just you" as "just you" did not really exist given that you started on meds so young. So I would say that you could profit from learning all you can about withdrawal from psych meds, as well as all other non-drug methods of therapy. I am sorry that you lost your mother so young as well, and I am sending you all my love and blessings.

I also lost my mother in the middle of my psych med withdrawal journey altho I was much older, nonetheless, this is a double trauma and science is only just now beginning to understand trauma at all. so I wish you all the best.

RubyTuesday

2002: "Situational depression" 2002-2010:Prozac.Birth Control.2011 Short trials: Paxil, Celexa, Lexipro, Wellbutrin, Xanax, Ativan- Gee, Doc never mentioned protracted AD wd syndrome. Imagine that. 2011-2015. Lamictal. Seroquel. Remiron. 2012: "Complex post traumatic stress disorder." Fast taper of Remiron jumped off June 2013. Slow tapers ever since of Seroquel & Lamictal.  crippling muscle spasms. crying fits. panic attacks. akathisia. nerve twitches. the jitters. the heebie jeebies. de-personal/realization. numbness. tingling. fatigue. lethargy. nightmares.insomnia. weird images. eye pain.vertigo. dizziness. brain zaps. and on and on and on. withdrawal? side effects? which drug? impossible to know. Stopped Seroquel October 2015.  Stopped Lamictal  March 2016. Had more severe muscle/joint spasms that paralyzed me for 3 days at a time, last episode was March 2017.Going back to work as of February 2018 after 14 years off full-time work due to the crippling effects of psych meds. Check out Robert Whittaker "Anatomy of an Epidemic" for  his breakdown of the rates of mental disability  since the introduction of Prozac into the human population. Best solutions for me: Social support via AA meetings. Acupuncture. Meditation. Dance. Nature. Yoga. Social support online with psych med survivor community. Nutrition. Exercise. More outdoor time. Go sit in the sunshine for 5 minutes. Touch a tree. Breathe deeply.

 

 

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I don't think the answer to your question is known in any scientific sense, however, just a personal opinion here: since you started on meds so young before your brain was fully developed, I would say that you were in some level of withdrawal all along and it was never "just you" as "just you" did not really exist given that you started on meds so young. So I would say that you could profit from learning all you can about withdrawal from psych meds, as well as all other non-drug methods of therapy. I am sorry that you lost your mother so young as well, and I am sending you all my love and blessings.

I also lost my mother in the middle of my psych med withdrawal journey altho I was much older, nonetheless, this is a double trauma and science is only just now beginning to understand trauma at all. so I wish you all the best.

RubyTuesday

 

I'm sorry to hear you lost your mother as well, especially during withdrawal. I agree that trauma can be very underrated and ignored in the psych world, although it seems like in medicine in general that doctors are most often treating the symptoms and not the cause. I cannot say I've personally had the worst psychiatrists and I actively sought out medication help in my 20s, as I've struggled with emotional/mental stuff as long as I can remember and I don't seem to get much better.

 

Thanks for your thoughts on this. It's hard not knowing what is or isn't me. What I would or wouldn't have done if the meds were never a factor in my life. I feel like I'm currently drowning from the floods of horrible memories of the things I've done throughout my life and I constantly question whether that was truly me or not. It's hard to cope and I'm very much stuck in the past right now. Although I've tried many things, I can't let go..

Last taper was off of Lamictal (Lamotrigine): Started drop from 225 mg in April 2014 by going down 25 mg every 2 weeks. Then to 12.5 mg every 3 weeks. Then 10 mg every 3 weeks. Then 5 mg after 3.5 weeks. (using the chewable, dispersible pills) I had gone down to 30 mg, but was far too sick and went back up to 35. I then dropped back down to 30 mg, then 1 mg drops until 25 mg. Dropped off completely at 25 mg because the symptoms from taking the pills were becoming more unbearable than the withdrawal at times. Completely off as of 5/11/15. Update 10/28/15: Reinstated 0.0625 mg, meant to take 0.25, measured wrong. Only took 2 days.

I've gotten off of: Abilify, PRN Klonopin (0.5-1 mg) - no taper as took it infrequently, and Effexor (300 mg). Abilify and Effexor were rapid tapers around the beginning of 2014. After tapering Effexor and Abilify I tried taking Remeron and Topamax for a short time with very bad side effects. (I have taken numerous psych drugs over the years (starting in my early teens), but these were the ones I was on when getting off completely).

On 2/9/15, received a Promethazine injection for nausea, which caused pain, numbness, burning, shooting pain and was prescribed pain meds (made me sick and didn't help), 5 days of Prednisone, and some sort of anti-inflammatory. I had been doing somewhat better with Lamictal taper until this point.

Current Supplements: Omega-3 with Co Q-10: 1000 mg x 2, Vitamin C with Bioflavonoids and Rose Hips: 500 mg x 2, Multivitamin, Vitamin D, Probiotics

 

Dx: Asperger Syndrome (originally misdiagnosed Borderline Personality Disorder, ADHD), GAD, and PTSD

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Hi, I know what you mean about being stuck in the past and having a hard time letting go, I think I saw on one of these forums a while ago that that problem is actually common with psych meds, after long term use. I have to say that the lower I go in my doses, the easier it becomes to focus in the present, altho getting stuck in the past is still a daily challenge. so keep at it! you will get there! (or get here, as the case may be)

2002: "Situational depression" 2002-2010:Prozac.Birth Control.2011 Short trials: Paxil, Celexa, Lexipro, Wellbutrin, Xanax, Ativan- Gee, Doc never mentioned protracted AD wd syndrome. Imagine that. 2011-2015. Lamictal. Seroquel. Remiron. 2012: "Complex post traumatic stress disorder." Fast taper of Remiron jumped off June 2013. Slow tapers ever since of Seroquel & Lamictal.  crippling muscle spasms. crying fits. panic attacks. akathisia. nerve twitches. the jitters. the heebie jeebies. de-personal/realization. numbness. tingling. fatigue. lethargy. nightmares.insomnia. weird images. eye pain.vertigo. dizziness. brain zaps. and on and on and on. withdrawal? side effects? which drug? impossible to know. Stopped Seroquel October 2015.  Stopped Lamictal  March 2016. Had more severe muscle/joint spasms that paralyzed me for 3 days at a time, last episode was March 2017.Going back to work as of February 2018 after 14 years off full-time work due to the crippling effects of psych meds. Check out Robert Whittaker "Anatomy of an Epidemic" for  his breakdown of the rates of mental disability  since the introduction of Prozac into the human population. Best solutions for me: Social support via AA meetings. Acupuncture. Meditation. Dance. Nature. Yoga. Social support online with psych med survivor community. Nutrition. Exercise. More outdoor time. Go sit in the sunshine for 5 minutes. Touch a tree. Breathe deeply.

 

 

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  • 4 weeks later...

I am 10 months off medications now. I jumped off Lamictal at 25 mg. I know it can take me a long time to heal. I've gotten better in many ways, but the mental and emotional ones can still be really bad. I just started a part-time job and the paranoia in particular has ramped up. Can anybody give me a little reassurance that all of this is absolutely normal in withdrawal at this point because it feels so real..

Last taper was off of Lamictal (Lamotrigine): Started drop from 225 mg in April 2014 by going down 25 mg every 2 weeks. Then to 12.5 mg every 3 weeks. Then 10 mg every 3 weeks. Then 5 mg after 3.5 weeks. (using the chewable, dispersible pills) I had gone down to 30 mg, but was far too sick and went back up to 35. I then dropped back down to 30 mg, then 1 mg drops until 25 mg. Dropped off completely at 25 mg because the symptoms from taking the pills were becoming more unbearable than the withdrawal at times. Completely off as of 5/11/15. Update 10/28/15: Reinstated 0.0625 mg, meant to take 0.25, measured wrong. Only took 2 days.

I've gotten off of: Abilify, PRN Klonopin (0.5-1 mg) - no taper as took it infrequently, and Effexor (300 mg). Abilify and Effexor were rapid tapers around the beginning of 2014. After tapering Effexor and Abilify I tried taking Remeron and Topamax for a short time with very bad side effects. (I have taken numerous psych drugs over the years (starting in my early teens), but these were the ones I was on when getting off completely).

On 2/9/15, received a Promethazine injection for nausea, which caused pain, numbness, burning, shooting pain and was prescribed pain meds (made me sick and didn't help), 5 days of Prednisone, and some sort of anti-inflammatory. I had been doing somewhat better with Lamictal taper until this point.

Current Supplements: Omega-3 with Co Q-10: 1000 mg x 2, Vitamin C with Bioflavonoids and Rose Hips: 500 mg x 2, Multivitamin, Vitamin D, Probiotics

 

Dx: Asperger Syndrome (originally misdiagnosed Borderline Personality Disorder, ADHD), GAD, and PTSD

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Hope.  This is absolutely " normal " in withdrawal . It is real , though . Very real .  You can't underestimate the power , of these drugs.  Can , I just say after reading your history , very briefly ,  how well I think you have done .  You've been through a lot , and managed to come out the other side.  

There will continue to be " windows & waves" , for a while . Everyone is different , but keep " pushing on" .  You will get there. 

Ali

Many SSRI's and SSNRI's over 20 years. Zoloft for 7 years followed by Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and more - on and off. No tapering. Cold turkey off Valdoxan - end of May 2014

 

                                                  Psych Drug - free since May 2014
.
         

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  • 10 months later...

Hope.  This is absolutely " normal " in withdrawal . It is real , though . Very real .  You can't underestimate the power , of these drugs.  Can , I just say after reading your history , very briefly ,  how well I think you have done .  You've been through a lot , and managed to come out the other side.  

There will continue to be " windows & waves" , for a while . Everyone is different , but keep " pushing on" .  You will get there. 

Ali

I'm just seeing this message now and wanted to thank you for it. I may not have read it a year ago, but reading it now is very needed, so thank you :)

Last taper was off of Lamictal (Lamotrigine): Started drop from 225 mg in April 2014 by going down 25 mg every 2 weeks. Then to 12.5 mg every 3 weeks. Then 10 mg every 3 weeks. Then 5 mg after 3.5 weeks. (using the chewable, dispersible pills) I had gone down to 30 mg, but was far too sick and went back up to 35. I then dropped back down to 30 mg, then 1 mg drops until 25 mg. Dropped off completely at 25 mg because the symptoms from taking the pills were becoming more unbearable than the withdrawal at times. Completely off as of 5/11/15. Update 10/28/15: Reinstated 0.0625 mg, meant to take 0.25, measured wrong. Only took 2 days.

I've gotten off of: Abilify, PRN Klonopin (0.5-1 mg) - no taper as took it infrequently, and Effexor (300 mg). Abilify and Effexor were rapid tapers around the beginning of 2014. After tapering Effexor and Abilify I tried taking Remeron and Topamax for a short time with very bad side effects. (I have taken numerous psych drugs over the years (starting in my early teens), but these were the ones I was on when getting off completely).

On 2/9/15, received a Promethazine injection for nausea, which caused pain, numbness, burning, shooting pain and was prescribed pain meds (made me sick and didn't help), 5 days of Prednisone, and some sort of anti-inflammatory. I had been doing somewhat better with Lamictal taper until this point.

Current Supplements: Omega-3 with Co Q-10: 1000 mg x 2, Vitamin C with Bioflavonoids and Rose Hips: 500 mg x 2, Multivitamin, Vitamin D, Probiotics

 

Dx: Asperger Syndrome (originally misdiagnosed Borderline Personality Disorder, ADHD), GAD, and PTSD

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Quick update at a little over 21 months off.

 

My symptoms have changed a ton and I've developed the severe gut issues that some experience.. I've had gut issues (IBS) since I was in elementary school (now 30), but this is quite a bit different. I've developed lactose and fructose malabsorption, am in the process of taking the SIBO breath test this morning and am feeling so ill from the drink mixture that I suspect this will also be positive, and I've also developed a long list of sensitivities among other things.

 

I have the typical gut symptoms of nausea, diarrhea (none at the moment), looser/undigested stools, sometimes constipation, cramping, bloating, bubbling, weight loss (5'10" down to ~109 lbs), etc. I've been cautiously working with a naturopath to try and heal my gut but so far I've been eating an extremely strict diet (basically FODMAP plus my additional sensitivities) and followed a cleansing/healing protocol since October 2016. The biggest difference in any symptom relief I think has simply been not eating the offending foods and not that my gut is actually healing, but I will see results from a stool retest and some other tests in a couple of weeks to have a better idea on how things have changed.

 

Some of my other symptoms are hives, flu-like symptoms, cognitive issues, DP/DR, itchy/burning hands/feet, drenching night sweats, extreme dry mouth, hair loss on my head and hair growth on chin/throat/lip (this has decreased some), occasional tinnitus, various eye symptoms, some nerve stuff, menstrual stuff, and so on. I still have anxiety but struggle teasing out what's my norm and what's healing, but I can confidently say I'm much better than I was earlier in this whole process.

 

I have other symptoms as well and although I wish I had a more hopeful update, I do not regret getting off the meds one bit and overall I am doing better than I was. There is no level of suffering that would ever bring me back to them and it's never even a consideration for me at this point. So although this is not currently the most hopeful of posts, I would still choose my current situation over being on meds any day. 

 

Much love and healing to all of my fellow warriors!

Last taper was off of Lamictal (Lamotrigine): Started drop from 225 mg in April 2014 by going down 25 mg every 2 weeks. Then to 12.5 mg every 3 weeks. Then 10 mg every 3 weeks. Then 5 mg after 3.5 weeks. (using the chewable, dispersible pills) I had gone down to 30 mg, but was far too sick and went back up to 35. I then dropped back down to 30 mg, then 1 mg drops until 25 mg. Dropped off completely at 25 mg because the symptoms from taking the pills were becoming more unbearable than the withdrawal at times. Completely off as of 5/11/15. Update 10/28/15: Reinstated 0.0625 mg, meant to take 0.25, measured wrong. Only took 2 days.

I've gotten off of: Abilify, PRN Klonopin (0.5-1 mg) - no taper as took it infrequently, and Effexor (300 mg). Abilify and Effexor were rapid tapers around the beginning of 2014. After tapering Effexor and Abilify I tried taking Remeron and Topamax for a short time with very bad side effects. (I have taken numerous psych drugs over the years (starting in my early teens), but these were the ones I was on when getting off completely).

On 2/9/15, received a Promethazine injection for nausea, which caused pain, numbness, burning, shooting pain and was prescribed pain meds (made me sick and didn't help), 5 days of Prednisone, and some sort of anti-inflammatory. I had been doing somewhat better with Lamictal taper until this point.

Current Supplements: Omega-3 with Co Q-10: 1000 mg x 2, Vitamin C with Bioflavonoids and Rose Hips: 500 mg x 2, Multivitamin, Vitamin D, Probiotics

 

Dx: Asperger Syndrome (originally misdiagnosed Borderline Personality Disorder, ADHD), GAD, and PTSD

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  • 4 months later...

Just stopping in to check-in again. I have tested positive for chronic Lyme Disease. I'm a little over 2 years off meds now and after treating SIBO and still having symptoms, my naturopath suggested we rule out Lyme next. I had hit a wall with testing and treating things because it seemed so obvious that withdrawal was the only answer still, but I am extremely happy that I continued to rule things out. I still have further testing to do for other possible co-infections/PANDAS/etc. and will need to get set-up with treatment and such. I know treatment won't be easy, but I'm happy to at least know what is going on with me at this point.

Last taper was off of Lamictal (Lamotrigine): Started drop from 225 mg in April 2014 by going down 25 mg every 2 weeks. Then to 12.5 mg every 3 weeks. Then 10 mg every 3 weeks. Then 5 mg after 3.5 weeks. (using the chewable, dispersible pills) I had gone down to 30 mg, but was far too sick and went back up to 35. I then dropped back down to 30 mg, then 1 mg drops until 25 mg. Dropped off completely at 25 mg because the symptoms from taking the pills were becoming more unbearable than the withdrawal at times. Completely off as of 5/11/15. Update 10/28/15: Reinstated 0.0625 mg, meant to take 0.25, measured wrong. Only took 2 days.

I've gotten off of: Abilify, PRN Klonopin (0.5-1 mg) - no taper as took it infrequently, and Effexor (300 mg). Abilify and Effexor were rapid tapers around the beginning of 2014. After tapering Effexor and Abilify I tried taking Remeron and Topamax for a short time with very bad side effects. (I have taken numerous psych drugs over the years (starting in my early teens), but these were the ones I was on when getting off completely).

On 2/9/15, received a Promethazine injection for nausea, which caused pain, numbness, burning, shooting pain and was prescribed pain meds (made me sick and didn't help), 5 days of Prednisone, and some sort of anti-inflammatory. I had been doing somewhat better with Lamictal taper until this point.

Current Supplements: Omega-3 with Co Q-10: 1000 mg x 2, Vitamin C with Bioflavonoids and Rose Hips: 500 mg x 2, Multivitamin, Vitamin D, Probiotics

 

Dx: Asperger Syndrome (originally misdiagnosed Borderline Personality Disorder, ADHD), GAD, and PTSD

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13 minutes ago, HopeforBetter1110 said:

Just stopping in to check-in again. I have tested positive for chronic Lyme Disease. I'm a little over 2 years off meds now and after treating SIBO and still having symptoms, my naturopath suggested we rule out Lyme next. I had hit a wall with testing and treating things because it seemed so obvious that withdrawal was the only answer still, but I am extremely happy that I continued to rule things out. I still have further testing to do for other possible co-infections/PANDAS/etc. and will need to get set-up with treatment and such. I know treatment won't be easy, but I'm happy to at least know what is going on with me at this point.

hope you all the best with your Lyme disease treatment .nasty on your body from what I read .I love the outdoors myself but I don't think many ticks carry it here in Ireland .

PB

Alcohol free since February 2015 

1MG diazepam

4.5MG PROZAC.

 

 

 

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  • 2 weeks later...

Thank you, Powerback. Be careful anywhere (except if you visit Antarctica ;)), as it's extremely underreported and diagnosed. I would not wish this on anyone! I'm very nervous about treatment and have to wait another 2 months to see a specialist, but I'm hoping for the best.

 

I wanted to share my results because I believe I've had Lyme for over two decades now and it was the stress of withdrawal on my system that allowed the more dormant Lyme to take over my body. It is definitely worth it to continue to rule things out, even if it seems so obvious it can only be withdrawal. For me it was both.

 

I'm attaching a symptoms list for Lyme in case anybody else comes across my post who has thought they could possibly have it. https://canlyme.com/lyme-basics/symptoms/

Last taper was off of Lamictal (Lamotrigine): Started drop from 225 mg in April 2014 by going down 25 mg every 2 weeks. Then to 12.5 mg every 3 weeks. Then 10 mg every 3 weeks. Then 5 mg after 3.5 weeks. (using the chewable, dispersible pills) I had gone down to 30 mg, but was far too sick and went back up to 35. I then dropped back down to 30 mg, then 1 mg drops until 25 mg. Dropped off completely at 25 mg because the symptoms from taking the pills were becoming more unbearable than the withdrawal at times. Completely off as of 5/11/15. Update 10/28/15: Reinstated 0.0625 mg, meant to take 0.25, measured wrong. Only took 2 days.

I've gotten off of: Abilify, PRN Klonopin (0.5-1 mg) - no taper as took it infrequently, and Effexor (300 mg). Abilify and Effexor were rapid tapers around the beginning of 2014. After tapering Effexor and Abilify I tried taking Remeron and Topamax for a short time with very bad side effects. (I have taken numerous psych drugs over the years (starting in my early teens), but these were the ones I was on when getting off completely).

On 2/9/15, received a Promethazine injection for nausea, which caused pain, numbness, burning, shooting pain and was prescribed pain meds (made me sick and didn't help), 5 days of Prednisone, and some sort of anti-inflammatory. I had been doing somewhat better with Lamictal taper until this point.

Current Supplements: Omega-3 with Co Q-10: 1000 mg x 2, Vitamin C with Bioflavonoids and Rose Hips: 500 mg x 2, Multivitamin, Vitamin D, Probiotics

 

Dx: Asperger Syndrome (originally misdiagnosed Borderline Personality Disorder, ADHD), GAD, and PTSD

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