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Multiple Chemical Sensitivity vs hypersensitized nervous system


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I know at least one other poster on this board deals with chemical sensitivities... I am developing more and more intolerance to indoor structures and this is probably due to mold. however this problem is advancing and not improving. For instance a few weeks ago I had symptoms in Dr Caring's office though I have been going there wwithout issue for 7 years...

 

I just got out of my meeting with Caring and it went very poorly because my mold symptoms got worse and worse during the coarse of the meeting. Testicular pain, join swelling and pain, rapid heartbeat, pain in foot bones and toes, bone pain generally, floaters in eye, burning skin ...

 

It seems that I am just getting worse with these reactions. I see the doctors I see who are imparied after toxic exposure, frequently quite dramatically neurologically impaired with disturbed memory and twiches and compusilve movements etc ... Of course mold-treating physicians are some of the absolute highest-functioning, most sincerely motivated to get better and best informed of treatment options ... yet they are ALL impaired to some degree...

 

It seems I am only getting worse and worse? Any one with chemical (or organic compoundds) sensitivity that has some words to share??

 

 

"Well my ship's been split to splinters and it's sinking fast
I'm drowning in the poison, got no future, got no past
But my heart is not weary, it's light and it's free
I've got nothing but affection for all those who sailed with me.

Everybody's moving, if they ain't already there
Everybody's got to move somewhere
Stick with me baby, stick with me anyhow
Things should start to get interesting right about now."

- Zimmerman

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  • Moderator Emeritus

Alex, I have chemical and fragrance sensitivities. I use a mask sometimes and use a pricey air filter and plants in my home, and definitely avoid fragrances and new construction stuff and other noxious chemicals as much as possible. I discovered when I moved to Oregon that there are more stringent standards here for volatile organics than where I was living before, which is nice.

 

The other thing that has helped (actually the thing that's helped the most) is the Gupta limbic retraining program. I didn't really do it full-on but even the little bit I did relieved my problems enough so that they don't limit my life the way they used to, and also they have quit getting worse. I don't seem to be getting any new ones, and before I was picking up new sensitivities pretty often.

 

The sensitivities haven't gone away completely, but they don't prevent me from being able to do things I want to do any more.

 

I talk about the Gupta program in the limbic retraining thread. I don't really have anything new to say about that. 

 

I have no idea if any of this would apply to your situation, but I do know that it's not unusual for people to develop chemical sensitivities after mold exposure. 

Started on Prozac and Xanax in 1992 for PTSD after an assault. One drug led to more, the usual story. Got sicker and sicker, but believed I needed the drugs for my "underlying disease". Long story...lost everything. Life savings, home, physical and mental health, relationships, friendships, ability to work, everything. Amitryptiline, Prozac, bupropion, buspirone, flurazepam, diazepam, alprazolam, Paxil, citalopram, lamotrigine, gabapentin...probably more I've forgotten. 

Started multidrug taper in Feb 2010.  Doing a very slow microtaper, down to low doses now and feeling SO much better, getting my old personality and my brain back! Able to work full time, have a full social life, and cope with stress better than ever. Not perfect, but much better. After 23 lost years. Big Pharma has a lot to answer for. And "medicine for profit" is just not a great idea.

 

Feb 15 2010:  300 mg Neurontin  200 Lamictal   10 Celexa      0.65 Xanax   and 5 mg Ambien 

Feb 10 2014:   62 Lamictal    1.1 Celexa         0.135 Xanax    1.8 Valium

Feb 10 2015:   50 Lamictal      0.875 Celexa    0.11 Xanax      1.5 Valium

Feb 15 2016:   47.5 Lamictal   0.75 Celexa      0.0875 Xanax    1.42 Valium    

2/12/20             12                       0.045               0.007                   1 

 

I'm not a doctor. Any advice I give is just my civilian opinion.

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Barbarannamated

I really notice a foul, unidentifiable odor in our house after being away for awhile. It was so strong, it kept me awake the first night. Now, a few days later, I don't notice it. Eyes and cognition are MUCH worse, too. Husband (who is very sensitive to smells) says he can't notice. I doubt it's mold here in dry California, but concerned about other possibilities, especially being surrounded by dirt that constantly stirred up by horses and brought inside by dogs.

 

How would I find a good inspector?

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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I have sensitivities too and I also am simply working on healing the autonomic nervous system...and I'm careful not to expose myself in similar ways as Rhi...I try not to trip out about it too much as that just excites the nervous system...that said, I'm well aware there are times it's extremely stressful to deal with...

 

I'm not as sensitive to environmental stuff as I am certain foods either...but I do know how horrible it is to enter a space where I cannot stay. 

Everything Matters: Beyond Meds 

https://beyondmeds.com/

withdrawn from a cocktail of 6 psychiatric drugs that included every class of psych drug.
 

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I do construction and noticed I was much more sensitive to the smell of oil stain and polyurethane today when doing a job and the painter wad there. Probably not good to expose myself to that right now? But dident have much of a choice and wearing a vaper mask all day was really not an option as it was 100 degrees outside.

April 2013 Doc put me back on 40mg of celexa for 2.5 weeks than switched to Paxil 3 weeks adverse reaction and kindling reaction
July 2013 5mg celexa and .5mg klonopin daily

5/15/16 started lamictal and currently at 25mg daily once a day.

1/1/17 crossed over from .5mg klonopin to 10mg Valium.

3/1/17 off celexa from getting down to around .25mg.

5/25/17 started tapering the Valium from 10mg to 9mg

6/25/17 dropped down to 8mg Valium 

currently on 8mg of Valium and 25mg of lamictal once a day in the morning never could handle more than 25mg of lamictal and never really felt anything from it.

7/2/17 updosed to 10mg Valium and holding split twice a day and holding.

3/1/18 dropped Valium from 10mg to 9.5mg

4/1/18 dropped Valium from 9.5 to 9mg still on 25mg lamictal.

Updosed 6/20/18 Valium 10mg and 25mg lamictal and holding.

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Rhi do you think I am prolonging my recovery by being around New construction paint, etc sawdust and chemicals for my job? Nothing really bothers me except oil based stains and such but just worried.

April 2013 Doc put me back on 40mg of celexa for 2.5 weeks than switched to Paxil 3 weeks adverse reaction and kindling reaction
July 2013 5mg celexa and .5mg klonopin daily

5/15/16 started lamictal and currently at 25mg daily once a day.

1/1/17 crossed over from .5mg klonopin to 10mg Valium.

3/1/17 off celexa from getting down to around .25mg.

5/25/17 started tapering the Valium from 10mg to 9mg

6/25/17 dropped down to 8mg Valium 

currently on 8mg of Valium and 25mg of lamictal once a day in the morning never could handle more than 25mg of lamictal and never really felt anything from it.

7/2/17 updosed to 10mg Valium and holding split twice a day and holding.

3/1/18 dropped Valium from 10mg to 9.5mg

4/1/18 dropped Valium from 9.5 to 9mg still on 25mg lamictal.

Updosed 6/20/18 Valium 10mg and 25mg lamictal and holding.

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  • Moderator Emeritus

If it doesn't bother you then it's probably not a problem, I would think. Don't really know for sure. Chemical sensitivities are kind of a mystery, although there does appear to be a component that's a sort of limbic imprinting related to what happens with PTSD. But that's all pretty speculative.

Started on Prozac and Xanax in 1992 for PTSD after an assault. One drug led to more, the usual story. Got sicker and sicker, but believed I needed the drugs for my "underlying disease". Long story...lost everything. Life savings, home, physical and mental health, relationships, friendships, ability to work, everything. Amitryptiline, Prozac, bupropion, buspirone, flurazepam, diazepam, alprazolam, Paxil, citalopram, lamotrigine, gabapentin...probably more I've forgotten. 

Started multidrug taper in Feb 2010.  Doing a very slow microtaper, down to low doses now and feeling SO much better, getting my old personality and my brain back! Able to work full time, have a full social life, and cope with stress better than ever. Not perfect, but much better. After 23 lost years. Big Pharma has a lot to answer for. And "medicine for profit" is just not a great idea.

 

Feb 15 2010:  300 mg Neurontin  200 Lamictal   10 Celexa      0.65 Xanax   and 5 mg Ambien 

Feb 10 2014:   62 Lamictal    1.1 Celexa         0.135 Xanax    1.8 Valium

Feb 10 2015:   50 Lamictal      0.875 Celexa    0.11 Xanax      1.5 Valium

Feb 15 2016:   47.5 Lamictal   0.75 Celexa      0.0875 Xanax    1.42 Valium    

2/12/20             12                       0.045               0.007                   1 

 

I'm not a doctor. Any advice I give is just my civilian opinion.

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  • 1 year later...

I have been starting to feel better in the last month or so. On Feb 15 I will be 2.5 years off Paxil. The one thing that still is really bothering me is perfume and chemical sensitivities. I will come across perfume and when I smell it, almost immediately, the right side of my throat seems constricted and my chest is tight. I have been on aerus for the last couple years and refuse to go off that right now. I sometimes need to take a small dose of benadryl. I am on a gluten and dairy free diet. I must admit, I went through every physical symptom around including being hospitalized for a week in October because my body systems weren't working right. This allergy thing is the scariest and I worry that one of these time my throat will close up. Anyone out there with similar stories, ideas to help or have improved from this symptom? Any information would be helpful. Thanks

12 year on Paxil 20mg. Dropped to 5mg a few years before weaning, Was on 5mg weaned over a few months and then went off Aug 15, 2012. Severe withdrawal started Nov 2012 and have been slowly recovering. Have had all physical symptoms especially muscle, immune and food sensitivities!

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cymbaltawithdrawal5600

I have had a bit of experience with being sensitive to a lot of things, not just chemicals. For some time it was noise and temperature and then it was smells. I had to stop all perfume and scented soaps, coffee bothered me and the cat's litter box was agony but it was my job. But I never had the reaction that you are describing, like a pre anaphylaxis of some sort. What is 'aerus', an inhaler of some kind?

 

All I know is that my reactions to smells slowly subsided and I knew I had turned the corner when I found myself at the perfume counter buying my all time fave perfume, Chloe, after acute wd passed (start of year 3). Oh it was heavenly not to feel so assaulted by the smells of the world! And the perfume was divine.

 

I do remember that my body was often unilaterally affected by stuff, it was not a whole body thing. Sometimes only one nostril would feel like I was inhaling fire, sometimes both. So your description of only half of you feeling constricted does not seem strange to me. I wish I could be of more help. And you are right to keep your aerus and use an antihistamine if you need one occasionally, just watch out you don't overdo them: I took vistaril because my doc told me to (an rx antihistamine) and that's how I precipitated protracted wd. It had already been starting and that threw me over the edge.

What happened and how I arrived here: http://survivingantidepressants.org/index.php?/topic/4243-cymbaltawithdrawal5600-introduction/#entry50878

 

July 2016 I have decided to leave my story here at SA unfinished. I have left my contact information in my profile for anyone who wishes to talk to me. I have a posting history spanning nearly 4 years and 3000+ posts all over the site.

 

Thank you to all who participated in my recovery. I'll miss talking to you but know that I'll be cheering you on from the sidelines, suffering and rejoicing with you in spirit, as you go on in your journey.

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Yes Aerus is a daily antihistamine that lasts for 24 hours and i have been taking since before I went off paxil. At this point I am not willing to change anything up. I am on a lower histamine diet and I am trying to drink at least 2 litres of water. When I drink my water I don't react as much. I have heard that year 3 is a good year. I will hit three years off in Aug. and then I think I will try to wean slowly off the antihistamine.  I also am very sensitive to temp and sounds etc. I have always had my symptoms on the right side of my body. I appreciate your input. Have a great day!

12 year on Paxil 20mg. Dropped to 5mg a few years before weaning, Was on 5mg weaned over a few months and then went off Aug 15, 2012. Severe withdrawal started Nov 2012 and have been slowly recovering. Have had all physical symptoms especially muscle, immune and food sensitivities!

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cymbaltawithdrawal5600

Ok, now that I see that the 'aerus' is an antihistamine, I have more concern. AD's and antihistamines are related and I believe that is what caused my relapse. Perhaps not in your case and it would be wise of you to slowly taper off them if you choose to. I fear rebound if you don't. It will be hard to see which is which if you are still having withdrawal symptoms. My saving grace is that for the whole year I suffered protracted wd, I took no meds at all, no OTC drugs. Just food and water. That way my body did not have anything to react to and could heal on its own without chemical interference. It worked.

What happened and how I arrived here: http://survivingantidepressants.org/index.php?/topic/4243-cymbaltawithdrawal5600-introduction/#entry50878

 

July 2016 I have decided to leave my story here at SA unfinished. I have left my contact information in my profile for anyone who wishes to talk to me. I have a posting history spanning nearly 4 years and 3000+ posts all over the site.

 

Thank you to all who participated in my recovery. I'll miss talking to you but know that I'll be cheering you on from the sidelines, suffering and rejoicing with you in spirit, as you go on in your journey.

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Thanks . I have decided that on Friday I am going to start weaning off. I am going to use a pill cutter and cut my pill and take 3/4 of it. I will do that for awhile. I also notice that when I am dehydrated or not eating enough salt it is worse. So I am really working on hydrating and getting my body stable. Once I feel stable at 3/4 of a tablet I will reduce to 1/2 and see where it takes me. I have 4 days off starting Friday so it will be better to do it this way. I just find it so awful as I work in a high school and I need to stay away from it. I don't find cleaners etc cause me any problems its just mainly perfumes and strong soaps. Thanks again and I will keep you informed as to how I am doing. I had also been on tecta ( a stomach acid) drug for years and successfully got off that. Now being Dairy and gluten free and watching my histamine foods I am sure i will get through this. I just find this the scariest symptom as I never know if my throat will actually close but it always seems to be on the right side. I have to face my fear!!

12 year on Paxil 20mg. Dropped to 5mg a few years before weaning, Was on 5mg weaned over a few months and then went off Aug 15, 2012. Severe withdrawal started Nov 2012 and have been slowly recovering. Have had all physical symptoms especially muscle, immune and food sensitivities!

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cymbaltawithdrawal5600

Jaywill,

 

I used to be a nurse but that is not to say I really know anything anymore but I don't think you will have a 'throat closing' episode from the perfumes in soaps and actual perfume. I wonder why you don't seem to get it from cleaning products? I find those are really heavily scented but perhaps it is of a different formulation (to me some of that stuff overdoes it!) And I remember the awful smell of the sawdust stuff they used when someone was sick in the hall in my school, that was worse than the actual mess!

 

You will cut a little smaller on the antihistamine if you start to feel shaky, right?

What happened and how I arrived here: http://survivingantidepressants.org/index.php?/topic/4243-cymbaltawithdrawal5600-introduction/#entry50878

 

July 2016 I have decided to leave my story here at SA unfinished. I have left my contact information in my profile for anyone who wishes to talk to me. I have a posting history spanning nearly 4 years and 3000+ posts all over the site.

 

Thank you to all who participated in my recovery. I'll miss talking to you but know that I'll be cheering you on from the sidelines, suffering and rejoicing with you in spirit, as you go on in your journey.

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  • 1 month later...

Interested to know if anyone else here has severe chemical sensitivites?

 

My mother-in-law has come to paint and I know feel so ill. Body aches, blurry vision, heart palpitations and severe brain fog!

2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription.

Severe adverse reaction

Mirtazapine prescribed - adverse reaction but told to stay on.

Poop out - December 2013

15mg

Currently on 13.5mg,

April 12mg

May 10th - 11mg

June 10th - 10mg

July 8th - 9mg

September - 0mg

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I just got new carpet and painted my bedroom. I have been living in my basement for three weeks as the smell got me soooo sick. As soon as i walked in the newly carpeted room, my hands started to tingle, my head starting thumping, i was shaking and couldn't even remember my name. I think it is called chemical dumping. For the last three weeks my windows have been open, I bought a new vacuum and air purifier. My kidneys have been killing me.I also work in a highshcool and perfumes totally make me sick. I pray that one day I won't be suffering this way. I am 31 months off and these drugs destroy lives.

12 year on Paxil 20mg. Dropped to 5mg a few years before weaning, Was on 5mg weaned over a few months and then went off Aug 15, 2012. Severe withdrawal started Nov 2012 and have been slowly recovering. Have had all physical symptoms especially muscle, immune and food sensitivities!

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Ya I have those sensitivies aswell. Two jobs I had to quit because of this. When I was younger I helped renovate basements and I had another job spraying driveways. I used a mask but didn't think it was worth it.

Was on 30mg (Lexapro) for 7-8yrs20mg for 3 months (This was my choice my Doc wanted me to drop much faster)15 mg 2week10mg 2 weeks 5 mg 1 week0 since August 24th . PPI Dexlant  30 mg taper has begun. Cutting 20% currently.  using zantac as needed.  Benzo is currently 0.10mg 

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We ,who have bodies that go into alarm when overloaded with toxic chemicals, are the canaries in the coal mines.

It's a  blessing to know when to get to immediately get to a cleaner environment rather than hang around and get terminally ill.

On 20 mg of Prozac for about ten years. Sept 2012 started reducing 10% a drop using gram scale, with average of one month holds.

When I'd reached the half way mark, taking 10 mg  powder out of the 20 mg capsules, I switched over to 10 mg capsules and cutting

down from those. Withdrawals got harder the lower I dropped.  May 2013 changed to 5% drops, holding until all withdrawal symptoms gone.

January 2015 changed to liquid prozac (concentration of 20MG per 5 mL) using a 1mL oral syringe.

Current dose of fluoxetine solution equivalent 3.4 mg. Any effort to drop below this has been disastrous so for the time being I'm staying at this level.
Adding 200 mg Tryptophan and 200 GABA a day has helped with anxiety.
Also take 1,300mg Omega- 3,  875mg  Magnesium, 1800mg Curcumin, 1000mg Vit C, 5000 Vit D.
 

 

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I guess that is a good way of looking at it. We must be in healthy environments and eat well to exist so we should live longer :wacko:

12 year on Paxil 20mg. Dropped to 5mg a few years before weaning, Was on 5mg weaned over a few months and then went off Aug 15, 2012. Severe withdrawal started Nov 2012 and have been slowly recovering. Have had all physical symptoms especially muscle, immune and food sensitivities!

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  • 1 month later...
mustangwoman

Is this the right place to write about chemical sensitivities?   I am having such a serious problem today, and for a while now.  We had a meeting at work and someone brought in some very strong sage tea, and within a couple of minutes  I had to leave the meeting.  I felt dizzy and extremly anxious.  I thought it was an allergic reaction and took a tiny dose of prednisone, as I have become sensitive to benadryl too.  I still don't feel right and this happened 10 hours ago.  I've not been able to go through the laundry aisle for about five or six years.  As I have been on some type of ssri for the last 11 years I don't know if this is me the multiple chemical sensitivities or the ssris.  It breaks my heart.  I feel like I'm allergic to life.  The information I have read of multiple chemical sensitives says there is no cure, no one gets better, and it fact some people die from it as they cannot be treated for infections or cancer, because they can't tolerate antibiotics (wich I cannot tolerate very well now, though I used to be able to) or chemotherapy.  I am very discouraged right now and made an appointment with an allergist in 3 weeks.  I don't know if it will help  I feel so hopeless right now, and I haven't felt that way in some time.  I don't feel the discouragement is from the withdrawal, but from the great chemical and food sensitivity.  

zoloft 2004-08 tapered too fast(2 weeks)
Luvox 5/08 100 mg 07/10 40mg via small reductions, 08/10 39mg, 09/10 38mg, 10/10 37mg, 11/10 36mg,2/11 35mg, 5/11 34mg, 8/11 33mg, 11/11 32mg, 01/12 31mg, 03/12 30mg, 4/12 29mg, 5/12 28 mg, 8/12 27 mg, 11/12 26 mg, 1/13 25 mg, 3/13 24 mg, 4/13 23 mg,6/13 22 mg, 7/13 21 mg, 8/13 20mg, 10/13 19 mg, 11/13 18 mg, 12/13 17 mg, 1/14 16 mg, 3/14 13 mg, 9/14 10.9 mg,  1/15 10 mg, 3/15  9 mg,  5/15 8 mg. 11/15 7.12 mg.  4/16  5 mg, 6/16   4.5 mg,  9/16 4.2 mg, 1/17 3.48 mg, 2/17  3.2 mg,  4/17 2.2 mg, 5/17 2.0 mg, 6/17  1.74 mg, 7/17 1.58 mg, 9/17 1.27 mg, 11/17 1.0 mg,  1/18 0.79 mg

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Mustangwoman, I understand you completely. 

 

I've been having an ongoing stomach infection for two weeks, but can't tolerate the antibiotics, they cause akathisia and other horrible symptoms. I toughed out the antibiotics for 5 days to see if the infection improved, my stomach felt better, but anxiety and akathisia were horrible. I stopped it (although I was supposed to take them for 10 days). The akathisia is still with me, on a lesser degree after I quit the antibiotics 3 days ago. But my stomach symptoms, nausea and diarrea are returning, I really feel discouraged too for this horrible sensitivity on top of so many emotional and physical symptoms that are making me prone to infections. I don't know what to do. 

-Effexor 150 mgs (2001-2009). Severe withdrawal symptoms during and after tapering for 6 months.  

-Pristiq 50 mg (2009-2012) Tapered over a year. Worst year of my life. 

-Prozac 20 mg (2012) Tapered over 6 moths to ease withdrawal. Still had severe WD symptoms. 

- (2012-2014) Doctor tried more than 20 medications for depression and WD, leaving me hypersensitive, and in protracted withdrawal. 

- Most debilitating symptoms during protracted withdrawal have been deep depression, anxiety, brain zaps, fatigue, akathisia, twitching, headaches and terrible PMS. 

-January 2015: Started Lamictal 12.5 mg, increased to 25 mg.- Bad reaction when updosed to 50 mg. Stopped. 

-February 2015: Doctor tried new antidepressant Brintellix - Horrible reaction. Discontinued completely. Severe AKATHISIA started.

-March 2015:  Started TMS therapy (Transcranial magnetic stimulation) for severe depression. Didn't work. 

-July 23-August 12: Had 10 ECT sessions which took away my protracted withdrawal symptoms including: akathisia, brain zaps, muscle twitches, fatigue and depression. Stopped medications. 

-September 2015: Experiencing bouts of depression again and muscle twitching. 

-March 2016: Started 20 mg Nortryptiline for depression. It helped. 

-August 2016: Slowly tapering Nortryptiline. 

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I would think a antibiotic like amoxicillin or any other cillin would be fine. But a fluoroquinolone can cause these and worse reactions in anyone.

Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg.

1/01/15 - .75 mg.

1/15/15 - .42 mg. better sleep now, hope it continues...

2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me!

3/17/15 .14 mg. Knee pain bad!

4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 

4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. ????????????????

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MissTrish

I recently had to take a round of amoxicillin.  It was really messing me up stomach and nervous system-wise until I started eating yogurt two hours before I took each pill.  That helped more than I could ever have imagined and it was a pharmacist who suggested it to me.

1986-2005:  Limbitrol (15 Librium/ 50 Elavil combo) 1986-2005, 2005-successfully tapered Librium

January of 2009-2011:  Mirtazapine 30 mg; Cymbalta 60 mg; tapered cymbalta fall/winter of 2011/12

March 2012-March 2014:  Mirtazapine, and various trials of Celexa, Zoloft, Wellbutrin and Lexapro; began Lexapro taper

9/18/14-Lexapro .7 mg; Mirtazapine 30 mg; 9/29/14 ditched Lexapro; added 25 mg Nortryptyline began mirtazapine taper

11/4/14:  Mirtazapine 15 mg; Nortryptyline about 12.5 mg; 1/17/15:  Mirtazapine 7.5 mg; Nortryptyline 2.5 mg, then jumped nortryptyline.

2/10:  Mirtazapine 1.875, 2/11:  Re-established at 6.75, 3/19-6.0 mg, 4/9-5.8, 4/17-6.3; 4/21 tried to re-establish at 7.5

4/23/15-Back to 5.8; 5/5-5.1mg; 5/16-4.6 mg; 5/24-4.2 mg; 6/2-3.9 mg; 6/9-3.6 mg; 6/16-3.3 mg; 6/23-3 mg

6/28-2.8 mg; 7/2-2.5 mg; 7/4-Jumped, due to increased misery from the drug itself.

In a spell of panic due to agitation and insomnia, went through a few days each of 10, then 5 mg amitryptyline and 5 mg librium. Did not work out well. Horrible insomnia now.

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Good thing about the yogurt. The antibiotics mess up with the whole nervous system and gut flora. 

 

I thought I was still suffering from an infection, but I went to the doctor and it turned out the antibiotics not only messed my nervous system but also my whole gut flora, which was causing nausea, diarrhea, etc… Now I'm taking probiotics to restore. 

 

Oh my God. I really wish I don't get sick again and need antibiotics! 

-Effexor 150 mgs (2001-2009). Severe withdrawal symptoms during and after tapering for 6 months.  

-Pristiq 50 mg (2009-2012) Tapered over a year. Worst year of my life. 

-Prozac 20 mg (2012) Tapered over 6 moths to ease withdrawal. Still had severe WD symptoms. 

- (2012-2014) Doctor tried more than 20 medications for depression and WD, leaving me hypersensitive, and in protracted withdrawal. 

- Most debilitating symptoms during protracted withdrawal have been deep depression, anxiety, brain zaps, fatigue, akathisia, twitching, headaches and terrible PMS. 

-January 2015: Started Lamictal 12.5 mg, increased to 25 mg.- Bad reaction when updosed to 50 mg. Stopped. 

-February 2015: Doctor tried new antidepressant Brintellix - Horrible reaction. Discontinued completely. Severe AKATHISIA started.

-March 2015:  Started TMS therapy (Transcranial magnetic stimulation) for severe depression. Didn't work. 

-July 23-August 12: Had 10 ECT sessions which took away my protracted withdrawal symptoms including: akathisia, brain zaps, muscle twitches, fatigue and depression. Stopped medications. 

-September 2015: Experiencing bouts of depression again and muscle twitching. 

-March 2016: Started 20 mg Nortryptiline for depression. It helped. 

-August 2016: Slowly tapering Nortryptiline. 

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mustangwoman

Thank you so much for your comments and your validation!  It means so much.  My hope and prayer is that we all heal more each day.  Thank you again for your kindness!

zoloft 2004-08 tapered too fast(2 weeks)
Luvox 5/08 100 mg 07/10 40mg via small reductions, 08/10 39mg, 09/10 38mg, 10/10 37mg, 11/10 36mg,2/11 35mg, 5/11 34mg, 8/11 33mg, 11/11 32mg, 01/12 31mg, 03/12 30mg, 4/12 29mg, 5/12 28 mg, 8/12 27 mg, 11/12 26 mg, 1/13 25 mg, 3/13 24 mg, 4/13 23 mg,6/13 22 mg, 7/13 21 mg, 8/13 20mg, 10/13 19 mg, 11/13 18 mg, 12/13 17 mg, 1/14 16 mg, 3/14 13 mg, 9/14 10.9 mg,  1/15 10 mg, 3/15  9 mg,  5/15 8 mg. 11/15 7.12 mg.  4/16  5 mg, 6/16   4.5 mg,  9/16 4.2 mg, 1/17 3.48 mg, 2/17  3.2 mg,  4/17 2.2 mg, 5/17 2.0 mg, 6/17  1.74 mg, 7/17 1.58 mg, 9/17 1.27 mg, 11/17 1.0 mg,  1/18 0.79 mg

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  • 5 weeks later...

I am hypersensitive since quitting Ads.. I react to many things not just drugs and food.  Common things make me ill until I made the connection symptoms were a steady stream from one thing to the next. 

 

It took me a long time to clue in as I thought a lot of it was wd and while wd was the kick starter for me limiting the chemicals in my environment has helped. 

 

I often noticed many things that have an perfumes make me ill I get dizzy numb tingling brain fog... sweat need to sleep or run away... running away is what I do most. 

 

Since smells seemed to be the catalyst I avoid them as the reaction is obvious.  

Cleaner and personal care products air fresheners is where I started. 

 

Today I found a site that lists the ingredients in products I use.  Tide Free for instance is better tolerated by me than tide with scent. 

 

Using Tide free as an example I checked it with this site it scored an F the lowest score?! see it here

 

http://www.ewg.org/guides/search?utf8=%E2%9C%93&q=tide+free&x=59&y=10&page=1&per_page=15

 

On the next page the results are broken down to Respiratory  Skin Allergy Reproductive Toxicity Cancer and Environmental Harm ratings.  

http://www.ewg.org/guides/cleaners/2421-TideFreeGentleLiquidDetergentHE

 

 "F" meaning

"ETHANOLAMINE

 
Moderate Concern: respiratory effects, general systemic/organ effects; Some Concern: chronic aquatic toxicity, nervous system effects, skin irritation/allergies/damage"
It seems I did myself some good in getting the odor out of the soap but there are better choices I could make tho I am not sure I can find the other products. Tide Free for Cold Water liquid or the Tide Ultra Free Gentle powder...   would have been a better choice .. so next time if I can't find the better products I will buy one of these. 
It depends on what concerns you more reproductive or neurological issues. 
Only two products are on the sites "A" list for chemical reactions
Berryplus Liquid Laundry Soap this one is by far the best. I wonder if it costs an arm and a leg..
Ps this website is looking for your help
 

It’s time for real toxics reform!

Our nation’s toxic chemicals policy has been broken for 39 years. Now, there are two competing bills in the Senate to update it: one that protects you (introduced by Sens. Boxer and Markey), and one that protects the chemical industry (introduced by Sens. Udall and Vitter).

We need to make sure that real chemical reform is passed. It’s time to call on President Obama and the Senate to oppose the bill written by the chemical industry.

 
At the above site they are asking for you to put your name to this note:
"Dear President Obama and Senators: 
 
Chemical safety laws should ensure that people, especially children, are not bombarded with dangerous chemicals. I urge you to reject any legislation that does not ensure that chemicals are safe, that fails to require quick review of the most dangerous chemicals and that does not preserve a strong role for state regulation. I strongly oppose S. 697 and urge you to fight any bill that puts chemical industry profits ahead of people’s health. Please support S. 725 instead."

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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  • 2 weeks later...

Funding for a new documentary about people who have sensitivities 

https://www.kickstarter.com/projects/thesensitives/the-sensitives-a-feature-documentary

 

From looking at the movie ads I am not this bad yet but I can't be sure I will not progress... whatever it going on with these people I share something of the same. 

Please pass this around to any site you think may help with the funding. 

 

 

I am not sure how many people in withdrawal have had reactions to chemicals.  I know of a few other people besides myself who have had reactions to soaps foods ect.  the reactions to chemicals came early in wd though I did not recognize it right away as so many other health problems were complicating the issue and I could not think at all. 

 

Some where in the first year I noticed certain things made me sick.  I was initially in bed when I started to come out of hiding I noticed I could breath better outside then I could in the house and started to air out the house every day for several hours when I was home alone.  As I recovered I found the steam that came out of the dishwasher cause symptoms brain fog numbness I could taste the soap in my mouth this is just from the steam after the dishes were rinsed... I started rinsing the dishes a second time as a glass of water caused the same symptoms so the dish soap was still on the dishes... we got a new dishwasher nothing changed.  I started using vinegar in the rinse cycle and a green type of dish washer soap. 

 

Having a shower was making me sick.. my eyes would be red showering was a big problem not only social but self esteem was bad as I knew I looked bad.. I had already given up make up hair products hair dyes nail polish perfume as these were obvious forms of reactions.  Still I was sick after every shower and limiting exposure was the only thing I could think of early on... I had to go to bed for a few hours after each shower and then wait for the effects to wear off. My hair smelled of conditioner and made me ill when I finally noticed that and clued in I could not believe it took me so long to sort that out.  I went on search for clean products that do not cause as bad a reaction... I am not crazy about how they work at this point but it sure beats being sick for a day after having a shower and not being able to shower before apts... due to needing to lay in bed the day of the shower. I still don't shower the same day I need to go anyplace as generally while I have improved I still need to rest after a shower. Maybe I have not found the best products yet but they are better. I can't shop online due to no credit card so don't send me links to things I can't get in Canada .. names of products are welcomed I will search them from there... if you have sound something perfect... as I am still looking. 

 

It seemed to me that the chemical sensitivity issues got better for a time then came back... with a vengeance I can't be sure what caused the lapse or return of symptoms.  It may well be I had taken the toxins out of my enviroment enough to calm it down for a time but something has changed and it is all back regardless of my attempts to limit exposure it is a problem for me again now.

 

Today I was visiting a MCS website and found a link to a documentary people are trying to make.  This will hopefully inspire some research. They are hoping to raise money to complete the documentary.

here is the link

 https://www.kickstarter.com/projects/thesensitives/the-sensitives-a-feature-documentary

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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Oh my gosh that really heartbreaking! I'm so sorry you have been dealing with that. Not to even be able to take a shower without reacting, I just can't even imagine.

 

I have noticed some things happening to me since I have been on and off so many medications in the last year. I had an itchy and painful rash that my doctor diagnosed as ringworm. After treating it with cream and even oral meds, it persisted. I finally went to my dermatologist who did a biopsy. The results came back as a hypersensitivity reaction. It cleared up eventually. After reading about histamine intolerance, now I believe it was from cutting my mirtazapine dose in half. I remember asking the doctor if cutting it from 15 to 7 and a half would cause withdrawals. She told me it would not and I believed her. This was around the same time that rash showed up. 

April 2014:  Klonopin  1mg for panic attacks (That was too much so I cut them in half)

August 2014: 10mg Paxil, .5mg Klonopin ( I have always been very conservative with this. I only take it once or twice a week. Sometimes I don't take it for several weeks.)

September 2014: 20mg Paxil, .5mg Klonopin as needed

October 2014: 25mg Paxil, Klonopin .5mg as needed

November 2014: Fast taper from Paxil. Full-blown withdrawals.

December 2014: 10mg Lexapro, 600mg Gabapentin, 15mg Remeron, Klonopin .5mg as needed.

January 2015: 10mg Lexapro, 900mg Gabapentin, 15mg Remeron, Klonopin .5mg as needed

February 2015: Switched from Lexapro back to Paxil 10mg, 1200mg Gabapentin, 15mg Buspar, 7.5mg Remeron, .5 Klonopin as needed

March and April 2015: Paxil 10mg, 1200mg Gabapentin, 30mg Buspar, 7.5mg Remeron

 May 2015: Started Paxil taper in quarter increments. Increased Buspar to 30mg. Everything else is the same.

June 2015: Tapering Paxil. Right now I'm at 5mg. Increased Buspar to 45 mg. Everything else is the same. 

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It may help you to understand the limitations of our doctors if you watch this video made by a doctors discussing just this issue

http://www.ted.com/talks/ben_goldacre_what_doctors_don_t_know_about_the_drugs_they_prescribe?language=en

 

I have had many skin issues and tho i have been to the same dermatologist countless times he never does a biopsy and gives me drugs... every visit the last one ate away my skin... I am done with him at this point as he is useless to me. 

 

For a long time I thought the shower issues were bp problems ect as I had that too... a lot of things were going south it was hard to tell while I still do think bp and Pots were a part of the shower issue..... to start... the chemicals likely played a part all along. 

 

There were a lot of reasons not to shower early on temp change I could not handle .. breathing in the shower was hard... I was dizzy and could not see... some of us spent the first few months in bed.. I did but I went cold turkey... after a too fast doctors suggested taper and cross over and re in statement failed. 

 

You will find things change as wd goes along hard to say what symptoms some will have while other seem to never have some. It is a toss up.

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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That is so true. I notice that every time I decrease I have different symptoms. 

 

I'm sorry that dermatologist made you worse when you were already suffering. Your whole experience sounds very miserable. I don't know if you have already tried these yet but I made several changes since I had the rash. My daughter recommended Dove soap and body wash in the sensitive formula. I have very sensitive skin and this has helped a lot. Also, I changed laundry detergent to "All Free And Clear".  

 

Thank you for the video link :)

April 2014:  Klonopin  1mg for panic attacks (That was too much so I cut them in half)

August 2014: 10mg Paxil, .5mg Klonopin ( I have always been very conservative with this. I only take it once or twice a week. Sometimes I don't take it for several weeks.)

September 2014: 20mg Paxil, .5mg Klonopin as needed

October 2014: 25mg Paxil, Klonopin .5mg as needed

November 2014: Fast taper from Paxil. Full-blown withdrawals.

December 2014: 10mg Lexapro, 600mg Gabapentin, 15mg Remeron, Klonopin .5mg as needed.

January 2015: 10mg Lexapro, 900mg Gabapentin, 15mg Remeron, Klonopin .5mg as needed

February 2015: Switched from Lexapro back to Paxil 10mg, 1200mg Gabapentin, 15mg Buspar, 7.5mg Remeron, .5 Klonopin as needed

March and April 2015: Paxil 10mg, 1200mg Gabapentin, 30mg Buspar, 7.5mg Remeron

 May 2015: Started Paxil taper in quarter increments. Increased Buspar to 30mg. Everything else is the same.

June 2015: Tapering Paxil. Right now I'm at 5mg. Increased Buspar to 45 mg. Everything else is the same. 

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  • 5 months later...

http://www.womenshealthmatters.ca/assets/legacy/wch/pdfs/ESMCSStatusReportJune22011.pdf

 

 

Some of us have this MCS I found this bit defining and describing what is going down when we are reacting to help us understand and hopefully help ourselves.,

 

"multitude of chemicals introduced into our air, food, water, soil, and consumer products since World War II, as well as to increasing exposure to electromagnetic radiation.

 

Overwhelmed Body Defence Mechanisms

 

Fortunately, the body may normally utilize many mechanisms and combinations thereof to defend against foreign biological, chemical or physical agents, or rapidly dividing cancer cells. However, defence mechanisms can become overwhelmed and individuals may become more sensitive to a variety of chemicals at everyday dosages, for example patients with cirrhosis of the liver, or undergoing chemotherapy for cancer.

 

ES-MCS Status Report 2010-11 12 Primary body defence mechanisms include the following (simplified): o Surface barriers: Inhaled particles and chemicals may be breathed out or trapped in mucus in the nose and sneezed out, or in the bronchi and lungs and coughed out. The gastrointestinal tract wall and mucus can block absorption of ingested hazardous substances. Substances may be brushed or washed off the skin before they are absorbed.

 

o Cellular Immune Responses: immune cells, including neutrophils, monocytes and lymphocytes e.g. B cells, T cells and Natural Killer cells, are found in the blood and throughout the body in organs such as the lungs, liver, spleen and brain. When viruses, bacteria or other foreign proteins enter the body, the immune cells become activated to release chemical mediators to ‘chew’ them up

(Klaasen CD. Casarett and Doull’s Toxicology, the basic science of poisons, 7th Edition, 2008, McGrawHill Inc.; Guyton AC, Hall JE. Textbook of Medical Physiology, 11th Edition, Saunders, July 2005)

 

. Immune responses are powerful mechanisms in the body, with potential to cause harm (e.g. anaphylaxis or autoimmune disease). Danish researchers have demonstrated dose response-related increased histamine release from the basophils of patients with asthma and perfume contact allergy, in comparison with controls, on exposure to perfume

(Elberling J, Skov PS, Mosbech H, Holst H, Dirksen A, Johansen JD. Increased release of histamine in patients with respiratory symptoms related to perfume, Clin and Experim Allergy, 2007; 37:1676-1680).

 

o Humoral Non-Cellular Immunity: there are many different humoral immune pathways where the body produces or reacts with large complicated proteins such as immunoglobulins (antibodies), complex proteins and enzymes for the coagulation or clotting system and the complement system, or reactive proteins such as cytokines or other chemicals that are produced in response to what the body identifies as foreign: bacteria, viruses, fungi, cancer cells, radiation and chemicals.

 

The proteins and chemicals travel through Phase I and Phase II biotransformation pathways that occur mainly in the liver (Klaasen CD. Casarett and Doull’s Toxicology, the basic science of poisons, 7th Edition, 2008, McGraw-Hill Inc.; Guyton AC, Hall JE. Textbook of Medical Physiology, 11th Edition, Saunders, July 2005, 1152 pgs).

 

o Phase I and Phase II Biotransformation, followed by Phase III Excretion: the Phase I (Cytochrome P-450) enzyme system prepares (bioactivates) the parent substance via various mechanisms, so that it can connect (conjugate) with another substance in a Phase II pathway to make the compound water soluble in order that it may be excreted more easily in Phase III. The rate at which Phase I produces activated intermediates must be balanced by the rate at which Phase II conjugates and excretes toxins in the urine via the kidneys, in the bile and stool via the bowel, and to some degree in sweat. Otherwise, there can be a build up of the parent substance and its active intermediate metabolites, which, in some cases can be more toxic than the parent.

 

Many drugs are P-450 enzyme inhibitors which may result in accumulation of medications and foreign chemicals (xenobiotics) with increased side effects and toxicity. Examples are cimetidine, ciprofloxacin, diltiazem, erythromycin, ES-MCS Status Report 2010-11 13 ketoconazole, verapamil, and a number of selective serotonin reuptake inhibitors (SSRIs). There are essentially six Phase II conjugation pathways: -Glutathione conjugation -Amino acid conjugation -Methylation -Sulfation -Acetylation -Glucuronidation There must be adequate nutrients available for efficient operation of Phase I and II biotransformation pathways, in particular, high intake of highly-coloured vegetables, ascorbate, anti-oxidants, glutathione precursors provided by adequate protein, niacin and cobalamin, as well as balanced essential fatty acid intake and phosphatidyl choline, along with high fibre to enhance GI transit function in Phase III excretion (Burford-Mason A. What foods need to deliver, Nutrition for Docs, Dalla Lana School of Public Health, University of Toronto, Syllabus, April 17-18, 2010)."

http://www.womenshealthmatters.ca/assets/legacy/wch/pdfs/ESMCSStatusReportJune22011.pdf

 

I can't read it all today I am still some what reactive and tire easily hope it is helpful to some others here. There is a  lot more at the site and it surely did not paste right is much easier to read there but harder to find the good bits as it is long... 

peace all

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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 There is a section there of related diseases which will surprise you.... I can't get it to copy page 24 of 42

 

 

 .http://www.womenshealthmatters.ca/assets/legacy/wch/pdfs/ESMCSStatusReportJune22011.pdf

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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Detoxification
A.) Basic principal is to lower the total load of triggers that affect the body.
 
B.) Build up the nutrients required to detoxify.
 
C.) Give the patient an environment with clean air, food and water.  Also avoid triggers of things to which one has become allergic, which are usually derived from air, food and water sources.
Thus, it becomes important to be tested to find out what one has become allergic to. Testing is best done with an Environmental Doctor who can do serial end point titration, or Provocation Neutralization. These techniques identify triggers which must be avoided or the patient will find the symptoms worsen and reactions become more frequent. 
 
D.) Detoxify using:
1.)  Heat Depuration (Sauna)
2.)  Agents to remove the body’s bile salts which carry the toxins, for example cholestyramine, charcoal, psyllium, betonite,  and chlorella.
 
Toxins can be identified in different body compartments including: urine, blood, hair, sweat, and body fat. One can measure heavy metals, and chemicals in the body, including persistent organic pollutants, which are stored more in the fat.         
It is important to remember that we all have a unique blueprint from our DNA that determines how well we can detoxify, these traits are inherited from our parents.
 
 


Treatments

 

Treatments that can be done with the supervision of a physician and treatments that can be done by yourself
Action
Health Effect
Treatment
Alone or with physician
Immediately - Lower total load of triggers that affect the body. Avoidance of chemicals, moulds, electromagnetic fields and foods. This is the basis of treatment.
Over time, reduces sensitivities and lessens symptoms
Clean air and water and organic food. Remove all toxic chemicals, mould, reduce or eliminate electromagnetic fields, use only safest products.
By yourself.
Stop the spreading phenomena as soon as possible
Over time, reduction of sensitivities and symptoms
Using Serial Dilution End Point Titration or Provocation Neutralization
By a physician.
Build up nutrients required to detoxify with supplementation of vitamins and minerals.
Helps to overcome impaired detoxification pathways
Testing can be done on serum levels of vitamins, minerals and amino acids
Help of a physician
 
Chelation
Removes heavy metals from the body
Hair, urine, intracellular analysis (most of this testing has to go to US labs)
By a physician
Detoxification (your towels should be washed separately after using the sauna. Use towels to sit on - do not let the sweat come in contact with the wood or seat of the sauna)
 
Removes chemicals and heavy metals
i) Exercise
ii)Sauna
iii) Agents to remove toxins for example cholestyramine, charcoal, psyllium, bentonite and chlorella
iv) supported with vitamins and minerals
Patient has to be given the protocol by a physician and followed to make sure that electrolytes are in balance
Elimination and 4 day rotation diet
Identifies food allergies or sensitivities and lowers total load
 
By yourself
 
 
 
 
 
 
 
Vitamins and Mineral

 

Our body requires an array of vitamins and minerals in different quantities to ensure proper functioning of body cells and organ systems. Due to improper diet or malabsorption as a result of illness we do not always get the nutrients our body requires. At the OEHC we offer IV vitamins and minerals to patients with deficiencies after careful consideration by Dr. Armstrong. The OEHC recommends always consulting with a health care professional before beginning a supplementation regime.
A few examples of the biological effects of vitamins and minerals:

Magnesium: The most common mineral deficiency. Magnesium supports over 300 enzyme systems in the body.
Zinc: Zinc supports over 100 enzyme systems within the body and is extremely important for the immune system. Zinc deficiency adversely effects physical growth, immune function, reproductive health, neuro-behavioral development, and detoxification. 
Vitamin A: Promotes integrity and healing of epithelial tissues, such as skin, gastrointestinal tract, conjunctiva, and respiratory tract. Vitamin A also enhances immune function and resistance against infection.
Beta Carotene: Antioxidant, and enhances immune function.
Thiamine: Involved in energy metabolism and functioning of the nervous system.
Lipoic Acid: Aids in normalization of elevated liver enzymes
Riboflavin: Involved in carbohydrate metabolism. Cofactor for enzymes related to ocular tissues; may help maintain tissue levels of reduced glutathione.
Folic Acid: Involved in DNA metabolism, central nervous system function, immune function and homocysteine/methylation metabolism.
Vitamin B6 and B12: Energy metabolism, nervous system function, immune function, homocysteine/methylation metabolism.
Vitamin C: Promotes tissue healing and tissue integrity; enhances immune function, antihistamine,  anti-viral, antibacterial.
Vitamin D: Calcium absorption and metabolism
Vitamin K: Activates certain blood clotting factors. Required for the synthesis of the bone protein osteocalcin.
 

Note:
1.     The physician must be a trained in Environmental Medicine. The sooner a patient is figured out, the better. If a patient has to wait a long time to be treated by an experienced professional, the less chance there is of getting their life back.
2.     Discipline is required by the patient to follow instructions and not try to take short cuts. There is no magic pill.



OEHC - Ottawa Environmental Health Clinic © 2013
 
http://www.oehc.ca/treatments.html

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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  • 9 months later...

This topic has peaked my interest.  I have been sensitive to drugs my whole life, so I might also be sensitive to other chemicals?  I have been coloring my hair at the salon twice a year, wear nail polish and seldom go out of the house without makeup.  I'm thinking now to discontinue the hair coloring, makeup ( at least wear less), and no nail polish.  I will see if this lessens the withdrawal symptoms for me.  

July Medications: Started taking antidepressants in 1981, also benzos off and on; antiphychotics , anti-seizure for years.   Trazodone, Lamotrigine, Klonopin for over 10 years   all at maximum dosages,:Disconcontinued Klonopin in month of February 2011,  discontinued Trazodone and Lamotrigine   in month of March 2011 while in hosptial.  Given Seroquel to "help" go off Klonopin  gradually increased to 600 mg ; doctor took me off 600 mg. Seroquel in two weeks, and switched to Resperidal  because of weight gain on Seroquel, went off Resperidal quickly,   then gradually reinstated  Seroquel to 600 mg. at my request.   Went off Seroquel by myself at 25mg. per month in 2014.     Last medication Seroquel completely off since May 2016. Also went off Morphine at the same time as last 25 mg. of Seroquel in May 2016. Started tapering Celexa 40mg. to 35mg.  on 11 Aug. 2016  ; 16 Oct. Celexa 32.5 mg.; 6 Nov. 2016:  30mg. , 50 mg abt. Feb 26 with occasional 30mg.  , : May 10, 2017 began tapering rapidly because of adverse reaction to Celexa;, 40 mg. Celexa;   May 24, 2017: 35mg Celexa.;  June 8, 2017, 30 mg. Celexa, June 22, 2017 25mg.Celexa,; July 6,2017 20mg. CELEXA, July 20: 15mg.; August 10: Sep 29 2017: 10mg. Celexa + 10mg. Prozac, 5 Oct, 2017:  5mg. Celexa + 10mg. Prozac.; Oct. 14 Celexa 0., Prozac 10mg.Took last Prozac on November 22, 2017, Jan. 31 30mg. Cymbalta........ May Cymbalta 90mg.

 

Supplements Cal/Mag , Potassium, , Multi Vitamin.  digestive aid, antioxidant

Medications presently taking:    Lyrica 150mg. 2x day  , Synthroid 175mcg, Nasonex 2 sprays each nostril, once a day ,     Tylenol  1,000 mg. 2x day., , Restasis eye drops 2x day,  Trazodone 100 mg, Cymbalta 90 mg. Arthrotec 50 mg., Plavix

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Genlady,

I hope the experienced mods will convince you that these beauty treatments which will boost your self-esteem should not be stopped.

As a scientist in other fields, I would guess the powerful medications you are/have been taking will overwhelm any relatively minute effects your cosmetic treatments are having on you.

 

One of the dangers for us who are on powerful mind-altering drugs is that we will latch on to the possibility of relatively tiny things we do or take, having an immense effect on our well-being.

Straw-clutching by a stressed, drugged mind and our rationality seriously impaired.

Keep trying to look good, genlady! would be my personal view, here.

Best wishes.

 

PS - I am not saying there are no chemical sensitivities to everyday substances (our granddaughter (3) is sensitive to certain wipes, etc.).  Withdrawal symptoms are so powerful, I would initially label them as the (probable) total culprit of your discomfort.

Born 1945. 

1999 - First Effexor/Venlafaxine

2016 Withdrawal research. Effexor.  13Jul - 212.5mg;  6Aug - 200.0mg;  24Aug - 187.5mg;  13Sep - 175.0mg;  3Oct - 162.5mg;  26Oct - 150mg 

2017  9Jan - 150.00mg;  23Mar - 137.50mg;  24Apr - 125.00mg;  31May - 112.50mg holding;  3Sep - 100.00mg;  20Sep - 93.75mg;  20Oct - 87.5mg;  12Nov - 81.25mg;  13 Dec - 75.00mg

2018  18Jan - 69.1mg; 16Feb - 62.5mg; 16March - 57.5mg (-8%); 22Apr - 56.3mg(-2%); CRASHED - Updose 29May - 62.5mg; Updose - 1Jul - 75.0mg. Updose - 2Aug - 87.5mg. Updose - 27Aug - 100.0mg. Updose - 11Oct 112.5mg. Updose - 6Nov 125.00mg

2019 Updoses 19 Jan - 150.0mg. 1April - 162.5mg. 24 April - Feeling better - doing tasks, getting outside.  7 May - usual depression questionnaire gives "probably no depression" result.

Supps/Vits  Omega 3;  Chelated Magnesium;  Prebiotics/Probiotics, Vit D3. 

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Rev Environ Health. 2015;30(4):251-71. doi: 10.1515/reveh-2015-0027.

Reliable disease biomarkers characterizing and identifying electrohypersensitivity and multiple chemical sensitivity as two etiopathogenic aspects of a unique pathological disorder.

Abstract

Much of the controversy over the causes of electro-hypersensitivity (EHS) and multiple chemical sensitivity (MCS) lies in the absence of both recognized clinical criteria and objective biomarkers for widely accepted diagnosis. Since 2009, we have prospectively investigated, clinically and biologically, 1216 consecutive EHS and/or MCS-self reporting cases, in an attempt to answer both questions. We report here our preliminary data, based on 727 evaluable of 839 enrolled cases: 521 (71.6%) were diagnosed with EHS, 52 (7.2%) with MCS, and 154 (21.2%) with both EHS and MCS. Two out of three patients with EHS and/or MCS were female; mean age (years) was 47. As inflammation appears to be a key process resulting from electromagnetic field (EMF) and/or chemical effects on tissues, and histamine release is potentially a major mediator of inflammation, we systematically measured histamine in the blood of patients. Near 40% had a increase in histaminemia (especially when both conditions were present), indicating a chronic inflammatory response can be detected in these patients. Oxidative stress is part of inflammation and is a key contributor to damage and response. Nitrotyrosin, a marker of both peroxynitrite (ONOO°-) production and opening of the blood-brain barrier (BBB), was increased in 28% the cases. Protein S100B, another marker of BBB opening was increased in 15%. Circulating autoantibodies against O-myelin were detected in 23%, indicating EHS and MCS may be associated with autoimmune response. Confirming animal experiments showing the increase of Hsp27 and/or Hsp70 chaperone proteins under the influence of EMF, we found increased Hsp27 and/or Hsp70 in 33% of the patients. As most patients reported chronic insomnia and fatigue, we determined the 24 h urine 6-hydroxymelatonin sulfate (6-OHMS)/creatinin ratio and found it was decreased (<0.8) in all investigated cases. Finally, considering the self-reported symptoms of EHS and MCS, we serially measured the brain blood flow (BBF) in the temporal lobes of each case with pulsed cerebral ultrasound computed tomosphygmography. Both disorders were associated with hypoperfusion in the capsulothalamic area, suggesting that the inflammatory process involve the limbic system and the thalamus. Our data strongly suggest that EHS and MCS can be objectively characterized and routinely diagnosed by commercially available simple tests. Both disorders appear to involve inflammation-related hyper-histaminemia, oxidative stress, autoimmune response, capsulothalamic hypoperfusion and BBB opening, and a deficit in melatonin metabolic availability; suggesting a risk of chronic neurodegenerative disease. Finally the common co-occurrence of EHS and MCS strongly suggests a common pathological mechanism.

PMID:   26613326   DOI:   10.1515/reveh-2015-0027
[PubMed - indexed for MEDLINE]

 

many times on this site I have typed my brain is not getting enough blood ... so there it is... black and white risk of chronic neurodegenerative disease... I am still not happy there is no making some people happy that's a joke... still waiting for the cure. 

 

peace all 

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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  • 1 month later...

Now when I have too much scent I can't walk right and shake wobble it is rather terrifying. 

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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  • Altostrata changed the title to Multiple Chemical Sensitivity vs hypersensitized nervous system
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