Jump to content

Attention Australian members - electronic health records


Recommended Posts

Hi everyone

 

The Australian government is implementing electronic/online health records for all residents, unless we opt out. This has been poorly advertised and we haven't been advised in writing. Once the record is created, it will remain in existence until 30 years after death. You can kind of opt out after it has been created, but not really. That information will be deactivated (but can be reactivated later) and won't be deleted until 30 years after death.

 

A three month opt out period started on Monday. If you want to, you can opt out here: https://www.myhealthrecord.gov.au/for-you-your-family/opt-out-my-health-record.

 

While there are benefits to this sort of record, I have serious reservations about them. I have decided that the negatives outweigh the positives for me.

 

Not trying to talk anyone into or out of anything. I'd just like to give Australian residents a heads up so that they can make an informed decision.

2005 St John's Wort / 2006-2012 Lexapro 20mg, 2 failed attempts to stop, tapered over 4.5 months in early 2012

January 2013 started Sertraline, over time worked up to 100mg

July 2014 Sertraline dropped from 100mg to 75mg, held for six months, slower tapering until 2019 22 Dec 3.2mg

2020 Sertraline 19 Jan 3.1mg, 26 Jan 3.0mg; 1 Mar 2.9, 7 Mar 2.8, May (some drops here) 24 May 2.5, May 29 2.4, June 21 2.3, June 28 2.2mg,  July 4 2.1mg, July 24 (or maybe a bit before) 2mg, early Nov switched to home made suspension; 29 Nov 1.8mg; approx 25 Dec 1.6mg)

2021 Some time in about Jan/Feb realised my dosing was off and as probably on more like 1.8mg and possible mixing error in making suspension; doses after 10 Feb accurate; 10 Feb 1.6mg; 7 Mar 1.4

 

My thread here at SA: https://www.survivingantidepressants.org/topic/1775-bubbles/page/17/

CurrentSertraline: 7 Mar 1.4mg / Armour Thyroid / endless allergy meds, erg

 

 

Link to post
Share on other sites
Hopetobefree

Thanks Bubbles for updating us. I'd heard a bit about it but wasn't aware you had to opt out if you didn't want your records kept. 

May 2014 - July 2015 0.5 Clonazapam (cold turkey off)

October 2014 - November 2014 took Beta Blocker Propranolol (fast taper off)

December 2014 - began 2.5mg Lexapro worked up to 30mg Lexapro over 3 months

December 2014 - 2 mg Valium started sometimes took up to 6 mg Valium

April 2015 - started 25mg Lamictal worked up to 100mg Lamictal

April 2015  - began taper 4mg Valium. Stopped Valium 

July 2015 - stopped crumb of 2mg Valium

September 2017 began taper 30mg Lexapro.

February 2018 last dose Lexapro 1.25mg

Current 2019 - 100mg Lamictal at night.

October 2020 - Began 10% taper Dec 2019. was going ok until tapered from 45mg - 40mg. 1 week later all hell broke loose. Updosed to 45mg Hoping to stabilise 

 

Link to post
Share on other sites

https://iview.abc.net.au/show/abc-news-vic

 

Specific article starts at about 3:42 minutes.

 

I think security is only one problem. I think there are others.

2005 St John's Wort / 2006-2012 Lexapro 20mg, 2 failed attempts to stop, tapered over 4.5 months in early 2012

January 2013 started Sertraline, over time worked up to 100mg

July 2014 Sertraline dropped from 100mg to 75mg, held for six months, slower tapering until 2019 22 Dec 3.2mg

2020 Sertraline 19 Jan 3.1mg, 26 Jan 3.0mg; 1 Mar 2.9, 7 Mar 2.8, May (some drops here) 24 May 2.5, May 29 2.4, June 21 2.3, June 28 2.2mg,  July 4 2.1mg, July 24 (or maybe a bit before) 2mg, early Nov switched to home made suspension; 29 Nov 1.8mg; approx 25 Dec 1.6mg)

2021 Some time in about Jan/Feb realised my dosing was off and as probably on more like 1.8mg and possible mixing error in making suspension; doses after 10 Feb accurate; 10 Feb 1.6mg; 7 Mar 1.4

 

My thread here at SA: https://www.survivingantidepressants.org/topic/1775-bubbles/page/17/

CurrentSertraline: 7 Mar 1.4mg / Armour Thyroid / endless allergy meds, erg

 

 

Link to post
Share on other sites

It takes a while to get through.  My record was already created without my knowledge or consent. 

Now I am waiting to get my health record canceled and I have been waiting for over 1/2 an hour. :(

DRUG HISTORY:

 

November 2013- Zoloft, ( Bad reaction).

January 2014 - March 2014 Seroquel.( Quit Cold Turkey).

January2014- Mirtazapine, I was taking 15mg at one stage, reduced to 7.5mg, Pgad reactions to Mirtazapine. Doctor kept increasing it to 37.5mg, until July 2014. No improvement, experiencing panic attacks, on 37.5 mg. I had enough by October 2014. Began tapering.

October 2014- Started tapering Mirtazapine from 37.5mg.

September 2015- Down to 4mg of Mirtazapine. Crashed.

September 16th- Up dosed to 5mg. Held this dose for almost 5 months. Stabilised.

February 2016- Began tapering again. From 5mg to 4.5mg of Mirtazapine. (Rocking the boat, again)! Lol. :(

Link to post
Share on other sites

Oh, that's annoying, @Hopefull.

 

I believe there was an area that was done - in the same manner - a while back as a sort of trial run. You didn't know about it at the time? No, obviously not, you said it was without consent or knowledge. One of the gentlemen in the news video also had a record created that he was trying to stop.

 

I was, thankfully, able to opt out in a matter of minutes online.

2005 St John's Wort / 2006-2012 Lexapro 20mg, 2 failed attempts to stop, tapered over 4.5 months in early 2012

January 2013 started Sertraline, over time worked up to 100mg

July 2014 Sertraline dropped from 100mg to 75mg, held for six months, slower tapering until 2019 22 Dec 3.2mg

2020 Sertraline 19 Jan 3.1mg, 26 Jan 3.0mg; 1 Mar 2.9, 7 Mar 2.8, May (some drops here) 24 May 2.5, May 29 2.4, June 21 2.3, June 28 2.2mg,  July 4 2.1mg, July 24 (or maybe a bit before) 2mg, early Nov switched to home made suspension; 29 Nov 1.8mg; approx 25 Dec 1.6mg)

2021 Some time in about Jan/Feb realised my dosing was off and as probably on more like 1.8mg and possible mixing error in making suspension; doses after 10 Feb accurate; 10 Feb 1.6mg; 7 Mar 1.4

 

My thread here at SA: https://www.survivingantidepressants.org/topic/1775-bubbles/page/17/

CurrentSertraline: 7 Mar 1.4mg / Armour Thyroid / endless allergy meds, erg

 

 

Link to post
Share on other sites
  • Moderator Emeritus

I agree with:

 

8 hours ago, bubbles said:

I think security is only one problem. I think there are others.

 

Edited by ChessieCat

So close to the end!!!

🏁

Current from 16 October 2021:  Pristiq 0.005mg

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015 

My full tapering program     My Intro (goes to my tapering graph)    My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

Link to post
Share on other sites
  • Moderator Emeritus

Here's the:  Evaluation of the Final Report for Participation Trials for the My Health Record

 

However, my personal opinion is that data can be made to look they want the outcome to be. 

So close to the end!!!

🏁

Current from 16 October 2021:  Pristiq 0.005mg

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015 

My full tapering program     My Intro (goes to my tapering graph)    My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

Link to post
Share on other sites

Yes, I see what you mean! I don't know that a lot of people would say they prefer an opt out - I certainly don't! But yes, making it opt out is obviously going to increase participation. :)

 

Here is a different analysis: https://simplysociology.wordpress.com/2018/06/19/what-do-australian-women-think-of-my-health-record/

 

 

2005 St John's Wort / 2006-2012 Lexapro 20mg, 2 failed attempts to stop, tapered over 4.5 months in early 2012

January 2013 started Sertraline, over time worked up to 100mg

July 2014 Sertraline dropped from 100mg to 75mg, held for six months, slower tapering until 2019 22 Dec 3.2mg

2020 Sertraline 19 Jan 3.1mg, 26 Jan 3.0mg; 1 Mar 2.9, 7 Mar 2.8, May (some drops here) 24 May 2.5, May 29 2.4, June 21 2.3, June 28 2.2mg,  July 4 2.1mg, July 24 (or maybe a bit before) 2mg, early Nov switched to home made suspension; 29 Nov 1.8mg; approx 25 Dec 1.6mg)

2021 Some time in about Jan/Feb realised my dosing was off and as probably on more like 1.8mg and possible mixing error in making suspension; doses after 10 Feb accurate; 10 Feb 1.6mg; 7 Mar 1.4

 

My thread here at SA: https://www.survivingantidepressants.org/topic/1775-bubbles/page/17/

CurrentSertraline: 7 Mar 1.4mg / Armour Thyroid / endless allergy meds, erg

 

 

Link to post
Share on other sites
8 hours ago, bubbles said:

Oh, that's annoying, @Hopefull.

 

I believe there was an area that was done - in the same manner - a while back as a sort of trial run. You didn't know about it at the time? No, obviously not, you said it was without consent or knowledge. One of the gentlemen in the news video also had a record created that he was trying to stop.

 

I was, thankfully, able to opt out in a matter of minutes online.

I tried opting out on line, but I got a message to call. So I called,  only to be told that it was already created for me. Then I was put through the cancelation department,   and I waited 30 minutes, only to be told to call Medicare in order get my ID  verified,  since my new address has not been updated on the Medicare database, then I was told to wait 24 hours , call the cancellation line, and then finally my record will be canceled.  I thought,  far out, this is complicated.  I honestly don't know who created the health record without my knowledge.  It is strange. 

Nothing is simple in my life, Lol! :)

DRUG HISTORY:

 

November 2013- Zoloft, ( Bad reaction).

January 2014 - March 2014 Seroquel.( Quit Cold Turkey).

January2014- Mirtazapine, I was taking 15mg at one stage, reduced to 7.5mg, Pgad reactions to Mirtazapine. Doctor kept increasing it to 37.5mg, until July 2014. No improvement, experiencing panic attacks, on 37.5 mg. I had enough by October 2014. Began tapering.

October 2014- Started tapering Mirtazapine from 37.5mg.

September 2015- Down to 4mg of Mirtazapine. Crashed.

September 16th- Up dosed to 5mg. Held this dose for almost 5 months. Stabilised.

February 2016- Began tapering again. From 5mg to 4.5mg of Mirtazapine. (Rocking the boat, again)! Lol. :(

Link to post
Share on other sites

@Hopefull

 

There was one (more?) areas where they did a sort of trial run, and a bunch of people had them made for them. Otherwise, it used to be an opt in thing which had a different name.

2005 St John's Wort / 2006-2012 Lexapro 20mg, 2 failed attempts to stop, tapered over 4.5 months in early 2012

January 2013 started Sertraline, over time worked up to 100mg

July 2014 Sertraline dropped from 100mg to 75mg, held for six months, slower tapering until 2019 22 Dec 3.2mg

2020 Sertraline 19 Jan 3.1mg, 26 Jan 3.0mg; 1 Mar 2.9, 7 Mar 2.8, May (some drops here) 24 May 2.5, May 29 2.4, June 21 2.3, June 28 2.2mg,  July 4 2.1mg, July 24 (or maybe a bit before) 2mg, early Nov switched to home made suspension; 29 Nov 1.8mg; approx 25 Dec 1.6mg)

2021 Some time in about Jan/Feb realised my dosing was off and as probably on more like 1.8mg and possible mixing error in making suspension; doses after 10 Feb accurate; 10 Feb 1.6mg; 7 Mar 1.4

 

My thread here at SA: https://www.survivingantidepressants.org/topic/1775-bubbles/page/17/

CurrentSertraline: 7 Mar 1.4mg / Armour Thyroid / endless allergy meds, erg

 

 

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
×
×
  • Create New...

Important Information

Terms of Use Privacy Policy