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Onmyway

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Onmyway

I have been having strange pains recently - my skin is painful to touch. Sometimes all over and sometimes in very specific areas. The first time it happened it was severe for a day and when I woke up the next day it was gone. It came back mildly a couple of other times and then it localized in specific areas - thigh and back. It's not in Glenmullen's list of symptoms but I'm wondering if anyone else has had it. Because it comes and goes I am assuming it is WD but also worried that it might be something more sinister. Anyone else experience it? 

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Petunia

Hi Onmyway,

I'm sorry you are having this symptom, yes, it can be withdrawal related, many people report cycles of body pain, including skin issues and skin sensitivity. I've had this on and off throughout my recovery process, not as severe as it sounds like you have at the moment. Mine manifested as feelings of burning or prickling on the bottom of one foot and down the side of my body.

 

You could go and have it checked out if you wanted to, but if it comes and goes, and isn't getting worse, I would assume it's withdrawal related.

 

Have a look at this topic:

Skin Issues

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Onmyway
16 hours ago, Petunia said:

Hi Onmyway,

I'm sorry you are having this symptom, yes, it can be withdrawal related, many people report cycles of body pain, including skin issues and skin sensitivity. I've had this on and off throughout my recovery process, not as severe as it sounds like you have at the moment. Mine manifested as feelings of burning or prickling on the bottom of one foot and down the side of my body.

 

You could go and have it checked out if you wanted to, but if it comes and goes, and isn't getting worse, I would assume it's withdrawal related.

 

Have a look at this topic:

Skin Issues

Thank you so much for your kind response @Petunia. It's so great to see you back here though I am also glad that you are feeling much better and don't need to be here any more. Can't wait for that time myself and looking forward to reading your success story. 

 

It is good to know that it has happened and goes away. With neurological symptoms I often think of MS which to me is quite scary. 

 

As this has developed, I am thinking in my case it could be actually shingles. Apparently there is a version of it where there are no blisters but just neurological symptoms (pain, burning, prickling) along very specific areas of the body. It matches my symptoms. Will see doctor tomorrow because if it is actually shingles I need the antivirals that can perhaps shorten its course and lower the excrutiating pain. I am unable to sit/lie properly at the moment. 

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India

Yes, also have this. Even shower feels feels painful on my skin. 

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Onmyway
On 2/4/2020 at 11:40 PM, India said:

Yes, also have this. Even shower feels feels painful on my skin. 

Hi India,

So sorry to hear you also have this. It's so disturbing. 

 

I had this all over the body in the very beginning of WD for a couple of weeks in a flu like episode without any upper respiratory/stomach issues or fever but just feeling sick like I was having the flu. I subsequently realized it was withrawal. Then a month ago again all over the body for just a day. Both resolved so I'm sure yours will as well but it's so disturbing when you're in it.

 

The one from two weeks ago I had along a very specific patch of skin along the L2-L3 dermatome. Self diagnosed as shingles (without the rash) and immediately started antivirals at high doses - it was excruciatingly painful to touch. Involved some negotiating with doctor but spoke to a neurologist friend and he said it's a reasonable hypothesis and he had recently seen multiple cases of this (shingles without rash).

 

GP said he had never seen it and so did not believe it was possible or believed it was but it was extremely rare. (Literature now shows it's not as rare as I've thought). But knowing how my GP diagnoses everything with psychosomatic issues I don't really trust his judgement. Also how would he know he has never seen it if he wouldn't believe that what he was seeing is potentially that. It's like someone says - I've never seen a zebra, you bring

them a zebra and they say - "nice horse but interesting unexplainable stripes, hmm," you tell them it's a zebra, not a horse with stripes and they say "well I've never seen a zebra, I don't think they exist."

So I took large doses of the antivirals without issues and it resolved within 7-8 days with some residual sensitivity for a few more days. Shingles without trearment goes for 2-5 weeks and can remain painful in some patients for months and years. And the pain sometimes only responds to opioids. I wasn't risking that.

 

At this point I'll go with "this episode was shingles" but previous whole body ones were WD. I'm sharing development here so it's accessible for others to whom it might happen. 

 

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