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Body temperature dysregulation: Heat, cold, & temperature change intolerance


squirrel

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  • Moderator Emeritus

Nadia, the pounding heart is a sign of autonomic dumping. Sounds like your temp dysregulation is withdrawal-related.

 

Really?

Because i DO get a pounding heart with mine - i had heard that palpitations were also menopause symptoms!

Started in 2000 - On 150mg most of the time, (but up to 225mg at highest dose for 6 months in the beginning)
Reduced off easily first time - but got depressed (not too much anxiety) 6 months later
Back on effexor for another 9 months.
Reduced off again with no immediate w/d - suddenly got depressed and anxious ++ again 3 or 4 months later.
Back on effexor - this time for 3 years
Reduced off over a month - 6 weeks later terrible anxiety - back on.
Rinse and repeat 4 more times - each time the period before the anxiety comes back got shorter and shorter
Jan - July 2012 75mg down to 37.5mg;, 8/3/12 - 35mg. 8/25/12 - 32mg. 9/11- 28mg, 10/2 - 25mg, 10/29 - 22mg, 11/19 - 19.8mg; 12/11 - 17m,
1/1- 15.5mg; 1/22 -14mg, 2/7 14.9mg, 2/18 - 17.8mg - crashed big time: back to 75mg where i sat for 2 years....

4th  March 2015 - 67.5mg;   31st March - 60mg;  24th April - 53mg; 13th May - 48mg; 26th May - 45mg;  9th June - 41mg; 1 July- 37.5mg; 20 July - 34mg; 11 August - 31mg; 1st Sept - 28mg;  1st Dec - 25.8mg;  28th Dec - 23.2mg; 23rd Jan-21.9mg; Feb 7th- 21mg; March 1st - 20.1mg, March 30th - 18mg

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  • Administrator

The pattern you have is very typical of withdrawal syndrome.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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  • Moderator Emeritus

well, for once i am happy to hear it's a withdrawal issue!

there has always been periods where they have stopped and then restarted again - i never followed my reduction schedule with the hot flushes - i thought they were menopausal but there was always a bit of nagging feeling in the back of my mind that maybe they were w/d related

Started in 2000 - On 150mg most of the time, (but up to 225mg at highest dose for 6 months in the beginning)
Reduced off easily first time - but got depressed (not too much anxiety) 6 months later
Back on effexor for another 9 months.
Reduced off again with no immediate w/d - suddenly got depressed and anxious ++ again 3 or 4 months later.
Back on effexor - this time for 3 years
Reduced off over a month - 6 weeks later terrible anxiety - back on.
Rinse and repeat 4 more times - each time the period before the anxiety comes back got shorter and shorter
Jan - July 2012 75mg down to 37.5mg;, 8/3/12 - 35mg. 8/25/12 - 32mg. 9/11- 28mg, 10/2 - 25mg, 10/29 - 22mg, 11/19 - 19.8mg; 12/11 - 17m,
1/1- 15.5mg; 1/22 -14mg, 2/7 14.9mg, 2/18 - 17.8mg - crashed big time: back to 75mg where i sat for 2 years....

4th  March 2015 - 67.5mg;   31st March - 60mg;  24th April - 53mg; 13th May - 48mg; 26th May - 45mg;  9th June - 41mg; 1 July- 37.5mg; 20 July - 34mg; 11 August - 31mg; 1st Sept - 28mg;  1st Dec - 25.8mg;  28th Dec - 23.2mg; 23rd Jan-21.9mg; Feb 7th- 21mg; March 1st - 20.1mg, March 30th - 18mg

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  • 4 months later...

Hot flushes is a new symptom for me (they started daily about 2 weeks ago (not like the night sweats I had the first 8 weeks off meds) - Sometimes just my back, other times my legs - sometimes my skin isn't even warm although it's as if my blood suddenly got hot. On an odd note, I find that this sometimes does indeed happen when I get particularly annoyed by something (or someone). Started working out today for the first time since off meds hoping it will help my aches and stiffness.

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  • 1 month later...

Happy to report that those crazy hot flushes are gone! This had been such a wild ride. I'm always wondering what the next set of symptoms will be. Thank you for this site and everyone who takes the time to post! Xo

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i have this all the time right now! i don't know if it's related to w/d, since it's been over 18 months since i stopped meds, but my stress level has been through the roof for the past 6 months and i have had the worst flushes, pretty much daily, for a couple of months now. they come with exhaustion as well. even minor stress sends it over the edge. i just want it to stop but my life looks to remain stressful for the next few months until i finish grad school. i feel like a tomato most of the time...

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  • 4 weeks later...

I have this also! It usually happens between 4am & 7 am after i get up to use the bathroom. It probably happens once or twice a month. I feel reeeeeeally freezing with violent chills. Sometimes i get up & eat a small meal & it calms down. But during the chills, i have to get under all the covers & try to get my body temp up. Its something i never experienced before withdrawal. It started April 2012 which was11 months into withdrawal.

Dec 2004 - Put on Zoloft after having a panic attack from the Birth Control Ortho Evra Patch (the doctors thought I was completely insane when I told them I think the Birth Control Patch is giving me anxiety/panic. Funny how they tell you NOW that Birth Control can indeed cause anxiety) Started at 25mg, increased to 50 mg and 100 mg in 2007. They made me too sleepy so decreased back to 50mg until 2009. Reduced to 25 mg in 2010.

Oct 2010 - Decided to come off Zoloft to try and have children. Didn't know anything about tapering because apparently, my doctor didn't know about it either. WDs included heart palpitations, dizziness, tinnitus etc. Decided to go back on Zoloft within 2 weeks of stopping.

January 2011 - Knowing a little more about tapering, I decided to stop taking taking Zoloft with my doctors help again. She told me to hurry and taper in 4 weeks because the tinnitus could become permanent. I thought this was too fast so I took another month to taper.

March 30, 2011 - Last Zoloft pill.

Had a little dizziness & sadness, but felt fine until Aug 2011 after a relative died.

Since then symptoms include brain shivers, migraine headaches on right side of head, warm/hot sensations on right side of head and ears, internal vibrations, tremor, muscle twitches, strange sensations in right side of head, anxiety, nervousness, sadness, disconnected, depersonalization, numbness on left side of body at times, neck pain, muscle/rib cage pains,  just don't feel like myself :(

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  • 4 months later...

For the last three days, I have had sweating, temperatures of over 39C and pain all over after less than a week of a 5% taper. Have you guys had stuff as extreme as that? 

Started citalopram May 12, from 10 to 40 mg/d over 2 months

 

Wanted to come off in May 13 and did it too quickly: decrease from 40 to 0 mg/d over 2 weeks; WD from then onwards, increasing in intensity to be unbearable at 4 weeks later;  reinstated 10 mg/d for 2 days (WD severity halved); reinstated 20 mg/d (initial WD symptoms decreased but not gone entirely until after 8 weeks)

 

Started 5--7% taper: Aug 13: 19 mg/d, mild WD on day 3; thereafter none notable; Nov 13: 18 mg/d, no WD; Dec 13: 17 mg/day, no WD for 3 weeks, then (at Christmas) tearfulness; Jan 14: 16.7 mg/d, Apr 14: 15.7 mg/d, Jun 14: 14.5 mg/d; Jul 14: 13.5 mg/d (6.9% reduction), Aug 14: 12.5 mg/d (7.4% reduction)

 

Sharing experience makes a difference

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  • Moderator Emeritus

I have been having  hot flushes and profuse sweating which are different to the

menopausal flushes.

I feel nauseous and dizzy, and 'prickly' face and neck. Very uncomfortable and the

heat this summer has been intolerable for me. My temperature has remained steady

though, which I am always surprised at because I feel like I'm going to spontaneously 

combust! 

**I am not a medical professional, if in doubt please consult a doctor with withdrawal knowledge.

 

 

Different drugs occasionally (mostly benzos) 1976 - 1981 (no problem)

1993 - 2002 in and out of hospital. every type of drug + ECT. Staring with seroxat

2002  effexor. 

Tapered  March 2012 to March 2013, ending with 5 beads.

Withdrawal April 2013 . Reinstated 5 beads reduced to 4 beads May 2013

Restarted taper  Nov 2013  

OFF EFFEXOR Feb 2015    :D 

Tapered atenolol and omeprazole Dec 2013 - May 2014

 

Tapering tramadol, Feb 2015 100mg , March 2015 50mg  

 July 2017 30mg.  May 15 2018 25mg

Taking fish oil, magnesium, B12, folic acid, bilberry eyebright for eye pressure. 

 

My story http://survivingantidepressants.org/index.php?/topic/4199-hello-mammap-checking-in/page-33

 

Lesson learned, slow down taper at lower doses. Taper no more than 10% of CURRENT dose if possible

 

 

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For the last three days, I have had sweating, temperatures of over 39C and pain all over after less than a week of a 5% taper. Have you guys had stuff as extreme as that? 

 

I've now been diagnosed with a bacterial infection and am on antibiotics. Symptoms are easing. So no, persistent high temperatures seem to be not part of w/d symptoms

Started citalopram May 12, from 10 to 40 mg/d over 2 months

 

Wanted to come off in May 13 and did it too quickly: decrease from 40 to 0 mg/d over 2 weeks; WD from then onwards, increasing in intensity to be unbearable at 4 weeks later;  reinstated 10 mg/d for 2 days (WD severity halved); reinstated 20 mg/d (initial WD symptoms decreased but not gone entirely until after 8 weeks)

 

Started 5--7% taper: Aug 13: 19 mg/d, mild WD on day 3; thereafter none notable; Nov 13: 18 mg/d, no WD; Dec 13: 17 mg/day, no WD for 3 weeks, then (at Christmas) tearfulness; Jan 14: 16.7 mg/d, Apr 14: 15.7 mg/d, Jun 14: 14.5 mg/d; Jul 14: 13.5 mg/d (6.9% reduction), Aug 14: 12.5 mg/d (7.4% reduction)

 

Sharing experience makes a difference

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  • 2 months later...

Sweating

 

While on Effexor one of the nasty side efects was profuse sweating.

In withdrawal, I lost the natural capacity to sweat;another bizarre symptom of this condition.

Now, at 15 months I am sweating again...

Anyone can relate to this?

 

PS A quite good day today regarding symptoms.... ^_^

 

Edited by ChessieCat
added topic title before merging with existing topic

4 years aprox. on 150mgs.Effexor for situational major depression.No AD before.
Tapered 150-0mgs in 3 months.

Tapered Quetiapine,Xanax in the last 18 months.NO med of any kind anymore.
First 3 months off acute w/d
Protracted w/d ever since.
Symptoms:Anxiety,anhedonia,insomnia,tinnitus,PSSD

04/13/2014 Awful Relapse.Recovered fairly fast.

3 years and 4 months off.

waves and windows.Very much recovered.

November 2015,health issue.Setback.
 

 

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  • Moderator Emeritus

While on Effexor one of the nasty side efects was profuse sweating.

In withdrawal, I lost the natural capacity to sweat;another bizarre symptom of this condition.

Now, at 15 months I am sweating again...

Anyone can relate to this?

 

PS A quite good day today regarding symptoms.... ^_^

 

Alex, diazepam, the benzo taper I just finished, made me sweat.

As always, LISTEN TO YOUR BODY! A proud supporter of the 10% (or slower) rule.

 

Requip - 3/16 ZERO  Total time on 25 years.

 

Lyrica: 8/15 ZERO Total time on 7 or 8 yrs.

BENZO FREE 10/13 (started tapering 7/10)  Total time on 25 years.

 

Read my intro thread here, and check the about me section.  "No matter how cynical you get, it's almost impossible to keep up." Lily Tomlin

 

 

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What I mean is that I am regaining the normal capacity to sweat...it is a good sign for me.Isn't it?

4 years aprox. on 150mgs.Effexor for situational major depression.No AD before.
Tapered 150-0mgs in 3 months.

Tapered Quetiapine,Xanax in the last 18 months.NO med of any kind anymore.
First 3 months off acute w/d
Protracted w/d ever since.
Symptoms:Anxiety,anhedonia,insomnia,tinnitus,PSSD

04/13/2014 Awful Relapse.Recovered fairly fast.

3 years and 4 months off.

waves and windows.Very much recovered.

November 2015,health issue.Setback.
 

 

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I didn't take any AD's recently, I did years ago though but I did take something called 5htp. I can tell you that this same time last year after I would play basketball every week for an hour and I barely broke a sweat. Even my teammates pointed it out and thought it was very unusual. I am an average person and not super athletic by any means.

I am not taking 5htp anymore it's been almost a year and now I finally feel like I am starting to sweat like I normally would especially during physical activity. 

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Does anyone else deal with this? Recently, I have had temps in the 95.5-96.8 range at any given point during the day. My usual temp is about 97.5. Anything higher makes me feel sick, so my body temp is naturally low, but it scares me when I take my temp and see a number like 94.7 like I did this morning. Anyone else experience this in WD?

I am off of all meds as of May 20th, 2013, after 5 weeks on Zoloft and a 4 week taper. Still experiencing: moderate anhedonia & PSSD, I am otherwise mostly healed. 

 

2.1 years off of medication. 

 

"If I walk away, don't hate me. I've got to see where the pain will take me.

 

I found no angels...I found myself."

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Is there any chance the battery in the thermometer might be low, placement off, etc.? When I started working as a nurses aide 100 years ago, we weren't allowed to write down a temp less than 96 because it was "sure" to be an error.

1st round Prozac 1989/90, clear depression symptoms. 2nd round Prozac started 1999 when admitted to dr. I was tired. Prozac pooped out, switch to Cymbalta 3/2006. Diagnosed with bipolar disorder due to mania 6/2006--then I was taken abruptly off Cymbalta and didn't know I had SSRI withdrawal. Lots of meds for my intractable "bipolar" symptoms.

Zyprexa started about 9/06, mostly 5mg. Tapered 4/12 through12/29/12

Wellbutrin. XL 300 mg started 1/07, tapered 1/18/13 through 7/8/13

Oxazepam mostly continuously since 6/06, 30mg since 12/12, tapered 1.17.14 through 8.26.15

11/06 Lithium 600mg twice daily, 2.2.14 400mg TID DIY liquid, 2.12.14 1150mg, 3.2.14 1100mg, 3.18.14 1075mg, 4/14 updose to 1100mg, 6.1.14 900 mg capsules 7.8.14 810mg, 8.17.14 725mg, 8.24.24 700mg...10.22.14 487.5mg, 3.9.15 475mg, 4.1.15 462.5mg 4.21.15 450mg 8.11.15 375mg, 11.28.15 362.5mg, back to 375mg four days later, 3.4.16 updose to 475 (too much going on to risk trouble)

9/4/13 Toprol-XL 25mg daily for sudden hypertension, tapered 11.12.13 through 5.3.14, last 10 days or so switched to atenolol

7.4.14 Started Walsh Protocol

56 years old

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This thermometer is older....been around for about 10 years. However, the thermometer does not go to "low" when it takes my temp and it works well, despite being about 10 years old.

I am off of all meds as of May 20th, 2013, after 5 weeks on Zoloft and a 4 week taper. Still experiencing: moderate anhedonia & PSSD, I am otherwise mostly healed. 

 

2.1 years off of medication. 

 

"If I walk away, don't hate me. I've got to see where the pain will take me.

 

I found no angels...I found myself."

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Some of them are like that. The one I use right now is giving temps in the 94's which is clearly not correct by touching the child's skin.

1st round Prozac 1989/90, clear depression symptoms. 2nd round Prozac started 1999 when admitted to dr. I was tired. Prozac pooped out, switch to Cymbalta 3/2006. Diagnosed with bipolar disorder due to mania 6/2006--then I was taken abruptly off Cymbalta and didn't know I had SSRI withdrawal. Lots of meds for my intractable "bipolar" symptoms.

Zyprexa started about 9/06, mostly 5mg. Tapered 4/12 through12/29/12

Wellbutrin. XL 300 mg started 1/07, tapered 1/18/13 through 7/8/13

Oxazepam mostly continuously since 6/06, 30mg since 12/12, tapered 1.17.14 through 8.26.15

11/06 Lithium 600mg twice daily, 2.2.14 400mg TID DIY liquid, 2.12.14 1150mg, 3.2.14 1100mg, 3.18.14 1075mg, 4/14 updose to 1100mg, 6.1.14 900 mg capsules 7.8.14 810mg, 8.17.14 725mg, 8.24.24 700mg...10.22.14 487.5mg, 3.9.15 475mg, 4.1.15 462.5mg 4.21.15 450mg 8.11.15 375mg, 11.28.15 362.5mg, back to 375mg four days later, 3.4.16 updose to 475 (too much going on to risk trouble)

9/4/13 Toprol-XL 25mg daily for sudden hypertension, tapered 11.12.13 through 5.3.14, last 10 days or so switched to atenolol

7.4.14 Started Walsh Protocol

56 years old

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I had this problem for a long time, it's only now normalizing.

"Well my ship's been split to splinters and it's sinking fast
I'm drowning in the poison, got no future, got no past
But my heart is not weary, it's light and it's free
I've got nothing but affection for all those who sailed with me.

Everybody's moving, if they ain't already there
Everybody's got to move somewhere
Stick with me baby, stick with me anyhow
Things should start to get interesting right about now."

- Zimmerman

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  • 3 weeks later...

Generally, I die from the heat all day as a result of working.  Physical Labor and this being Florida.  I can't stand the heat any more.  would love a breath of cool air.

 

I am getting flushed right now.

 

For the last two nights, I was freezing and my feet were so frozen.  I had my Westie sleep right next to me to keep my hands warm.

 

Can this happen from WD?  Or is this a menopausal symptom?  I recently swapped out compounded progesterone for the brand in the health food store.

 

As usual Confused

Intro: http://survivingantidepressants.org/index.php?/topic/1902-nikki-hi-my-rundown-with-ads/

 

Paxil 1997-2004

Crossed over to Lexapro Paxil not available

at Pharmacies GSK halted deliveries

Lexapro 40mgs

Lexapro taper (2years)

Imipramine

Imipramine and Celexa

Now Nefazadone/Imipramine 50mgs. each

45mgs. Serzone  50mgs. Imipramine

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  • 1 year later...

Since about a year ago my temp is usually 96.6-97.1 NEVER above 97.1 I was sick all last week shivering in bed and had all the symptoms that I always got with a fever but yet no fever while everyone else in my family were sick with fevers. I used to always have the normal 98.6 and since poopout/ taper it is low. Has anyone had their temperature go low like this and then normalize after WD ? I can't handle cold weather like I used to love either!!

Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg.

1/01/15 - .75 mg.

1/15/15 - .42 mg. better sleep now, hope it continues...

2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me!

3/17/15 .14 mg. Knee pain bad!

4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 

4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. 

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  • Moderator Emeritus

Not exactly an answer for you, but I get hot ears when I have depressive episodes, or adjust meds.  Strange.

2010  Fluoxetine 20mg.  2011  Escitalopram 20mg.  2013 Tapered badly and destabilised CNS.  Effexor 150mg. 

2015 Begin using info at SurvivingAntidepressants.  Cut 10% - bad w/d 2 months, held 1 month. 

Micro-tapering: four weekly 0.4% cuts, hold 4 weeks (struggling with symptoms).

8 month hold.

2017 Micro-tapering: four weekly 1% cuts, hold 4 weeks (symptoms almost non-existent).

2020 Still micro-tapering. Just over 2/3 of the way off effexor. Minimal symptoms, - and sleeping well.
Supplements: Fish oil, vitamin C, iron, oat-straw tea, nettle tea.

2023 December - Now on 5 micro-beads Effexor. Minimal symptoms but much more time needed between drops. Symptoms begin to increase.

2024 April - Updosed to 6 microbeads - immediate increase in symptoms for 4 days. Decreased to 5 microbeads.

 'The possibility of renewal exists so long as life exists.'  Dr Gabor Mate.

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Hi DLB I had this on an off during my last years off withdrawal-even in summer .I got a lot better but now during my setback I have it again.lg solida

Sept.2007 Citalopram for burn out,reverse reaction

Paroxetin 20mg,5 weeks,had to stop because of reverse reaction

after a manic episode,severe withdrawal hit after 6 weeks,

hospitalization twice,during the first 2 years withdrawal got worse and worse

disabled since

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6 years off, i still have difficult to cold and warm, before paxil, i even not knew what is cold and warm, walked in streets, never thought about,  it was not a problem, today it is a problem

for anxiety 

12 years paxil - cold turkey 1,5 month - switch celexa 1 year taper; total 13 years on brain meds 

67 years old - 9 years  med free

 

in protracted withdrawal

rigidity standing and walking, dryness gougerot-szoegren, sleep deteriorate,

function as have a lack of nerves, improving have been very little 

 

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  • 1 month later...

Wondering if anyone has had the experience of a low-grade fever that comes and goes in withdrawal. I'm familiar with the Paxil flu but couldn't find explicit reference to this particular symptom. I've always had a low body temperature (usually around 97.8) but for the past couple months I often have a temperature around 99.5 but with no other symptoms. It will disappear in a couple hours time and then come back randomly, a day or a week later.

 

I know I should see a doctor, as I have a history of hypothyroidism and other health problems that could be directly or indirectly causing this. But in the meantime, it would be comforting to hear that others have experienced this.

 

Thank you!

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i have tons of issues with internal and external temperature regulation.  it can affect my homeostasis and also my susceptibility to hot or cold in the environment.  the symptoms have been so troubling that it has been suggested that i look into a fibromyalgia doctor (for that and many other reasons) in addition to looking at what withdrawal might be causing.

 

definitely see a doctor, and try to schedule a urine test (which s/he will most probably order) for a time when you are feeling an increase in temperature.  hopefully something will show up that can point you in the direction of an issue.

 

i feel light fevers, overheating body parts (like painful eyes and a hot face), and a flu-like fatigue coming and going.  sometimes i have what feels like bordering on serotonin storm---i get rather flushed and feverish, racing thoughts and shaky body, heart trouble, etc.  not all fever symptom sets lead to that, but its a concern and i try to stay away from precipitating elements (omega-3 fatty acids, by supplement or even by meal sometimes, medical marijuana, sugar overdosing, etc).  i dont imagine that is your particular issue, but what you are describing definitely sounds like a withdrawal-related incident, given how much control the brain has over our other organs and their functioning.

 

im not a doctor and have no professional opinion, but i think it would be reasonable to count this into your symptom tree and seek outside advice to make sure theres not more you can do to manage it.  you didnt mention the fever itself being a big problem, but who knows what else is being affected at the same time.

from 2005-2012, i spent 7 years taking 17 different psychotropic medications covering several classes.  i would be taking 3-7 medications at a time, and 6 out of the 17 medications listed below were maxed or overmaxed in clinical dosage before i moved on to trying the next unhelpful cocktail.
 
antidepressants (SSRIs, SNRIs, NDRIs, tetracyclics): zoloft, wellbutrin, effexor, lexapro, prozac, cymbalta, remeron
antipsychotics (atypical): abilify, zyprexa, risperdal, geodon
sleep aids (benzos, off-label antidepressants & antipsychotics, hypnotics): seroquel, temazepam, trazodone, ambien
anxiolytics: buspar
anticonvulsants: topamax
 
i tapered off all psychotropics from late 2011 through early 2013, one by one.  since quitting, ive been cycling through severe, disabling withdrawal symptoms spanning the gamut of the serious, less serious, and rather worrisome side effects of these assorted medications.  previous cross-tapering and medication or dosage changes had also caused undiagnosed withdrawal symptoms.
 
brainpan addlepation

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I was about to start a thread about flu like/feverish symptoms after exercise. I have experienced this for several months now. even very mild exercise leaves me with a flu and mild fever for several days. really frustrating. I am 3,5 years post last dosage of Citalopram. I wonder if anyone else has experienced this and if it is related to withdrawal. I have definitely considered thyroid problems as I am sure withdrawal has caused.

Male

On Citalopram from 2008-2011 (age 19-23) for anxiety

Started on 20mg but was on 60mg at one point

Knew nothing about discontinuation and wasn't given much help from doctor

Tried stopping on my own after being stable on one pill a day (20mg)

Went horribly wrong and had to reinstate

Tried "tappering" on my own as doctor new nothing by taking half pills and skipping days

Managed to quit this way over 3 to 4 months

Had horrible reaction and began withdrawal hell

Found Paxil Progress after a month or so not understanding why symptoms wasn't going away

Mentally better but recently ran into huge fatigue problems after gradual onset. Now homebound

http://survivingantidepressants.org/index.php?/forum/3-introductions-and-updates/

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exercising tends to worsen my withdrawal symptoms in general for a period of days (oftentimes beginning the hours or day following exercise more than just immediately following).  medication and recovery can lead to thyroid damage or dysregulation, so i dont think it would be a bad idea to get some tests run if you are in a position to.

from 2005-2012, i spent 7 years taking 17 different psychotropic medications covering several classes.  i would be taking 3-7 medications at a time, and 6 out of the 17 medications listed below were maxed or overmaxed in clinical dosage before i moved on to trying the next unhelpful cocktail.
 
antidepressants (SSRIs, SNRIs, NDRIs, tetracyclics): zoloft, wellbutrin, effexor, lexapro, prozac, cymbalta, remeron
antipsychotics (atypical): abilify, zyprexa, risperdal, geodon
sleep aids (benzos, off-label antidepressants & antipsychotics, hypnotics): seroquel, temazepam, trazodone, ambien
anxiolytics: buspar
anticonvulsants: topamax
 
i tapered off all psychotropics from late 2011 through early 2013, one by one.  since quitting, ive been cycling through severe, disabling withdrawal symptoms spanning the gamut of the serious, less serious, and rather worrisome side effects of these assorted medications.  previous cross-tapering and medication or dosage changes had also caused undiagnosed withdrawal symptoms.
 
brainpan addlepation

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  • Moderator Emeritus

Several similar topics merged.

I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal...if you are lucky enough to find one.

My Introduction Thread

Full Drug and Withdrawal History

Brief Summary

Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety) Xanax PRN ~ Various other drugs over the years for side effects

2 month 'taper' off Lexapro 2010

Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal

DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms

Failed reinstatement of Lexapro and trial of Prozac (became suicidal)

May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.

Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes

Supplements which have helped: Vitamin C, Magnesium, Taurine

Bad reactions: Many supplements but mostly fish oil and Vitamin D

June 2016 - Started daily juicing, mostly vegetables and lots of greens.

Aug 2016 - Oct 2016 Best window ever, felt almost completely recovered

Oct 2016 -Symptoms returned - bad days and less bad days.

April 2018 - No windows, but significant improvement, it feels like permanent full recovery is close.

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VIDEO: Dr. Claire Weekes

 

 

 

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  • 5 months later...

Wondering if anyone has had the experience of a low-grade fever that comes and goes in withdrawal. I'm familiar with the Paxil flu but couldn't find explicit reference to this particular symptom. I've always had a low body temperature (usually around 97.8) but for the past couple months I often have a temperature around 99.5 but with no other symptoms. It will disappear in a couple hours time and then come back randomly, a day or a week later.

I had this all the time when withdrawing from Cymbalta.

  • 2,5 years of slowly tapering down Cymbalta from 60 mg. Then tried going from 8,44 mg to 1 mg in 8 days. (April 1st 2015). That's when the real hell started. Reinstated. Didn't help. I was added Ativan (2 mg 2 times a day for relentless akathisia that started with jumping Cymbalta). For years had been taking Zopitin 7,5 mg and Stilnox 10 mg for I had not been able to sleep naturally since the 1st day I started Cymbalta). Used to take Xanax occasionally.
  • All of the above were stopped cold turkey when I was hospitalized in the beginning of May 2015.
  • Prior to that I have been on and off the whole spectrum of different AD-s for 15 years (since I was 17).

My introduction.

 

Tapering:

  • Olanzapine (starting point 2,1 mg): Jan 2016  /---/ April 2018 0 mg. (From 2,1 mg to 0 mg in 1y 3mo).
  • Diazepam (starting at 5 mg) : switching to liquid May 2018;  4,6 mg (June 2018) /---/ 0 mg (Feb 2020) (From 10 to 5 - nobody knows, from 5 to 0 in 1 y 10 mo)
  • Valdoxan (starting at 25 mg): switching to liquid (Feb 2019) /---/ 0 mg (July 2020)

 

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1) Freezing cold all over and nothing would warm me up, even a heating pad turned on high setting, would not eliminate the coldness. These cold spells would last for many, many hours straight.

I am experiencing this now.

 

Back when I was tapering Cymbalta I knew I had WD symptoms when I started to sweat a lot (which I usually don't do) and the sweat smelled weirdly.

 

But now I am freezing all the time to the point when I get shivers so intense my neck muscles start cramping. Not loving this...

  • 2,5 years of slowly tapering down Cymbalta from 60 mg. Then tried going from 8,44 mg to 1 mg in 8 days. (April 1st 2015). That's when the real hell started. Reinstated. Didn't help. I was added Ativan (2 mg 2 times a day for relentless akathisia that started with jumping Cymbalta). For years had been taking Zopitin 7,5 mg and Stilnox 10 mg for I had not been able to sleep naturally since the 1st day I started Cymbalta). Used to take Xanax occasionally.
  • All of the above were stopped cold turkey when I was hospitalized in the beginning of May 2015.
  • Prior to that I have been on and off the whole spectrum of different AD-s for 15 years (since I was 17).

My introduction.

 

Tapering:

  • Olanzapine (starting point 2,1 mg): Jan 2016  /---/ April 2018 0 mg. (From 2,1 mg to 0 mg in 1y 3mo).
  • Diazepam (starting at 5 mg) : switching to liquid May 2018;  4,6 mg (June 2018) /---/ 0 mg (Feb 2020) (From 10 to 5 - nobody knows, from 5 to 0 in 1 y 10 mo)
  • Valdoxan (starting at 25 mg): switching to liquid (Feb 2019) /---/ 0 mg (July 2020)

 

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I had this problem yesterday when I was going through severe WD needing to reinstate to my previous dose. I would shiver and be cold then today a lot of sweating even though it was not too hot.

Username: quitpaxil2015 - Started antidepressants sometime in 1990. Misdiagnosed with Bipolar, but later with thyroid disease in1998 (8 years of being on several different psychiatric meds with several psychiatric hospitalizations). Total thyroidectomy in 1999. At the time, was on 85 mg of Paxil. In 2001, tried to get off Paxil and had car crash due to vertigo and w/d symptoms. Given more psychiatric meds including Prozac and Trazodone to treat SEVERE w/d from Paxil - which is the only reason I still take Paxil. Tried to taper off Paxil again in 2004  - from 25 mg to 20 mg (5 mg cuts) - had to go back on 25 mg on the 10th day of the taper due to inability to function (dizziness, vertigo, motion sickness, crying spells, depersonalization, etc). Currently on Paxil 25 mg and Trazodone 100 mg. Trying to quit Paxil in 2015. April 22, 2015 - Paxil 22.5 mg. May 13, 2015 Paxil 20 mg. June 3, 2015 - Paxil 17.5 mg. June 24, 2015 - Paxil 15 mg. Don't remember  - 12.5 mg. August 5, 2015 - Paxil 10 mg. September 16, 2015 - 7.5 mg (considering going back up - severe anxiety/panic) September 28, 2015 - back up to 10 mg. October 6, 2015  - back up to 15 mg.   :unsure:

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  • 1 month later...

Last night and tonight when I go to bed I am experiencing periods of chills and shaking....is this normal for Prozac withdrawal?

1995 - 2015 antidepressants and antianxiety medicine
Multiple failed attempts to quit/taper anti d/anti anxiety meds since 2008

June 17, 2016 began prozac bridge to get off of effexor xr, stopped effexor xr on June 24, 2016, could not tolerate prozac due to severe side effects so I had to stop it  Currently...300 mg ER of lithium, 1 mg of estradiol, 60 mg propranolol ER, Fish oil 2 x a day, Magnesium Glycinate,  zinc, vitamin c, vitamin d, NAC

 

 

 

 

 

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Yes this is normal. I had some wicked shakes while on the meds but also a few episodes of shaking while off. I also had problems with body temperature which I think is why we shake. Magnesium baths could help with this as it stabilizes your whole system.  Almost everyone on this website takes magnesium in some form. 

Was on 30mg (Lexapro) for 7-8yrs20mg for 3 months (This was my choice my Doc wanted me to drop much faster)15 mg 2week10mg 2 weeks 5 mg 1 week0 since August 24th . PPI Dexlant  30 mg taper has begun. Cutting 20% currently.  using zantac as needed.  Benzo is currently 0.10mg 

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Thanks for the reply....wonder why it really only happens when I get into bed?  How long did your shakes last? My teeth were actually tapping last night.

1995 - 2015 antidepressants and antianxiety medicine
Multiple failed attempts to quit/taper anti d/anti anxiety meds since 2008

June 17, 2016 began prozac bridge to get off of effexor xr, stopped effexor xr on June 24, 2016, could not tolerate prozac due to severe side effects so I had to stop it  Currently...300 mg ER of lithium, 1 mg of estradiol, 60 mg propranolol ER, Fish oil 2 x a day, Magnesium Glycinate,  zinc, vitamin c, vitamin d, NAC

 

 

 

 

 

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From what I understand its much more likely to happen when your trying to sleep . Your body tries to regulate temperature while sleeping thats what an old pychiatrist told me. I think he may be right but also our systems are just fragile at the moment .They would last anywhere from 5 min to 15-30 min. Its the main reason why I wanted off of Antidpressants. I was shaking alot.  I havent had an episode in awhile . since July. 

Was on 30mg (Lexapro) for 7-8yrs20mg for 3 months (This was my choice my Doc wanted me to drop much faster)15 mg 2week10mg 2 weeks 5 mg 1 week0 since August 24th . PPI Dexlant  30 mg taper has begun. Cutting 20% currently.  using zantac as needed.  Benzo is currently 0.10mg 

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