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Burning sensations from withdrawal -- skin, mouth, head, elsewhere


peggy

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Thanks, RS. It could also be that since you restricted your diet, you're not eating a food to which you have a sensitivity. Or, it could be sugar or carbs or increased folate from increased vegetable intake.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

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  • 4 weeks later...

Does anyone else have a burning face?  My seems to extend down from the back of my head over my forehead to my chin.  The burning areas move from my nose to my cheeks and up to my forehead.  Sometimes all those areas are affected along with feeling extreme tightness and numbness.  Does anyone else have this?

Is this a sign of atypical Trigeminal neuralgia?  It is so intense and causes a lot of agitation in the face.  I just want to rip my face off!  Can anyone else relate?

Mid 2014 - June 2016 (~ 2.5 yrs): sertraline 75mg. Under advice of my Pysch NP, weaned off in 1 month

Sept 2017 - Feb 2017 (6 months): Latuda (dose 20mg up to 80mg). Under advice of Psych NP, weaned off in 6 weeks (Jan - mid Feb). Tirtated down 20mg every 2 weeks.

Nov 2017 - Feb 2017 (3 months): lamictal 100mg. Abruptly taken off. This was the "wean": 100mg, 50mg, then off

Feb 2017: sertraline 150mg for 1 week to bring me out of a severe suicidal depression. Abruptly stopped due to serotonin syndrome. Tried to reinstate 50mg a week later, but the serotonin syndrome symptoms came back. Not possible to reinstate sertraline.

March 2017: remeron 7.5mg. Took one dose that knocked me out for two days. Refused to take it again

February 2017 - March 2017: Ativan 1mg. Took 5 pills total spread out over the course of 3 weeks. No longer taking it.

6/16/18 - 6/26: celexa 1.25mg

6/27/18 - 6/29: celexa 2.5mg, 6/29 had burning and agitation within 30min of dose

6/30/18 - present: celexa 1.25mg

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@Altostrata

 

I’ve been taking potassium for 30 days now and wanted to give my thoughts on whether it is helping with the burning skin. The answer is I think it is helping but I don’t know for sure.

 

I have had burning skin for over a year and it had been continuous. For the first part of the year it had gone from severe to moderate.   About a week prior to starting the potassium it had diminished yet again to the point where it was mild, but still continuous.  I started the potassium and it continued to decrease and about a week after starting the potassium it was mild but intermittent, and then the good news, it went to the point where I had nothing at all. No burning skin for a few days.  So the question is was that the potassium or was it just the continuation of the downward curve? I wish I had a definitive answer for this question.

 

I did a taper 22 days after starting the potassium and the burning skin returned however it was not as bad as prior tapers. I have burning skin now but it is mild and intermittent. I am ten days into this present taper so I’ll see what happens in the next week.

 

So to recap, I think it's helping but I don't know for sure. I bought a sixty-day supply of potassium so I will check in again in thirty more days.

 

I am not a health professional in any way.  I do not give medical advice.   Discuss any decisions about your medical care with a professional medical practitioner.

 

NEW INFORMATION FOR GABAPENTIN TAPER

April 29, 2022 900 mg to 800 mg (11%), May 29, 2022 800 to 700 mg (12.5%), June 20, 2022 700 to 650mg (8%), July 20, 2022 650 to 575 (12%), August 20,  575 to 500 (13%),  Sept 20, 2020 500 to 475mg (5%) Nov 7, 2022 475 to 425 (11%), Nov 21, 2022 500mg

Medications: Gabapentin, Prednisone 1.5mg a day, Cortisol Inhaler daily. 

HISTORY FOR ZOLOFT TAPER

Feb. 2016 to June 2016  - Was on 150mg Zoloft.  Put on Gabapentin at 900mg a day in 2016 due to antidepressant withdrawal. 

Quit Zoloft (Sertraline) June  2016,  reinstated 50mg of Zoloft July 2016.  From July 2016  to October 2016 went from 50 mg down 2.3 mg. I up-dosed in November 2016 to 12.5 mg. Held there until January 2017 when I started a much slower taper.

STARTING SENSIBLE  ZOLOFT TAPERING USING GUIDELINES FROM THIS SITE

Dec. 10 2016  - switched to Liquid Zoloft (Sertraline) @ 12.5 mg.   Jan. 4, 2020 1.875 mg (6.3%). Jan. 25, 2020 1.75 mgFeb. 29, 2020 1.625mg (7.10%).  Apr. 4, 2020 1.5 mg.  May 9, 2020 1.375 mg.  June 6, 2020 1.25 mg. (9.10%).  July 4, 2020 1.125 mg. (10%).  August 15, 2020 1.0 mg.  Oct 24, 2020 .875 mg.  Nov. 28, 2020 .75mgJan 16, 2021 .685mg (8.7%).  Feb 13, 2021 .62mg. March 12, 2021 .56mg.  May 1, 2021 .375mg.  May 29, 2021 .25mg. June 26, 2021 .0125mg. July 25, 2021 .065mg. August 22, 2021 .048mg.  October 2, 2021 .043mg.  October 10, 2021 .038mg.  October 23, 2021 .035mg.  October 30, 2021 .032mg.  Nov. 13, 2021 .030 mg.  Dec 4, 2021 .0285 mg.  Dec 11, 2021 .0265 mg. Dec 18, 2021 .0246 mg. Dec 25, 2021 .023mg. Jan 1, 2022. 0 mg. OFF COMPLETELY

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Thank you for the update.  Very good to hear you have found relief.  My burning is now mostly in  my feet.   Eating a banana a day.  My main symptoms now are agitation, toxic sleep (wake in panic) and depression.   

 

All the best to you.  

 

Dave

Dabhob33

- Pristiq  25mg July 20, 2017 / 100mg November 29, 2017.  Last dose 25mg  December 20, 2017  - 28 yrs on antidepressants. Only other drug currently on is Lithium - 675mg.

- 1st stint on benzos (100mg Librium) November 1, 2015 to January 1, 2017 (rapid taper)

- 2nd stint on benzos (20mg Valium)  started May 1 2017.  Reinstated due to Librium rapid taper.  Tapered 100mg pristiq in 4 weeks (Jan 2018).  Currently tapered down to 10.5mg Valium where I began holding on February 12, 2018 due to rough patch. Using Ashton Method pill taper.  

Updose valium to 12mg on Feb 28, 2018 / Prozac .5mg March 3 - March 5, 2018 / March 13, 2018 - valium drop of .5 to 11.5mg

Valium now 10mg as of May 23, 2018

Lithium 150mg August 8, 2017; 900mg August 23, 2017  Tested on July 13, 2018  .60 mmol/L result.  Normal range is .60-1.00 mmol/L

 

Took doxylamine sporadically (between 12mg and 25mg).  Last taken on July 5, 2018.  Don’t plan on continuing to take.  

 

I was given a 500mg dose of Levaquin for a UTI (ended up not having a UTI).   Only one dose, but wreaked havoc on me.   Is it still affecting me?

 

 
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5 minutes ago, RachelSusan said:

@Altostrata

 

I’ve been taking potassium for 30 days now and wanted to give my thoughts on whether it is helping with the burning skin. The answer is I think it is helping but I don’t know for sure.

 

 

I have had burning skin for over a year and it had been continuous. For the first part of the year it had gone from severe to moderate.   About a week prior to starting the potassium it had diminished yet again to the point where it was mild, but still continuous.  I started the potassium and it continued to decrease and about a week after starting the potassium it was mild but intermittent, and then the good news, it went to the point where I had nothing at all. No burning skin for a few days.  So the question is was that the potassium or was it just the continuation of the downward curve? I wish I had a definitive answer for this question.

 

 

I did a taper 22 days after starting the potassium and the burning skin returned however it was not as bad as prior tapers. I have burning skin now but it is mild and intermittent. I am ten days into this present taper so I’ll see what happens in the next week.

 

 

So to recap, I think it's helping but I don't know for sure. I bought a sixty-day supply of potassium so I will check in again in thirty more days.

Thank you for the update.  Very good to hear you have found relief.  My burning is now mostly in  my feet.   Eating a banana a day.  My main symptoms now are agitation, toxic sleep (wake in panic) and depression.   

 

All the best to you.  

 

Dave

Dabhob33

- Pristiq  25mg July 20, 2017 / 100mg November 29, 2017.  Last dose 25mg  December 20, 2017  - 28 yrs on antidepressants. Only other drug currently on is Lithium - 675mg.

- 1st stint on benzos (100mg Librium) November 1, 2015 to January 1, 2017 (rapid taper)

- 2nd stint on benzos (20mg Valium)  started May 1 2017.  Reinstated due to Librium rapid taper.  Tapered 100mg pristiq in 4 weeks (Jan 2018).  Currently tapered down to 10.5mg Valium where I began holding on February 12, 2018 due to rough patch. Using Ashton Method pill taper.  

Updose valium to 12mg on Feb 28, 2018 / Prozac .5mg March 3 - March 5, 2018 / March 13, 2018 - valium drop of .5 to 11.5mg

Valium now 10mg as of May 23, 2018

Lithium 150mg August 8, 2017; 900mg August 23, 2017  Tested on July 13, 2018  .60 mmol/L result.  Normal range is .60-1.00 mmol/L

 

Took doxylamine sporadically (between 12mg and 25mg).  Last taken on July 5, 2018.  Don’t plan on continuing to take.  

 

I was given a 500mg dose of Levaquin for a UTI (ended up not having a UTI).   Only one dose, but wreaked havoc on me.   Is it still affecting me?

 

 
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  • Administrator

Very interesting, RachelSusan and Dave. Well, at least the potassium doesn't seem to hurt.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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  • 3 weeks later...

Yeah, burning feet are totally annoying. They burn especially at night, when I put them into bed. I have had these burning sensations for over 9 months with no windows, when they stop, I will be well underway with recovery

November 2014 - September 2015: Zoloft 50 mg, Trilafon 4mg, clonazepam 1mg
October 2015 - September 2016: Effexor 75 mg
September 2016 - January 2017: Effexor 150 mg
Stopped Effexor in March 2017 after tapering under medical supervision
The doctor I've now found is an expert in withdrawal from ADs
Persistent withdrawal syndrome since July 2017: Prozac 10 mg, clonazepam 0.5 mg, to cope with it.
December 2017 -  withdrawing from Prozac, 10 mg every 2 days
Drug free since January (?) 2018
 
Symptoms: pins and needles, burning skin sensations, PSSD, OCD, mood swings (a lot), malaise (a lot), muscle spasms, voice in my conscience. 

Doing not so bad, but I want to be the person I was. 
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  • 4 months later...

Hi I am wondering if anyone suffers from flushing/burning /stinging in the face /ears? I've had on and off redness. And burning in my right cheek and ear. Started around a year after WD and I'm three years off

 

Current age - 29

 

At Ages 16- 20 Celexa 40 mg 

 

2014- September through February of 2016 ( 18 months) Celexa 20 mg

 

Tapered for Several months

 

Celexa free since February of 2016

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  • 4 months later...

Does anyone get cold burning? I get this feeling I can only describe as cold burning in my limbs and body. If you get it, you’ll know what I mean.

1999:  Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse  reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months.                     2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects)

2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg  (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram  2mg ,  approx 16th Sept 4mg , approx 25th Sept 6mg held.  2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg 7 May 22 2.31mg 17/09/2023 0.8mg

(Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts)

I did not die, and yet I lost life’s breath
- Dante
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55 minutes ago, India said:

Does anyone get cold burning? I get this feeling I can only describe as cold burning in my limbs and body. If you get it, you’ll know what I mean.

 

I had burning skin & i get hot cold flushes in my body. Limbs seem to be most affected. The burning sensation died down after 6 or so months.

Paroxatine - 2004-2006

Effexor XR 75mg 2006 - 2016 (Discontinued Feb 2016) - Withdrawal for 6 months.

Effexor XR 75mg Re-instated June 2017 (Discontinued Dec 2017)

Effexor XR 2-3 mg Re-instated March 10 2018 - 1 day (Didn't work)

Effexor XR 2mg Reinstated (Again) May 11 2018. 6 Beads

July 2018 - 0.0mg of Effexor. Zilch

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On 3/27/2019 at 3:11 AM, India said:

Does anyone get cold burning? I get this feeling I can only describe as cold burning in my limbs and body. If you get it, you’ll know what I mean.

 

Yeah, i do! Cold burning.. And hot burning, it switches but always constant over ALL my upper body. 

2008 - Setralin 150mg, CT after 1 year. 
2015 - Venlafaxin 150mg. CT after 1 month. 
2016 - Brintellix 100mg, CT after  2 years.
2018 

January - Mirtazapin 25 mg, CT after 1 month. 
Mars - Setralin 100 mg. CT after 1 month. 
August- Lexapro 5 mg. CT after 1 month, adverse reaction. Stopped all benzo, sleeping pills here too. 

2019 

January - Took fluconazol and itraconazol, strong reaction, like bein floxed. 

January - Used progesteronecream 200mg a day for 1 month. Severe reaction month 2 so i stopped (maybe built up cream in tissues?) 

April - Took plan-B, this messed me up the most. 

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  • 1 month later...

Do any of you have signs of the burning?  Are your hands or feet red?  I have burning from going off Paxil (but then reinstating) and then tapering zoloft (and then reinstating).  Also, have any of you reinstated with reduction in withdrawal symptoms??

- for 16 years took: morning: lexapro 10 mg, wellbutrin xl 150mg; evening: paxil 2.5 mg, zoloft 25mg

- feb 22:  tried to change and decreased paxil to 1.25 and zoloft to 50 and experienced eurphoria and possible mania, needed less sleep, etc.

- decreased zoloft back to 25 over 2 weeks and decreased paxil to 0

- withdrawal started a few days later and increased paxil back to 1.25 - stabilized but flat after a couple days (eventually got paxil back to 2.5)

- also took levaquin for possible prostatitis

- never really improved and we tried deplin, different formulations of generics and brand names

- Mid June 2019 lost the ability to sleep completely

- 7/1/19 cold turkeyed in hospital off 2.5 paxil and shortly thereafter 25 zoloft, titrated lithium up to 1200 but settled at 900mg

- 8/10/19 tried 12.5 lexapro for 2 weeks with disastrous sensitivities 

- 8/26/19 and currently: morning: 10 mg lexapro, 150 wellbutrin xl; evening: lithium 900 mg (Took klonopin for wknd)
9/20 tapered to 780mg lithium from 900mg - hypomania almost immediately, tinnitus, dizziness, pain, burning, freezing cold

- 9/29 reinstated to 900mg lithium

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Does anyone got horrible feet pain after going off mirtazapine or other AD?  Trying gabapentin but its barelly helping.

 

May - october 2017 - Mirtazapine from 7.5 - 12mg mg for insomnia

May - october 2017 Lyrica 100mg a day.

October-november 2017 - both mirt and Lyrica, or one of them went paradoxical, exteme vertigo after Lyrica. Cut down Lyrica to 3x25mg a day, same vertigo, CT Lyrica. Insomnia developed severe on 12 MG mirtazapine, reduced to 7.5, still insomnia, reduced to 3.75 still.insomnia. CT mirt. 

November 2017 - present burning feet, pins and needles, muscle spasms, myoclonus limbs, head, bugs crawling my head burning hands, left side worst. Ears cracking sensation.

May 2019 - put on gabapentin 100mg 4xday to counteract insomnia

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  • ChessieCat changed the title to Burning skin, burning feet

Its starting to help better after couple of days. Thank you

May - october 2017 - Mirtazapine from 7.5 - 12mg mg for insomnia

May - october 2017 Lyrica 100mg a day.

October-november 2017 - both mirt and Lyrica, or one of them went paradoxical, exteme vertigo after Lyrica. Cut down Lyrica to 3x25mg a day, same vertigo, CT Lyrica. Insomnia developed severe on 12 MG mirtazapine, reduced to 7.5, still insomnia, reduced to 3.75 still.insomnia. CT mirt. 

November 2017 - present burning feet, pins and needles, muscle spasms, myoclonus limbs, head, bugs crawling my head burning hands, left side worst. Ears cracking sensation.

May 2019 - put on gabapentin 100mg 4xday to counteract insomnia

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No. I do get restless leg or something like that where I feel like I have to flex my leg muscles

September 2014 to July 2015 - 20 mg Lexapro, 30mg Mirtazipine

 

August 2015 to November 2016- 10mg Lexapro, 30 mg Mirtazipine

 

Nov. 2016 to Nov. 2017 - 10mg Lexapro, 3.75 mg Mirtazipine

 

Nov. 2017 to Mach 2018 - 5mg/2.5mg Lexapro, 0mg Mirtazipne

 

Mach 2018 to Dec. 2018 - 0mg Lexapro, 0mg Mirtazipne

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On 5/15/2019 at 4:41 AM, MRothbard said:
On 5/15/2019 at 4:41 AM, MRothbard said:

No. I do get restless leg or something like that where I feel like I have to flex my leg muscles

 

 

Yeah i get that, I call it 'leg tension'. I find it really unpleasant, and often worry (probably unduly) that it'll turn into full blown akathisia. I seem to have some weeks where I get a lot and others where its not really there. How often do you get it? 

 

On 5/10/2019 at 8:14 PM, Mirthazard said:

Does anyone got horrible feet pain after going off mirtazapine or other AD?  Trying gabapentin but its barelly helping.

 

I used to get what i called boiling 'water foot' where it felt like my right foot (always only my right) was being filled up with hot water. Ive not had it for 5 months or so though. 

Citalopram. Briefly early twenties, no ill effects seemingly. Don't remember dose.

 

Sertraline on and off for ten years.  I was ignorant and started and stopped frequently. Doses of 50, 75 and 100. I can not recall/did not record dates prior to 2018.

 

JANUARY 2018: Last period of use was was 150mg of sertraline on 14/01/18  (which triggered extreme depression and anxiety that never settled, amongst other symptoms). I then tapered to 100mg in March (15/03/18), then down to 75mg in April(01/04/18) , 50mg later (11/04/18) 25mg in May  (16/05/18),  and was at 0mg in June (02/06/18).

 

Mirtazapine 15mg 01/08/18- 02/10/18, 15mg (6 weeks at 15mg the two week taper). - caused deeply unpleasant waves of extreme anxiety, depression, zombie state and mania.

 

Still on 40mg of Propranolol twice a day since April 2018. Supplements: Fish oil, Magnesium, Vit B6

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22 hours ago, VincentV said:

Yeah i get that, I call it 'leg tension'. I find it really unpleasant, and often worry (probably unduly) that it'll turn into full blown akathisia. I seem to have some weeks where I get a lot and others where its not really there. How often do you get it? 

 

Not too much lately. about once a week for 10 minutes or so.

September 2014 to July 2015 - 20 mg Lexapro, 30mg Mirtazipine

 

August 2015 to November 2016- 10mg Lexapro, 30 mg Mirtazipine

 

Nov. 2016 to Nov. 2017 - 10mg Lexapro, 3.75 mg Mirtazipine

 

Nov. 2017 to Mach 2018 - 5mg/2.5mg Lexapro, 0mg Mirtazipne

 

Mach 2018 to Dec. 2018 - 0mg Lexapro, 0mg Mirtazipne

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On 5/10/2019 at 1:14 PM, Mirthazard said:

Does anyone got horrible feet pain after going off mirtazapine or other AD?  Trying gabapentin but its barelly helping.

 

Yes really badly

 

On 5/6/2019 at 11:37 AM, thecowisback said:

what is si?

hang on in there - we will all recover one day, i'm sure xxxx

 

April 2011 - citalopram 20 mg

April 2018 - tapered in 4 weeks

Nov 2018 - reinstated 20 mg

Stopped 8 days later bad reaction

November 5 2020 - reinstated citalopram 0.5mg. Increase to 1mg

November 10 2020 - stopped citalopram.  

December 8 2020 - reinstate 2.5mg citalopram. Stayed on until December 17

December 20 2020 - discontinue citalopram again 

Dec 2020 - start ativan for akathisia 

Nov 2020 to Jan 2021 - tried low dose Seroquel, Risperidone, Luvox, Zoloft and Prozac. just added symptoms no benefit

Feb 2021 - ativan went paradoxical. landed in hospital. cold turkeyed.

Totally drug free since Feb 21, 2021

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On 5/20/2019 at 9:46 PM, Daisygirlsk said:

Yes really badly

 

 

Daisy you were on mirtazapine?

May - october 2017 - Mirtazapine from 7.5 - 12mg mg for insomnia

May - october 2017 Lyrica 100mg a day.

October-november 2017 - both mirt and Lyrica, or one of them went paradoxical, exteme vertigo after Lyrica. Cut down Lyrica to 3x25mg a day, same vertigo, CT Lyrica. Insomnia developed severe on 12 MG mirtazapine, reduced to 7.5, still insomnia, reduced to 3.75 still.insomnia. CT mirt. 

November 2017 - present burning feet, pins and needles, muscle spasms, myoclonus limbs, head, bugs crawling my head burning hands, left side worst. Ears cracking sensation.

May 2019 - put on gabapentin 100mg 4xday to counteract insomnia

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  • Moderator Emeritus

@Mirthazard  I've merged your topic into a similar one.  We also have a topic about restless legs: non-drug treatments for restless legs.

2001–2002 paroxetine

2003  citalopram

2004-2008  paroxetine (various failed tapers) 
2008  paroxetine slow taper down to

2016  Aug off paroxetine
2016  citalopram May 20mg  Oct 15mg … slow taper down
2018  citalopram 13 Feb 4.6mg 15 Mar 4.4mg 29 Apr 4.2mg 6 Jul 4.1mg 17 Aug 4.0mg  18 Nov 3.8mg
2019  15 Mar 3.6mg  21 May 3.4mg  26 Dec 3.2mg 

2020  19 Feb 3.0mg 19 Jul 2.9mg 16 Sep 2.8mg 25 Oct 2.7mg 23 Oct 2.6mg 24 Dec 2.5mg

2021   29 Aug 2.4mg   15 Nov 2.3mg

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Not sure if its restless legs, the pain and pin and needles sensation is in my feet only, altough i have jerks in my whole body, legs to, while asleep.

May - october 2017 - Mirtazapine from 7.5 - 12mg mg for insomnia

May - october 2017 Lyrica 100mg a day.

October-november 2017 - both mirt and Lyrica, or one of them went paradoxical, exteme vertigo after Lyrica. Cut down Lyrica to 3x25mg a day, same vertigo, CT Lyrica. Insomnia developed severe on 12 MG mirtazapine, reduced to 7.5, still insomnia, reduced to 3.75 still.insomnia. CT mirt. 

November 2017 - present burning feet, pins and needles, muscle spasms, myoclonus limbs, head, bugs crawling my head burning hands, left side worst. Ears cracking sensation.

May 2019 - put on gabapentin 100mg 4xday to counteract insomnia

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Since gradually tapering amitryptilline I was on it for migraine since January 2019 from 25 mg to 2.5 mg ... a burning sensation over my right forearm  which did not let me sleep that day it was 2 April I said I am gonna stop since I am on 2.5 mg....I had some melatonin so I can be able to sleep ... little I know I opened the door to hell the very next night I reinstated amitryptilline to10 mg then I was fine for a month  but I thought that burning feeling was because of the melatonin and then I after a month I was again at 2.5 mg I cutting the 10 mg pill in 4 small pieces it so I guess it was not really 2.5 mg since some of those were less or more ... since May 15 I was gone into swirl of symptoms from burning feet burning skin burning trunk and back itchy scalp and severe anxiety and incapacitating insomnia  I went though a battery of test from mri ultrasound Nerve conduction test all kind of autoimmune test let alone got problems and fast weightloss... but the problem of burning skin tingling stinging doesn’t seem to go away it lessened ain’t but I comes in waves days worse than others I wonder for how long what’s is the best treatment to alllievatr all this .//:I can not wear shoes anymore thin socks and flip flops.  And  the skin of my palms and soles became thin dry and super red my whole body skin backs flaky itchy tender to touch 

any similar experience 

I was on amitryptilline since August 2017 on 25 kGs but I was dropping to 10 mg every now and then. When my headaches were not coming back but it is since January 2019 that I decided to drop 10 mg all th way 2.5 mgs until April 2019  and then I got. Burning sensation in my left forearm then I went back to 10 mg for few days and then back to 5 mg and then 2.5 mg in less than a month and exactly on 15 of May burning sensation started in my feet and palms I was so terrified by my physical symptoms I started having anxiety and zero sleep at night intried 2 weeks ago to reinstate to 25 mgs recommendation from my neurologist but I got 10’” times worse so I stopped totally since 4 weeks

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On 5/29/2019 at 3:28 AM, armide said:

Since gradually tapering amitryptilline I was on it for migraine since January 2019 from 25 mg to 2.5 mg ... a burning sensation over my right forearm  which did not let me sleep that day it was 2 April I said I am gonna stop since I am on 2.5 mg....I had some melatonin so I can be able to sleep ... little I know I opened the door to hell the very next night I reinstated amitryptilline to10 mg then I was fine for a month  but I thought that burning feeling was because of the melatonin and then I after a month I was again at 2.5 mg I cutting the 10 mg pill in 4 small pieces it so I guess it was not really 2.5 mg since some of those were less or more ... since May 15 I was gone into swirl of symptoms from burning feet burning skin burning trunk and back itchy scalp and severe anxiety and incapacitating insomnia  I went though a battery of test from mri ultrasound Nerve conduction test all kind of autoimmune test let alone got problems and fast weightloss... but the problem of burning skin tingling stinging doesn’t seem to go away it lessened ain’t but I comes in waves days worse than others I wonder for how long what’s is the best treatment to alllievatr all this .//:I can not wear shoes anymore thin socks and flip flops.  And  the skin of my palms and soles became thin dry and super red my whole body skin backs flaky itchy tender to touch 

any similar experience 

Hi armide,

I have many of the same symptoms.

burning hands,feet,back,forearms,lower legs....also tingling and numbness in feet and legs.

also have trouble wearing shoes and socks at times,feet burn so bad.

itchy scalp,too.

 

I've been drug free 5 years.

went on Prozac 1994-99,60mg.poopout ct  back on 2001-2002,prozac weekly 2002,not working,Effexor 75 mg.?2003-mar.2004 gaining weight 8wk. taper,wellbutrin 150 mg.mar. -may 2004 ctmedfree til july 2005 back to Prozac gaining weight again,back on wellbutrin jan.2006150-300 mg.bad constipation.also was taking aygestin(hormone)perimenopausal irregular bleeding.back on Prozac around sept,?2006,hysterectomy jan30.2007(adenomyosis)off&on Prozac til 2009,citalopram about 1 mo, April 2010 no effect,Effexor again may -mar, 2011.ct,Prozac aug,-dec, 2011 &sept-nov 2012,paroxetine oct,23 2013-may 4 2014 20 mgs.tapered 6 wks.-failed RI in Oct.2014-in protracted WD.started 10 mgs. Fluoxetine May 25 2021 .Stopped fluoxetine May 2022 at 5 mgs.

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hey there 

may I ask you which medication were? you on 

I was on amitryptilline since August 2017 on 25 kGs but I was dropping to 10 mg every now and then. When my headaches were not coming back but it is since January 2019 that I decided to drop 10 mg all th way 2.5 mgs until April 2019  and then I got. Burning sensation in my left forearm then I went back to 10 mg for few days and then back to 5 mg and then 2.5 mg in less than a month and exactly on 15 of May burning sensation started in my feet and palms I was so terrified by my physical symptoms I started having anxiety and zero sleep at night intried 2 weeks ago to reinstate to 25 mgs recommendation from my neurologist but I got 10’” times worse so I stopped totally since 4 weeks

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3 minutes ago, armide said:

hey there 

may I ask you which medication were? you on 

the last one was paxil

went on Prozac 1994-99,60mg.poopout ct  back on 2001-2002,prozac weekly 2002,not working,Effexor 75 mg.?2003-mar.2004 gaining weight 8wk. taper,wellbutrin 150 mg.mar. -may 2004 ctmedfree til july 2005 back to Prozac gaining weight again,back on wellbutrin jan.2006150-300 mg.bad constipation.also was taking aygestin(hormone)perimenopausal irregular bleeding.back on Prozac around sept,?2006,hysterectomy jan30.2007(adenomyosis)off&on Prozac til 2009,citalopram about 1 mo, April 2010 no effect,Effexor again may -mar, 2011.ct,Prozac aug,-dec, 2011 &sept-nov 2012,paroxetine oct,23 2013-may 4 2014 20 mgs.tapered 6 wks.-failed RI in Oct.2014-in protracted WD.started 10 mgs. Fluoxetine May 25 2021 .Stopped fluoxetine May 2022 at 5 mgs.

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Oh yeah I know that one quite well my father was on it for like 4 years it was quite difficult for him to come out  I had to sleep in the same room so I make sure he doesn’t hurt himself during violent nightmares  can’t recall much about the term of his symptoms but I guess it was a very hard medication to come off

my problem is that burning sensation that never ceases it comes in waves my shrink just put me on pristiq and Latuda to allievqte my anxiety and my severe insomnia but I haven’t started yet really scared to death  I am in zoplicone  and Xanax .25 mg whenever I am anxious 

how are you dealing with the burning and tingling stinging sensations if I may ask 

I was on amitryptilline since August 2017 on 25 kGs but I was dropping to 10 mg every now and then. When my headaches were not coming back but it is since January 2019 that I decided to drop 10 mg all th way 2.5 mgs until April 2019  and then I got. Burning sensation in my left forearm then I went back to 10 mg for few days and then back to 5 mg and then 2.5 mg in less than a month and exactly on 15 of May burning sensation started in my feet and palms I was so terrified by my physical symptoms I started having anxiety and zero sleep at night intried 2 weeks ago to reinstate to 25 mgs recommendation from my neurologist but I got 10’” times worse so I stopped totally since 4 weeks

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On 5/22/2018 at 1:20 AM, TryingToHoldOn said:

Does anyone else have a burning face?  My seems to extend down from the back of my head over my forehead to my chin.  The burning areas move from my nose to my cheeks and up to my forehead.  Sometimes all those areas are affected along with feeling extreme tightness and numbness.  Does anyone else have this?

Is this a sign of atypical Trigeminal neuralgia?  It is so intense and causes a lot of agitation in the face.  I just want to rip my face off!  Can anyone else relate?

Hey there 

I have that too on my face mostly sometimes one cheek is hotter than other ...it circulates to the back of my. neck and my back it is extremely annoying get worse with exertion and anxiety 

I was on amitryptilline since August 2017 on 25 kGs but I was dropping to 10 mg every now and then. When my headaches were not coming back but it is since January 2019 that I decided to drop 10 mg all th way 2.5 mgs until April 2019  and then I got. Burning sensation in my left forearm then I went back to 10 mg for few days and then back to 5 mg and then 2.5 mg in less than a month and exactly on 15 of May burning sensation started in my feet and palms I was so terrified by my physical symptoms I started having anxiety and zero sleep at night intried 2 weeks ago to reinstate to 25 mgs recommendation from my neurologist but I got 10’” times worse so I stopped totally since 4 weeks

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sometimes they're worse than other times...Epsom salts baths are soothing.

just pray it all goes away someday. 🙏

On 5/30/2019 at 2:34 PM, armide said:

how are you dealing with the burning and tingling stinging sensations if I may ask

 

went on Prozac 1994-99,60mg.poopout ct  back on 2001-2002,prozac weekly 2002,not working,Effexor 75 mg.?2003-mar.2004 gaining weight 8wk. taper,wellbutrin 150 mg.mar. -may 2004 ctmedfree til july 2005 back to Prozac gaining weight again,back on wellbutrin jan.2006150-300 mg.bad constipation.also was taking aygestin(hormone)perimenopausal irregular bleeding.back on Prozac around sept,?2006,hysterectomy jan30.2007(adenomyosis)off&on Prozac til 2009,citalopram about 1 mo, April 2010 no effect,Effexor again may -mar, 2011.ct,Prozac aug,-dec, 2011 &sept-nov 2012,paroxetine oct,23 2013-may 4 2014 20 mgs.tapered 6 wks.-failed RI in Oct.2014-in protracted WD.started 10 mgs. Fluoxetine May 25 2021 .Stopped fluoxetine May 2022 at 5 mgs.

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I am in month 27 of withdrawal from 5 month effoxor use. I recently started to expereince extreme burning feet. and lot of fatigue .. I am unable to function as of the last 3 days. Its so horrible . How long will this take to improve

mild depression: took effaxor XR 75mg From nov 2016 - feb 2017 for 4 months

PSSD : Since then along with continuing withdrawal.

cognition problems, headache , fatigue, concentration problems, anhedonia, PSSD ( erection 2/10, Libido1/10, orgasm 4/10) 

no significant improvements in any withdrawal symptoms or any PSSD symptoms

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  • 3 weeks later...
On 3/3/2016 at 7:46 AM, peggy said:

ha ha Fresh... my dog would NEVER get off my bed then - she would be snuffling at the bags..

 

i am positive now that the burning feet is a withdrawal effect for me and interestingly is one of the only physical one i get regularly - the other being muscle twitching as i am going off to sleep.. i took a 5% reduction the other day and two days later my feet are burning.  

 

@peggy Hi Did that burning eventually go away once you adjusted (in order to taper again)?  I switched name brand to generic lexapro and I got the burning.  I have never “seen it through” as I always end up having to reinstate.  Does it settle down?  Just want some hope.  Thanks!

 

Edited by ChessieCat
reduced font

- for 16 years took: morning: lexapro 10 mg, wellbutrin xl 150mg; evening: paxil 2.5 mg, zoloft 25mg

- feb 22:  tried to change and decreased paxil to 1.25 and zoloft to 50 and experienced eurphoria and possible mania, needed less sleep, etc.

- decreased zoloft back to 25 over 2 weeks and decreased paxil to 0

- withdrawal started a few days later and increased paxil back to 1.25 - stabilized but flat after a couple days (eventually got paxil back to 2.5)

- also took levaquin for possible prostatitis

- never really improved and we tried deplin, different formulations of generics and brand names

- Mid June 2019 lost the ability to sleep completely

- 7/1/19 cold turkeyed in hospital off 2.5 paxil and shortly thereafter 25 zoloft, titrated lithium up to 1200 but settled at 900mg

- 8/10/19 tried 12.5 lexapro for 2 weeks with disastrous sensitivities 

- 8/26/19 and currently: morning: 10 mg lexapro, 150 wellbutrin xl; evening: lithium 900 mg (Took klonopin for wknd)
9/20 tapered to 780mg lithium from 900mg - hypomania almost immediately, tinnitus, dizziness, pain, burning, freezing cold

- 9/29 reinstated to 900mg lithium

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  • 3 weeks later...
On 5/7/2019 at 11:40 PM, Frankgrimes said:

Do any of you have signs of the burning?  Are your hands or feet red?  I have burning from going off Paxil (but then reinstating) and then tapering zoloft (and then reinstating).  Also, have any of you reinstated with reduction in withdrawal symptoms??

Hi there do you still have red hand and feet I am going through the same it is killing me 

I was on amitryptilline since August 2017 on 25 kGs but I was dropping to 10 mg every now and then. When my headaches were not coming back but it is since January 2019 that I decided to drop 10 mg all th way 2.5 mgs until April 2019  and then I got. Burning sensation in my left forearm then I went back to 10 mg for few days and then back to 5 mg and then 2.5 mg in less than a month and exactly on 15 of May burning sensation started in my feet and palms I was so terrified by my physical symptoms I started having anxiety and zero sleep at night intried 2 weeks ago to reinstate to 25 mgs recommendation from my neurologist but I got 10’” times worse so I stopped totally since 4 weeks

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  • 1 month later...

I need some encouragement I’m about at my ropes end. I just started last Thursday getting the burning feeling on head and now throughout my body. This symptom will be what breaks me for sure. Any advice to relieve symptoms? 

Lexapro (Generic) 20mg I believe a year started in June of 2012

lexapro (Generic) 10mg till 2017 

Lexapro (Generic) 5 mg from December 2016 to August of 2018

Lexapro 5 mg (Generic) 5mg every other day from September 2018 to November 15th,2018

Stopped Generic of Lexapro November 15th, 2018

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  • 3 weeks later...

Hello everybody,

 

So a couple of years ago i started Lexapro 20mg. The first 2 years i had no problems at all, then after about 2 years i started to get neck pain, and not just some pain but really intense nerve pain that made it hard to even move my neck. I went to the docter and he kept saying it was just stress and i should not worry so much. After walking around with the neck pain and ruling out everything else i decided to quit the Lexapro because i was suspecting it to be the cause of the problem. I then made a stupid mistake by quitting cold Turkey but atleast one thing was very clear: after 2 days the neck pain was for the most part gone, after a couple of weeks i got hit with the discontinuation syndrome and the neck started to irritate as well but never so bad as on Lexapro. So last year i started Venlafaxine because the docter prescribed it to me after i was doing very bad, (which i now know was because of the withdrawal syndrome) I felt better within 3 days on 37mg, after a week i went op to 75mg and oh my god my neck started to burn like never before!! I was sweating from just trying to move my neck. So i decided to lower the dose to 37mg and once again the neck was feeling better within 2 days. So 6 months ago i quit Venlafaxine after a short taper, the first 6 weeks i was doing oke, then after 6 weeks i got hit once again with the withdrawal syndrome. So after about 6 months i had enough and i reinstated the Venlafaxine at a very small dose 6mg! After about 3 days i got flue like symptoms and my neck started to burn again!! The flu was gone after one night but the neck pain stayed, since the neck pain was to much i decided to quit but now after about 3 days the neck pain is still here, im starting to get really frustrated because i cant live with this. Normally the problem Always went away after lowering or quitting the drug however now its still here. I like to make clear that i have no other issues, i was actually starting to feel better on 6mg but decided to stop because of the neck pain. Now the question i like to ask: Is there really no one that has any idea what could have caused this problem? Its not a withdrawal issue since the medication started it in the first place. Could it be serotonin syndrome? Or could there be an underlaying issue? My blood tests where Always fine. It scares me that it doesnt go away now because this is seriously making me think about ending it all. I cant believe that in this day and age no one has any idea what could have caused this. Obviously i will make an appointment with my doctor and i want to be checked by a neurologist.

2012: Started Lexapro

2017: October, Quit Lexapro cold Turkey.

2018 February started Venlafaxine 37,5mg because of discontinuation problems (Which psychiatrist didnt realised). After 2 weeks upped dose to 75mg. Could not move my neck anymore and burning pain. March: Decreased dose to 37,5mg felt better after that.

2018: November, started tapering Venlafaxine because of annoying side effects.

2019: February, quit Venlafaxine.

 

 

 

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  • 1 month later...
On 8/7/2019 at 7:59 PM, Erikka said:

I need some encouragement I’m about at my ropes end. I just started last Thursday getting the burning feeling on head and now throughout my body. This symptom will be what breaks me for sure. Any advice to relieve symptoms? 

When did you stop your ssri 

i got this burning which has been constant since May 2019 without interruption nothing relieves it except for which knocks me out then when I wake up the burning will be less until I start My day when I eat it gets worse specially carbohydrates or sugar or meat I lost 10 kGs in these 5 months i went though many test and health anxiety because of it still enduring 

I thnkk you to watch your diet and stress 

cool water bath are good for like an hour and then the burning wakes up again 

I was on amitryptilline since August 2017 on 25 kGs but I was dropping to 10 mg every now and then. When my headaches were not coming back but it is since January 2019 that I decided to drop 10 mg all th way 2.5 mgs until April 2019  and then I got. Burning sensation in my left forearm then I went back to 10 mg for few days and then back to 5 mg and then 2.5 mg in less than a month and exactly on 15 of May burning sensation started in my feet and palms I was so terrified by my physical symptoms I started having anxiety and zero sleep at night intried 2 weeks ago to reinstate to 25 mgs recommendation from my neurologist but I got 10’” times worse so I stopped totally since 4 weeks

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Thanks armide! I have been off my SSRI for almost 11 months- I did do a 1x dose in May of 2019 and burning started at beginning of August and comes and goes. It’s no fun! 

Lexapro (Generic) 20mg I believe a year started in June of 2012

lexapro (Generic) 10mg till 2017 

Lexapro (Generic) 5 mg from December 2016 to August of 2018

Lexapro 5 mg (Generic) 5mg every other day from September 2018 to November 15th,2018

Stopped Generic of Lexapro November 15th, 2018

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  • 4 weeks later...
On 5/18/2014 at 7:42 AM, Finn said:

Has anyone had a burning sensation in the face--like being flushed. It's hot to the touch too. What could this be?

Hi Finn- Yes! For the last week or so I have what feels like a flush of heat in my face. It lasts for less than a minute and it's not unpleasant, just really weird. Tends to wake me up a couple of times each night. I thought I might be going through "the Change" but it coincides with the beginning of tapering off effexor, which I started a month ago. Pleased to hear someone else is experiencing this.

 

37.5 effexor XR commenced approx 2004

Commenced taper October 2019 as recommended by this site. It worked! 

NO DRUGS October 2021-April 2022.

Commenced 25mg Valdoxan April 2022 (deterioration of mood/sleep from about Dec 2021)- happy to be on this for now.

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