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Tension, pain, twitches, excruciating spasms in muscles and joints

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NowhereMan76

What are you experiencing DLB?

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btdt

I did not mean to imply you were wanting meds. In fact, the helpfulness of physiotherapy gives you a hint of sorts. My mother, who is 90+, knits or crochets every day and has for years, has arthritis pains in her hands but has very little of the joint deformation usually seen with arthritis. A lot of the stuff in wd, all you can do is wonder because it is not readily diagnosable.

I do wonder is some of it would be diangnosable if we had the right tests at the right time... if we were well enough to make it.  I especially wonder about brain zaps and EEG I am sure the brain zaps I was having every time I moved my eyes would have been picked up on an EEG.. I wonder about other things too like EMG for the muscles that are constantly contracted.  

There was once a person on pp who had a theme sorry I know that is the wrong word but I can't think of the right one.. 

saying?  

attached to her thread it said something like this

 

"whether you can find something depends on the test you use to look for it..."

 

That is the gist of it.. if they would believe that would be a start but as "psych patients we start down a few rungs on the ladder" there is a thread about it don't make me hunt for it please... I am lazy... 

peace

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UnfoldingSky

WI you are always so kind to me, thank you.  I hope you and your Mom find something that works, for all of our sakes! 

 

I just tried a herb I take sometimes for sleep and I forgot it could help a bit with joint issues.  Seemed to make the knee pain a little less awful the past few days.  Unfortunately though with regards to sleep it turned on me the next day...First night I got decent sleep, then last night I didn't sleep at all until the sun came up.  So I'm back at square one I guess...

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Kar

So I'm reading this and wondering if during withdrawal is it normal for muscles/ tendons to get real sore easily from straining that would never cause it previously??

That is certainly what I experience DLB.

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IndigoEarthling

I'm having pretty bad spine pain, numbness and tingling after going cold turkey off ssris I had been on for 10 years. It feels like my nerves are inflamed and it gets worse when I am super anxious. I have an MRI next week- I'm sure they won't find anything wrong and will chalk it up to arthririts or anxiety.

 

Anyone have luck with a doctor or tests indicating any damage?

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ikam

When I stopped effexor I had the ongoing problems with various pains (my knee, pelvic pain). I had MRI in both occasions, nothing there...I got lots of painkillers, but eventually physio helped.

At present I have had problems with paresthesia, and again physio is most helpful...

When I felt anxious it increased the sensation...but the physiotherapist assesed me and I believe in his formulation. I have very tense muscles in my back and WD added extra strain to this. Namely I have tenssion in the muscles that deal with fight and flight response...

 

I think good formulation and trust in a health practioner with set of exercices ans some meditation are the most helpful, at least for me...

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UnfoldingSky

My update on this symptom--it has gradually improved since I stopped taking a herb that may have caused it.  Or at least "unmasked" it.  It's a bit disappointing as the herb worked really, really well for brain fog.  Maybe it's just a coincidence but the knee pain came on right when I started it and as it was interfering with sleep I simply can't afford to continue taking the herb on the chance it's the cause, even with the significant improvements in brain fog.

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WiggleIt

Oh, Sky, what limbo! Bear with me as I make a suggestion and feel free to scrap it if you think it's too risky. Herbs can be really potent, but is there another more gentle food source that you could eat that might give some of the good stuff from the herb, but be less potent?

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WiggleIt

Also, what was the herb?

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Nathalou

In retrospect, I do believe my knee problem is related to Zoloft. It began in august 2014, last month of a too rapid taper. I had been on a quick powerwalk and the next day my knee was lovked, I couldn't walk for a week. I got better but I still iften get pain in that knee. I cannot see another link than the AD.

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Prestorb

I am also having knee soreness that doesn't seem to go away or let up much. I have had this in the past with cold weather, but not for as long as this has lasted. I think a saw some posts where folks had made a magnesium lotion that seemed to help with the pain. I'll see what else I can find on that. Mine feels like my knee is swollen and I also sometimes have a burning sensation, it's very strange. I am in good health and not overweight, so I tend to attribute it coming off the Paxil too quickly.

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mammaP

M

 

My update on this symptom--it has gradually improved since I stopped taking a herb that may have caused it.  Or at least "unmasked" it.  It's a bit disappointing as the herb worked really, really well for brain fog.  Maybe it's just a coincidence but the knee pain came on right when I started it and as it was interfering with sleep I simply can't afford to continue taking the herb on the chance it's the cause, even with the significant improvements in brain fog.

Maybe have a break from it then try again with a small amount, it is a shame if it helped with the brain fog and may be ok with smaller amounts.  

 

I was fit and walked everywhere, was a keen gardener and DIY freak. Fitted bathrooms and kitchens in my houses and did all the decorating.

Then I went down the psych rabbit hole and within months my knee was so swollen and sore. An x ray showed arthritis which couldn't have been caused by the drugs but I believe the drugs made it suddenly start to deteriorate. Within 2 years I was walking with a stick,  then crutches and a wheelchair.Since then I had a hip replaced, knee replaced and about to have the other hip replaced. My shoulders are arthritic, so are my hands and feet. The doctors were astounded at the speed of the degeneration in my joints and I never thought it had anything to do with the drugs until I came here! Now I am convinced all the drugs and withdrawals are responsible. 

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UnfoldingSky

Oh, Sky, what limbo! Bear with me as I make a suggestion and feel free to scrap it if you think it's too risky. Herbs can be really potent, but is there another more gentle food source that you could eat that might give some of the good stuff from the herb, but be less potent?

 

Good idea, but I don't honestly know if there is a substitute.  I'd have to do more research, it's a herb I honestly know very little about.

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UnfoldingSky

Also, what was the herb?

 

I am not sure if I should put it up here as I'd be worried someone might try it and get problems from it.  It's pretty potent and I don't know enough about it to feel comfortable mentioning it. 

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UnfoldingSky

Oops, up-thread is a bit confusing--I took two different herbs, one helped with sleep and seemed to help with the knee issue too but also caused panic attacks later on. 

 

The other seemed to bring out the knee problem though helped with brain fog.

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UnfoldingSky

In retrospect, I do believe my knee problem is related to Zoloft. It began in august 2014, last month of a too rapid taper. I had been on a quick powerwalk and the next day my knee was lovked, I couldn't walk for a week. I got better but I still iften get pain in that knee. I cannot see another link than the AD.

 

This is like what happened to me.

 

I did some knee bends and then it came on.  But then I took a herb at the same time so maybe it's from the herb.  If it's from the knee bends though it's so absurd as it wasn't like I did a major work-out or anything.  So frustrating!

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UnfoldingSky

I am also having knee soreness that doesn't seem to go away or let up much. I have had this in the past with cold weather, but not for as long as this has lasted. I think a saw some posts where folks had made a magnesium lotion that seemed to help with the pain. I'll see what else I can find on that. Mine feels like my knee is swollen and I also sometimes have a burning sensation, it's very strange. I am in good health and not overweight, so I tend to attribute it coming off the Paxil too quickly.

 

Hi Prestorb, sorry you are having this too.  Good idea re the magnesium, I couldn't tolerate it straight up but there's yet another herb I can take that I can tolerate that has a lot of magnesium.  So if it does act up again I'll try that, and report back.  Hope yours let's up too or the mag helps you.

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UnfoldingSky

M

 

My update on this symptom--it has gradually improved since I stopped taking a herb that may have caused it.  Or at least "unmasked" it.  It's a bit disappointing as the herb worked really, really well for brain fog.  Maybe it's just a coincidence but the knee pain came on right when I started it and as it was interfering with sleep I simply can't afford to continue taking the herb on the chance it's the cause, even with the significant improvements in brain fog.

Maybe have a break from it then try again with a small amount, it is a shame if it helped with the brain fog and may be ok with smaller amounts.  

 

I was fit and walked everywhere, was a keen gardener and DIY freak. Fitted bathrooms and kitchens in my houses and did all the decorating.

Then I went down the psych rabbit hole and within months my knee was so swollen and sore. An x ray showed arthritis which couldn't have been caused by the drugs but I believe the drugs made it suddenly start to deteriorate. Within 2 years I was walking with a stick,  then crutches and a wheelchair.Since then I had a hip replaced, knee replaced and about to have the other hip replaced. My shoulders are arthritic, so are my hands and feet. The doctors were astounded at the speed of the degeneration in my joints and I never thought it had anything to do with the drugs until I came here! Now I am convinced all the drugs and withdrawals are responsible. 

 

Hi mamma, thanks for the suggestion.  Unfortunately though I only took a small amount so it looks like this herb may be out for me. 

 

And your situation is so upsetting!  With me it also felt like I had some kind of sudden onset arthritis that was severe.  What have they done to us with these drugs??? Is there anything you can do that makes the remaining joint issues feel better?  

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Prestorb

I take 400 mg of chelated magnesium at night for sleep, but it hasn't helped my knees at all. You can get this from of Mg at any vitamin store, it doesn't upset my stomach at all but some do have that problem.

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ikam

I have had lots of joint problems and various pain that I associate either with side effects or/and withdarwal. I think this is generally related to the inflamation...a. present I suffer from hands pain, especially towards the morning. It seems like arthritis...i only hope it will go away...it is also difficult when I drive/holding steering wheel...

In the past I would take painkillers, this led to restarting ADs...

I think tumeric and bromelain are good for inflamation.

I found that phisiotherapy was very helpful in the past...

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UnfoldingSky

I take 400 mg of chelated magnesium at night for sleep, but it hasn't helped my knees at all. You can get this from of Mg at any vitamin store, it doesn't upset my stomach at all but some do have that problem.

 

Sorry to hear it doesn't help for your knee issue.

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UnfoldingSky

I have had lots of joint problems and various pain that I associate either with side effects or/and withdarwal. I think this is generally related to the inflamation...a. present I suffer from hands pain, especially towards the morning. It seems like arthritis...i only hope it will go away...it is also difficult when I drive/holding steering wheel...

In the past I would take painkillers, this led to restarting ADs...

I think tumeric and bromelain are good for inflamation.

I found that phisiotherapy was very helpful in the past...

 

I get some pain occassionally in my hands.  And an overall stiffness that is worse in the winter, must have something to do with blood flow.  I hope it doesn't get worse.

 

Have you tried the tumeric? 

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ikam

 

I have had lots of joint problems and various pain that I associate either with side effects or/and withdarwal. I think this is generally related to the inflamation...a. present I suffer from hands pain, especially towards the morning. It seems like arthritis...i only hope it will go away...it is also difficult when I drive/holding steering wheel...

In the past I would take painkillers, this led to restarting ADs...

I think tumeric and bromelain are good for inflamation.

I found that phisiotherapy was very helpful in the past...

 

 

I get some pain occassionally in my hands.  And an overall stiffness that is worse in the winter, must have something to do with blood flow.  I hope it doesn't get worse.

 

Have you tried the tumeric?

No, I haven't. Need to buy it. I hear that bromelain is also good...

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katieb

Please can anyone tell me if they have had muscle and shoulder pain as a withdrawal symptoms. IT is a painful burning and aching pain with muscle tightness also across my neck.THis keeps me away at night to the point of no sleep and then exhausted in the day only to be kept awake all night the next night.I have had this now for a month with no relief.I am currently on 3 mg of paroxatine (very long and slow withdrawl)Also I have a strange feeling g as if all my muscles in my body are moving all the time from my feet to my head.Im hoping that this will go away.

Katieb

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DLB

Yeah been there with the neck and it lasted 3 months. Horrible pain. Now i have bad leg weakness and sore knees. The neck pain does go. I also get the twitching moving muscles. All normal withdrawal stuff. How did you taper??

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katieb

Hi.DlBMy drops are a 1.7% drop every 4 weeks sometimes I have to stay longer depending on symptoms. I feel every small drop.But this is the first time I have had serious pain like this.I often cry through the night.15Years on this drug and many attempts to quit but didn't realise all those times before my body was in wd.Just told by the doctor that I needed to go back on the medication.Thankfully I am a little bit more educated now. Where are you up to now?

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katieb

Hi.DlBMy drops are a 1.7% drop every 4 weeks sometimes I have to stay longer depending on symptoms. I feel every small drop.But this is the first time I have had serious pain like this.I often cry through the night.15Years on this drug and many attempts to quit but didn't realise all those times before my body was in wd.Just told by the doctor that I needed to go back on the medication.Thankfully I am a little bit more educated now. Where are you up to now?

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DLB

wow you did go slow. I am at .14 mg after a 14 month taper from 10 mg. I got that neck pain at about 7 mg. I cant believe the amount of pain this stuff can cause.I had this same leg and knee thing every time i tried quiting before and on startup so it is definately ssri related.

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katieb

I have recently started to get knee and hip pain too but nothing like the pain I am in at the moment.It is driving me up the wall especially with lack of sleep.I hope it goes soon.Dont relish the thought of another 2 months.

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DLB

Hang in there it will go but its gonna take time. I thought it would never end it was like the worst stiff neck i ever had and it kept me up at night also. Now im just up at night from withdrawal and this is worse. Is your knee pain at top of kneecap? That is where mine is and it hurts going down stairs. Just know that the neck pain will go no matter how bad it feels now because when it happened to me i researched it and found dozens of people with the same thing and was reassured it will go away and it did.

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brassmonkey

Hi Katie-- welcome to SA.  Intense muscle pain is pretty common in paxil WD especially when you get to the lower doses.  I have read a lot of peoples complaints about it when they reach the 3mg range.  Luckily I didn't get the tight burning shoulders but I did get a lot in the legs and lower back.  It will go away on its own given time.  I had some luck with plain old aspirin, magnesium citrate and a strong hot shower massage.  I also used gentle yoga and constant stretching to help keep it loose.  Other than that I haven't found much of anything to really help.  Sorry I couldn't be more positive. Hope that helps some.

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katieb

Thanks all for your replies.I was feeling quite alone after the closure of the other site and its taking a while for me to find my way around this one due to feeling pants and not sleeping and thinking straight. It's nice to know I'm not alone.

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stan

my case, 12 years paroxetine , it begin with burning shoulders, espescially right, then slowly all muscles pain, joints, spine, ribcage, fore-arms, all body, until today 6 years, with weakness fatigue,  a kind of fibromyalgia induced by paxil paroxetine, i could not pull a market chariot during years, today i can, but still disabled, the muscles play a part in my off balance, all this is linked in brain

before taking paxil, i was healthy, had nothing

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katieb

Oh Stan that sounds horrible.I also feel old and like my body hurts every day was healthy before paxil. Everyday something .

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katieb

Something I forgot to mention that accompanies all this is a real heavy feeling in my arm and pins and needles which last for weeks, then go and come back again. Does this sound familiar to anyone?

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Fresh

Hi Katie , welcome to the site.

 

Can you tell us a bit more about the sensations that "feel as if all my muscles are moving all the time , from my feet to my head"  ?

 

Did you have this on your previous dose of 4.7mg?   Or in the past?

 

This topic may be moved to the Introduction section , where it will your personal thread.

 

Good to have you here ,  Fresh

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