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I have noticed that those who have only psychological effects recover much better than those who start experiencing physiological side effects

tanit

By tanit
in Symptoms and self-care

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tanit Newbie

tanit

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Posted

those who have muscle problems, electric shock, myoclonus,joint problem ,fibromyalgia seem to take years to recover

''I''took paxil for 30 days (did`nt felt  a lot of side effects when ''I'' stopped it)

after two weeks I developed the worst headache I ever felt (some sort of permanent migraine, tinnitus..).

after a month of headaches a decided to take another pill to see.I took a pill because i was thinking that it  was may be withdrawal and it caused me a what my doctor called `some thing like serotonin syndrome`` which never improved and caused me severe muscle problems...

in retrospect I know that it was not a serotonin syndrome , my receptor were very stimulated and reacted in weird ways

 

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WiggleIt Rookie

WiggleIt

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I don't care if it takes years, as long as I do recover. I've read some pretty incredible things in the Recovery thread, including people doing physically as badly as me, but they HAVE recovered.

 

Tanit, I know you are scared, and so am I, but please stop making assertions that are so negative and that truly scare everyone else on this site. The fact is that I have noticed the same thing, but I really didn't need to hear my worst fears affirmed by someone else. I still want to think I can be a miracle.

 

Please don't counterargument my statement with something negative. And please refrain from posting new subjects with terrifying headlines.

 

I know you are a good person and that you are scared. Please, try to focus on the good possible outcomes, instead of on the bad possible outcomes.

*I'm not a doctor and don't give medical advice, just personal experience
**Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not
-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014

-All meds were Rxed off-label for an autoimmune illness.  It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage.  All med tapers/cold turkeys directed by doctors 

-Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine

-Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey)

-Lorazepam 1 mg per night during 2011
-Lorazepam 1 mg per month in 2012 (or less)

-Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week

-Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs 

-First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened

-Two weeks after I got off all meds, I developed full-blown TD.  Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.

-Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned
-Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat
-Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged
-7 years off: Huge improvements, incl. improved dystonia

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btdt Newbie

btdt

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Posted

those who have muscle problems, electric shock, myoclonus,joint problem ,fibromyalgia seem to take years to recover

 

I have not really noticed that I guess you are more aware than I am.  I am one of the those who had all those problems and am also one who has protracted withdrawal Thank you for the observation I am not sure it is scientifically sound but it sure would be a decent area to study should any science money fall from the sky into the lap of an interested scientist.  I am all for study of this condition as only with study will we learn anything and convince the establishment of our plight... perhaps save some other from following in our foot steps.  

Certainly science could do better by us withdrawal people than it has to date as there has been very little research done to date.  I am more than willing to be a lab rat as in historic understanding.. I will never take another pills ... but I am sure a lot of people who have been in wd would jump at the chance to participate in research to put an end to this suffering for the human race.  

 

So I can say for me this theory is holding true.. there may be other factors that are just as important we could not know that without study. 

It is nice to see your brain still works :) 

peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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UnfoldingSky Contributor

UnfoldingSky

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I knew someone who had shocks on discontinuing a drug and they were gone in a month and then they were okay.

 

I also know someone who had a severe dyskinesia reaction on a drug, that halted as soon as the drug was stopped.

 

If people get these issues and have them clear up quickly they are not that likely to show up here. 

I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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btdt Newbie

btdt

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See ... :) so many variables we need true study... a real research team. 

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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Altostrata Grand Master

Altostrata

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I do not know if the assertion in the topic title is true: "I have noticed that those who have only psychological effects recover much better than those who start experiencing physiological side effects."

 

I haven't noticed that, and I would not presume that prolonged psychological effects are less of a problem.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Wildflower0214 Newbie

Wildflower0214

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those who have muscle problems, electric shock, myoclonus,joint problem ,fibromyalgia seem to take years to recover

I think we have to be careful about making blanket statements about people healing from WD. Everyone is different. We all have different biochemical makeups, personalities, life experiences, family lives, cultures...etc. All of these things affect healing. Also, we all have different stressors that arise during WD. Some people are able to eliminate these and it beneifits them I believe. Others are forced to care for children...etc. All of this seems to play a part.

 

There are no timetables as far as I have seen. I just don't think broad sweeping generalizations are very helpful in situations like this. There are too many variables at play.

2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor.....

5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses.

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btdt Newbie

btdt

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I do think if we had a some careful study we may be better able to predict what comes next for different people... who may get protracted... could lead to why some get it and some don't then on to how to prevent it.. 

 

If we never look we will never see anything ... 

I for one feel like we have opportunity to classify some things if we really wanted to.  

 

For instance it has come to somebodies head that long term use may have something to do with withdrawal... why no clue.  

Going on and off Ads many times is more likely to cause wd... 

Tapering helps withdrawal even is something that somebody noticed.. and took heed to. 

 

If we had the right understanding of what to look for or questions to ask.. we could do some of this here however it is not the focus of this site.  

If Tanit wanted to open a site to gather such information online I certainly would add my experience. 

I recall at least one study on Ads which was done by gathering information online. 

 

This is how I feel about it... it is important but how do we do it... who would do it?

 

If you were going to do this Tanit certain parameters would need to be established like which physical affects qualify... what is healing much better is it less intensity of withdrawal symptoms ... is it shorter healing time... ect. 

 

By the way I for one think pharma is on sites like this and has gather more information than they will ever need on people in withdrawal.  I also think they have taken what they learned from us about the ssri snri withdrawal side effects and used it to make other drugs... for instance sugar regulating meds... yep I think so... that is just one. 

 

I sometime feel odd man out when I want to push things like this further and others don't ... but it is who I am... and it is not likely to change. 

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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