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katieb

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I am also a pp refugee. Really glad to find this site.Ihave been doing a protracted withdrawl from paroxatine/seroxat from 20mg I am currently down to 3.10mg. I have been on and off (due to being uninformed about wd and thinking I needed to stay on because of feeling so bad after stopping)for approx 15 years .I was put on this poison for a single panic attack in my 20s.Iam going very slow and it will take as long as it takes.

Been taking paroxatine for approx 15 years.Tried a few times yo stop but failed. Am currently on 3.5mg liquid

Jan 2016 been slow tapering paroxatine and i am currently at 2.9 mg and last drop was 5 weeks ago.

Started to feel awful about 3 weeks ago with brain ???? , shakes, blurred vision and dizzyness. ..

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Hi Katie,

 

Welcome  :)

 

I was put on paroxetine almost 15 years ago for panic attacks too.

 

I'm now withdrawing from escitalopram very slowly. I'm sure that you'll receive lots of support here.

 

Take good care.

 

Tilly x

1999 - 2004 Paroxetine 20mg  -> 2004 - 2007 Citalopram 20mg -> 2007 -  short term Trazedone use (insomnia) -> 2007 - 2009 Fluoxetine 20mg  ->

2009 - Jan 2012 Citalopram 20mg  (Spring / Summer 2012 protracted withdrawal & related agoraphobia) -> 2012 - September Restarted Citalopram - unbearable start up effects. Discontinued in under 1 week -> Oct 12 -   October 2014 Escitalopram - 10mg prescribed. Started on 5mg and worked up to 10mg in 2.5mg increments  -> Oct 2014  - 5mg; 30/03/15 2.5mg; 15/04/15 3.5mg; 20/05/15 2.9mg;  19/09/15 2.8mg; 30/10/15 2.7mg; 13/11/15 2.6mg. Holding until March.

Diet:  mostly pescatarianl & lots of veg. Weekly offal for b vitamins.  Turmeric, nigella seeds, avocados, apple cider vinegar, coconut products daily. Lots of fluids: water, lemon juice, coconut water, herbal & green tea (decaffeinated).

Supplements: vitamin C 4000mg, Omega 3 fish oil - high DPA & EHA, vitamin E 400iu, vitamin D3 5000mg (Winter only - from sun in Spring / Summer), probiotics.

Current Symptoms: chronic fatigue, erratic sleep, extreme photophobia, eye floaters, noise sensitivity, tinnitus, cognitive & speech difficulties, dizziness, irregular gait, poor co ordination, severe facial and upper body muscle tension, head and neck pressure.

Coping Strategies: good nutrition, cooking, gardening & growing my own food, cycling, dancing, yoga, photography, sewing & creative pursuits, self massage, pampering, meditation, journalling, nature, cuddling cats & humans, laughter & humour, gratitude, self care, aromatherapy, audio books, word games & believing in myself, my potential and my future.

 

"Everything I need is within me" - Shakti Gawain

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Hi.Tilly.How was your wd from paroxatine and how long ago?Did you have a lot of Bizzare symptoms?

Been taking paroxatine for approx 15 years.Tried a few times yo stop but failed. Am currently on 3.5mg liquid

Jan 2016 been slow tapering paroxatine and i am currently at 2.9 mg and last drop was 5 weeks ago.

Started to feel awful about 3 weeks ago with brain ???? , shakes, blurred vision and dizzyness. ..

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Hi Katie. I cross tapered over to citalopram around 10 years ago. I have had pretty bizarre symptoms from all of the SSRI medications I've been on!

1999 - 2004 Paroxetine 20mg  -> 2004 - 2007 Citalopram 20mg -> 2007 -  short term Trazedone use (insomnia) -> 2007 - 2009 Fluoxetine 20mg  ->

2009 - Jan 2012 Citalopram 20mg  (Spring / Summer 2012 protracted withdrawal & related agoraphobia) -> 2012 - September Restarted Citalopram - unbearable start up effects. Discontinued in under 1 week -> Oct 12 -   October 2014 Escitalopram - 10mg prescribed. Started on 5mg and worked up to 10mg in 2.5mg increments  -> Oct 2014  - 5mg; 30/03/15 2.5mg; 15/04/15 3.5mg; 20/05/15 2.9mg;  19/09/15 2.8mg; 30/10/15 2.7mg; 13/11/15 2.6mg. Holding until March.

Diet:  mostly pescatarianl & lots of veg. Weekly offal for b vitamins.  Turmeric, nigella seeds, avocados, apple cider vinegar, coconut products daily. Lots of fluids: water, lemon juice, coconut water, herbal & green tea (decaffeinated).

Supplements: vitamin C 4000mg, Omega 3 fish oil - high DPA & EHA, vitamin E 400iu, vitamin D3 5000mg (Winter only - from sun in Spring / Summer), probiotics.

Current Symptoms: chronic fatigue, erratic sleep, extreme photophobia, eye floaters, noise sensitivity, tinnitus, cognitive & speech difficulties, dizziness, irregular gait, poor co ordination, severe facial and upper body muscle tension, head and neck pressure.

Coping Strategies: good nutrition, cooking, gardening & growing my own food, cycling, dancing, yoga, photography, sewing & creative pursuits, self massage, pampering, meditation, journalling, nature, cuddling cats & humans, laughter & humour, gratitude, self care, aromatherapy, audio books, word games & believing in myself, my potential and my future.

 

"Everything I need is within me" - Shakti Gawain

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I never know what I am going to wake up to????Good luck with your current taper.

Been taking paroxatine for approx 15 years.Tried a few times yo stop but failed. Am currently on 3.5mg liquid

Jan 2016 been slow tapering paroxatine and i am currently at 2.9 mg and last drop was 5 weeks ago.

Started to feel awful about 3 weeks ago with brain ???? , shakes, blurred vision and dizzyness. ..

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Same here, Katie. We are on the final stretch of it all. Things will improve. Good luck with your taper too  :)

1999 - 2004 Paroxetine 20mg  -> 2004 - 2007 Citalopram 20mg -> 2007 -  short term Trazedone use (insomnia) -> 2007 - 2009 Fluoxetine 20mg  ->

2009 - Jan 2012 Citalopram 20mg  (Spring / Summer 2012 protracted withdrawal & related agoraphobia) -> 2012 - September Restarted Citalopram - unbearable start up effects. Discontinued in under 1 week -> Oct 12 -   October 2014 Escitalopram - 10mg prescribed. Started on 5mg and worked up to 10mg in 2.5mg increments  -> Oct 2014  - 5mg; 30/03/15 2.5mg; 15/04/15 3.5mg; 20/05/15 2.9mg;  19/09/15 2.8mg; 30/10/15 2.7mg; 13/11/15 2.6mg. Holding until March.

Diet:  mostly pescatarianl & lots of veg. Weekly offal for b vitamins.  Turmeric, nigella seeds, avocados, apple cider vinegar, coconut products daily. Lots of fluids: water, lemon juice, coconut water, herbal & green tea (decaffeinated).

Supplements: vitamin C 4000mg, Omega 3 fish oil - high DPA & EHA, vitamin E 400iu, vitamin D3 5000mg (Winter only - from sun in Spring / Summer), probiotics.

Current Symptoms: chronic fatigue, erratic sleep, extreme photophobia, eye floaters, noise sensitivity, tinnitus, cognitive & speech difficulties, dizziness, irregular gait, poor co ordination, severe facial and upper body muscle tension, head and neck pressure.

Coping Strategies: good nutrition, cooking, gardening & growing my own food, cycling, dancing, yoga, photography, sewing & creative pursuits, self massage, pampering, meditation, journalling, nature, cuddling cats & humans, laughter & humour, gratitude, self care, aromatherapy, audio books, word games & believing in myself, my potential and my future.

 

"Everything I need is within me" - Shakti Gawain

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  • 2 weeks later...

Hi all.Quick update.still suffering (3 months now ) with horrible joint and muscle pain and stiffness in shoulders, neck and back.Still on just over 3 ml paroxatine will drop again in 2 weeks .This is the first time I have had real pain in withdrawl and boy am I a wuss.It hurts. Hope it passes.

Been taking paroxatine for approx 15 years.Tried a few times yo stop but failed. Am currently on 3.5mg liquid

Jan 2016 been slow tapering paroxatine and i am currently at 2.9 mg and last drop was 5 weeks ago.

Started to feel awful about 3 weeks ago with brain ???? , shakes, blurred vision and dizzyness. ..

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  • Moderator Emeritus

katieb, hey.

 

just wanted to let you now i merged your update into your intro thread. we limit one thread per user to the introductions section of the site.

 

sorry you are still suffering as you are. you are not a wuss. :)

 

hang in there.

 

dave

1996 - .5mg Ativan as needed, 7.5mg Remeron daily2008 - .5mg Xanax, Ativan discontinued, Remeron continued2012 - .5mg Xanax, .25mg Ativan 3x daily, Remeron continued2/2012 - Jumped from Remeron, continued .5mg Xanax .25mg Ativan 3x daily4/2012 - Began rapid taper of .5mg Xanax .25mg Ativan 3x daily6/2012 - Jumped from Xanax and Ativan, voluntary hospitalization followed7/2012 - 2nd voluntary hospitalization, reinstated Remeron, bumped to 30mg, also given risperidone.8/2012 - discontinued risperidone, tried gabapentin, dicontinued gabapentin, Remeron 30mg continued10/2012 to current - tapered Remeron 10% every 4 to 6 weeks (sometimes more time) using liquid compound12/2014 - 2mg Remeron 1/16/2015 - 1.9mg Remeron 8/1/2015 -1.6mg Remeron - 03/1/2016 - 1.5mg Remeron - 1/2/2017 1.3mg - 5/7/2017 1.2mg - 5/13/2017 - syringe size change - 6/8/2017 - 1.1mg - 7/10/2017 - 1mg - 9/1/2017 - 0.9mg - 10/22/2017 - 0.8mg - 11/22/2017 - 0.7mg - 2/2/2018 - 0.6mg - 3/13/2018 - new compound pharmacy - 5/20/2018 - 0.5mg - 8/31/2018 - 0.4mg - 11/16/2018 - 0.3mg - 12/24/2018 - 0.2mg - 4/1/2019 - 0.1mg - 5/1/2019 - .05mg - 0mg achieved 2019-06-15. 🤞

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  • Administrator

Welcome, katieb.

 

Given you have these withdrawal symptoms, you may want to hold at your current level of paroxetine and not stress your nervous system with a decrease for a while.

 

There's no shame in holding off on a taper -- this may help you deal with the last leg down.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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  • 1 month later...

After holding and then last month did my next drop to 1.53 ml I am still in pain in shoulders,neck and back. Terrible muscle aches and feeling bruised.This makes it 4 months now. Has anyone suffered this for so long?

Been taking paroxatine for approx 15 years.Tried a few times yo stop but failed. Am currently on 3.5mg liquid

Jan 2016 been slow tapering paroxatine and i am currently at 2.9 mg and last drop was 5 weeks ago.

Started to feel awful about 3 weeks ago with brain ???? , shakes, blurred vision and dizzyness. ..

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Forgot to say I am taking fish oil and having magnesium naths

Been taking paroxatine for approx 15 years.Tried a few times yo stop but failed. Am currently on 3.5mg liquid

Jan 2016 been slow tapering paroxatine and i am currently at 2.9 mg and last drop was 5 weeks ago.

Started to feel awful about 3 weeks ago with brain ???? , shakes, blurred vision and dizzyness. ..

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  • 2 weeks later...

* topic moved from symptoms

 

This is starting to get me down.It seems like the last 2 years of my withdrawl have been non stop misery.I am always having symptoms bad enough to interfere with my life.From horrible muscle pain to jaw pains , to nausea to blurred vision to numbness and anesthesia in limbs to tooth pain to head pain etc etc.I never seem to get a break.As soon as one thing goes away up comes another immediately to take its place. Things seem harder to deal with when there is no break in between.
Is this part of the course?
I'm not sur how much more of this I can take.

Been taking paroxatine for approx 15 years.Tried a few times yo stop but failed. Am currently on 3.5mg liquid

Jan 2016 been slow tapering paroxatine and i am currently at 2.9 mg and last drop was 5 weeks ago.

Started to feel awful about 3 weeks ago with brain ???? , shakes, blurred vision and dizzyness. ..

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 sorry to hear you're having such a tough time .  

have you been tapering from the drug in those 2 years ? 

On and off prozac from 2010 -2014 .

Several failed fast tapers and reinstatements .

Cold turkey : March  2014 .

-----------------------------------------

took lysanxia 40 mg a day for almost a year
november -14- 2018 weaned to 30 mg
november -26- 2018 weaned to 20 mg
symptoms that got better : fatigue
current symptoms : severe anxiety
one rescue dose (10 mg ) december -15 -2018
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Yes I have been slow tapering the past 2 years from 7mg currently at 1.53ml which is just over 3 mg. It's got harder as I get lower.

Been taking paroxatine for approx 15 years.Tried a few times yo stop but failed. Am currently on 3.5mg liquid

Jan 2016 been slow tapering paroxatine and i am currently at 2.9 mg and last drop was 5 weeks ago.

Started to feel awful about 3 weeks ago with brain ???? , shakes, blurred vision and dizzyness. ..

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I have constant issues as well and my med was paroxetine. Atm the leg pain is unbearable. I am actually taking percocet and it is still hurting and the muscles are jumping everywhere. Can't even take care of my kids. But when my legs were in a window I had pain elsewhere or dizziness or nausea of headaches etc.... I have so many issues I am sure others think I am a hypochondriac.

2002-put on amitryptiline for fibromyalgia. 10mg.2004-stopped abruptly. Didn't think it helped.2006 approx.-put on Paxil for mild anxiety 20 mg.2007 upped to 40 mg. not sure why.2011- tapered from 40 to 10. went nuts and went back to 20mg2014- tapered from 20mg to 0 from April to The end of June.current meds- Metformin(type 2 diabetic) and low dose aspirin.Take multi vitamin and vit b12, vit. D and magnesium. 5 months off Paxil. Still suffering.recently added 1.2mg of Paxil to alleviate withdrawals.(Nov 30)Dropped to .9mg because having symptoms from reinstatement.(dec 23)<p>taper to .76mg-.8mg (Feb 3) approx. weight .010 to about .008-.009 on scale.
.6mg (march 19th.) .5mg(April 19th)
.4mg(April 27th)
.2 (June 27th)

0mg.  done taper at beginning of August.

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hang in there , you've come a long way .

I keep reading stories of people with careful tapering , they get sooooo much better after finishing the taper and quitting the drug . It just takes time and patience .

I've been struggling with quitting and I failed many times over the past 4 years , I do feel like I'm never having a break and I've been called hypochondriac countless times but I don't think it's true , I think this whole journey is so overwhelming and stressing , unpredictabale and well known of its never ending list of symptoms .

On and off prozac from 2010 -2014 .

Several failed fast tapers and reinstatements .

Cold turkey : March  2014 .

-----------------------------------------

took lysanxia 40 mg a day for almost a year
november -14- 2018 weaned to 30 mg
november -26- 2018 weaned to 20 mg
symptoms that got better : fatigue
current symptoms : severe anxiety
one rescue dose (10 mg ) december -15 -2018
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Thanks for the replies. It is hard with no breaks and relentless symptoms.

Glad that it's not just me and others can identify.Makes me feel a tiny bit better

Been taking paroxatine for approx 15 years.Tried a few times yo stop but failed. Am currently on 3.5mg liquid

Jan 2016 been slow tapering paroxatine and i am currently at 2.9 mg and last drop was 5 weeks ago.

Started to feel awful about 3 weeks ago with brain ???? , shakes, blurred vision and dizzyness. ..

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  • 3 months later...
  • Moderator

Hey Katie - have you continued to taper?

 

How are you going?

"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

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Hi Katie,

 

I thought I'm the only one with constant and extreme pain related symptoms and thought lexapro is unique causing that.

I'm now at 3.2mg lex, have exact set of your symptoms plus needling all over, the worst killer, for years but all got so intolerable this round.

 

How are you doing lately?

 

Lex

Drug free Sep. 23 2017

2009 Mar.: lexapro 10mg for headache for 2 weeks.

2009-2012: on and off 1/4 to 1/3 of 10mg

2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain

2013 Jan-Mar: 10 mg generic. severe jaw and head pain;

2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain

2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg,

2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on

2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks.

2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR

2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg

2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg,

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  • 1 month later...

Hi lex.Not been on the site for a while. Just been trying to push on through.I am currently at 1.4ml or 2.8mg paroxatine. The aches and pains are relentless.Neck , shoulders forearms.It is terribly painful and shows no signs of giving up.It has been over a year now it's quite depressing when it's so hard and fast .I just have to keep telling myself day by day that it will go .I STILL have weakness in my limbs mostly arms and anxiety is worse when I'm on my menstrual cycle when funnily all my sympton seem to ramp up but the pains are the worst.I feel like an old old woman in a 47 year old body.Sometimes I wonder if I have some horrible disease as it never seems to get any better.How are you doing?

Been taking paroxatine for approx 15 years.Tried a few times yo stop but failed. Am currently on 3.5mg liquid

Jan 2016 been slow tapering paroxatine and i am currently at 2.9 mg and last drop was 5 weeks ago.

Started to feel awful about 3 weeks ago with brain ???? , shakes, blurred vision and dizzyness. ..

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Hi Katie,l

So sorry for your suffering! I know how torturing those pains are, especially for the long and constant nature of them!

 

I wonder your taper schedule? If you ever had long holds? I feel part of my problem is the lack of long holds. I have been on the same dose since last cut for 12 weeks now and the pain is somewhat lessened either in frequency or intensity in the past couple weeks. This may sounds good news but I'm on a whole new level of disability now as the new symptoms of complete brain nonfunctional/fuzzy/coma like plus extreme fatigue and lagathy made me bedridden all the time. I could push through the day for work and stuff at home with those terrible pains, but have nothing to push without a brain and zero energy. I can't go up dose as I had very bad experience in the past. I never thought I can be hit like this quick at this level with the extream slow taper and careful management. So another big lesson about the danger even with the super slow reduction. I hope you consider the long holds which can cancel the cumulative effects and prevent unseen dangers.

 

For pain, even nothing really helps much, power walk and swim helps a little for me.

 

Lex

Drug free Sep. 23 2017

2009 Mar.: lexapro 10mg for headache for 2 weeks.

2009-2012: on and off 1/4 to 1/3 of 10mg

2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain

2013 Jan-Mar: 10 mg generic. severe jaw and head pain;

2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain

2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg,

2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on

2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks.

2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR

2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg

2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg,

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  • 1 month later...

Quick update.

Currently at 2.9 mg paroxatine

Have been at this amount for 5 weeks now and for the last 2 weeks my aches and pains seem to have taken a back seat to the brain ,fatigue and horrible dizzyness and unable to focus /concentrate. This is quite a shock as I was not ecpecting it.Has anyone else had this as they got to around this dose?I am doing holds of 8 weeks maybe longer if I feel a bit iffy.

Thanks

Been taking paroxatine for approx 15 years.Tried a few times yo stop but failed. Am currently on 3.5mg liquid

Jan 2016 been slow tapering paroxatine and i am currently at 2.9 mg and last drop was 5 weeks ago.

Started to feel awful about 3 weeks ago with brain ???? , shakes, blurred vision and dizzyness. ..

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  • Moderator Emeritus

Hi Katieb, 

 

Ugh, I'm sorry to hear it has been such a slog!  Would you mind updating your signature to indicate what your starting dose was, if there were prior attempts to come off, and when you have made cuts if you have that info?  It would help everyone to get an idea at a glance.

 

Though the new symptoms are distressing, it is good to hear that the pain is not as bad (or is it that the pain is still bad but the new symptoms outweigh that!?).  It is important to remember that withdrawal symptoms are actually signs that your nervous system is trying to heal, unpleasant as they may be.  The fact that things have changed means another level of healing has taken place.

 

Dizziness is a bad one because it is quite obvious when you are trying to go about your day to day!  So is pain, but I seem to be good at shelving my awareness of pain, bit of a stoic!  I'll take the physical discomforts over the emotional any day, though LOL!

 

Are you doing 10% cuts of your previous dosage?  I find the article on occupancy rates of several SSRIs/SNRIs very helpful in understanding why it gets so much harder the lower the dose you go.  At 20 mg your occupancy rate was about 80%, whereas now you are at about 20%, so that's a lot of receptors you've freed up!  At 5 mg you were at about 40%.  Any cuts from here on out will cause big drops in occupancy, no matter how small.  If you haven't looked at the paper with the graphs, you can see it here:

 

http://ils.unc.edu/bmh/neoref/this.dir.unneeded/schizophrenia/review/tmp/352.pdf

 

I just love this paper because it so elegantly explains why that last part of the taper is so hard and must be done VERY SLOWLY!  Hopefully, it will help you be more patient in the home stretch.  So hard, I know!  But very exciting that you are so close!!

 

SG

Started ADs back around 1995 after bad break-up, starting with Prozac.  Switched to Wellbutrin, and then to Effexor in 2002
Effexor XR 2002-2014 up to 225 mg at one point, down to 37.5 mg towards end but back up to 75 mg in 2014; now realize I had W/D as I dropped down, memory very poor about history.  Extreme emotions, poor concentration as I stepped back down, didn't connect the dots!
Summer 2014 reduced to 0 very quickly, was sick of anhedonia/sexual dysfunction due to meds, depression never controlled if not worse. Didn't recognize WD since symptoms built slowly (thought I had ADD! and menopausal on top of it), starting with severe sweats, very bad cog-fog and memory issues, culminating in weight loss, severe anxiety and depression, panic, severe apathy and insomnia by eight months off.  Saw p-doc who put me on Remeron, increased from 7.5 mg/day to 37.5 mg by May 22, 2015; still doing very badly though able to sleep.

June 1. 2015 Reinstated Effexor XR 37.5 mg, Remeron dropped to 30 mg PM. Immediate relief of symptoms, like nothing had ever happened!  Joined SA and began on advice of friend who recognized it was WD all along! Began tapering in July 2015.

Been tapering both meds ever since, focusing on one more than the other or doing no more than 5% of each per month.

12 mg Effexor and 5.8 mg Remeron (mirtazapine SolTabs to make a solution with OraPlus) as of 5/4/2017 

Update 3/14/18: 2.9 mg Remeron and 6 mg Effexor; 6/10/18:  2.6 mg Remeron and 4.9 mg Effexor

 

My intro: http://survivingantidepressants.org/index.php?/topic/9313-squirrellygirl-effexor-withdrawal-etc/page-2#entry196679

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

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Woah! !! This is like being back at the beginning when things were quite bad symptoms are quite debilitating with the wierd dizzyness and brain and feeling like my mouth is moving different to the words I'm speaking.feeling fatigued one minute then hyper the next.AReal strain on my brain and eyes.Im not enjoying this one bit.

I'm not sure how to update my sig but if you yell me I will as soon as I feel better. This is a task and a half trying to write this.I thought I was going as slowly as possible with drops and at 1.7 percent approx every 6 to 8 weeks.

Will look at the paper thanks.

Been taking paroxatine for approx 15 years.Tried a few times yo stop but failed. Am currently on 3.5mg liquid

Jan 2016 been slow tapering paroxatine and i am currently at 2.9 mg and last drop was 5 weeks ago.

Started to feel awful about 3 weeks ago with brain ???? , shakes, blurred vision and dizzyness. ..

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Just read through my post

I meant to say drops are a 1.7 percentage every 6 to 8 weeks.Sorry ...its really hard to concentrate at the moment.I hope this passes soon.

Been taking paroxatine for approx 15 years.Tried a few times yo stop but failed. Am currently on 3.5mg liquid

Jan 2016 been slow tapering paroxatine and i am currently at 2.9 mg and last drop was 5 weeks ago.

Started to feel awful about 3 weeks ago with brain ???? , shakes, blurred vision and dizzyness. ..

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  • Moderator Emeritus

1.7 percent is very small indeed!  You are very sensitized!  I'm sorry you are having such a tough time.  I've been doing fine with my taper but yesterday I was talking on my cell phone and during the call I had a weird perception change in that my phone felt really BIG and heavy!  It was such a strange sensation!  

 

A couple of years ago I had two different incidences of vertigo, where I was nauseous and actually vomited in the shower when I almost hit my head against the wall.  I'd never been one to have this happen before!  I'm now wondering if it had to do with Effexor.  I don't recall if I had done any dosage drops relative to that.  So, I get what you're dealing with.  It sucks!

 

I hope your system settles down; sounds like time for a magnesium bath or something!

 

SG

Started ADs back around 1995 after bad break-up, starting with Prozac.  Switched to Wellbutrin, and then to Effexor in 2002
Effexor XR 2002-2014 up to 225 mg at one point, down to 37.5 mg towards end but back up to 75 mg in 2014; now realize I had W/D as I dropped down, memory very poor about history.  Extreme emotions, poor concentration as I stepped back down, didn't connect the dots!
Summer 2014 reduced to 0 very quickly, was sick of anhedonia/sexual dysfunction due to meds, depression never controlled if not worse. Didn't recognize WD since symptoms built slowly (thought I had ADD! and menopausal on top of it), starting with severe sweats, very bad cog-fog and memory issues, culminating in weight loss, severe anxiety and depression, panic, severe apathy and insomnia by eight months off.  Saw p-doc who put me on Remeron, increased from 7.5 mg/day to 37.5 mg by May 22, 2015; still doing very badly though able to sleep.

June 1. 2015 Reinstated Effexor XR 37.5 mg, Remeron dropped to 30 mg PM. Immediate relief of symptoms, like nothing had ever happened!  Joined SA and began on advice of friend who recognized it was WD all along! Began tapering in July 2015.

Been tapering both meds ever since, focusing on one more than the other or doing no more than 5% of each per month.

12 mg Effexor and 5.8 mg Remeron (mirtazapine SolTabs to make a solution with OraPlus) as of 5/4/2017 

Update 3/14/18: 2.9 mg Remeron and 6 mg Effexor; 6/10/18:  2.6 mg Remeron and 4.9 mg Effexor

 

My intro: http://survivingantidepressants.org/index.php?/topic/9313-squirrellygirl-effexor-withdrawal-etc/page-2#entry196679

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

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  • Moderator

Hi Katieb--  I'm sorry to hear that you got blindsided like that with your last drop.  The taper plan you've been following is a good one, it's just that you've entered into one of the trickier areas of the paroxetine taper.  I have just gone through that area and know several others who are just entering it and we have all had trouble.  According to the charts this is the area where a tiny change in dose has a huge affect on the nervous system, which is what causes the roughness.  Believe in yourself, your taper and don't panic and you'll be fine.

 

I had a real increase in the cognitive problems here, just like the ones you're describing. They do get better as you go lower but they take a lot to put up with.  They do tend to come and go so you should be getting breaks from them. I found fish oil to be really helpful, particularly with the brain fog.

 

(((((((((((((((((((HUGS)))))))))))))))

20 years on Paxil starting at 20mg and working up to 40mg. Sept 2011 started 10% every 6 weeks taper (2.5% every week for 4 weeks then hold for 2 additional weeks), currently at 7.9mg. Oct 2011 CTed 15oz vodka a night, to only drinking 2 beers most nights, totally sober Feb 2013.

Since I wrote this I have continued to decrease my dose by 10% every 6 weeks (2.5% every week for 4 weeks and then hold for an additional 2 weeks). I added in an extra 6 week hold when I hit 10mg to let things settle out even more. When I hit 3mgpw it became hard to split the drop into 4 parts so I switched to dropping 1mgpw (pill weight) every week for 3 weeks and then holding for another 3 weeks.  The 3 + 3 schedule turned out to be too harsh so I cut back to dropping 1mgpw every 4 weeks which is working better.

Final Dose 0.016mg.     Current dose 0.000mg 04-15-2017

 

"It's also important not to become angry, no matter how difficult life is, because you can loose all hope if you can't laugh at yourself and at life in general."  Stephen Hawking

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Thanks for your replies squirellygirl and brass monkey.

The dizzyness is the worst thing for me ????

Tom thanks for your input, I was beginning to doubt myself ....have I been doing this correctly , have I Essex up dose somehow

Been taking paroxatine for approx 15 years.Tried a few times yo stop but failed. Am currently on 3.5mg liquid

Jan 2016 been slow tapering paroxatine and i am currently at 2.9 mg and last drop was 5 weeks ago.

Started to feel awful about 3 weeks ago with brain ???? , shakes, blurred vision and dizzyness. ..

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Oops .Meant to say have I messed up my dose somehow but no I have dne everything correctly

Just as you say brass I've reached a tricky time in my taper

 

Would you (iny position ) stay for longer at this dose (could just prolong the agony) or just carry on lowering as I have been doing ?

Also wondering why certain lights affect my dizzyness (only way of describing it) any ideas? Dimmer lighting seems take it worse.

Thanks

Been taking paroxatine for approx 15 years.Tried a few times yo stop but failed. Am currently on 3.5mg liquid

Jan 2016 been slow tapering paroxatine and i am currently at 2.9 mg and last drop was 5 weeks ago.

Started to feel awful about 3 weeks ago with brain ???? , shakes, blurred vision and dizzyness. ..

Link to comment

Oops .Meant to say have I messed up my dose somehow but no I have dne everything correctly

Just as you say brass I've reached a tricky time in my taper

 

Would you (iny position ) stay for longer at this dose (could just prolong the agony) or just carry on lowering as I have been doing ?

Also wondering why certain lights affect my dizzyness (only way of describing it) any ideas? Dimmer lighting seems take it worse.

Thanks

Been taking paroxatine for approx 15 years.Tried a few times yo stop but failed. Am currently on 3.5mg liquid

Jan 2016 been slow tapering paroxatine and i am currently at 2.9 mg and last drop was 5 weeks ago.

Started to feel awful about 3 weeks ago with brain ???? , shakes, blurred vision and dizzyness. ..

Link to comment

Sorry for the mesed up and double post not much concentration happening here at the moment.Looking forward to a clearer head

Been taking paroxatine for approx 15 years.Tried a few times yo stop but failed. Am currently on 3.5mg liquid

Jan 2016 been slow tapering paroxatine and i am currently at 2.9 mg and last drop was 5 weeks ago.

Started to feel awful about 3 weeks ago with brain ???? , shakes, blurred vision and dizzyness. ..

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  • Moderator

I always try to judge it on how I feel the sixth week of my hold.  If I've been gotten back to baseline or WDnormal then I go ahead and drop.  If not I hold another week and reassess. 

 

I think (just my opinion) that some of the dizziness has to do with eyesight and not inner ear balance.  I noticed that when I have dizziness problems my eyes are very sensitive to light and movement and I am tending to have tunnel vision. This is dizziness as in not being able to balance, walking into doorways, "drunken" like behavior as opposed to seeing stars and wanting to fall down.

20 years on Paxil starting at 20mg and working up to 40mg. Sept 2011 started 10% every 6 weeks taper (2.5% every week for 4 weeks then hold for 2 additional weeks), currently at 7.9mg. Oct 2011 CTed 15oz vodka a night, to only drinking 2 beers most nights, totally sober Feb 2013.

Since I wrote this I have continued to decrease my dose by 10% every 6 weeks (2.5% every week for 4 weeks and then hold for an additional 2 weeks). I added in an extra 6 week hold when I hit 10mg to let things settle out even more. When I hit 3mgpw it became hard to split the drop into 4 parts so I switched to dropping 1mgpw (pill weight) every week for 3 weeks and then holding for another 3 weeks.  The 3 + 3 schedule turned out to be too harsh so I cut back to dropping 1mgpw every 4 weeks which is working better.

Final Dose 0.016mg.     Current dose 0.000mg 04-15-2017

 

"It's also important not to become angry, no matter how difficult life is, because you can loose all hope if you can't laugh at yourself and at life in general."  Stephen Hawking

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