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Irvingkirsch Luvox Withdrawal-What Should I Expect?


Irvingkirsch

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  • Mentor

Hi Irving,           according to my ""labels""" I did the usual route,   started with situational depression, got medicated, which caused seizures,   so then I was told wasnt the mediction, I had undelying bipolar, more medication, psychotic, manic, serotonin syndrome...........   I done it all!  thank god I am still alive, and now realise  I was just conned.           I never had anything, I no longer label myself, and laugh at the stupid labels.

 

It is very, very early days in your Withdrawal from these drugs.......        Treat yourself kindly, and remember if things get bad, reintroducing the drug at a low level, may reduce your symptoms significantly.

 

I was fine for many months after I tapered.    My first symptoms were erratic sleep  (waking up very early, and with energy),          then I felt like I had the worst case of the flu ever, it just hit me, diahorreah, shakes, sweats, I was very ill for a day,   then it went up and down on a daily basis, I was all over the place.  I still find the horrific physical symptoms easier to cope with than the emotional ones.   Still some mornings I am very nauseaus, but that passes.       Read the section on neuroemotions, that really helped me cope.

 

I have previously gone off many drugs, and always was a bumpy ride.     This time?  Well I have been on the things for about 8 years this time, previously I had never been on them for more than a few months.  I have not been very well for 18 months now, have learnt so much I wish I had known this stuff before tapering off.     I had two good weeks just before Christmas.     So two good weeks in 18 months.    I guess that is why I am concerned, as you have tapered so quickly, and I dont know of anyone that has actually worked for.   Lets hope you are the first one!

 

My drug history is in my signature. 

 

Good luck

 

Ang

1992 Dothiepin 375mg 8 weeks, exhaustion/depression.  Serotonin syndrome, oh yes!  seizures . Fell pregnant, 3rd baby, Nitrous Oxide, 3 weeks mental hospital pp psychosis. zoloft tegretol.

Feb 1996 ct tegretol, tapered Zoloft 8 weeks. as (unexpectedly)  pregnant. Steven died after 3 days.(Zolft HLHS baby).  98 had run in with Paxil, 2 tablets, 3 weeks taper, survived.
2005..menopause? exhausted again. Zyprexa, mad in three days, fallout....  Seroquel, Effexor, tegretol,   and 8 years of self destruction. Failed taper.
Damn 1/4 valium... nuts again! .fallout, zoloft 100mg  seroquol 400mg mirtazapine 45 mg  tegretol 400mg.  Mid 14 3 month taper. Nov 14 CRASH.
Mid 15 ....   75mg  seroquel,  3 x 1800mg SJW  2 week window end of December followed by 6 week wave
5/2 68mg seroquel, 2.5 x 1800mg SJW::::20/2 61mg seroquel, 2.5 x  SJW::: 26/2 54mg seroquel, 2 x SJW::::21/3 43mg seroquel, 1 x 2700SJW :::: 23/4 36mg seroquel 1 x 1800 SJW
15/5 33mg seroquel, 1 x SJW::::   28/5 30mg seroquel, 1 x SJW::::;  18/6 25mg seroquel 1/2 SJW::::, 11/7 21mg seroquel 1/2 SJW::, 26/7 18mg seroquel 1/2 SJW:::, 9/8 12mg seroquel :::, 16/8 6mg seroquel ;;;;, 12/9 0 jump.

23/9  3mg.....,  27/9 0mg.  Reinstated, 6mg, then 12mg.............  LIGHTBULB MOMENT,  I have  MTHFR 2x mutations.  CFS and issues with MOULD in my home. So I left home, and working 150km away during week, loving it.

Oh was hard, panic attacks first week, gone now, along with the mould issues.

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*topic moved from success forum

 

Do you have to get off SSRI's altogether to recover from your initial withdrawal? Have I delayed my recovery by not stopping SSRI's a long time ago?Is there anyone on here who has overcome withdrawal who can speak to this? It seems that when my insomnia started 7 years ago, it was possibly a result of cold turkeying Wellbutrin and Celexa? The problem is that I kept taking different SSRI's and withdrawing from them up until two weeks ago. I just wanted the insomnia to go away. It has ruined my life

Edited by Petunia
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*topic moved from the events forum

 

Has anyone had insomnia that lasted several years and had it go away eventually? I'm talking about sleep-maintenance insomnia every night that prevents you from sleeping less than 6 hours a night and never lets up. I've been on and off AD's for 23 years, but never staying off for more than a few weeks. The insomnia started 7 years ago and it's ruined me.

Edited by Petunia
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  • Moderator Emeritus

Hi Irving,

I've moved two of your topics here to your own intro thread because this is a better place for these kinds of questions, you will get a better response from asking here.

 

You can use this thread as your ongoing journal to track progress, write about symptoms, ask questions and communicate with the community, add to it whenever you want. Its a good idea to bookmark it or follow it, so its easy to find again.

 

It would be great if you would put your drug and withdrawal history in your signature. Doing this helps people understand your context, it appears below each of your posts. Here are instructions for how to do it:

 

http://survivinganti...your-signature/

 

 

Do you have to get off SSRI's altogether to recover from your initial withdrawal?

 

No, if you are stable on a lower dose or a different SSRI, then you will be recovering from previous withdrawal or destabiliazation. If you would summarize your drug history in your signature, that would help us answer your questions and make suggestions.

 

 

Has anyone had insomnia that lasted several years and had it go away eventually? I'm talking about sleep-maintenance insomnia every night that prevents you from sleeping less than 6 hours a night and never lets up. I've been on and off AD's for 23 years, but never staying off for more than a few weeks. The insomnia started 7 years ago and it's ruined me.

 

You might like to read through this topic and perhaps ask this question here:   Sleep problems: That awful withdrawal insomnia

 

I'm sorry your posts have been moved around, if you are not getting your questions answered, just post here in your topic and you will be directed to the best thread or forum.

I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal...if you are lucky enough to find one.

My Introduction Thread

Full Drug and Withdrawal History

Brief Summary

Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety) Xanax PRN ~ Various other drugs over the years for side effects

2 month 'taper' off Lexapro 2010

Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal

DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms

Failed reinstatement of Lexapro and trial of Prozac (became suicidal)

May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.

Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes

Supplements which have helped: Vitamin C, Magnesium, Taurine

Bad reactions: Many supplements but mostly fish oil and Vitamin D

June 2016 - Started daily juicing, mostly vegetables and lots of greens.

Aug 2016 - Oct 2016 Best window ever, felt almost completely recovered

Oct 2016 -Symptoms returned - bad days and less bad days.

April 2018 - No windows, but significant improvement, it feels like permanent full recovery is close.

VIDEO: Where did the chemical imbalance theory come from?



VIDEO: How are psychiatric diagnoses made?



VIDEO: Why do psychiatric drugs have withdrawal syndromes?



VIDEO: Can psychiatric drugs cause long-lasting negative effects?

VIDEO: Dr. Claire Weekes

 

 

 

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Well here is a response for what its worth.

 

Shea Carney from memory said it took 6-7 years before she could sleep with any regularity. Check out her postings in the success stories. I read her story at pp.

 

I had bad insomnia when i first went drug free.

I think it then settled (the first two yrs seem a blur now...and thats good b/c i was non-functional )  but then at about 3 yrs seriously kicked in noticeably and ive had it ever since.

 

Im simply going with the flow as i know i can take anything as long as akathisia is not attached to it.

I'm hoping it will resolve in the next yr or two as i'm entering the 'Carney' window..

 

Try not to let it stress you out.

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

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  • Administrator

Seriously what is wrong with the people that move posts under headings that are totally unrelated?

 

You're just going to have to bear with us, IK. We keep information in Intro threads for very specific reasons, one being if we want to read about your recent history, it's all in one place. Otherwise, we'd have to hunt all over the site for bits and pieces -- "Why did Irving do this?" "When did this happen?"

 

If you wish to ask advice about your particular situation, please post in this Intro topic.

 

Any question that requires details of your history to answer belongs in your Intro topic. Regarding your insomnia, we'd have to ask if it started during a break in antidepressants, for example. It could be due to iatrogenic autonomic dysregulation.

 

On the other hand, there are many existing topics in the Symptoms and self-care forum, such as the many related to sleep issues listed in Important topics about symptoms, including sleep problems , where you might engage in general discussion about insomnia, etc.

 

I have a feeling I or one of the mods have already explained this to you several times. I hope this finally answers your questions about why your posts are being moved.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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  • 2 weeks later...

Irving, if you're still not working, one technique for insomnia is to give up. Just read until 3am.

 

Fish oil and magnesium didn't do the trick for me. I made fake bulletproof coffee in hope of improving my memory, and accidentally cured my beer dependence and insomnia. I even lost interest in pot without meaning to. Saves expense and a messy little hassle.

 

If you're interested, just search for bulletproof coffee. You can get the ingedrients at Trader Joe's. I used TJ's instant coffee, virgin coconut oil, and Kerrygold butter, not the fancy stuff the BP coffee guy promotes. Some people here have great results with coconut oil and some have found it "activating."

2009: Cancer hospital said I had adjustment disorder because I thought they were doing it wrong. Their headshrinker prescribed Effexor, and my life set on a new course. I didn't know what was ahead, like a passenger on Disneyland's Matterhorn, smiling and waving as it climbs...clink, clink, clink.

2010: Post surgical accidental Effexor discontinuation by nurses, masked by intravenous Dilaudid. (The car is balanced at the top of the track.) I get home, pop a Vicodin, and ...

Whooosh...down, down, down, down, down...goes the trajectory of my life, up goes my mood and tendency to think everything is a good idea.
2012: After the bipolar jig was up, now a walking bag of unrelated symptoms, I went crazy on Daytrana (the Ritalin skin patch by Noven), because ADHD was a perfect fit for a bag of unrelated symptoms. I was prescribed Effexor for the nervousness of it, and things got neurological. An EEG showed enough activity to warrant an epilepsy diagnosis rather than non-epileptic ("psychogenic") seizures.

:o 2013-2014: Quit everything and got worse. I probably went through DAWS: dopamine agonist withdrawal syndrome. I drank to not feel, but I felt a lot: dread, fear, regret, grief: an utter sense of total loss of everything worth breathing about, for almost two years.

I was not suicidal but I wanted to be dead, at least dead to the experience of my own brain and body.

2015: I  began to recover after adding virgin coconut oil and organic grass-fed fed butter to a cup of instant coffee in the morning.

I did it hoping for mental acuity and better memory. After ten days of that, I was much better, mood-wise. Approximately neutral.

And, I experienced drowsiness. I could sleep. Not exactly happy, I did 30 days on Wellbutrin, because it had done me no harm in the past. 

I don't have the DAWS mood or state of mind. It never feel like doing anything if it means standing up.

In fact, I don't especially like moving. I'm a brain with a beanbag body.   :unsure:

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  • 2 months later...

Hi, I have had blurry vision and sometimes even complete tunnel vision over the course of many months since I've withdrawan from a few different medications. The blurry/tunnel vision seems to be tied to my total sleep time from the previous night. The fewer hours I sleep, the worse the tunnel/blurry vision is. Is this a symptom of sleep deprivation or withdrawal? I'm not sure that I had it before withdrawing from the antidepressants. 

Edited by KarenB
merged Intros
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Hi Irving,

If this were me, I would have this checked out. I think your symptoms could absolutely be w/d, but I just don't think something like tunnel vision should be subject to speculation. Blurry vision comes and goes for me, and is probably fatigue related but tunnel vision seems like it should be checked out, if for nothing else but peace of mind. A lot of times, I go to the doctor not really for treatment, but for peace of mind. It's usually worth it.

 

 

Grace

  • amitriptyline from 1980-2002,
  • intermittent  use of benzos over 2 decades prior to 2002
  • 2002-2010 Klonopin 1-2 mg., ambien 10--20, mg, remeron 4 mg. and  trileptal 300 mg
  • 2011 Stopped ambien and crossed over to valium 17.5 mg. (updosing 2.5 mg. to cover ambien C/T )
  • tapered valium w/ long holds to 12.74 mg. from a high of approximately 20-30 mg/day
  • 2015-present tapered trileptal aggressively for a year; now intermittently; interacts w/ other drugs
  • currently 2024 still on 96 mg. trileptal and 4 mg. remeron
  •  Currently on benzo hold as I have to cross-over from brand-name valium to generic diazepam.  
  • Current dose of diazepam is 8.8 and valium is 5.7.  I had to up-dose the total valium/diazepam from 12.74 to 14.5 where I have stayed since June 2023.  I am crossing over to generic at a somewhat tolerable rate of .3mg/month after about 2 months of trial/error w/ updosing.  I am not currently tapering; will continue to cross over. 

 

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Hi Irving,

If this were me, I would have this checked out. I think your symptoms could absolutely be w/d, but I just don't think something like tunnel vision should be subject to speculation. Blurry vision comes and goes for me, and is probably fatigue related but tunnel vision seems like it should be checked out, if for nothing else but peace of mind. A lot of times, I go to the doctor not really for treatment, but for peace of mind. It's usually worth it.

 

 

Grace

 

Hi, I've gone to the eye doctor and general practicioner and the gp was dumbfounded after doing a bunch of tests. They eye doctor said it could be related to sleep deprivation, but he wasn't sure and said I should see my gp

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OH, the viscious cycle of being bounced back and forth between doctors! My thought is that if the eye doctor had any doubts at all, he would have referred you to an opthamologist or another specialist.  Eye docs don't mess around w/ vision. Neither do GP's. That's why the GP bounced you back to the eye doc.

 

One observation I have made Irving, is no matter how frustrated the "posting everything under your Intro thread" seems to be, there is a reason for it.  I get quite frustrated by it myself; I think it CAN make it harder to get attention to specific questions and perhaps slows down getting answers.  You can always do a search; it doesn't always work for me, but sometimes it does.  More importantly, people are being very patient with you here, so maybe you should consider accepting the process as it is.  It does work.  When I have needed to understand someone else's situation, I can easily read their thread, so in that sense, it is less convoluted than it seems.

 

Please remember that these people are tireless, selfless volunteers, many of them trying to heal themselves, and many of them could have walked away, free of any thoughts of Surviving Anti-depressants. They are doing their best, and in case you haven't noticed, there are ALOT of people who need help...ALOT!

 

Grace

  • amitriptyline from 1980-2002,
  • intermittent  use of benzos over 2 decades prior to 2002
  • 2002-2010 Klonopin 1-2 mg., ambien 10--20, mg, remeron 4 mg. and  trileptal 300 mg
  • 2011 Stopped ambien and crossed over to valium 17.5 mg. (updosing 2.5 mg. to cover ambien C/T )
  • tapered valium w/ long holds to 12.74 mg. from a high of approximately 20-30 mg/day
  • 2015-present tapered trileptal aggressively for a year; now intermittently; interacts w/ other drugs
  • currently 2024 still on 96 mg. trileptal and 4 mg. remeron
  •  Currently on benzo hold as I have to cross-over from brand-name valium to generic diazepam.  
  • Current dose of diazepam is 8.8 and valium is 5.7.  I had to up-dose the total valium/diazepam from 12.74 to 14.5 where I have stayed since June 2023.  I am crossing over to generic at a somewhat tolerable rate of .3mg/month after about 2 months of trial/error w/ updosing.  I am not currently tapering; will continue to cross over. 

 

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OH, the viscious cycle of being bounced back and forth between doctors! My thought is that if the eye doctor had any doubts at all, he would have referred you to an opthamologist or another specialist.  Eye docs don't mess around w/ vision. Neither do GP's. That's why the GP bounced you back to the eye doc.

 

One observation I have made Irving, is no matter how frustrated the "posting everything under your Intro thread" seems to be, there is a reason for it.  I get quite frustrated by it myself; I think it CAN make it harder to get attention to specific questions and perhaps slows down getting answers.  You can always do a search; it doesn't always work for me, but sometimes it does.  More importantly, people are being very patient with you here, so maybe you should consider accepting the process as it is.  It does work.  When I have needed to understand someone else's situation, I can easily read their thread, so in that sense, it is less convoluted than it seems.

 

Please remember that these people are tireless, selfless volunteers, many of them trying to heal themselves, and many of them could have walked away, free of any thoughts of Surviving Anti-depressants. They are doing their best, and in case you haven't noticed, there are ALOT of people who need help...ALOT!

 

Grace

 

Hi, thanks so much Grace. Yeah, the process here is a little difficult for me to understand. Maybe I'll just create new accounts anytime I have new subject matter to discuss so that way the subject title will match the content below it.

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  • Member

Quote (from what will get you warned or banned)

 

What will get you banned right away: "Having multiple identities, playing manipulative games, and not being a candid, sincere contributor to the community."

 

see: http://survivingantidepressants.org/index.php?/topic/1598-what-will-get-you-warned-or-banned/#entry192480

 

 

Great idea Irving, that multiple identities thing will net you a permanent ban from the site and you won't have to worry that your posts might be moved ever again.

 

And it will save moderation from having to move them where they belong according to our system, put in place to make it easier to help you when you need our help. But you don't really appear to be willing to place a signature on your posts to even facilitate our help. I know you've been asked several times. Had you ever thought that might be the reason you get few replies to your posts? No one is willing to go hunt up your thread OR your posts and try to figure out what your history might be so you may be offered advice pertinent to your specific situation. All volunteers here, trying to serve many people crying out for good, well considered advice in trying times.

 

Did you know there are sites where you can form your own groups and run them any way you like? Why, even facebook allows people to form groups. Perhaps that might be the way to go.

What happened and how I arrived here: http://survivingantidepressants.org/index.php?/topic/4243-cymbaltawithdrawal5600-introduction/#entry50878

 

July 2016 I have decided to leave my story here at SA unfinished. I have left my contact information in my profile for anyone who wishes to talk to me. I have a posting history spanning nearly 4 years and 3000+ posts all over the site.

 

Thank you to all who participated in my recovery. I'll miss talking to you but know that I'll be cheering you on from the sidelines, suffering and rejoicing with you in spirit, as you go on in your journey.

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