Rbvdk Posted June 10, 2018 Share Posted June 10, 2018 I'm not sure if this has been done yet but because PGAD is such a scary result of AD's I thought it would be really helpful to people who are fearing or developing it if anyone with a PGAD success story would reply here! 🙂 I have one of my own but I'm not sure if it counts because it turned out to be anxiety induced. When I tappered from 30mg to 0mg in just a week, I began to get a HUGE fear of PGAD (I didn't know it was a withdrawal effect of Ad's at the time). So much that i began to get extremely real feeling symptoms of it. The more I read, the more symptoms I got and sometimes I would get symptoms I hadn't read about until I got them which was even scarier. I had tons of scans and specilists and doctor visits until I finally (after about 7 months) convinced myself that I didn't actually have it - it was all psychosomatic. It took about 3 months of double checking/rebound worries etc but it finally went away completely! When I upped my dose I then convinced myself that I had it again. This time was so much worse and I was convinced it was real this time, I had to stay in bed almost every day because of how bad it felt! I had it almost 24/7 and it went on for a year, then one day, I had it very badly as usual, but something snapped me out of it (my boyfriend proposed to me !) The symptoms just vanished instantly.. looking back that day, I managed to convince myself even more that these symptoms were psychosomatic too and they never came back since! This has happened to me 2 more times but they've gone away alot quicker now so I guess my anxiety was getting better! (Until now that I've finally reached 0 with withdrawing again lol..) I hope that might help some people who also have psychostomatic/anxiety induced PGAD (or any condition really). Would love to hear everyone elses success stories whether it was real PGAD or anxiety induced! 🙂 16.4.14 - 25.4.15 Took Paxil (??mg) - cold turkey. Had random pgad symptoms around this time but not sure when exactly. ?.5.14: Started Citalopram (10mg) / 17.5.14: Quickly upped to 20mg / 9?.15: upped to 30mg. 8.16: Tapered off Citalopram in less than 2 weeks / 9.16: straight back on 20mg for just a week then stopped cold turkey. 11.16 Very mild pgad, PN symptoms and other withdrawals started. 7.12.16: Took Amitriptyline 10mg for just 2 days then stopped cold turkey. 14.12.16: reinstated 5mg of Citalopram / 1?.16: 10mg Citalopram / ?.16: 20mg Citalopram. 3.17 (6 months since withdrawing) pgad hit. 8.2.18: 15mg Citalopram / 8.3.18: 10mg / 8.4.18: 5mg / 12?.5.18: 2.5mg / 19.5.18: 0mg. pgad worsened almost instantly from first tapper, all sorts of PN symptoms, earworm, tinnitus, other things, coming and going until late 9.18 (4 months since 0mg) where it all got SO MUCH worse for 1.11 years (with windows and waves). 1.9.20: 99% healed ❤️ 31.5.21: Smoked weed 5 out of 9 days. Pgad and other old withdrawals came back, plus developed akathesia & fibromyalgia. 7.22: Steadily recovering again ❤ 2.23: Acute withdrawals coming back, no apparent reason. Link to comment Share on other sites More sharing options...
KayM Posted June 10, 2018 Share Posted June 10, 2018 Just wondering...what is PGAD? 2002-2016: 20 mg paxil - tapered over a 9-month period with prozac bridge. Continued with prozac, tapering 10 mg over a 3-month period until quitting in December 2016. Severe depression 3 months later. 300 mg wellbutrin, 7.5 mg remeron and 100 mg zoloft at end of 2017 to present. Link to comment Share on other sites More sharing options...
Moderator Emeritus ChessieCat Posted June 10, 2018 Moderator Emeritus Share Posted June 10, 2018 2 hours ago, KayM said: what is PGAD Persistent genital arousal disorder * NO LONGER ACTIVE on SA * MISSION ACCOMPLISHED: (6 year taper) 0mg Pristiq on 13th November 2021 ADs since ~1992: 25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq: 50mg 2012, 100mg beg 2013 (Serotonin Toxicity) Tapering from Oct 2015 - 13 Nov 2021 LAST DOSE 0.0025mg Post 0 updates start here My tapering program My Intro (goes to tapering graph) VIDEO: Antidepressant Withdrawal Syndrome and its Management Link to comment Share on other sites More sharing options...
ShadowMan Posted June 10, 2018 Share Posted June 10, 2018 my symptoms of this that people name as "pgad" started weeks after discontinuing the drug, I didnt even knew abou it, so, wasnt psychosomatic. a year later I can tell that Im 98% free, sometimes I feel a little thing in the area but its rare and very mild 😃 Paroxetine 40mg from 2005 to 2013, between 2007 - 2009 I stopped cold turkey, no problems, less than a week with brain zaps and thats it 2009 started taking Paroxetine again 2013 easy transition to Lexapro 15mg + Wellbutrin XL 300 2015 dropped Wellbutrin without problems 04/2017 transition to Pristiq taking 7,5mg of Lexapro + 25mg of Pristiq, than dropped Lexapro bad things starting, 05/2017 stopped Pristiq, being in hell! 05/14/2017 -> Most of the symptoms ceased, constant arousal like sensation and erectyle disfunction appeared. Anxietys on the roof, dread thoughts. Using a little bit of bromazepam. Reinstated LexaPro + Wellbutrin 08/2017 -> tappered fast both 05/2018 -> SEVERE worsening, keep getting worse Link to comment Share on other sites More sharing options...
Moderator Emeritus WiggleIt Posted July 5, 2018 Moderator Emeritus Share Posted July 5, 2018 I suffered from horrific, painful PGAD that started several months after I was off meds. I was shocked when it started up because I did not have it when all my other WD symptoms hit. PGAD was a WD symptom that hit me way later. It was definitely not psychosomatic. Now I'm four years off meds and honestly can't remember when my last PGAD episode was, which is a sign that it's been a really, REALLY long time since it's happened to me. I'm not sure if this info helps or not, but I'm female. 3 *I'm not a doctor and don't give medical advice, just personal experience **Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014 -All meds were Rxed off-label for an autoimmune illness. It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage. All med tapers/cold turkeys directed by doctors -Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine -Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey) -Lorazepam 1 mg per night during 2011 -Lorazepam 1 mg per month in 2012 (or less) -Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week -Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs -First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened -Two weeks after I got off all meds, I developed full-blown TD. Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed. NO HISTORY OF DEPRESSION, EVER. Meds CREATED it. -Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned -Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia -Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat -Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged -7 years off: Huge improvements, incl. improved dystonia Link to comment Share on other sites More sharing options...
Rbvdk Posted July 5, 2018 Author Share Posted July 5, 2018 On 6/11/2018 at 12:56 AM, ShadowMan said: my symptoms of this that people name as "pgad" started weeks after discontinuing the drug, I didnt even knew abou it, so, wasnt psychosomatic. a year later I can tell that Im 98% free, sometimes I feel a little thing in the area but its rare and very mild 😃 3 hours ago, WiggleIt said: I suffered from horrific, painful PGAD that started several months after I was off meds. I was shocked when it started up because I did not have it when all my other WD symptoms hit. PGAD was a WD symptom that hit me way later. It was definitely not psychosomatic. Now I'm four years off meds and honestly can't remember when my last PGAD episode was, which is a sign that it's been a really, REALLY long time since it's happened to me. I'm not sure if this info helps or not, but I'm female. Did you both have any strange symptoms before the PGAD started? I keep having a feeling of urine/fluid stuck in my urethra, just wondering if that's the beginning of it? So glad to hear you're both better, that's amazing! 1 16.4.14 - 25.4.15 Took Paxil (??mg) - cold turkey. Had random pgad symptoms around this time but not sure when exactly. ?.5.14: Started Citalopram (10mg) / 17.5.14: Quickly upped to 20mg / 9?.15: upped to 30mg. 8.16: Tapered off Citalopram in less than 2 weeks / 9.16: straight back on 20mg for just a week then stopped cold turkey. 11.16 Very mild pgad, PN symptoms and other withdrawals started. 7.12.16: Took Amitriptyline 10mg for just 2 days then stopped cold turkey. 14.12.16: reinstated 5mg of Citalopram / 1?.16: 10mg Citalopram / ?.16: 20mg Citalopram. 3.17 (6 months since withdrawing) pgad hit. 8.2.18: 15mg Citalopram / 8.3.18: 10mg / 8.4.18: 5mg / 12?.5.18: 2.5mg / 19.5.18: 0mg. pgad worsened almost instantly from first tapper, all sorts of PN symptoms, earworm, tinnitus, other things, coming and going until late 9.18 (4 months since 0mg) where it all got SO MUCH worse for 1.11 years (with windows and waves). 1.9.20: 99% healed ❤️ 31.5.21: Smoked weed 5 out of 9 days. Pgad and other old withdrawals came back, plus developed akathesia & fibromyalgia. 7.22: Steadily recovering again ❤ 2.23: Acute withdrawals coming back, no apparent reason. Link to comment Share on other sites More sharing options...
ShadowMan Posted July 6, 2018 Share Posted July 6, 2018 On 7/5/2018 at 9:06 AM, Rbvdk said: Did you both have any strange symptoms before the PGAD started? I keep having a feeling of urine/fluid stuck in my urethra, just wondering if that's the beginning of it? So glad to hear you're both better, that's amazing! Came out of nowhere, without any warning Paroxetine 40mg from 2005 to 2013, between 2007 - 2009 I stopped cold turkey, no problems, less than a week with brain zaps and thats it 2009 started taking Paroxetine again 2013 easy transition to Lexapro 15mg + Wellbutrin XL 300 2015 dropped Wellbutrin without problems 04/2017 transition to Pristiq taking 7,5mg of Lexapro + 25mg of Pristiq, than dropped Lexapro bad things starting, 05/2017 stopped Pristiq, being in hell! 05/14/2017 -> Most of the symptoms ceased, constant arousal like sensation and erectyle disfunction appeared. Anxietys on the roof, dread thoughts. Using a little bit of bromazepam. Reinstated LexaPro + Wellbutrin 08/2017 -> tappered fast both 05/2018 -> SEVERE worsening, keep getting worse Link to comment Share on other sites More sharing options...
Rbvdk Posted December 22, 2018 Author Share Posted December 22, 2018 Just wanna bump this. 16.4.14 - 25.4.15 Took Paxil (??mg) - cold turkey. Had random pgad symptoms around this time but not sure when exactly. ?.5.14: Started Citalopram (10mg) / 17.5.14: Quickly upped to 20mg / 9?.15: upped to 30mg. 8.16: Tapered off Citalopram in less than 2 weeks / 9.16: straight back on 20mg for just a week then stopped cold turkey. 11.16 Very mild pgad, PN symptoms and other withdrawals started. 7.12.16: Took Amitriptyline 10mg for just 2 days then stopped cold turkey. 14.12.16: reinstated 5mg of Citalopram / 1?.16: 10mg Citalopram / ?.16: 20mg Citalopram. 3.17 (6 months since withdrawing) pgad hit. 8.2.18: 15mg Citalopram / 8.3.18: 10mg / 8.4.18: 5mg / 12?.5.18: 2.5mg / 19.5.18: 0mg. pgad worsened almost instantly from first tapper, all sorts of PN symptoms, earworm, tinnitus, other things, coming and going until late 9.18 (4 months since 0mg) where it all got SO MUCH worse for 1.11 years (with windows and waves). 1.9.20: 99% healed ❤️ 31.5.21: Smoked weed 5 out of 9 days. Pgad and other old withdrawals came back, plus developed akathesia & fibromyalgia. 7.22: Steadily recovering again ❤ 2.23: Acute withdrawals coming back, no apparent reason. Link to comment Share on other sites More sharing options...
Moderator Emeritus ChessieCat Posted December 29, 2018 Moderator Emeritus Share Posted December 29, 2018 cathyfrench posted this in her intro topic: 11 hours ago, cathyfrench said: Hi India, Thank you for your kind message. I agree with you that psychiatry can be extremelly dangerous and SSRIs are strong medications that shouldn't be given so easily. Unfortunatly I noticed that most doctors i saw in my PGAD and tinnitus Journey don't know the side effects and the withdrawal side effects of benzos and antidepressants so instead of helping you withdrawing they give people more and more psychotropic drugs making them worse instead of being better because they mistake withdrawal symptoms for psychiatric symptoms. Istill have PGAD and tinnitus unfortunatly. it has been 20 months now that I coldturkeyed Xanax and was put on the antideprrssant SSRI Sertraline. When I was on sertraline and 6 months after stopping it, I used to have an hyperactive bladder and a urologit told me that he has many patients with an hyperactive bladder that are on antidepressants. Thanks to pelvic physiotherapy, I don't have an overactive and painfull bladder anymore (alongside with a non acidic diet and I take aloe vera)but I still have PGAD. My PGAD is really mild now and it is really not as bad as before (the first months after stopping sertraline were hell). I am at the end of my Xanax tapper (I was put back on Xanax after my sertraline,risperidone and Anafranil short experience) and I think Xanax was making my PGAD worse,now that I neraly stopped it,my PAGD flare are not as strong as before. I am the patient of a very good pudnedal nerve specialist who has several patients with PGAD (but I am her first with a PGAD caused by an antidepressant). She gave me tens (ankle and auricular tens), physiotherapy. I go to acupuncturer and I did some auriculotherapy. For my specialist my PGAD is caused by an sympathetic nervous system to active (basically the autonomous nervous system is ill) and a parasympathic nervous system that is too quiet. I have belly breathing exercices and tens to try to stimulate the vagus nerve and in return it stimulates the parasympathetic nervous system and quiets down the parasympathetic nervous system. It helps. I also got ganglion impar nerve block to quiet down the genital nerves in nerve and it also helped. I also use ice to quiet down the flare and the overactive sympathetic nerve. I read Mad in America and I found their articles really good. The website Riysk has also run a series of articles on PGAD and there are some petitions organised at the moment to have sexual dysfunction and PGAD written as a side effects from SSRIs and SNRIS on these medication's safety notice in the US and in Europe. One petition was sent to the FDA and another one to the European Medication Agency. https://rxisk.org/wp-content/uploads/2018/06/JRS745-1.pdf. Good articles onPGAD https://rxisk.org/pgad-clitoridectomy-or-ect/ I hope yo will get better. Take care Cathy * NO LONGER ACTIVE on SA * MISSION ACCOMPLISHED: (6 year taper) 0mg Pristiq on 13th November 2021 ADs since ~1992: 25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq: 50mg 2012, 100mg beg 2013 (Serotonin Toxicity) Tapering from Oct 2015 - 13 Nov 2021 LAST DOSE 0.0025mg Post 0 updates start here My tapering program My Intro (goes to tapering graph) VIDEO: Antidepressant Withdrawal Syndrome and its Management Link to comment Share on other sites More sharing options...
Rbvdk Posted April 20, 2019 Author Share Posted April 20, 2019 My sister who had pgad, slow/weak urine flow, restless leg syndrome And akathesia has now healed. she was on citalopram for 2 years, withdrew in 10s each month (she was on 40mg) and a year later from 0 she's better. 🙂 2 16.4.14 - 25.4.15 Took Paxil (??mg) - cold turkey. Had random pgad symptoms around this time but not sure when exactly. ?.5.14: Started Citalopram (10mg) / 17.5.14: Quickly upped to 20mg / 9?.15: upped to 30mg. 8.16: Tapered off Citalopram in less than 2 weeks / 9.16: straight back on 20mg for just a week then stopped cold turkey. 11.16 Very mild pgad, PN symptoms and other withdrawals started. 7.12.16: Took Amitriptyline 10mg for just 2 days then stopped cold turkey. 14.12.16: reinstated 5mg of Citalopram / 1?.16: 10mg Citalopram / ?.16: 20mg Citalopram. 3.17 (6 months since withdrawing) pgad hit. 8.2.18: 15mg Citalopram / 8.3.18: 10mg / 8.4.18: 5mg / 12?.5.18: 2.5mg / 19.5.18: 0mg. pgad worsened almost instantly from first tapper, all sorts of PN symptoms, earworm, tinnitus, other things, coming and going until late 9.18 (4 months since 0mg) where it all got SO MUCH worse for 1.11 years (with windows and waves). 1.9.20: 99% healed ❤️ 31.5.21: Smoked weed 5 out of 9 days. Pgad and other old withdrawals came back, plus developed akathesia & fibromyalgia. 7.22: Steadily recovering again ❤ 2.23: Acute withdrawals coming back, no apparent reason. Link to comment Share on other sites More sharing options...
DinaDina Posted February 21, 2021 Share Posted February 21, 2021 Just want to read new success stories. Anybody? 25 November 2020 - 22 December 2020 - Zoloft (3 weeks - 12.5 mg, 1 week - 25 mg); 1 January 2021 - Zoloft (12.5 mg) 18-24 December 2020 - Teraligen 2.5 mg-3.75 mg (Russian antipsychotic) 18-28 December 2020 - Eglonil 100 mg (Sulpiride) Supplements: magnesium Symptoms since stopping Zoloft: overactive/painful bladder, pelvic pressure, PGAD, severe anxiety Link to comment Share on other sites More sharing options...
weemie Posted July 19, 2022 Share Posted July 19, 2022 7 months into healing from an adverse reaction and I'm getting pgad symptoms as well as muscle twitching in the legs. SCARY BUT IM GONNA GET THROUGH ! will update when im feeling better. 2016: started sertraline 25mg - upped dose to 75mg and tapered down to 25mg. 2017: June - skipped doses to taper sertraline 25mg. December - reinstated sertraline 25mg 2018: October - skipped doses to taper sertraline 25mg. 2019: January - reinstated sertraline 25mg because of dp/dr symptoms 2020: October - basically CTd sertraline 25mg. enter protracted withdrawal. 2021: Dec 9th - ADR to sertraline reinstatement at 25mg. Dec 10th - Zopiclone 2.5 mg. Dec 11th - zopiclone 5 mg. Dec 17th(?) - sertraline 25mg. Dec 24th - sertraline 25mg. Dec 25th - sertraline 25mg. December/January: was double dosing b12 1000mcg at some point :$ Link to comment Share on other sites More sharing options...
peaceandlove Posted September 4, 2022 Share Posted September 4, 2022 On 7/19/2022 at 6:43 AM, weemie said: 7 months into healing from an adverse reaction and I'm getting pgad symptoms as well as muscle twitching in the legs. SCARY BUT IM GONNA GET THROUGH ! will update when im feeling better. can you describe how pgad feels? I have a weird burning sensation/pressure down there & pelvic pain. Urge to urinate frequently April 2022- Only 1 celxa pill 10mg had an adverse reaction & never took anymore again Link to comment Share on other sites More sharing options...
weemie Posted September 7, 2022 Share Posted September 7, 2022 @peaceandlove sounds like maybe you've got some pelvic floor/pudendal nerve issues going on. mine started out as stabbing, prodding pain in my clitoris which turned into weird nerve sensations that radiate from my genitals down into the arch of my left foot. the pain is gone, but I'm left with a constant "itch" in my legs and genitals. I have no refractory period now and lots of twitching and fluttering down there. fasciculations everywhere below the belt. arousal feels like the urge to pee now. the urge is there most of the time plus I can never fully empty my bladder. have you seen a pelvic floor therapist? 2016: started sertraline 25mg - upped dose to 75mg and tapered down to 25mg. 2017: June - skipped doses to taper sertraline 25mg. December - reinstated sertraline 25mg 2018: October - skipped doses to taper sertraline 25mg. 2019: January - reinstated sertraline 25mg because of dp/dr symptoms 2020: October - basically CTd sertraline 25mg. enter protracted withdrawal. 2021: Dec 9th - ADR to sertraline reinstatement at 25mg. Dec 10th - Zopiclone 2.5 mg. Dec 11th - zopiclone 5 mg. Dec 17th(?) - sertraline 25mg. Dec 24th - sertraline 25mg. Dec 25th - sertraline 25mg. December/January: was double dosing b12 1000mcg at some point :$ Link to comment Share on other sites More sharing options...
peaceandlove Posted December 19, 2022 Share Posted December 19, 2022 On 9/6/2022 at 6:42 PM, weemie said: @peaceandlove sounds like maybe you've got some pelvic floor/pudendal nerve issues going on. mine started out as stabbing, prodding pain in my clitoris which turned into weird nerve sensations that radiate from my genitals down into the arch of my left foot. the pain is gone, but I'm left with a constant "itch" in my legs and genitals. I have no refractory period now and lots of twitching and fluttering down there. fasciculations everywhere below the belt. arousal feels like the urge to pee now. the urge is there most of the time plus I can never fully empty my bladder. have you seen a pelvic floor therapist? hey @weemiesorry just seeing this. But no I haven’t been to a pelvic floor therapist. Have you? April 2022- Only 1 celxa pill 10mg had an adverse reaction & never took anymore again Link to comment Share on other sites More sharing options...
GGGG Posted February 20, 2023 Share Posted February 20, 2023 On 7/5/2018 at 2:00 AM, WiggleIt said: I suffered from horrific, painful PGAD that started several months after I was off meds. I was shocked when it started up because I did not have it when all my other WD symptoms hit. PGAD was a WD symptom that hit me way later. It was definitely not psychosomatic. Now I'm four years off meds and honestly can't remember when my last PGAD episode was, which is a sign that it's been a really, REALLY long time since it's happened to me. I'm not sure if this info helps or not, but I'm female. Did you cold turkey? Year 2010 to 2020 remeron, Buspar, atenelol, Ativan as needed (once a week) remeron stopped working (pooped out) oct 2020 started amitryptyline took it 3 months Dec started wellbutrin, Stopped it 3 months later Started Paxil again for 3 months took vibryd for 1 month, Stopped it in 5 days Started sam e 100mgs 3x a day, Tyrosine 1000mgs 3 x a dayfor 6 months August 2020 - Off all antidepressants 16 th of Feb, 2023 started taperingsam e the 100mg 2 x a day of sam e. I stopped taking the afternoon one. And started every other day then every r day. Link to comment Share on other sites More sharing options...
CookiePretzel Posted June 9, 2023 Share Posted June 9, 2023 I had PGAD for a solid month and a half. It was crazy. First experienced it at around 6 months off. Like being on the cusp of a clitoral orgasm constantly. I went away very slowly; the intensity dulled over a couple weeks. Now I seem to get it briefly when my period ends and estrogen levels are rising. FWIW, 37 female fast taper off Prozac. 1 1/21 Prescribed 3mg Lorazepam/ day. Fell dependent in 10 days. Attempted 2 CTs before getting smart and tapering over 10 months- .0625mg drop every 3-5 weeks. 2/21 Prescribed 20mg Prozac/ day. 11/21 Finished Lorazepam taper 1/22 unsuccessful Prozac taper (skipping days) 2/22 Reinstated at 20mg daily 5/22 Switch to liquid Prozac 6/22 Begin Prozac taper of .08mg every couple weeks 10/22 Finished Prozac taper. 3 AWFUL days of depression and sickness, then feel fabulous for a couple months. 12/22 Begin windows and waves of depression, panic and hopelessness 6/23 Symptoms stopped worsening but are still present 9/23 Having more good days than bad, symptoms drastically lessening 2/24 Turned a corner and feel healed a great deal Link to comment Share on other sites More sharing options...
Adeeva78 Posted June 20, 2023 Share Posted June 20, 2023 On 6/9/2023 at 6:40 PM, CookiePretzel said: I had PGAD for a solid month and a half. It was crazy. First experienced it at around 6 months off. Like being on the cusp of a clitoral orgasm constantly. I went away very slowly; the intensity dulled over a couple weeks. Now I seem to get it briefly when my period ends and estrogen levels are rising. FWIW, 37 female fast taper off Prozac. I stopped Prozac cold turkey in March and my symptoms started beginning of April and I have still have them although they have somewhat lessened. Mine feels like a burning down there. December 22-24 2022 Lexapro 10mg Jan 18-30 2023 Paxil 10mg Jan 31-march 14 2023 Prozac 10mg Stopped cold Turkey. Xanax took as needed maybe once a week 0.25mg stopped taking in May. currently: If I need help sleeping I will take 10mg of hydroxyzine at night Link to comment Share on other sites More sharing options...
DeeVe Posted August 11, 2023 Share Posted August 11, 2023 @weemie Hi Weemie, I just recently stopped Sertraline and now have Pgad. I’m so scared. I was just wondering how your symptoms are right now… hope to hear! 2012-2020: Cipramil 15 mg (tappering during 1 year, no wd)2023 February: Sertraline 50mg and Fluanxol 1mg Stop Sertralin July 2023. Since Pgad, painful bladder, tinnitus among other symptoms Stop Fluanxol August 2023. Symptoms got worse. Link to comment Share on other sites More sharing options...
Kathrine Posted June 21 Share Posted June 21 On 8/11/2023 at 12:03 PM, DeeVe said: @weemie Hi Weemie, I just recently stopped Sertraline and now have Pgad. I’m so scared. I was just wondering how your symptoms are right now… hope to hear! Hi @DeeVee As with everything else, I can't promise you anything, but I can say that I had PGAD for years on end while ON Sertraline, and then it got worse as I stopped almost cold turkey. But then it went away almost suddenly and did not return. I think it will heal in you to. ❤️ Approx. 2000-2015: on and off varying doses of citalopram, seroquel, sertraline, lamotrigine; several CTs. 2015: Pregnant and wrongly diagnosed and medicated - 250 mg. Setraline. Serotonergic syndrome. 2016: Got my self down to approx. 180 mg Sertraline. Still serotonergic syndrome. 2017-2020: Quetiapine - up to 700 mg. and 50 mg. Sertraline. 2020: Pregnant. Down to 400 mg. Quetiapine and 50 mg. Sertraline. 2022: 50 mg. Sertraline. 400 mg. Quetiapine. Up to 70 mg. Vyvanse. Late 2023: 25 mg. Sertraline. 300 mg. Quetiapine. Up to 60 mg. Vyvanse. 2024 (Jan and Feb): Quit Sertraline cold turkey. Then Vyvanse cold turkey. Went down from 300 to 200 mg. Quetiapine in weeks. :'-( 2024: Back on 1 mg. Sertraline. (Still on 200 mg Quetiapine). Got bad reaction to going back on. Went off. Got worse. Back on 0,9 mg. Trying to go back on fish oil and magnesium too, and trying to quit coffee, sugar and occasional nicotine gum. Link to comment Share on other sites More sharing options...
DeeVe Posted June 26 Share Posted June 26 @Kathrine thank you for your reply! how long after you stopped did it go away? 2012-2020: Cipramil 15 mg (tappering during 1 year, no wd)2023 February: Sertraline 50mg and Fluanxol 1mg Stop Sertralin July 2023. Since Pgad, painful bladder, tinnitus among other symptoms Stop Fluanxol August 2023. Symptoms got worse. Link to comment Share on other sites More sharing options...
Kathrine Posted June 27 Share Posted June 27 13 hours ago, DeeVe said: @Kathrine thank you for your reply! how long after you stopped did it go away? It was rather quiet after two weeks of stopping, then it came back in WD waves (I am still on 1 mg. of Sertraline!), but now (6 months into withdrawal) I haven't had it for weeks. So, it seems to quiet down, then come back at times, and then go away for longer and longer. Also, when it is there it is not very persistent anymore. I think it will ease and disappear with time, I really do. ❤️ Approx. 2000-2015: on and off varying doses of citalopram, seroquel, sertraline, lamotrigine; several CTs. 2015: Pregnant and wrongly diagnosed and medicated - 250 mg. Setraline. Serotonergic syndrome. 2016: Got my self down to approx. 180 mg Sertraline. Still serotonergic syndrome. 2017-2020: Quetiapine - up to 700 mg. and 50 mg. Sertraline. 2020: Pregnant. Down to 400 mg. Quetiapine and 50 mg. Sertraline. 2022: 50 mg. Sertraline. 400 mg. Quetiapine. Up to 70 mg. Vyvanse. Late 2023: 25 mg. Sertraline. 300 mg. Quetiapine. Up to 60 mg. Vyvanse. 2024 (Jan and Feb): Quit Sertraline cold turkey. Then Vyvanse cold turkey. Went down from 300 to 200 mg. Quetiapine in weeks. :'-( 2024: Back on 1 mg. Sertraline. (Still on 200 mg Quetiapine). Got bad reaction to going back on. Went off. Got worse. Back on 0,9 mg. Trying to go back on fish oil and magnesium too, and trying to quit coffee, sugar and occasional nicotine gum. Link to comment Share on other sites More sharing options...
DeeVe Posted June 27 Share Posted June 27 @Kathrine it was away for me for a while. But came back when I got intimate for the first time. After that it keeps lingering around. I am afraid to ever have an orgasm again. Sorry for the details. But that’s just what it is. 2012-2020: Cipramil 15 mg (tappering during 1 year, no wd)2023 February: Sertraline 50mg and Fluanxol 1mg Stop Sertralin July 2023. Since Pgad, painful bladder, tinnitus among other symptoms Stop Fluanxol August 2023. Symptoms got worse. Link to comment Share on other sites More sharing options...
Kathrine Posted June 27 Share Posted June 27 6 hours ago, DeeVe said: @Kathrine it was away for me for a while. But came back when I got intimate for the first time. After that it keeps lingering around. I am afraid to ever have an orgasm again. Sorry for the details. But that’s just what it is. I am so so so sorry! I know how you feel. And just to be absolutely certain: You are not "just" afraid of sexual feelings? I am asking because I have caught myself being afraid of what would be to anyone else normal feelings of desire now. The thought of going back to PGAD scares me like... I just can't. But again, I think it will pass! I think right now it is protracted withdrawal, and that will disappear slowly like others' protracted withdrawal symptoms have. I really believe that. ❤️ Approx. 2000-2015: on and off varying doses of citalopram, seroquel, sertraline, lamotrigine; several CTs. 2015: Pregnant and wrongly diagnosed and medicated - 250 mg. Setraline. Serotonergic syndrome. 2016: Got my self down to approx. 180 mg Sertraline. Still serotonergic syndrome. 2017-2020: Quetiapine - up to 700 mg. and 50 mg. Sertraline. 2020: Pregnant. Down to 400 mg. Quetiapine and 50 mg. Sertraline. 2022: 50 mg. Sertraline. 400 mg. Quetiapine. Up to 70 mg. Vyvanse. Late 2023: 25 mg. Sertraline. 300 mg. Quetiapine. Up to 60 mg. Vyvanse. 2024 (Jan and Feb): Quit Sertraline cold turkey. Then Vyvanse cold turkey. Went down from 300 to 200 mg. Quetiapine in weeks. :'-( 2024: Back on 1 mg. Sertraline. (Still on 200 mg Quetiapine). Got bad reaction to going back on. Went off. Got worse. Back on 0,9 mg. Trying to go back on fish oil and magnesium too, and trying to quit coffee, sugar and occasional nicotine gum. Link to comment Share on other sites More sharing options...
DeeVe Posted June 29 Share Posted June 29 @Kathrine no I don’t think so. They put me on mirtazapine which I am tapering now. Regret ever doing that. It’s the worst. But I noticed having sexual dreams going down. So thinking my libido was coming back… but I’m guessing the mirtazapine was covering the symptoms. I don’t know. All I know is I will not have another orgasm until I am off and everything feels normal. This could be years😢 2012-2020: Cipramil 15 mg (tappering during 1 year, no wd)2023 February: Sertraline 50mg and Fluanxol 1mg Stop Sertralin July 2023. Since Pgad, painful bladder, tinnitus among other symptoms Stop Fluanxol August 2023. Symptoms got worse. Link to comment Share on other sites More sharing options...
Kathrine Posted June 30 Share Posted June 30 On 6/29/2024 at 9:50 AM, DeeVe said: @Kathrine no I don’t think so. They put me on mirtazapine which I am tapering now. Regret ever doing that. It’s the worst. But I noticed having sexual dreams going down. So thinking my libido was coming back… but I’m guessing the mirtazapine was covering the symptoms. I don’t know. All I know is I will not have another orgasm until I am off and everything feels normal. This could be years😢 I am so sorry!!! All I can say is: I understand. I really, really do. Felt like an animal, felt like I was doing something to my own body against my will while I had PGAD. It wasn't even a shame thing, it was an autonomy thing. It was horrible. So, I feel you, and I will cross my fingers for you. I still do think it will pass. ❤️ Approx. 2000-2015: on and off varying doses of citalopram, seroquel, sertraline, lamotrigine; several CTs. 2015: Pregnant and wrongly diagnosed and medicated - 250 mg. Setraline. Serotonergic syndrome. 2016: Got my self down to approx. 180 mg Sertraline. Still serotonergic syndrome. 2017-2020: Quetiapine - up to 700 mg. and 50 mg. Sertraline. 2020: Pregnant. Down to 400 mg. Quetiapine and 50 mg. Sertraline. 2022: 50 mg. Sertraline. 400 mg. Quetiapine. Up to 70 mg. Vyvanse. Late 2023: 25 mg. Sertraline. 300 mg. Quetiapine. Up to 60 mg. Vyvanse. 2024 (Jan and Feb): Quit Sertraline cold turkey. Then Vyvanse cold turkey. Went down from 300 to 200 mg. Quetiapine in weeks. :'-( 2024: Back on 1 mg. Sertraline. (Still on 200 mg Quetiapine). Got bad reaction to going back on. Went off. Got worse. Back on 0,9 mg. Trying to go back on fish oil and magnesium too, and trying to quit coffee, sugar and occasional nicotine gum. Link to comment Share on other sites More sharing options...
DeeVe Posted July 1 Share Posted July 1 @Kathrinethank you 💕 1 2012-2020: Cipramil 15 mg (tappering during 1 year, no wd)2023 February: Sertraline 50mg and Fluanxol 1mg Stop Sertralin July 2023. Since Pgad, painful bladder, tinnitus among other symptoms Stop Fluanxol August 2023. Symptoms got worse. Link to comment Share on other sites More sharing options...
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