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  • Moderator Emeritus
Posted
On 12/28/2023 at 7:36 AM, Ashpashley23 said:

All I can do is hold on as tightly as I can and trust that eventually it will go on its own. 

I understand this need to trust.  So sorry you're having to go through this.  Sending best wishes.

Zoloft: 1995 - 2015

Prozac: 2015 - 2018 (tapered from 40mg x day on July 31 to 30mg on August 31 to 20mg on September 31 to 10mg October 31 to 0mg on  December 15, 2018

Gabapentin: 2016 to 2019  (tapered from 300mg x day to 150mg on August 31, 2019 to 75mg on September 15 to 50mg on September 31 to 25ishmg on October 15 to 0mg on December 1, 2019

Enalapril: 2010 - 2019

Lipitor: 2017 -2017

Metformin: 2000 - 2020

Liothyronine: 2007 - 2019

Levothyroxine: 2000 - 2022

  • 5 months later...
Posted

I’m not sure if this is DPDR or vertigo but I often get a feeling like I’m not quite balanced or secure in my body. It feels like I’m rocking or jerking back and forth or falling even when I’m sitting or lying down. Has anyone else experienced this?

2012-2013 - 5mg Lexapro

2015-2016 - 5mg Lexapro

(the above are approximate dates but each time i was taking it for at least 6 months)

April 6, 2024 - one 10mg dose Lexapro and immediate adverse reaction 

  • Mentor
Posted
On 6/15/2024 at 6:13 PM, Celeste1990 said:

Has anyone else experienced this?

Yes.

22.10.2020 sertraline (50 upped to 100mg for two months) and pregabalin (150mg for half year)

2021 mirtazapine (30mg for some months), amitryptyline (cascading dose but doctor took me off it before reaching five tablets), olanzapine (5mg), lithium (this one I reacted to terribly as well, maybe due to my Hashimoto disease)

2022 duloxetine, reboxetine, venlafaxine (all unsuccessful attemps stopped after one day with no side effects following days, only reboxetine pushed through with one box)

2023 mainly bupropion (150mg stopped after few weeks, 300mg stopped after few another weeks, 150mg stopped after few months) until IAR, buspirone (5mg) tried for 3 days 

autumn 2023 - 150mg bupropion daily,

12.12.2023 - bupropion stopped,

16.12.2023 - 100mg sertraline,

18.12.2023 - 150mg bupropion,

19, 20 & 21.12.2023 - 150mg bupropion & 5mg buspirone,

Nothing ever since 21.12.2023, but 25mcg levothyroxine since around summer 2023 until 10.07.2024 for Hashimoto disease (non-psychiatric drug)

 

First wave: 18.07.2023; immediate adverse reaction to sertraline and first CNS crash: 16.12.2023: late onset protracted withdrawal from bupropion: 13.04.2024; third crash: 16.07.2024; currently still in acute phase of PAWS as of September 2024

  • 3 weeks later...
Posted
On 6/15/2024 at 7:13 PM, Celeste1990 said:

I’m not sure if this is DPDR or vertigo but I often get a feeling like I’m not quite balanced or secure in my body. It feels like I’m rocking or jerking back and forth or falling even when I’m sitting or lying down. Has anyone else experienced this?

Yes.

sometimes i feel like iam not existing at all.

i wasn't on a certain drug all the period. i took many drugs many times and for no very long period but to simplify.

--fluvoxamine maleate100 mg + amisulpride 200mg------started july 2012 and total taper in february 2015 ( 9 months without drugs then)

--sertraline 100mg -------started november 2015 and total taper (withoud reduction slowly) in november 2016( 4 months withoud drugs then).

--sertraline 100mg + quetiabine 25mg ( started in mars 2016 and for 7 months) then fluvoxamine maleate 100mg again for another 7months and after that a something like to use every drug for 14 days and for about 1.5 years.

--my last drug was trintellix 10 mg ( used it in 12/2018and total taper in 4/2019).

symptomts i have now ( bad concentration and problems in short and long memory+ bad depersonalization).

Posted

.

1994-2002 several different SSRI’s,  klonopin.   
2002 ct klonopin,  2 wks later put back on klonopin, added  Seroquel & lexapro, 

2002 weaned klonopin 2003 weaned off seroquel.  2006 Ct lexapro, 

 

2007  imipramine 250mg, 2016-2017  150mg,  2017-2019 100 mg, Jan 2020 50mg, 2 weeks later 60 mg November 2022 56 mg December 2022 50mg 4/5/23 47mg April 2023 40mg june 23,2023 35mg, April 15, 2024 33mg, May 15, 2024 32mg, 5/27/24 30mg, 6/09/24 29mg, 6/14 28mg, 8/2 27mg, 12/9/24 26mg 12/28/24 25mg

 

Ropinirole 1/2020  3/21 ropinirol 2 mg 

clonidine .1mg 1/2024

 

Supplements: boron, diatomaceous earth, cream of tartar  and Celtic sea salt, transdermal magnesium oil

 

 

  • 1 month later...
Posted

Hello everyone!

 

Are there people here with derealization who pass through windows and waves? How are you doing now? Are there any positive stories? I need support

 

I had several windows with no symptoms, does that mean I'll feel better? It's the fifth month

2019-2020 fluoxetine due to anxiety disorder (1 capsule per day), not WD.

2023 - Random Atarax 0,12 - 25 mg

2024 - tried to start taking Zoloft (cover for Atarax), after 1.5 months cold turkey due to headaches. After 10 days withdrawal syndrome began

OFF Zoloft - 25th marth 2024; OFF Atarax - July 1th 2024.


MY PROGRESS: https://docs.google.com/spreadsheets/d/1FeyWn2cUXt8UGRp0th2-hMbfjJBzb2PU6Xyg2HcKy_4/edit

Now: significant improvements!

derealization +/-; waves of depression +/-; headaches +/-; confusion; hypnagogia; insomnia; nausea; diarrhea; loss of appetite; persistent mild depression; spots before the eyes; blurred vision; weakness in the left arm; paresthesia; pressure from inside the head; anxiety; surges in cortisol; panic attacks;

Posted

Hi @didiyana

 

1 hour ago, didiyana said:

I had several windows with no symptoms, does that mean I'll feel better?

 

Great sign! Healing is happening. 

In the windows you felt better, yes? Over time you will start to feel better and better. It's a process. 

Healing is happening all the time, even when we don't consciously perceive it. 

When you're in a window, you're healing. When you're in a wave, you're healing. 

 

1 hour ago, didiyana said:

Are there people here with derealization who pass through windows and waves? How are you doing now? Are there any positive stories? I need support

 

DP/DR has been a prominent symptom for me. It has gotten much better. I still get it sometimes, never as strong as it used to be. It gets better!

 

There are many positive stories. If you read the success stories there are plenty of people who have fully recovered from DP/DR.

 

Just keep taking good care of yourself. Practice acceptance and patience. Time is the best healer. 

One day you will be writing your success story to share with us!

 

Love, 

Ariel

1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs)

2012-2018 - 10mg lexapro/escitalopram (20mg?)    Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg  -->  July 2018 - 0mg

2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg    2020-2021 - 70mg down to 0mg  -->  July 2021 - 0mg

March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT)  -->  April 28th, 2021 - 0mg

August 2021 - 2mg melatonin   August 1, 2022 - 1mg melatonin   March 31, 2023 - 0mg melatonin

2024 supplements update: electrolyte blend in water sipped throughout the day; 1 tsp cod liver oil blend (incl. vit. A+D+E) w/ breakfast; calcium; vitamin C+zinc

 

Courage is fear that has said its prayers.  - Karle Wilson Baker

love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters.  - Rev. angel Kyodo williams

Holding multiple truths. Knowing that everyone has their own accurate view of the way things are.  - text on homemade banner at Afiya house

 

I am not a medical professional; this is not medical advice. 

Posted

Hello, @Ариэль !

 

Thank you for your answer 🙏

Yes, I had a window in June, where I was 5-8 days without symptoms, and sometimes there are spontaneous days. July was stable and symptomatic, but not much. And now in August, fast windows and waves have begun, which knock me out of the rut.

 

I'm trying to get distracted and deal with de-realization, but in the waves I'm affected by depression, which prevents me from noticing derealization. I'll read your story, I hope I can find more useful information there :)

2019-2020 fluoxetine due to anxiety disorder (1 capsule per day), not WD.

2023 - Random Atarax 0,12 - 25 mg

2024 - tried to start taking Zoloft (cover for Atarax), after 1.5 months cold turkey due to headaches. After 10 days withdrawal syndrome began

OFF Zoloft - 25th marth 2024; OFF Atarax - July 1th 2024.


MY PROGRESS: https://docs.google.com/spreadsheets/d/1FeyWn2cUXt8UGRp0th2-hMbfjJBzb2PU6Xyg2HcKy_4/edit

Now: significant improvements!

derealization +/-; waves of depression +/-; headaches +/-; confusion; hypnagogia; insomnia; nausea; diarrhea; loss of appetite; persistent mild depression; spots before the eyes; blurred vision; weakness in the left arm; paresthesia; pressure from inside the head; anxiety; surges in cortisol; panic attacks;

Posted
1 hour ago, didiyana said:

Thank you for your answer 🙏

Yes, I had a window in June, where I was 5-8 days without symptoms, and sometimes there are spontaneous days. July was stable and symptomatic, but not much. And now in August, fast windows and waves have begun, which knock me out of the rut.

 

I'm trying to get distracted and deal with de-realization, but in the waves I'm affected by depression, which prevents me from noticing derealization. I'll read your story, I hope I can find more useful information there :)

 

Hi @didiyana,

 

I'm also passing through windows and waves without a defined pattern. There are days when it feels like I'm completely healed. In others, depression, anxiety, and negative thoughts are terrible and overwhelming.

 

Stay with God.

2010 - 2017 20mg Lexapro2017 - 2023 60mg Cymbalta, July 2023 90 mg Cymbalta / august - november 2023 - 150mg Pristiq  + 0,25 Rexulti + 0,25 xanax SOS / dezember 2023 -  january 2024 - 20mg Lexapro + 0,5 Rexulti + 0,25 xanax SOS /

january - february 2024 - 20 mg Lexapro + 50 mg Luvox + 0,25 xanax SOS/ 02/22/2024 - 600mg Lithium + 25 mg Amitriptyline  + 25mg Luvox / 03/15/2024 - 600mg Lithium + 25 mg Amitriptyline + 12,5mg  Luvox / 03/25/2024 - 600mg Lithium + 12,5 mg Amitriptyline + 12,5 mg Luvox / 04/03/2024600 mg Lithium + 12,5 mg amitriptyline + ZERO Luvox / 04/09/2024600 mg Lithium + 10 mg amitriptyline + ZERO Luvox / 04/12/2024Onset of withdrawal symptoms: anxiety, dread upon waking, depression, derealization, palpitation, negative thoughts, hopelessness / 06/22/2024 - 525 mg Lithium + 10 mg amitriptyline + ZERO Luvox, 07/1/2024 - 450 mg Lithium + 10 mg amitriptyline + ZERO Luvox, 7/7/2024 - 600 mg Lithium + 10mg amitriptyline + ZERO Luvox; 08/19/2024 - 525 mg Lithium + 10 mg amitriptyline + ZERO Luvox; 09/22/2024 - 450 mg Lithium + 10 mg amitriptyline + ZERO Luvox; 11/5/2024 - 375 mg Lithium + 10 mg amitriptyline + ZERO Luvox; 1 dec 2024 300 mg Lithium + 10 mg amitriptyline + ZERO Luvox ;  23 dec 2024 225 mg Lithium + 10 mg amitriptyline + ZERO Luvox

 

Posted

 

Good afternoon, @Warpman !

 

Thank you for your answer 🙏

I hope it's a good sign, waves and windows. I see that you are only at the beginning of the journey, let everything be fine with you, and it will all end quickly 👍

 

2019-2020 fluoxetine due to anxiety disorder (1 capsule per day), not WD.

2023 - Random Atarax 0,12 - 25 mg

2024 - tried to start taking Zoloft (cover for Atarax), after 1.5 months cold turkey due to headaches. After 10 days withdrawal syndrome began

OFF Zoloft - 25th marth 2024; OFF Atarax - July 1th 2024.


MY PROGRESS: https://docs.google.com/spreadsheets/d/1FeyWn2cUXt8UGRp0th2-hMbfjJBzb2PU6Xyg2HcKy_4/edit

Now: significant improvements!

derealization +/-; waves of depression +/-; headaches +/-; confusion; hypnagogia; insomnia; nausea; diarrhea; loss of appetite; persistent mild depression; spots before the eyes; blurred vision; weakness in the left arm; paresthesia; pressure from inside the head; anxiety; surges in cortisol; panic attacks;

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