wildling Posted May 31, 2019 Share Posted May 31, 2019 Hey everyone. I know there is already a DP/DR topic, but I couldn’t find topic on this subject. Please correct me if I’m wrong. This one symptom in particular really is the worst thing I’ve ever experienced. I’m barely hanging on. To keep it short: My derealization started autumn 2017 after a year on anti anxiety drugs. It just one day started out of nowhere: I wasn’t anxious, I didn’t have any major trauma or stress in life. In fact, I had just spent a very pleasant summer. After a year of trying to figure out what was wrong I pretty quickly tapered the anti anxiety medication and was left with small dose of benzo. After the rapid taper, dissociation started slowly become worse and worse. It started to have qualities of depersonalization, where I couldn’t recognize myself in the mirror, human faces started to seem very strange and scary etc. (this was last summer/fall). So these DP/DR symptoms haven’t subsided ONCE. They are 24/7. But the most bothersome symptom is this total loss of self and the reality. The anxious, obsessive rumination about reality, self and the questioning “what is world, humans, space, time and what is the point in all of this.” World and everything in it is just plain scary and doesn’t make sense. The empty feeling inside out. The feeling like I’m dead or my soul left my body and now there is this foggy robot just trying to live in some sort of hellish dream. I cannot find a safe place from within. This is just getting worse and worse. It has been like this for 8-9 months now and no matter what I do it is there. It feels very chemical. Something I can’t control no matter what. How do people survive this? I’ve tried EVERYTHING. No matter how much of focusing on something else, keeping my hands busy or deep breathing/walking/meditating. The focusing on something else -strategy doesn’t make much difference. I’m so scared that I will lose myself and my life completely: that even if this subsides eventually, I will not have anything left of myself or my memories of how it was and just a big trauma after going through all these deep scary things and feelings. I’m also starting to think that some of this might be something else: I have very low ferritin and also I suspect I suffered a whiplash 2 weeks before this dissociation started (my neck and shoulders are in a chronic tension and pain). I also suffer with severe constipation: maybe that causes brain fog or inflammation.. Might there be something else causing this horrible inner turmoil?? Is this spiritual awakening? Dark night of the souls or something else? I would gladly welcome any kind of concrete tips on how to get through this or is this something else than withdrawal. I don’t want to go to the psych ward because I think they can’t help and also doctors can’t help because they do not understand this. Thank you in advantage 🙏🏻 Link to comment Share on other sites More sharing options...
wildling Posted May 31, 2019 Author Share Posted May 31, 2019 I have an introduction topic where you can read the rest of my story and symptoms (there are plenty). Link to comment Share on other sites More sharing options...
Lloyd Posted May 31, 2019 Share Posted May 31, 2019 Hi Wilding, sorry to hear your DR & DP is so severe. I've experienced a milder version of the DR which has let up a bit over the course of my withdrawal. Also might sound silly but get your eyes checked, i have problems with mine where they don't work properly and cant focus and move side to side - i think its made the DR worse. I've read on other forums that DR comes and goes after time so take faith that its not always going to be like this. Do you notice the DR / DP when you are engrossed in something like a movie or video game? I tend to play games allot as it takes my mind of it & i don't notice the DR. Distraction seems to help. Paroxatine - 2004-2006 Effexor XR 75mg 2006 - 2016 (Discontinued Feb 2016) - Withdrawal for 6 months. Effexor XR 75mg Re-instated June 2017 (Discontinued Dec 2017) Effexor XR 2-3 mg Re-instated March 10 2018 - 1 day (Didn't work) Effexor XR 2mg Reinstated (Again) May 11 2018. 6 Beads July 2018 - 0.0mg of Effexor. Zilch Link to comment Share on other sites More sharing options...
Mentor marconyc Posted May 31, 2019 Mentor Share Posted May 31, 2019 I've experienced DP and DR. They are some of the most difficult symptoms to tolerate. I'm sorry you're going through this. Try to remind yourself that these symptoms are not dangerous. You are probably telling yourself, consciously or subconsciously, that the symptoms are catastrophic. Anxiety exacerbates DP/DR. In fact, anxiety is probably one of the main causes of DP/DR. Other causes include depression and childhood trauma. I try to tell myself that these symptoms are a way that my brain is trying to protect me, that it probably started in childhood in response to trauma, and that as I heal from withdrawal and learn to manage my anxiety better, the symptoms will go away. I went through a period years ago, when I first went on ADs, in which I had bad DP/DR, and eventually the symptoms completely disappeared. It can take time, but as you heal, the symptoms will keep diminishing until you no longer notice them. Another thing that helps me is feeling my feelings. If I push away strong feelings, it tends to exacerbate DP/DR. Benzos are another cause of DP/DR. Many people who use benzos have these symptoms, sometimes from withdrawal, and sometimes just from using them long term. I hope this is at least a little helpful. I'm actually having some DP/DR the past 2 days after not feeling these symptoms for quite a while, so I know how disturbing they can be. 2000–2015: sertraline 50mg, eventually up to 150mg for most of those years. Prescribed for dysthymia and generalized anxiety disorder. Two major attempts at discontinuing per psychiatrist's tapering advice were failures; each failure resulted in the dose being increased by 50mg. Those were my only increases in dose over the first 15 years 2000–2002: clonazepam .5mg 3x/day, then tapered quickly with no withdrawal Jan 2015–Dec 2016: tapered sertraline from 150 to 50mg (relatively slowly from 150 to 100 and then pretty quickly from 100 to 50); severe withdrawal at 50mg Jan 2017-Aug 2018: increased dose of sertraline from 100mg to 150mg to 200mg/day over the course of a few months per psychiatrist, who also added aripiprazole 1mg/day and clonazepam .5mg 2x/day Found SA; Aug 2018-May 2023: Slowly tapered off clonazepam and abilify from 2018 to 2020; sertraline 200mg/day (200 mgai) Taper: May 2023, 200 mgai; June 2023; 190 mgpw; July 1, 185 mgai; July 29, 181 mgai; Aug 27, 178 mgai; Oct 31, 175mgai; Dec 1, 171mgai; Jan 21, 2024, 168mgpw Link to comment Share on other sites More sharing options...
Clared Posted June 5, 2019 Share Posted June 5, 2019 Hi Wildling, I’ve been something similar since I took an antidepressant for five weeks and came off of it fairly rapidly two years ago. Unfortunately, I had an undiagnosed thyroid disorder at the time which I think added to my withdrawal issues. Taking the antidepressant and coming off of it caused me to have a type of existential crisis. I became obsessed with thinking about the universe, spirituality, human life, death, etc. It has been horrible. Thankfully, it has gotten a bit better over time, but I still don’t feel like myself. Hang in there. -D Link to comment Share on other sites More sharing options...
Edmunds Posted October 3, 2019 Share Posted October 3, 2019 Hello Wilding A leading treatment for dp/dr is Acceptance and Commitment Therapy with a well-qualified therapist. I’m doing it now in connection with serious wd from Effexor and Wellbutrin. It’s helping me a great deal in coping with my symptoms, though they are no doubt easier to manage than yours. For me derealization means being in a dense perceptual fog, together with anxiety, blurry vision, crying a lot, diarrhea, and fatigue. I’ve recovered from derealization several times in my life and will again. So will you! Fluoxetine 1997-2014, 2015, 10-40 mg. GAD and DR symptoms returned April 2013. Bupropion 2013-14, 4 mos; Lexapro 2014; Cymbalta 2014. Gabapentin 2014; Mirtazapene 2014. Buspirone 2015. Venlafaxine Dec. 2015 – May 2019, 150 mg, tapered to 0 in 3 weeks, May-June 2019 Bupropion Mar 2017 – July 2019 300 mg, tapered to 0 in 3 weeks, July 2019 Fluoxetine/Prozac May 2019 – present, tapered from 20 mg started Jan 2020, linear 10% every 4 wks.; tapered 6 to 4 mg June, 2, 2020; 4 to 1.8 mg Aug. 26, 2020; updose from 1.8 mg to 2.0 Nov. 16, 2020. Holding at 2.0 mg as of Mar 14,2021. April 14, 2021 updosed to 2.5 mg. D3 2,000 mg; Omega 3 360 EPA/240 DHA; Magnesium Chelate 250 mg; Inositol powder started Nov 12, 2020; Theanine 400 mg; cranial electrotherapy stimulation device, self-treatments started Mar 14, 2021. Link to comment Share on other sites More sharing options...
mustafa Posted October 3, 2019 Share Posted October 3, 2019 I think I'm the same like you , wilding. It is really scaring but the worst thing is that you don't feel this scaring( this is for me in the beginning). This also happened to me as a result of rapid taper of trintellix ( almost on the same date like you). I think this is because trintellix it self is for depression so the withdrawals are severe depression( and hence depersonalization). 6 months ago , I was like if i died and woke up again but still dead. I couldn't understand the situations around me at all.it was like to say what does this mean and my brain start to be nervous, very nervous. It is really scary. Many times to wake up depressed and when wake up, I feel like I can't control my self. It is like the one inside is frozen and has no any response to any thing. At some time. I was to laugh without any control on this. I'm still continuing my withdrawal. Some thing ok is going to happen. I afraid from next times but hope I will deal. Write to me and say, how you feel now. Good luck for you ❤️ i wasn't on a certain drug all the period. i took many drugs many times and for no very long period but to simplify. --fluvoxamine maleate100 mg + amisulpride 200mg------started july 2012 and total taper in february 2015 ( 9 months without drugs then) --sertraline 100mg -------started november 2015 and total taper (withoud reduction slowly) in november 2016( 4 months withoud drugs then). --sertraline 100mg + quetiabine 25mg ( started in mars 2016 and for 7 months) then fluvoxamine maleate 100mg again for another 7months and after that a something like to use every drug for 14 days and for about 1.5 years. --my last drug was trintellix 10 mg ( used it in 12/2018and total taper in 4/2019). symptomts i have now ( bad concentration and problems in short and long memory+ bad depersonalization). Link to comment Share on other sites More sharing options...
wildling Posted August 27, 2020 Author Share Posted August 27, 2020 Hello everyone and thank you for answering my thread! I am so sorry it has been so long.. I was at the point where I just needed to distract myself from it all and to try and survive from a minute to minute. And guess what, this spring I was doing already so much better!! The existential fear and terror subsided, the dp/dr, anxiety, ocd, obsessive thoughts and brain fog are still there but they didn’t cause so much terror and I was able to do a lot of things that previously were out of reach. Until now, when I hit the worst wave I’ve been since winter 2019. But I’m hopeful this too shall pass!! We have been through so much! Just need to battle again this intense terror and fear of losing control. During these times, the dp/dr certainly doesn’t help. Much love to you all. Link to comment Share on other sites More sharing options...
Moderator Emeritus ChessieCat Posted August 28, 2020 Moderator Emeritus Share Posted August 28, 2020 10 hours ago, wildling said: Hello everyone and thank you for answering my thread! I am so sorry it has been so long.. I was at the point where I just needed to distract myself from it all and to try and survive from a minute to minute. And guess what, this spring I was doing already so much better!! The existential fear and terror subsided, the dp/dr, anxiety, ocd, obsessive thoughts and brain fog are still there but they didn’t cause so much terror and I was able to do a lot of things that previously were out of reach. Until now, when I hit the worst wave I’ve been since winter 2019. But I’m hopeful this too shall pass!! We have been through so much! Just need to battle again this intense terror and fear of losing control. During these times, the dp/dr certainly doesn’t help. Much love to you all. @wildling Please update your Intro topic with this information. Thanks. * NO LONGER ACTIVE on SA * MISSION ACCOMPLISHED: (6 year taper) 0mg Pristiq on 13th November 2021 ADs since ~1992: 25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq: 50mg 2012, 100mg beg 2013 (Serotonin Toxicity) Tapering from Oct 2015 - 13 Nov 2021 LAST DOSE 0.0025mg Post 0 updates start here My tapering program My Intro (goes to tapering graph) VIDEO: Antidepressant Withdrawal Syndrome and its Management Link to comment Share on other sites More sharing options...
wildling Posted August 28, 2020 Author Share Posted August 28, 2020 @ChessieCat Hi, I did an update there also but can link this there as well. Link to comment Share on other sites More sharing options...
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