traz23 - help: withdrawal, medication or medical condition?

[traz23]

15 hours ago, Tom2020 said:

It's great there's a sauna in your building. I think 10 minutes is about all I could stand in one go although I'd have multiple sessions.

 

What about an electric blanket or heating pad? That would be more convenient than warming gel packs in the microwave. I found wirecutter is good for reviews although it can be hard to get the same models in Canada and they always cost more here. Wirecutter also mentions risks of burns and fires https://www.nytimes.com/wirecutter/reviews/best-heating-pad/

thank you for the tip. I will have a look into those 

[Tom2020]

How are you @traz23? How are you finding the pregabalin?

[traz23]

On 4/22/2023 at 3:07 PM, Tom2020 said:

How are you @traz23? How are you finding the pregabalin?

Thanks for checking in Tom2020. Unfortunately I'm doing significantly worse : way less mobility, more and more movements are painful and difficult to do, little autonomy etc. Have a couple of specialist appointments in May and June lined up. Not sure if I will make it or if I will end up taken to ER by  then. Seems that holding the Trazodone dose for so many months didn't stop the muscle loss. Don't have much hope left at this point. Either a miracle will happen, or I'll soon be part of statistics where only circumstantial, rather than factual, evidence would be pointing to yet another life destroyed by drugs.

Pregabalin helped a bit with  with some of the nerve sensations  but as with other drugs of this kind, it lost its effectiveness. I am not planning to escalate the dose of this point given it wasn't of too much help so I will leave it at that for now.
 

[Tom2020]

I'm so sorry things have been getting worse! You're in such an awful situation.

 

I looked over your posts again and you have a complex history in the months before you noticed the muscle wasting and pain. You weren't sure if it was the diazepam or trazodone that triggered it. Could it have been the sleeping pills?

 

You mentioned statistics - I sometimes wonder why the health system doesn't collect data about everyone's drug outcomes, at some level of detail. It would be extra work but we're living in the age of Big Data, where we should be collecting and analysing this kind of data. It would make it pretty obvious withdrawal was a major problem.

[traz23]

14 hours ago, Tom2020 said:

I looked over your posts again and you have a complex history in the months before you noticed the muscle wasting and pain. You weren't sure if it was the diazepam or trazodone that triggered it. Could it have been the sleeping pills?

Could have, for sure. It is so challenging when tests don't point to anything in particular..

 

By the way, learned myself that being mostly bedridden brings along a lot of "fun" stuff such as developing blood clots, getting nail infections etc

 

collecting such statistics would be a good idea; I'm not sure if there's any country doing that.  maybe too much work for some?! Or maybe it would work against big pharma.

[Tom2020]

I'm sorry to hear about the complications of being bedridden. I have a chronic nail infection from being in bed about 23 hours a day. I haven't been able to get rid of it but antibiotic ointment keeps in under control so I rarely notice it now.

 

You're right that big pharma might not want it known what their drugs really do!

 

How is your pain and sleep?

[traz23]

21 hours ago, Tom2020 said:

I'm sorry to hear about the complications of being bedridden. I have a chronic nail infection from being in bed about 23 hours a day. I haven't been able to get rid of it but antibiotic ointment keeps in under control so I rarely notice it now.

 

That is close to time I'm also spending in bed. but what's bothering you that badly that keeps you bedridden for so long, though .. is it the pesky ME/CFS?

 

21 hours ago, Tom2020 said:

 

How is your pain and sleep?

They're connected to my degrading physical condition,  and so they're both worse as well, unfortunately

[Tom2020]

Thanks to the ME I don't have the energy to do much outside my condo, and I find sitting uncomfortable, so I'm although I'm not exactly bedridden I'm propped up in bed almost all my waking time. Maybe a reclining chair would be OK but the bed works well enough.

 

I'm also really deficient in vitamins C and D because I react badly to them but if I can raise my levels that would probably give me a little more energy. I'm now thinking I should try tapering *up* supplements more like the way we taper down medications. In my last attempt I started very low but probably increased too fast and didn't hold long enough on each step, and gave up when it got too stimulating.

 

I use melatonin to get to sleep and valerian to get back to sleep, usually twice a night, sometimes three times. If I'm really struggling to get back to sleep I put on a guided meditation and eventually that does it. Have you tried that?

[traz23]

12 hours ago, Tom2020 said:

 

 

I'm also really deficient in vitamins C and D because I react badly to them but if I can raise my levels that would probably give me a little more energy. I'm now thinking I should try tapering *up* supplements more like the way we taper down medications. In my last attempt I started very low but probably increased too fast and didn't hold long enough on each step, and gave up when it got too stimulating.

It might be a good idea to go up in dose slowly. Maybe the liquid vitamins such as vitamin D for children which come in really small doses could be useful in this kind of scenarios.

 

12 hours ago, Tom2020 said:

 

 

I use melatonin to get to sleep and valerian to get back to sleep, usually twice a night, sometimes three times. If I'm really struggling to get back to sleep I put on a guided meditation and eventually that does it. Have you tried that?

No for me unfortunately meditations keep me more alert and focused, so they don't really work for me in that regard , when it comes to sleep

 

 On a side note, I started contacting some major clinics in the US to see if they would take me,  and I'll figure out some sort of transportation afterwards if I do get accepted by any of them. It's ridiculous how long one might have to wait for appointments here in Canada.

[Tom2020]

My last dose of vitamin C was only 1mg! So I've been using water titration. I seem to have reacted badly to 1mg, and I definitely reacted to 3mg two days before that. Luckily I can tolerate a little more vitamin C than that in the form of food, otherwise I'd have scurvy.

 

It's a shame meditation doesn't work for your sleep. Is there anything else that does help?

 

I hope you'll find a US clinic to help. It's criminal how long our waiting lists are and they don't seem to prioritise people well.

[traz23]

20 hours ago, Tom2020 said:

My last dose of vitamin C was only 1mg! So I've been using water titration. I seem to have reacted badly to 1mg, and I definitely reacted to 3mg two days before that. Luckily I can tolerate a little more vitamin C than that in the form of food, otherwise I'd have scurvy.

 

It's a shame meditation doesn't work for your sleep. Is there anything else that does help?

 

I hope you'll find a US clinic to help. It's criminal how long our waiting lists are and they don't seem to prioritise people well.

Great to hear you can tolerate vitamin C in forms of food. Can't get too much of a dosage in that form unfortunately.

 

Medication works for sleep overall, however because of my condition is worsening and I get more pain more easily with movements and positions, sleep gets extremely eluding and interrupted.

 

Thank you; fingers crossed that one of them will accept me as their patient

[Tom2020]

When you wake during the night due to pain do you tend to get back to sleep fairly quickly?

 

I looked up what consumerlab has to say about supplements for nerve pain: "Several supplements may have limited benefit in reducing nerve pain caused by conditions such as sciatica or diabetic neuropathy, but the evidence remains weak. These include fish oil, curcumin, alpha-lipoic acid (ALA) and GLA, vitamin B12, vitamin D, vitamin E, benfotiamine and Ginkgo biloba." https://www.consumerlab.com/answers/do-any-supplements-help-with-nerve-pain/nerve-pain-supplements/?search=pain

 

A number of the comments say they get good result from ALA but it must differ a lot between people.

 

I'll be trying to increase my vitamin C intake from food for now since I have a little more tolerance, for whatever reason, than to supplements.

[traz23]

16 hours ago, Tom2020 said:

When you wake during the night due to pain do you tend to get back to sleep fairly quickly?

 

I looked up what consumerlab has to say about supplements for nerve pain: "Several supplements may have limited benefit in reducing nerve pain caused by conditions such as sciatica or diabetic neuropathy, but the evidence remains weak. These include fish oil, curcumin, alpha-lipoic acid (ALA) and GLA, vitamin B12, vitamin D, vitamin E, benfotiamine and Ginkgo biloba." https://www.consumerlab.com/answers/do-any-supplements-help-with-nerve-pain/nerve-pain-supplements/?search=pain

 

A number of the comments say they get good result from ALA but it must differ a lot between people.

 

I'll be trying to increase my vitamin C intake from food for now since I have a little more tolerance, for whatever reason, than to supplements.

No, I don't need to get back to sleep quickly, it's actually difficult. 

 

Thank you for the list of supplements; I will have to look into a ALA as I haven't heard of it before.

 

When you say you're trying to get vitamin C from food, are you referring to fruit such as oranges for example?

 

[Tom2020]

It's shame it's hard for you to get back to sleep. Do you at least fall asleep easily at the start of the night?

 

I skimmed over the ALA review on consumerlab (which is a great resource, but there's a subscription). It's an acid so it can make acid reflux or stomach ulcers worse if you have them. It can also cause skin rash and nausea and may affect thyroid function and thyroid tests. The typical dose for diabetic neuropathy was 600 to 1200mg a day divided into three equal doses. (I know you don't have diabetic neuropathy, and it includes other symptoms, but it's what I could see about using ALA for pain relief.) It often takes several weeks to take full effect. There's preliminary evidence that ALA is more effective with when combined with GLA (gamma-linolenic acid).

 

Citrus fruit would be a great source of vitamin C but I'm too sensitive for it, and it doesn't keep very long. The last time I had half a kiwi it triggered strong ME symptoms for 3 days. That was over a year ago and I'd hoped I'd become less sensitive over time but it seems not. Yesterday I had about 1/4 cup of edamame beans, which only has about 3.6mg of vitamin C , whereas an orange has about 75mg. II reacted better to the edamame than I did to 3mg from a supplement but it still messed me up a bit all day and last night. I guess I absorb it more slowly from edamame, broccoli and spinach than from a supplement dissolved in water and that's why the food is a little more tolerable. Citrus is mostly juice of course so I'd absorb that quickly.

[traz23]

On 5/11/2023 at 1:04 AM, Tom2020 said:

It's shame it's hard for you to get back to sleep. Do you at least fall asleep easily at the start of the night?

 

I skimmed over the ALA review on consumerlab (which is a great resource, but there's a subscription). It's an acid so it can make acid reflux or stomach ulcers worse if you have them. It can also cause skin rash and nausea and may affect thyroid function and thyroid tests. The typical dose for diabetic neuropathy was 600 to 1200mg a day divided into three equal doses. (I know you don't have diabetic neuropathy, and it includes other symptoms, but it's what I could see about using ALA for pain relief.) It often takes several weeks to take full effect. There's preliminary evidence that ALA is more effective with when combined with GLA (gamma-linolenic acid).

 

Citrus fruit would be a great source of vitamin C but I'm too sensitive for it, and it doesn't keep very long. The last time I had half a kiwi it triggered strong ME symptoms for 3 days. That was over a year ago and I'd hoped I'd become less sensitive over time but it seems not. Yesterday I had about 1/4 cup of edamame beans, which only has about 3.6mg of vitamin C , whereas an orange has about 75mg. II reacted better to the edamame than I did to 3mg from a supplement but it still messed me up a bit all day and last night. I guess I absorb it more slowly from edamame, broccoli and spinach than from a supplement dissolved in water and that's why the food is a little more tolerable. Citrus is mostly juice of course so I'd absorb that quickly.

No, I cannot fall asleep easily; that's the reason for taking the Trazodone in the first place

 

i think I will steer clear of adding even more supplements to the ones that I'm already taking, after all. I believe I need to be more gentle on what my body is taking in and avoid overwhelming it.

 

Have you considered a food sensitivity test (there some of them are extremely comprehensive) ? wondering if that could help you navigate your sensitivities and reactions..

 

 

[Tom2020]

I've been taking melatonin to get to sleep for a few years. It works for me but you're not supposed to be on it long-term so that's a bit concerning. At least I'm only taking 1mg.

 

A food sensitivity test is a great idea. Thanks for suggesting it.

 

12 hours ago, traz23 said:

i think I will steer clear of adding even more supplements to the ones that I'm already taking, after all. I believe I need to be more gentle on what my body is taking in and avoid overwhelming it.

After my last post I was wondering if it was a good idea to add something else to the mix.

 

Having said that, and much as I hate pregabalin, upping your dose might help with pain. If you're on 50mg/day that doesn't sound like a therapeutic dose. From: https://www.drugs.com/dosage/pregabalin.html#Usual_Adult_Dose_for_Neuropathic_Pain

Usual Adult Dose for Neuropathic Pain

Initial dose: 75 mg orally twice a day

• Increase dose to 150 mg orally twice a day within 1 week based on efficacy and tolerability; for insufficient pain relief after 2 to 3 weeks, may be increase dose up to 300 mg orally 2 times a day as tolerated

Maintenance dose: 150 to 600 mg per day in divided doses
Maximum dose: 600 mg per day

 

[traz23]

13 hours ago, Tom2020 said:

I've been taking melatonin to get to sleep for a few years. It works for me but you're not supposed to be on it long-term so that's a bit concerning. At least I'm only taking 1mg.

 

A food sensitivity test is a great idea. Thanks for suggesting it.

 

After my last post I was wondering if it was a good idea to add something else to the mix.

 

Having said that, and much as I hate pregabalin, upping your dose might help with pain. If you're on 50mg/day that doesn't sound like a therapeutic dose. From: https://www.drugs.com/dosage/pregabalin.html#Usual_Adult_Dose_for_Neuropathic_Pain

Usual Adult Dose for Neuropathic Pain

Initial dose: 75 mg orally twice a day

• Increase dose to 150 mg orally twice a day within 1 week based on efficacy and tolerability; for insufficient pain relief after 2 to 3 weeks, may be increase dose up to 300 mg orally 2 times a day as tolerated

Maintenance dose: 150 to 600 mg per day in divided doses
Maximum dose: 600 mg per day

 

yes, melatonin long term effects have not been studied enough. I tried it once, but steering clear as of now. 

 

I'm actually on 50 milligrams pregabalin twice a day. Pretty much useless. Will keep  this dose until I will be ready to taper down. I don't want more poison in my body, especially since it doesn't seem to help much.

 

This one is a very good test https://www.joincyrex.com/the-cyrex-system/array-10-multiple-food-immune-reactivity-screens; it was recommended by my naturopath. They are the ones who typically arrange these kind of tests.

[Tom2020]

Thanks for the link to the cyrex test. That looks very comprehensive!

[traz23]

Update from my end: a visit to another neurologist revealed nothing, as did a visit to a endocrinologist (for checking my hormones and stuff). There's a pending MRI for some muscles to rule out some conditions (which is unlikely based on symptoms according to the doctor). All in all ,  it points out to everything being medication related (Or covid vaccine) and not a medical condition. I suspected this from the very beginning, per my intro post.

 

I've been holding Trazodone dosage for six months now. No change, everything progressed to worse. Been on Pregabalin for over three months now and I think I will ween myself off of it because it's no longer bringing any benefit whatsoever.

It's become so much worse: have lost even more muscle, visible even on my scalp, neck, fingers, not just arms, legs, glutes anymore. My legs cannot even be in the normal position they're always rotated outwards. And when I try to keep them straight like when sitting or lying down it starts to hurt and it creates some tingling... Can't rotate my neck too much either because it starts to become painful in the little muscles I have left there. Barely doing anything myself. Even pressure from clothes creates problems . all my bones are crackling.
And all the muscles circumference measurements are indicating that is getting worse. Highly likely I will be completely disabled. It just keeps getting worse...

 

I plan to resume my AD (Trazodone) taper after a long  hold, along with Pregabalin. Although I am 99% protracted, worsening and in shambles from the benzos, I am thinking it might be good to also try get off all meds as well. I know at the same time that can make things much worse. So it's a bit of a gamble in my case I think. Likely my condition will degrade so much that I won't be able to make it to the end of this long , dual taper. But I need to take this 50/50 gamble of not doing anything and watch things get worse vs doing something(taper meds) and hoping for "?"

I don't see what else I can do or try.

 

I'll report back if/when I make it alive out of this.

 

[Tom2020]

Thanks for the update @traz23. I'm so sorry you're in an even worse state now. What an awful situation!!

 

Have you tried a TENS unit for pain? I don't know much about them but they're cheap and you don't need a prescription.

 

I don't think you mentioned a covid vaccine before. When did you have that?

 

Your gamble is a terrible dilemma to face. A dual taper is a lot harder, if I recall from elsewhere on this site. How about starting with one and seeing how that goes? I'd also look for advice on dual tapers before attempting it.

 

Please keep us updated.

[traz23]

12 hours ago, Tom2020 said:

Thanks for the update @traz23. I'm so sorry you're in an even worse state now. What an awful situation!!

 

Have you tried a TENS unit for pain? I don't know much about them but they're cheap and you don't need a prescription.

 

I don't think you mentioned a covid vaccine before. When did you have that?

 

Your gamble is a terrible dilemma to face. A dual taper is a lot harder, if I recall from elsewhere on this site. How about starting with one and seeing how that goes? I'd also look for advice on dual tapers before attempting it.

 

Please keep us updated.

 thank you Tom2020. 

 

Already tried tens; did not tolerate it well even at the lowest intensities. Way too sensitive nerves.

 

I haven't mentioned COVID vaccine because I haven't really thought it's relevant; I had it in 2021.

 

I already did the dual taper in the past : benzo and AD. And I have read guidelines on SA about that. I kind of know how to recognize glutamate surges which would come from lyrica or benzos. Taking it very slow with both if and until I will hit the wall and see then.  Will see what happens.

[Tom2020]

It's a shame TENS didn't help @traz23

 

Vaccines have varying degrees of reactogenicity. I had a flu and pneumonia shots at the same time and the latter is known to cause more reactions than most, although I gather the reaction is typically anaphylactic shock, not the sort of things you or I are dealing with. I'd only finished my painful and rushed pregabalin withdrawal a couple of weeks earlier, then had the vaccines, then soon began having major long-term withdrawal symptoms and a permanent ME flare-up.  I suspect the vaccines were part of it given the timing, and the fact I usually have an ME flare-up for at least a few days after a flu shot (more if I was run down, which I definitely was from the pregabalin withdrawal). But I also had a lot of other strains earlier in the year. Your system went through a lot in 2021 and the vaccine could have been a factor, but who knows.

 

I'm glad you've read the SA dual taper guidelines and know what to look for. My pregabalin withdrawal was very different from my citalopram withdrawals, but apparently other people find WD from different drugs similar. Hopefully you won't find pregabalin hard because you've been on a low dose and not for a very long time.

[Tom2020]

@traz23 I read that MSM is used to treat muscle and tendon soreness and inflammation in horses. Since it affects muscles I wonder if it's somehow involved in the muscle wasting and if stopping would help. It's a long shot of course but I suppose not hard to try.

[traz23]

15 hours ago, Tom2020 said:

@traz23 I read that MSM is used to treat muscle and tendon soreness and inflammation in horses. Since it affects muscles I wonder if it's somehow involved in the muscle wasting and if stopping would help. It's a long shot of course but I suppose not hard to try.

hmmmm. that should be a pretty benign ingredient that should help with inflammation, pain and others. And I haven't read/heard complaints about it..

[Tom2020]

Sorry for the slow reply @traz23. My thinking is the body is super complex and there's an awful lot we don't know about it. Drugs have all kinds of side effects that are often only slowly acknowledged after decades of millions of people using them (chronic withdrawal problems, for example!). And drugs are generally only tested one at a time, not in combination with others, which is how they're often actually used. That's drugs - supplements are a much bigger unknown because there's hardly any testing or research on them.

 

Everything seems to have side effects. MSM affects the immune system:

Quote

"MSM has been shown to improve immune function markers. RCT found that in blood samples taken after bouts of exhaustive exercise, there was a reduced response to an infectious stimulus in the placebo group, but the MSM group maintained a robust response, indicating that MSM protected against stress-induced immunosuppression. The authors postulate that MSM’s anti-inflammatory properties reduce the overstimulation of inflammatory cells during exercise, thus conserving their ability to respond to infections threats.^[50] This is supported by in vitro research showing MSM inhibits over-activation of white blood cells and has an anti-apoptotic effect.^[51][52]"

https://en.wikipedia.org/wiki/Methylsulfonylmethane#Allergies_and_immunity

 

Maintaining immune response despite stress sounds like a good thing - unless you end up with an autoimmune reaction. Maybe that's what happened to you.

 

Thanks to my withdrawal I react badly to some vitamins, which are not just benign but essential. So I can imagine your system could have started reacting to MSM, or one of the chain of biochemical changes it triggers.

 

All of which is to say we can't be sure what drugs and supplements might do.  Do you have much to lose from stopping the MSM?

 

How's your tapering going?

 

[traz23]

20 hours ago, Tom2020 said:

Sorry for the slow reply @traz23. My thinking is the body is super complex and there's an awful lot we don't know about it. Drugs have all kinds of side effects that are often only slowly acknowledged after decades of millions of people using them (chronic withdrawal problems, for example!). And drugs are generally only tested one at a time, not in combination with others, which is how they're often actually used. That's drugs - supplements are a much bigger unknown because there's hardly any testing or research on them.

 

Everything seems to have side effects. MSM affects the immune system:

 

Maintaining immune response despite stress sounds like a good thing - unless you end up with an autoimmune reaction. Maybe that's what happened to you.

 

Thanks to my withdrawal I react badly to some vitamins, which are not just benign but essential. So I can imagine your system could have started reacting to MSM, or one of the chain of biochemical changes it triggers.

 

All of which is to say we can't be sure what drugs and supplements might do.  Do you have much to lose from stopping the MSM?

 

 

After I got really intrigued by what you just mentioned about MSM, I did some digging here and I found out that I actually started taking it ~3 months after my muscular problems started, not before that or anything like that, so it seems  extremely unlikely to contribute to it. 

Should I be stopping it, well, I guess maybe more pain and inflammation .. the kind of stuff that's supposed to help with?

 

20 hours ago, Tom2020 said:

 

 

How's your tapering going?

 

It is going so so. More twitching and jerks, more pins and needles and a bit more pain. When it gets a bit too much I will have to pause for a bit I guess. For now it's bearable. I am down just over 5% of each in less than a month.

 

Any improvements or changes on your end?

[Tom2020]

Yes, it sounds like you can rule out the MSM based on the timing. I'm glad the tapering has been bearable. Good luck with it.

 

I learned there are two forms of vitamin D (calcifediol and calcitriol) you can get on prescription in the US and it seems at least one is available in Canada. I react badly (and quickly) to the usual D3 supplements, but D3 eventually gets converted into these other forms before the body uses it. So with luck I might not react to these forms. Otherwise I've been pretty distracted by buying a condo with my parents and preparing to sell the old one.

[traz23]

On 7/14/2023 at 12:39 AM, Tom2020 said:

Yes, it sounds like you can rule out the MSM based on the timing. I'm glad the tapering has been bearable. Good luck with it.

 

I learned there are two forms of vitamin D (calcifediol and calcitriol) you can get on prescription in the US and it seems at least one is available in Canada. I react badly (and quickly) to the usual D3 supplements, but D3 eventually gets converted into these other forms before the body uses it. So with luck I might not react to these forms. Otherwise I've been pretty distracted by buying a condo with my parents and preparing to sell the old one.

Good you're being busy. Hope the condo stuff goes well

[Tom2020]

On 7/16/2023 at 1:48 PM, traz23 said:

Good you're being busy. Hope the condo stuff goes well

Thanks @traz23. We sold the condo I'm living in, which means I don't have to deal with viewings anymore.

 

How's your tapering going?

[traz23]

On 7/26/2023 at 8:04 PM, Tom2020 said:

Thanks @traz23. We sold the condo I'm living in, which means I don't have to deal with viewings anymore.

 

How's your tapering going?

could you are done with that.

 

I had to slow down with my taper; definitely did not match my initial plans. well I guess it is what it is..

[Tom2020]

On 7/28/2023 at 1:57 PM, traz23 said:

I had to slow down with my taper; definitely did not match my initial plans. well I guess it is what it is..

I'm sorry to hear that @traz23. I like your attitude: it is what it is.

[Tom2020]

How are you doing @traz23? It's been a while since we heard from you.

[traz23]

On 9/11/2023 at 1:10 AM, Tom2020 said:

How are you doing @traz23? It's been a while since we heard from you.

Awful; been getting worse and worse.

Tapering is going but very slow.

 

Had some second opinions from one of the top clinics in the US they found no evidence of an illness or disease. Which makes me even more certain of the fact that all this is the fallout of COVID vaccine or the poisons that I have been taking and withdrawing from for years now... Hoping for either a miracle or an asteroid.

 

How about you though :  how is it going with you , any better?

[Tom2020]

I'm so sorry things are not better for you @traz23. At least you've been able to keep up the tapering, however slowly. That alone can be challenging, even without other things going on. I'm sure you're right about your condition being triggered by the vaccine or withdrawals so it's good you've documented your case history on this site.

 

I finally completed the move to my new condo and have been here for about a week. Although my parents did almost all the work it's been exhausting, given my very limited energy, and has meant I haven't done much apart from moving chores. So it's great to have it done. The new place is much quieter, which is helping my sleep. Health-wise I'm about the same: only able to tolerate tiny amounts of vitamins, but getting slightly more variety in my diet, which can only be a good thing as it's so restricted.

Which clinic were you in touch with?  I don't think I can get any help in Canada.

[traz23]

On 9/12/2023 at 9:11 PM, Tom2020 said:

I'm so sorry things are not better for you @traz23. At least you've been able to keep up the tapering, however slowly. That alone can be challenging, even without other things going on. I'm sure you're right about your condition being triggered by the vaccine or withdrawals so it's good you've documented your case history on this site.

 

I finally completed the move to my new condo and have been here for about a week. Although my parents did almost all the work it's been exhausting, given my very limited energy, and has meant I haven't done much apart from moving chores. So it's great to have it done. The new place is much quieter, which is helping my sleep. Health-wise I'm about the same: only able to tolerate tiny amounts of vitamins, but getting slightly more variety in my diet, which can only be a good thing as it's so restricted.

Which clinic were you in touch with?  I don't think I can get any help in Canada.

thanks, Tom2020. So glad you are getting more sleep after your move. This is big.

 

Please PM me for the clinic info.