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lexhex


lexhex

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Mornings are a nightmare here too. My guess is once we start sleeping better, this will lessen over time. I wish everyone out there suffering with this a speedy recovery. I'm in withdrawal infancy right now and could really use some positive thought.

 

 

PLEASE NOTE: This post was moved from "I.Hate.Cortisol.Mornings", hence the discontinuity of content. -Jemima

Short term low dose Klonopin use back in 2004
Acute, protracted withdrawal after discontinuing
Began Lexapro in 2005 to ease Benzo withdrawal
Took 2 years to stabilize
Rapid taper from Lexapro in July/August 2012
Return of anxiety, insomnia and cardiac issues
Failed reinstatement early August 2012
Acute withdrawal for 9 months; intermittent symptoms for another 6

Relief on February 9, 2014 after addition of Taurine

Almost complete remission of symptoms w/addition of 12.5mg Atenolol daily

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Mornings are a nightmare here too. My guess is once we start sleeping better, this will lessen over time. I wish everyone out there suffering with this a speedy recovery. I'm in withdrawal infancy right now and could really use some positive thought.

 

Lexhex (love the name!),

 

Welcome to the group. When you feel up to it, start a topic in Introductions http://survivingantidepressants.org/index.php?/forum/3-introductions-and-updates/ with your info. You'll receive alot of individual guidance and support by the very knowledgeable Admin and moderators.

 

Go slow and it does get easier!

 

B

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

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  • Moderator Emeritus

Lexhex, I've moved your post here since it's your first one. Please use this section to introduce yourself, and if you feel up to it, put the details of your drug use and withdrawal in your signature, like so:

 

http://survivingantidepressants.org/index.php?/topic/893-please-put-your-withdrawal-history-in-your-signature/

 

Welcome to the forum. You'll find lots of support and information here to help.

Psychotropic drug history: Pristiq 50 mg. (mid-September 2010 through February 2011), Remeron (mid-September 2010 through January 2011), Lexapro 10 mg. (mid-February 2011 through mid-December 2011), Lorazepam (Ativan) 1 mg. as needed mid-September 2010 through early March 2012

"Never attribute to malice that which is adequately explained by stupidity." -Hanlon's Razor


Introduction: http://survivingantidepressants.org/index.php?/topic/1588-introducing-jemima/

 

Success Story: http://survivingantidepressants.org/index.php?/topic/6263-success-jemima-survives-lexapro-and-dr-dickhead-too/

Please note that I am not a medical professional and my advice is based on personal experience, reading, and anecdotal information posted by other sufferers.

 

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Hi all,

 

New to the forum, found so much information here that at least I know I'm not alone. I am 46 yeras old. My first experience with any type of psychiatric drug was Klonopin for panic attacks. I took the drug as directed for 4 months and developed such paradoxical reactions to it that I had to go into a treatment center to get off it safely. The addiction specialist I was assigned to recommended Lexapro once I was about 6 months out from the Klonopin incident. I remained on Lex consistently varying the doses between 5 and 15 mg for about 6 years. Primarily, I was on 10mg unless I was having a rough patch, or wanted a break from the sexual side effects. In July of this year, I decided I wanted to be clear of the drug and I did a fairly rapid taper. Initially, I was irritable, short tempered and high strung, but nothing crazy until the last week of July when I had a MASSIVE panic attack in my car on my way home from a restaurant. My heart was racing so fast I thought I was going to die in the car. At that point, I realized I came off the Lex too fast and I tried to reinstate at the full 10 mg dose. The second dose I took sent me into full blown withdrawal. I immediately lost my appetite, had constant heart palpitations, insomnia, diarrhea, EXTREME anxiety and all over body buzzing, and had a resurgence of agoraphobia that I still can't shake. I went to a psychiatrist a week later who tried to reinstate me at a lower dose, but the same thing happened. I was taking beta blockers just to get the heart rate under control. So I said, no more. I decided that the up and down was too much for my already shattered nervous system and have remained without the drug since August 21. I still cannot sleep, digestiion is a challenge, I am sensitive to noise, light, stress of any kind and feel like I am a stranger in a body that is completely out of control. I take .25 mg of Melatonin to help with the sleep, but the REM nightmares wake me up every two hours. Overall, this has been as much fun as the benzo withdrawal was. I only hope time is the answer. I'm exhausted, fatigued and often terrified. But here I am.

Short term low dose Klonopin use back in 2004
Acute, protracted withdrawal after discontinuing
Began Lexapro in 2005 to ease Benzo withdrawal
Took 2 years to stabilize
Rapid taper from Lexapro in July/August 2012
Return of anxiety, insomnia and cardiac issues
Failed reinstatement early August 2012
Acute withdrawal for 9 months; intermittent symptoms for another 6

Relief on February 9, 2014 after addition of Taurine

Almost complete remission of symptoms w/addition of 12.5mg Atenolol daily

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  • Administrator

I am sorry you're going through this, lexhex.

 

Yes, time is the healer. We can suggest some things to cope with the symptoms, but there is no silver bullet, as you might have suspected.

 

You might find blocking out light from your bedroom and turning down lights after nightfall lessens your nervous system overstimulation, see Important topics about symptoms, including sleep problems

 

The psychiatrist who tried to reinstate a low dose -- did he or she recognize you had withdrawal syndrome? Was it this psychiatrist who prescribed beta blockers? Are you still taking them?

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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No, the psychiatrist really didn't address the withdrawal. He seemed to me to be a glorified prescription writer. My GP gave me the beta blockers at my request. I take between 5 and 10 mg only when needed, which is maybe once a week or so if the racing is too much for me to deal with. Or if I know I have to be in the car for extended time periods. The agoraphobia is an issue. The car is a trigger. I blacked out the windows in the bedroom which helps with the sleep, and because its fall, I have the benefit of extended darkness and shorter days. I just wish I could feel like myself again. This has forced me to check out of my own life and I hate how it's taken over everything. Thank you for the support. It helps.

Short term low dose Klonopin use back in 2004
Acute, protracted withdrawal after discontinuing
Began Lexapro in 2005 to ease Benzo withdrawal
Took 2 years to stabilize
Rapid taper from Lexapro in July/August 2012
Return of anxiety, insomnia and cardiac issues
Failed reinstatement early August 2012
Acute withdrawal for 9 months; intermittent symptoms for another 6

Relief on February 9, 2014 after addition of Taurine

Almost complete remission of symptoms w/addition of 12.5mg Atenolol daily

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I feel for you, Lexhex. I was also hexed by Lexapro, tapered too fast off adjustments of 20-30 mg per day for about 2 yrs. Among other so-called mood stabilizers, and a previous 10 year "therapy" on Celexa. I am a new member and at this point can only offer you compassion and empathy for your plight. I believe in what the others are saying, that it will pass with time, that every new day is movement forward out of this maw of awful symptoms.

 

It's good to see that although you're feeling like hell, you haven't lost your creativity with the name you chose:)

 

Pandora

 06/12 - Tapered off Cipralex. 30mg/Lithium 600mg/Epival 500mg

Very difficult time with 3-month taper off all drugs.

11/12 - Doc prescribed clonazepam 1 mg. for insomnia

01/14 - Clonazepan taper from 1 mg to .75 mg, then liquid microtaper to .638 mg. Depersonalization, extreme fatigue, muscle aches off/on.

05/15 - Switched to dry cut at .625 mg. Ok for 2-3 weeks, then same strong symptoms. Holding .625 mg.

06/15 - Switched over to liquid dosing .3125 ml 2x/day, 11 am & 11 pm.  Symptoms mild and no sleep issues.  Holding .625 mg/day.

10/15 - down to .530 mg. clonazepam in 4 months. .265 mg 2x/ day @ 10 am/10 pm. 

11/15 - holding at .528

11/15 - started microtaper to relieve persistent w/d symptoms

01/16 - microtaper not improving things; extremely sensitive to slightest decreases 

02/16 - holding at .524. 

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  • 1 month later...

Hey Alto, quick question - if I wanted to reinstate the Lexapro at microdoses, what is the best way to approach this? Trying to do 2.5 milligrams back in August sent me into a hypersensitive adrenaline state that I'm still battling now. How do I get to teeny-tiny doesing that my body will barely notice until I can bring it back up and stabilize?

 

Any thoughts would be appreciated...

Short term low dose Klonopin use back in 2004
Acute, protracted withdrawal after discontinuing
Began Lexapro in 2005 to ease Benzo withdrawal
Took 2 years to stabilize
Rapid taper from Lexapro in July/August 2012
Return of anxiety, insomnia and cardiac issues
Failed reinstatement early August 2012
Acute withdrawal for 9 months; intermittent symptoms for another 6

Relief on February 9, 2014 after addition of Taurine

Almost complete remission of symptoms w/addition of 12.5mg Atenolol daily

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  • Administrator

Hi, lex. I just saw your post and moved it here.

 

If you want to take a dose smaller than 2.5mg, use the liquid and the tiny .5mL or 1.0mL oral syringe. They can measure .01mL-.02mL.

 

I suspect, though, you are going to be hypersensitive to any amount.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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  • 2 years later...
  • Moderator Emeritus

Hi lexhex,

I noticed a recent post you made in the symptoms section, part of it here:

 

...Now I can't take ANYTHING. I kindle with any introduction of an SSRI or related med. Essentially, I am screwed and I've had to deal not only with acute and protracted withdrawal, but also the resurgence of all the symptoms with only intermittent relief. I self talk 24-7 and I never feel in control.

 

 

I'm sorry you have had a return of symptoms, your signature suggests you recovered about a year ago.  When did the symptoms return?  Was it just a temporary wave or are you still having them?

I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal...if you are lucky enough to find one.

My Introduction Thread

Full Drug and Withdrawal History

Brief Summary

Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety) Xanax PRN ~ Various other drugs over the years for side effects

2 month 'taper' off Lexapro 2010

Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal

DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms

Failed reinstatement of Lexapro and trial of Prozac (became suicidal)

May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.

Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes

Supplements which have helped: Vitamin C, Magnesium, Taurine

Bad reactions: Many supplements but mostly fish oil and Vitamin D

June 2016 - Started daily juicing, mostly vegetables and lots of greens.

Aug 2016 - Oct 2016 Best window ever, felt almost completely recovered

Oct 2016 -Symptoms returned - bad days and less bad days.

April 2018 - No windows, but significant improvement, it feels like permanent full recovery is close.

VIDEO: Where did the chemical imbalance theory come from?



VIDEO: How are psychiatric diagnoses made?



VIDEO: Why do psychiatric drugs have withdrawal syndromes?



VIDEO: Can psychiatric drugs cause long-lasting negative effects?

VIDEO: Dr. Claire Weekes

 

 

 

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  • 3 months later...
  • Moderator Emeritus

lexhex,

 

Did anything happen to cause your problems to reactivate?  I'm very curious about your story because it sounded like you had recovered.  I'm scared that your problems came back.

*I'm not a doctor and don't give medical advice, just personal experience
**Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not
-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014

-All meds were Rxed off-label for an autoimmune illness.  It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage.  All med tapers/cold turkeys directed by doctors 

-Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine

-Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey)

-Lorazepam 1 mg per night during 2011
-Lorazepam 1 mg per month in 2012 (or less)

-Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week

-Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs 

-First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened

-Two weeks after I got off all meds, I developed full-blown TD.  Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.

-Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned
-Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat
-Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged
-7 years off: Huge improvements, incl. improved dystonia

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