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ShantyO7: Here we go again... ShantyO


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Posted

Hi everyone! So grateful to have found this group. I hope I am doing this right?? I truly hope I can find the help and healing I need here. I have been on some kind of AD for the last 20 years. The 2 I mostly used was Cymbalta and Fluoxetine. First one I took regularly was Cymbalta due to the 'physical symptoms of depression" mainly nausea. I was on it for maybe 3 years. I have quit taking both of them before with NO WD symptoms at all. Was off all meds and when I was 5 months pg, started having panic attacks again so dr put me back on Fluoxetine. Fast forward a bit and I decided I wanted to go back on Cymbalta, why I have no clue. Was on it 3 months and didn't like how it made me feel so dr. was going to switch me to Wellbutrin. Told me I could just quit Cymbalta and would start Wellburtin without any issues. That was a lie! Immediately, started having withdrawal symptoms. Dr. put me back on Fluoxetine thinking it would help but it did nothing of the sort. Worst 9 months of my life! Nausea was the worst symptom. I know that Point of Return is frowned upon but I feel like they actually helped me. That was back in 2017... ready to get off Fluoxetine so (different dr.) told me to wean down and I should be fine. Went from 20mg to 5mg over the course of 5-6 months. Everything went fine so I thought I was in the clear. Felt pretty good the first week, then symptoms would pop up here and there. Nocturnal panic attacks got progressively worse, started having insomnia, then all of sudden the constant nausea and anxiety. Since Point of Return is no longer, I tried implementing what I could from what helped me then but the help is limited. I am on day 62 and it's been an entire month of feeling awful. Dr. is dismissive and doesn't think it's really withdrawals so she isn't much help. Tried to get me to take Xanax but I refused. Prescribed other meds to try to help with the symptoms but nothing really helps and some of the meds I tried just make me feel worse. Feel like I'm alone in this. I am just hoping and praying that it will not be as long lived as last time since I tapered and am not taking any other medications that could interfere. I know everyone is different and all that, but just wish I knew how long this hell will last! I think I can handle everything else, it's just this unrelenting nausea that gets me. Anyway, any insight or advice into my situation would be helpful! Thanks!

Cymbalta - 2005-2008 - quit CT with no issues 

2008-2013 - on and off Fluoxetine with no issues

Fluoxetine - January 2013 - October 2016

Switched to Cymbalta - October 2016

Quit Cymbalta CT - January 26, 2017 -9 1/2 months of WD

Fluoxetine & Gabapentin - February 2017

Slow taper of Gabapentin - May 2017

Taper Fluoxetine 20mg to 5mg - September 2023 - January 2024 (now I know too fast)

Last 5mg dose of Fluoxetine - January 31, 2024 (now I know considered CT)

WD started February 7, 2024

*Reinstated .1ml Fluoxetine 6/11/24, .2ml 6/18, .3ml 6/25, .4ml 7/8, .5ml 7/15 - symptoms increased went back down to .4ml 7/20 - holding

WD symptoms: nausea and insomnia are the worst, bouts of anxiety, depression, fear/dread, emotional and lots of crying, loss of appetite, lost a lot of weight, constipation, sensitive teeth, hair falling out, sensitive to noise, body aches and pains/sciatica, dry mouth, Vagus nerve dysfunction, blurred vision, weird feeling like my shirt is choking me even though it's nowhere near my throat, acid reflux, chemical/metallic taste in my mouth, lump in my throat feeling, pins and needles sensations, tingling in my back, air hunger, akathisia, yawning and the tinny feeling doesn't go away

  • KenA changed the title to ShantyO7: Here we go again... ShantyO
  • Administrator
Posted

Welcome @ShantyO7

Your story is all too familiar, I'm afraid.

 

This site recommends people taper very slowly: Why taper by 10% of my dosage? The reductions get smaller and smaller every month.

 

You had a very rapid taper (20mg to 5mg) late last year, followed up with a CT at the end of Jan.

 

When you stop ADs CT or with a very rapid taper like you have, WD symptoms are the likely outcome: Daily Checklist of Antidepressant Withdrawal Symptoms (PDF). Can you relate to the items on this list?

 

It's astounding, but not surprising that your doctor dismisses WD symptoms.

 

17 hours ago, ShantyO7 said:

Tried to get me to take Xanax but I refused

 

Good decision.

 

17 hours ago, ShantyO7 said:

Prescribed other meds to try to help with the symptoms but nothing really helps and some of the meds I tried just make me feel worse.

 

Sadly, I've never heard of a pill that successfully resolves WD symptoms. Inevitably, these magic pills cause other problems.

 

17 hours ago, ShantyO7 said:

Feel like I'm alone in this.

 

Well, the good news is that this forum is full of people like you, so you're not alone. We are all at different stages of recovery.

 

17 hours ago, ShantyO7 said:

I know everyone is different and all that, but just wish I knew how long this hell will last!

 

Yep, we all want to know that...but as you know, there is no answer. We are all different.

 

A few handy links:

Windows and waves pattern of stabilization

 

Emotional Spirals

 

Non-drug coping strategies

 

Melatonin for sleep

 

Have a good read of these two links:

 

About Reinstating and Stabilizing to Reduce Withdrawal Symptoms

 

Kindling

 

We don't suggest many supplements, but two that many of us find helpful are magnesium and omega-3 fish oil. Here are the links for info about those. Add one at a time and start with a low dose to see how it affects you. 


Magnesium

 

Omega-3 fatty acids (fish oil)

 

Avoid alcohol. 

 

This is your own Introduction topic.  Each member has only ONE Introduction topic.  Your own Introduction topic is the best place to ask questions and the place to journal your progress.  This keeps your history in one place and means you do not have to repeat your story. 

 

Once again, welcome to S.A.

 

Emonda

 

 

 

 

 

Please don't send me PMs. I am not a doctor. My comments are based on my personal experience with ADs and tapering. Consult your doctor about your own medical decisions.

Start of taper: Jan ’22 Vortioxetine 15mg, 

End year 1: 4.5mg, 

End year 2: 2.38mg, 

Year 3: 8 Feb 2.19mg, 21 Mar 1.99mg, 2 May 1.83mg, 13 Jun 1.69mg, 25 Jul 1.50mg, 14 Aug 1.46mg, 3 Sep 1.43mg, 10 Sep 1.40mg, 17 Sep 1.37mg, 16 Oct 1.34mg, 23 Oct 1.32mg, 30 Oct 1.29mg, 6 Nov 1.26mg, 27 Nov 1.23mg, 3 Dec 1.21mg

Posted

So because I went from 5mg to 0mg, that's considered cold turkey??

Cymbalta - 2005-2008 - quit CT with no issues 

2008-2013 - on and off Fluoxetine with no issues

Fluoxetine - January 2013 - October 2016

Switched to Cymbalta - October 2016

Quit Cymbalta CT - January 26, 2017 -9 1/2 months of WD

Fluoxetine & Gabapentin - February 2017

Slow taper of Gabapentin - May 2017

Taper Fluoxetine 20mg to 5mg - September 2023 - January 2024 (now I know too fast)

Last 5mg dose of Fluoxetine - January 31, 2024 (now I know considered CT)

WD started February 7, 2024

*Reinstated .1ml Fluoxetine 6/11/24, .2ml 6/18, .3ml 6/25, .4ml 7/8, .5ml 7/15 - symptoms increased went back down to .4ml 7/20 - holding

WD symptoms: nausea and insomnia are the worst, bouts of anxiety, depression, fear/dread, emotional and lots of crying, loss of appetite, lost a lot of weight, constipation, sensitive teeth, hair falling out, sensitive to noise, body aches and pains/sciatica, dry mouth, Vagus nerve dysfunction, blurred vision, weird feeling like my shirt is choking me even though it's nowhere near my throat, acid reflux, chemical/metallic taste in my mouth, lump in my throat feeling, pins and needles sensations, tingling in my back, air hunger, akathisia, yawning and the tinny feeling doesn't go away

  • Mentor
Posted
7 minutes ago, ShantyO7 said:

So because I went from 5mg to 0mg, that's considered cold turkey??

Yeah, that's a pretty big drop and definitely in cold turkey territory. How's it hitting you so far? Sometimes things can seem ok for a few days and then symptoms strike. 

 

On 4/1/2024 at 8:24 AM, ShantyO7 said:

Dr. is dismissive and doesn't think it's really withdrawals so she isn't much help. Tried to get me to take Xanax but I refused.

Might be worth trying out some new doctors, getting second opinions and all that. I got lucky and found one who is really helpful and understands I stay more stable when I listen to my body and go slowly with changes. 20mg to 5mg in less than half a year is pretty fast for a nervous system to adapt to (and sadly all too many psychiatrists don't understand WD). 

 

Welcome to the site! Glad you're figuring this out.

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg -> April 2024: 40.5mg -> May 2024: 41mg -> June 2024: 35mg -> July 2024: 31mg -> August 2024: 28mg -> September 2024: 25mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day, a mistake, don't replicate) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 25mg 2x a day -> October 2024: 22mg 2x a day

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg, still too high, 34mg -> March 2024: 31mg, STILL too high, 30mg down to 25mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

  • Administrator
Posted

Hi @ShantyO7

This is from an article in our Tapering Section which describes Exit Dosing

 

Theoretical Exit Dose

The Theoretical Exit Dose is the dose to aim for before making the jump to “0”.  Some people think that a person should just taper as far as possible and then jump to “0”. However, one of the most frequently questions I get is “when do I make the jump?”. People need a target so they can make plans and chart progress.

This is where the Theoretical Exit Dose comes into play. First off it is not a hard and fast number, but rather a point in the taper where it is most likely a person can make the jump to “0” and experience a minimum of WD symptoms.

 

It is defined by Horowitz & Taylor, 2021 and Horowitz, et al.2021, as 1% SERT receptor occupancy which usually works out to be about 1mg. In my experience this is still much too large a dose for most people to make a smooth transition to zero.  If the transition does not go smoothly then reinstatement, stabilization and continued tapering are required.  Which can greatly lengthen an otherwise smooth taper.

 

I prefer to use the formula (median prescribed dose X 0.000625 = Theoretical Exit dose). Most medications are prescribed over a range of doses. For example, paxil comes in 20, 30, and 40 milligram doses. The median dose would be 30mg, which would be used in the formula above. Because we calculate using the median prescribed dosage this formula takes into account the differences in strength between medications and can be used with any of the different psych medications we see.

Again, this is a theoretical dose, something to aim for but not necessary to hit. The actual jump point is determined by how your body is reacting to your reductions.

2010-2011 - Tramadol - Can't remember dosage

2011 - CT Quit Tramadol

2011-2019 - St Johns Wart - Started out at 3 Pills a day (300 MG) and increased to 6 per day over the years

August 2019 - CT Quit St Johns (Told by Hospital Dr to Stop Taking due to increased BP)

September 2019 - Citalopram 10mg - Approx 2 weeks - CT Quit

September 2019 - October 2019 - Clonazepam .5mg - Approx 3 weeks - CT Quit

Drug Free Since October 5th 2019

Posted

Sorry, not sure how to respond to each item individually... Wow, I didn't realize that I needed to taper even more, no thanks to my dr! Symptoms started on and off about a week after my last does, then about 3-4 weeks ago, it's been non stop. The nausea is constant like morning sickness and I get waves of anxiety/nervousness throughout the day. Sometime feel short of breath. So far those are my only real symptoms... have had a couple of bad waves and starting to see some windows, however, still feel icky during those windows.

 

I have an appointment with a functional dr in a couple of weeks so hoping she can help some!

 

 

Cymbalta - 2005-2008 - quit CT with no issues 

2008-2013 - on and off Fluoxetine with no issues

Fluoxetine - January 2013 - October 2016

Switched to Cymbalta - October 2016

Quit Cymbalta CT - January 26, 2017 -9 1/2 months of WD

Fluoxetine & Gabapentin - February 2017

Slow taper of Gabapentin - May 2017

Taper Fluoxetine 20mg to 5mg - September 2023 - January 2024 (now I know too fast)

Last 5mg dose of Fluoxetine - January 31, 2024 (now I know considered CT)

WD started February 7, 2024

*Reinstated .1ml Fluoxetine 6/11/24, .2ml 6/18, .3ml 6/25, .4ml 7/8, .5ml 7/15 - symptoms increased went back down to .4ml 7/20 - holding

WD symptoms: nausea and insomnia are the worst, bouts of anxiety, depression, fear/dread, emotional and lots of crying, loss of appetite, lost a lot of weight, constipation, sensitive teeth, hair falling out, sensitive to noise, body aches and pains/sciatica, dry mouth, Vagus nerve dysfunction, blurred vision, weird feeling like my shirt is choking me even though it's nowhere near my throat, acid reflux, chemical/metallic taste in my mouth, lump in my throat feeling, pins and needles sensations, tingling in my back, air hunger, akathisia, yawning and the tinny feeling doesn't go away

Posted

I really do not want to reinstate so just praying I can make it through and my symptoms will start improving soon! How long does the nausea typically last?? I know it's different for everyone but is there like an average?

 

Cymbalta - 2005-2008 - quit CT with no issues 

2008-2013 - on and off Fluoxetine with no issues

Fluoxetine - January 2013 - October 2016

Switched to Cymbalta - October 2016

Quit Cymbalta CT - January 26, 2017 -9 1/2 months of WD

Fluoxetine & Gabapentin - February 2017

Slow taper of Gabapentin - May 2017

Taper Fluoxetine 20mg to 5mg - September 2023 - January 2024 (now I know too fast)

Last 5mg dose of Fluoxetine - January 31, 2024 (now I know considered CT)

WD started February 7, 2024

*Reinstated .1ml Fluoxetine 6/11/24, .2ml 6/18, .3ml 6/25, .4ml 7/8, .5ml 7/15 - symptoms increased went back down to .4ml 7/20 - holding

WD symptoms: nausea and insomnia are the worst, bouts of anxiety, depression, fear/dread, emotional and lots of crying, loss of appetite, lost a lot of weight, constipation, sensitive teeth, hair falling out, sensitive to noise, body aches and pains/sciatica, dry mouth, Vagus nerve dysfunction, blurred vision, weird feeling like my shirt is choking me even though it's nowhere near my throat, acid reflux, chemical/metallic taste in my mouth, lump in my throat feeling, pins and needles sensations, tingling in my back, air hunger, akathisia, yawning and the tinny feeling doesn't go away

Posted

I have had a couple of decent days, only real issue is the incessant queasiness, moderate anxiety and feelings of hopelessness. I have had to sleep in the recliner in the living room for the last week because I just can't get comfortable anywhere.  I think I would feel MUCH better if this queasiness would just go away. My appetite is slowly getting better and I've been hungrier, but having difficulties trying to find more foods I can stomach. I eat the SAME things every day and am scared to try much new for fear it will upset my stomach. I know this is probably what is considered a "window" so I hate the feeling like the bottom could drop out at any moment. As the windows get better, do the waves get better as well? And then each window gets better? Just really hoping that the queasiness goes away SOON! I know everyone is different but is there like an average on how long the queasiness lasts?

Cymbalta - 2005-2008 - quit CT with no issues 

2008-2013 - on and off Fluoxetine with no issues

Fluoxetine - January 2013 - October 2016

Switched to Cymbalta - October 2016

Quit Cymbalta CT - January 26, 2017 -9 1/2 months of WD

Fluoxetine & Gabapentin - February 2017

Slow taper of Gabapentin - May 2017

Taper Fluoxetine 20mg to 5mg - September 2023 - January 2024 (now I know too fast)

Last 5mg dose of Fluoxetine - January 31, 2024 (now I know considered CT)

WD started February 7, 2024

*Reinstated .1ml Fluoxetine 6/11/24, .2ml 6/18, .3ml 6/25, .4ml 7/8, .5ml 7/15 - symptoms increased went back down to .4ml 7/20 - holding

WD symptoms: nausea and insomnia are the worst, bouts of anxiety, depression, fear/dread, emotional and lots of crying, loss of appetite, lost a lot of weight, constipation, sensitive teeth, hair falling out, sensitive to noise, body aches and pains/sciatica, dry mouth, Vagus nerve dysfunction, blurred vision, weird feeling like my shirt is choking me even though it's nowhere near my throat, acid reflux, chemical/metallic taste in my mouth, lump in my throat feeling, pins and needles sensations, tingling in my back, air hunger, akathisia, yawning and the tinny feeling doesn't go away

Posted

Anyone??

Cymbalta - 2005-2008 - quit CT with no issues 

2008-2013 - on and off Fluoxetine with no issues

Fluoxetine - January 2013 - October 2016

Switched to Cymbalta - October 2016

Quit Cymbalta CT - January 26, 2017 -9 1/2 months of WD

Fluoxetine & Gabapentin - February 2017

Slow taper of Gabapentin - May 2017

Taper Fluoxetine 20mg to 5mg - September 2023 - January 2024 (now I know too fast)

Last 5mg dose of Fluoxetine - January 31, 2024 (now I know considered CT)

WD started February 7, 2024

*Reinstated .1ml Fluoxetine 6/11/24, .2ml 6/18, .3ml 6/25, .4ml 7/8, .5ml 7/15 - symptoms increased went back down to .4ml 7/20 - holding

WD symptoms: nausea and insomnia are the worst, bouts of anxiety, depression, fear/dread, emotional and lots of crying, loss of appetite, lost a lot of weight, constipation, sensitive teeth, hair falling out, sensitive to noise, body aches and pains/sciatica, dry mouth, Vagus nerve dysfunction, blurred vision, weird feeling like my shirt is choking me even though it's nowhere near my throat, acid reflux, chemical/metallic taste in my mouth, lump in my throat feeling, pins and needles sensations, tingling in my back, air hunger, akathisia, yawning and the tinny feeling doesn't go away

Posted

Can anyone help me understand windows and waves better... not like tapering stabilization... just plain old withdrawal windows and waves. I am having a hard time figuring it out for myself... I am NEVER symptom free but some days are better than others. But even on my "good" days, I can have a couple hours of increased symptoms. Is there anyone who never really had windows/waves and just gradually improved? With each window/wave, does the next window/wave get better? Like each wave you have is better than the last and each window you have is better than the last? Just trying to make sense of all this which is probably pointless...

Cymbalta - 2005-2008 - quit CT with no issues 

2008-2013 - on and off Fluoxetine with no issues

Fluoxetine - January 2013 - October 2016

Switched to Cymbalta - October 2016

Quit Cymbalta CT - January 26, 2017 -9 1/2 months of WD

Fluoxetine & Gabapentin - February 2017

Slow taper of Gabapentin - May 2017

Taper Fluoxetine 20mg to 5mg - September 2023 - January 2024 (now I know too fast)

Last 5mg dose of Fluoxetine - January 31, 2024 (now I know considered CT)

WD started February 7, 2024

*Reinstated .1ml Fluoxetine 6/11/24, .2ml 6/18, .3ml 6/25, .4ml 7/8, .5ml 7/15 - symptoms increased went back down to .4ml 7/20 - holding

WD symptoms: nausea and insomnia are the worst, bouts of anxiety, depression, fear/dread, emotional and lots of crying, loss of appetite, lost a lot of weight, constipation, sensitive teeth, hair falling out, sensitive to noise, body aches and pains/sciatica, dry mouth, Vagus nerve dysfunction, blurred vision, weird feeling like my shirt is choking me even though it's nowhere near my throat, acid reflux, chemical/metallic taste in my mouth, lump in my throat feeling, pins and needles sensations, tingling in my back, air hunger, akathisia, yawning and the tinny feeling doesn't go away

  • Moderator
Posted (edited)
17 hours ago, ShantyO7 said:

Can anyone help me understand windows and waves better... not like tapering stabilization... just plain old withdrawal windows and waves. I am having a hard time figuring it out for myself... I am NEVER symptom free but some days are better than others. But even on my "good" days, I can have a couple hours of increased symptoms. Is there anyone who never really had windows/waves and just gradually improved? With each window/wave, does the next window/wave get better? Like each wave you have is better than the last and each window you have is better than the last? Just trying to make sense of all this which is probably pointless...

In early withdrawal the windows are often still littered with symptoms. As time passes the windows improve, and you eventually reach a point where windows actually consist of being symptom free. It takes a long time to reach this point.

Edited by Erimus

Taper calculator spreadsheet

 

PSYCHIATRIC MEDICATION:

1) Sertraline: 58mgai // 0.184gpw - [42% reduced]

50mg - Oct 2020, 100mg - Dec 2020, 50mg - Apr 2021, 75mg - May 2021, 50mg - Sep 2021, 2 year 5 month hold, 55mg - 23 Feb 2024, 60mg - 20 Mar 2024, Start tapering - 24 Apr 2024, reached 52.5mg before crashing hard - 13 Aug 2024, Reinstate back to 58mg and hold - 29 Aug 2024, Split dose in two - late Nov 2024.

2) Mirtazapine: 15mg

15mg - Nov 2020

OTHER MEDICATION:

1) Omeprazole: 10mg

20mg - April 2016, on and off for 3.5 years, 20mg - Aug 2019, 40mg - June 2021, 20mg - April 2022, 10mg - July 2022

SUPPLEMENTS:

Cod liver oil, Magnesium glycinate, Vitamin C

  • 4 weeks later...
Posted

Just wondering if anyone has a weird feeling in their upper stomach (like diaphragm area) that prevents you from laying down or sitting in certain positions? The regular nausea is better but it makes me feel nauseous to lay down or to sit in certain positions. I have not been able to lay down for over a month and have had to sleep in a recliner. I do remember having a weird feeling the last time when I CT'ed from Cymbalta but don't remember it being this bad. Also, I know loss of appetite is common but is it common to be hungry but just not able to eat much at a time? I have to eat every 2-3 hours, even throughout the night, but can only eat like 1-1.5oz of chicken breast and like 1/8 cup of green beans for a meal. Is it just because my body is still trying to recover from all the nausea and digestive issues? My chiropractor thinks I might have a hiatal hernia but I don't have any other the symptoms like acid reflux or anything other than the weird feeling and a hard time eating normal sized meals. Any insight?? 

Cymbalta - 2005-2008 - quit CT with no issues 

2008-2013 - on and off Fluoxetine with no issues

Fluoxetine - January 2013 - October 2016

Switched to Cymbalta - October 2016

Quit Cymbalta CT - January 26, 2017 -9 1/2 months of WD

Fluoxetine & Gabapentin - February 2017

Slow taper of Gabapentin - May 2017

Taper Fluoxetine 20mg to 5mg - September 2023 - January 2024 (now I know too fast)

Last 5mg dose of Fluoxetine - January 31, 2024 (now I know considered CT)

WD started February 7, 2024

*Reinstated .1ml Fluoxetine 6/11/24, .2ml 6/18, .3ml 6/25, .4ml 7/8, .5ml 7/15 - symptoms increased went back down to .4ml 7/20 - holding

WD symptoms: nausea and insomnia are the worst, bouts of anxiety, depression, fear/dread, emotional and lots of crying, loss of appetite, lost a lot of weight, constipation, sensitive teeth, hair falling out, sensitive to noise, body aches and pains/sciatica, dry mouth, Vagus nerve dysfunction, blurred vision, weird feeling like my shirt is choking me even though it's nowhere near my throat, acid reflux, chemical/metallic taste in my mouth, lump in my throat feeling, pins and needles sensations, tingling in my back, air hunger, akathisia, yawning and the tinny feeling doesn't go away

  • Moderator
Posted
22 hours ago, ShantyO7 said:

Just wondering if anyone has a weird feeling in their upper stomach (like diaphragm area) that prevents you from laying down or sitting in certain positions? The regular nausea is better but it makes me feel nauseous to lay down or to sit in certain positions. I have not been able to lay down for over a month and have had to sleep in a recliner. I do remember having a weird feeling the last time when I CT'ed from Cymbalta but don't remember it being this bad. Also, I know loss of appetite is common but is it common to be hungry but just not able to eat much at a time? I have to eat every 2-3 hours, even throughout the night, but can only eat like 1-1.5oz of chicken breast and like 1/8 cup of green beans for a meal. Is it just because my body is still trying to recover from all the nausea and digestive issues? My chiropractor thinks I might have a hiatal hernia but I don't have any other the symptoms like acid reflux or anything other than the weird feeling and a hard time eating normal sized meals. Any insight?? 

All the answers you are looking for regarding tapering and antidepressant withdrawal are on this site. Please search around and continue to read as much as you can manage. Use the site search function to search for specific words or phrases, such as drugs or symptoms. Chances are the symptoms you're posting about have already been written about somewhere.

 

See as well:

 

Irritable bowel syndrome: What you can do

 

Weight gain, weight loss, appetite changes, hunger

 

Taper calculator spreadsheet

 

PSYCHIATRIC MEDICATION:

1) Sertraline: 58mgai // 0.184gpw - [42% reduced]

50mg - Oct 2020, 100mg - Dec 2020, 50mg - Apr 2021, 75mg - May 2021, 50mg - Sep 2021, 2 year 5 month hold, 55mg - 23 Feb 2024, 60mg - 20 Mar 2024, Start tapering - 24 Apr 2024, reached 52.5mg before crashing hard - 13 Aug 2024, Reinstate back to 58mg and hold - 29 Aug 2024, Split dose in two - late Nov 2024.

2) Mirtazapine: 15mg

15mg - Nov 2020

OTHER MEDICATION:

1) Omeprazole: 10mg

20mg - April 2016, on and off for 3.5 years, 20mg - Aug 2019, 40mg - June 2021, 20mg - April 2022, 10mg - July 2022

SUPPLEMENTS:

Cod liver oil, Magnesium glycinate, Vitamin C

Posted

It's not IBS... It's a weird pressure that prevents me from laying down because it triggers nausea. 

Cymbalta - 2005-2008 - quit CT with no issues 

2008-2013 - on and off Fluoxetine with no issues

Fluoxetine - January 2013 - October 2016

Switched to Cymbalta - October 2016

Quit Cymbalta CT - January 26, 2017 -9 1/2 months of WD

Fluoxetine & Gabapentin - February 2017

Slow taper of Gabapentin - May 2017

Taper Fluoxetine 20mg to 5mg - September 2023 - January 2024 (now I know too fast)

Last 5mg dose of Fluoxetine - January 31, 2024 (now I know considered CT)

WD started February 7, 2024

*Reinstated .1ml Fluoxetine 6/11/24, .2ml 6/18, .3ml 6/25, .4ml 7/8, .5ml 7/15 - symptoms increased went back down to .4ml 7/20 - holding

WD symptoms: nausea and insomnia are the worst, bouts of anxiety, depression, fear/dread, emotional and lots of crying, loss of appetite, lost a lot of weight, constipation, sensitive teeth, hair falling out, sensitive to noise, body aches and pains/sciatica, dry mouth, Vagus nerve dysfunction, blurred vision, weird feeling like my shirt is choking me even though it's nowhere near my throat, acid reflux, chemical/metallic taste in my mouth, lump in my throat feeling, pins and needles sensations, tingling in my back, air hunger, akathisia, yawning and the tinny feeling doesn't go away

  • Moderator
Posted
On 5/2/2024 at 7:24 PM, ShantyO7 said:

Just wondering if anyone has a weird feeling in their upper stomach (like diaphragm area) that prevents you from laying down or sitting in certain positions? The regular nausea is better but it makes me feel nauseous to lay down or to sit in certain positions. I have not been able to lay down for over a month and have had to sleep in a recliner. I do remember having a weird feeling the last time when I CT'ed from Cymbalta but don't remember it being this bad. Also, I know loss of appetite is common but is it common to be hungry but just not able to eat much at a time? I have to eat every 2-3 hours, even throughout the night, but can only eat like 1-1.5oz of chicken breast and like 1/8 cup of green beans for a meal. Is it just because my body is still trying to recover from all the nausea and digestive issues? My chiropractor thinks I might have a hiatal hernia but I don't have any other the symptoms like acid reflux or anything other than the weird feeling and a hard time eating normal sized meals. Any insight?? 

Hi @ShantyO7- yes!  I get this as well.  I didn't connect it to withdrawal at first.  I've also started having episodes of gagging and retching for absolutely no compelling reason.  There are serotonin receptors in the gut as well, not just the brain, so it sort of makes sense.  Time and patience!  Healing is happening, even when it doesn't feel like it. It's totally ok to eat lots of small meals- do what makes you feel good.  It's a healthier way to eat anyway!

 

Anyway, I wanted to say hi- just read through your intro.  I've CT'd in the past, so I understand where you are right now.  A tiny reinstatement might help- I've certainly seen that reading through other people's threads here- but I totally understand not wanting to do it.  Your body will heal either way- it's about making sure that your experience is tolerable.  It will never be pleasant, but tolerable is a good goal.  Hang in there!

1995- 2007- On and off multiple antidepressants (Prozac, Paxil, Effexor, Wellbutrin, escitalopram). Memory poor- can’t remember dates. Always tapered fast or CT.  2007- tapered Wellbutrin, zopiclone and escitalopram over one month to get pregnant.  Withdrawal hell for many years.

2009- Daughter born 🥰 Post partum depression/psychosis- no meds taken.

2016- Back on escitalopram due to job change/anxiety

2022- Severe covid infection- Diagnosed with long covid 08/22.

2023- 01/23- Long term disability approved for long covid.  Started taper under MD advice from 20mg: 11/23- 15mg. 2024- March-10mg. Started low dose naltrexone for long covid-5mg- terrible reaction, reduced to 0.5mg.  April- 10mg escitalopram, 1.0mg LDN. May 1- 9.0mg escitalopram, 1.0mg LDN. May 15- 9.0mg escitalopram, 1.5mg LDN.  June 12- 8.5mg escitalopram, 1.5mg LDN.  July 8- Brassmonkey micro taper started.  8.4mg escitalopram, 1.5mg LDN.  July 15- 8.3mg esc, 1.5mg LDN.  July 18 8.3mg esc, 2.0mg LDN, July 22 8.2mg esc. 2.0mg LDN. July 29 8.1mg esc. 2.0mg LDN. Aug. 24- 8.0mg Esc. 2.0mg LDN.  Aug. 30 7.9mg esc.  Sept. 6 7.8mg esc.  Sept. 13 7.7mg esc. Sept 21 2.5mg LDN. Oct. 4 7.6mg esc. Oct. 11 7.5mg esc. Oct. 18 7.4mg esc. Oct. 25- 7.3mg esc.  Nov. 1- 3.0mg LDN. Nov. 15- Dec 27- 6.9mg esc.

 

Supplements/other meds: Vitamin D, B12, Claritin, HRT

 

PLEASE DO NOT PM ME!  PLEASE ONLY TAG ME FOR URGENT QUESTIONS!  Thank you!

 

I am not a doctor.  I don't even play one on TV.  This is not medical advice, but based on personal experience.  Please consult a medical professional.

Posted

Hey Catwoman73! Thanks for your input! When you are saying, yes you get this as well, are you talking about the weird feeling in your upper abdomen or what exactly were you referring to?

Cymbalta - 2005-2008 - quit CT with no issues 

2008-2013 - on and off Fluoxetine with no issues

Fluoxetine - January 2013 - October 2016

Switched to Cymbalta - October 2016

Quit Cymbalta CT - January 26, 2017 -9 1/2 months of WD

Fluoxetine & Gabapentin - February 2017

Slow taper of Gabapentin - May 2017

Taper Fluoxetine 20mg to 5mg - September 2023 - January 2024 (now I know too fast)

Last 5mg dose of Fluoxetine - January 31, 2024 (now I know considered CT)

WD started February 7, 2024

*Reinstated .1ml Fluoxetine 6/11/24, .2ml 6/18, .3ml 6/25, .4ml 7/8, .5ml 7/15 - symptoms increased went back down to .4ml 7/20 - holding

WD symptoms: nausea and insomnia are the worst, bouts of anxiety, depression, fear/dread, emotional and lots of crying, loss of appetite, lost a lot of weight, constipation, sensitive teeth, hair falling out, sensitive to noise, body aches and pains/sciatica, dry mouth, Vagus nerve dysfunction, blurred vision, weird feeling like my shirt is choking me even though it's nowhere near my throat, acid reflux, chemical/metallic taste in my mouth, lump in my throat feeling, pins and needles sensations, tingling in my back, air hunger, akathisia, yawning and the tinny feeling doesn't go away

Posted

A couple of questions: My last dose was on Jan 31, 2024. My first withdrawal symptom happened a week later on Feb 7, 2024 but it was very hit and miss and all over the place with withdrawal symptoms until about March 10, then they hit hard and it has been a continuous hell. When do I start counting that my withdrawals started then, from the very first one or from when they became bad and continuous? It's a month difference so trying to figure out what month I'm on in the withdrawal process. Next question is about windows and waves... how do you tell when you're in a window vs. a wave? The last week or so, I can't really tell, I just feel blah, not necessarily bad but not good either.

Cymbalta - 2005-2008 - quit CT with no issues 

2008-2013 - on and off Fluoxetine with no issues

Fluoxetine - January 2013 - October 2016

Switched to Cymbalta - October 2016

Quit Cymbalta CT - January 26, 2017 -9 1/2 months of WD

Fluoxetine & Gabapentin - February 2017

Slow taper of Gabapentin - May 2017

Taper Fluoxetine 20mg to 5mg - September 2023 - January 2024 (now I know too fast)

Last 5mg dose of Fluoxetine - January 31, 2024 (now I know considered CT)

WD started February 7, 2024

*Reinstated .1ml Fluoxetine 6/11/24, .2ml 6/18, .3ml 6/25, .4ml 7/8, .5ml 7/15 - symptoms increased went back down to .4ml 7/20 - holding

WD symptoms: nausea and insomnia are the worst, bouts of anxiety, depression, fear/dread, emotional and lots of crying, loss of appetite, lost a lot of weight, constipation, sensitive teeth, hair falling out, sensitive to noise, body aches and pains/sciatica, dry mouth, Vagus nerve dysfunction, blurred vision, weird feeling like my shirt is choking me even though it's nowhere near my throat, acid reflux, chemical/metallic taste in my mouth, lump in my throat feeling, pins and needles sensations, tingling in my back, air hunger, akathisia, yawning and the tinny feeling doesn't go away

  • Administrator
Posted

Hi Shanty07

I've moved your new post back here. It is best to keep everything related to yourself in one spot so people can track your progress and see what's already been suggested.

 

14 hours ago, ShantyO7 said:

When do I start counting that my withdrawals started then, from the very first one or from when they became bad and continuous?

 

14 hours ago, ShantyO7 said:

It's a month difference so trying to figure out what month I'm on in the withdrawal process.

 

We are all different and our journeys to recovery will take differing periods of time.

 

14 hours ago, ShantyO7 said:

Next question is about windows and waves... how do you tell when you're in a window vs. a wave?

 

I'd have another read of the link in my first post, which I've copied below. I read it from time to time to remind myself.

 

On 4/2/2024 at 8:09 PM, Emonda said:

 

Sorry that you are in this position. Time and patience....

Please don't send me PMs. I am not a doctor. My comments are based on my personal experience with ADs and tapering. Consult your doctor about your own medical decisions.

Start of taper: Jan ’22 Vortioxetine 15mg, 

End year 1: 4.5mg, 

End year 2: 2.38mg, 

Year 3: 8 Feb 2.19mg, 21 Mar 1.99mg, 2 May 1.83mg, 13 Jun 1.69mg, 25 Jul 1.50mg, 14 Aug 1.46mg, 3 Sep 1.43mg, 10 Sep 1.40mg, 17 Sep 1.37mg, 16 Oct 1.34mg, 23 Oct 1.32mg, 30 Oct 1.29mg, 6 Nov 1.26mg, 27 Nov 1.23mg, 3 Dec 1.21mg

  • 2 weeks later...
Posted

Feeling really down, hopeless and defeated this morning. When will this hell ever end?! It's been about 2 1/2-3 months of withdrawal symptoms. I have had to sleep in my recliner for 48 nights now due to the weird feeling in my stomach and it's really wearing on me - physically, mentally and emotionally. How much longer will this continue?! I have lost 45 pounds (which I definitely could stand to lose) but have such a limited diet and am scared to try new foods because I don't want to trigger symptoms. Anyone else in the same boat or have any insight or encouragement? I know no one can but I just wish you could tell me everything will be better on this day, I feel like I could handle it better then... Last time when I came off of Cymbalta, it took about 9 months and I pray to God, it doesn't take that long this time! Last time I was on Fluoxetine to help buffer the anxiety and depression symptoms through and since it is the Fluoxetine I quit, I have nothing to help with those symptoms this time around. I just feel stuck and want to cry all day long. I dread night time and when morning rolls around, I dread the day. My boss made me take a leave of absence from work which is probably a good thing to help with the stress but I literally have nothing to do all day long so it feels like time is standing still. I can't just sit in the recliner all day long to sleep in it all night long, too! I just want this to be over!!

Cymbalta - 2005-2008 - quit CT with no issues 

2008-2013 - on and off Fluoxetine with no issues

Fluoxetine - January 2013 - October 2016

Switched to Cymbalta - October 2016

Quit Cymbalta CT - January 26, 2017 -9 1/2 months of WD

Fluoxetine & Gabapentin - February 2017

Slow taper of Gabapentin - May 2017

Taper Fluoxetine 20mg to 5mg - September 2023 - January 2024 (now I know too fast)

Last 5mg dose of Fluoxetine - January 31, 2024 (now I know considered CT)

WD started February 7, 2024

*Reinstated .1ml Fluoxetine 6/11/24, .2ml 6/18, .3ml 6/25, .4ml 7/8, .5ml 7/15 - symptoms increased went back down to .4ml 7/20 - holding

WD symptoms: nausea and insomnia are the worst, bouts of anxiety, depression, fear/dread, emotional and lots of crying, loss of appetite, lost a lot of weight, constipation, sensitive teeth, hair falling out, sensitive to noise, body aches and pains/sciatica, dry mouth, Vagus nerve dysfunction, blurred vision, weird feeling like my shirt is choking me even though it's nowhere near my throat, acid reflux, chemical/metallic taste in my mouth, lump in my throat feeling, pins and needles sensations, tingling in my back, air hunger, akathisia, yawning and the tinny feeling doesn't go away

Posted

Sorry, but I don't understand the point of this if no one responds... I get people are busy and have lives but I feel so alone and no one seems to respond to me. I have read and re-read all I can but would still like some support. Am I the only one who feels this way? I'm in my 3rd month of WD and this is really hard and feel like I have no one who understands what I'm going through so it would be nice if the ones who do understand would respond.

Cymbalta - 2005-2008 - quit CT with no issues 

2008-2013 - on and off Fluoxetine with no issues

Fluoxetine - January 2013 - October 2016

Switched to Cymbalta - October 2016

Quit Cymbalta CT - January 26, 2017 -9 1/2 months of WD

Fluoxetine & Gabapentin - February 2017

Slow taper of Gabapentin - May 2017

Taper Fluoxetine 20mg to 5mg - September 2023 - January 2024 (now I know too fast)

Last 5mg dose of Fluoxetine - January 31, 2024 (now I know considered CT)

WD started February 7, 2024

*Reinstated .1ml Fluoxetine 6/11/24, .2ml 6/18, .3ml 6/25, .4ml 7/8, .5ml 7/15 - symptoms increased went back down to .4ml 7/20 - holding

WD symptoms: nausea and insomnia are the worst, bouts of anxiety, depression, fear/dread, emotional and lots of crying, loss of appetite, lost a lot of weight, constipation, sensitive teeth, hair falling out, sensitive to noise, body aches and pains/sciatica, dry mouth, Vagus nerve dysfunction, blurred vision, weird feeling like my shirt is choking me even though it's nowhere near my throat, acid reflux, chemical/metallic taste in my mouth, lump in my throat feeling, pins and needles sensations, tingling in my back, air hunger, akathisia, yawning and the tinny feeling doesn't go away

  • Mentor
Posted (edited)

Hello, I’m sorry you are feeling so bad. Things will get better in time. Unfortunately time and patience are the only things that work, plus of course keeping drug doses stable but I think you are off all meds. 
 

Are you reading other people’s threads and supporting them? You may find that as you interact with others they will then interact with you. It helps. You will be able to find others travelling the same path and suffering the same way. You can support each other through the good and bad days.
 

I supported a few people in my early days on here and 3 years later we still drop in on each other, albeit less often. Have a good look around others’ threads and you may like to read the success stories to give you some hope. Take care and I hope things improve for you soon ☺️

Edited by Faure

am not a medical professional. I provide information and make suggestions based on my own experience and SA guidelines. I am unable to respond to private messages. 

Mirtazepine 15mg Nov 2018 -April 2019  April - Sept 2019 Mirtazepine down to around 6mg - skipping days to taper

October 2019 - Dec 2019 unwell from failed taper including jumping about in doses 

15 December 2019 to 13 June 2021 15mg Mirtazepine 

14 June 2021 started brass monkey Slide.  
2021: 23 August 12.3mg, 28 October 11.1mg, 6 Dec 10mg

2022: 12 Feb 8.5, 25 Oct 4.5mg

2023: 16 Jan 3.6mg, 28 Sept 1.8mg

2024: 13 May 1.1mg

2024: September reinstated 15mg owing to severe depression planning to stay on for the very long term 

Posted

Hi @ShantyO7

You're right, WD can be really hard. I'm sorry you're going through it.

Remember that everyone else here is also dealing with WD to varying degrees of severity. 

 

I understand the longing for connection and second Faure's input (quoted below).

 

43 minutes ago, Faure said:

Are you reading other people’s threads and supporting them? You may find that as you interact with others they will then interact with you. It helps. You will be able to find others travelling the same path and suffering the same way. You can support each other through the good and bad days.

 

The best ways to receive support are, a) to reach out to others directly to ask for help (for example by tagging people or posting in their threads); and b) offer support to others (for example by tagging people or posting in their threads). 

 

2 hours ago, ShantyO7 said:

Sorry, but I don't understand the point of this if no one responds... I get people are busy and have lives but I feel so alone and no one seems to respond to me. I have read and re-read all I can but would still like some support. Am I the only one who feels this way? I'm in my 3rd month of WD and this is really hard and feel like I have no one who understands what I'm going through so it would be nice if the ones who do understand would respond.

 

You've been on SA about 1.5 months and looking back over your thread you've received kind messages and sage advice from Erimus, Emonda, littlebird, KenA, Catwoman73, and Faure. That's a pretty high response rate, considering how many members there are and how few moderators/mentors there are on staff (all of whom are unpaid volunteers, by the way, offering peer support while also navigating their own tapers and WD). 

You have the option of replying to any and all of these members, reading their intro topics and success stories, "liking" their posts by clicking the little heart icon to express your appreciation. 

 

I do understand how hard WD can be, and I get what it's like to feel alone. 

At the same time, this is an excellent opportunity to practice being pro-active about recovery, including taking the initiative to reach out to connect with others. 

Also suggest learning and practicing non-drug coping skills (will post link to help topic below). 

 

Hang in there, Shanty! You got this <3

1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs)

2012-2018 - 10mg lexapro/escitalopram (20mg?)    Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg  -->  July 2018 - 0mg

2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg    2020-2021 - 70mg down to 0mg  -->  July 2021 - 0mg

March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT)  -->  April 28th, 2021 - 0mg

August 2021 - 2mg melatonin   August 1, 2022 - 1mg melatonin   March 31, 2023 - 0mg melatonin

2024 supplements update: electrolyte blend in water sipped throughout the day; 1 tsp cod liver oil blend (incl. vit. A+D+E) w/ breakfast; calcium; vitamin C+zinc

 

Courage is fear that has said its prayers.  - Karle Wilson Baker

love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters.  - Rev. angel Kyodo williams

Holding multiple truths. Knowing that everyone has their own accurate view of the way things are.  - text on homemade banner at Afiya house

 

I am not a medical professional; this is not medical advice. 

Posted

 

1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs)

2012-2018 - 10mg lexapro/escitalopram (20mg?)    Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg  -->  July 2018 - 0mg

2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg    2020-2021 - 70mg down to 0mg  -->  July 2021 - 0mg

March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT)  -->  April 28th, 2021 - 0mg

August 2021 - 2mg melatonin   August 1, 2022 - 1mg melatonin   March 31, 2023 - 0mg melatonin

2024 supplements update: electrolyte blend in water sipped throughout the day; 1 tsp cod liver oil blend (incl. vit. A+D+E) w/ breakfast; calcium; vitamin C+zinc

 

Courage is fear that has said its prayers.  - Karle Wilson Baker

love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters.  - Rev. angel Kyodo williams

Holding multiple truths. Knowing that everyone has their own accurate view of the way things are.  - text on homemade banner at Afiya house

 

I am not a medical professional; this is not medical advice. 

Posted

I have commented on a post and liked a few... I have tried looking through the posts but don't find anything that I can relate to enough to comment. Maybe that's why I am feeling so alone because I don't feel like there's anyone that I relate to or that can relate to me?? I don't know, just feeling very frustrated... It seems like most everyone is tapering which doesn't seem to be anything I am going through or having way different symptoms/experiences than me... I have tried searching different words and still come up with little. Maybe I just don't know what I'm doing...

Cymbalta - 2005-2008 - quit CT with no issues 

2008-2013 - on and off Fluoxetine with no issues

Fluoxetine - January 2013 - October 2016

Switched to Cymbalta - October 2016

Quit Cymbalta CT - January 26, 2017 -9 1/2 months of WD

Fluoxetine & Gabapentin - February 2017

Slow taper of Gabapentin - May 2017

Taper Fluoxetine 20mg to 5mg - September 2023 - January 2024 (now I know too fast)

Last 5mg dose of Fluoxetine - January 31, 2024 (now I know considered CT)

WD started February 7, 2024

*Reinstated .1ml Fluoxetine 6/11/24, .2ml 6/18, .3ml 6/25, .4ml 7/8, .5ml 7/15 - symptoms increased went back down to .4ml 7/20 - holding

WD symptoms: nausea and insomnia are the worst, bouts of anxiety, depression, fear/dread, emotional and lots of crying, loss of appetite, lost a lot of weight, constipation, sensitive teeth, hair falling out, sensitive to noise, body aches and pains/sciatica, dry mouth, Vagus nerve dysfunction, blurred vision, weird feeling like my shirt is choking me even though it's nowhere near my throat, acid reflux, chemical/metallic taste in my mouth, lump in my throat feeling, pins and needles sensations, tingling in my back, air hunger, akathisia, yawning and the tinny feeling doesn't go away

  • Moderator
Posted
4 minutes ago, ShantyO7 said:

I have commented on a post and liked a few... I have tried looking through the posts but don't find anything that I can relate to enough to comment. Maybe that's why I am feeling so alone because I don't feel like there's anyone that I relate to or that can relate to me?? I don't know, just feeling very frustrated... It seems like most everyone is tapering which doesn't seem to be anything I am going through or having way different symptoms/experiences than me... I have tried searching different words and still come up with little. Maybe I just don't know what I'm doing...

Hi @ShantyO7- it can be a lonely journey!  And it does take such energy to connect with others, at a time when most of us are super low on energy.  When I started posting here, I watched for newer members that were joining, read their stories, and offered some words of support, even though I'm in a different place- I'm actually relatively stable in my taper, and many people here are not.  This has helped me create some wonderful bonds.  Not with every single person I've commented on, but with a few.  You don't necessarily have to be able to relate to exactly what others are going through- sometimes those bonds can just start by offering a quick hello, and a 'wow, that must really suck' lol.  I think we all just want to be seen and understood.  You are drug free, which is a goal so many of us aspire to, and your story is very interesting, as it helps us see that the battle goes on, even after the drugs are out of our system.   

 

I completely understand where you are.  I've been in that place from rapid tapers in the past.  I think there are lots of us out there who have been on the drug merry-go-round, and have come out damaged on the other side.  You are absolutely not alone, but I know it can feel that way.  And it's super hard to put yourself out there when you're feeling so low, but if you keep reaching out to others here, they will start to reach back.  Plus- it feels amazing when you can offer a helpful word to others.  There's nothing better than helping others in need to brighten your own spirits. 

 

Hang in there my friend!  You will get through this! Sending lots of healing vibes your way! 

 

 

1995- 2007- On and off multiple antidepressants (Prozac, Paxil, Effexor, Wellbutrin, escitalopram). Memory poor- can’t remember dates. Always tapered fast or CT.  2007- tapered Wellbutrin, zopiclone and escitalopram over one month to get pregnant.  Withdrawal hell for many years.

2009- Daughter born 🥰 Post partum depression/psychosis- no meds taken.

2016- Back on escitalopram due to job change/anxiety

2022- Severe covid infection- Diagnosed with long covid 08/22.

2023- 01/23- Long term disability approved for long covid.  Started taper under MD advice from 20mg: 11/23- 15mg. 2024- March-10mg. Started low dose naltrexone for long covid-5mg- terrible reaction, reduced to 0.5mg.  April- 10mg escitalopram, 1.0mg LDN. May 1- 9.0mg escitalopram, 1.0mg LDN. May 15- 9.0mg escitalopram, 1.5mg LDN.  June 12- 8.5mg escitalopram, 1.5mg LDN.  July 8- Brassmonkey micro taper started.  8.4mg escitalopram, 1.5mg LDN.  July 15- 8.3mg esc, 1.5mg LDN.  July 18 8.3mg esc, 2.0mg LDN, July 22 8.2mg esc. 2.0mg LDN. July 29 8.1mg esc. 2.0mg LDN. Aug. 24- 8.0mg Esc. 2.0mg LDN.  Aug. 30 7.9mg esc.  Sept. 6 7.8mg esc.  Sept. 13 7.7mg esc. Sept 21 2.5mg LDN. Oct. 4 7.6mg esc. Oct. 11 7.5mg esc. Oct. 18 7.4mg esc. Oct. 25- 7.3mg esc.  Nov. 1- 3.0mg LDN. Nov. 15- Dec 27- 6.9mg esc.

 

Supplements/other meds: Vitamin D, B12, Claritin, HRT

 

PLEASE DO NOT PM ME!  PLEASE ONLY TAG ME FOR URGENT QUESTIONS!  Thank you!

 

I am not a doctor.  I don't even play one on TV.  This is not medical advice, but based on personal experience.  Please consult a medical professional.

  • Mentor
Posted

Here are the search results of ‘nausea’ from the last week or so. It is pretty common and something I have suffered severely from myself. I’m sorry it’s happening to you ☹️

 

Sadly nearly everyone here found this place because they were suffering.  You are not alone. Issues with sleep, eating, nausea, despair, feeling it will last for ever, fear, they are, very sadly, all common .
 

I am one of those people. I was suffering from severe WD , came here, foolishly ignored advice, fully reinstated, took years to recover, never fully, and when I was ready did what I was told on here and started the BrassMonkey slide which has gone well. Very few people arrive here before a disaster. 
 

You will get through this, the only thing that works is time and possibly some sort of reinstatement but I’m not qualified to comment on that. If you want to try to relieve symptoms 0.5mg of fluoxetine might help, but get advice from a mod if you want to try that. There is no shame in a small reinstatement and it might help.  

 

 

am not a medical professional. I provide information and make suggestions based on my own experience and SA guidelines. I am unable to respond to private messages. 

Mirtazepine 15mg Nov 2018 -April 2019  April - Sept 2019 Mirtazepine down to around 6mg - skipping days to taper

October 2019 - Dec 2019 unwell from failed taper including jumping about in doses 

15 December 2019 to 13 June 2021 15mg Mirtazepine 

14 June 2021 started brass monkey Slide.  
2021: 23 August 12.3mg, 28 October 11.1mg, 6 Dec 10mg

2022: 12 Feb 8.5, 25 Oct 4.5mg

2023: 16 Jan 3.6mg, 28 Sept 1.8mg

2024: 13 May 1.1mg

2024: September reinstated 15mg owing to severe depression planning to stay on for the very long term 

Posted
10 hours ago, ShantyO7 said:

It seems like most everyone is tapering which doesn't seem to be anything I am going through or having way different symptoms/experiences than me...

 

Hi @ShantyO7

 

Have you looked at the help topic I sent you? 

It's specifically for people who are not tapering, but for people who are drug-free and dealing with WD as a result of having come off drugs cold turkey or too fast or suffering immediate adverse reactions. I'm one of the members here who has not tapered during my time on SA, I've been drug-free the whole time I've been here, dealing with cold turkey WD.

I will send you the topic again, along with a few others. 

 

Also, the way you are feeling right now is probably neuro-emotion due to being in a wave. As time goes on the smog will begin to lift and you will find yourself organically improving and gradually better able to connect with others. Your current mental/emotional state is not who you are, it's a symptom of iatrogenic injury, what I call WD-brain. 

 

Try to be patient and very gentle with yourself. If you feel alone that's okay, let yourself grieve and feel sad if that's your current reality. We'll still be here when things shift and you start to emerge from the wave's smoke and mirrors. You are entitled to feeling sorry for yourself. I'm so sorry this has happened to you, and if you need a good ol' wallow in self-pity, go for it! Really get in there and enjoy, lol! I've been there for sure. For a while it feels good and then after a while it doesn't serve any higher purpose, and we can transition out of that place into more constructive, proactive practices of self-compassion, self-acceptance, empathy for ourselves and others, etc. But really, don't worry about it. You don't have to force anything. These shifts will come as you heal. 

 

For now, take care of yourself as best you can and tend your body's healing needs. Wholesome, nutritious diet; gentle exercise; quality rest/sleep; hydration; sunlight to support circadian rhythm; protection from harsh stimuli; communing with nature/animals/people whom you love and trust and who offer support, compassion, love. Shield yourself from undue stressors and avoid toxic relationship dynamics. Create a safe space for yourself and give yourself time. This too shall pass, and however poorly you're currently feeling, it will get better. 

 

Last but not least, don't underestimate the utility of distraction! Another member recently advised that they have 3 words for those of us still in the thick of things: 

Keep going. 

Distract. 

 

I can attest to that being a viable strategy. 

 

Love,

A.

 

 

1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs)

2012-2018 - 10mg lexapro/escitalopram (20mg?)    Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg  -->  July 2018 - 0mg

2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg    2020-2021 - 70mg down to 0mg  -->  July 2021 - 0mg

March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT)  -->  April 28th, 2021 - 0mg

August 2021 - 2mg melatonin   August 1, 2022 - 1mg melatonin   March 31, 2023 - 0mg melatonin

2024 supplements update: electrolyte blend in water sipped throughout the day; 1 tsp cod liver oil blend (incl. vit. A+D+E) w/ breakfast; calcium; vitamin C+zinc

 

Courage is fear that has said its prayers.  - Karle Wilson Baker

love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters.  - Rev. angel Kyodo williams

Holding multiple truths. Knowing that everyone has their own accurate view of the way things are.  - text on homemade banner at Afiya house

 

I am not a medical professional; this is not medical advice. 

Posted

 

1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs)

2012-2018 - 10mg lexapro/escitalopram (20mg?)    Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg  -->  July 2018 - 0mg

2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg    2020-2021 - 70mg down to 0mg  -->  July 2021 - 0mg

March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT)  -->  April 28th, 2021 - 0mg

August 2021 - 2mg melatonin   August 1, 2022 - 1mg melatonin   March 31, 2023 - 0mg melatonin

2024 supplements update: electrolyte blend in water sipped throughout the day; 1 tsp cod liver oil blend (incl. vit. A+D+E) w/ breakfast; calcium; vitamin C+zinc

 

Courage is fear that has said its prayers.  - Karle Wilson Baker

love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters.  - Rev. angel Kyodo williams

Holding multiple truths. Knowing that everyone has their own accurate view of the way things are.  - text on homemade banner at Afiya house

 

I am not a medical professional; this is not medical advice. 

Posted

 

1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs)

2012-2018 - 10mg lexapro/escitalopram (20mg?)    Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg  -->  July 2018 - 0mg

2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg    2020-2021 - 70mg down to 0mg  -->  July 2021 - 0mg

March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT)  -->  April 28th, 2021 - 0mg

August 2021 - 2mg melatonin   August 1, 2022 - 1mg melatonin   March 31, 2023 - 0mg melatonin

2024 supplements update: electrolyte blend in water sipped throughout the day; 1 tsp cod liver oil blend (incl. vit. A+D+E) w/ breakfast; calcium; vitamin C+zinc

 

Courage is fear that has said its prayers.  - Karle Wilson Baker

love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters.  - Rev. angel Kyodo williams

Holding multiple truths. Knowing that everyone has their own accurate view of the way things are.  - text on homemade banner at Afiya house

 

I am not a medical professional; this is not medical advice. 

Posted

 

1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs)

2012-2018 - 10mg lexapro/escitalopram (20mg?)    Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg  -->  July 2018 - 0mg

2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg    2020-2021 - 70mg down to 0mg  -->  July 2021 - 0mg

March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT)  -->  April 28th, 2021 - 0mg

August 2021 - 2mg melatonin   August 1, 2022 - 1mg melatonin   March 31, 2023 - 0mg melatonin

2024 supplements update: electrolyte blend in water sipped throughout the day; 1 tsp cod liver oil blend (incl. vit. A+D+E) w/ breakfast; calcium; vitamin C+zinc

 

Courage is fear that has said its prayers.  - Karle Wilson Baker

love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters.  - Rev. angel Kyodo williams

Holding multiple truths. Knowing that everyone has their own accurate view of the way things are.  - text on homemade banner at Afiya house

 

I am not a medical professional; this is not medical advice. 

Posted

 

1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs)

2012-2018 - 10mg lexapro/escitalopram (20mg?)    Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg  -->  July 2018 - 0mg

2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg    2020-2021 - 70mg down to 0mg  -->  July 2021 - 0mg

March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT)  -->  April 28th, 2021 - 0mg

August 2021 - 2mg melatonin   August 1, 2022 - 1mg melatonin   March 31, 2023 - 0mg melatonin

2024 supplements update: electrolyte blend in water sipped throughout the day; 1 tsp cod liver oil blend (incl. vit. A+D+E) w/ breakfast; calcium; vitamin C+zinc

 

Courage is fear that has said its prayers.  - Karle Wilson Baker

love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters.  - Rev. angel Kyodo williams

Holding multiple truths. Knowing that everyone has their own accurate view of the way things are.  - text on homemade banner at Afiya house

 

I am not a medical professional; this is not medical advice. 

Posted

Thank you all! I appreciate all the info and encouragement! I just got over a stomach bug on top of everything else going on so it just put me in an extra funk. Hoping for a window real soon! Also, haven't been able to sleep in my bed or even really lay down for almost 2 months, been sleeping in a recliner and it's messing me up 😭

Cymbalta - 2005-2008 - quit CT with no issues 

2008-2013 - on and off Fluoxetine with no issues

Fluoxetine - January 2013 - October 2016

Switched to Cymbalta - October 2016

Quit Cymbalta CT - January 26, 2017 -9 1/2 months of WD

Fluoxetine & Gabapentin - February 2017

Slow taper of Gabapentin - May 2017

Taper Fluoxetine 20mg to 5mg - September 2023 - January 2024 (now I know too fast)

Last 5mg dose of Fluoxetine - January 31, 2024 (now I know considered CT)

WD started February 7, 2024

*Reinstated .1ml Fluoxetine 6/11/24, .2ml 6/18, .3ml 6/25, .4ml 7/8, .5ml 7/15 - symptoms increased went back down to .4ml 7/20 - holding

WD symptoms: nausea and insomnia are the worst, bouts of anxiety, depression, fear/dread, emotional and lots of crying, loss of appetite, lost a lot of weight, constipation, sensitive teeth, hair falling out, sensitive to noise, body aches and pains/sciatica, dry mouth, Vagus nerve dysfunction, blurred vision, weird feeling like my shirt is choking me even though it's nowhere near my throat, acid reflux, chemical/metallic taste in my mouth, lump in my throat feeling, pins and needles sensations, tingling in my back, air hunger, akathisia, yawning and the tinny feeling doesn't go away

  • Moderator
Posted
Just now, ShantyO7 said:

 I just got over a stomach bug

OMG me too!  It was AWFUL.  And it definitely sets you back both physically and mentally.  Find some time to relax in the sunshine!  I have long covid and I'm tapering, so I really find that rest, pacing myself, and time in nature is the best medicine! :)

1995- 2007- On and off multiple antidepressants (Prozac, Paxil, Effexor, Wellbutrin, escitalopram). Memory poor- can’t remember dates. Always tapered fast or CT.  2007- tapered Wellbutrin, zopiclone and escitalopram over one month to get pregnant.  Withdrawal hell for many years.

2009- Daughter born 🥰 Post partum depression/psychosis- no meds taken.

2016- Back on escitalopram due to job change/anxiety

2022- Severe covid infection- Diagnosed with long covid 08/22.

2023- 01/23- Long term disability approved for long covid.  Started taper under MD advice from 20mg: 11/23- 15mg. 2024- March-10mg. Started low dose naltrexone for long covid-5mg- terrible reaction, reduced to 0.5mg.  April- 10mg escitalopram, 1.0mg LDN. May 1- 9.0mg escitalopram, 1.0mg LDN. May 15- 9.0mg escitalopram, 1.5mg LDN.  June 12- 8.5mg escitalopram, 1.5mg LDN.  July 8- Brassmonkey micro taper started.  8.4mg escitalopram, 1.5mg LDN.  July 15- 8.3mg esc, 1.5mg LDN.  July 18 8.3mg esc, 2.0mg LDN, July 22 8.2mg esc. 2.0mg LDN. July 29 8.1mg esc. 2.0mg LDN. Aug. 24- 8.0mg Esc. 2.0mg LDN.  Aug. 30 7.9mg esc.  Sept. 6 7.8mg esc.  Sept. 13 7.7mg esc. Sept 21 2.5mg LDN. Oct. 4 7.6mg esc. Oct. 11 7.5mg esc. Oct. 18 7.4mg esc. Oct. 25- 7.3mg esc.  Nov. 1- 3.0mg LDN. Nov. 15- Dec 27- 6.9mg esc.

 

Supplements/other meds: Vitamin D, B12, Claritin, HRT

 

PLEASE DO NOT PM ME!  PLEASE ONLY TAG ME FOR URGENT QUESTIONS!  Thank you!

 

I am not a doctor.  I don't even play one on TV.  This is not medical advice, but based on personal experience.  Please consult a medical professional.

Posted
23 hours ago, Catwoman73 said:

Hi @ShantyO7- it can be a lonely journey!  And it does take such energy to connect with others, at a time when most of us are super low on energy.  When I started posting here, I watched for newer members that were joining, read their stories, and offered some words of support, even though I'm in a different place- I'm actually relatively stable in my taper, and many people here are not.  This has helped me create some wonderful bonds.  Not with every single person I've commented on, but with a few.  You don't necessarily have to be able to relate to exactly what others are going through- sometimes those bonds can just start by offering a quick hello, and a 'wow, that must really suck' lol.  I think we all just want to be seen and understood.  You are drug free, which is a goal so many of us aspire to, and your story is very interesting, as it helps us see that the battle goes on, even after the drugs are out of our system.   

 

I completely understand where you are.  I've been in that place from rapid tapers in the past.  I think there are lots of us out there who have been on the drug merry-go-round, and have come out damaged on the other side.  You are absolutely not alone, but I know it can feel that way.  And it's super hard to put yourself out there when you're feeling so low, but if you keep reaching out to others here, they will start to reach back.  Plus- it feels amazing when you can offer a helpful word to others.  There's nothing better than helping others in need to brighten your own spirits. 

 

Hang in there my friend!  You will get through this! Sending lots of healing vibes your way! 

 

 

 

14 hours ago, Ariel said:

 

Not sure if this is how you respond to Ariel's comment but if so thanks for sharing this. It was a helpful read!

Cymbalta - 2005-2008 - quit CT with no issues 

2008-2013 - on and off Fluoxetine with no issues

Fluoxetine - January 2013 - October 2016

Switched to Cymbalta - October 2016

Quit Cymbalta CT - January 26, 2017 -9 1/2 months of WD

Fluoxetine & Gabapentin - February 2017

Slow taper of Gabapentin - May 2017

Taper Fluoxetine 20mg to 5mg - September 2023 - January 2024 (now I know too fast)

Last 5mg dose of Fluoxetine - January 31, 2024 (now I know considered CT)

WD started February 7, 2024

*Reinstated .1ml Fluoxetine 6/11/24, .2ml 6/18, .3ml 6/25, .4ml 7/8, .5ml 7/15 - symptoms increased went back down to .4ml 7/20 - holding

WD symptoms: nausea and insomnia are the worst, bouts of anxiety, depression, fear/dread, emotional and lots of crying, loss of appetite, lost a lot of weight, constipation, sensitive teeth, hair falling out, sensitive to noise, body aches and pains/sciatica, dry mouth, Vagus nerve dysfunction, blurred vision, weird feeling like my shirt is choking me even though it's nowhere near my throat, acid reflux, chemical/metallic taste in my mouth, lump in my throat feeling, pins and needles sensations, tingling in my back, air hunger, akathisia, yawning and the tinny feeling doesn't go away

Posted
6 hours ago, Catwoman73 said:

OMG me too!  It was AWFUL.  And it definitely sets you back both physically and mentally.  Find some time to relax in the sunshine!  I have long covid and I'm tapering, so I really find that rest, pacing myself, and time in nature is the best medicine! :)

Yeah, it really sucks to get sick ON TOP of everything else going on in your body. I can't imagine having long covid as well!

Cymbalta - 2005-2008 - quit CT with no issues 

2008-2013 - on and off Fluoxetine with no issues

Fluoxetine - January 2013 - October 2016

Switched to Cymbalta - October 2016

Quit Cymbalta CT - January 26, 2017 -9 1/2 months of WD

Fluoxetine & Gabapentin - February 2017

Slow taper of Gabapentin - May 2017

Taper Fluoxetine 20mg to 5mg - September 2023 - January 2024 (now I know too fast)

Last 5mg dose of Fluoxetine - January 31, 2024 (now I know considered CT)

WD started February 7, 2024

*Reinstated .1ml Fluoxetine 6/11/24, .2ml 6/18, .3ml 6/25, .4ml 7/8, .5ml 7/15 - symptoms increased went back down to .4ml 7/20 - holding

WD symptoms: nausea and insomnia are the worst, bouts of anxiety, depression, fear/dread, emotional and lots of crying, loss of appetite, lost a lot of weight, constipation, sensitive teeth, hair falling out, sensitive to noise, body aches and pains/sciatica, dry mouth, Vagus nerve dysfunction, blurred vision, weird feeling like my shirt is choking me even though it's nowhere near my throat, acid reflux, chemical/metallic taste in my mouth, lump in my throat feeling, pins and needles sensations, tingling in my back, air hunger, akathisia, yawning and the tinny feeling doesn't go away

  • Moderator
Posted
3 hours ago, ShantyO7 said:

Yeah, it really sucks to get sick ON TOP of everything else going on in your body. I can't imagine having long covid as well!

Lol- I've had long covid for almost two years, and I've been tapering for six months.  Honestly, I think long covid prepared me for the taper.  There are so many overlapping symptoms.  I've gotten used to feeling crappy!  I think that as long as I go slow, I think the taper will be quite tolerable this time, because I'm so prepared for it.  My biggest fear is the jump off, which is probably more than a year away for me, but it still scares me.  I know from past experience that it can be very ugly for me.  I'm hoping that doing a slow taper for the first time in my life will help mitigate some of that.  Fingers crossed!

1995- 2007- On and off multiple antidepressants (Prozac, Paxil, Effexor, Wellbutrin, escitalopram). Memory poor- can’t remember dates. Always tapered fast or CT.  2007- tapered Wellbutrin, zopiclone and escitalopram over one month to get pregnant.  Withdrawal hell for many years.

2009- Daughter born 🥰 Post partum depression/psychosis- no meds taken.

2016- Back on escitalopram due to job change/anxiety

2022- Severe covid infection- Diagnosed with long covid 08/22.

2023- 01/23- Long term disability approved for long covid.  Started taper under MD advice from 20mg: 11/23- 15mg. 2024- March-10mg. Started low dose naltrexone for long covid-5mg- terrible reaction, reduced to 0.5mg.  April- 10mg escitalopram, 1.0mg LDN. May 1- 9.0mg escitalopram, 1.0mg LDN. May 15- 9.0mg escitalopram, 1.5mg LDN.  June 12- 8.5mg escitalopram, 1.5mg LDN.  July 8- Brassmonkey micro taper started.  8.4mg escitalopram, 1.5mg LDN.  July 15- 8.3mg esc, 1.5mg LDN.  July 18 8.3mg esc, 2.0mg LDN, July 22 8.2mg esc. 2.0mg LDN. July 29 8.1mg esc. 2.0mg LDN. Aug. 24- 8.0mg Esc. 2.0mg LDN.  Aug. 30 7.9mg esc.  Sept. 6 7.8mg esc.  Sept. 13 7.7mg esc. Sept 21 2.5mg LDN. Oct. 4 7.6mg esc. Oct. 11 7.5mg esc. Oct. 18 7.4mg esc. Oct. 25- 7.3mg esc.  Nov. 1- 3.0mg LDN. Nov. 15- Dec 27- 6.9mg esc.

 

Supplements/other meds: Vitamin D, B12, Claritin, HRT

 

PLEASE DO NOT PM ME!  PLEASE ONLY TAG ME FOR URGENT QUESTIONS!  Thank you!

 

I am not a doctor.  I don't even play one on TV.  This is not medical advice, but based on personal experience.  Please consult a medical professional.

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