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Survival and diagnosis changed to "Medication-induced psychosis."


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I accompanied my son through his multi-year ordeal that began with antidepressants starting in around 2014. He immediately had adverse reactions that were huge red flags - stiffness, extreme personality changes - but instead the GP and later psych nurse practitioner just kept prescribing new ones, because, you know, it is "art." (What a croc of bs.) Finally, in the summer of 2018, he became psychotic, hearing and seeing things, and suicidal, sobbing wildly for hours, as well as hypersexual, paranoid, and manic.

 

So a psychiatrist diagnosed him with bipolar I or schizoid affective disorder - asking me questions about his childhood.  As a child he was calm, easy, sociable, gifted, but the psychiatrist had me wondering if his love of roller coasters during puberty was mental illness.  Terrible. So the psychiatrist prescribed Latuda and tapered him off Prozac over a few weeks.

 

He came down and was muted, tired, but was always scrolling the internet on his phone and jiggling his legs.  I though this was "bipolar disorder" because, well, every frigging symptoms is called "bipolar disorder." Five months later he developed full blown akathisia from the Latuda, with panic attacks and pacing.  We did not know what akathisia was; he thought it was just stress over "bad decisions." 

 

Since he was having heart palpitations from these anxiety attacks, and did not know he had akathisia, he went to his GP thinking this was a medical problem. His GP told him he had "anxiety disorder" and prescribed more Prozac, which my son told him he should not have, and Xanax which was like throwing a torch into already burning pine trees. The GP said, "This is perfectly safe." My son took one Prozac pill with the Xanax and said it was like his brain snapped and started jiggling in his head. He never took another Prozac pill but he now needed Xanax to sleep at all and to avoid terrible panic attacks.  Within two weeks he had interdose withdrawal from Xanax - he knew that he was becoming dependent on it, and that he would need more and more to avoid the panic attacks. He knew the drugs were causing it, but he had to keep working to support his disabled child; he was the only financial support the child had. The GP raised the dose. Soon could not sleep at all - he would sleep one hour every few nights, and this went on for months. He was exhausted yet agitated, could not nap, could not yawn. He had tingling extremities, crushing head pain, severe digestive issues, and was pacing 24/7, barely able to work.  And he was also on antidepressants again, different ones - Wellbutrin, which made him very tense and angry, then Mirtazipine, back to Wellbutrin, back to Mirtazipine. He got worse and worse, was desperate, barely able to survive. This led to multiple hospitalizations and at least 15 drugs in a nine-month period. Covid saved his life because he could work from home. Had he lost his job, I am sure he would have committed suicide, as he nothing to offer his child but a small life insurance policy. He told me he would make it look like an accident. 

 

He saw at least eight different psychiatrists, MD's, and psych nurses in clinics, ER's, hospitals. Only the very last psychiatrist acknowledged that the drugs were problematic, but he had no solutions.  Finally my son fired the "mental health practitioners" and went off all the drugs cold turkey, feeling that nothing could be worse than his adverse effects. He did not understand at the time that he was dealing with both adverse effects of drugs he was on and withdrawal from drugs that he had been on earlier.

 

His akathisia stopped after getting off the Latuda, which he stopped cold turkey a few weeks before the rest, but after cold turkeying the others - benzos, gabapentin, antidepressants and "mood stabilizers," he developed horrific, severe withdrawal anhedonia and depersonalization, was almost catatonic. This lasted almost 18 months, from early April 2020 through September, 2021. But  he had windows, and I kept telling him he could get better.

 

In September, 2021,  he realized that the withdrawal symptoms were over - the whole nightmare was over. With the help of a safe psychologist who understands drug harm, he quickly got back to living, picking up the pieces of his broken life overnight. He cleaned his apartment - it was nearly unlivable - in one weekend, took his son on a vacation, got back to rafting, which he loved.  He was physically weak from the lack of movement, darkness, and terrible diet he had had during this whole ordeal, but his basic health had been strong enough going into this that he recovered.

 

Since then, for the last three and half years, he has had no symptoms of depression, anxiety, or any other "mental illness" symptom. No psychosis, no voices, nothing, despite a very demanding, high-responsibility job and caring for a autistic child and trying to protect him from the system.  The akathisia and other adverse reactions are gone. He has renewed his white-water rescue certification, goes rafting on class III and IV rapids. This is a person who was almost catatonic from terror on the drugs. During the ordeal, the antidepressants caused significant emotional numbing. He could not laugh, could not cry, and did not feel or show empathy. This was terrifying for him and for me. His original empathetic, sensitive, humorous personality is fully back. 

 

But the diagnosis - Bipolar I/ Schizoaffective disorder - from his initial psychosis in 2018 was still in his records, hanging around his neck like a ball and chain, and he could not get life insurance. His child will need support forever, and he is the only financial supporter and is a single parent. 

 

Suddenly, out of the blue, the last psychiatrist he had seen four years earlier calls him to ask how he is doing, and immediately my son says, "I want this diagnosis off my record." So the psychiatrist met with him the next day, and amazingly, changed the diagnosis to "Medication-induced psychosis." He told my son NEVER to take ANY psychotropic medication and never to let a health care provider pressure him to do so. 

 

My grandson was significantly traumatized by this ordeal, and my life was turned upside down. I left a secure job, a very hard-won tenured professorship, and moved across the country when I found out he was psychotic. For the next three years, while my husband worked two jobs, 70 to 80 hours a week to support us,  I drove an hour one way to his apartment and back almost every day to make sure he was still alive and spent weeks at his place helping care for his child so he did not lose custody. I was at the ER and hospitals with him and went through some terrible experiences with medical staff.

 

I reported all of this incompetency and abuse to the state department of health, and there were lengthy investigations, but "no laws were broken." I am determined to fight for new informed consent laws in my state and across the country. 

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What an ordeal @madinolympia. But so glad that this is better now. I am so glad that he wised up and cut the poison out of his life and so glad that the doctor changed his diagnosis. 


Wow. May you and your family have a long and calm life together. 

 

OMW

"Nothing so small as a moment is insurmountable, and moments are all that we have. You have survived every trial and tribulation that life has thrown at you up until this very instant. When future troubles come—and they will come—a version of you will be born into that moment that can conquer them, too." - Kevin Koenig 

 

I am not a doctor and this should not be considered medical advice. You can use the information and recommendations provided in whatever way you want and all decisions on your treatment are yours. 

 

In the next few weeks I do not have a lot of capacity to respond to questions. If you need a quick answer pls tag or ask other moderators who may want to be tagged. 

 

Aug  2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg,  xanax prn, wellbutrin for a few months, trazodone prn 

Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used)

Aug 2018 - citalopram 40 mg (self titrated up)

September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0

Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd

March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week

Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week (off by 4/14/19- no tapering)

citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg,  7/27/19 -1.5 mg,  8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785, 8/18/22 - 0.59, 12/15/2022 - 0.48, 2/15/22 - 0.43, 25/07/23 - 0.25 (mistake), 6/08/23 - 0.33mg

 

Supplements: magnesium citrate and bi-glycinate

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Your whole family are warriors. What an incredible story of support, resilience and love.

Supplements: Vit D3, Fish oil, Magnesium bisglycenate 200mg (when needed), Melatonin 1.25mg (when needed), Camomile tea (1 cup before bed), THC oil (0.03ml once a week, don't do this to yourself), Vit C 500mg a day
Started effexor in 2011.

Stopped effexor in 2012 (fast tamper).

Got back on effexor in 2012.

Tried stopping effexor again in 2014 (I'm not sure?), fast tamper again.

Started effexor again in 2014.

Switched to Escitalopram in 2016 I believe

Stopped Escitalopram 10mg cold turkey on January 3 2024.

Reinstated Escitalopram 5mg on april 2 2024.

Down to 1mg on april 3 2024, 1.25mg on april 11 2024

 

 

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Wow that is amazing! Thank you for taking such good care of him. My own mother said I needed to lock myself up and swallow the key. From a normal hard working mama to this...thing.

Anyway I'm so glad your boy made it out!. Rafting with my son was high on my list of things I wanted in life. Truly amazing story!!! Upsetting that these false diagnoses will prohibit me from getting insurance or probably even more than that. They truly don't care who or how they harm 

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@madinolympia

 

Thank you for sharing this extraordinary story. 

 

18 hours ago, Tweed9674 said:

Your whole family are warriors. What an incredible story of support, resilience and love.

 

Agree with @Tweed9674 !

 

I'm so sorry for what you've all been through. 

Heartfelt, whole-bodied congratulations and celebrations on making it out to the other side and sticking together as a family!

And not least, thank you for this:

 

On 4/30/2024 at 6:37 AM, madinolympia said:

I reported all of this incompetency and abuse to the state department of health, and there were lengthy investigations, but "no laws were broken." I am determined to fight for new informed consent laws in my state and across the country. 

 

Thank you for reporting and continuing to fight for change, justice, and to make things better for those to come. 

You're amazing!

 

Love, gratitude, peace, healing, light, and so much admiration and respect to you and your whole family!

A. 

1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs)

2012-2018 - 10mg lexapro/escitalopram (20mg?)    Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg  -->  July 2018 - 0mg

2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg    2020-2021 - 70mg down to 0mg  -->  July 2021 - 0mg

March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT)  -->  April 28th, 2021 - 0mg

August 2021 - 2mg melatonin   August 1, 2022 - 1mg melatonin   March 31, 2023 - 0mg melatonin

2024 supplements update: electrolyte blend in water sipped throughout the day; 1 tsp cod liver oil blend (incl. vit. A+D+E) w/ breakfast; calcium; vitamin C+zinc

 

Courage is fear that has said its prayers.  - Karle Wilson Baker

love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters.  - Rev. angel Kyodo williams

Holding multiple truths. Knowing that everyone has their own accurate view of the way things are.  - text on homemade banner at Afiya house

 

I am not a medical professional; this is not medical advice. 

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I cant believe we can't sue for this. I asked a multitude of questions before taking the poisons and at no time did they tell me any if this could happen.  I never would have taken them. Ever. They just keep getting away with it. Not just no informed consent but totally lied to me. Said I couldn't get s.i. bc I wasn't a child or young adult or bipolar.  Said I couldn't become psychotic because I'd never had it before. I had anxiety from a misdiagnosis of terminal disease. Just unfair 

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Yes, I asked as well before this! And was told no dependence.

"Nothing so small as a moment is insurmountable, and moments are all that we have. You have survived every trial and tribulation that life has thrown at you up until this very instant. When future troubles come—and they will come—a version of you will be born into that moment that can conquer them, too." - Kevin Koenig 

 

I am not a doctor and this should not be considered medical advice. You can use the information and recommendations provided in whatever way you want and all decisions on your treatment are yours. 

 

In the next few weeks I do not have a lot of capacity to respond to questions. If you need a quick answer pls tag or ask other moderators who may want to be tagged. 

 

Aug  2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg,  xanax prn, wellbutrin for a few months, trazodone prn 

Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used)

Aug 2018 - citalopram 40 mg (self titrated up)

September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0

Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd

March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week

Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week (off by 4/14/19- no tapering)

citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg,  7/27/19 -1.5 mg,  8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785, 8/18/22 - 0.59, 12/15/2022 - 0.48, 2/15/22 - 0.43, 25/07/23 - 0.25 (mistake), 6/08/23 - 0.33mg

 

Supplements: magnesium citrate and bi-glycinate

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What a story. Glad your son is back.

 

I also asked the doctor and two pharmacists if the drugs might be hard to get off beforehand/when I'd been on for a day .... They all said "nope, no problem at all" , and they told me to take it for a month ... Just long enough to eff you over, and make sure you ain't getting off quick.

Olanzapine (5mg) started June 2023 - This is the only drug I'm currently taking, haven't used any other psych drugs.

After 4 weeks dropped to 2.5mg for 5 days then dropped to 1.25mg for 3 days, withdrawals commenced. I then took a single dose of 3.75mg. Then went to 2.5mg. since July 19

Hoping to hold at 2.5mg  and GODWILLING I will STABILIZE.

I can't tell WD symptoms from Long Covid symptoms. I think a bit of both, and I think my quick earlier taper has made the LC symptoms worse ... what to do.

Update: Sept 28 2023: -2.5%   Oct 5: -2.5%   Oct 12: -2.5%   Oct 19: -5%   Oct 29: -5%   Nov 10: -5%  2.0mg  Nov 20:  -5%  1.9mg  Nov 30:  -5%  1.8mg  Dec 12:  1.75mg   Dec 22: 1.70mg Dec 29: 1.65mg Jan 06/24: 1.60mg  Jan 14: 1.55mg Jan 25: 1.50mg   Feb 12: Updose to 1.55mg  Apr 25: 1.50mg  May 22: 1.45mg

(percentage drops are from previous dose)

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@madinolympia You said he is totally healed, but does any adverse reaction to drugs stayed? Anything?

2009-2010: Asentra (50 mg)

2011: Cipralex (10 mg)

2009-2011: tried Zyprexa (5/2.5mg), Kventiax  (50/25mg) and Abilify (low dosage) (started refusing it - being zombie)

CT Cipralex, being free for several moths

2012-2016: Prozac (60 mg)

2016-2017: Alventa (75 mg)

2016: just tried Cymbalta and Ludiomil

2017-2018: Mirtazapine (30/45mg)

2012-2018: Wellbutrine (300 mg)

2014-2018: Lamotrigine (50/100/150 mg) CT Wellbutrin, tapering lamitrogine and mirtazapine too fast

Supplements: B12, D, Mg, trying B3, B1

I know I wrote a lot of nonsense here. I'm sorry, I feel shamed!

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No, nothing. He is completely healthy. He has an unusual amount of  responsibility and problem solving to deal with in his job and life as single parent of a neuro-atypical child with serious health issues, and he manages it all and participates regularly in river clean ups and white water rafting tours. 

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  • 2 weeks later...

Thanks you for this story. you say he had stomach problems? But what type? food intolerances?

Thanks for your answer

10.10.21 Trittico 25mg for 10 days

15.04.22 L-Tryptophane 1000mg

16.04.22 Tyrosine 500 mg + L-Tryptophane 500mg : Bad Reaction

17.04.22 Tyrosine 500 mg : Bad Reaction

18.04.22 L-Tryptophane 500mg

03.09.22 Ginseng 1 pill : Bad reaction

August 2023 : Appearance histamine intolerance

19.10.23 Covid with inflammatory reactions

SIBO

28.10.23 - 16.11.23 Allegra 120mg for mastocytosis Covid

09-10-11-12.11 Dyphenydramine 25mg for big reaction mastocytosis

 

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Thank you for telling your story here.  **** got real and you stepped up.  You and your son are warriors and you should both be proud of yourselves.  

 

I hope you both are able to live your lives in peace after this horrible ordeal.

 

**** these crooked psych docs and their experiments.

Med History - 2014 - 2020 - Zoloft, Effexor, Klonopin, Lexapro, Buspar (No longer on any of these)

Went to my doctor for an annual and mentioned I was stressed, gave me Zoloft, stopped it after 3 months because it didn't do anything, ended up in withdrawal and was told I had a mental illness.  I've been diagnosed Bipolar and Clinically Depressed.  

Current Med Taper 

Lamotrigine - 25mg (May 21') -> 24mg (May 23') -> 23mg (July 23') -> 22mg (Aug 23') -> 21mg (Oct 23') -> 20mg (Dec 23')

Supplement: Magnesium, Fish Oil

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@Elodie - I think his gut flora was destroyed by the drugs. I think that these drugs cause massive inflammation, that the connection between the gut and the brain is totally being ignored by the medical-pharma establishment.  He had a lot of pain, terrible bowel problems. All of that is over now. 

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@Jennings  Thank you. I wish we could live in peace, but my son's son, my grandson, is autistic and has significant social problems and OCD, and we are now having to protect him from this system. It will be a lifelong struggle. 

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