opportunistic diseases during the Withdrawal

[stan]

when we are in Withdrawal, I'm in it for 26 months, I noticed that I caught the diseases that I surely had later;

I have nocturia, dry eyes, Gougerot (No saliva during night, a big new problem), rheumatism phenomenons (spineal, ribcage in fire), insomnia

Some of these things Will never go away.

withdrawal is a state of vulnerability psychological and physical.

years of taking paxil meds diminish the future quality of life of the addict, many testimonies confirms it,

 

obviously not everyone, but the taking time plays a very important part

[angie007]

Stan so sorry for your suffering,

 

So this applies more to long term users does it???? OH JOY, something else to look forward to, NOT.

[angie007]

I do however agree that wd is a state of vulnerability physically and psychologically,

and would like to see these testimonies that say taking paxil long term " diminish" the future life of the addict,

if you would be good enough to post, I, along with others here would be very grateful.

[stan]

hi Angie,

 

i have no post, but i have read and re-read all testimonies long termer since the beginning of my withdrawal and this are my conclusions for me

it is not to fear people, i want the truth and try to say the truth,

the truth is i have all this today, it is concrete for me

i will not collect names, texts, to prove, i say something, prove with me

SUR brings the texts from clinics and other specialists

what i have said here is not a scoop, we can see this in our beginner forum, i am not the alone long-termer here

(there is a big bag of long-termer here); it is the growing of the forum

you say

would like to see these testimonies that say taking paxil long term " diminish" the future life of the addict,

i say the quality of life and not the future life, but maybe one day i will say it diminish life, but today i do not say this, will thinking about

 

i would be so happy to be wrong

[Altostrata]

Oddly, I've had very few respiratory ailments since withdrawal. I've only had a couple of colds in 7 years, and maybe flu once.

 

I was unusually susceptible to migraines for a few years, triggered by bright light, but that seems to have gone away.

 

I did develop eyelid irritation -- itchy, burning eyelids and more eyelid sand. I had this for maybe a year or two. I was afraid it was a chronic condition, but it's cleared up with more sleep.

 

I had loose bowels since withdrawal in 2004 until perhaps 6 months ago. My bowel movement gradually started to get more normal more consistently. Now I have the diarrhea-like bowel movements only rarely.

 

The frequent night-time urination also seems to have become less frequent.

 

A lot of these symptoms improved with more sleep. I'm the same age as you, stan.

[Altostrata]

I need to add a correction to the above: When my sleep started to deteriorate under stress in year 4 of withdrawal, I did have respiratory symptoms. I coughed and wheezed all the time, and had the chills.

 

This doesn't seem to be an infection, though. When I started sleeping a bit better, the symptoms went away. When I had a relapse of the sleep disorder, they came back, then went away again when my sleep improved a little.

[stan]

thanks for your concrete explanations,SUR, it gives me hope that all will not stay with me until my end of life

what is curious is that at 26 months i am very worse physically, instead to be better, new heavy problem appear

sleep with nocturia is already a big problem, but add a mouth dry and eyes (this can be bearable)but the mouth agravates sleep possibility

[Altostrata]

stan -- I can understand restricting water in the evening. Perhaps this is responsible for the dry mouth?

 

If so, suggest drinking a great deal more water earlier in the day. This may help dry eyes also.

[stan]

thanks,

 

i am trying to drink during night, day, i will try camomille soon, green tea

[summer]

when we are in Withdrawal, I'm in it for 26 months, I noticed that I caught the diseases that I surely had later;

I have nocturia, dry eyes, Gougerot (No saliva during night, a big new problem), rheumatism phenomenons (spineal, ribcage in fire), insomnia

Some of these things Will never go away.

withdrawal is a state of vulnerability psychological and physical.

years of taking paxil meds diminish the future quality of life of the addict, many testimonies confirms it,

 

obviously not everyone, but the taking time plays a very important part

 

Stan... while what you say may be true to a degree, the fact that we are getting older plays a role here too. Several of my friends have ailments which you describe, and they have never taken ADs. Perhaps you sleep with your mouth open... that alone contributes to dry mouth.

[angie007]

Hi Stan,

 

Im sorry if you misunderstood my post to you, i was not asking you to prove what you

were saying, by asking you to post links if you had them, i would never discredit

what you have found at all.

I know you are very knowledgeable about wd my friend, as you have suported me in many ways,

and on many occassions, and i am very grateful for that.

 

I can understand what you are saying and i can also understand your thinking along those lines,

and no, your right, you are not the only long term user of paxil here, i am one of the others too,

and i cant help but be afraid of not only my future, but the future of all of us, and as i am newly off

paxil, i am fearing the fear right now.

I read this post this morning, and since reading, i have gone online looking for evidence of

your suggestion, and frankly, what i find, scares me badly.

So much damage created by these drugs, its untrue.

 

Now, although im scared, i also know that the mind is a very powerful organ, and i firmly believe

that the human body has the ability to heal eventually, wether it can heal 100% perfect i dont know,

but i am sure that we can look forward to 80-85% recovery - GOD willing, and i would be happy to settle

for that right now - all i pray is that all of us will be able to function and partake in a normal life

after the onslaught of paxil wd.

 

Just one last bit of good news i would like to share with you if thats ok,

going back about 3yrs ago now, on the other site, i befriended someone from australia who was coming down off

Aropax ( paxil), she had used this drug for 14yrs, as had i, and we tapered together, although she was ahead of me,

she called me through skype today ( completely unexpected) she is 2/5yrs off now, and although she did have many awful

psychological problems during wd, she now declares herself 100% recovered, with no residual issues at all.

THANK GOD, i was so happy to hear that, it gave me so much hope and determination, i hope we can all be as lucky as she is.

 

I hope, although you have had a rough ride i know, will take some comfort from that, because at 25months she was still

pretty much in the thick of wd, so you see, the mind and body can heal eventually.

I will pray that it can happen for us too.

 

Sur, im drumming up stories again lol, she is prepared to write a recovery story for us too, with your

permission of course, and NO, she doesnt frequent the opposition lol, i will wait to hear from you.

[angie007]

Stan ? do let me know how you get on with your green tea, its suppoosed to

be vey calming and good for us in wd, really hope it helps you a lot.

[Altostrata]

For what it's worth, camomile tea and green tea are both diuretics (they make you pee). You might try them before bedtime, they will help you empty your bladder.

[Hopeful]

I did develop eyelid irritation -- itchy, burning eyelids..

 

 

 

I had this symptom in early w/d...I had totally forgotten about it until I read this post. It did go away completely for me too.

 

Stan, just wanted to mention that at the two year mark I was still in very very bad shape...as a matter of fact the Summer and Fall of 2007 I had a couple of one month periods where I was afraid to leave the house. I had never heard of agoraphobia prior to ssri w/d. This was even after around the 19 month timeframe where I thought things had been getting better.

[Punarbhava]

Just one last bit of good news i would like to share with you if thats ok,
going back about 3yrs ago now, on the other site, i befriended someone from australia who was coming down off
Aropax ( paxil), she had used this drug for 14yrs, as had i, and we tapered together, although she was ahead of me,
she called me through skype today ( completely unexpected) she is 2/5yrs off now, and although she did have many awful
psychological problems during wd, she now declares herself 100% recovered, with no residual issues at all.
THANK GOD, i was so happy to hear that, it gave me so much hope and determination, i hope we can all be as lucky as she is.

I hope, although you have had a rough ride i know, will take some comfort from that, because at 25months she was still
pretty much in the thick of wd, so you see, the mind and body can heal eventually.
I will pray that it can happen for us too.

Hi Angie......

thank you for posted this. If I may ask a quick question? I'm unclear as to the time-frame where this person recovered. You typed 2/5. Did you mean 2 years and 5 months before she recovered?

I've just had the most horrible month (so unexpected at this stage) although I was under some regular on-going stress which certainly has high-jacked my CNS but I really thought I'd be able to handle stress a bit better at this point.

In any case, thanks for sharing this and I would appreciate a clarification when you get a chance.

Punar

[Punarbhava]

when we are in Withdrawal, I'm in it for 26 months, I noticed that I caught the diseases that I surely had later;

I have nocturia, dry eyes, Gougerot (No saliva during night, a big new problem), rheumatism phenomenons (spineal, ribcage in fire), insomnia

Some of these things Will never go away.

withdrawal is a state of vulnerability psychological and physical.

years of taking paxil meds diminish the future quality of life of the addict, many testimonies confirms it,

 

obviously not everyone, but the taking time plays a very important part

 

 

Stan,

 

 

so sorry you're having these problems but don't give up hope. I don't believe you've reached the 30 month mark yet right? Things can really improve at that point.

 

 

I know you are so aware of this but I just wanted to be offer a voice outside your own head.

 

 

As well, I truly understand the disappointment you are feeling at this time. I myself am having to psychologically readjust to accepting that I must hang on for 6 more months.

 

 

 

A few more months can make a world of difference at this stage of WD. In the meantime, I send you Hopeful, Holistic, Healthy, Healing Energy!

 

 

 

Punar

[Punarbhava]

 

I did develop eyelid irritation -- itchy, burning eyelids..

 

 

 

I had this symptom in early w/d...I had totally forgotten about it until I read this post. It did go away completely for me too.

 

Stan, just wanted to mention that at the two year mark I was still in very very bad shape...as a matter of fact the Summer and Fall of 2007 I had a couple of one month periods where I was afraid to leave the house. I had never heard of agoraphobia prior to ssri w/d. This was even after around the 19 month timeframe where I thought things had been getting better.

 

Hopeful........

 

thank you so much for posting this. Your post has validated my current experience. As you know it can be quite disturbing to be hit with such force close to or at the two year mark. It's very discouraging however, I keep telling myself that I've come this far......6 more months can make a world of difference.

 

 

If I'm reading your signature correctly: You were doing better after the 2 1/2 year mark?

 

I look forward to your response but no rush.

 

 

Punar

[summer]

For what it's worth, camomile tea and green tea are both diuretics (they make you pee). You might try them before bedtime, they will help you empty your bladder.

 

Yes, this is true... except when I drink either tea, I wake up to pee six times instead of my usual three. Better to drink less after 5:00 or so. That's what seems to work best for me.

[Hopeful]

Hi Pun,

 

Yes, I was in very bad shape (pretty much non functioning...my husband had to work from home for two years)unil the 2 1/2 year mark. At that point I could function again and things started to improve in a more linear fashion...it's been a long haul. I did have a period at about 18-19 months where I thought I was turning the corner, but it got worse again before it got better. But, I did get better and always felt I was one of the worse cases I read about. I still have a few minor issues I call "residual" mainly muscle tension and minor anxiety, but nothing like those early years.

[stan]

Stan... while what you say may be true to a degree, the fact that we are getting older plays a role here too. Several of my friends have ailments which you describe, and they have never taken ADs. Perhaps you sleep with your mouth open... that alone contributes to dry mouth.

 

unfortunately no, when i am lying and not sleeping, mouth closed, one hour after all is dry...if i think, it has come slowly since several months, as my spinal ribcage pains

[stan]

thanks Hopeful and Punar,

 

Hopeful i have read your testimony, several times

i will see my future evolutions

[stan]

Angie,i all understand, thanks for your kind words,

i feel it will be more difficult for me as i imagine

[Punarbhava]

Hi Pun,

 

Yes, I was in very bad shape (pretty much non functioning...my husband had to work from home for two years)unil the 2 1/2 year mark. At that point I could function again and things started to improve in a more linear fashion...it's been a long haul. I did have a period at about 18-19 months where I thought I was turning the corner, but it got worse again before it got better. But, I did get better and always felt I was one of the worse cases I read about. I still have a few minor issues I call "residual" mainly muscle tension and minor anxiety, but nothing like those early years.

 

Hi Hopeful......

 

I'm so sorry to hear how you have suffered! I can relate but I'm so glad to hear of your improvements. Very happy for you!

 

 

I can't thank you enough for taking the time to respond and to relay a few critical details. This is reassuring and helpful. I've read so many recovery stories over the years, witnessed so many WD journey's in the forums and thus, I realize, on a logical level, how things can go, but every once in a while it helps to receive direct feedback as opposed to being a analytical spectator, observing the process and journey of others.

 

I've been through WD events before but this is the last of them all and it has been somewhat different in many aspects, not to mention, I'm becoming depleted and my mind and emotions are so tired of the daily mental self-discipline, self-emotional regulation etc etc. (lol).

 

It is really, and I mean really helpful to read your response!

 

 

I do know what you mean re; the linear stage. At one point in xanax WD my symptoms started to drop off rapidly and recovery occurred at a faster rate but I was doing far better at the 2 year mark post xanax tolerance C/T WD than what I'm doing during this tolerance WD at the 2 year mark, despite the fact that I did taper (although a rapid like taper).

 

Thank you so much for the "Hopeful" message.

 

Stan, so sorry if I highjacked your thread.

 

 

Continued and Complete Recovery to You Stan and Healing!

 

 

Punar

[Hopeful]

 

 

I can't thank you enough for taking the time to respond and to relay a few critical details. It is really, and I mean really helpful to read your response!

 

 

Punar

 

No problem, Pun anytime!

[angie007]

Hi Pun,

 

Clarification for you as regards my friend,

She took Aropax for 14yrs, and came off in 2009, she slow tapered

over 2 years from 30mg. She phoned me at xmas 2010/11, to tell me that she was

doing better, she reckoned about 70% at that stage, but she had just hit a bad wave,

which had really had an impact mentally and physically.

 

The next time we spoke was in early march, and again she was in another wave, and asked

for suppport, i , myself wasnt brilliant, as i was down to the very tiniest dose,

and struggling badly with akathesia and bad anxiety, she explained aty that stage that she felt

like she wss back in the " throes of early wd"and she was almost inconsolable to have taken

a backward turn.

 

Anyway, down to these last 2 bad waves ahe had had, she had done some researc herself,

and informed me that she didnt think that wd was to blame for what she was going through

T THAT STAGE, AND SAID THAT SHE FELT SHE HD " MERCURY POISONING".

If you google it, you will see the symptoms are very similar to what we experience in wd, oddly enough.

 

She then asked me if i could make her an appointment to see an holistic dentist with a view to having

this work done, wich i did.

In spite of her sym[ptoms which were pretty severe at that stage, she flew in from australia to london uk

where she had her amalgam fillings removed and replaced 3 weeks ago, her husband had his done too.

i have to admit i was sceptical of this making any difference to be honest!!!

 

Then i get a skype call which was totally unexpected a week later, where she declares that having this work

done completed her recovery 100$.

while in wd, she suffered massive crops of boils, and i mean HUGE boils, which she tells me have gone

completely - wether they were from wd or feom mercury i have no idea, but they have disappeared.

 

i have contacted her today, and it is with her consent that i tell you this much,

and she will be writing her complete story here within the next week or so.

 

Pun ;= she is now 100% fully recovered with no residual issues and it took 2/and a half yrs.

hope that clarifies for you.

i passed on in advance all the good wishes from this site as i know how much hope a recovery story

brings to us all.

 

Sur, with this subject in mind, i think i may have read somewhere about heavy metal toxicity

after ad wd, just wondered if you had any information to share here???

Food for thought guys????

[Punarbhava]

Hi Pun,

 

Clarification for you as regards my friend,

She took Aropax for 14yrs, and came off in 2009, she slow tapered

over 2 years from 30mg. She phoned me at xmas 2010/11, to tell me that she was

doing better, she reckoned about 70% at that stage, but she had just hit a bad wave,

which had really had an impact mentally and physically.

 

The next time we spoke was in early march, and again she was in another wave, and asked

for suppport, i , myself wasnt brilliant, as i was down to the very tiniest dose,

and struggling badly with akathesia and bad anxiety, she explained aty that stage that she felt

like she wss back in the " throes of early wd"and she was almost inconsolable to have taken

a backward turn.

 

Anyway, down to these last 2 bad waves ahe had had, she had done some researc herself,

and informed me that she didnt think that wd was to blame for what she was going through

T THAT STAGE, AND SAID THAT SHE FELT SHE HD " MERCURY POISONING".

If you google it, you will see the symptoms are very similar to what we experience in wd, oddly enough.

 

She then asked me if i could make her an appointment to see an holistic dentist with a view to having

this work done, wich i did.

In spite of her sym[ptoms which were pretty severe at that stage, she flew in from australia to london uk

where she had her amalgam fillings removed and replaced 3 weeks ago, her husband had his done too.

i have to admit i was sceptical of this making any difference to be honest!!!

 

Then i get a skype call which was totally unexpected a week later, where she declares that having this work

done completed her recovery 100$.

while in wd, she suffered massive crops of boils, and i mean HUGE boils, which she tells me have gone

completely - wether they were from wd or feom mercury i have no idea, but they have disappeared.

 

i have contacted her today, and it is with her consent that i tell you this much,

and she will be writing her complete story here within the next week or so.

 

Pun ;= she is now 100% fully recovered with no residual issues and it took 2/and a half yrs.

hope that clarifies for you.

i passed on in advance all the good wishes from this site as i know how much hope a recovery story

brings to us all.

 

Sur, with this subject in mind, i think i may have read somewhere about heavy metal toxicity

after ad wd, just wondered if you had any information to share here???

Food for thought guys????

 

Angie..........

 

thank you so much for typing all this out and for sharing so many details. This is most helpful and I very much appreciate your efforts! Yes, you have indeed clarified things. Yet another story that provides hope....It makes it easier to hang on for 6 more months.

 

 

As for the mercury question. Well, it could be that she was going to turn the recovery corner anyway and may have been fine without removing her fillings since, so many people turn the corner at the 2 1/2 year to 3 year mark. So, it's hard to say. BTW, I'm not judging her assessment. Rather, just adding another possibility.

 

 

BTW, good to see you are med-free!! There's no going back now and you've survived so many years. There is now promise in your future!

 

 

Again, congrats on ditching the last bit of drug and thank you again for getting back to me and posting a response.

 

 

Sincere Healing and Full Recovery Wishes to You!

 

 

Punar

[angie007]

Pun,

 

Thankyou for your kind words, they are very much appreciated,

I wish you all the best.