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blackhill4: Finally back :) withdrawal continues after 3 years 1 month


blackhill4

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I just don't know blackhill. I feel I am getting worse right now too.

 

I don't understand it, but I think this process is just very unpredictable.

 

I'm in the most severe wave I have ever had and I'm very frightened.

 

I'm so sorry you are having a rough time also. I think we have to just

 

dig deep and find a way to get through this. It will eventually let up,

 

I'm sure of it. Hang in there, blackhill.

2006-Cymbalta 60mg for lyme disease2009-Quit Cymbalta c/tFeb. 2010-Reinstated 60mg CymMar.2010 to May.2012 tapered Cym to 36mgMay 2012-Crossed over to 30mg CelexaMay 2012-Oct.2013 Tapered Celexa down to 2.5mgOct.2013-Switched to 30 beads CymbaltaDec.4,2013-Stopped Cymbalta at 17 beads<p>Akathisia hit at 6 wks off and continuesNow taking melatonin when needed for sleep.

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It gets better then worse again symptom are changeable when you think you have one bit beat something new you don't understand will pop up... when you beat that another round will come just like the last... seems to me there are a ton of symptoms.  Rounds and rounds of them all a mixed bag... if you can find the video of the Rubics cube it says it best... adjustments all along each small square... lets hope my body systems fixing my cube are smarter than I am cause I could never figure out how to fix that cube. 

 

it is complicated... that is for sure.

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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Jumping out of your skin fits with akathisia. Akathisia can be present in the a sense of physical restless, as I understand it. It does get better, if that's what it is.

2009: Cancer hospital said I had adjustment disorder because I thought they were doing it wrong. Their headshrinker prescribed Effexor, and my life set on a new course. I didn't know what was ahead, like a passenger on Disneyland's Matterhorn, smiling and waving as it climbs...clink, clink, clink.

2010: Post surgical accidental Effexor discontinuation by nurses, masked by intravenous Dilaudid. (The car is balanced at the top of the track.) I get home, pop a Vicodin, and ...

Whooosh...down, down, down, down, down...goes the trajectory of my life, up goes my mood and tendency to think everything is a good idea.
2012: After the bipolar jig was up, now a walking bag of unrelated symptoms, I went crazy on Daytrana (the Ritalin skin patch by Noven), because ADHD was a perfect fit for a bag of unrelated symptoms. I was prescribed Effexor for the nervousness of it, and things got neurological. An EEG showed enough activity to warrant an epilepsy diagnosis rather than non-epileptic ("psychogenic") seizures.

:o 2013-2014: Quit everything and got worse. I probably went through DAWS: dopamine agonist withdrawal syndrome. I drank to not feel, but I felt a lot: dread, fear, regret, grief: an utter sense of total loss of everything worth breathing about, for almost two years.

I was not suicidal but I wanted to be dead, at least dead to the experience of my own brain and body.

2015: I  began to recover after adding virgin coconut oil and organic grass-fed fed butter to a cup of instant coffee in the morning.

I did it hoping for mental acuity and better memory. After ten days of that, I was much better, mood-wise. Approximately neutral.

And, I experienced drowsiness. I could sleep. Not exactly happy, I did 30 days on Wellbutrin, because it had done me no harm in the past. 

I don't have the DAWS mood or state of mind. It never feel like doing anything if it means standing up.

In fact, I don't especially like moving. I'm a brain with a beanbag body.   :unsure:

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Well when I am sitting doing something I feel I need to escape from my body or run away, sometimes I think about running across a street I am walking near for no reason. Does this sound like akathisia?

Paxil 2007-2012, somnolence for a few months so quit, anxiety gets severe again, put on citalopram (horrible reaction). Used august 2013-September 2013, quit and doctor reinstates paxil (reaction again ) on from sep to dec. Quit cold turkey and suffer problems to this day

 

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I believe it does blackhill.   In  "New Drugs , New Problems"   Dr.   Lucire writes:

 

"Akathisia may present as diffuse psychomotor restlessness , which affects the patient's entire body , an increased tenseness , insomnia ,and a feeling of being

very uncomfortable ,frequently verbalized as "I don't feel like myself , weird , strange , not me" . "

 

"Akathisia has a strong association with violence , self harm , suicide and homicide.   It is an inner restlessness or jitteriness , accompanied by a subjective as

 well as objective compulsion to move , abscond , pace or run or drive long distances in a somewhat dissociated state.  Akathisia can lead to suicide because it is intolerable."

 

So it's presence is identified by a range of symptoms.   It does go away blackhill , along with the other withdrawal symptoms , when the withdrawal is finished.

 

Fresh

1987-1997 pertofran , prothiaden , Prozac 1997-2002 Zoloft 2002-2004 effexor 2004-2010 Lexapro 40mg

2010-2012Cymbalta 120mg

Sept. 2012 -decreased 90mg in 6months. Care taken over by Dr Lucire in March 2013 , decreased last 30mg at 2mg per week over 3 months. July 21 , 2013- last dose of Cymbalta

Protracted withdrawal syndrome kicked in badly Jan.2014 Unrelenting akathisia until May 2014. Voluntary hosp. admission. Cocktail of Seroquel, Ativan and mirtazapine and I was well enough to go home after 14 days. Stopped all hosp. meds in next few months.

July 2014 felt v.depressed - couldn't stop crying. Started pristiq 50mg. Felt improvement within days and continued to improve, so stayed on 50mg for 8 months.

Began taper 28 Feb. 2015. Pristiq 50mg down to 45mg. Had one month of w/d symptoms. Started CES therapy in March. No w/d symptoms down to 30mg.

October 2015 , taking 25mg Pristiq. Capsules compounded with slow-release additive.

March 2016 , 21mg

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Yes that does sound like akathisia blackhill.  I'm sorry you are having to endure this awful symptom, I had it quite bad on and off for a while and its one of the most difficult things to endure.  It does go away though, along with the other symptoms.  Many people find that pacing can help a little bit, but that never worked for me, although I tried it a few times.  Trying to distract myself with computer games would sometimes take my mind off it just enough to get me through.  But there were times when it got so bad I would just grab my keys and run out the front door, not knowing where I was going, but trying to escape from myself.  It happened one morning last week actually.

 

 It is an inner restlessness or jitteriness , accompanied by a subjective as well as objective compulsion to move , abscond , pace or run or drive long distances in a somewhat dissociated state.

 

... that's exactly what it feels like.

 

This topic contains a couple of links which might be helpful:

 

Any strategies for relieving akathisia?

I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal...if you are lucky enough to find one.

My Introduction Thread

Full Drug and Withdrawal History

Brief Summary

Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety) Xanax PRN ~ Various other drugs over the years for side effects

2 month 'taper' off Lexapro 2010

Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal

DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms

Failed reinstatement of Lexapro and trial of Prozac (became suicidal)

May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.

Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes

Supplements which have helped: Vitamin C, Magnesium, Taurine

Bad reactions: Many supplements but mostly fish oil and Vitamin D

June 2016 - Started daily juicing, mostly vegetables and lots of greens.

Aug 2016 - Oct 2016 Best window ever, felt almost completely recovered

Oct 2016 -Symptoms returned - bad days and less bad days.

April 2018 - No windows, but significant improvement, it feels like permanent full recovery is close.

VIDEO: Where did the chemical imbalance theory come from?



VIDEO: How are psychiatric diagnoses made?



VIDEO: Why do psychiatric drugs have withdrawal syndromes?



VIDEO: Can psychiatric drugs cause long-lasting negative effects?

VIDEO: Dr. Claire Weekes

 

 

 

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Well that confirms akathisia for sure now, right now I am feeling too energetic and can't sleep. I've decided if it gets too bad I am going to try to get help. What do you guys think?

Paxil 2007-2012, somnolence for a few months so quit, anxiety gets severe again, put on citalopram (horrible reaction). Used august 2013-September 2013, quit and doctor reinstates paxil (reaction again ) on from sep to dec. Quit cold turkey and suffer problems to this day

 

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Alright I have to come clean on a couple of things. I get homicidal/suicidal/self mutilating thoughts every second of the day now. I hate to admit these things but I am getting increasingly unstable and desperate. I don't understand why this is happening to me... I was doing much better 2 months ago and now every second is unbarable, it isn't fair. I know I should go to the hospital but what if they give me something that makes me worse (can't afford it). This is me in my most desperate hour, on the edge.

Paxil 2007-2012, somnolence for a few months so quit, anxiety gets severe again, put on citalopram (horrible reaction). Used august 2013-September 2013, quit and doctor reinstates paxil (reaction again ) on from sep to dec. Quit cold turkey and suffer problems to this day

 

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Is what I am going through even normal? It doesn't feel like the citalopram withdrawal at all, this is much different.

Paxil 2007-2012, somnolence for a few months so quit, anxiety gets severe again, put on citalopram (horrible reaction). Used august 2013-September 2013, quit and doctor reinstates paxil (reaction again ) on from sep to dec. Quit cold turkey and suffer problems to this day

 

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I think my real wd just hit but I am not sure... I had some bad symptoms right after stopping the meds that went away. Just makes no sense.

Paxil 2007-2012, somnolence for a few months so quit, anxiety gets severe again, put on citalopram (horrible reaction). Used august 2013-September 2013, quit and doctor reinstates paxil (reaction again ) on from sep to dec. Quit cold turkey and suffer problems to this day

 

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I am starting to realise that all these terrible symptoms are caused from extreme akathesia. It is so hard to do this

Paxil 2007-2012, somnolence for a few months so quit, anxiety gets severe again, put on citalopram (horrible reaction). Used august 2013-September 2013, quit and doctor reinstates paxil (reaction again ) on from sep to dec. Quit cold turkey and suffer problems to this day

 

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Do you have someone you can talk to about the suicidal thoughts?

1999 Prozac with occasional Xanax 

2002 Effexor Xr with occasional Valium

2010 Off Effexor (slow taper)

2010 Prozac rx to help with Effexor withdrawal. Activating, so stopped.

2011 Zoloft rx

2013 Zoloft stops working after a few increases, decide to stop taking it

2013 October last Zoloft dose after a 6-9 month taper

2014 January, April, May, June ER inducing anxiety attacks

2014 June Ativan prescribed as needed. Last taken Nov 2014, but still have pills just in case

 

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I think you might be wise to go to a hospital. Can someone go with you and explain that this is withdrawal? That is, without getting you sent to a drug abuse program...

 

There is some chance that temporary use of something for agitation, such as a benzo, will help you get through this, although that is not necessarily a popular opinion to hold on this site.

 

If you are afraid that you will lose control of your actions, you should go to hosp, in my opinion. We will still be here when you get back.

 

I do heartily endorse taking an advocate with you. It is very hard for hospital people to believe we have been harmed by a drug, so we come off as crazy and delusional, blaming an "innocent" antidepressant that we no longer take for our current madness.

2009: Cancer hospital said I had adjustment disorder because I thought they were doing it wrong. Their headshrinker prescribed Effexor, and my life set on a new course. I didn't know what was ahead, like a passenger on Disneyland's Matterhorn, smiling and waving as it climbs...clink, clink, clink.

2010: Post surgical accidental Effexor discontinuation by nurses, masked by intravenous Dilaudid. (The car is balanced at the top of the track.) I get home, pop a Vicodin, and ...

Whooosh...down, down, down, down, down...goes the trajectory of my life, up goes my mood and tendency to think everything is a good idea.
2012: After the bipolar jig was up, now a walking bag of unrelated symptoms, I went crazy on Daytrana (the Ritalin skin patch by Noven), because ADHD was a perfect fit for a bag of unrelated symptoms. I was prescribed Effexor for the nervousness of it, and things got neurological. An EEG showed enough activity to warrant an epilepsy diagnosis rather than non-epileptic ("psychogenic") seizures.

:o 2013-2014: Quit everything and got worse. I probably went through DAWS: dopamine agonist withdrawal syndrome. I drank to not feel, but I felt a lot: dread, fear, regret, grief: an utter sense of total loss of everything worth breathing about, for almost two years.

I was not suicidal but I wanted to be dead, at least dead to the experience of my own brain and body.

2015: I  began to recover after adding virgin coconut oil and organic grass-fed fed butter to a cup of instant coffee in the morning.

I did it hoping for mental acuity and better memory. After ten days of that, I was much better, mood-wise. Approximately neutral.

And, I experienced drowsiness. I could sleep. Not exactly happy, I did 30 days on Wellbutrin, because it had done me no harm in the past. 

I don't have the DAWS mood or state of mind. It never feel like doing anything if it means standing up.

In fact, I don't especially like moving. I'm a brain with a beanbag body.   :unsure:

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Hi blackhill ,     I know you wrote that when you went to the ER a while ago they sent you home.    Do you have community mental health services where you are?

1987-1997 pertofran , prothiaden , Prozac 1997-2002 Zoloft 2002-2004 effexor 2004-2010 Lexapro 40mg

2010-2012Cymbalta 120mg

Sept. 2012 -decreased 90mg in 6months. Care taken over by Dr Lucire in March 2013 , decreased last 30mg at 2mg per week over 3 months. July 21 , 2013- last dose of Cymbalta

Protracted withdrawal syndrome kicked in badly Jan.2014 Unrelenting akathisia until May 2014. Voluntary hosp. admission. Cocktail of Seroquel, Ativan and mirtazapine and I was well enough to go home after 14 days. Stopped all hosp. meds in next few months.

July 2014 felt v.depressed - couldn't stop crying. Started pristiq 50mg. Felt improvement within days and continued to improve, so stayed on 50mg for 8 months.

Began taper 28 Feb. 2015. Pristiq 50mg down to 45mg. Had one month of w/d symptoms. Started CES therapy in March. No w/d symptoms down to 30mg.

October 2015 , taking 25mg Pristiq. Capsules compounded with slow-release additive.

March 2016 , 21mg

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I noticed my symptoms change every day. Does this mean my brain is trying to recover?

Paxil 2007-2012, somnolence for a few months so quit, anxiety gets severe again, put on citalopram (horrible reaction). Used august 2013-September 2013, quit and doctor reinstates paxil (reaction again ) on from sep to dec. Quit cold turkey and suffer problems to this day

 

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I don't know if brains can try things on their own. It does mean that you are not fixed in one state for the rest of your life. If you have the rare good moment, cherish it and remember it when things are bad. It is proof that the capacity to feel normal and even happy is still there.

2009: Cancer hospital said I had adjustment disorder because I thought they were doing it wrong. Their headshrinker prescribed Effexor, and my life set on a new course. I didn't know what was ahead, like a passenger on Disneyland's Matterhorn, smiling and waving as it climbs...clink, clink, clink.

2010: Post surgical accidental Effexor discontinuation by nurses, masked by intravenous Dilaudid. (The car is balanced at the top of the track.) I get home, pop a Vicodin, and ...

Whooosh...down, down, down, down, down...goes the trajectory of my life, up goes my mood and tendency to think everything is a good idea.
2012: After the bipolar jig was up, now a walking bag of unrelated symptoms, I went crazy on Daytrana (the Ritalin skin patch by Noven), because ADHD was a perfect fit for a bag of unrelated symptoms. I was prescribed Effexor for the nervousness of it, and things got neurological. An EEG showed enough activity to warrant an epilepsy diagnosis rather than non-epileptic ("psychogenic") seizures.

:o 2013-2014: Quit everything and got worse. I probably went through DAWS: dopamine agonist withdrawal syndrome. I drank to not feel, but I felt a lot: dread, fear, regret, grief: an utter sense of total loss of everything worth breathing about, for almost two years.

I was not suicidal but I wanted to be dead, at least dead to the experience of my own brain and body.

2015: I  began to recover after adding virgin coconut oil and organic grass-fed fed butter to a cup of instant coffee in the morning.

I did it hoping for mental acuity and better memory. After ten days of that, I was much better, mood-wise. Approximately neutral.

And, I experienced drowsiness. I could sleep. Not exactly happy, I did 30 days on Wellbutrin, because it had done me no harm in the past. 

I don't have the DAWS mood or state of mind. It never feel like doing anything if it means standing up.

In fact, I don't especially like moving. I'm a brain with a beanbag body.   :unsure:

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Ok I talked to a mental health distress worker and he suggested I go to the hospital. So I am going to go, bye guys :). I hope they can help me, wish me luck! I'll post when I get back.

Paxil 2007-2012, somnolence for a few months so quit, anxiety gets severe again, put on citalopram (horrible reaction). Used august 2013-September 2013, quit and doctor reinstates paxil (reaction again ) on from sep to dec. Quit cold turkey and suffer problems to this day

 

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Thanks for letting us know! I hope you have a good rest on nice clean sheets :)

2009: Cancer hospital said I had adjustment disorder because I thought they were doing it wrong. Their headshrinker prescribed Effexor, and my life set on a new course. I didn't know what was ahead, like a passenger on Disneyland's Matterhorn, smiling and waving as it climbs...clink, clink, clink.

2010: Post surgical accidental Effexor discontinuation by nurses, masked by intravenous Dilaudid. (The car is balanced at the top of the track.) I get home, pop a Vicodin, and ...

Whooosh...down, down, down, down, down...goes the trajectory of my life, up goes my mood and tendency to think everything is a good idea.
2012: After the bipolar jig was up, now a walking bag of unrelated symptoms, I went crazy on Daytrana (the Ritalin skin patch by Noven), because ADHD was a perfect fit for a bag of unrelated symptoms. I was prescribed Effexor for the nervousness of it, and things got neurological. An EEG showed enough activity to warrant an epilepsy diagnosis rather than non-epileptic ("psychogenic") seizures.

:o 2013-2014: Quit everything and got worse. I probably went through DAWS: dopamine agonist withdrawal syndrome. I drank to not feel, but I felt a lot: dread, fear, regret, grief: an utter sense of total loss of everything worth breathing about, for almost two years.

I was not suicidal but I wanted to be dead, at least dead to the experience of my own brain and body.

2015: I  began to recover after adding virgin coconut oil and organic grass-fed fed butter to a cup of instant coffee in the morning.

I did it hoping for mental acuity and better memory. After ten days of that, I was much better, mood-wise. Approximately neutral.

And, I experienced drowsiness. I could sleep. Not exactly happy, I did 30 days on Wellbutrin, because it had done me no harm in the past. 

I don't have the DAWS mood or state of mind. It never feel like doing anything if it means standing up.

In fact, I don't especially like moving. I'm a brain with a beanbag body.   :unsure:

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Wishing the very best for you blackhill. Just want you to feel better.

2006-Cymbalta 60mg for lyme disease2009-Quit Cymbalta c/tFeb. 2010-Reinstated 60mg CymMar.2010 to May.2012 tapered Cym to 36mgMay 2012-Crossed over to 30mg CelexaMay 2012-Oct.2013 Tapered Celexa down to 2.5mgOct.2013-Switched to 30 beads CymbaltaDec.4,2013-Stopped Cymbalta at 17 beads<p>Akathisia hit at 6 wks off and continuesNow taking melatonin when needed for sleep.

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I hope you get the relief you are looking for wishing you tranquility and wellness.

Celexa 20mg 2008-2012 for Social Anxiety

Failed attempt to stop reinstated

1 year taper skipping doses

Celexa free 12/2013

1/2014-5/2014 took 5 htp every other day

Failed Reinstatement 5mg of Celexa on 12/2014 for 5 days only

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I  was given Ativan at the hospital and I didn't think it would help but I felt much better and my akathisia effects were gone for the time being, I had a great night watching tv and relaxing. However the Ativan made me dizzy, and when I went to sleep I slept 8 hrs and felt very, very drowsy afterward. I am still very drowsy and am still feeling sinister and weird, still feel impulsive but my emotional turmoil is down currently. Can Ativan make my akathisia worse or set me back at all? I didn't seem to have a bad reaction to the meds.

Paxil 2007-2012, somnolence for a few months so quit, anxiety gets severe again, put on citalopram (horrible reaction). Used august 2013-September 2013, quit and doctor reinstates paxil (reaction again ) on from sep to dec. Quit cold turkey and suffer problems to this day

 

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One of the psychiatrists at the er tried to give me another antidepressant (I obviously refused) He told me I cannot have akathisia because I am not on any meds.

Paxil 2007-2012, somnolence for a few months so quit, anxiety gets severe again, put on citalopram (horrible reaction). Used august 2013-September 2013, quit and doctor reinstates paxil (reaction again ) on from sep to dec. Quit cold turkey and suffer problems to this day

 

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Okay, we have to help you educate that psychiatrist. The term is "tardive" (late-onset) akathisia, and it is a real thing and is well known to be associated with withdrawal from psych drugs.

 

Becoming addicted to Ativan can happen very very fast. In my case it was a matter of days or weeks, not months. I ran out one evening and nearly called an ambulance, until I found a tiny bit and took it and got better right away.

 

The best advice is to use it sparingly--not even daily, if you can manage. Getting off it is a definite nightmare for some people. By that I mean a lot of people. Wildflower here on SA is currently suffering mightily, and i am sure there are others.

 

Benzos can lead to depersonalization and derealization in some patients.

 

It is hard to call Ativan a safe drug, in other words. But if you had a pleasant evening compared to what staying home would have been like, seems worth it.

 

Did they ask for any follow-up? Did they send you home with Ativan?
 

2009: Cancer hospital said I had adjustment disorder because I thought they were doing it wrong. Their headshrinker prescribed Effexor, and my life set on a new course. I didn't know what was ahead, like a passenger on Disneyland's Matterhorn, smiling and waving as it climbs...clink, clink, clink.

2010: Post surgical accidental Effexor discontinuation by nurses, masked by intravenous Dilaudid. (The car is balanced at the top of the track.) I get home, pop a Vicodin, and ...

Whooosh...down, down, down, down, down...goes the trajectory of my life, up goes my mood and tendency to think everything is a good idea.
2012: After the bipolar jig was up, now a walking bag of unrelated symptoms, I went crazy on Daytrana (the Ritalin skin patch by Noven), because ADHD was a perfect fit for a bag of unrelated symptoms. I was prescribed Effexor for the nervousness of it, and things got neurological. An EEG showed enough activity to warrant an epilepsy diagnosis rather than non-epileptic ("psychogenic") seizures.

:o 2013-2014: Quit everything and got worse. I probably went through DAWS: dopamine agonist withdrawal syndrome. I drank to not feel, but I felt a lot: dread, fear, regret, grief: an utter sense of total loss of everything worth breathing about, for almost two years.

I was not suicidal but I wanted to be dead, at least dead to the experience of my own brain and body.

2015: I  began to recover after adding virgin coconut oil and organic grass-fed fed butter to a cup of instant coffee in the morning.

I did it hoping for mental acuity and better memory. After ten days of that, I was much better, mood-wise. Approximately neutral.

And, I experienced drowsiness. I could sleep. Not exactly happy, I did 30 days on Wellbutrin, because it had done me no harm in the past. 

I don't have the DAWS mood or state of mind. It never feel like doing anything if it means standing up.

In fact, I don't especially like moving. I'm a brain with a beanbag body.   :unsure:

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Thank you for the benzo warning westcoast. He even said to be careful because it is addicting. So I will try to limit myself with it, what do you think a good time period for taking it would be? And yes he gave me prescription for Ativan for 3 weeks. That was after he tried to convince me I had the wrong idea about antidepressants.

Paxil 2007-2012, somnolence for a few months so quit, anxiety gets severe again, put on citalopram (horrible reaction). Used august 2013-September 2013, quit and doctor reinstates paxil (reaction again ) on from sep to dec. Quit cold turkey and suffer problems to this day

 

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Well, I see a doctor who knows all about this, Dr Shipko. He allows me 1/2mg of Xanax twice a week, max. I am not dependent in any way shape or form. I like the relief I get, and don't have withdrawal or cravings (yet?).

I do not know the dosing of your Ativan. Perhaps you won't have issues if you use it just twice a week.

 

In my opinion, daily use for three weeks could land you flat on your back, sweating, pale, and nauseated, and wishing you were never born! Happened to me, but I was in a restaurant and couldn't lie down.

 

But mainly, I think you should ask your psychiatrist about how often it can be used without causing withdrawal symptoms. Of course, he might have no clue.

 

Plus, surf around SA and see what others have to say about safe use of Ativan.

2009: Cancer hospital said I had adjustment disorder because I thought they were doing it wrong. Their headshrinker prescribed Effexor, and my life set on a new course. I didn't know what was ahead, like a passenger on Disneyland's Matterhorn, smiling and waving as it climbs...clink, clink, clink.

2010: Post surgical accidental Effexor discontinuation by nurses, masked by intravenous Dilaudid. (The car is balanced at the top of the track.) I get home, pop a Vicodin, and ...

Whooosh...down, down, down, down, down...goes the trajectory of my life, up goes my mood and tendency to think everything is a good idea.
2012: After the bipolar jig was up, now a walking bag of unrelated symptoms, I went crazy on Daytrana (the Ritalin skin patch by Noven), because ADHD was a perfect fit for a bag of unrelated symptoms. I was prescribed Effexor for the nervousness of it, and things got neurological. An EEG showed enough activity to warrant an epilepsy diagnosis rather than non-epileptic ("psychogenic") seizures.

:o 2013-2014: Quit everything and got worse. I probably went through DAWS: dopamine agonist withdrawal syndrome. I drank to not feel, but I felt a lot: dread, fear, regret, grief: an utter sense of total loss of everything worth breathing about, for almost two years.

I was not suicidal but I wanted to be dead, at least dead to the experience of my own brain and body.

2015: I  began to recover after adding virgin coconut oil and organic grass-fed fed butter to a cup of instant coffee in the morning.

I did it hoping for mental acuity and better memory. After ten days of that, I was much better, mood-wise. Approximately neutral.

And, I experienced drowsiness. I could sleep. Not exactly happy, I did 30 days on Wellbutrin, because it had done me no harm in the past. 

I don't have the DAWS mood or state of mind. It never feel like doing anything if it means standing up.

In fact, I don't especially like moving. I'm a brain with a beanbag body.   :unsure:

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Current medical knowledge is that you can become dependent on a benzo in as little as 2 weeks if taken regularly.  I've seen Rhi (our unofficial benzo expert) suggest not taking it more than 1 - 2 times a week.

I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal...if you are lucky enough to find one.

My Introduction Thread

Full Drug and Withdrawal History

Brief Summary

Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety) Xanax PRN ~ Various other drugs over the years for side effects

2 month 'taper' off Lexapro 2010

Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal

DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms

Failed reinstatement of Lexapro and trial of Prozac (became suicidal)

May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.

Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes

Supplements which have helped: Vitamin C, Magnesium, Taurine

Bad reactions: Many supplements but mostly fish oil and Vitamin D

June 2016 - Started daily juicing, mostly vegetables and lots of greens.

Aug 2016 - Oct 2016 Best window ever, felt almost completely recovered

Oct 2016 -Symptoms returned - bad days and less bad days.

April 2018 - No windows, but significant improvement, it feels like permanent full recovery is close.

VIDEO: Where did the chemical imbalance theory come from?



VIDEO: How are psychiatric diagnoses made?



VIDEO: Why do psychiatric drugs have withdrawal syndromes?



VIDEO: Can psychiatric drugs cause long-lasting negative effects?

VIDEO: Dr. Claire Weekes

 

 

 

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Ok 1-2 times a week at the most, sounds good to me. I had gone 2 months of akathisia before using it and it was every second unbearable in it's severity. So I can do week to week. Ever since I took the Ativan  my akathisia is MUCH less severe, I think I needed a sedative, I wouldn't have lasted a few more days. As expected the doctors and psychiatrists did not believe it was wd. They say it's just anxiety, but they don't know any better and my hospital experience was very pleasant so no complaints from me. I know my akathisia won't stay down for long and when it gets bad again at least I can deal with it, because my walks were starting to have no effect and I felt so agitated for so long I though I would lose it. So I am getting a 2 week supply, if I use it only when I really have to I can make it last a long time. The psychiatrist also gave me a prescription for another benzo he called "longer lasting and less addicting". Any idea what it could be? 

Paxil 2007-2012, somnolence for a few months so quit, anxiety gets severe again, put on citalopram (horrible reaction). Used august 2013-September 2013, quit and doctor reinstates paxil (reaction again ) on from sep to dec. Quit cold turkey and suffer problems to this day

 

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I forgot to mention: while I was on paxil (adverse reaction) I was given Ativan and took it once a day. So I think twice a week will be perfect for me ( to be safe). Because I do not want to end up with benzo problems too, I cant afford more problems at this point.

Paxil 2007-2012, somnolence for a few months so quit, anxiety gets severe again, put on citalopram (horrible reaction). Used august 2013-September 2013, quit and doctor reinstates paxil (reaction again ) on from sep to dec. Quit cold turkey and suffer problems to this day

 

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I have an Rx for clonozepam, which is the generic for Klonopin, also a benzo and it is for 0.5 mg. I even cut that in half and take it as sparingly as possible, which is never lately but used to be not more than once a week. I've never felt that I became dependent on it, but it definitely helped immediately with calming me or helping me sleep. Chelated magnesium has also helped me with sleep, and can be bought at the vitamin store. Glad you are feeling some relief BH. Hang in there...☺️

2005-2009, Lexapro 10 - 20 mg, CT WD w/severe depression and anxiety:  2010-2015, Paxil, 30 - 40 mg, tapered off at 10 mg/week, moderate anxiety and depression:  2010-2015, Clonozapam 0.25 mg, as needed for anxiety and sleep:  1/10/2015, Zoloft 25 mg, tried to increase to 50 and 75, but nausea and dizziness:  2/13/2015, Paxil 5 mg, added back after 2 weeks at zero to reduce WD:  2/28/2015, Paxil 10 mg, increased from 5 mg to reduce WD, HOLDING:  3/04/2015, Zoloft discontinued (reduced to ~12.5 mg on 2/19, ~6.25 mg on 2/26, then zero):  4/26/2015, Paxil starting 10% taper (no scale so was inadvertently at 20% taper, yikes!):  4/30/2015, Paxil 10 mg, reinstated (WD disappeared between August 2015 and May 2016)

5/02/2016, Started 10% taper, reinstated to 10 mg on 5/11/16:  4/29/2017, Last dose of Paxil (working with holistic psychiatrist, lots of supplements to aid WD):  Primary symptoms: apathy, demotivation, anhedonia, fatigue, stress intolerance, moderate social anxiety

7/1/2018 Finally feeling like myself again, success!!! Praise God! Even with the stress of relocating recently, I am feeling pretty good most of the time now. Granted, I eat healthy, I exercise, I don't drink caffeine or alcohol and I try hard find a healthy balance of quiet and social times. Hang in there and keep the faith, you can do it too!

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Blackhill, ativan is a nasty drug and everybody is different when it comes to how much and how often you need to take it to cause future problems. Please be cautious. See Wildflower's thread and the nightmare she's enduring on .24mg spread over 6 doses throughout the day just to maintain her sanity.

January 2012 - Prescribed 900mg gabapentin and 30mg Norco for lower lumber spinal stenosis pain.

September 2013 - Spinal fusion surgery, 6 levels. Hospital ramped up meds 1500mg gabapentin, 100mg Norco, 80mg Oxycontin, 25mg Fentanyl patch.

January 2014 - Sever nausea daily and with back pain every 4 hours. 2 trips to ER. First endoscopy found ulcer. Treated with Sucralfate and PPI. Second endo in May found no ulcers. Doctors said it was the opiates causing the nausea. CT'd Oxycontin, Fentanyl patch.

July 2014 - Lost 48 lbs. due to not eating because of severe nausea. GP prescribed Prozac 20mg and Ativan 2mg prn. Tried for 4 days, quit. Two week followup GP said keep taking Prozac. 4 days, quit again. Ativan taken rarely prn for anxiety and appetite.

August 2014 - Went to detox. Off opiates. Still nauseous, helmet head, drugged feeling. Doctor CT'd gabapentin. Ended up in ER. Found 2 gallstones. Gabapentin reinstated at 900mg. Tried botched up and down taper to get off Gabapentin. No tapering advice from doctor. Said to just CT again.

September 2014 - Coded on table during gallbladder surgery. Developed liver biloma due to CPR by doctor. Had bile bulb inserted for 2 wks to drain.

October 2014 - Gallbladder removed. Still nauseous, 3am cortisol surging, drugged helmet head, vertigo, breathlessness, whooshing head, heart palps.

November 8th, 2014 - CT'd gabapentin suggested by family and 4 different doctors. Was told no withdrawal is associated with gabapentin. Have been in hell ever since. No windows, just one big tsunami every day with same symptoms for 4 months.

December 26, 2014 - Found SA. At least I know I'm not insane. My family thinks I'm doing this to myself. Akathesia has become unbearable.

March 10, 2015 - In absolute daily hell with no relief. Currently taking magnesium 200mg before bedtime.

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Yes. Pug put it more bluntly than I did. That drug scares me. I have heard about a super-strong benzo. A man in Denmark named Martin mentioned one, but I didn't catch the name. It was in my thread. My sister reported an indescribably awful nightmare after CTing Ativan.

 

If you will be seeing that incredulous psychiatrist again, maybe you can show him something on the internet about WD from a credible source.

2009: Cancer hospital said I had adjustment disorder because I thought they were doing it wrong. Their headshrinker prescribed Effexor, and my life set on a new course. I didn't know what was ahead, like a passenger on Disneyland's Matterhorn, smiling and waving as it climbs...clink, clink, clink.

2010: Post surgical accidental Effexor discontinuation by nurses, masked by intravenous Dilaudid. (The car is balanced at the top of the track.) I get home, pop a Vicodin, and ...

Whooosh...down, down, down, down, down...goes the trajectory of my life, up goes my mood and tendency to think everything is a good idea.
2012: After the bipolar jig was up, now a walking bag of unrelated symptoms, I went crazy on Daytrana (the Ritalin skin patch by Noven), because ADHD was a perfect fit for a bag of unrelated symptoms. I was prescribed Effexor for the nervousness of it, and things got neurological. An EEG showed enough activity to warrant an epilepsy diagnosis rather than non-epileptic ("psychogenic") seizures.

:o 2013-2014: Quit everything and got worse. I probably went through DAWS: dopamine agonist withdrawal syndrome. I drank to not feel, but I felt a lot: dread, fear, regret, grief: an utter sense of total loss of everything worth breathing about, for almost two years.

I was not suicidal but I wanted to be dead, at least dead to the experience of my own brain and body.

2015: I  began to recover after adding virgin coconut oil and organic grass-fed fed butter to a cup of instant coffee in the morning.

I did it hoping for mental acuity and better memory. After ten days of that, I was much better, mood-wise. Approximately neutral.

And, I experienced drowsiness. I could sleep. Not exactly happy, I did 30 days on Wellbutrin, because it had done me no harm in the past. 

I don't have the DAWS mood or state of mind. It never feel like doing anything if it means standing up.

In fact, I don't especially like moving. I'm a brain with a beanbag body.   :unsure:

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Blackhill, please keep in mind that, whether it's an AD, a benzo, any psyche drug, alcohol, aspirin or supplements, they all effect your CNS in some way. If you've scrambled and sensitized yours, and the symptoms you're experiencing says you have, you are just throwing gasoline on the fire. Having said all this, I know this is the hardest thing I've ever endured in my 61 year old life and how badly I need some relief from the suffering. I wish you all the best.

January 2012 - Prescribed 900mg gabapentin and 30mg Norco for lower lumber spinal stenosis pain.

September 2013 - Spinal fusion surgery, 6 levels. Hospital ramped up meds 1500mg gabapentin, 100mg Norco, 80mg Oxycontin, 25mg Fentanyl patch.

January 2014 - Sever nausea daily and with back pain every 4 hours. 2 trips to ER. First endoscopy found ulcer. Treated with Sucralfate and PPI. Second endo in May found no ulcers. Doctors said it was the opiates causing the nausea. CT'd Oxycontin, Fentanyl patch.

July 2014 - Lost 48 lbs. due to not eating because of severe nausea. GP prescribed Prozac 20mg and Ativan 2mg prn. Tried for 4 days, quit. Two week followup GP said keep taking Prozac. 4 days, quit again. Ativan taken rarely prn for anxiety and appetite.

August 2014 - Went to detox. Off opiates. Still nauseous, helmet head, drugged feeling. Doctor CT'd gabapentin. Ended up in ER. Found 2 gallstones. Gabapentin reinstated at 900mg. Tried botched up and down taper to get off Gabapentin. No tapering advice from doctor. Said to just CT again.

September 2014 - Coded on table during gallbladder surgery. Developed liver biloma due to CPR by doctor. Had bile bulb inserted for 2 wks to drain.

October 2014 - Gallbladder removed. Still nauseous, 3am cortisol surging, drugged helmet head, vertigo, breathlessness, whooshing head, heart palps.

November 8th, 2014 - CT'd gabapentin suggested by family and 4 different doctors. Was told no withdrawal is associated with gabapentin. Have been in hell ever since. No windows, just one big tsunami every day with same symptoms for 4 months.

December 26, 2014 - Found SA. At least I know I'm not insane. My family thinks I'm doing this to myself. Akathesia has become unbearable.

March 10, 2015 - In absolute daily hell with no relief. Currently taking magnesium 200mg before bedtime.

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So what do I do if the agitation goes for weeks on end again? I almost lost it completely. Rock and a hard place crushing me slowly...

Paxil 2007-2012, somnolence for a few months so quit, anxiety gets severe again, put on citalopram (horrible reaction). Used august 2013-September 2013, quit and doctor reinstates paxil (reaction again ) on from sep to dec. Quit cold turkey and suffer problems to this day

 

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Yes, well said blackhill. Take it a day at a time. Things change during withdrawal and the agitarion might fade away.

 

Do you think you could find a doctor who is willing to work with you on this without trying to get you onto an antidepressant or an antipsychotic?

 

Anyway, how do you feel now, and how was your day? Did you have to use much of the Ativan?

 

Finally, it just occured to me that you could possibly break the tablets and take smaller doses than prescribed. If a tiny bit makes your day tolerable, why take a whole pill? But that would have to be discussed with a real doctor, not me.

2009: Cancer hospital said I had adjustment disorder because I thought they were doing it wrong. Their headshrinker prescribed Effexor, and my life set on a new course. I didn't know what was ahead, like a passenger on Disneyland's Matterhorn, smiling and waving as it climbs...clink, clink, clink.

2010: Post surgical accidental Effexor discontinuation by nurses, masked by intravenous Dilaudid. (The car is balanced at the top of the track.) I get home, pop a Vicodin, and ...

Whooosh...down, down, down, down, down...goes the trajectory of my life, up goes my mood and tendency to think everything is a good idea.
2012: After the bipolar jig was up, now a walking bag of unrelated symptoms, I went crazy on Daytrana (the Ritalin skin patch by Noven), because ADHD was a perfect fit for a bag of unrelated symptoms. I was prescribed Effexor for the nervousness of it, and things got neurological. An EEG showed enough activity to warrant an epilepsy diagnosis rather than non-epileptic ("psychogenic") seizures.

:o 2013-2014: Quit everything and got worse. I probably went through DAWS: dopamine agonist withdrawal syndrome. I drank to not feel, but I felt a lot: dread, fear, regret, grief: an utter sense of total loss of everything worth breathing about, for almost two years.

I was not suicidal but I wanted to be dead, at least dead to the experience of my own brain and body.

2015: I  began to recover after adding virgin coconut oil and organic grass-fed fed butter to a cup of instant coffee in the morning.

I did it hoping for mental acuity and better memory. After ten days of that, I was much better, mood-wise. Approximately neutral.

And, I experienced drowsiness. I could sleep. Not exactly happy, I did 30 days on Wellbutrin, because it had done me no harm in the past. 

I don't have the DAWS mood or state of mind. It never feel like doing anything if it means standing up.

In fact, I don't especially like moving. I'm a brain with a beanbag body.   :unsure:

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The Ativan halted my agitation somewhat and I had decided on 1 mg Ativan every 4 days over 80 days. I figured I could avoid dependence if done like that, but maybe not? While on paxil I took it once a day for almost a month and no addiction. I am very concerned about being destabilised by it though, when I destabilised from coffee it was gradual and didn't happen until I had drank too much over time. My day was bad but not unbearable, felt a little freaky (jumpy and weird) early on, afternoon agitation came on strong but receded a couple of hours later, later on mixed emotions of depression and the whole "I'm done, I give up" feeling" Right now I am ok but after midnight is usually when I feel better (barring severe agitation).

Paxil 2007-2012, somnolence for a few months so quit, anxiety gets severe again, put on citalopram (horrible reaction). Used august 2013-September 2013, quit and doctor reinstates paxil (reaction again ) on from sep to dec. Quit cold turkey and suffer problems to this day

 

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