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EmmsieA: Hypnic jerks - how long will they last?


EmmsieA

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  • Moderator Emeritus

Found it:

 

On 12/22/2014 at 7:42 PM, Songbird said:

Excel spreadsheet to calculate dose weights using a scale

 
If you are tapering using a scale, you will need to convert each dose to a weight so that you know what your scale should be displaying for the dose you want. The instructions are actually inside the spreadsheet but here is a little more detail:

1. Enter the dose of one whole pill in the orange cell (e.g. if your pills are 20mg pills then type in 20, or if your pills are 10mg pills then type in 10). Press tab.

2. Enter the weight of one whole pill - after calibrating your scale, making sure it is in 'gram' mode, weigh one pill and type the weight in the turqoise cell (e.g. 0.336). Press tab. (Note: some people like to weigh several pills and take an average in case the weights of the pills vary).

3. Enter the percentage drops you want to do for your taper in the green cell (e.g for 10% type in 10, for 5% type in 5). Press tab.

4. Enter the starting dose for your taper in the yellow cell. (For some people this will be the same as the dose of one whole pill above, if you are currently taking one whole pill as your dose.) Press tab.

The spreadsheet will now calculate your doses and the corresponding weights for your taper. For whichever dose you are dropping to (in the yellow), your scale should say the number in turquoise next to it. i.e. that's what you are aiming for when you cut and weigh your pills.

The spreadsheet has been protected so that you can only type in the cells you need to enter data into. This is to prevent you messing it up by accidently typing other places! I hope this makes some sense. Any questions, just ask.

Dose_weights_SA.xlsx

Dose_weights_SA.xls

 

* NO LONGER ACTIVE on SA *

MISSION ACCOMPLISHED:  (6 year taper)      0mg Pristiq  on 13th November 2021

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

Post 0 updates start here    My tapering program     My Intro (goes to tapering graph)

 VIDEO:   Antidepressant Withdrawal Syndrome and its Management

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Thank you so much @ChessieCat 

 

I found a spreadsheet to calculate pill dosages to weights - is this something that I can use? 

 

https://www.survivingantidepressants.org/applications/core/interface/file/attachment.php?id=222

 

Mom unsure if this will take you to the one I mean by SongBird...

 

im happy using the Gemini-20 scale and has a trial go tonight at making my own capsules with the reduced rate. I just need to check if the mayhsbis definitely correct:

 

eg I have a 30mg tablet that weighs 0.296mg. I want to reduce this by 10% (3mg) to 27mg. This would mean I would weigh out 0.266mg of fragments. 

 

I got these measurements above by using the spreadsheet mentioned, provided. Just want to check it isn’t out of date or anything as my maths is pretty bad!! 

 

Thanks so much. 

 

March 2018 - 25mg Sertraline 2 weeks. Terrible reaction and caused insomnia. Discontinued and switched to 10mg Citalopram. After one week tapered to 7.5mg 1 week then 5mg. Developed Hypnic jerks. Came off these drugs April 2018

May 2018 - 150mg pregabalin and 100mg quitiepine, 1mg clonazepam to control jerks. End of May 2018 tapered off quitiepine.

June 2018 - finished taper off 1mg Clonazepam. 15mg Mirtazipine introduced

July 2018 - taken off 150mg pregabalin

July 2018 - 30mg Mirtazipine and reinstated 1mg Clonazepam

October 2018 - down to 0.5mg clonazepam, 30mg Mirtazipine 

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Ah thank you @ChessieCatI’ve just seen your post above - yes that’s the one.

 

Is it ok to use chunks/fragments of tablets rather than grind to a powder? I’m unsure of the uniformity of drug in any one tablet  if I use chunks/fragments but I’m sensitive so not sure if my body will like all powder...

March 2018 - 25mg Sertraline 2 weeks. Terrible reaction and caused insomnia. Discontinued and switched to 10mg Citalopram. After one week tapered to 7.5mg 1 week then 5mg. Developed Hypnic jerks. Came off these drugs April 2018

May 2018 - 150mg pregabalin and 100mg quitiepine, 1mg clonazepam to control jerks. End of May 2018 tapered off quitiepine.

June 2018 - finished taper off 1mg Clonazepam. 15mg Mirtazipine introduced

July 2018 - taken off 150mg pregabalin

July 2018 - 30mg Mirtazipine and reinstated 1mg Clonazepam

October 2018 - down to 0.5mg clonazepam, 30mg Mirtazipine 

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  • Moderator Emeritus

Some people worry about the active ingredient being unevenly distributed throughout the tablet.  It's hard to know how much of a problem it is.  Manufacturers try to get uniform mixtures when making tablets, so that each tablet contains the correct dose of active ingredient, so I think it's unlikely to be extremely uneven.  I've always used pill chunks myself, while other members have crushed pills and put the powder into capsules.  Powder would be absorbed more quickly, although putting the powder in a capsule would slow absorption to some degree.

2001–2002 paroxetine

2003  citalopram

2004-2008  paroxetine (various failed tapers) 
2008  paroxetine slow taper down to

2016  Aug off paroxetine
2016  citalopram May 20mg  Oct 15mg … slow taper down
2018  citalopram 13 Feb 4.6mg 15 Mar 4.4mg 29 Apr 4.2mg 6 Jul 4.1mg 17 Aug 4.0mg  18 Nov 3.8mg
2019  15 Mar 3.6mg  21 May 3.4mg  26 Dec 3.2mg 

2020  19 Feb 3.0mg 19 Jul 2.9mg 16 Sep 2.8mg 25 Oct 2.7mg 23 Oct 2.6mg 24 Dec 2.5mg

2021   29 Aug 2.4mg   15 Nov 2.3mg

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Thank you @Songbird

I guess I can only go with it and hope...

and if I use your spreadsheet above, those would be correct dosages to weights, providing I enter all the information correctly? Sorry to ask but I am so nervous about all of this! 

March 2018 - 25mg Sertraline 2 weeks. Terrible reaction and caused insomnia. Discontinued and switched to 10mg Citalopram. After one week tapered to 7.5mg 1 week then 5mg. Developed Hypnic jerks. Came off these drugs April 2018

May 2018 - 150mg pregabalin and 100mg quitiepine, 1mg clonazepam to control jerks. End of May 2018 tapered off quitiepine.

June 2018 - finished taper off 1mg Clonazepam. 15mg Mirtazipine introduced

July 2018 - taken off 150mg pregabalin

July 2018 - 30mg Mirtazipine and reinstated 1mg Clonazepam

October 2018 - down to 0.5mg clonazepam, 30mg Mirtazipine 

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  • Moderator Emeritus
21 hours ago, EmmsieA said:

and if I use your spreadsheet above, those would be correct dosages to weights, providing I enter all the information correctly? Sorry to ask but I am so nervous about all of this! 

 

Should be fine.  If you want to double-check, get a calculator and multiply by 0.9, which gives a 10% reduction.

2001–2002 paroxetine

2003  citalopram

2004-2008  paroxetine (various failed tapers) 
2008  paroxetine slow taper down to

2016  Aug off paroxetine
2016  citalopram May 20mg  Oct 15mg … slow taper down
2018  citalopram 13 Feb 4.6mg 15 Mar 4.4mg 29 Apr 4.2mg 6 Jul 4.1mg 17 Aug 4.0mg  18 Nov 3.8mg
2019  15 Mar 3.6mg  21 May 3.4mg  26 Dec 3.2mg 

2020  19 Feb 3.0mg 19 Jul 2.9mg 16 Sep 2.8mg 25 Oct 2.7mg 23 Oct 2.6mg 24 Dec 2.5mg

2021   29 Aug 2.4mg   15 Nov 2.3mg

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Hello anyone,

Just checking in for some reassurance. I’m so desperately terrified of the road ahead. I have cut down to 27mg Mirtazipine and will continue to cut down each month slowly. 

However, im terrified of what’s to come with the Benzo. How in earth am I meant to get off that? I’m just so scared for myself and my little family. How am I going to do this? Will being on the benzo for so long whilst I taper the mirtazipine to 7.5mg make things worse? 

I would dearly love some support. You’ve all been so great recently with helping me. I’m just petrified and can’t find a doctor to help me with anything. 

Xx

March 2018 - 25mg Sertraline 2 weeks. Terrible reaction and caused insomnia. Discontinued and switched to 10mg Citalopram. After one week tapered to 7.5mg 1 week then 5mg. Developed Hypnic jerks. Came off these drugs April 2018

May 2018 - 150mg pregabalin and 100mg quitiepine, 1mg clonazepam to control jerks. End of May 2018 tapered off quitiepine.

June 2018 - finished taper off 1mg Clonazepam. 15mg Mirtazipine introduced

July 2018 - taken off 150mg pregabalin

July 2018 - 30mg Mirtazipine and reinstated 1mg Clonazepam

October 2018 - down to 0.5mg clonazepam, 30mg Mirtazipine 

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  • Moderator Emeritus

I've got another two years to go on my Lexapro taper before I can even begin to think about tapering my benzo.  The best advice I can give you is take it one day at a time, and when the time comes to go off the benzo, assume you will be able to do it.  That's much more productive than fearing you can't.  There are many benzo success stories.  Google "SurvivingAntidepressants benzo success stories"

Gridley Introduction

 

Lexapro 20 mg since 2004.  Begin Brassmonkey Slide Taper Jan. 2017.   

End 2017 year 1 of taper at 9.25mg 

End 2018 year 2 of taper at 4.1mg

End 2019 year 3 of taper at 1.0mg  

Oct. 30, 2020  Jump to zero from 0.025mg.  Current dose: 0.000mg

3 year, 10 month taper is 100% complete.

 

Ativan 1 mg to 1.875mg 1986-2020, two CT's and reinstatements

Nov. 2020, 7-week Ativan-Valium crossover to 18.75mg Valium

Feb. 2021, begin 10%/4 week taper of 18.75mg Valium 

End 2021  year 1 of Valium taper at 6mg

End 2022 year 2 of Valium taper at 2.75mg 

End 2023 year 3 of Valium taper at 1mg

Jan. 24, 2024: Hold at 1mg and shift to Imipramine taper.

Taper is 95% complete.

 

Imipramine 75 mg daily since 1986.  Jan.-Sept. 2016 tapered to 14.4mg  

March 22, 2022: Begin 10%/4 week taper

Aug. 5, 2022: hold at 9.5mg and shift to Valium taper

Jan. 24, 2024: Resume Imipramine taper.  Current dose as of April 1: 6.8mg

Taper is 91% complete.  

  

Supplements: multiple, quercetin, omega-3, vitamins C, E and D3, magnesium glycinate, probiotics, zinc, melatonin .3mg, iron, serrapeptase, nattokinase


I am not a medical professional and this is not medical advice but simply information based on my own experience, as well as other members who have survived these drugs.

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Thank you so much for replying, Gridley. And good advice, I guess I will just need to make my peace with it. A hard thing to try and get my head around as I still have the Hypnic jerks which get me down so much. Thinking of the years ahead that this will take is so very difficult if I have to put up with this awful symptom too for so long. I keep praying for us all X 

March 2018 - 25mg Sertraline 2 weeks. Terrible reaction and caused insomnia. Discontinued and switched to 10mg Citalopram. After one week tapered to 7.5mg 1 week then 5mg. Developed Hypnic jerks. Came off these drugs April 2018

May 2018 - 150mg pregabalin and 100mg quitiepine, 1mg clonazepam to control jerks. End of May 2018 tapered off quitiepine.

June 2018 - finished taper off 1mg Clonazepam. 15mg Mirtazipine introduced

July 2018 - taken off 150mg pregabalin

July 2018 - 30mg Mirtazipine and reinstated 1mg Clonazepam

October 2018 - down to 0.5mg clonazepam, 30mg Mirtazipine 

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  • 2 weeks later...

Hello, just a little update. I’m down to 26.25mg Mirtazipine and 0.5mg clonazepam. Am still very anxious and sad a lot of the time. Sleeping about 6 hours most nights with some twitches - most nights it’s reasonable but I wake up at 5am with horrible anxiety and then can’t get back to sleep because of the twitches. So no real change in symptoms, so I guess I will keep going with th Mirtazipine drops until I get to 7.5mg, as suggested. 

I just wondered...given I’ve been on clonazepam for just a matter of months, am I really doing the right thing by leaving myself on it longer whilst I taper the mirtazipine first? I’m worried about things getting worse if I’m on it longer...

thanks so much for all your help and support, I need so much reassurance right now that things will be ok. Thank you xx

March 2018 - 25mg Sertraline 2 weeks. Terrible reaction and caused insomnia. Discontinued and switched to 10mg Citalopram. After one week tapered to 7.5mg 1 week then 5mg. Developed Hypnic jerks. Came off these drugs April 2018

May 2018 - 150mg pregabalin and 100mg quitiepine, 1mg clonazepam to control jerks. End of May 2018 tapered off quitiepine.

June 2018 - finished taper off 1mg Clonazepam. 15mg Mirtazipine introduced

July 2018 - taken off 150mg pregabalin

July 2018 - 30mg Mirtazipine and reinstated 1mg Clonazepam

October 2018 - down to 0.5mg clonazepam, 30mg Mirtazipine 

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  • Moderator Emeritus

Taking multiple psych drugs? Which drug to taper first?


If you're not having an adverse reaction from the other medications, taper the most activating drug first. This is usually an antidepressant or stimulant (ADHD drug).

* NO LONGER ACTIVE on SA *

MISSION ACCOMPLISHED:  (6 year taper)      0mg Pristiq  on 13th November 2021

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

Post 0 updates start here    My tapering program     My Intro (goes to tapering graph)

 VIDEO:   Antidepressant Withdrawal Syndrome and its Management

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Thank you @ChessieCat at the moment I can’t really tell if I’m having adverse reactions from the benzo. I feel very anxious and low a lot of the time and very worried. I’m wondering if I should taper the mirtazipine completely or just get down to a low dose on it, i.e 7.5mg then switch. I know it was suggested to me to lower it to 7.5mg but perhaps it would be better to get off it all together whilst I kind of had the back up of the benzo? What do you think? Thanks so much 

March 2018 - 25mg Sertraline 2 weeks. Terrible reaction and caused insomnia. Discontinued and switched to 10mg Citalopram. After one week tapered to 7.5mg 1 week then 5mg. Developed Hypnic jerks. Came off these drugs April 2018

May 2018 - 150mg pregabalin and 100mg quitiepine, 1mg clonazepam to control jerks. End of May 2018 tapered off quitiepine.

June 2018 - finished taper off 1mg Clonazepam. 15mg Mirtazipine introduced

July 2018 - taken off 150mg pregabalin

July 2018 - 30mg Mirtazipine and reinstated 1mg Clonazepam

October 2018 - down to 0.5mg clonazepam, 30mg Mirtazipine 

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  • 2 months later...

Hey @EmmsieA, how are you feeling now?

March 2016: Strattera

June 2016: Nothing

October 2016-April 2017:Wellbutrin SR

Mid-March 2017-March 2017 Adderall (9 days)

April 2017: Wellbutrin and Ritalin (7 days)

Mid-April to mid-June: nothing 

early June 2017: Wellbutrin XL

mid-June 2017: Wellbutrin XL, Adderall, and Hydrochlorothiazide (blood pressure); took for two days

Late August: Allegra for two days, then Propranolol

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