JoeSM: I am looking into tapering bupropion 150 XR…

[JoeSM]

On 12/24/2021 at 7:34 AM, WiggleIt said:

@JoeSM

 

You may also want to consider joining support groups on Facebook for people with dystonia and dyskinesia. Not all the people there have medication-induced disorders; some people it’s genetic or from head injuries. But they are still a good resource. However, they are not people who know about AD withdrawal. 
 

But you still might find the groups good to ask about movements.

 

some FB group names are:

 

Dystonia is a disorder not a Disease

Neuronauts

The Silence of Dystonia

20/30 Dystonia 

 

Think about sending requests to join one or more of those! 

The movement hasn’t let up 16 hours of head bobbing and more. Dystonia feels like it’s breaking my body. 
I go to the nurse practitioner the 30th.

don’t know how I’m even going to sit in the passenger side of the car. Don’t know what to say about the bupropion 150 XR … wanted to ask about liquid titration if she would approve it.

I’m scared and lost. My sister is saying Jesus will heal it others in the drugged harmed community say it will take time off of toxins… like A. says what does time mean. The woman who wrote Psychiatrized said it took 4 years to see improvements and she is out and about. 

[ChessieCat]

26 minutes ago, JoeSM said:

Don’t know what to say about the bupropion 150 XR … wanted to ask about liquid titration if she would approve it.

 

When we speak to a medical professional we need to be calm and clearly state what we need, instead of asking I think you state that what you need and tell her the reason is so that you can do a careful taper off your drug.  You might find it helps to jot down some notes and rehearse what you want to say to them.  Remember that it is you who is being affected not the doctor.

 

Have you seen the options in Post #1 of this topic: 

 

tips-for-tapering-off-wellbutrin-sr-xr-xl-zyban-buproprion

 

[Lauren90]

Hi! How are you doing? 

[JoeSM]

But my story is the ultimate tragedy… I have severe Tardive Dyskinesia… I can barely walk, and I make animal sounds my face twists and turns and I have Dystonia and akathisia… boy did I get ***** up. I just took a shower and it was the hardest thing and yet I looked down at my once trained body, and I can imagine even at 63 I would’ve been at the best shape of my life I was an actor and personal trainer, and working on one of the biggest television shows in the world, and now I can barely do crap. I sought alternatives, got stem cells, but my nose cavity nothing is helped and I may have to try big Pharma’s TD drug because I don’t know what to do. I hope you’re well. I’ve just been getting my story out there. I used to be so handsome and now I’m gruesome… I don’t know what else to do. I hope you’re well.

[Elaine5]

Hi Joe, I read your thread and hope that you continue to persevere. It sounds like you are in a lot of pain and this entire development has been atrocious. 
 

You don’t deserve to be experiencing this. From what I understand, the worst of the movement disorder developed in 2021. That is not too long ago, unfortunately. As Wigglet explained there were many times in her journey things did not appear to be improving and even got worse. She is doing better, however. 
 

There is every possibility that you can see improvements too. It even sounds like you have experienced some improvements. in your signature you referenced deadly Akathisia and it sounds like this may be less of an issue for you now. I certainly hope so! 
 

I guarantee you that no matter how different you are currently from who you were, you are not gruesome. You are human. You don’t know how people perceive you, you only know how your most critical self would perceive you. What about your most accepting and living self? Everyone with any similar experience would see you as a hero, a leader, a light. You are someone healing from a medical injury. It is obscenely difficult. Others have made it to the other side and you can too. 
 

Even your writing here is graceful. You have not lost an ounce of elegance. 
 

Please keep doing everything you can to be healthy and health will follow. I don’t believe in religion. I don’t believe in the medical establishment. I don’t believe in the pharmaceutical industry. I do believe in humanity. People. You. 

[JoeSM]

My name Joey. Joeys Jagged Journey.  Thanks.

[JoeSM]

I was in the emergency room last night… I’m taking Valium, which I hate… Everything is getting much harder. My physical pain is immense. It is kind of like Parkinson’s on speed. It feels like my jaw is going to break off because of the repetitions… I can’t hardly sit up, unless I make myself rigid… Joey’s jagged journey is followed a lot by people… I try to inform about informed consent, and my trials and tribulations… I’m kind of like a prisoner in my own body. Mine kind of looks like Huntington’s disease. Are used to be an actor, a personal trainer and stuff… I’m experiencing so much grief… It’s hard for me to stay in the present moment because of the pain always challenging me. I’m really nobody’s hero. Thanks, Joey