Jump to content
Altostrata

☼ About Altostrata -- withdrawal syndrome since 2004

Recommended Posts

Altostrata

 

A YouTube video from a few years ago:

 

Alto Strata's Paxil Prolonged Antidepressant Withdrawal Syndrome (8 minutes)

 

Transcript here which you can copy and paste into a translator.

 

From August 2020:

 

Medicating Normal - SurvivingAntidepressants.org Community Discussion video (1 hour and 26 minutes)

 

Alto is one of the panelists and gives a brief description of her withdrawal experience in this panel discussion which was shown after the presentation of the Surviving Antidepressants Presents showing of "Medicating Normal": 

 

------------------------------------------------------------------------------------------------------------------------------

 

I developed prolonged antidepressant withdrawal syndrome after going off 10mg Paxil over 3 weeks in October 2004, at the age of 54.
 
I very slowly and painfully recovered from the autonomic nervous system damage over 9 years. For the last 5 of those years, I was unable to work due to prolonged withdrawal syndrome.
 
I started taking Paxil in 2001 for what I now believe was symptoms of menopause aggravated by intense work stress. After 3 years  with side effects on Paxil 10mg, I "tapered" under medical supervision at University of California San Francisco and immediately suffered severe antidepressant withdrawal symptoms.
 
My doctors at UCSF did not recognize acute and severe withdrawal syndrome and treat it properly by reinstatement of Paxil even though I requested it in January 2005. I had found information about diagnosis and treatment of antidepressant withdrawal syndrome on the Web. (The recommendation for reinstatement in cases of severe withdrawal symptoms was added in the package insert by GlaxoSmithKline in December 2001 during a widely publicized lawsuit regarding Paxil withdrawal syndrome; the FDA has caused similar advice to be added to antidepressant package inserts ever since.)
 
Instead, I was prescribed Wellbutrin; when that didn't work, a parade of other drugs I refused.
 
Ironically, the notes from UCSF include a diagnosis of "prolonged withdrawal syndrome." After 10 months, in July 2005 I left the care of UCSF Psychiatry and started my search for a doctor who might be able to help me. That proved to be near-impossible.
 
Over 3 years, I probably talked to 50 psychiatrists, including a good proportion of the Psychiatry faculty at UCSF, one of the top medical centers in the world, and none of them knew anything about antidepressant withdrawal syndrome -- so don't be surprised if your doctor is clueless. I was told by dozens of psychiatrists that I was suffering from "relapse." One elite psychiatrist told me that my belief I was suffering from withdrawal syndrome was a delusion.
 
I struggled with an ever-changing panoply of withdrawal symptoms for years, including excruciating tingling pain in my arms and shoulders for 2 years. Meanwhile, I read everything I could about antidepressant withdrawal syndrome, particularly in medical journals. (I was a medical researcher for a couple of years a while back; I've worked for 2 biotech companies.) Many of these papers and citations are posted in From journals and scientific sources .

 

I've talked to many, many doctors of various specialties and found psychiatrists to be the least sympathetic and just as ignorant as any other doctor about withdrawal syndrome. Most alternative practitioners, however well-meaning, are equally in the dark, having adopted the bogus "chemical imbalance" model; their recommendations can also be injurious.

 

Like many others, withdrawal made me hypersensitive to neurologically active medications and prone to paradoxical reactions. Personally, I found very small amounts of some supplements and herbs, along with acupuncture, chiropractic, physical therapy, and osteopathic manual therapy, to be helpful in reducing physical symptoms, see the Symptoms and self-care forum for the accumulated wisdom of myself and other members.

 
In December 2007, after an ill-advised job change, I completely lost the ability to sleep and became disabled. In late 2007, I finally found a doctor, a psychiatrist and sleep specialist, who understands and treats withdrawal syndrome, coincidentally in San Francisco.
 
Under his care, I very slowly recovered. Unfortunately, in January 2010, I developed severe atrial fibrillation, an autonomic heart condition. This was successfully treated in June 2013, but it took me a very long time to recover from the procedure. As I'm now 65+, I am still dealing with many health problems, but my autonomic nervous system is stable, my mind is clear, and my mood is generally calm.

 

Over the years, I learned a great deal about how my doctor views iatrogenic drug damage, which corresponded closely with the impression I had gotten from my reading. This, and my treatment, is recounted in One theory of antidepressant withdrawal syndrome
 
As my condition permitted, I advocated for psychiatric patient rights and educating the medical establishment about withdrawal syndrome. When I felt up to it, I ran a peer support group for antidepressant withdrawal in San Francisco for about 2 years. I was a frequent participant in PaxilProgress.org for 5 years.
 
In March 2011, with a group of friends from PaxilProgress.org (closed in December 2014), I founded SurvivingAntidepressants.org to provide peer support for tapering and to document withdrawal syndrome for the education of the medical establishment -- see About SurvivingAntidepressants.org
 

Medicine is in wide denial about the existence and severity of antidepressant withdrawal syndrome, leading physicians to almost always misdiagnose withdrawal syndrome as a relapse or emergence of a psychiatric condition and treat it improperly with ever-escalating combinations of drugs, which tend to make the condition worse.

 

Psychiatry ignores the adverse effects of these drugs because writing prescriptions is how it makes its living. In reality, the best doctors will admit treatment with psychiatric drugs is trial and error, success being when the patient stops complaining.

Even though most of the drugs they purvey are truly addictive or are well known to cause physical dependency, most psychiatrists know very little about how to get patients off psychiatric drugs with a minimum of withdrawal symptoms, indicating wear and tear. There is a widespread but spurious belief that withdrawal symptoms are invariably trivial and transient.
 
SurvivingAntidepressants.org is here to document that belief and practice regarding getting patients off psychiatric drugs is incorrect and needs to be informed by real patient experience, such as mine.

 

Edited by ChessieCat
updated/cc added link to YT vid/cc added panel discussion

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Share this post


Link to post
Barbarannamated

How are YOU doing?


Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Share this post


Link to post
xDebbiejo

Me too! x


17 years on seroxat/paxil CT off - thought I was dying luckily found this site. 21st May 2012 12mg seroxat

Stable - Tapered Diazepam slowish.1st June 10mg Seroxat

2nd June 1mg Diazepam.15th June 9mg seroxat

2nd July Changed to 2.5[ml liquid diazepam]2mg=5ml. 16th July 2ml Liquid Diazepam

2nd August 8mg/4ml Seroxat/Paxil 2nd August 1.5 ml Diazepam

18th Aug 2012 1ml Diazepam 1st - 5th Sept 0.5

Diazepam Free!

13th Oct 7mg/3.5ml seroxat - 26 Jan 2013 3.25ml/6.5mg-Mar 3ml-April 2.7ml-May 2.5ml

01/07/14 very slow taper over the last year now on 0.5 ml of liquid Seroxat ......November 14 Seroat Free!!!!!!!

Share this post


Link to post
elizabeth11

Me three!


Years:150mg Wellbutrin (to concentrate) 20-30 mg Celexa (rumination).

CT 8/2011 during a pregnancy attempt under MD orders. (Idiot!!!) Pregnancy hormones allowed it.

Felt great with 6 mg of melatonin per night to sleep plus preggo hormones-didn't last:(

Best time of my life. Botched IVF in Dec 2011.Stress.

Bone chilling exhaustion and told to go back on celexa and wellbutrin.

4/9/2012 Back on celexa wb for some relief, wb gave me heart palps so dropped and only need 6.6 mg celexa and 1/4 melatonin pill...IMPROVEMENT because my doses are much lower!

REMEMBER to get your thyroid and hormones checked/out of whack ones can appear LIKE MOOD DISORDERS!!

Share this post


Link to post
xDebbiejo

LOL :)


17 years on seroxat/paxil CT off - thought I was dying luckily found this site. 21st May 2012 12mg seroxat

Stable - Tapered Diazepam slowish.1st June 10mg Seroxat

2nd June 1mg Diazepam.15th June 9mg seroxat

2nd July Changed to 2.5[ml liquid diazepam]2mg=5ml. 16th July 2ml Liquid Diazepam

2nd August 8mg/4ml Seroxat/Paxil 2nd August 1.5 ml Diazepam

18th Aug 2012 1ml Diazepam 1st - 5th Sept 0.5

Diazepam Free!

13th Oct 7mg/3.5ml seroxat - 26 Jan 2013 3.25ml/6.5mg-Mar 3ml-April 2.7ml-May 2.5ml

01/07/14 very slow taper over the last year now on 0.5 ml of liquid Seroxat ......November 14 Seroat Free!!!!!!!

Share this post


Link to post
Altostrata

Heck, you guys.

 

I'm in the last leg of recovery, I plan to post the whole story when I'm finally through it!


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Share this post


Link to post
cymbaltawithdrawal5600

I only found this topic because I saw yahoo indexing it. Any chance there will ever be an update here, Alto?


What happened and how I arrived here: http://survivingantidepressants.org/index.php?/topic/4243-cymbaltawithdrawal5600-introduction/#entry50878

 

July 2016 I have decided to leave my story here at SA unfinished. I have left my contact information in my profile for anyone who wishes to talk to me. I have a posting history spanning nearly 4 years and 3000+ posts all over the site.

 

Thank you to all who participated in my recovery. I'll miss talking to you but know that I'll be cheering you on from the sidelines, suffering and rejoicing with you in spirit, as you go on in your journey.

Share this post


Link to post
Altostrata

Some day soon, I promise.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Share this post


Link to post
alex

Some day soon, I promise.

 

GOOD! I'll be waiting,as well as many others I am sure.


4 years aprox. on 150mgs.Effexor for situational major depression.No AD before.
Tapered 150-0mgs in 3 months.

Tapered Quetiapine,Xanax in the last 18 months.NO med of any kind anymore.
First 3 months off acute w/d
Protracted w/d ever since.
Symptoms:Anxiety,anhedonia,insomnia,tinnitus,PSSD

04/13/2014 Awful Relapse.Recovered fairly fast.

3 years and 4 months off.

waves and windows.Very much recovered.

November 2015,health issue.Setback.
 

 

Share this post


Link to post
DLB

I have no idea how I stumbled upon this but I am waitin patiently too! Thanks Alto...


Paxil start September 2003 due to Fluoroquinolone adverse reaction that I wish doc. knew what it was. 10mg. most of the time with a few short runs of 20mg. FAST tapered 3 times and finally hit poop out or a reaction to nsaid's in Nov.2013. Started a 10% taper Jan. 2014 and have been ok until Sept 14 and went through a short hell. Now plodding through and looking for the light with unrelenting insomnia and pain, fog, loss of interests....<p>12/20/14 - .8mg.

1/01/15 - .75 mg.

1/15/15 - .42 mg. better sleep now, hope it continues...

2/11-15 - .25 mg. doing really good!! 2 weeks feel 85% of old me!

3/17/15 .14 mg. Knee pain bad!

4/07/15 .05 mg. this is so small now that I am estimating and just licking it off palm small as a "." 

4/13/15 NOTHING !!!! Took my last little micro dose on 4/12/15. ????????????????

Share this post


Link to post
Purplestars22

I am also curious about your journey hopefully soon you will divulge.


Celexa 20mg 2008-2012 for Social Anxiety

Failed attempt to stop reinstated

1 year taper skipping doses

Celexa free 12/2013

1/2014-5/2014 took 5 htp every other day

Failed Reinstatement 5mg of Celexa on 12/2014 for 5 days only

Share this post


Link to post
OffEFFexor

Hey Alto:  at least give yourself a sun logo!


1983-1995: On and off several tricyclic ADs
1995: Quit alcohol, started Prozac
2003: Stopped Prozac; 2004: Started Effexor XR 225
2014: Tried and failed three rapid tapers; stopped cold turkey March 11, 2014, eight days of Prozac as a bridge.
March 19, 2014: SSRI/SSNI free; four weeks acute withdrawal, then five month window of minimal symptoms.

Sept 2014-June 2015: Delayed, prolonged severe withdrawal from Effexor. Roller coaster, way up and way down.  Symptoms swing widely. Clear improvement in Mar-Apr, but still much hell. In May symptoms shifted to insomnia and depression, less HA, tinnitus and brain fog.

July-Sept 2015: After two weeks of using CES device, tremendous relief of insomnia, depression and other symptoms. Feeling much better, finally! Symptoms still come and go, good and bad days.Sneaking up on return to good health.  Alto gave me a 'Here Comes the Sun'!!!  ☼

Oct 2015-Feb 2016: Difficult several months, some good days but the bad days felt like I'm moving backwards.  Struggling after steady improvement, but hanging tough.

 

Current supplements:  Mg-Threonate; glutathione; krill oil; borage oil; phosphatidyl choline; multivite, vit B12, vit C, vit D vit E; OTC meds pseudoephedrine in the AM and benadryl at bedtime.  Clonidine 0.2 bid for high blood pressure.

Filled with hope, courage and self-appreciation.

Share this post


Link to post
Altostrata

Good idea!


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Share this post


Link to post
Fresh

Happy Birthday to SurvivingAntidepressants  Alto.     You must be so proud of your baby . . . congratulations.


1987-1997 pertofran , prothiaden , Prozac 1997-2002 Zoloft 2002-2004 effexor 2004-2010 Lexapro 40mg

2010-2012Cymbalta 120mg

Sept. 2012 -decreased 90mg in 6months. Care taken over by Dr Lucire in March 2013 , decreased last 30mg at 2mg per week over 3 months. July 21 , 2013- last dose of Cymbalta

Protracted withdrawal syndrome kicked in badly Jan.2014 Unrelenting akathisia until May 2014. Voluntary hosp. admission. Cocktail of Seroquel, Ativan and mirtazapine and I was well enough to go home after 14 days. Stopped all hosp. meds in next few months.

July 2014 felt v.depressed - couldn't stop crying. Started pristiq 50mg. Felt improvement within days and continued to improve, so stayed on 50mg for 8 months.

Began taper 28 Feb. 2015. Pristiq 50mg down to 45mg. Had one month of w/d symptoms. Started CES therapy in March. No w/d symptoms down to 30mg.

October 2015 , taking 25mg Pristiq. Capsules compounded with slow-release additive.

March 2016 , 21mg

Share this post


Link to post
Altostrata

Thank you. I'd lost track of the birthdays....


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Share this post


Link to post
roadback1

Alto,

I would love to read about your history of surviving antidepressants.

Can we be expecting it anytime soon ?

 

Thank you for all you do for us !

 

RB


**I started taking Zoloft 100 mg. in 1996 for a panic disorder with agoraphobia and depression, which worsened after a car accident. I have had these symptoms since age 11 .

** In September 2009 , the Zoloft was upped to 150 mg and .5 mg Xanax was added as needed for extreme anxiety due to my Father's illness and death from cancer. Successfully tapered off the Xanax in November 2009.

** I started my Zoloft taper in September 2011,and,in July 2012, reached 75 mgs.(went to 68.5 mgs,but went back up to 75mgs due to withdrawal related depression /anxiety symptoms .

** I started tapering again in September 2014 ,and, as of December,2014, I was holding at 50 mgs. Zoloft until February,2015, when I tapered in two cuts to 37.5 mgs. Due to protracted withdrawal symptoms, have up dosed to 50 mgs. Zoloft on 5/18/2015 and holding there.

**Also started .25 mgs xanax at bedtime in September,2015, due to alerting/jolting awake/anxiety and not sleeping because of heart related issues,now resolved.I tapered completely off in Oct. 2015 (too fast ) had withdrawal symptoms and updosed to .12 mgs Xanax once a night.

** After dry cutting till I couldn't do it accurately, I have been on compounded doses. Am on 0.069 mgs compounded Xanax as of  6/21/17 once per night, as prescribed by my Doctor.

Share this post


Link to post
apace41

Man!
 

5 years later and still waiting!  This is bigger tease than the last episode of Seinfeld!

:D

Alto is holding out for a movie deal!

Andy


 


Sertraline 50mg and Clonazapam .375mg from 2000 -- symptoms of dizziness Spring 2012

increased to .5 Clonazapam and 100mg Sertraline -- no improvement

Benzo microtaper from November 2012 to November 2014 (followed benzo sites "taper benzo first")

Started Sertraline taper in December 2014 cut by 25mg to 75mg; 62.5mg 1/1/15 and 50mg on 2/1/15

Held at 50mg through April 5 to use liquid 
Reduced dosage in 10% or less drops from 50mg to 25mg -- at single tablet of 25mg on 10/5/15

Transitioned to all liquid for accuracy while tapering -- Horrible insomnia -- back to 25mg liquid and held until October 1, 2016

10/16 -- 11/18 tapered very slowly to 10.6mg.  No real improvement and never really stable so updosed to 12.5mg (1/2 a pill) for convenience and long hold.

After 8+ months of holding with no noticeable improvement decided to add .4ml of liquid Prozac (about 1.5mg) to see if that improves the situation

Supplements, Magnesium, D3, Omega 3, curcumin, Valerian, 81mg Aspirin, L-Theanine, Vit. C,

 

Share this post


Link to post
Altostrata

Oh, gosh, I would say it took 9 years for my nervous system to fully stabilize. Then I had to deal with other health problems that may not be related to withdrawal syndrome.

 

Some day I'll compile all the details. In the meantime, they're scattered all over this site.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Share this post


Link to post
LoveandLight

9 years wow..


2000 - sertraline for job anxiety low confidence (17 years old) ..which turned the next 16 years into nightmare!

 

On/off sertraline severe withdrawals every time. 2014 - felt better as reduced dose of sertraline no more inner restlessness. Doctor rushed off again. Hit severe withdrawal. Lost the little I had in life. Couldn't get stable again on 12.5mg. Was switched to prozac. Had severe reaction to prozac..came off in November 2015 at 6mg as felt more confused and damaged on it..Even more withdrawal ..rage, depression, dyphoria, near constant suicidal ideation, self harm impulses, doom, concrete block in head, unable to do much of anything with this feeling in head..went back on 6mg of sertraline to see if would alleviate anything. It didn't..reduced from December to June 2016 came off at 2.5mg sertraline as was hospitalised for the severe rage, suicidal impulses, and put on 50mg lofepramine which in 2nd week reduced all symptoms but gave insomnia which still have..psych stopped lofepramine cold turkey..no increased withdrawal symptoms new symptoms from lofepramine except persistant insomnia which has as side effect.

 

Taking Ativan for 8 months for the severe rage self harm impulses 1-3 times a week (mostly 2 times a week) at .5mg. Two months (I'm unsure exactly when the interdose started to happen) ago interdose withdrawal seemed to happen..2 days I think after the Ativan.

 

 

Nightmare that could have been avoided!

Share this post


Link to post
Fresh

Hi Alto ,  if there's a movie deal , who would you like to see playing the lead?     :)


1987-1997 pertofran , prothiaden , Prozac 1997-2002 Zoloft 2002-2004 effexor 2004-2010 Lexapro 40mg

2010-2012Cymbalta 120mg

Sept. 2012 -decreased 90mg in 6months. Care taken over by Dr Lucire in March 2013 , decreased last 30mg at 2mg per week over 3 months. July 21 , 2013- last dose of Cymbalta

Protracted withdrawal syndrome kicked in badly Jan.2014 Unrelenting akathisia until May 2014. Voluntary hosp. admission. Cocktail of Seroquel, Ativan and mirtazapine and I was well enough to go home after 14 days. Stopped all hosp. meds in next few months.

July 2014 felt v.depressed - couldn't stop crying. Started pristiq 50mg. Felt improvement within days and continued to improve, so stayed on 50mg for 8 months.

Began taper 28 Feb. 2015. Pristiq 50mg down to 45mg. Had one month of w/d symptoms. Started CES therapy in March. No w/d symptoms down to 30mg.

October 2015 , taking 25mg Pristiq. Capsules compounded with slow-release additive.

March 2016 , 21mg

Share this post


Link to post
Altostrata

Rooney Mara.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Share this post


Link to post
dalsaan

Rooney Mara because of Side Effects, Girl with a Dragon Tattoo or Nightmare on Elm Street?    All are fitting in a way.

 

Dx


Please note - I am not a medical practitioner and I do not give medical advice. I offer an opinion based on my own experiences, reading and discussion with others.On Effexor for 2 months at the start of 2005. Had extreme insomnia as an adverse reaction. Changed to mirtazapine. Have been trying to get off since mid 2008 with numerous failures including CTs and slow (but not slow enough tapers)Have slow tapered at 10 per cent or less for years. I have liquid mirtazapine made at a compounding chemist.

Was on 1.6 ml as at 19 March 2014.

Dropped to 1.5 ml 7 June 2014. Dropped to 1.4 in about September.

Dropped to 1.3 on 20 December 2014. Dropped to 1.2 in mid Jan 2015.

Dropped to 1 ml in late Feb 2015. I think my old medication had run out of puff so I tried 1ml when I got the new stuff and it seems to be going ok. Sleep has been good over the last week (as of 13/3/15).

Dropped to 1/2 ml 14/11/15 Fatigue still there as are memory and cognition problems. Sleep is patchy but liveable compared to what it has been in the past.

 

DRUG FREE - as at 1st May 2017

 

>My intro post is here - http://survivingantidepressants.org/index.php?/topic/2250-dalsaan

Share this post


Link to post
Hopefull

Hi Alto,

Are you now completly recovered? Nine years is a long time... I am glad that you have endured the wd symptoms and have recovered. It gives me hope. Still learning to be patient. :)


DRUG HISTORY:

 

November 2013- Zoloft, ( Bad reaction).

January 2014 - March 2014 Seroquel.( Quit Cold Turkey).

January2014- Mirtazapine, I was taking 15mg at one stage, reduced to 7.5mg, Pgad reactions to Mirtazapine. Doctor kept increasing it to 37.5mg, until July 2014. No improvement, experiencing panic attacks, on 37.5 mg. I had enough by October 2014. Began tapering.

October 2014- Started tapering Mirtazapine from 37.5mg.

September 2015- Down to 4mg of Mirtazapine. Crashed.

September 16th- Up dosed to 5mg. Held this dose for almost 5 months. Stabilised.

February 2016- Began tapering again. From 5mg to 4.5mg of Mirtazapine. (Rocking the boat, again)! Lol. :(

Share this post


Link to post
AliG

 Hi Alto, you give us all hope, but more than that you teach "patience & perseverance".  Thank you for all you do  . We are eagerly awaiting  your  "whole" story, when you're ready.


Many SSRI's and SSNRI's over 20 years. Zoloft for 7 years followed by Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and more - on and off. No tapering. Cold turkey off Valdoxan - end of May 2014

 

                                                  Psych Drug - free since May 2014
.
         

Share this post


Link to post
LoveandLight

Nightmare on elm street haha! Yes.


2000 - sertraline for job anxiety low confidence (17 years old) ..which turned the next 16 years into nightmare!

 

On/off sertraline severe withdrawals every time. 2014 - felt better as reduced dose of sertraline no more inner restlessness. Doctor rushed off again. Hit severe withdrawal. Lost the little I had in life. Couldn't get stable again on 12.5mg. Was switched to prozac. Had severe reaction to prozac..came off in November 2015 at 6mg as felt more confused and damaged on it..Even more withdrawal ..rage, depression, dyphoria, near constant suicidal ideation, self harm impulses, doom, concrete block in head, unable to do much of anything with this feeling in head..went back on 6mg of sertraline to see if would alleviate anything. It didn't..reduced from December to June 2016 came off at 2.5mg sertraline as was hospitalised for the severe rage, suicidal impulses, and put on 50mg lofepramine which in 2nd week reduced all symptoms but gave insomnia which still have..psych stopped lofepramine cold turkey..no increased withdrawal symptoms new symptoms from lofepramine except persistant insomnia which has as side effect.

 

Taking Ativan for 8 months for the severe rage self harm impulses 1-3 times a week (mostly 2 times a week) at .5mg. Two months (I'm unsure exactly when the interdose started to happen) ago interdose withdrawal seemed to happen..2 days I think after the Ativan.

 

 

Nightmare that could have been avoided!

Share this post


Link to post
Altostrata

Thank you all.

 

Rooney Mara because she is fierce! :ph34r:


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Share this post


Link to post
Altostrata

Updated post #1.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Share this post


Link to post
Junglechicken

Alto, you are an inspiration to us all. I couldn't live without this website.

 

THANK YOU!

 

JC


Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

 

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)

Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018

Share this post


Link to post
nz11

Wow

Thanks for all the tremendous work you have done and are doing.

 

Hey you forgot one more 'my':

my autonomic nervous system is stable,

my mind is clear,

my mood is generally calm and,

[my letters are like lazer beams of truth cutting through the cow manure of doctors incompetent nonsense exposing a dangerous vacuum of knowledge and triggering either clueless blither, a lack of logical coherence, or deafening silence.]


Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

Share this post


Link to post
Djones1984

Your story inspires me to keep fighting!


April 2013 Doc put me back on 40mg of celexa for 2.5 weeks than switched to Paxil 3 weeks adverse reaction and kindling reaction
July 2013 5mg celexa and .5mg klonopin daily

5/15/16 started lamictal and currently at 25mg daily once a day.

1/1/17 crossed over from .5mg klonopin to 10mg Valium.

3/1/17 off celexa from getting down to around .25mg.

5/25/17 started tapering the Valium from 10mg to 9mg

6/25/17 dropped down to 8mg Valium 

currently on 8mg of Valium and 25mg of lamictal once a day in the morning never could handle more than 25mg of lamictal and never really felt anything from it.

7/2/17 updosed to 10mg Valium and holding split twice a day and holding.

3/1/18 dropped Valium from 10mg to 9.5mg

4/1/18 dropped Valium from 9.5 to 9mg still on 25mg lamictal.

Updosed 6/20/18 Valium 10mg and 25mg lamictal and holding.

Share this post


Link to post
Pokeshaw

Wow

Thanks for all the tremendous work you have done and are doing.

 

Hey you forgot one more 'my':

my autonomic nervous system is stable,

my mind is clear,

my mood is generally calm and,

[my letters are like lazer beams of truth cutting through the cow manure of doctors incompetent nonsense exposing a dangerous vacuum of knowledge and triggering either clueless blither, a lack of logical coherence, or deafening silence.]

Hi nz - This is so true!  Thank you for suggesting that additional 'my'! Well said!

 

Pokeshaw in Bklyn


7 yrs Lexapro 10 mg. Mar/2011 - 1 month taper. Severe W/D. Multiple symptoms.Gallbladder and parathyroid surgery in Aug and Oct. Disability 3 months.  Dec/2011 reinstated 5mg Lex and went back to work. very bad shape.

By Aug/2012 - self tapered to 1.25 mg cutting pills. -very bad shape. Nov/2012  Dr. Hinz neuro-replete. up and down. Aug/2013 at aprox 1.0 mg Lex stopped neuro-replete ~Oct 2013 Found this site  ~ began using compounded Lexapro and have been micro tapering since then and holding as needed.

11/6/2013 -  0.6 mg

2/1/2018 - .135 mg  Now reducing 5-10% per month 

4/1/18 - .1 mg

4/17/18 - changed delivery from compounded individual caps to aliquot. went from .1 mg to .09 aliquot

7/4/2018 - .09 mg Holding due to wave of W/D symptoms

7/22/18 updosed to .1 mg aliquot

9/30/18 - reduced to .0975 aliquot

2/1/19 - updosed to .1 mg aliquot due to instability bad wave W/D

9/12/19 - back to .1 mg individual caps since could not get stable using aliquot

Share this post


Link to post
LexAnger

Thanks Alto!

 

Just finished reading. It overwhelmed me one more time by such a great soul full of strength, wisdom, and humanity! I believe you are the only one in the whole world with full devotion with all your time, energy, knowledge and care day in and out to help everyone in desparation.

 

I will from now on to remind myself of your great example when I feel unable to continue.

 

Hats off to you Alto. We all love you vey much and hope the other health issue goes away completely soon.

 

Lex


Drug free Sep. 23 2017

2009 Mar.: lexapro 10mg for headache for 2 weeks.

2009-2012: on and off 1/4 to 1/3 of 10mg

2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain

2013 Jan-Mar: 10 mg generic. severe jaw and head pain;

2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain

2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg,

2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on

2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks.

2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR

2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg

2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg,

Share this post


Link to post
ravijaua

I agree that you are an inspiration and godsend to us all.


Update 8122017

Zoloft  2004. Effexor 2004-2006. Paxil 20 mg for 2006-2010. Ct 2010, bad effects back on, stable by 2011.  Poopout June 2015. Zoloft with paxil for a while, stopped Zoloft.

Sep 2016 paxil 16.2 mg alone(295 mg pill weight). Started tapering 11/14/2016.

Took off 1 mg pill weight(total pill weight of 20 mg = 365 mg and 16 mg is 295 mg). Went down 1 mg per week of pill weight so down to 291 mg by end of November. Starting getting anxiety issues starting since 12/10/2016. Hoping that a faster taper will help.

12/14/2016 - 15.95 mg (291 mg pill weight)

12/16/2016 -  15.83 mg (289 mg pill weight)

12/23/2016 -  15.67 (286 mg pill weight)

8/12/2017 -  15.34 (280 mg pill weight)

Share this post


Link to post
DrugfreeProf

Yes, thank god for people like Alto.  The world can be a terrible, heartless place, but people like her bring some light and warmth that is, I am sure, literally keeping a lot of people alive by giving them knowledge and hope that is available no where else.

I know how incredibly hard it is when you are someone who can really "see" in living color a system that is harming people left and right, that is built on greed and the hunger for profit and denial.  And no one wants to talk about it, yet people are being virtually if not literally MURDERED by such systems. I see this as true of what Alto has done here with the harm caused by the "safe, non-addictive, effective" meme applied to antidepressants and AD withdrawal.  

About 15 years ago, after going through it myself, I began working on behalf of battered women who lose custody of their children to abusive ex-spouses. The parallels of those horrors that take place in the family court/divorce court system of this country with the scandal that Alto has uncovered and is addressing are compelling. The powers that be--the lawyers, judges, "forensic evaluators," etc. exercise the same denial, hostility, and in some cases, retaliation whenever their terrible misdeeds of giving custody to the abusive ex are exposed.  So I know what it's like to be the nail that is standing out--the hammer comes down on you.

What is particularly amazing and inspiring is that Alto and the mods on this site do not do it for the money or glory or profit, of which I know there is none. These people are saints among us. 


Drugfree Prof

Psychologist and Psychotherapist

Prozac 20 mg for approx 3 months during 2000, withdrew, no w/d sx

Prozac 10 - 30 mg Jan. 2008 - Dec. 2014

Ritalin 30-40 mg Jan. 2008 - Mar. 2015

W/d sx from Prozac started around 3 months after cessation--crying spells, depressed mood, lethargy; resolved in 8 - 12 mos. post cessation

Used and continue to use a TON of alternative methods--meditation, mindfulness, nutrition. supplements, exercise, etc.

Share this post


Link to post
herewego

Do you feel fairly recovered now? Have most of your w/d symptoms gone away? Thanks for what you set up and do here.


Medicine History

June 2011 I was put on 10 mg Olanzapine. I stayed on that for 7 months then went down to 5 mg for 3 months and then went down to 2.5mg and slowly went down to less than .3 every few days. I have tried to come off 4 times, each time getting down to less than .3 before having to go back on at 5mg or 2.5mg. I would cut by 50% each taper. From Jan 2015 to June 2015 I reduced from about 5mg to .3 mg. This last time I went on 2.5 mg last June 2015 until July 2, 2016. July 3, 2016 I went down to 1.25mg - withdrawal hit. Up dosed to liquid 2 mg July 23, 2016.

Medicine Current

2 mg Olanzapine as of July 23, 2016

Supplements

Omega 3 1000mg, Vitamin E 400 UI, Vitamin C 1000 mg Time Released, 200 mg Magnesium Bisglycinate, Multi Probiotic, .25 mg melatonin for 3-5 days as needed

Share this post


Link to post

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
×
×
  • Create New...

Important Information

Terms of Use Privacy Policy