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Dizziness, vertigo, light-headedness, rocking or swaying sensations


squirrel
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2 hours ago, Altostrata said:

While vertigo can be a withdrawal symptom, I recently had a bout of vertigo that seems to be due to a common inner ear problem that can come and go, especially in older people.

 

In that particular case, Alto, where the cause of the vertigo is BPPV (benign paroxysmal positional vertigo), the so-called Epley Maneuver (which is what the video demonstrates) can provide instantaneous relief.  If only all vertigo were so simple.  There are a wide variety of dizziness maladies some of which create spinning sensations and others of which create "floating" or "walking on a trampoline" sensations.  Still other dizziness is a migraine variant which makes it very difficult to treat.  Of course, dizziness is a subjective symptom so how the sufferer describes it can be critical to the treatment that is given.  The most recent entry into the world of dizziness is PPPD (persistent postural perceptual dizziness) which seems to be a mismatch between inputs and outputs from the brain and is a purely subjective issue (one that is closely tied to anxiety).  

 

Some of these symptoms can well be triggered by withdrawal, others can be independent of it.  I would say, from years of personal challenge with this, that figuring out what is what is not an easy feat.  People who are NOT in withdrawal can take years to get a diagnosis in the dizziness arena.  Withdrawal only makes it that much more confusing.

 

Ironically, or not so much, the first line of treatment for many of these balance disorders is... antidepressants (usually in low dose) with SSRIs being a frequent "go to" drug and one of the top doctors in this space a strong proponent of Effexor as the first line treatment.  Can't make this stuff up.

 

Best,

 

Andy

Sertraline 50mg and Clonazapam .375mg from 2000 -- symptoms of dizziness Spring 2012

increased to .5 Clonazapam and 100mg Sertraline -- no improvement

Benzo microtaper from November 2012 to November 2014 (followed benzo sites "taper benzo first")

Started Sertraline taper in December 2014 cut by 25mg to 75mg; 62.5mg 1/1/15 and 50mg on 2/1/15

Held at 50mg through April 5 to use liquid 
Reduced dosage in 10% or less drops from 50mg to 25mg -- at single tablet of 25mg on 10/5/15

Transitioned to all liquid for accuracy while tapering -- Horrible insomnia -- back to 25mg liquid and held until October 1, 2016

10/16 -- 11/18 tapered very slowly to 10.6mg.  No real improvement and never really stable so updosed to 12.5mg (1/2 a pill) for convenience and long hold.

After 8+ months of holding with no noticeable improvement decided to add .4ml of liquid Prozac (about 1.5mg) to see if that improves the situation

Supplements, Magnesium, D3, Omega 3, curcumin, Valerian, 81mg Aspirin, L-Theanine, Vit. C,

 

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That is true, @apace41. I mention my experience only for those who might want to try a relatively easy and harmless maneuver that can help. It's not going to work for everyone and probably won't work for withdrawal-related vertigo. (The Epley maneuver is different; there are a half-dozen of these positional treatments. In the video, the doctor says if her "half-somersault" doesn't work, go to your doctor to have Epley, etc. applied.)

 

But it is possible that some of our members who experience dizziness coincidentally have benign paroxysmal positional vertigo, a common age-related condition.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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2 hours ago, Altostrata said:

But it is possible that some of our members who experience dizziness coincidentally have benign paroxysmal positional vertigo, a common age-related condition.

 

Agreed, Alto.  Wasn't intending to be confrontational.  I'm very hypersensitive to the dizziness issue because of years of struggle.

 

It's a difficult symptom and is very hard to understand.

 

Best,

 

Andy

Sertraline 50mg and Clonazapam .375mg from 2000 -- symptoms of dizziness Spring 2012

increased to .5 Clonazapam and 100mg Sertraline -- no improvement

Benzo microtaper from November 2012 to November 2014 (followed benzo sites "taper benzo first")

Started Sertraline taper in December 2014 cut by 25mg to 75mg; 62.5mg 1/1/15 and 50mg on 2/1/15

Held at 50mg through April 5 to use liquid 
Reduced dosage in 10% or less drops from 50mg to 25mg -- at single tablet of 25mg on 10/5/15

Transitioned to all liquid for accuracy while tapering -- Horrible insomnia -- back to 25mg liquid and held until October 1, 2016

10/16 -- 11/18 tapered very slowly to 10.6mg.  No real improvement and never really stable so updosed to 12.5mg (1/2 a pill) for convenience and long hold.

After 8+ months of holding with no noticeable improvement decided to add .4ml of liquid Prozac (about 1.5mg) to see if that improves the situation

Supplements, Magnesium, D3, Omega 3, curcumin, Valerian, 81mg Aspirin, L-Theanine, Vit. C,

 

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  • 3 weeks later...

What causes dizziness/vertigo?

 

I've been trying to understand exactly what is the mechanism behind this side effect/withdrawal symptom. I'm curious if anyone has found any good information, research papers, etc.

 

I'm also wondering what others have found (if anything) helps alleviate this particular symptom. Before I had any idea it was related to my taking of SSRI's I thought it might be labyrinthitis and took NSAIDs. It did seem like maybe that helped. Could've been placebo, or could've worked because perhaps inflammation plays a role in the vertigo caused by SSRIs.

 

Edited by ChessieCat
added topic title

2005-2009 18mg concerta on and off

2009-2013 ritalin and buproprion on and off; 2010 nortryptyline, amitriptyline for accident pain; 2014 Apr - lamictal 2 weeks until hives

2016 Mar...Sep -  st. john's wort, rhodiola, other supplements tried

2016 Nov...2017 Mar - began & increased citalopram (4 months) up to 30mg (11months)

2018 Feb - began taper, ~2.5mg/month, cutting tablets (3 months)

2018 May - 20mg, tried ~17.5mg but symptoms too strong, held at 20 (11 months)

2018 Nov - tried bupropion again, stopped within a couple months

2019 Apr - began ~5%/month taper from 20mg using dissolve in water and measure with syringe method

2020 Jan - no lorazepam for 1year; 0.5mg lorazepam average 3x/month since began citalopram; at most 3x/week

2021 June - 10mg. Race like the tortoise.

 

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"A possible explanation for dizziness following SSRI discontinuation" by Paul F Smith & Cynthia L Darlington, University of Otago

 

Abstract:

 

Dizziness is the most commonly reported symptom of abrupt discontinuation from the selective serotonin reuptake inhibitor (SSRI) category of antidepressants. The reported dizziness is exacerbated by even slight head movement, and therefore is likely to be vestibular in origin. The SSRIs most implicated are those with short half-lives and which are most selective for serotonin (as opposed to noradrenaline), e.g. paroxetine and sertraline. Since the vestibular nucleus complex (VNC) has an abundance of serotonin receptors, the abrupt withdrawal from an SSRI is likely to have a substantial impact on the electrophysiological activity of neurons within it. Here we suggest that the abrupt withdrawal from an SSRI is likely to cause a sudden decrease in serotonin in the VNC, which will disrupt the function of VNC neurons bilaterally, causing dizziness without vertigo.

 

https://www.researchgate.net/publication/41418537_A_possible_explanation_for_dizziness_following_SSRI_discontinuation

 

...

 

I've suffered from this for around two years. It's extremely variable: there have been periods where I could walk for miles with no problems, and others where I have to have a stick to keep my balance. I've even had a couple of falls because of it. Unfortunately I haven't found anything that helps: it's always been a question of waiting for it to go away.

1999 - 2001: Paroxetine 20mg, 2003: Venlafaxine 75mg, 2003 - 2014: Escitalopram 20mg

1999 - December 2017: Lansoprazole 15mg

2014 - December 2017: Citalopram 20mg

December 2017: Mirtazapine 30mg, stopped after 4 days due to immediate bad reaction, Zopiclone 3.75mg, stopped after 2 days due to immediate bad reaction

January 2018 - April 2018: Citalopram liquid, tapering, final dose 0.1mg

December 2018 onwards: Vitamin C 1000mg

October 2021: Loratadine 10mg for 6 days (23/10 to 28/10)

Long term (for asthma): Salbutamol and Salmeterol inhalers, Salmeterol stopped March 2021 due to migraine headaches

Occasional use for headaches: Paracetamol 40mg or Ibuprofen 40mg

4th December 2021: Eustachian tube infection: Amoxicillin 500mg 3 per day for 5 days, Dexamethasone & Neomycin ear spray 3 per day for 1 week, Beclometasone nasal spray 2 per day for 2 weeks.

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merged similar topics

 MISSION ACCOMPLISHED:    13 November 2021 -  0mg Pristiq      

Woohoo!!!  Finally off Pristiq   

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

My full tapering program     My Intro (goes to my tapering graph)    My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.  I do not provide tapering advice via PM.  Please post questions in your Introduction topic.  Please do not tag me for any reason.  I am an unpaid volunteer and assist members if I am able to and when I have the time.  Thank you for your understanding.

Mid Nov 2021 changed to low carb diet due to diabetes & cholesterol.  Lost 1/16 body weight, BP has reduced a lot. 

Links to my exercises and weights.  I also do 3 x 5.5 min with HIIT on exercise bike with 20 secs/min as fast as I can cycle.

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Thanks @AlanC for the good info. I was at 30mg citalopram which meant taking 1.5 tablets of 20mg (that's how my doctor prescribed them). I wasn't changing dosages (intentionally) but due to the nature of cutting a tablet in half, the dosages were never really exactly consistent. I had horrible bouts of vertigo during this time. They would last for a week or two, and I would have to grab on to the bed even while I was lying down. I didn't connect it to the citalopram until I tapered down to 20mg and realized I suddenly didn't experience the vertigo at all anymore.

 

I've now been tapering very, very slowly, and haven't felt anything as severe as I did while at 30mg, but I have had my moments. I try to be a lot more consistent with my dosages now by dissolving a tablet in water, mixing well, and measuring to the same part of the line on the syringe, but I know that has its limits as well. I'm now tuned in enough to notice even a slight feeling of dizziness in my head, usually when I wake up in the middle of the night or the morning, but during the day I hardly ever experience it (and this is only when I experience it, which is not every day).

 

To add to previous posts in the thread, I also tried the Epley maneuver countless times thinking it may be BPPV. It never helped, and often sent me into worse spins. I'm on the younger side (early 30s) where it's not so common. Thanks @ChessieCat for merging the threads.

2005-2009 18mg concerta on and off

2009-2013 ritalin and buproprion on and off; 2010 nortryptyline, amitriptyline for accident pain; 2014 Apr - lamictal 2 weeks until hives

2016 Mar...Sep -  st. john's wort, rhodiola, other supplements tried

2016 Nov...2017 Mar - began & increased citalopram (4 months) up to 30mg (11months)

2018 Feb - began taper, ~2.5mg/month, cutting tablets (3 months)

2018 May - 20mg, tried ~17.5mg but symptoms too strong, held at 20 (11 months)

2018 Nov - tried bupropion again, stopped within a couple months

2019 Apr - began ~5%/month taper from 20mg using dissolve in water and measure with syringe method

2020 Jan - no lorazepam for 1year; 0.5mg lorazepam average 3x/month since began citalopram; at most 3x/week

2021 June - 10mg. Race like the tortoise.

 

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  • 1 month later...
On 7/13/2011 at 1:21 PM, Altostrata said:

Well, at least the physical therapist will be paying attention to you. I've found they are very smart and empathetic.

why would a physical therapist be useful during withdrawl?

prozac 2008. do not know the dose. after a few weeks i had suicidal idealization and went to the hospital 4 days.

xanax .5 mg only took a few times

geodon started 2008. highest dose 180 mg

celexa 2008 40 mg

i tried so many different meds i cannot rrecall the name or dosage but all of them had severe side effects within a week and all were stopped

2008-present geodon. current dose 80mg

2008-present  celexa. current dose 40 mg

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  • 3 months later...

Does anyone else get constant (never ceasing) dizziness that gets worse when you move your eyes to the left or right side (without moving your head)? I’m totally freaking out. I am being seen by an ENT and we’re looking into things but I just wonder if maybe it’s WD because it started six weeks after my last dose of Prozac...? I know a lot of WD sufferers have dizziness but is it constant and what about the eye movement thing? Thanks.

Approx. 2010 - 2015 sertraline and Xanax (cannot remember doses)
2015 - 2020  CT’d sertraline/Xanax combo and went on fluoxetine (80mg) and Clonazepam (.5mg as needed) at Psych’s advice

September 2020 - bupropion (300mg) - took only 3 doses before getting horrible tinnitus and stopping CT

Week of 20th October 2020 - took 80mg Monday, 40 Tuesday, 20 Wednesday, nothing Thursday, and final 20 Friday (on doctor advice)

December 24 2020 - January 3 2021 - Reinstated Fluoxetine at 10mg (Dec 24th). Too much, tapered down to 5mg (Dec 28). Too much, tapered down to 2.5mg (Dec 31st). Still too much, tapered down to my current 1.25mg (Jan 3 2021).
Currently taking 2mg of Clonazepam. One at night and one in the morning. Fluoxetine (1.25mg) at night. Fish Oil (360mg 3x daily) and Magnesium (122mg a pill, 2 in the afternoon, 1 at night plus another 100mg in hearing sups for my tinnitus)

Also a bunch of other supplements recommended by my ENT in case some of my symptoms are not withdrawal related, so won’t list them here. As well as supplements to treat my tinnitus which is a toxic reaction symptom I received by being proscribed Bupropion while still on Prozac.

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I don’t know how to edit a post (UPDATE: I do now sorry it’s so simple I don’t know how I missed it) so I just thought I’d add this question I forgot to ask (I’ve been forgetting a lot lately).

 

I know everyone is different, but for how long have people’s dizziness symptoms lasted? I’m going on a month with constant dizziness that has left me almost an invalid. Is that normal? Does it ever stop? (I am seeing an ENT to see if other reasons are possible but the timing really seems like it’s the Fluoxetine withdrawal. It started exactly six weeks after I took my last Fluoxetine dose.)

Approx. 2010 - 2015 sertraline and Xanax (cannot remember doses)
2015 - 2020  CT’d sertraline/Xanax combo and went on fluoxetine (80mg) and Clonazepam (.5mg as needed) at Psych’s advice

September 2020 - bupropion (300mg) - took only 3 doses before getting horrible tinnitus and stopping CT

Week of 20th October 2020 - took 80mg Monday, 40 Tuesday, 20 Wednesday, nothing Thursday, and final 20 Friday (on doctor advice)

December 24 2020 - January 3 2021 - Reinstated Fluoxetine at 10mg (Dec 24th). Too much, tapered down to 5mg (Dec 28). Too much, tapered down to 2.5mg (Dec 31st). Still too much, tapered down to my current 1.25mg (Jan 3 2021).
Currently taking 2mg of Clonazepam. One at night and one in the morning. Fluoxetine (1.25mg) at night. Fish Oil (360mg 3x daily) and Magnesium (122mg a pill, 2 in the afternoon, 1 at night plus another 100mg in hearing sups for my tinnitus)

Also a bunch of other supplements recommended by my ENT in case some of my symptoms are not withdrawal related, so won’t list them here. As well as supplements to treat my tinnitus which is a toxic reaction symptom I received by being proscribed Bupropion while still on Prozac.

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  • Moderator

Nosummer,

 

Have you read through this topic?  There are a LOT of very detailed posts addressing dizziness issues and the possibility they are purely from w/d as opposed to other vestibular, anxiety, etc. issues.

 

Read through this and if you don't feel like you get a general sense, please let us know.  I think the answer is that w/d can upset the nervous system in ways that lead to dizzy sensations.  How long that may last is very variable.  There are plenty of people who have similar sensations who have never been on a psych med so it is clear that withdrawal is not the only way you can wind up with this condition.

 

It's not easy to deal with and the most frustrating thing is probably that the first line treatment for the dizziness is benzos, SSRIs and SNRIs.  Round and round.

 

Best,

 

Andy

Sertraline 50mg and Clonazapam .375mg from 2000 -- symptoms of dizziness Spring 2012

increased to .5 Clonazapam and 100mg Sertraline -- no improvement

Benzo microtaper from November 2012 to November 2014 (followed benzo sites "taper benzo first")

Started Sertraline taper in December 2014 cut by 25mg to 75mg; 62.5mg 1/1/15 and 50mg on 2/1/15

Held at 50mg through April 5 to use liquid 
Reduced dosage in 10% or less drops from 50mg to 25mg -- at single tablet of 25mg on 10/5/15

Transitioned to all liquid for accuracy while tapering -- Horrible insomnia -- back to 25mg liquid and held until October 1, 2016

10/16 -- 11/18 tapered very slowly to 10.6mg.  No real improvement and never really stable so updosed to 12.5mg (1/2 a pill) for convenience and long hold.

After 8+ months of holding with no noticeable improvement decided to add .4ml of liquid Prozac (about 1.5mg) to see if that improves the situation

Supplements, Magnesium, D3, Omega 3, curcumin, Valerian, 81mg Aspirin, L-Theanine, Vit. C,

 

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  • 3 weeks later...

Wondering, Squirrel, if the dizziness ever resolved?

Nardil 1985-1988
Paxil ?-1998

Effexor150  1998-November 2018 

Bupoprion150 2002-November 2018

Fluoxetine approximately 1/4 mg trial for WD symptoms December 2020. Took for 3 days but  it seemed to compound the dizziness significantly so I had to discontinue the trial. 

 

Current Medications: Levothyroxine, Acyclovir 

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  • 3 weeks later...

Wondering if those of you whom have suffered with long term dizziness could give a quick update, ie how long and if it has resolved. Thank you!

Nardil 1985-1988
Paxil ?-1998

Effexor150  1998-November 2018 

Bupoprion150 2002-November 2018

Fluoxetine approximately 1/4 mg trial for WD symptoms December 2020. Took for 3 days but  it seemed to compound the dizziness significantly so I had to discontinue the trial. 

 

Current Medications: Levothyroxine, Acyclovir 

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  • 4 weeks later...
  • Moderator Emeritus

  

3 hours ago, cathnz said:

There is a great book and fb support site called Rock Steady which supports those with tinnitus and vertigo.

 

 MISSION ACCOMPLISHED:    13 November 2021 -  0mg Pristiq      

Woohoo!!!  Finally off Pristiq   

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

My full tapering program     My Intro (goes to my tapering graph)    My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.  I do not provide tapering advice via PM.  Please post questions in your Introduction topic.  Please do not tag me for any reason.  I am an unpaid volunteer and assist members if I am able to and when I have the time.  Thank you for your understanding.

Mid Nov 2021 changed to low carb diet due to diabetes & cholesterol.  Lost 1/16 body weight, BP has reduced a lot. 

Links to my exercises and weights.  I also do 3 x 5.5 min with HIIT on exercise bike with 20 secs/min as fast as I can cycle.

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  • Moderator

Yes, as Chessie said, for any of you not familiar with Joey Remnyi I would strongly suggest you check her out.  Her website is Seeking Balance:

 

https://www.seekingbalance.com.au/

 

She has a ton of free stuff, YouTube videos, etc., and the book is really a good dive into neuroplasticity and how to heal from what she calls "Not Quite Right" feelings.

 

Worth checking out.

 

Best,

 

Andy

Sertraline 50mg and Clonazapam .375mg from 2000 -- symptoms of dizziness Spring 2012

increased to .5 Clonazapam and 100mg Sertraline -- no improvement

Benzo microtaper from November 2012 to November 2014 (followed benzo sites "taper benzo first")

Started Sertraline taper in December 2014 cut by 25mg to 75mg; 62.5mg 1/1/15 and 50mg on 2/1/15

Held at 50mg through April 5 to use liquid 
Reduced dosage in 10% or less drops from 50mg to 25mg -- at single tablet of 25mg on 10/5/15

Transitioned to all liquid for accuracy while tapering -- Horrible insomnia -- back to 25mg liquid and held until October 1, 2016

10/16 -- 11/18 tapered very slowly to 10.6mg.  No real improvement and never really stable so updosed to 12.5mg (1/2 a pill) for convenience and long hold.

After 8+ months of holding with no noticeable improvement decided to add .4ml of liquid Prozac (about 1.5mg) to see if that improves the situation

Supplements, Magnesium, D3, Omega 3, curcumin, Valerian, 81mg Aspirin, L-Theanine, Vit. C,

 

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  • 6 months later...

@AltostrataHi there! I recently got off of an antispasmodic and antiinflammatory prescribed by my GI dr before I realized tapering off lexapro caused my stomach issues. I was on them for months and before I did a cold turkey for 6 days and crashed. I gradually dropped them and finally got rid of the last antiinflammatory called mesalamine. Ever since I dropped it, my body inflammation has been so awful and I've been dizzy and cannot focus on objects, especailly if Im looking outside. Could this be a side effect of a med that was helping WD symptoms short term but prevents me from healing long term? Is it something I'll have to wait out like everything else? Could me being overly stressed cause the dizziness and out of body feeling? My illness is stressing me out because of my stomach issues I have with lots of bacteria overgrowth that I cant heal with supplements bc I cant tolerate them and my dad is dying. 

-2014: Lexapro/escitalopram 10 mg, 2015-2021: Lexapro/escitalopram 20 mg

-10/2020-3/2021: decreased 20 mg to 15 mg, 1 mg a month

-4/2021: decreased to 10 mg, held for 11 days, 4/2021: decreased to 5 mg, held for 8 days

-4/2021: 3-6 days cold turkey lexapro, withdrawal symptoms so reinstated 2.5 mg 

-omeprazole taper: 9/2021 cut 25%, 10/20/21 25% cut, 12/1/21 25%, 12/28/21 25% cut, (9/36 beads of 40 mg)

-11/2020 omeprazole 20 mg, 3/2021: omeprazole 40 mg,

-Nordic Naturals Ultimate omega 3 fish pill: 1280 mg

-montelukast: 10 mg dailyzyrtec: 10 mg daily 

-3/20/2021-7/25: mesalamine 1.2 GM, 3 times a day - dropped

-birth control: Trilinyah 2014- 2/1/2021 quit cold turkey middle of pack 

7/16/2021-8/1/2021 Quicksilver Liposomal multivitamin liquid: biotin, zinc, Vitamins A, C, D E, K, Niacin,, Thiomine, Riboflavin,Vitamin B6, B12, 7/16/2021- 8/25/2021 - boswelia complex (tumeric. ginger, celery) - 2 a day - dropped

7/16/2021 - probiophage probiotic - dropped 

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20 hours ago, Sicksagittarius said:

@AltostrataHi there! I recently got off of an antispasmodic and antiinflammatory prescribed by my GI dr before I realized tapering off lexapro caused my stomach issues. I was on them for months and before I did a cold turkey for 6 days and crashed. I gradually dropped them and finally got rid of the last antiinflammatory called mesalamine. Ever since I dropped it, my body inflammation has been so awful and I've been dizzy and cannot focus on objects, especailly if Im looking outside. Could this be a side effect of a med that was helping WD symptoms short term but prevents me from healing long term? Is it something I'll have to wait out like everything else? Could me being overly stressed cause the dizziness and out of body feeling? My illness is stressing me out because of my stomach issues I have with lots of bacteria overgrowth that I cant heal with supplements bc I cant tolerate them and my dad is dying. 

 

I have no idea. You sound very ill with the stomach issues. I cannot help you with general medical questions.

 

I am sorry your dad is dying.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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  • 4 months later...
On 6/11/2017 at 3:54 AM, Itzakadoozee said:

I'm in the exact same boat as you with this lexapro WD. Dizziness, depersonalization, and detachment. Hang in there!

Hi, I know this post is a few years old. Did this improve over time? I am at week 7 with Celexa WD/12 weeks for Prozac, and the dizziness, vertigo, depersonalization and detachment are pretty bad right now. I am fighting the urge to go back on something just to stop it, but really don't want to. Any advice is welcomed, thank you!

2001 - 2018 - 40 mg Prozac

2018 - 2020 - 40 mg Zoloft

2020 - Jan 40mg Celexa / June 40mg Zoloft /July 10mg Effexor /Aug 10mg Lexapro /Sept 20mg Lexapro/ Dec 40mg Lexapro

2021 - July 40mg Zoloft /  Sept 40mg Prozac with ramp(worked up to 40 mg dosage) / Oct 40mg Celexa / Nov 19 stopped Celexa CT

Other medications - 20mg Propanolol 2x day, 0.5mg Lorazapam as needed 

Supplements - multivitamin, Tumeric, Omega 3

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Boaty/Dizzy, PPPD

 

Has anyone had the symptom of a constant boaty, dizzy, swaying,  feeling, even when lying down?  In fact, it’s seems most noticeable when lying down or forced to be still.  I feel like I’m on a waterbed constantly. It’s not light headed. My head feels very heavy. In fact, lately it’s exhausting holding it up so I am propped in an awkward position all the time and my neck is cricked and deteriorating because of it.  It’s horrific. Did anyone have it go away ?  

 

I have had this since 1996, several years after I came off anti depressants and Benzo’s the first time, if I recall correctly.  I don’t recall having it in my teens or early 20’s.   I managed to deal with it by only driving to the store or having people drive me to work or sitting in the back of a facility so I could lean on a wall during meetings or concerts or graduations or family dinners etc until about 2018 when it became so debilitating I gave up.  It has ruined my life. I have given up all goals and missed out on everything especially the last few years. 
 

I was told it was my original anxiety getting worse or because I didn’t want to increase my dose of whatever AD I was on, always wanting to stay as low as possible.  Then I thought it was benzo related, so I tapered that two years ago and still no relief.  I’m afraid it is something called PPPD Persistent Perceptual Postural Dizziness of which the cure is, you guessed it, anti depressants.  So if it’s much worse now than before the tapers started years ago, was the AD providing some relief and the tapers make it worse or is it caused by the constant state of medication? 

 

Edited by ChessieCat
added topic title before merging with existing topic

1984 anafranil for 6 months

1993-1994  klonopin/Zoloft 

1997-2018 Zolft or Paxil or Lexapro or Prozac and Klonopin or Xanax 

2019—Mirtazipine, Luvox, Klonopin 

2019 Tapered Mirtazipine and Klonopin 

2020-2021—Luvox taper from 100 mg dizzy, boaty, tinnitus, disabled, hopeless 

Jan 2022 Luvox liquid 16.5 mg 

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On 6/28/2020 at 2:21 PM, Altostrata said:

While vertigo can be a withdrawal symptom, I recently had a bout of vertigo that seems to be due to a common inner ear problem that can come and go, especially in older people.

 

I did these exercises and it went away over about a week.

 

 

 

I already had bppv prior to stopping meds. I did this maneuver to try to help it during withdrawal, and it actually caused my pppd/dizziness/motion sensitivity. I lose my balance. I havent been able to drive since the day before I did that maneuver (8/2021).

Celexa (10-40mg) 2003-2011

Celexa (40mg) + Wellbutrin (75mg-150mg) from 2011-2014

Lexapro (20mg) + Wellbutrin (150mg XL) from 2014- 03/2017

Lexapro (20mg) + Wellbutrin (150mg XL) + Buspar (5-15mg) from 03/2017-2018. Added carvedilol 3.125mg BID in 2018.

Saw psych for first time. Switched Lexapro to Zoloft (25mg-150mg) 12/2020-4/2021

Added lamotrigine (12.5mg SID) for 2 weeks in 2/2021

Discontinued Buspar 2/2021

Switched Zoloft (100mg) to Paxil (20mg) 3/2021-4/29/21. Added Abilify (2.5mg) 4/19/21-4/28/21. Told to discontinue all meds immediately on 4/29/21 due to concern for serotonin syndrome. 

Seroquel (12.5mg) 5/19/21-5/23/21. Prozac (10mg) 6/22/21-6/30/21 (different psych). Pristiq er (50mg) 8/20/21 (ER psych), adverse reaction. 8/25/21- klonopin (0.25mg BID)

Trintellix (5mg) 8/31/21-9/22/21 (primary provider). Lexapro (5mg) 9/23/21-10/8/21 (new and current psych). Lexapro 2.5mg 10/9/21-11/5/21. Began taper 11/6/21, 0.5mg every 4 weeks. 1mg 1/1-1/7, 0.5mg 1/8-1/14

 

medtimeline.docx protracted withdrawal timeline.docx

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