☼ Junglechicken

[Frogie]

47 minutes ago, Junglechicken said:

Update:

 

He is walking around the ward, his heart monitor is off and he should be discharged tomorrow if the Doctors are happy.

 

Thanks guys xxxx

JC:

 

Great news. One less thing you have to think about.

 

Ill be thinking of you.

 

Take care,

Frogie xx

[Junglechicken]

Started "Couch to 5k" run/walk training yesterday.

 

Feeling a bit fatigued today (which I hate), and it massively revved up by metabolism as I couldn't stop eating.  Experienced a hypoglycaemic event around 5pm which was horrible.

 

Hey ho, we solider on!

 

Dad should be discharged today, the doctor kept him in another night.

 

JC xxx

 

 

[Junglechicken]

Forgot to mention, I have this tinnitus/electricity sensation in my head.....its been going on for the past 2 days.

 

Maybe I'm trying to fight off a virus.....my mother had a horrendous cough which my aunt caught, and hubby was feeling drained a couple of days before going back to work.  I've also been experiencing fatigue.

 

Fatigue is always concerning, as (in my understanding) it represents underlying illness 

[apace41]

8 minutes ago, Junglechicken said:

Fatigue is always concerning, as (in my understanding) it represents underlying illness

 

Based on that, JC, I think you can safely characterize the vast, vast, vast majority of members on SA as having "underlying illness."

 

 

Best,

 

Andy

[Junglechicken]

Thanks for the reality check Andy 

 

Its more that its not a "norm" for me to have fatigue.

 

However, I have been very active in the past week, and started running so maybe my CNS is struggling.....as well as viruses going around.

 

Will see what my ND has to say about.

 

Best,

JC 

[apace41]

4 minutes ago, Junglechicken said:

Its more that its not a "norm" for me to have fatigue.

 

I think this is an indication that you have largely stabilized nicely on your dose and that your sleep is fairly good and constant.  That is really a very good thing.  

 

I think the majority of people dealing with this whole withdrawal process are getting subpar (and often significantly subpar) sleep  which is a recipe (of course) for feeling fatigued all th time.  Add in the pain and anxiety and other alerting system issues that come with the process and it is easy to see why people are tired a lot.

 

Glad you are not usually!

 

Best,

 

Andy

 

 

[Junglechicken]

Another much needed "reality" check - thank you Andy 

 

How have you been? How is your healing coming along?

 

Best,

JC

[apace41]

23 minutes ago, Junglechicken said:

How have you been? How is your healing coming along?

 

I won't clutter up your thread with my stuff, even though you sweetly asked, but it's been a struggle over the past several weeks and months. As a result I've been holding the past month to see if I can stabilize a little bit to continue my taper.

 

Thank you for asking. 

 

Best,

 

Andy

[Junglechicken]

Andy, feel free to clutter my thread any time you like.

 

I should have read your signature, and note that you had alcohol some months back on vacation which threw your CNS out.  Ughhh!

 

I'm sorry to read that you've not had any improvement either........

 

This is likely a dumb question, but have you tried the alternative medicine route?  Given your knowledge of all things WD, I'm guessing you have.

 

Best,

JC

[apace41]

45 minutes ago, Junglechicken said:

This is likely a dumb question, but have you tried the alternative medicine route?

 

There are no dumb questions, JC, especially when you are trying to help another.  I appreciate your inquiry. 

 

I have been working with a functional medicine practitioner for quite a while and we have identified some things that could well be part of the mix of things I have been feeling.  The challenge, as I suspect you know, is to figure out (a) if any of these things are the source of the issue or whether it is all withdrawal-driven and (b) to try treating the issues that have been uncovered without exacerbating the withdrawal symptoms.  Not an easy balance to achieve.

 

By way of example (and I do want to keep it short on your thread), I have MTHFR mutations that might make me something of a :"poor methylator."  Good to know.  What's the fix?  Add B complex and expecially methylfolate to the equation.  Problem?  B vitamins rev up my system and trigger withdrawal symptoms.  So, better to take some B and suffer more withdrawal or skip the B and realize I may not be methylating well (which can impact mood among other things).  There are any number of similar situations I can point to in my treatment that make me switch day to day as to which course I should pursue.  Very challenging.

 

Thanks again for your interest, JC.

 

Best,

 

Andy

[Junglechicken]

On ‎15‎/‎08‎/‎2017 at 5:25 PM, apace41 said:

 

There are no dumb questions, JC, especially when you are trying to help another.  I appreciate your inquiry. 

 

I have been working with a functional medicine practitioner for quite a while and we have identified some things that could well be part of the mix of things I have been feeling.  The challenge, as I suspect you know, is to figure out (a) if any of these things are the source of the issue or whether it is all withdrawal-driven and (b) to try treating the issues that have been uncovered without exacerbating the withdrawal symptoms.  Not an easy balance to achieve.

 

By way of example (and I do want to keep it short on your thread), I have MTHFR mutations that might make me something of a :"poor methylator."  Good to know.  What's the fix?  Add B complex and expecially methylfolate to the equation.  Problem?  B vitamins rev up my system and trigger withdrawal symptoms.  So, better to take some B and suffer more withdrawal or skip the B and realize I may not be methylating well (which can impact mood among other things).  There are any number of similar situations I can point to in my treatment that make me switch day to day as to which course I should pursue.  Very challenging.

 

Thanks again for your interest, JC.

 

Best,

 

Andy

 

Hi Andy,

 

Apologies for the late reply......and yes I "get" your conundrum.  

 

Out of interest, has your functional medicine practitioner encountered many cases like yours?  Are they used to dealing with patients who have been highly sensitised by AD use?

 

So with your healing journey, there seems to be a lot of fine tuning going on to minimise your reactions to certain supplements.  I hadn't heard of :"poor methylator."  for instance. 

 

Our goal is to feel "well" again, and it is very challenging when one's CNS has been so sensitised, as it effects all "systems" that help us function as humans.

 

I'm still working with an ND, and am trying to get my gut back on track.  Apparently I have to avoid FODMAPs now!

 

And so it goes on.............

 

Best,

JC

 

 

 

[apace41]

11 hours ago, Junglechicken said:

Out of interest, has your functional medicine practitioner encountered many cases like yours?  Are they used to dealing with patients who have been highly sensitised by AD use?

 

I think the answer to this is "no".  He has some familiarity and acknowledges the potential harm of the meds, but I don't sense he's seen many patients with this complaint.  In fact, I told him that if he were to advertise on this basis he could probably double his practice!

 

11 hours ago, Junglechicken said:

Our goal is to feel "well" again, and it is very challenging when one's CNS has been so sensitised, as it effects all "systems" that help us function as humans.

 

Well said.  The CNS affects everything so when it is compromised so are we.

 

11 hours ago, Junglechicken said:

Apparently I have to avoid FODMAPs now!

 

I dealt with a SIBO diagnosis so I was in the low FODMAPs game for a while.  HATE that diet.

 

Best,

 

Andy

[Junglechicken]

Still feeling completely wiped out/exhausted, like I'm fighting a virus.  My body is telling me at midday that it wants to sleep???

 

Maybe I'll just give in, stop fighting it, and let it sleep.  The walk/running I started on Monday isn't helping.

 

Waiting to hear back from ND for advice.

 

[AliG]

Hey JC. I have found through this process that you have to respect the long term healing effect and also listen very closely to the body. I know you are doing that to a high degree. Don't give that up.

 

I also found that when I stopped fighting everything - things settled somewhat. When you surrender to the process - it all becomes so much easier.

 

You will get there, but in this toxic world it sometimes takes an inordinate amount of time to discover the cause of some of these health problems. It's essentially the food /drugs making us ill and we have to basically learn how to reverse that and somehow get back to health. I'm experimenting with juicing and juice fasts  I will let you know how it goes.

[Frogie]

Hi JC:

 

I know exactly how you feel.

 

Just stopped by to say hi, and hope you feel better soon.

 

I wrote on my thread if you want to stop by.

 

Have a great weekend.

 

Take care,

Frogie x 

[Junglechicken]

Hey Ali and Frogie,

 

Thanks for stopping by.

 

I have been "sleeping for England", lol!

 

Seriously, I'm not used to sleeping this much.........am still far from 100% but there you go.  Seem to have loud tinnitus too.

 

Ali - Yes, I would be interested to know how your juicing goes so definitely keep me posted.  We bought a "spiralizer" (not the same thing at all), and it doesn't work very well! 

 

Frogie - I saw on your thread you were down with a virus as well  That is sh*tty, especially after your dental procedures 

 

Hey ho, MORE sleep is scheduled for today I guess.

 

Take care everyone!

 

JC xxx

[Junglechicken]

Still experiencing these God awful headrushes / dizziness.............Cannot put my finger on what the cause is.

 

They came on +/- a week before my TOTM, and are still happening.  Is this hormonal anyone??

 

Also have wondered if they're an anxiety symptom, though never had anything like this.

 

Do I just remain in the "expect the unexpected camp" or is this peri-meno??

 

Thanks guys!

 

JC xxx

[Flowers]

Hi JC

 

Didn't experience head rushes/dizziness in peri menopause but have in WD. 

 

Although. you mention tinnitus - could it be an ear thing going on?

 

Anxiety plays havoc with our brain and brings all sorts of symptoms tricking us into thinking we have an illness. It is so crap isn't it?!

 

Hope it goes away soon. 

 

Love and hugs

 

Flowers xxx 

 

 

[Junglechicken]

11 hours ago, Flowers said:

Hi JC

 

Didn't experience head rushes/dizziness in peri menopause but have in WD. 

 

Although. you mention tinnitus - could it be an ear thing going on?

 

Anxiety plays havoc with our brain and brings all sorts of symptoms tricking us into thinking we have an illness. It is so crap isn't it?!

 

Hope it goes away soon. 

 

Love and hugs

 

Flowers xxx 

 

 

 

Hi Flowers,

 

Thanks for chiming in 

 

I just have no idea any more.......am seeing my ND on Thursday so will see what she has to say. 

 

It could well be anxiety, as my father's condition is terrible.  When he was in hospital last week, he refused to have a blood transfusion (he had lost > 3 pints of blood).  In his right mind, he would have done what he was told, but its the Parkinsonism messing with his mind, and he was getting angry/abusive with the doctors and nurses (completely unlike him).  So it continues to be a waiting game.

 

Needless to say, I am still feeling very fatigued, and yes, there is the tinnitus (much louder).

 

Lets just say, I feel creeky and old 

 

Love and hugs,

JC xxx

 

[Flowers]

Awwwww big hugs JC.

 

Your father's deteriorating health is so tough on you.

 

Hard to see someone you know and love become a different person.

 

Hope your ND has a solution for your own health issues.

 

Flowers xxx

[Junglechicken]

Came across this website "Calmclinic", listing anxiety symptoms.....its a good one:

 

http://www.calmclinic.com/anxiety-guide/symptoms

[Junglechicken]

Struggling with anxiety/stress the last couple of weeks since being at my parents.

 

I have been feeling fatigued (which is unlike me), and various other symptoms have shown up like louder tinnitus, head rushes and dizziness.

 

Although I'm struggling to come to terms with my father's life coming to an end, it is clearer to me that my parents indulged each and every of their whims, and ended up with nothing to show for it.

 

They also lied a lot to try to cover up their mistakes.  However, the truth always comes out in the end.

[Flowers]

That is quite a list isn't it? A lot of symptoms seem to be WD symptoms too so very hard to define. I guess when our CNS is under any stress due to WD and/or anxiety these symptoms can present themselves.

 

Any undue stress I get in WD flares up symptoms big time so I try to stay on an even keel. Easier said than done!

 

Try not to let your parents mistakes and the results thereof rub off on you. You have to protect yourself from too much stress right now.

 

Try and be peaceful if you can.

 

Flowers xxx

[Junglechicken]

Hi Flowers,

 

Yes it is. 

 

My therapist was saying how many of my "WD" symptoms seemed to be anxiety/stress related, and so didn't buy-in to the "WD" thing at all.  They likely do fuel each other too so it is difficult to pinpoint which is which.

 

Have had gut pain all day  don't think its my TOTM as day 3 now.

 

Hey ho, no I'm not dwelling on my folks mistakes but something will dawn on me and then I'll think about it.........there is a lot of accepting to do Flowers I guess.

 

Hugs,

JC xxx

[apace41]

JC,

 

This is one of the unfortunate truths about this crazy condition:

 

24 minutes ago, Junglechicken said:

They likely do fuel each other too so it is difficult to pinpoint which is which.

 

There is no doubt that the anxiety gets fueled by the symptoms and that, in turn, exacerbates the anxiety.  Some of us have it really bad and identify ourselves a having "health anxiety" or "hypochondria" but the problem exists for all.  So, we are left not knowing what is "real" and what is "withdrawal."  For those of us that have health anxiety, this makes for a huge challenge because it creates even greater uncertainty and an even greater spiral of anxiety.

 

I am in the middle of a bad wave of negative thinking on that front so I am all too familiar.

 

Hope things lift for you soon.

 

Best,

 

Andy

[Junglechicken]

Andy,

 

I "hear" you 100%, and sorry that you're in a bad place at the moment.

 

Are we going "crazy" or aren't we?! 

 

Anxiety makes any bodily "sensations" MUCH worse, and that is what is suggested in that anxiety article and list of symptoms.

 

I'm at the stage, where I really don't know if I'm in a wave or not......maybe I am with these head rushes and dizziness, gut pain......as there is a definite "trigger" - my father/parents.

 

These are definitely a "NEW" symptom to add to the list of "Been there done that, worn the tee shirt".

 

Best,

JC

[Junglechicken]

NOT HAPPY :0(

 

My gut has been off all day - bad GI distress with multiple trips to loo (no runs).

 

Still experiencing head rushes / dizziness........wonder if this is part of then"virus"???

 

 

 

 

[Flowers]

What a rotten day for you JC.

 

Do you feel like you have a virus? Do you have a fever?

 

You have said recently you have been very tired so maybe you were coming down with something.

[Junglechicken]

Hi Flowers,

 

Yes, its been rough...........I don't have a fever, but I think it could be a virus linked to the fatigue.

 

I don't have the runs, but uncomfortable gut in general.

 

Also, I emailed my poor ND earlier and hope she might have an idea about what's going on.

 

Going back to lie on the sofa, lol 

 

JC xxx

[Flowers]

Sounds like it could be viral - poor you.

 

I have been on the sofa all day too with this stinking, foaming cold virus. Have got through 2 large boxes of mansize tissues today! 

 

Viruses who needs them in WD! Grhhhhhh!

 

Flowers xxx

[Junglechicken]

Flowers,

 

Oh woe is us!

 

Giving you a hug from my sofa, lol 

 

Crazy face because well....you know why!

 

Love, JC xxx

[Junglechicken]

ND reckons its either a stomach bug, or GI distress caused by stress (easy to forget there is stress involved).

 

She recommended increasing GiSol and also to take charcoal tablets.

[Frogie]

3 hours ago, Junglechicken said:

ND reckons its either a stomach bug, or GI distress caused by stress (easy to forget there is stress involved).

 

She recommended increasing GiSol and also to take charcoal tablets.

Hi JC:

 

Looks like we are both in the same boat. I have the same thing as you.

 

Hope you feel better soon.

 

Take care,

Frogie xx

[Junglechicken]

6 hours ago, Frogie said:

Hi JC:

 

Looks like we are both in the same boat. I have the same thing as you.

 

Hope you feel better soon.

 

Take care,

Frogie xx

 

Hey Frogie,

 

Gotta love (NOT) these wretched "superbugs" going around the world.

 

Yes, feeling a bit better today.......how are you feeling?

 

Haven't had to run to the loo today so I think the worst is over.

 

ND said a lot of her patients reported similar symptoms so it was a virus.

 

Hope you're feeling better today.

 

TC,

JC xxx

[Frogie]

44 minutes ago, Junglechicken said:

 

Hey Frogie,

 

Gotta love (NOT) these wretched "superbugs" going around the world.

 

Yes, feeling a bit better today.......how are you feeling?

 

Haven't had to run to the loo today so I think the worst is over.

 

ND said a lot of her patients reported similar symptoms so it was a virus.

 

Hope you're feeling better today.

 

TC,

JC xxx

Hi JC:

 

I think the worst is over for me too. Not running to the loo either. And I ate a turkey sandwich and it actually tasted good.

 

Glad you are doing better too!

 

Take care,

Frogie xx

[Junglechicken]

Great news Frogie!!

 

Yup, we can enjoy our food again, lol 

 

TC,

JC xxx