☼ Junglechicken

[Junglechicken]

1 hour ago, Scorpio said:

Absolutely tomorrow will be better,  positive thinking, thanks Jc my positive thinking has been disappearing down the proverbial drainpipe again today. Will keep repeating those words. 

 

You have done  so well with all that has happened these past months and flu on top to cope the way you have. 

 

Oh me too Scorpio, its a struggle.  Mental state varies from one day to the next........

 

Thanks for the words of encouragement, I think you have done really well too - we're still here after all, and getting on with life even though it doesn't feel like we are.

[Frogie]

JC:

 

Glad to see you are doing and feeling better.

 

Do you know or have ever had akasthisia? I have it in my knees, and just want to dig my knees off my body. If you know anything about it, I would love to hear your take on it.

 

You are so knowledgeable about things I thought I would ask you.

 

Thanks for your input.

 

Take care,

Frogie xx

[Junglechicken]

Just now, Frogie said:

JC:

 

Glad to see you are doing and feeling better.

 

Do you know or have ever had akasthisia? I have it in my knees, and just want to dig my knees off my body. If you know anything about it, I would love to hear your take on it.

 

You are so knowledgeable about things I thought I would ask you.

 

Thanks for your input.

 

Take care,

Frogie xx

 

Hey Frogie,

 

Yes, I had it in 2016 when we moved back to the UK from Canada.

 

In a nutshell it was "hell"..........my weight plummeted and I couldn't eat but had to keep moving.  I was terrified of being in my own skin.

 

I think it was caused by a severe chest infection, huge stress of the move, probably erratic medication times due to timezone change (even though I tried to systematically move the dose time by an hour each day to bring in line with UK time).

 

It lasted 3 months, and was very scary.

 

My guess is, seeing a psychiatrist put an end to it as I had been having multiple stress-related symptoms which scared the hell out of me.

 

This isn't very helpful, but its as though the CNS is on steroids.

 

TC,

JC xxx

[Frogie]

8 minutes ago, Junglechicken said:

 

Hey Frogie,

 

Yes, I had it in 2016 when we moved back to the UK from Canada.

 

In a nutshell it was "hell"..........my weight plummeted and I couldn't eat but had to keep moving.  I was terrified of being in my own skin.

 

I think it was caused by a severe chest infection, huge stress of the move, probably erratic medication times due to timezone change (even though I tried to systematically move the dose time by an hour each day to bring in line with UK time).

 

It lasted 3 months, and was very scary.

 

My guess is, seeing a psychiatrist put an end to it as I had been having multiple stress-related symptoms which scared the hell out of me.

 

This isn't very helpful, but its as though the CNS is on steroids.

 

TC,

JC xxx

My weight isn't changing unfortunately lol...

 

It's just in my knees. It's like I want to just take my knees off my body. It is *hell* and I guess I just have to live with it?

 

I wondered if it was stress related. With the holidays, not seeing my granddaughter for Christmas, the remodeling. And then the weekend being away from Brownie.

 

Oh my, it's going to drive me nuttier than I already am. Maybe it will start to settle down soon, I hope.

 

I was wondering if my CNS is trying to heal a little and it picked my knees.

 

Thanks for your help.

 

Take care,

Frogie xx

[Junglechicken]

Struggling with bladder sensitivity today.....knew it the moment I woke up and pee'd that I was in for a rough day 

 

God I HATE hormonal fluctuations, its grim.

 

I have done 2 dip stick tests today with no blood or proteins present.

 

Just hope this particular "episode" doesn't last long.

[Scorpio]

Ooh I feel your pain, that is no fun and I hope it soon disappears as quickly as it came. Any consolation all my symptoms have made an unwelcome return too. 

[Junglechicken]

1 hour ago, Scorpio said:

Ooh I feel your pain, that is no fun and I hope it soon disappears as quickly as it came. Any consolation all my symptoms have made an unwelcome return too. 

 

I think it was triggered by cycling 

 

We're sailing in the same boat Scorpio!

[Junglechicken]

I have a UTI, and the irony is, it was triggered by cycling to the doctor's surgery.

 

Back to the doctor shortly to get a prescription (if necessary).

 

We signed our contract doc's today for the house purchase!

 

Off to my hubby's work do this evening.......

 

Flat-out........

[Frogie]

23 minutes ago, Junglechicken said:

I have a UTI, and the irony is, it was triggered by cycling to the doctor's surgery.

 

Back to the doctor shortly to get a prescription (if necessary).

 

We signed our contract doc's today for the house purchase!

 

Off to my hubby's work do this evening.......

 

Flat-out........

Sorry you have another UTI. I hope you get on an antibantibiotic and get rid of it!

 

Congrats on the house! How exciting.

 

I'm having such bad akasthisia in my knees it's not funny.

 

Get to go get glasses next week hopefully, so maybe no more headaches!

 

Take care,

Frogie xx

[Junglechicken]

1 hour ago, Frogie said:

Sorry you have another UTI. I hope you get on an antibantibiotic and get rid of it!

 

Congrats on the house! How exciting.

 

I'm having such bad akasthisia in my knees it's not funny.

 

Get to go get glasses next week hopefully, so maybe no more headaches!

 

Take care,

Frogie xx

 

Looks like I'll have to be referred for a cystoscopy  for an IC diagnosis.

 

If the urine sample tests negative then I'll have to go for the cystoscopy.

 

Ughhh!

 

Ahhh, so you now know why you were getting the headaches Frogie, because your glasses not being right, well at least you know.  Hope that knocks it on the head (excuse the pun!).

 

Off to hubby's work party tonight (not in the mood, needless to say).

[Frogie]

4 minutes ago, Junglechicken said:

 

Looks like I'll have to be referred for a cystoscopy  for an IC diagnosis.

 

If the urine sample tests negative then I'll have to go for the cystoscopy.

 

Ughhh!

 

Ahhh, so you now know why you were getting the headaches Frogie, because your glasses not being right, well at least you know.  Hope that knocks it on the head (excuse the pun!).

 

Off to hubby's work party tonight (not in the mood, needless to say).

Sorry to hear that. I hope everything turns out ok.

 

I hope it's my glasses that are giving me headaches. Starting there, then I don't know.

 

Have fun at the party, even though you don't feel well.

 

Take care,

Frogie xx

[Junglechicken]

6 minutes ago, Frogie said:

Sorry to hear that. I hope everything turns out ok.

 

I hope it's my glasses that are giving me headaches. Starting there, then I don't know.

 

Have fun at the party, even though you don't feel well.

 

Take care,

Frogie xx

 

Thanks Frogie, likewise with the headaches.

 

I'm taking painkillers and cystitis sachets so should last the course.

 

TC,

JC xxx

[Frogie]

2 minutes ago, Junglechicken said:

 

Thanks Frogie, likewise with the headaches.

 

I'm taking painkillers and cystitis sachets so should last the course.

 

TC,

JC xxx

Good luck! Keep me updated.

 

Take care,

Frogie xx

[Scorpio]

Hi junglechicken 

 

congratulations on your house,  what good news. Hope you enjoy the party tonight. 

 

Hope you have  the necessary medication now and soon start to feel better, I had never heard of cycling causing it - you must have been going fast. 

[Junglechicken]

16 hours ago, Scorpio said:

Hi junglechicken 

 

congratulations on your house,  what good news. Hope you enjoy the party tonight. 

 

Hope you have  the necessary medication now and soon start to feel better, I had never heard of cycling causing it - you must have been going fast. 

 

Thanks Scorpio,

 

I went to bed at 10pm Scorpio, but a certain allebriated hubby came back at 1:45am so got that jet lagged feeling, lol!

 

Have been taking cystitis sachets, and pain killers............if I get diagnosed with "IC" then it'll be a case of managing it. 

 

I think its an autoimmune disease 

 

 

[Scorpio]

Hi jc

oh I will keep everything crossed it is not ic and something easier to treat rotten thing to have. I hope the pain killers are helping. 

 

‘’Well at least your husband will be too delicate to want to do much today, he obviously enjoyed himself and well done for managing to go and enjoy it until 10. You have obviously pushed yourself a lot over the past few days again   Take it easy today and hopefully those miserable symptoms will ease for you. 

[Junglechicken]

3 minutes ago, Scorpio said:

Hi jc

oh I will keep everything crossed it is not ic and something easier to treat rotten thing to have. I hope the pain killers are helping. 

 

‘’Well at least your husband will be too delicate to want to do much today, he obviously enjoyed himself and well done for managing to go and enjoy it until 10. You have obviously pushed yourself a lot over the past few days again   Take it easy today and hopefully those miserable symptoms will ease for you. 

 

Thanks Scorpio 

 

Am feeling rotten at the moment, a multiple of symptoms have me in their grips.

[Scorpio]

Hi jc

 

we are in the same boat, I have a rebound of the flu,  my husband started with it again Thursday although not too bad and I started yesterday. Back to coughing most of the night and that horrible sore throat and feeling like the ghost of Christmas past today. 

 

Hope your multi symptoms die down. We both need to treat ourselves like glass today I think. 

[Junglechicken]

2 hours ago, Scorpio said:

Hi jc

 

we are in the same boat, I have a rebound of the flu,  my husband started with it again Thursday although not too bad and I started yesterday. Back to coughing most of the night and that horrible sore throat and feeling like the ghost of Christmas past today. 

 

Hope your multi symptoms die down. We both need to treat ourselves like glass today I think. 

 

Oh no Scorpio, that's awful, really sorry you're suffering again

 

You're immune system is struggling ....... have you been flat-out doing things which is why it came back?  

 

Agree re: the glass analogy....... 

[Scorpio]

Hi jc

 

I think it’s a mixture of making myself do more than sensible, feeling a little better over the past couple of weeks even though slow recovery of flu, and pushing too hard again. Same old story and of course having my grandson for the past three days. Although my husband is under par with it too but he has a lot more fighting spirit than me. I just go down so quickly. Have taken echinacea today in the hope it will start helping the immune system. I was worried in case it bit me but apart from feeling lousy so far so good. Drinking lemon and honey, salt gargle I am just dreading it turns into an infection again and faced with the nightmare of antibiotics.   

 

Hope you are feeling a little better. 

[Junglechicken]

The fear of infection (chest) has always lurked in the background for me too.

 

Having an upper respiratory infection, which then descends to the lungs.......this kind of thing is immune-system related and also genetic.

 

Thankfully I escaped the bronchitis/chest infection curse, and hope it doesn't catch me later in the year.

 

You're doing all the right things, so its a case of resisting doing too much and resting so that your body has a chance to fight it so you can recover quicker.

[Junglechicken]

On ‎15‎/‎11‎/‎2017 at 7:02 PM, joy2730 said:

JC

 

I don't normally post on your thread, but I read it, I would just like to mention that I read somewhere than cystitis/interstitial cystitis can be a withdrawal symptom.  Many years ago when withdrawing from dothiepin I had really bad chronic cystitis which was sometimes an infection and sometimes not.

 

On a practical level, and I have no idea if this is relevant to you, I was told to pass urine within 20 minutes of sexual intercourse as a preventative measure against infection.  It actually seemed to help me.

 

However, you are under a lot of stress with all your interviews and that can cause both bladder and bowels to over react.

 

I also bought something from Holland and Barratt a few years ago called Manoose (or something like that) which you can take to prevent cystitis.  Apparently it is a food for the germs in the bladder and the germs go to the food where they get stuck and then

are passed out of the body next time you pass urine.  As told to me by the sales assistant and Dr Google.  It can be used to treat symptoms acutely or to prevent.

 

Sorry to butt in, but anything that may help.

 

Joy

 

Just came across Joy's reference to "IC", having done a search.

 

I have a few litres of cranberry juice, but will see if I can get a high-grade D-Mannose supplement to take. 

 

Have resumed taking Urostemol femina capsules" for bladder issues.  This is a natural supplement which helped a lot the last time I took it.

[Junglechicken]

Looks like I'm going to have to spend a small fortune to get answers.

 

I'm doubtful that my GP will refer me (because of my HA), but I need to get the following checked out:

 

Autoimmune markers

Ob/gyn potential issues

Gastroenterology (colonscopy/endoscopy)

 

I still continue to have to deal with significant stressors, which are triggering these IBS/cystitis symptoms.

[Junglechicken]

Wondering if anyone has experienced indigestion with accompanying back pain??  My IBS has flared up with the cystitis/UTI, and there is back pain.

 

This is a new symptom for me........not pleasant.

[Junglechicken]

Feeling fatigued 

 

Had a crazy busy week, not helped by UTI and IBS.

 

Glad its over (almost).

 

 

[Kristine]

16 hours ago, Junglechicken said:

Wondering if anyone has experienced indigestion with accompanying back pain??  My IBS has flared up with the cystitis/UTI, and there is back pain.

 

This is a new symptom for me........not pleasant.

Hi JC,  I just stumbled on your above question....this sounds very unpleasant 😞  UTI's are very painful and throw in IBS...well that's just cruel.  Do you have a fever?  I'm just wondering if the ongoing cystitis/UTI has caused a kidney infection...lower back pain is common with kidney infection....K 

[Junglechicken]

1 minute ago, Kristine said:

Hi JC,  I just stumbled on your above question....this sounds very unpleasant 😞  UTI's are very painful and thrown in IBS...just cruel.  Do you have a fever?  I'm just wondering if the ongoing cystitis/UTI has caused a kidney infection...lower back pain is a common with kidney infection....K 

 

Hi Kristine,

 

No, no fever..... the GP took my temperature on Friday.

 

This is more middle back but isn't really painful, more niggling.

 

JC

[Kristine]

Just now, Junglechicken said:

No, no fever..... the GP took my temperature on Friday.

 

This is more middle back but isn't really painful, more niggling.

That's good news JC 🙂 I'm glad your back isn't painful but it sounds uncomfortable.  With all the w/d symptoms is difficult to figure out what is causing what! We are on a roller coaster ride, that's for sure.  I really hope you get some relief soon JC.  Hugs to you. K 

[Junglechicken]

2 minutes ago, Kristine said:

That's good news JC 🙂 I'm glad your back isn't painful but it sounds uncomfortable.  With all the w/d symptoms is difficult to figure out what is causing what! We are on a roller coaster ride, that's for sure.  I really hope you get some relief soon JC.  Hugs to you. K 

 

Thanks Kristine 

 

Its either tension, or linked to indigestion......it only came on recently.

 

I'm resigned to the fact that I will have to have some further tests done, to make sure all ok.

 

Hope you're ok? 

 

Hugs back,

JC

[Kristine]

Might be time for a heat pack for your back! Wish I had some answers JC...I'm trying to keep my head above water.  Moving house due to renovation (long story)..so let's just say I'm a bit of an emotional mess 😳 K

[Junglechicken]

2 minutes ago, Kristine said:

Might be time for a heat pack for your back! Wish I had some answers JC...I'm trying to keep my head above water.  Moving house due to renovation (long story)..so let's just say I'm a bit of an emotional mess 😳 K

 

Know the feeling, we're about to exchange contracts on a house we've just bought.  Then there will be the whole moving chaos (done it about 100 times already).

 

Keep swimming Kristine, we both have to!

 

TC,

JC xx

[Kristine]

3 minutes ago, Junglechicken said:

Know the feeling, we're about to exchange contracts on a house we've just bought.  Then there will be the whole moving chaos (done it about 100 times already).

 

Keep swimming Kristine, we both have to!

 

Yes, swim we must!!!! Even if we just tread water 🙂 Take care JC. K 

[joy2730]

JC

 

HA is a new concept to me thankfully but I am sure my mother has it.   Ironically I really do think antidepressants would really help my mother. My mother has Ibs and cystitis symptoms but nothing can be found in any tests.  She wears herself out with it. 

 

I have found a house to buy now but it is all very stressful.   None of it will help your symptoms.

 

Dare I ask how the job hunting is going?

 

Joy

[Junglechicken]

2 minutes ago, joy2730 said:

JC

 

HA is a new concept to me thankfully but I am sure my mother has it.   Ironically I really do think antidepressants would really help my mother. My mother has Ibs and cystitis symptoms but nothing can be found in any tests.  She wears herself out with it. 

 

I have found a house to buy now but it is all very stressful.   None of it will help your symptoms.

 

Dare I ask how the job hunting is going?

 

Joy

 

Hi Joy,

 

No news on the job front...........I am forever getting "pipped to the post" by an internal candidate.  Its easier for the company.......I always get positive feedback and told "when a suitable job becomes available they will contact" me or to "keep applying".

 

Yes, the HA is debilitating so you are lucky you don't suffer from it.  I think anti-depressants would help my mother as well, who is extremely neurotic.....however, they would incapacitate her further than she already is (booze and fags).

 

You are right, the stress of everything isn't helping my symptoms at all..... 

 

Good news that you have found a house, I hope the whole purchase process goes along smoothly - I can't believe how long it all takes in the UK.

 

JC

[Frogie]

Hi JC:

 

Just wanted to drop by and say hi.

 

I had a good day yesterday. I didn't take my Vitamin E for my liver and had no nausea. I decided to take it last night before bed and woke up nauseous. I think I'm going to stop taking it for a while and see what happens.

 

Hope your UTI is better.

 

Take care,

Frogie xx

[Junglechicken]

10 minutes ago, Frogie said:

Hi JC:

 

Just wanted to drop by and say hi.

 

I had a good day yesterday. I didn't take my Vitamin E for my liver and had no nausea. I decided to take it last night before bed and woke up nauseous. I think I'm going to stop taking it for a while and see what happens.

 

Hope your UTI is better.

 

Take care,

Frogie xx

 

Thanks Frogie,

 

Yes, I think its "moved on", although I'll have to have a cystoscopy to determine whether I have "IC"........am almost certain my urine lab sample will come back negative......again.

 

Glad you had a good day yesterday, but as far as playing around with supplements goes, its a mine field as we'll be more sensitive some days or weeks more than others, and its a constant mode of making adjustments.

 

Hang in there,

JC xxx