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SURVEY CLOSED Prescribed Drug Dependence & Withdrawal Survey

RockSie

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RockSie Newbie

RockSie

Posted
Posted (edited)

Merged topics

Survey is easy, and should take about ten minutes. 

 

 

London university in conjunction with CEP, London and with support of Baylissa Frederick , Recovery Road, is conducting a survey about dependence and withdrawal from benzos, A/Ds, opiod painkillers or other drugs of dependence.  Please, please, please reply.  this is an opportunity not to be missed whatever country you live in.  The results will be published in academic journals.  Make it known how big this problem is and what services are needed. UK responses will inform UK policy.  If we secure services in the UK other countries may follow the lead.  Please share in other support groups.  

 

https://roehamptonpsych.az1.qualtrics.com/jfe/form/SV_6gSHZN88sOmHDlr

Edited by mammaP
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  • nz11

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Purplerain Newbie

Purplerain

Posted
Posted

Done x

2008 put on 75mg Effexor XR (Venlafaxine) after breakup with long term boyfriend

2009 Dose increased to 150mg

2010 Dose increased to 300mg plus 25mg Quetiapine added to aid sleep and control hypomania

2011 first attempt to withdraw. Taper much too fast on psychiatrist's advice (300-0mg in 1 month) suffer first and only psychotic episode. Put back on 75mg generic Venlafaxine (no more Quetiapine)

2014 reduce dose to 1/4 of a 37.5mg Venlafaxine tablet during pregnancy. Suffer extreme social anxiety/agoraphobia

2015 Daughter is born. Advised not to breastfeed due to Ven being present in breastmilk. Suffer PND and go back to taking 37.5mg tablet daily. Start to experience heavy fatigue each day after taking Venlafaxine tablet.

14th June 2017 - start 10% monthly taper reduction method. June 2018: 10mg June 2019: 4.5ml June 2020: 2mg June 2021: 0.9mg June 2022: 0.35mg Jan 23: 0.14mg Feb 23: 0.12mg March 23: 0.1mg April 23: 0.08mg May 23: 0.06mg June 23: 0.04mg July 23: 0.02mg

Officially free of all psychiatric medication as of 1st August 2023 :):)

  • Moderator Emeritus
mammaP Newbie

mammaP

Posted
  • Moderator Emeritus
Posted

I've filled in this survey and hope that everyone here will too. Anyone, worldwide can fill it in and show the bigger picture. It asks lots of questions and also in your own words experiences but the box isn't very big so needs to be condensed. It doesn't matter if you can't fill it in just tick the boxes. No personal setails are asked for but you have to create a unique number/name that shows you are a real person and agree to then using the questionaire to create statistics. It is by far the best one I have seen. 

 

Please take 10minutes, even if you just tick the boxes. I mentioned that SA is the only worldwide site that covers AD withdrawal and is growing so fast as people find out the truth and try taper drugs alone. I have suggested that the NHS  creates a site like this one to help people. What they are proposing now is not enough. Doctors don't know enough yet. 

**I am not a medical professional, if in doubt please consult a doctor with withdrawal knowledge.

 

 

Different drugs occasionally (mostly benzos) 1976 - 1981 (no problem)

1993 - 2002 in and out of hospital. every type of drug + ECT. Staring with seroxat

2002  effexor. 

Tapered  March 2012 to March 2013, ending with 5 beads.

Withdrawal April 2013 . Reinstated 5 beads reduced to 4 beads May 2013

Restarted taper  Nov 2013  

OFF EFFEXOR Feb 2015    :D 

Tapered atenolol and omeprazole Dec 2013 - May 2014

 

Tapering tramadol, Feb 2015 100mg , March 2015 50mg  

 July 2017 30mg.  May 15 2018 25mg

Taking fish oil, magnesium, B12, folic acid, bilberry eyebright for eye pressure. 

 

My story http://survivingantidepressants.org/index.php?/topic/4199-hello-mammap-checking-in/page-33

 

Lesson learned, slow down taper at lower doses. Taper no more than 10% of CURRENT dose if possible

 

 

powerback Newbie

powerback

Posted
Posted

completed .there needd to be  a way to fast click all them yes boxes :D

Alcohol free since February 2015 

1MG diazepam

4.5MG PROZAC.

 

 

 

Dez Newbie

Dez

Posted
Posted

Just took it, hopefully it helps get this more out there.

- 2010 Fluoxetine 20mg (no issues, did well)
- Mid 2012 Switched to Celexa 20mg (no issues with switch)
- 6/16 Stopped Celexa (always took med once every other day, tapered to once every three days for about a week and a half, took one a week for one week, no problems)
- 10/20/16 Started Celexa 20mg (next day had panic attacks, stopped after three days, kept having panic attacks and anxiety rest of the month)
- 10/28/16 Started Paxil 20mg (took for almost a week, had suicidal thoughts/severe derealization, tapered off to one every other day for a few days)
- 12/8/16 Buspirone 5mg twice daily (felt drowsy but kept anxiety under wraps, still taking it)
- 12/27/16 Venlafaxine XR 37.5mg (took two days, migraine first day, headache all day second day, third day had severe depression/outbursts of crying, couldn't stop most of the day, bad invasive thoughts, never took third dose because of it)
- 1/7/17 taper Buspirone 20% (miscalculation but doing well), gradually slivered off tablet throughout month to almost half each pill

- 2/3/17 taper Buspirone 2.5mg twice daily (did fine, listened to body), gradually slivered off tablet throughout month

 

* Aromatherapy 100% oils in diffuser every night *

* Morning stretching routine every day *

Lyssa Newbie

Lyssa

Posted
Posted

Thankfully it wasn't too complicated so I was able to complete it :D. Really hope this helps.  

2001 (Age 12) - PROZAC 10mg for situational anxiety. Taken over a few weeks.

2005 - PROZAC 10mg. Taken over 7 months. Made me depressed and feel ill. Tapered off over 2 weeks on advice from doctor. 

April 2014- SERTRALINE 25mg. Had a severe adverse reaction within 12 hours. Only took 1 dose.

October 2014- MIRTAZAPINE 15mg

February 2015- Upped Mirtazapine to 30mg because I was feeling much worse than before I started taking it.

August 2015- Dropped Mirtazapine back to 15mg because 30mg was causing even more severe side effects.

October 2015- Mirtazapine 7.5mg. Desperate to get off and feeling awful.

December 2015- Drug free. 5 days after last Mirtazapine tablet hit by severe WD symptoms.

January 2016. Hospitalised because of WD symptoms. Given 2mg of Diazepam.

January 2016 - December 2016. 2mg DIAZEPAM taken as needed. Didn't really help much and never took more than 5 tablets in a month.

Still suffering from numerous symptoms.

CAFFEE60 Newbie

CAFFEE60

Posted
Posted

http://cepuk.org/2017/08/10/cep-2017-prescribed-drug-withdrawal-survey/

 

This survey is being done in the UK but they are open to anyone who wants to participate. It is very thorough and provides lots of space for comments. Please have a look and pass it on.

Started tapering of quetiapine (Seroquel) Nov.30/15.  Stopped clonazepam a year ago. I am down to 56.25 mg. quetiapine. Tapered 10% and finally finished after using a compounded prescription for a month. Officially done Wednesday, October 5, 2016.

nz11 Newbie

nz11

Posted
Posted

done

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

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Shep Grand Master

Shep

Posted
  • Moderator Emeritus
Posted

Thanks for posting this link, Marmite.

 

I have a friend who's active in advocacy for benzo withdrawal and she was in contact with the researchers Friday and they said so far, they have received 220 responses, 80 from the UK. And that was over two days. Hopefully, more will come in over the next week. 

 

Just an FYI that the survey will close soon:  

 

The survey opens at 9am on 10 August 2017 will close at 5pm on 24 August 2017 BST.

 

 

 

 

nz11 Newbie

nz11

Posted
Posted

Can as many people as possible please do this survey.

The good thing about this survey is there are heaps of places to 'explain' that means we don't leave them guessing or making assumptions.

 

 

 

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

Bridgetini Rookie

Bridgetini

Posted
Posted

Thanks for sharing - I completed it and it was great to feel that I might be helping to shape future policy. 

Jan 2023: Venlafaxine XR 100 mg, Lorazepam 0.25 mg, Oestradiol 100 micrograms

Dec 2022: Venlafaxine XR 100 mg, Lorazepam 0.25 mg. HRT stopped for hysterectomy surgery 5 Dec 22 (potential clotting risk)

September 2022: Venlafaxine XR 100 mg, Lorazepam 0.25 mg, Oestradiol 100 micrograms, Progesterone 100 mg.

Apologies but I can't remember or find details at the moment, but I slowly reduced Venlafaxine and Lorazepam through 2020-2021-2022.

Jan 2022: HRT increased by GP for unknown reason to oestradiol patch 100 microg, progresterone 100 mg

June 2021: started HRT (oestradiol patch 50 microg, progresterone 100 mg). 

August 2020:  Made a 16% reduction in Lorazepam at psychiatrist's recommendation (1.25 mg) while holding Venlafaxine at 150 mg.

March 2019 - March 2020: Venlafaxine  XR tapered from  337.5 mg  to 150 mg (60% reduction), while continuing 1.5 mg Lorazepam.

March 2016 - January 2019: Mirtazapine taptered to 0, while continuing on 1.5 mg Lorazepam and 375 mg Venlafaxine XR.

Feb. 2015: 7.5 mg Mirtazapine + 1.5 mg Lorazepam + 375 mg Venlafaxine.

 

rupa Rookie

rupa

Posted
Posted

I am not from UK.But we are all in the global village.I look forward for the benefit of future generations.So I filled the survey.Patients or clients are not informed by the doctors that how these medication works.Also not educating about careful tapering system.Even careful 10%taper leaving at insomnia.

I am looking forward for the harmless brain medication.

Cold turkeyed risperidone (1m.g)and trihexyphenidyl combination drug out of ignorance,In August 2016 after one month use.

Withdrawal symptoms settled at dreamful,disturbing sleep.

Thus introduced to olanzapine for sleep.Started using olanzapine out of ignorance.

Tapering olanzapine 10 m.g from February 2017.

May 2018 :Still suffering dreams,Still tapering olanzapine at 0.625.100ml water+2.5 mg olanzapine. June 2018 22.5ml=0.57mg.July 2018 20ml,August 2018-17.5ml,September 2018-15ml,October 2018 10 ml,December 2018 7 ml, BrassMonkey slide method so far at lower doses.2 nd December cold turkeyed , only to reach minure doses as reinstatement to cutshort endless tapering process.4rth December started 1ml.

Almost no symptoms and sleep is better,So started 0.5 ml from 17-12-2018.

"0"from31-12-18.Re birth happened from 10- 2020,as rejuvenation took whole2019.Completely recovered now.

bhasski Newbie

bhasski

Posted
Posted

I had too. Reason being its not restricted to UK. They need to know whether its UK or not. Acknowledging  is their choice.

08/13 - 01/14
Olanzapine, petril MD (Clonazepam ), Dicorate ER (divalproex). Soza 10 (Zolpidem)

02/14 - 05/14
Flunil ​20mg , Divaa OD 250 mg(divalproex), Amisulpride 50mg (1-0-2), zolfresh 5 mg , Quetiapine
05/14 - 08/14 Venlafaxine 75 xr ( 1-0-1), zapiz 0.25
10/14 Zaptra 12.5mg , Oxetol xr 150mg (0-0-1)
11/14 - 08/15
Paris CR 25 (paroxetine) , Oxetol xr 600 mg (0-0-1), nitrest 5mg , Quetiapine for a month.
09/15-11 Venlafaxine XR 75 ( 1-0-1), Mirtazipine 15, Respiredal 0.5, Lamitor 25, zillion 10.
12/15-02/16 Off Meds (C.T)

03/16-Mid April Sertraline, Aripropazole, Quetiapine, Etizolam.

After that : CT and on OTC supplements (Roadback), now on Ayurveda
  • Mentor
Happy2Heal Contributor

Happy2Heal

Posted
  • Mentor
Posted

done!! happy to have the opportunity to help

 

 

Taking a break from mentoring, please do not message or tag me, thank you! 
Got some personal stuff to deal with and am not able to give you my full attention. 

I will remove this reminder when I am back. Keep on swimming, my friends. 

😊

  • pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) 
  •  Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years
  • started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 
  •  2013 too fast taper down to 5mg but WD forced me back to 20mgs
  •  June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until  Sept, then acute WD hit!!  reinstated at 0.3mgs in Oct. 2106
  • Tapered off to zero by  Oct. 2017 Doing very well. 
  • Nov. 2018 feel 95% healed, age 63 
  • Jan. 2020 feel 100% healed, peaceful and content
  • PRESENT DAYS:  Loving life! ❤️ with all it's ups and downs ;) 
  • Moderator Emeritus
ChessieCat Grand Master

ChessieCat

Posted
  • Moderator Emeritus
Posted

Definitely worth the time.

* NO LONGER ACTIVE on SA *

MISSION ACCOMPLISHED:  (6 year taper)      0mg Pristiq  on 13th November 2021

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

Post 0 updates start here    My tapering program     My Intro (goes to tapering graph)

 VIDEO:   Antidepressant Withdrawal Syndrome and its Management

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Dan998 Rookie

Dan998

Posted
  • Moderator Emeritus
Posted

I would urge all UK members to participate in this important survey. It has the potential to influence NHS policy towards prescription drug withdrawal and could make this an issue that government will have to finally pay attention to.

 

The credibility of the results will depend on the number of people taking part. The net needs to be cast far and wide on this. If you are a member of one of the various mental health support groups outside of SA then you might want to consider posting a link on there as well.

2001: 20mg paroxetine
2003-2014: Switched between 20mg citalopram and 10mg escitalopram with several failed CT's
2015: Jan/ Feb-very fast taper off citalopram; Mar/ Apr-crashed; 23 Apr-reinstated 5mg; 05 May-updosed to 10mg; 15 Jul-started taper; Aug-9.0mg; Sep-8.1mg; Oct-7.6mg; Nov-6.8mg; Dec-6.2mg
2016: Jan-5.7mg; Feb-5.2mg; Mar-5.0mg;  Apr-4.5mg; May-4.05mg; Jun-3.65mg; Jul-3.3mg; Aug-2.95mg; 04Sep-2.65mg; 25Sep-2.4mg; 23Oct-2.15mg; 13Nov-1.95mg; 04Dec-1.75mg; 25Dec-1.55mg.
2017: 08Jan-1.4mg; 22Jan-1.25mg; 12Feb-1.1mg; 26Feb-1.0mg; 05Mar-0.9mg; 15Mar-0.8mg; 22Mar-0.7mg; 02Apr-0.6; 09Apr-0.5mg; 16Apr-0.4mg; 23Apr-0.3; 03May-0.2mg; 10May-0.1mg

Finished taper 17 May 2017.

Read my success story

 

I am not a medical professional. The information I provide is not medical advice. If in doubt please consult with a qualified healthcare provider.

nz11 Newbie

nz11

Posted
Posted

Well said Dan (congratulations on being a moderator by the way ...I just noticed).

 

I join with Dan in URGING all people on this forum to do this survey.

If you only do one survey in your life then please make it this one!

This is a chance to have your/our  voice heard. This is a moment in time that is for us. As they say this is not the time to read history this is the time to make history and you/we have an opportunity to play a major part in this. 

 

I'm so pleased Alto has stuck this to the top of the page of the intros.

 

I wonder if its possible to have this link sent to every sa member. If its simply a matter of one push of the button then maybe that could be considered?

 

nz11

 

 

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

shamaan Newbie

shamaan

Posted
Posted

Done. 

Effexor free for 36 months. Still on 25mg of Solian.

Tapering Xanax and on a dose of 0,15mg , splitted in four doses.

Last reductions:
9/06: 1.875%
7/07: 2.5%

22/07: 1.96%

 

primekittycat Newbie

primekittycat

Posted
Posted

Done!

History: Began suffering from panic attacks when my father passed away in 2005. Been on and off SSRIs (Celexa, Lexapro, Effexor XR), and therapy since then.

2009 - Started Effexor XR 75mg. Consistent therapy starting Oct 2013

Feb 2014 - Therapist and I felt I was ready to come off Effexor - went to half dose (37.5mg) for a week and then off completely by advice of psychiatrist - bad w/d for a week then gone

May 2014 - bad protracted w/d came out of nowhere.. constant dizziness, agoraphobia(never had before), intense headaches, fatigue for 3 months, all tests (brain MRI, inner ear tests, blood tests, etc.) normal. could not drive, grocery shop, or live life.

Aug 2014 - back on Effexor XR 75mg as neurologist thought these symptoms were my anxiety coming back, all w/d symptoms disappear within 2 weeks. I should have went back on at a lower dose, but I hadn't discovered this site yet. I finally did discover this site, and gave myself a year to stabilize.

July 2015 - Started tapering from 75mg. 5% cuts every 3 weeks. From July 2015 - March 2016, reduced to 37.5mg (half dose). In March 2017, down to 18.3mg (quarter dose). April 2020 - down to 0.38mg.

 

Now: Finally med free as of Oct 31, 2020 after 5.5 years of tapering. Still med and withdrawal free, January 2023. ☀️

Supplements during tapering and now: Meditation, daily exercise, fish oil, clean diet, working from home (more sleep!)

  • Moderator Emeritus
mammaP Newbie

mammaP

Posted
  • Moderator Emeritus
Posted

Some of us have put the link in our signature, every little helps! 

**I am not a medical professional, if in doubt please consult a doctor with withdrawal knowledge.

 

 

Different drugs occasionally (mostly benzos) 1976 - 1981 (no problem)

1993 - 2002 in and out of hospital. every type of drug + ECT. Staring with seroxat

2002  effexor. 

Tapered  March 2012 to March 2013, ending with 5 beads.

Withdrawal April 2013 . Reinstated 5 beads reduced to 4 beads May 2013

Restarted taper  Nov 2013  

OFF EFFEXOR Feb 2015    :D 

Tapered atenolol and omeprazole Dec 2013 - May 2014

 

Tapering tramadol, Feb 2015 100mg , March 2015 50mg  

 July 2017 30mg.  May 15 2018 25mg

Taking fish oil, magnesium, B12, folic acid, bilberry eyebright for eye pressure. 

 

My story http://survivingantidepressants.org/index.php?/topic/4199-hello-mammap-checking-in/page-33

 

Lesson learned, slow down taper at lower doses. Taper no more than 10% of CURRENT dose if possible

 

 

nz11 Newbie

nz11

Posted
Posted

Great idea.

 

later......

much later....

how the heck do you do signature under this new set up ....im feeling like a fish out of water....

Note to myself ..project for the weekend- do signature.

nz11

 

 

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

  • Administrator
Altostrata Grand Master

Altostrata

Posted
  • Administrator
Posted
23 hours ago, nz11 said:

Well said Dan (congratulations on being a moderator by the way ...I just noticed).

 

I join with Dan in URGING all people on this forum to do this survey.

If you only do one survey in your life then please make it this one!

This is a chance to have your/our  voice heard. This is a moment in time that is for us. As they say this is not the time to read history this is the time to make history and you/we have an opportunity to play a major part in this. 

 

I'm so pleased Alto has stuck this to the top of the page of the intros.

 

I wonder if its possible to have this link sent to every sa member. If its simply a matter of one push of the button then maybe that could be considered?

 

nz11

 

 

 

Fine idea, nz. As everyone knows, I very seldom send out mass e-mails. This is important, I'll send out an e-mail about it tomorrow.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

  • ChessieCat changed the title to SURVEY: Prescribed Drug Dependence & Withdrawal Survey
  • Moderator Emeritus
ChessieCat Grand Master

ChessieCat

Posted
  • Moderator Emeritus
Posted

Account Settings – Create or Edit a signature

* NO LONGER ACTIVE on SA *

MISSION ACCOMPLISHED:  (6 year taper)      0mg Pristiq  on 13th November 2021

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

Post 0 updates start here    My tapering program     My Intro (goes to tapering graph)

 VIDEO:   Antidepressant Withdrawal Syndrome and its Management

  • Mentor
Happy2Heal Contributor

Happy2Heal

Posted
  • Mentor
Posted

thanks ChessieCat

 

 

Taking a break from mentoring, please do not message or tag me, thank you! 
Got some personal stuff to deal with and am not able to give you my full attention. 

I will remove this reminder when I am back. Keep on swimming, my friends. 

😊

  • pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) 
  •  Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years
  • started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 
  •  2013 too fast taper down to 5mg but WD forced me back to 20mgs
  •  June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until  Sept, then acute WD hit!!  reinstated at 0.3mgs in Oct. 2106
  • Tapered off to zero by  Oct. 2017 Doing very well. 
  • Nov. 2018 feel 95% healed, age 63 
  • Jan. 2020 feel 100% healed, peaceful and content
  • PRESENT DAYS:  Loving life! ❤️ with all it's ups and downs ;) 
  • Mentor
ang Newbie

ang

Posted
  • Mentor
Posted

I did the survey, thanks.    

1992 Dothiepin 375mg 8 weeks, exhaustion/depression.  Serotonin syndrome, oh yes!  seizures . Fell pregnant, 3rd baby, Nitrous Oxide, 3 weeks mental hospital pp psychosis. zoloft tegretol.

Feb 1996 ct tegretol, tapered Zoloft 8 weeks. as (unexpectedly)  pregnant. Steven died after 3 days.(Zolft HLHS baby).  98 had run in with Paxil, 2 tablets, 3 weeks taper, survived.
2005..menopause? exhausted again. Zyprexa, mad in three days, fallout....  Seroquel, Effexor, tegretol,   and 8 years of self destruction. Failed taper.
Damn 1/4 valium... nuts again! .fallout, zoloft 100mg  seroquol 400mg mirtazapine 45 mg  tegretol 400mg.  Mid 14 3 month taper. Nov 14 CRASH.
Mid 15 ....   75mg  seroquel,  3 x 1800mg SJW  2 week window end of December followed by 6 week wave
5/2 68mg seroquel, 2.5 x 1800mg SJW::::20/2 61mg seroquel, 2.5 x  SJW::: 26/2 54mg seroquel, 2 x SJW::::21/3 43mg seroquel, 1 x 2700SJW :::: 23/4 36mg seroquel 1 x 1800 SJW
15/5 33mg seroquel, 1 x SJW::::   28/5 30mg seroquel, 1 x SJW::::;  18/6 25mg seroquel 1/2 SJW::::, 11/7 21mg seroquel 1/2 SJW::, 26/7 18mg seroquel 1/2 SJW:::, 9/8 12mg seroquel :::, 16/8 6mg seroquel ;;;;, 12/9 0 jump.

23/9  3mg.....,  27/9 0mg.  Reinstated, 6mg, then 12mg.............  LIGHTBULB MOMENT,  I have  MTHFR 2x mutations.  CFS and issues with MOULD in my home. So I left home, and working 150km away during week, loving it.

Oh was hard, panic attacks first week, gone now, along with the mould issues.

fema4psychiatrists Newbie

fema4psychiatrists

Posted
Posted

Thanks, completed.

Cocktail drugged since 9

Genitals went numb

Extreme intestinal gas and pain

Extreme anxiety cant concentrate

All permanent

 

Post-SSRI Sexual Dysfunction (PSSD)

http://pssdblog.blogspot.com

nz11 Newbie

nz11

Posted
Posted
15 hours ago, Altostrata said:

 

Fine idea, nz. As everyone knows, I very seldom send out mass e-mails. This is important, I'll send out an e-mail about it tomorrow.

How excellent :)

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

Marsha Rookie

Marsha

Posted
Posted

Did the survey and sent it.

I am not a medical professional. My comments and posts are based on my personal experiences. Please consult appropriate medical professionals for advice. 

I was started on psych drugs back in the late 80's. You name it. I probably was on it. 47 different drugs. Over 57 thousand pills. Tapered off final cocktail February 1st, 2013- September 9th, 2019. For Hashimotos I take Levothyroxine 100 mcg. Losartan 150 mg. Metoprolol prn. Fish oil. Bee pollen. Magnesium Glycinate. 

Clonazepam .5 mg ×4. Changed to Diazepam 5 mg ×4.  Started August 20th 2024 due to heart pain caused by prolonged grief and afib. Stabilizing. Will begin taper when able. 

 

 

gigi63 Rookie

gigi63

Posted
Posted

I just took it.  Hopefully will begin to pave the way!!!!

grandmaD Rookie

grandmaD

Posted
Posted

I have completed the survey.  I thought they asked all the right questions.  I hope it does some good.

1995-2007      20mg Aropax/Paxil for pain.  Years of up and down doses

2008                Endep, Lexapro and then Esipram (hell!) CT (oh dear!)

2009                20mg Aropax.  Tried skipping doses for a year (more hell!)

                        2010                10mg.  10% taper.  Lasted 4 months. Crashed again

2011                5% taper. 9mg-7mg (hell got even worse!)

2012                2.5% taper.  6.6mg – 5.6mg (worser still & unbearable)

2013                5% taper.  Big mistake.  5.5mg – 4.6mg  (even worserer)

2014                2.5% taper.  4.9mg – 4.5mg;    2015 2.5% taper 4.4 - 4.0mg

2016                2.5% taper.  3.9mg  Feb 3.8   Mar 3.7  May 3.6   Jul 3.5

2017                2.5% taper.  Jan 3.4;   Mar 3.35;  Apr 3.3; Oct 3; Dec 2.9;

2018                2.5% taper. Jan 2.8; Mar 2.7; Mar: 2.75; Jun 2.7; Aug 2.6; Oct 2.5; Nov 2.4; Dec 2.3

2019                Jan 2.2; Feb 2.1;

  • Moderator Emeritus
Songbird Rookie

Songbird

Posted
  • Moderator Emeritus
Posted

Thanks for the email, I've filled out the survey.

2001–2002 paroxetine

2003  citalopram

2004-2008  paroxetine (various failed tapers) 
2008  paroxetine slow taper down to

2016  Aug off paroxetine
2016-2017  citalopram May 20mg  Oct 15mg … slow taper down to 4.8mg
2018-2023 Feb 4.6mg slow taper down to 1.0mg

2024  Jan 0.9mg  Mar 0.8mg May 0.7mg Aug 0.6mg Oct 0.5mg

Katamari Newbie

Katamari

Posted
Posted

Without that email I would have missed this. Thanks!

My history:
Escitalopram 5-10mg 2006-2008
Fluoxetine 40mg 2008-2010
Venlafaxine 150mg 2010 - December 2014
I tapered off very quickly:
1. week 75mg
2. week 35,5mg
3. week 17mg
4. week 8,5mg
5. week none

nz11 Newbie

nz11

Posted
Posted
7 hours ago, Chad said:

I'll consider it.

 

If you feel you have been harmed in any way and/or uninformed in any way then please complete it.

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

nz11 Newbie

nz11

Posted
Posted

Im not one to pm the owner of this site so heres an open pm.

 

Alto  just wanted to say thanks heaps for that terrific email you sent out.

I have a feeling it will stir a fantastic outcome and probably arouse a sleeping giant - members who are in a prolonged season of silence.

SA i see is already getting responses.

Not that the mods need any more work but i think this is going to cause a surge in survey completions hoorah!...and sa updates!

Im so excited about what will occur this week leading up to 24th aug.

Thanks heaps.

nz11

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

nz11 Newbie

nz11

Posted
Posted
2 hours ago, Songbird said:

Thanks for the email, I've filled out the survey.

Thanks Songbird ....lovely to hear from you.

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

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