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Using Dr. Glenmullen's checklist to track symptom patterns and progress


Karma

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Just bumping this to let members know about the computer and printable symptom lists.  Each sheet is set up for 1 month using the symptoms from:  Dr Joseph Glenmullen's Withdrawal Symptoms

 

At the bottom left of each list is rating code for symptoms:  SEVERITY SCORE FOR DAY:  None=0;  Mild=1-3; Moderate=4-7; Severe=8-10

 

PDF Monthly List of Dr Glenmullen's Symptoms to Print

 

PDF Monthly List BLANK to Print
 
Excel Spreadsheet Monthly format of Dr Glenmullen's Symptoms to use on the computer   SUGGESTION:  Keep the first sheet as master blank sheet and copy it to a new sheet each month.

* NO LONGER ACTIVE on SA *

MISSION ACCOMPLISHED:  (6 year taper)      0mg Pristiq  on 13th November 2021

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

Post 0 updates start here    My tapering program     My Intro (goes to tapering graph)

 VIDEO:   Antidepressant Withdrawal Syndrome and its Management

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  • 1 month later...
On 6/8/2012 at 3:02 AM, dalsaan said:

ADMIN NOTE www.drglenmullen.com seems to be closed.

 

The checklist is here (PDF will download) glenmullen_symptoms_AS Appendix 1.pdf
 
Our esteemed member ChessieCat has provided these resources:

PDF Monthly List of Dr Glenmullen's Symptoms to Print & PDF Monthly List BLANK to Print
 
Excel Spreadsheet Monthly format of Dr Glenmullen's Symptoms to use on the computer
 
Related topics:

Rate symptoms daily to track patterns and progress

What symptoms should I expect while tapering?

Papers on diagnosis of antidepressant withdrawal syndrome

Guides to tapering off psychiatric medication



Hi Glenmullen has provided a checklist of withdrawal symptoms available here [see below] I found this helped me put 2 and 2 together in terms of the diverse range of symptoms I was experiencing (some obvious ones I had identified as withdrawals, others I thought were an unfortunate coincidence : ). The checklist got me on the right page as such. Its also helpful to track changes with dose reductions and to take to Dr's appts. I have printed a heap of them odd and have them in a folder. It can help gps understand and accept what you are saying It may not be perfect but I think it helps to get your head around it and short circuits reading a lot of stuff Don't know if you want to put this with the intro stuff or start a thread for it or ... And I don't know how to make it a link as such Dalsaan

 

 

 

@manymoretodays I shall track with this. Thank you so much. 

~DS~

On Lexapro 20 mg for 6 years. 

*Tapered down from 20 mg to 10 mg starting Dec 10, 2018 and hit 10 mg around March 13. 

         - waited over one month on 10 mg -

*Started my taper from 10 mg around April 15. 

*Reached 5 mg on June 14. 

***** currently using Valium daily (sometimes Xanax as emergency) for panic/anxiety

* Valium 5 mg when start of a panic. Sometimes 10 mg. Started as soon as I started the taper.  

* Xanax when I am in the throws before stabilization of a dose- for emergency, major anxiety. 1 mg.  This could range from every day for one week. Or none at all for 2 months. 

* the Valium however is constant

 

~~ I am currently trying to stabilize on 5 mg lexapro ~~

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On 2/11/2016 at 5:50 PM, ChessieCat said:

Excel version - Dr Glenmullen's Symptoms List for completing on the computer (slightly revised version of the original I did last year - I added some blank lines and corrected a typo)

 

 

CC

Dr Glenmullens Symptom List for Month.xls 17.5 kB · 999 downloads

Thank you for this!

~DS~

On Lexapro 20 mg for 6 years. 

*Tapered down from 20 mg to 10 mg starting Dec 10, 2018 and hit 10 mg around March 13. 

         - waited over one month on 10 mg -

*Started my taper from 10 mg around April 15. 

*Reached 5 mg on June 14. 

***** currently using Valium daily (sometimes Xanax as emergency) for panic/anxiety

* Valium 5 mg when start of a panic. Sometimes 10 mg. Started as soon as I started the taper.  

* Xanax when I am in the throws before stabilization of a dose- for emergency, major anxiety. 1 mg.  This could range from every day for one week. Or none at all for 2 months. 

* the Valium however is constant

 

~~ I am currently trying to stabilize on 5 mg lexapro ~~

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  • 2 months later...

I found a calendar app that works good to record symptoms. It is called Agenda 2019- Day Planner.  Seller Nadeem Munawar.  It has a picture of a an agenda planner.  Note: I have an i phone. Not sure if app is available for other phones or not. The app is simple and easy to use. Not a lot of bells and whistles.  Recording symptoms in a notebook was not working well for me because I didn’t always have a notebook on me. However, I usually have my phone on me. Hope this helps 

1993-2000: Zoloft few months CT, Prozac 1-2 yrs, Ritalin PRN

2002/2003: Wellbutrin,  Paxil 25mg FT, and Xanax PRN CT (all 3 to 6 months), Adderal 40mg, Strattera 40mg

2003- 2016: Effexor XR 75 mg to 150 mg., Strattera (2002-2008)

2017: Effexor XR 225 mg. Gabapentin 300 mg. Elavil 25 mg.

2018: (Sept.) Effexor XR 187.5 mg, Zoloft 10 mg. (OCT.) FT off Gabapentin (NOV.) FT off Elavil (DEC) FT Effexor to 150 mg.

2019: (JAN.) D/C Zoloft, added Viibryd 10mg (FEB) CT Viibryd, (MAR) Prozac bridge, Effexor xr 112.5mg, (Sept.) Effexor XR 112.5 mg + 0.4 mg (1 bead), (Oct.) Effexor XR 112.5mg, (Dec.28) start 10% taper Effexor XR 101.25 mg, 

2020: (Jan. 25) Effexor XR 91 mg., (Feb. 22) Effexor xr 82 mg., (Mar. 21) 75 mg. 

Supplements:  Vitamin D 5000 IU topical, Probiotic 6 billion CFU, Epsom salt bath 1C 2 to 3 X week, California Poppy 2 droppers, various essential oils 

https://www.survivingantidepressants.org/topic/21446-superwoman-effexor-taper/page/8/?tab=comments#comment-475779

 

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  • 3 weeks later...

The above app also has a “speech to text” feature.  You talk and it types it for you. I have not tried it. 

1993-2000: Zoloft few months CT, Prozac 1-2 yrs, Ritalin PRN

2002/2003: Wellbutrin,  Paxil 25mg FT, and Xanax PRN CT (all 3 to 6 months), Adderal 40mg, Strattera 40mg

2003- 2016: Effexor XR 75 mg to 150 mg., Strattera (2002-2008)

2017: Effexor XR 225 mg. Gabapentin 300 mg. Elavil 25 mg.

2018: (Sept.) Effexor XR 187.5 mg, Zoloft 10 mg. (OCT.) FT off Gabapentin (NOV.) FT off Elavil (DEC) FT Effexor to 150 mg.

2019: (JAN.) D/C Zoloft, added Viibryd 10mg (FEB) CT Viibryd, (MAR) Prozac bridge, Effexor xr 112.5mg, (Sept.) Effexor XR 112.5 mg + 0.4 mg (1 bead), (Oct.) Effexor XR 112.5mg, (Dec.28) start 10% taper Effexor XR 101.25 mg, 

2020: (Jan. 25) Effexor XR 91 mg., (Feb. 22) Effexor xr 82 mg., (Mar. 21) 75 mg. 

Supplements:  Vitamin D 5000 IU topical, Probiotic 6 billion CFU, Epsom salt bath 1C 2 to 3 X week, California Poppy 2 droppers, various essential oils 

https://www.survivingantidepressants.org/topic/21446-superwoman-effexor-taper/page/8/?tab=comments#comment-475779

 

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  • 3 months later...
On 6/8/2012 at 6:54 PM, Altostrata said:

Thanks, dalsaan. A valuable addition to our Tapering section.

 

I thought Joseph Glenmullen's book The Antidepressant Solution was excellent. His tapering schedule is moderate, but he specifies over and over that it should be slowed if needed for the individual.

 

It's also a good book to give to your doctor. Joseph Glenmullen is a Harvard psychiatrist. The book has a complete citation section.

I have brought the book over the internet, it sounds really good, maybe I might give a copy to my doctor.

  • 13th of August 2019 started to take 20 mg citalopram
  • 😀24th of August 2019 down to 10mg stopped citalopram altogether on the 30th of August 2019
Quote

Short term citalopram

 

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  • 2 weeks later...

This topic is blowing my mind. I just ordered a copy of the book, and can't wait to read it.

 

I am having symptoms from both columns of the checklist. 

 

What I just realized, thanks Nikki, is that I am having numbness issues in my both hands.....from having my elbows bent while sleeping. Not a problem I have had often in the past, though I do have some cartel tunnel issues in my right wrist. Symptoms continue to evolve, or atleast become acknowledged.

 

My worst symptoms to date are anxiety, sudden rage and self harm. Awful. These symptoms were less frequent before I began taking Citalopram; now they are a daily, lurking menace.

 

Thanks to all, CB

Citalopram: 40mg from July, 2007 to May, 2019.

                     Tapered down to 5mg between May, 2019 and August, 2019.

                     20 mg currently.

 

Mirtazapine: 30mg since October, 2019.

 

Melatonin: 6mg since January 2020.

 

Magnesium glycinate: 120mg since January, 2020.

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  • 3 weeks later...

I thought it might be helpful to give an example of providing oneself with a scoring system for tracking a symptom that one may have while tapering off a drug.  Having a scoring system in place that one can periodically refer to, will help one to be more consistent in tracking a symptom.  You may start by looking at other scoring systems to get an idea of what you would like to use.  I looked around on the internet for awhile and found only a small amount of information.  I took what I learned and thought about how the symptom may progress from least to worst symptom.  It took me several iterations to obtain the scoring I felt was most reasonable for me.  It is subjective to feelings on any day at best.

 

Since many of us feel “fatigue”, I will give it as an example.  A “1” represents no symptom.  A “10” represents the worst symptom.

 

1                   No fatigue

2-3             Minor fatigue after noon

4-6             Mild to moderate fatigue all day

7-8             Effects ability to think/ concentrate

9                Naps on and off all day

10              Bed ridden fatigue

 

Hope this helps someone.

"Rejoice in hope, be patient in tribulation, be constant in prayer."  Romans 12:12

See LarryS Health History

https://www.survivingantidepressants.org/topic/18063-larrys-tapering-off-venlafaxine-effexor-225mg/?do=findComment&comment=575976

 

Aug 2014 start Venlafaxine 225 mg.

Other Pharmaceuticals per day:  Amlodipine Besylate 5 mg

Vitamins per day:  C 1,000 mg; D3 50 mcg; Probiotic 218 mg; Fish Oil 1,600 mg; Magnesium Glycinate Liquid 165 mg; CoQ10 40 mg; Saw Palmetto 320 mg; Calcium 250 mg; Red Yeast Rice 1,200 mg; Plant Sterol Esters 1,000 mg

Start Taper: 225 mg to 55 mg; June 5, 2018, to June 15, 2019

49 mg July 16, 2019; 44 mg August 13, 2019; 49 mg (up 11%) Aug. 26, 2019: 44 mg Sept. 10, 2019; 40 mg Oct. 8, 2019;  37.5 mg (6%) Nov. 6, 2019; 49.5 mg (up 32%) Nov 18, 2019; 44.5 mg Dec. 30, 2019; 40 mg Jan. 27, 2020; 36 mg Feb. 24, 2020; 32.5 mg March 23, 2020; 29.2 mg April 20, 2020; 26.3 mg May 18, 2020; 23.7 mg June 15, 2020; 21.3 mg July 6, 2020; 19.2 mg Aug. 4, 2020; 17.3 mg Sept. 1, 2020; 15.5 mg Sept. 29, 2020; 14.0 mg Oct. 27, 2020; 12.6 mg Nov. 24, 2020; 11.3 mg Dec. 15, 2020; 10.2 mg Jan. 5, 2021; 9.2 mg Feb. 2, 2021; 8.3 mg March 9, 2021; 7.4 mg April 6, 2021; 6.7 mg 5/4/2021; 6.0 mg 6/01/2021; 5.4 mg 7/13/2021; 4.9 mg 8/10/2021; 4.4 mg 9/9/2021; 4.0 mg 10/14/2021; 3.5 mg 11/11/2021; 7.5 mg (up 200%) 12/6/2021; 6.75 mg 1/17/2022; 6.00 mg 2/21/2022; 5.62 mg 3/21/2022; 4.87 mg 4/25/2022; 4.50 mg 5/30/2022; 4.13 mg 7/5/2022; 3.75 mg 8/1/2022; 3.38 mg 9/7/2022; 3.00 mg 10/5/2022; 2.63 mg 11/02/2022; 2.25 mg 12/1/2022; 1.88 mg 1/5/2023; 1.50 mg 2/9/2023; 1.13 mg 3/16/2023; 0.75 mg 4/20/2023; ZERO mg 5/5/2023

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  • 1 month later...
  • Moderator Emeritus

  

15 hours ago, CyanideFlower said:

Titled:  App for tracking symptoms

 

Hi everyone :) I tried looking up apps that can help me track symptoms. I couldn't find anything that fits my needs - they were either unusable, or they were actually for tracking mood...

Is anyone using apps to track their symptoms?

 

For me, the best thing would be being able to enter a symptom (from a list is OK too) and be able to "check" when it's happening, at least. Even better if you can add how bad the symptom is (numbers or words).

 

Thanks a lot and stay safe,

CF.

 

(sorry if it's the wrong forum for such things)

 

Edited by manymoretodays
quoted here for CyanideFlower

Late 2023- gone to emeritus status, inactive, don't @ me, I can check who I've posted on, and I'm not really here like I used to be......thanks.

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021. Lapsed.  Redo of quit smoking 9/28/2022, and again finally 5/25/24.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider.  My success story:  Blue skies ahead, clear sailing

 

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  • 3 weeks later...

I hope I am posting in the right spot. I have had a symptom since yesterday afternoon and it won't go away. It feels like my body is shaking inside. Like trembling or chills but I'm not cold so I am imagining trembling. It has kept me up tonight. Hard to sleep with it... Anyone have this...is there a way to manage it for sleep- meditation or something?

LZie, Zoloft 25 mg, 3/31/20-4/6/20

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I have had the vibrational feeling in my legs off and on for the last ten months or so. The symptom is typically worse when I am anxious about something. Often I don't know what I am anxious about, but sharing it out loud to my wife is really helpful. I have to say out loud that I am feeling anxious, my body is tense, I am afraid and so on. Acknowledging my anxiety often serves as a reset of the overwhelming feelings I am experiencing and nine times out of ten it helps. Also, I have taken to telling myself that it is o.k. if my legs are vibrating/trembling and that it is o.k. to be anxious.

 

Another thing I have done is 4-8 breathing. Breathe in for four seconds and then slowly breathe out for 8 seconds. The exact timing isn't important; inhale slowly and then exhale for two to three times longer than the inhale.  Adjust the length and speed of breaths if you get light headed. I do like four or five cycles normally, but will often do more when I am feeling anxious.

 

Sleep hygiene helps. Establish a routine at bed time and stick to it. Dim the lights for a half hour or so before you want to go to sleep. Eliminate all screen time. Read something other than news or current events with a red light. 

 

I use exercise just about every day to help fatigue my legs just a bit. Not too much, though.

 

I have also been taking Benadryl just before bed time to put the tiredness just a bit over the top, which is a bonus now since it's hay fever season.

 

Stretching and massaging my legs before my bedtime routine has also helped once or twice in the past.

 

I hope this helps, CB 

 

Citalopram: 40mg from July, 2007 to May, 2019.

                     Tapered down to 5mg between May, 2019 and August, 2019.

                     20 mg currently.

 

Mirtazapine: 30mg since October, 2019.

 

Melatonin: 6mg since January 2020.

 

Magnesium glycinate: 120mg since January, 2020.

Citalopram: 40mg from July, 2007 to May, 2019.

                     Tapered down to 5mg between May, 2019 and August, 2019.

                     20 mg currently.

 

Mirtazapine: 30mg since October, 2019.

 

Melatonin: 6mg since January 2020.

 

Magnesium glycinate: 120mg since January, 2020.

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Thank you @ChickenBurrito. I don't think Benadryl would be a wise decision for me. I tried D3 yesterday and it set my system in distress

 

May I ask how you manage the pain with this? It's intense today. Head pressure, fire and overall pain. Happened after the shaking last night. Unbearable. Thx

 

 

LZie, Zoloft 25 mg, 3/31/20-4/6/20

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That sounds rough. I have nothing for you. Sorry.

Citalopram: 40mg from July, 2007 to May, 2019.

                     Tapered down to 5mg between May, 2019 and August, 2019.

                     20 mg currently.

 

Mirtazapine: 30mg since October, 2019.

 

Melatonin: 6mg since January 2020.

 

Magnesium glycinate: 120mg since January, 2020.

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  • Moderator Emeritus
On 4/27/2020 at 10:32 AM, Lzieb said:

May I ask how you manage the pain with this?

 

This link is about managing pain.  I hope it helps.

 

Non-drug techniques for dealing with body pain

Gridley Introduction

 

Lexapro 20 mg since 2004.  Begin Brassmonkey Slide Taper Jan. 2017.   

End 2017 year 1 of taper at 9.25mg 

End 2018 year 2 of taper at 4.1mg

End 2019 year 3 of taper at 1.0mg  

Oct. 30, 2020  Jump to zero from 0.025mg.  Current dose: 0.000mg

3 year, 10 month taper is 100% complete.

 

Ativan 1 mg to 1.875mg 1986-2020, two CT's and reinstatements

Nov. 2020, 7-week Ativan-Valium crossover to 18.75mg Valium

Feb. 2021, begin 10%/4 week taper of 18.75mg Valium 

End 2021  year 1 of Valium taper at 6mg

End 2022 year 2 of Valium taper at 2.75mg 

End 2023 year 3 of Valium taper at 1mg

Jan. 24, 2024: Hold at 1mg and shift to Imipramine taper.

Taper is 95% complete.

 

Imipramine 75 mg daily since 1986.  Jan.-Sept. 2016 tapered to 14.4mg  

March 22, 2022: Begin 10%/4 week taper

Aug. 5, 2022: hold at 9.5mg and shift to Valium taper

Jan. 24, 2024: Resume Imipramine taper.  Current dose as of June 28: 5mg

Taper is 93% complete.  

  

Supplements: multiple, quercetin, omega-3, vitamins C, E and D3, magnesium glycinate, probiotic, zinc, melatonin .3mg, iron, serrapeptase, nattokinase, L-Glutamine


I am not a medical professional and this is not medical advice but simply information based on my own experience, as well as other members who have survived these drugs.

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  • 6 months later...

Is tinnitus no.51?

Paroxetine (strength per dose, not actual weight)
Aug 2014: 20mg

?: 10mg

1 Nov 2019: 10mg [per two days]
6 Nov 2019: tinnitus onset
29 Nov 2019: 10mg
2 Dec 2019: 20mg
13 Dec 2019: 30mg

10 Jan 2020: 30 x 0.9 = 27mg [began 10% tapering according to https://www.survivingantidepressants.org/topic/405-tips-for-tapering-off-paxil-paroxetine/]
4 Feb 2022: 1.570042899082082‬‬

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  • Moderator Emeritus
18 hours ago, ViolinStudent said:

Is tinnitus no.51?

Yes.

Gridley Introduction

 

Lexapro 20 mg since 2004.  Begin Brassmonkey Slide Taper Jan. 2017.   

End 2017 year 1 of taper at 9.25mg 

End 2018 year 2 of taper at 4.1mg

End 2019 year 3 of taper at 1.0mg  

Oct. 30, 2020  Jump to zero from 0.025mg.  Current dose: 0.000mg

3 year, 10 month taper is 100% complete.

 

Ativan 1 mg to 1.875mg 1986-2020, two CT's and reinstatements

Nov. 2020, 7-week Ativan-Valium crossover to 18.75mg Valium

Feb. 2021, begin 10%/4 week taper of 18.75mg Valium 

End 2021  year 1 of Valium taper at 6mg

End 2022 year 2 of Valium taper at 2.75mg 

End 2023 year 3 of Valium taper at 1mg

Jan. 24, 2024: Hold at 1mg and shift to Imipramine taper.

Taper is 95% complete.

 

Imipramine 75 mg daily since 1986.  Jan.-Sept. 2016 tapered to 14.4mg  

March 22, 2022: Begin 10%/4 week taper

Aug. 5, 2022: hold at 9.5mg and shift to Valium taper

Jan. 24, 2024: Resume Imipramine taper.  Current dose as of June 28: 5mg

Taper is 93% complete.  

  

Supplements: multiple, quercetin, omega-3, vitamins C, E and D3, magnesium glycinate, probiotic, zinc, melatonin .3mg, iron, serrapeptase, nattokinase, L-Glutamine


I am not a medical professional and this is not medical advice but simply information based on my own experience, as well as other members who have survived these drugs.

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Is feeling exhausted from fighting this fight and feeling like you can’t go on , then going on and later having a feeling that you can get through because you don’t feel the exhausted feeling of fighting , is that a symptom? It’s hard for me to explain sorry 

2021:  started celexa 10mg feb 2nd 

feb 25th took my last 10g; feb 26th 5mg; feb 27th 5mg; feb 28th 2021 cold turkey 

currently taking mag

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  • Altostrata changed the title to Recording drug schedule and symptoms to track patterns and progress
  • 6 months later...
  • Administrator

FYI while rating your symptoms might be of interest to you, we may ask you to keep a daily symptom diary in this format:

 

6 AM woke with anxiety

8 am took 2.5 mg lexapro

10 am stomach is upset

10:30 am ate breakfast

11:35 am got a headache, lasted one hour

12:35 ate lunch

4 pm feel a bit better

5 pm took 2.5 mg lexapro

6 pm ate dinner

9:20 pm headache 

10:00 pm took 50 mg Seroquel

10:30 pm feeling dizzy

10:30 pm fell asleep 

2:30 am woke, took 3 mg Ambien

2:45 am fell asleep

4:30 am woke, but got back to sleep 

 

This does not rate intensity of symptoms but WHEN symptoms occur relative to your drug doses. This is important to understanding the effects of your drugs. Drug adverse effects tend to be most prominent shortly after taking the drug.

 

If you wish, you could indicate intensity of symptoms along with the other events in this format, but we still need to know the timing of your symptoms and drug doses.

 

This technique is explained here:

 

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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  • Altostrata changed the title to Using Dr. Glenmullen's checklist to track symptom patterns and progress

The checklist is really comprehensive but I would like to point out that it doesn’t include all of the possible reactions one can have from WD. When I was suffering last week from my decrease in dosage NONE of what’s listed on this checklist applied. I experienced existential type stuff - I guess you could say intrusive negative thoughts in a way but along the lines of questioning purpose of life.

Lexapro Summer 2014 - March 7th 2023 - 10 mg 1x day

2023 Lexapro tapering: 3/8 - reduced to 9.75 1x day, 3/20 - reduced to 9.5 mg 1x day

Supplements:

Prescription strength fish oil 4g, Vitamin B12 500mg, Folate 400mg, NAC, Vitamin D3 1,000 IU, Lions Mane 500mg, Tumeric 40 mcg, Magnesium 250mg

Past:

2012 - 2020
Trleptal 300 mg 3x a day

2012 - 2014

Cymbalta 30 mg 2x a day

Other medications (short-term and unknown dosages):
Strattera, Latuda, Lamictal (2010 - 2016)

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