Nevertoolate Posted May 13, 2021 Author Share Posted May 13, 2021 So I am still having symptoms after taking the pantaprazole and believe it was caused by them after getting brain zaps some mornings again after 3 years of being off Lexapro. The headaches, fatigue, moodiness and crying spells are still there. It's like being in a wave again. I just keep telling myself this too shall pass but it's hard to think after all this time my body still hasn't healed and is being affected to this extent by three little pills. Lexapro 10MG Almost continually for 25 odd years Reduced to 5MG beginning July 2018- end August 2018 August 2018 til now off completely Link to comment
Nevertoolate Posted May 13, 2021 Author Share Posted May 13, 2021 Forgot to mention I now have tinnitus. Constant ringing, humming, pressure especially in left side of my head, sensitivity to noise. It feels like I'm absorbing /echoing soundwaves. Have never had anything like this before. So guess what I found? A side effect of Pantaprazole is tinnitus. And this.... Tinnitus also could be the result of neural circuits thrown out of balance when damage in the inner ear changes signaling activity in the auditory cortex, the part of the brain that processes sound. Or it could be the result of abnormal interactions between neural circuits. The neural circuits involved in hearing aren’t solely dedicated to processing sound. They also communicate with other parts of the brain, such as the limbic region, which regulates mood and emotion. So am I wrong to think it's possible the pantaprazole has interfered with my already weakened neural circuits and is now causing the tinnitus? I guess I'm just thinking out loud but perhaps this will resonate with or help someone else out to make sense of what's going on. Lexapro 10MG Almost continually for 25 odd years Reduced to 5MG beginning July 2018- end August 2018 August 2018 til now off completely Link to comment
Marta Posted July 19, 2021 Share Posted July 19, 2021 @Nevertoolate are you also dealing with late waves? Do you see improvements? 06/2012 - 02/2015 CIPRALEX 10 mg (for somatic abdominal pain + reflux) - prior to this NOT any significant episode of anxiety/depression on medication: emotional-sexual numbness, total inability to cry, +8 kg, fatigue -> abdominal pain gone 02/2015 - 1/04/2015 tapering from 10 mg to 0 mg doctor advised 05/05/2015 huge anxiety, burning skin sensation, panic, fear, not able to cry again, never-had-before insomnia, totally lost appetite, little loss of vision in one eye, sweating, chest pain, short breath, restlessness, accelerated heartbeat, mild akathisia legs-feet 30/05/2015 reinstated 8mg (I was suggested 5 mg here) middle 07/2015 general improving 10/2015 start disastrous too long taper 7mg 11/2015 6mg 12/2015 5mg 1/2016 4mg 2/2016 4mg 3/2016 3mg ->FAIL back to 4mg .... 8/2016 3mg 8/2017 2mg (short wave in summer '17) 8/2018 2mg stable 8/2019 1mg 1/2020 0.6 mg 1/APRIL/2020 0mg FREE! 7/2020 - 10/2020 MILD WAVE(mostly anxiety, poor sleep) 6/2021 - 9/2021 WAVE (anxiety, severe insomnia, total loss of appetite, deep depression, internal restlessness, anhedonia) 0.125g triazolam 2 times 18/03/2022 WAVE (anxiety, severe insomnia, total loss of appetite, PAIN in muscles and nerves, arms and right leg,cannot exercise,hard to walk) 0.125g triazolam 3 times 7/5 rein 0.1mg Link to comment
Nevertoolate Posted July 20, 2021 Author Share Posted July 20, 2021 Hi Marta Before the incident I wrote about above with the pantaprazole I wasn't so much experiencing windows and waves as such more just a plateau of sitting somewhere in the middle but I could feel a shift. Nothing I could really put a finger on just a sense of something feeling different. The after affects of the pantaprazole incredibly lasted about six weeks but I'm more than happy to share I am finally at a point now where I can safely say I've nearly made it! Almost three years now but the only thing I'm still experiencing is a sensitivity to supplements even fish oil and more than one cup of coffee a day! I'm beginning to feel enjoyment I can laugh and I can cry. If I get negative thoughts I can reason with them and not let them consume me. I think I've won the battle and I hope you and anyone reading this will know you will too! 2 Lexapro 10MG Almost continually for 25 odd years Reduced to 5MG beginning July 2018- end August 2018 August 2018 til now off completely Link to comment
Moderator Emeritus Erell Posted July 31, 2021 Moderator Emeritus Share Posted July 31, 2021 (edited) Thank you so much @Nevertoolate for sharing your update with us, I have this feeling of a plateau you describe and your post is exactly what I needed to hear today ! Thanks for providing hope ! So glad to know you are feeling improvements, so well deserved ❤ Edited July 31, 2021 by Erell 2006 : 20mg Paxil+Bromazepam. 2008 : cold turkey of both. 2010 : Reinstatement 20mg Paxil + Bromazepam. 2014-June2017 : Switch from Bromazepam to Prazepam, slow taper to 0mg. 2018 to August 2019 : Paxil 20mg taper (3% every 15 days). 22 Aug 2019 updose to 10mg (was at 8.4mg). 25th Sept 2019 To April 2020 : found SA, holding at 10mg Paxil. April 2020 : Paxil 10mg to Prozac 7mg bridge. Details : topic/21457 Current Supplements : magnesium citrate + fish oil Current medication : * 7pm Diazepam : 0.85mg (15 Aug 2022) / 0.95 mg (24 April 2022) / 1mg Diazepam (since 29 Aug 2020) * 8am Prozac : 6.16mg (25 oct 2022, feel awful, slight updose) / 6.08 mg (9 oct 2022) / 6.24mg (11 July 22) / 6.44mg (22 May 22) / 6.64mg (4 Nov 21) / 6.72mg (8 oct 21) / 6.8 mg (15 Sept 21)/ 6.88mg (14 Aug 21)/ 6.92mg (23 Jun 21) I am not a professional, I don't give medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. Link to comment
Nevertoolate Posted August 1, 2021 Author Share Posted August 1, 2021 It's so exciting isn't it! I'm so happy for you ❤ you've done it! We all need a gold medal 🏅 for getting through this 😊 Big virtual hugs coming your way xx Lexapro 10MG Almost continually for 25 odd years Reduced to 5MG beginning July 2018- end August 2018 August 2018 til now off completely Link to comment
Phoenixmama Posted August 2, 2021 Share Posted August 2, 2021 @Nevertoolate ❤️ did the symptoms that came back after taking the heartburn meds go away , i was reading your post , and just started crying , i felt so bad for you and hopeless because after three years you had to deal with that.... it sound like your better tho , sending love❤️ and light 🌞 2021: started celexa 10mg feb 2nd feb 25th took my last 10g; feb 26th 5mg; feb 27th 5mg; feb 28th 2021 cold turkey currently taking mag Link to comment
Nevertoolate Posted August 3, 2021 Author Share Posted August 3, 2021 Awww bless you for caring xx Yes the symptoms passed but I'm still dealing with the occasional heartburn nothing as bad as before. I hope you are in a good space in your journey. Take care of yourself 🌹🌹 Lexapro 10MG Almost continually for 25 odd years Reduced to 5MG beginning July 2018- end August 2018 August 2018 til now off completely Link to comment
Katy398 Posted June 18, 2022 Share Posted June 18, 2022 So glad to see that things are improving for you too @Nevertoolate. Lexapro is a tough one!! Sorry the heartburn meds set you back a bit. Thank you for popping by my thread, I am really feeling a shift like you, I also can’t really put my finger on it. On 7/20/2021 at 12:13 PM, Nevertoolate said: more just a plateau of sitting somewhere in the middle but I could feel a shift. Nothing I could really put a finger on just a sense of something feeling different. I’m not ready for a success story yet but I do think it’s well on the way. Take care look forward to hearing about your ongoing progress X Lexapro Fast Track/ Cold Turkey Last dose end Dec 2018 Tapered 1/2 a daily dose a week (20mg) for 14 weeks, last dose was a 20 mg pill!! 3.5 times slower than Psychiatrist recommended, I felt proud of myself!! Little did I know!!!!Got too scared to reinstate because I’d left it too long. On ADs for 20 years (Prozac approx 10 years/ Pristiq approx 3 years/ Citalipram approx 2 years/. Lexapro a approx 5 years/. Last two years 40mgs Lexapro day. Link to comment
Moderator Emeritus arbor Posted September 5, 2022 Moderator Emeritus Share Posted September 5, 2022 I hope you're continuing to feel impovement @Nevertoolate 💜 Sending best wishes, Arbor 1 Zoloft: 1995 - 2015 Prozac: 2015 - 2018 (tapered from 40mg x day on July 31 to 30mg on August 31 to 20mg on September 31 to 10mg October 31 to 0mg on December 15, 2018 Gabapentin: 2016 to 2019 (tapered from 300mg x day to 150mg on August 31, 2019 to 75mg on September 15 to 50mg on September 31 to 25ishmg on October 15 to 0mg on December 1, 2019 Enalapril: 2010 - 2019 Lipitor: 2017 -2017 Metformin: 2000 - 2020 Liothyronine: 2007 - 2019 Levothyroxine: 2000 - 2022 Link to comment
Nevertoolate Posted September 6, 2022 Author Share Posted September 6, 2022 Thank you Arbor. I also wish you all the best on your journey x 1 Lexapro 10MG Almost continually for 25 odd years Reduced to 5MG beginning July 2018- end August 2018 August 2018 til now off completely Link to comment
Nevertoolate Posted January 2, 2023 Author Share Posted January 2, 2023 Haven't updated for a while so here it is. Not the best news really. It's been 4 years now and all I can say is I feel I've been permanently damaged by the long years of being on these meds. The best way to describe how I feel is not having a real sense of any emotions. For example I know in my heart I love my kids and grandies they are my life but my emotional self doesn't "feel" it. You know when you look at a baby or someone you love and you get that "rush"? It's just not there. It's like being dead inside. I feel I'm just faking my way through all my emotional reactions. My memory is another one. I get small glimpses of something special like the birth of a grandie or a special occasion but I still don't "feel" anything. My memory is not good at the best of times anyway. Emotionally I am still very much just flat most of the time. I think after all this time this is where I'm going to be now. I'm 66 now so I guess it's better than being young and living with the damage for the rest of an extended life. Physically I'm also still affected my some vitamins and medications. If I drink more than a quarter glass of wine I suffer for days. I just wish I knew then what I know now. 1 Lexapro 10MG Almost continually for 25 odd years Reduced to 5MG beginning July 2018- end August 2018 August 2018 til now off completely Link to comment
Mentor ang Posted January 2, 2023 Mentor Share Posted January 2, 2023 Hi, I thought the same when I tapered, and got off the pills. I never thought I would ever have a relationship again, or feel that caring and love for anyone. I was wrong. It came back. It just takes time to heal. We have amazing bodies and brains, they do recover and adjust back to a human normality. I hoped for it to come back, but it sort of crept up on me, and reading your post made me realise how my "human spirit" has returned. 4 1992 Dothiepin 375mg 8 weeks, exhaustion/depression. Serotonin syndrome, oh yes! seizures . Fell pregnant, 3rd baby, Nitrous Oxide, 3 weeks mental hospital pp psychosis. zoloft tegretol. Feb 1996 ct tegretol, tapered Zoloft 8 weeks. as (unexpectedly) pregnant. Steven died after 3 days.(Zolft HLHS baby). 98 had run in with Paxil, 2 tablets, 3 weeks taper, survived.2005..menopause? exhausted again. Zyprexa, mad in three days, fallout.... Seroquel, Effexor, tegretol, and 8 years of self destruction. Failed taper.Damn 1/4 valium... nuts again! .fallout, zoloft 100mg seroquol 400mg mirtazapine 45 mg tegretol 400mg. Mid 14 3 month taper. Nov 14 CRASH.Mid 15 .... 75mg seroquel, 3 x 1800mg SJW 2 week window end of December followed by 6 week wave5/2 68mg seroquel, 2.5 x 1800mg SJW::::20/2 61mg seroquel, 2.5 x SJW::: 26/2 54mg seroquel, 2 x SJW::::21/3 43mg seroquel, 1 x 2700SJW :::: 23/4 36mg seroquel 1 x 1800 SJW15/5 33mg seroquel, 1 x SJW:::: 28/5 30mg seroquel, 1 x SJW::::; 18/6 25mg seroquel 1/2 SJW::::, 11/7 21mg seroquel 1/2 SJW::, 26/7 18mg seroquel 1/2 SJW:::, 9/8 12mg seroquel :::, 16/8 6mg seroquel ;;;;, 12/9 0 jump. 23/9 3mg....., 27/9 0mg. Reinstated, 6mg, then 12mg............. LIGHTBULB MOMENT, I have MTHFR 2x mutations. CFS and issues with MOULD in my home. So I left home, and working 150km away during week, loving it. Oh was hard, panic attacks first week, gone now, along with the mould issues. Link to comment
Moderator Emeritus arbor Posted January 2, 2023 Moderator Emeritus Share Posted January 2, 2023 Dear @Nevertoolate I know how frustrating it can be. So hard to hold the belief that it can get better. Hang in there. It isn't unusual to take longer than 4 years for some of us to improve. I send you healing wishes especially during the rough patches, Arbor 2 Zoloft: 1995 - 2015 Prozac: 2015 - 2018 (tapered from 40mg x day on July 31 to 30mg on August 31 to 20mg on September 31 to 10mg October 31 to 0mg on December 15, 2018 Gabapentin: 2016 to 2019 (tapered from 300mg x day to 150mg on August 31, 2019 to 75mg on September 15 to 50mg on September 31 to 25ishmg on October 15 to 0mg on December 1, 2019 Enalapril: 2010 - 2019 Lipitor: 2017 -2017 Metformin: 2000 - 2020 Liothyronine: 2007 - 2019 Levothyroxine: 2000 - 2022 Link to comment
Nevertoolate Posted January 3, 2023 Author Share Posted January 3, 2023 Thank you Arbor xx Bless you too and let's hope this year brings us all some peace and healing. 1 Lexapro 10MG Almost continually for 25 odd years Reduced to 5MG beginning July 2018- end August 2018 August 2018 til now off completely Link to comment
andy96gr Posted November 17, 2023 Share Posted November 17, 2023 Hiw are you doing now @Nevertoolate🙂? •01/2017-12/2022 ~6 Years on Generic Escilitopram (5mg-20mg) because of repetitive panic attacks and anxiety that lead to depression. My tapering was not tapering as I read here. I consider it CT because of wrong directions of docs, I went from 20mg to 5mg in a short amount of time and then jumped to 0mg. •01/07/23 Took maca root powder for pssd for 4 days only which I think worsened my symptoms a lot.(Not sure if that was the cause or what came was supposed to come) •15/07/23-01/08/23 Prebagalin) 2x50mg 01/08/23 - 05/08/23. 75x50mg 06/08/23 - 18/08/23 2x75mg an then reduced 19/09/23 - 23-09 to 75x50mg 24/09/23 - 1/12/23 2x50mg. 1/12/22- ongoing 2x45mg( on first week of December happened a mistake in liquid I made and took 4 times double dose ) 15/01/24 - ongoing occasional 5mg diazepam for anxiety. Link to comment
Nevertoolate Posted November 19, 2023 Author Share Posted November 19, 2023 On 11/17/2023 at 4:51 PM, andy96gr said: Hiw are you doing now @Nevertoolate🙂? I wish it was better news but it's been 5 years now and I still don't "feel" like I'm functioning like I should. It's not an emotional roller-coaster it's just a steady line of nothing much. Existing but not really living is the best way to put it. How are you going? Lexapro 10MG Almost continually for 25 odd years Reduced to 5MG beginning July 2018- end August 2018 August 2018 til now off completely Link to comment
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