TurkeyCold Posted June 6, 2019 Share Posted June 6, 2019 Hey there, I've been following topics on this website and it's German equivalent (adfd.org) for quite a while as a silent observer and the knowledge I gained here and there helped me tremendously. Otherwise, I would be caught deeply in the psychiatric mill these days for sure. I am 29 years old/male from Germany with a long history of depression/dysthymia/melancholia/call it whatsoever. 3 Therapies didn't get to the root and this caused me to give it a try with Duloxetin/Cymbalta in autumn 2015. The psychiatric support I had since then was lousy due to lacking knowledge and ended up in a first CT in April 2016 with 1 week of disease: brain zaps, flu, nausea, headache and so on. After then: Everything fine for a while until a mental breakdown came 4 months later and of course I reinstated the former full dose of Cymbalta. The 2 cold turkeys after were rather smooth, at the beginning always accompanied by these thoughts: "Yes, I've made it. No problem for me to get off at all." But the mental breakdown (depression, crying spells, inner emptyness) came months later. Of course I didn't reflect it that way in those years, otherwise I wouldn't have caused so much violence to my system ... November 2017 was a bit special because I started to experience maniac episodes with huge amounts of energy shooting through my body, and I finally started to sense that sth. was going fairly wrong here. I jumped off for the third time, travelled to India, had a breakdown in February 2018 but no possibility to get a new dose without travelling back to Germany, which I didn't because I am super stubborn sometimes. Instead I rushed through South India (not knowing what was happening) in a constant mode of flight and aggression, flying to Sri Lanka where I was bitten by a street dog (calming me down in a way which was good in these days). I returned to Germany in March 2018. Starting a super stressful job as a vegetarian cook in April I soon feel back into old patterns of depression and emptyness which made me trying out another SNRI (Milnacipran). This went terribly wrong because my CNS didn't tolerate the dose and a suicidal sword of thoughts caused me insomnia, terror and endless pain for weeks. I decided: No more substances. And then, after weeks, I discovered this website and adfd.org and understood what I had done all the time... About one year is over since my last dose of poison and I can assure you that I have suffered enormously. The first 4 months were a pure mental hell and I even failed to kill myself in a friends flat. The only physical effect I felt was a huge urge to eat carbohydrates and sugar, in high times I consumed 5 bars of chocolate which is about 500 gram. I was disgusted by myself day by day by day unable to change anything because the body chemistry was so unbalanced. Month 5 and 6 I experienced as maniac windows, exhausting myself, doing too much, working too much as a driver, thinking I was all through. I wasn't. In November 2018 mental clarity slowly came back, brain fog faded more and more but therefore physical problems started: Skin rash all over my back Whole body pain emanating from my brain Strong headache After waking up a feeling of being overrun by a truck Chronique Fatigue Restlessness Physical tension Phases of cognitive shutdown Of course, there are many more symptoms in this process of healing that come and go. What helped me: Acceptance Acceptance Acceptance Forgiveness Knowledge Knowledge Knowledge Self-love Loving others Hope These days I am living alone after living in a flat-share became too exhausting for me, most of my social contacts have broken up and I'm fine with that. It's better this way as long I am healing. The people which helped me most are ironically people who don't know me, here a list: Alan Watts (I've listened to almost any of his talks on Youtube. Just brilliant ...) Sadghuru (Same is valid for him) Eckhart Tolle from time to time (he can be a bit exhausting) Friedrich Nietzsche Franz Kafka ("You are the task, no pupil far and wide") Eric Fromm Jiddu Krishnamurti Terence McKenna (The self-empowering talks, less the drug and mushroom stuff) Jack Kornfield Mike Hellwig (German therapist who advocates the principle of Radical Allowance) Jens Böttcher (German musician singing about love and peace) Simone Weil Tony Robbins in a certain way Jordan Peterson as a negative and desperate role model I only know one person in my surroundings who has gone through comparable suffering. He is a good friend and I talk to him from time to time. Fortunately, I have caring and loving parents. I did not always think that way about them, but they are a real gift. These days I am waving between inner peace, physical pain, enormous aggression, deep depression with suicidal thoughts and universal love. It's paradox. Nonetheless my general condition has improved a lot. When I'm not bedridden, I go swimming or do Yoga. Jogging is too intense for me most of time. Long walks in nature are a must. My diet has become super healthy and nutritious. I would consider it as a mixed approach with knowledge from the fields of whole-food-nutrition, Ayurveda and clean eating. I eat mostly vegan, some eggs and a bit fish every week. No milk and meat, no processed food, no industrial sugar. Since Sunday I am completely unemployed, until then I worked here and there but my CNS has clearly shown me that he doesn't want to be exposed to any form of stress at the moment. And the biggest insight on this journey: I have caused it, I will make it through. No one to blame, not even myself. Yours, C. 2 Medical history: 11/2015 - Duloxetin 30mg, 12/2015 - Duloxetin 60mg, 4/2016 - CT 8/2016 - Duloxetin 60mg, 2/2017 - Duloxetin 30mg, 4/2017 - CT 7/2017 - Duloxetin 60mg, 9/2017 - Duloxetin 30mg, 11/2017 - CT 3.5.2018 - Milnacipran 25mg, 10.5.2018 - Milnacipran 50mg, 20.5.2018 - Milnacipran 25mg, 24.5.2018 - CT and protracted WD Supplements: none Link to comment
Moderator Emeritus Songbird Posted June 10, 2019 Moderator Emeritus Share Posted June 10, 2019 Hello TurkeyCold, welcome to SA. I'm sorry you didn't find us in time to do a slow taper, but it sounds like you have been doing brilliantly with non-drug coping techniques and adopting a healthy diet and lifestyle. We ask all members to create a signature containing a summary of med history, including all drugs, doses and dates (starting and stopping). Your signature appears below every post you make, and allows us see your situation easily without having to read through your topic every time. You could look at my signature for an example. Instructions for creating your signature are here: Please put your withdrawal history in your signature. You can edit your signature here: edit your signature in Account Settings. How long were you taking the milnacipran? It sounds like you experienced an adverse reaction to it. These reactions can produce symptoms very similar to withdrawal. It's good to hear you have had some improvement in the past year. I'm wishing you continued healing. 2001–2002 paroxetine 2003 citalopram 2004-2008 paroxetine (various failed tapers) 2008 paroxetine slow taper down to 2016 Aug off paroxetine2016 citalopram May 20mg Oct 15mg … slow taper down2018 citalopram 13 Feb 4.6mg 15 Mar 4.4mg 29 Apr 4.2mg 6 Jul 4.1mg 17 Aug 4.0mg 18 Nov 3.8mg 2019 15 Mar 3.6mg 21 May 3.4mg 26 Dec 3.2mg 2020 19 Feb 3.0mg 19 Jul 2.9mg 16 Sep 2.8mg 25 Oct 2.7mg 23 Oct 2.6mg 24 Dec 2.5mg 2021 29 Aug 2.4mg 15 Nov 2.3mg Link to comment
TurkeyCold Posted June 10, 2019 Author Share Posted June 10, 2019 Hello Songbird, thanks for approving my first post and your response. I am a bit confused since I created a signature according to the guidelines, maybe it's not visible? I took Milnacipran for 3 weeks and it's definitely been an adverse reaction I experience(d) that made a lot of things a lot worse than before. 4 CTs were just enough for my CNS and I totally understand this. I have to fight a lot again these days, especially the food cravings have come back and although I manage to stay away from white sugar I did binge-eating twice these days with dried fruits, nuts, noodles and other stuff from my kitchen. Especially the night and the next morning is really bad then usually since I feel completely hung over 😥 C. Medical history: 11/2015 - Duloxetin 30mg, 12/2015 - Duloxetin 60mg, 4/2016 - CT 8/2016 - Duloxetin 60mg, 2/2017 - Duloxetin 30mg, 4/2017 - CT 7/2017 - Duloxetin 60mg, 9/2017 - Duloxetin 30mg, 11/2017 - CT 3.5.2018 - Milnacipran 25mg, 10.5.2018 - Milnacipran 50mg, 20.5.2018 - Milnacipran 25mg, 24.5.2018 - CT and protracted WD Supplements: none Link to comment
Moderator Emeritus Songbird Posted June 10, 2019 Moderator Emeritus Share Posted June 10, 2019 Thanks for creating a signature, sorry I don't know why I didn't see it before, but I can now. I'm very impressed with all the things you've done for yourself to help your recovery. It's good to hear of your improvements. 2001–2002 paroxetine 2003 citalopram 2004-2008 paroxetine (various failed tapers) 2008 paroxetine slow taper down to 2016 Aug off paroxetine2016 citalopram May 20mg Oct 15mg … slow taper down2018 citalopram 13 Feb 4.6mg 15 Mar 4.4mg 29 Apr 4.2mg 6 Jul 4.1mg 17 Aug 4.0mg 18 Nov 3.8mg 2019 15 Mar 3.6mg 21 May 3.4mg 26 Dec 3.2mg 2020 19 Feb 3.0mg 19 Jul 2.9mg 16 Sep 2.8mg 25 Oct 2.7mg 23 Oct 2.6mg 24 Dec 2.5mg 2021 29 Aug 2.4mg 15 Nov 2.3mg Link to comment
TurkeyCold Posted June 10, 2019 Author Share Posted June 10, 2019 Thanks again for appreciating! 😉 At least two really important persons I forgot to mention in my initial post: Gabor Maté and his talks about trauma and addiction (made me understand why I fought with alcohol, cigarettes, Mariuhana, internet and porn addiction for many, many years) and Haruki Murakami (His amazing novels helped me through my darkest hours - those where I was capable of reading - to escape this world and its inherent nightmare, unfortunately, I have read nearly everything written by him by this time. Today I want to talk about food. As of yet I cannot tell a success story but I'm convinced that I can give lots of hints and advice regarding a healing diet. My principles were these: Question everything you did so far, try things, everything matters (even if it's only a tiny bit). And although these things worked for me, I don't regard them as absolute truths since every organism is different, reacts differently. Go whole grain: Although whole grain contains more anti-nutrients than refined grain/flour this disadvantage is in my opinion outweighed by the fact that you consume roughage (find a level your gut can tolerate for the moment and increase slowly), more iron, zinc, vitamin B1 and B2, folate and magnesium compared to refined flour. Packed oatmeal isn't fully whole grain anymore because it gets heated (always!) for preservation. While heating many fatty acids get destroyed, those which would cause the oatmeal to become rancid pretty quickly. If you eat oats in the morning or another time of the day you should think of acquiring a flaker to produce your own (oat)meal. The difference in taste is enormous. In the long run you save packaging and a good flaker should last many years if you invest some money and treat it well. Since I changed to whole grain step by step my cravings for sugar and carbohydrates in general have reduced a lot compared to last summer where it was horrendous. After having squeezed the grain make sure to soak the grain in water for a while because in that time phytic acid gets reduced. Fresh oats are a bit special because they contain more fat than other grain (7%) so don't make them soak for too long. And go into variety and try other grain, e.g. wheat or spelt, as well. When buying sourdough bread make sure it's a good and not industrial one, since the industry ferments the dough only for a short time and all the health benefits you usually had are gone. Which would be: good digestibility and probiotics. Many people have problems with industrial "sourdough" breads because many additional ingredients are used and the lactic acid bacteria don't get enough time to work. If you grind your own flour, even better! Yeast bread is easy for the beginning, you can experiment with sourdough and Indian cuisine offers options as well. I often make simple Roti with wheat or spelt and they come off quite well now. Brown Rice is a bit difficult because there have been reports about traces of arsenic. I eat it from time to time washing it thoroughly before and soaking it for a while before cooking gently. Not the food to eat daily as a Western person in my opinion since it is import food. The nearest we can get here in Germany is rice from Italy. Make sure you eat probitiocs, your gut will give thanks. This point is rather new for me but I am convinced that this may help your system as well. The traditional way to consume probiotics was to eat certain milk products, most established is yoghurt of course, but cheese and kefir contain lactic acid bacteria as well. Unfortunately, I react badly to caseine since my youth - this took me really long time to figure out - so milk products are not an option for me. Fortunately, there are tons of options these days so you can choose from a big variety of fermented food: miso, sauerkraut (make sure it's not been industrially heated, otherwise there's not a single lactic acid bacteria in it), fermented juices (my favourite is carot juice), kombucha, tempeh and cider vinegar. By the way it's pretty easy to produce your own fermented vegetables. You just need a canning jar that doesn't close its lid too tight. Then you shred the vegetable you like - starting with a cale, carrot mix is easy, fermenting tomatoes and other stuff is possible as well. Squeeze out the juice, mix with salt (20 gram of salt go for 1 kg of vegetables) and cram it firmly into the canning jar. Everything should be covered with liquid because it could mould otherwise. Keep it in a dark place and move it to the fridge or cellar after 7 days. After 14 days total the fermentation should be finished. You can keep the jar in your fridge for months, even if you opened and started eating from it. Go nuts but don't go crazy: My "diet" contains almost any kind of nuts and seeds available except cashews, pine nuts and pistachios. For these import distances are really far from Europe. The benefits of seeds and nuts are enormous. They contain huge amounts of non-saturated fatty acids (those your body is not able to produce on its own), iron, magnesium and B-vitamins which are central when it comes to energy metabolism and cognitive processes. I eat a mix of fresh nuts which I soak in salt water over night do decrease anti-nutrients, roasted nuts and different types of seed/nut butter. Flax seed, hemp seed, chia and poppy seeds freshly squished are added as well. They contain huge amounts of protein and ALA which is the plant omega-3 acid. It's not converted as good as the other two types of omega-3 (DHA and EPA) but the effect should still a positive one offering your system some variety. Furthermore these seeds have digestive effects, start with low doses and find an appropriate level. I like them squished in my porridge. To be honest I don't know how important selenium is to our body but I eat two Brazil nuts every day which should saturate the need for this dietary mineral. Eat as fresh as possible, eat organic, eat some raw food: The first point was definitely inspired by Ayurveda where it's said that the quality of food decreases rapidly after it's cooked. They recommend to eat cooked food maximum one day after its preparation. And if you got the time, why not cooking a fresh meal every day if this may shorten the process of healing. Since we live in times where the deprivation of soil has sadly reached an unhealthy level you should think about switching from conventionally grown and produced food to organic food. Even if you don't share any ethical implications or whatsoever just think about that: For healing itself your body needs a decent amount of nutrients, since the soil of the industry becomes poorer and poorer it's not guaranteed that products grown on that soil contain these nutrients anymore. Your inner buffet becomes meager and that's not what you want. Even if you're miserable you want your body to have all the building material to rebuild it's old structure. And a lot of material is needed, that's for sure. The same is valid for indirect plant products like eggs, milk, meat and fish. Just consider what these beings eat that you finally eat. Poor food or nutritious food? For a few weeks I got stuck on the idea that going on a raw food diet must be it. Feeling cold and dissatisfied after a while I quit that experiment and mixed approaches again, trying to have some raw ingredients in every meal (often a salad, raw seeds or nuts, something fermented). Raw food challenges the digestive system in a positive way if you don't exaggerate and delivers other nutrients than their cooked equivalents. A good example is the carrot: uncooked it contains more vitamins but when you cook it beta-carotene (and its antioxidant effect) are better available for your body. There is some more I can talk about: Sprouts and micro greens, sugar replacement, herbs and more. I hope you like that stuff, guys ... C. 2 Medical history: 11/2015 - Duloxetin 30mg, 12/2015 - Duloxetin 60mg, 4/2016 - CT 8/2016 - Duloxetin 60mg, 2/2017 - Duloxetin 30mg, 4/2017 - CT 7/2017 - Duloxetin 60mg, 9/2017 - Duloxetin 30mg, 11/2017 - CT 3.5.2018 - Milnacipran 25mg, 10.5.2018 - Milnacipran 50mg, 20.5.2018 - Milnacipran 25mg, 24.5.2018 - CT and protracted WD Supplements: none Link to comment
TurkeyCold Posted June 11, 2019 Author Share Posted June 11, 2019 Eat green. And I literally mean green: Studies have shown that the consumption of greens, i.e. chlorophyll and its resemblance with hamoglobin, has positive effects on cleaning the blood and the development of new blood cells. I don't have to explain how important a decent quality of your blood flow is when it comes to the time it takes to rebuild your inner system. You want proper and fast streets not mogul slopes with holes in it. I developed cravings for broccoli the last few weeks and I love to follow these cravings since they have a reason often enough. Try to get reconnected to your gut (feeling). I started to produce my own sprouts. Radishes work well and are most beautiful to look at, a rather mild option is alfalfa. Mung beans are also pretty easy to start with, additionally I sometimes use brown lentils. There is lots of guidance on the internet. Rather new for me is growing micro greens. I use simply plates, cover them with some potting compost and spread the seeds - usually cress, broccoli, arugula and red clover, there are many more to try. Cover them for the first 24 hours and then let them free and make sure they are moist and warm enough and get some sun. They are amazing to sprinkle them over curries, supps, stews or as a topping on a slice of bread or in/as a salad. Use proper cooking tools, try cast iron: Step by step I have been exchanging my cooking equipment to cast iron because of its durability and because of the small extra portion of iron that it releases every time when heating, cooking, frying something. This is especially interesting for people who don't eat meat and want to make sure - beside other measures - that they ingest sufficient amounts of iron. According to my blood tests the in last 2 years I was on the low edge of B12 and iron so this makes perfect sense for me. Even my family doctor advised me to give cast iron a try besides supplementing a fair amount. If you are a passionate meat eater this shouldn't be a big issue for you. Use spices and herbs: This may sound rather trivial but you might give it a try using more spices than the old salt, pepper, paprika combination. Spices have many benefits for your whole system, a classical example is the calming effect of cumin on your digestion. Since I had times where I struggled with constipation or flatulence I have become a big fan of jeera when cooking indian dishes. Another good option are anise-fennel-cumin teas that I drink one or two hours after a meal. I don't want to write too much about curcuma (in combination with some freshly ground black pepper) and cinnamon since their benefits should be common sense meanwhile. Other spices I use are: nutmeg, cilantro, mustard seeds, small doses of chili, kala namak and so forth. Also think about investing some more money for a decent salt. I recently found out that the brine salt I used is industrially cleaned and that way deprived of its calcium, magnesium and other minerals. Even if the difference appears to be marginal, why using a deprived product that "enriched" with anticaking agents on top? Herbs are amazing. I have become a fan of using decent amounts of parsley, koriander and basil in my diet. They contain iron and huge amounts of vitamins. Furthermore, they add nice freshness to your dishes. If you're fancy you can make pestos, sauces or chutneys with them. Some herbs I grow on my own in my small apartment and it's nice to take care of them. The rest I buy here and there. In spring I had a phase where I used edible wild herbs like dandelion, garlic mustard, chickweed and stinging nettle. Wild herbs exceed their cultivated equivalents by far in nutrients so you can give them a try if you have access to a place where they grow cleanly. Treat water with reverence: This point is rather esoteric and goes back to the following video. In a way his point makes perfect sense for me that water is the most important factor in your system simply because of it's sheer proportion. Here in Germany we have excellent tap water that often exceeds the quality of bottled waters. On top of that I have bought a nice clay jug where I store some water to make tea or cook food with. Just by doing that my appreciation for water has increased and I'm sometimes glad "how it waits there for me". Remind yourself: Having clear and unpoisened water is a privilege many, many people have no access to. Before that I always unconsciously hit the tap and took for guaranteed what came out of it. Establish (hygienic) rituals: I started to do oil pulling every morning. After 15 to 20 minutes I use a tongue scraper and brush my teeth with a tooth paste without fluoride. In the evening I use dental floss. Find out when it's appropriate for you to drink. According to Ayurveda it's recommended to stop drinking some time before, around and after a meal since you don't want to dilute your digestive juice too much. This might be helpful for people having issues with their digestion like me. Furthermore, they recommend to avoid super cold drinks, especially when eating. Eating french fries with an ice cold Coca Cola might sound seductive for some of you but might not be helpful with your well being in the long run. If you have not already done that: Invest some money into a decent mattress. Sleeping on a comfortable mattress can improve the quality of your sleep significantly, and I don't have to emphasize the importance of enough and good sleep in a process of cognitive healing. Some of you have big issues with their sleep and I feel really sorry for them. I have/had times with sh*tty sleep but for the most time it's okay and I am really glad for that ... I have become a big fan of my futon which is placed on two tatamis (rice mats). The grounded sleep I get from that gives me lots of comfort. Every morning and evening I try to do some stretching in my bed before or after sleeping. Often enough my body is full of painfull stiffness, but whenever I feel comfortable I do it. 2 Medical history: 11/2015 - Duloxetin 30mg, 12/2015 - Duloxetin 60mg, 4/2016 - CT 8/2016 - Duloxetin 60mg, 2/2017 - Duloxetin 30mg, 4/2017 - CT 7/2017 - Duloxetin 60mg, 9/2017 - Duloxetin 30mg, 11/2017 - CT 3.5.2018 - Milnacipran 25mg, 10.5.2018 - Milnacipran 50mg, 20.5.2018 - Milnacipran 25mg, 24.5.2018 - CT and protracted WD Supplements: none Link to comment
Moderator Emeritus ChessieCat Posted June 11, 2019 Moderator Emeritus Share Posted June 11, 2019 19 hours ago, TurkeyCold said: I am a bit confused since I created a signature according to the guidelines, maybe it's not visible? Hi turkeycold, and welcome from me too. When we first join as a member we complete a drug history, which is only visible to admin. The drug signature is a different thing and it appears below every post you make so that we can see your drug history at a glance. I got confused by it when I first joined.😊 * NO LONGER ACTIVE on SA * MISSION ACCOMPLISHED: (6 year taper) 0mg Pristiq on 13th November 2021 ADs since ~1992: 25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq: 50mg 2012, 100mg beg 2013 (Serotonin Toxicity) Tapering from Oct 2015 - 13 Nov 2021 LAST DOSE 0.0025mg Post 0 updates start here My tapering program My Intro (goes to tapering graph) VIDEO: Antidepressant Withdrawal Syndrome and its Management Link to comment
TurkeyCold Posted June 13, 2019 Author Share Posted June 13, 2019 If you have the intention to renew yourself, do it daily. (Konfuzius) Food cravings have gone for the moment and I am really thankful for that since they disconnect me from my essence and wellbeing fiercely. Nonetheless, no day/night without a symptom so I have pretty tight hamstrings since 2 days. I will buy a fascia roll today and give it a try. It should give me some release at least if I work on the tight muscles gently. Another author I want to recommend is Prentice Mulford. Time of his life he was kind of an outlier in society and in the literary world but I found his writings to be refreshing and off the usual track of thinking through reality. Unfortunately, his main work "Unfug des Lebens und des Sterbens" (which would be something like "Mischief of living and dying" in English) is only available in German as far I can see but there other options you have, e.g. "The god in you", "Thoughts are things" and "Your forces and How to use them". Furthermore, I wanna recommend the podcast www.oneyoufeed.net. About one year ago I listened to that podcast extensively since they cover significant issues for me: walking the path of healing, what is addiction?, spirituality, personal growth and change among others. Eric Zimmer, the speaker, says about himself: "At the age of 24, I was homeless, addicted to heroin and facing long jail sentences. In the years since I have found a way to recover from addiction and build a life worth living for myself." Fittingly the title of their newest podcast (284) is "Donna Hylton on Healing and Hope". A further measure I adopted on my path: Go into the dirt and arrange your things: Long ago we have been children ourselves who loved to play in the dirt, jumped into wet spots with big joy and collected snails and insects in the sandbox. Children love to do that, adults usually don't. We don't, so over the years there is a literal and imaginary heap of dirt growing in our lifes that we don't manage to cope with, let it be concrete things like furniture, trinkets, rather "dead" friendships with people we don't share anything with (anymore) or abstract things like memories, opinions, fears and worries. We usually avoid that dirt, suppress it and try to cover or compensate. But there is no place called "away" on this planet so that dirt will come back to you sooner or later and disturb you in many ways. And at some point our life itself becomes a mess. There is a great message and it may sound dreamy: Your dirt is your gold. Rainer Maria Rilke, a German poet, said something that goes into the same direction: "Fears are the dragons which guard our biggest treasures." So what did people to obtain their gold in the past? They dug, they washed, they sifted. And that's what you should see it like. So I went into the dirt. Literally, by sorting out things from my tiny household. I sold them, I gave them as a present, I littered them. Whatever appeared useless and/or wasn't used for years became a suspect and I haven't missed a thing so far. Clearing up in the outer world clarifies things in your inner world, that's for sure, and inner clarity is something we really need these days, not only with a bombed brain in withdrawal. Simultaneously, the rather imaginary dirt began to clear up and I began to see this world and the people around me more clearly. Many, many opinions and conclusions I had about my life and my environment turned out to be strong negative projections that came from my inner world. If your inner life is a mess the outer world is a mess for sure. I don't think that we can completely live without projections but when I get the choice I'd rather live with peaceful, joyful and clear projections than the ones I lived with. In this context a friend of mine mentioned Marie Kondō a few months ago. I wasn't familiar with her before but some of her principles of order go into the same direction of implicit thoughts that I had while rearranging things in my life: every thing its place, what's used can stay, and so on. Of course there are other and older traditions dealing with the arrangement of objects, namely Feng Shui and Sthapatya Veda - rather emphasizing harmony in architecture and existence. Something very remarkable my second psychiatrist said - it must have been around June after I had omitted the Milnacipran - was: "You seem to be an intelligent person but you need some order." After that she handed me over a prescription for Lamictal/Lamotrigin which is - fun fact - sometimes used in low doses to compensate side effects of antidepressant withdrawal. Of course she didn't know anything about that and did not have that intention. I never took it but here quote remained since that time. So I highly recommend you to go into the dirt, it's worth it. And the good thing about it: We all have more than enough of it 😀 C. 1 Medical history: 11/2015 - Duloxetin 30mg, 12/2015 - Duloxetin 60mg, 4/2016 - CT 8/2016 - Duloxetin 60mg, 2/2017 - Duloxetin 30mg, 4/2017 - CT 7/2017 - Duloxetin 60mg, 9/2017 - Duloxetin 30mg, 11/2017 - CT 3.5.2018 - Milnacipran 25mg, 10.5.2018 - Milnacipran 50mg, 20.5.2018 - Milnacipran 25mg, 24.5.2018 - CT and protracted WD Supplements: none Link to comment
TurkeyCold Posted June 15, 2019 Author Share Posted June 15, 2019 You can't choose your pain but you can choose your suffering. Once in a while I get hit by really severe depression. It's not comparable to any of my other states (where I am also often depressed) since this state is even below zero and it was tremendously difficult for me to deal with it in the past but I do much better compared to what I did one year ago. These occasional states have not lost in their intensity, and if I had to make a guess I experienced them about 20-25 times so far. Everything shuts down. Any inner vividness is gone. Completely. My arms get tense, my head becomes enormously heavy. The only thing I want now is: not to be. I can't sleep over it. Doing anything is difficult, doing nothing is even more difficult. It feels like the trap of nothingness and I am in it. Everything out there doesn't touch me anymore. I am my own cosmos of nothingness. I Will always be there. That's in a way how I feel and think in those phases and if I had to choose which of my symptoms is the most difficult one to deal with, it's this I think although the physical consumption comes close behind. Yesterday I had a really long phase of nothingness, it must have taken 10-12 hours which is exceptional long for me. I made it through "well", developing some kind of inner script (1. Accept where you are 2. Deep pain means deep healing 3. Classify the phase, it's not been like that for the rest of the week, it will not be like that forever 4. The evening will be better) and going into the spirit of this dark feeling. The evening got better indeed and I managed to do some yoga, extremely slow and difficult to stay in it, but I felt that shifting inner pain to outer pain (by stretching) helps me sometimes. Afterwards I appreciated myself by preparing a delicious dinner including brown rice, salad, different sauces, leftover curry and a salmon steak. I try to enjoy myself under any circumstance and things get better and better while healing goes on. C. 1 Medical history: 11/2015 - Duloxetin 30mg, 12/2015 - Duloxetin 60mg, 4/2016 - CT 8/2016 - Duloxetin 60mg, 2/2017 - Duloxetin 30mg, 4/2017 - CT 7/2017 - Duloxetin 60mg, 9/2017 - Duloxetin 30mg, 11/2017 - CT 3.5.2018 - Milnacipran 25mg, 10.5.2018 - Milnacipran 50mg, 20.5.2018 - Milnacipran 25mg, 24.5.2018 - CT and protracted WD Supplements: none Link to comment
Moderator Emeritus Gridley Posted June 15, 2019 Moderator Emeritus Share Posted June 15, 2019 9 hours ago, TurkeyCold said: developing some kind of inner script Sounds like you've developed some very good coping skills, TC. Gridley Introduction Lexapro 20 mg since 2004. Begin Brassmonkey Slide Taper Jan. 2017. End 2017 year 1 of taper at 9.25mg End 2018 year 2 of taper at 4.1mg End 2019 year 3 of taper at 1.0mg Oct. 30, 2020 Jump to zero from 0.025mg. Current dose: 0.000mg 3 year, 10 month taper is 100% complete. Ativan 1 mg to 1.875mg 1986-2020, two CT's and reinstatements Nov. 2020, 7-week Ativan-Valium crossover to 18.75mg Valium Feb. 2021, begin 10%/4 week taper of 18.75mg Valium End 2021 year 1 of Valium taper at 6mg End 2022 year 2 of Valium taper at 2.75mg End 2023 year 3 of Valium taper at 1mg Jan. 24, 2024: Hold at 1mg and shift to Imipramine taper. Taper is 95% complete. Imipramine 75 mg daily since 1986. Jan.-Sept. 2016 tapered to 14.4mg March 22, 2022: Begin 10%/4 week taper Aug. 5, 2022: hold at 9.5mg and shift to Valium taper Jan. 24, 2024: Resume Imipramine taper. Current dose as of Aug 26: 4.0mg Taper is 95% complete. Supplements: multiple, quercetin, omega-3, vitamins C, E and D3, magnesium glycinate, probiotic, zinc, melatonin .3mg, iron, serrapeptase, nattokinase, L-Glutamine, milk thistle, choline I am not a medical professional and this is not medical advice. It is information based on my own experience as well as that of other members who have survived these drugs. Link to comment
TurkeyCold Posted June 16, 2019 Author Share Posted June 16, 2019 13 hours ago, Gridley said: Sounds like you've developed some very good coping skills, TC. Yes indeed, Gridley, it seems to be the case. I guess it's due to the fact that I have "been there so many times before" - so there's some know-how I collected - and additionally it's empowering that my symptoms in general alleviate slowly so I get time to breathe in between the really bad phases. But I don't want to sound too optimistic since I don't know what's still going to come ... C. Medical history: 11/2015 - Duloxetin 30mg, 12/2015 - Duloxetin 60mg, 4/2016 - CT 8/2016 - Duloxetin 60mg, 2/2017 - Duloxetin 30mg, 4/2017 - CT 7/2017 - Duloxetin 60mg, 9/2017 - Duloxetin 30mg, 11/2017 - CT 3.5.2018 - Milnacipran 25mg, 10.5.2018 - Milnacipran 50mg, 20.5.2018 - Milnacipran 25mg, 24.5.2018 - CT and protracted WD Supplements: none Link to comment
TurkeyCold Posted June 20, 2019 Author Share Posted June 20, 2019 I experience a huge window since last my personal doom day last Friday which makes me really happy and grateful. It is as if something in my brain clicked into place decently and I feel my power tripled compared to the time since December. I also realised with how much physical pain and lack of confidence in my body I lived for the past 6-7 months, when physical symptoms got really strong, and also before of course. On the other hand my brain is still (or again) a bit maniac but I feel much more grounded compared to the two maniac episodes I experienced so far. I feel as if a had the freedom to choose my actions rather than being driven by them the whole time. Also I do write a lot of aphorisms, and to be honest I have never written that much in my life before. I always felt the urge to do that but it was as if a well inside me was blocked. Another experiment I do these days is doing more and more things with my weaker and more imprecise left hand. I've done that in the past already brushing my teeth once a day with my left hand - and it works pretty well now - but the last few weeks I intensified my efforts and it's real fun to see that I make progress. In a way it is as if I discover a second personality in my body that was hidden and could not be expressed for so long. So I eat food with my left hand, do toilet stuff that way, and the most difficult thing for me: I practice to write with my left hand regularly. I always avoided that because it feels uncomfortable - and it still does - but here I also make progress. Furthermore, I see it as a part of healing and challenging my brain in a beautiful way to build new structures. And why shouldn't I use the gift of having a lot of time at the moment to learn sth. new. C. 1 Medical history: 11/2015 - Duloxetin 30mg, 12/2015 - Duloxetin 60mg, 4/2016 - CT 8/2016 - Duloxetin 60mg, 2/2017 - Duloxetin 30mg, 4/2017 - CT 7/2017 - Duloxetin 60mg, 9/2017 - Duloxetin 30mg, 11/2017 - CT 3.5.2018 - Milnacipran 25mg, 10.5.2018 - Milnacipran 50mg, 20.5.2018 - Milnacipran 25mg, 24.5.2018 - CT and protracted WD Supplements: none Link to comment
Mentor RichT Posted June 20, 2019 Mentor Share Posted June 20, 2019 Glad to hear you’re feeling good! Warmest wishes, Rich ✅ = medication taken now 2007 quetiapine to March 2019 200mg 2019 quetiapine March to present 225mg ✅ 2007 citalopram to present 40mg ✅2018 March Abilify 5mg 2019 Abilify February rapid taper over 3 weeks from 5mg to off 2019 March Clonazepam as required, taken very occasionally, then taken 0.5mg for 2 days 28th and 29th March, now phased out 2019 1st April reinstated Abilify 0.5mg / day ✅ 2018 to 2020 Liquid B12 2g twice daily (diagnosed B12 deficiency) 2020 July reduced quetiapine to 200mg 2022 October began taper of Abilify Link to comment
TurkeyCold Posted June 24, 2019 Author Share Posted June 24, 2019 Part time hell is going on again. My physical symptoms are diminishing more and more - strong headaches and fatigue remain these days - but much more significant is the fact that 5 of the last 11 days were doom days like I didn't experience them for a long time. It's really difficult these days to stay with it since I seem to have lost any bearable state in between. In retrospect the positive days still have a strong maniac touch and I am clueless how this may go on. I feel that I'm in the heart of the storm now and I don't know how much longer I can deal with the mental pain it causes and the energy it takes from my soul. The maniac phases also do not give me the necessary relief and I deal a lot with suicide these days again. In my environment there is nobody left whom talking to would help me a lot. My parents always have an ear open for me but of course they can't help me. My friend who went through a long process of suffering as well is no help at the moment because I don't want to hear stuff about his dreamscape where the personal god and his plan waits for all of us. I don't know what to do, it's getting too much ... C. Medical history: 11/2015 - Duloxetin 30mg, 12/2015 - Duloxetin 60mg, 4/2016 - CT 8/2016 - Duloxetin 60mg, 2/2017 - Duloxetin 30mg, 4/2017 - CT 7/2017 - Duloxetin 60mg, 9/2017 - Duloxetin 30mg, 11/2017 - CT 3.5.2018 - Milnacipran 25mg, 10.5.2018 - Milnacipran 50mg, 20.5.2018 - Milnacipran 25mg, 24.5.2018 - CT and protracted WD Supplements: none Link to comment
TurkeyCold Posted July 21, 2019 Author Share Posted July 21, 2019 Since my state has become a lot more shaky again and I don't do well at all I stopped taking supplements today to check if I get triggered by them addiationally. I have the sneaky suspicion that my daily dose of vitamin b12 may be too high ... C. Medical history: 11/2015 - Duloxetin 30mg, 12/2015 - Duloxetin 60mg, 4/2016 - CT 8/2016 - Duloxetin 60mg, 2/2017 - Duloxetin 30mg, 4/2017 - CT 7/2017 - Duloxetin 60mg, 9/2017 - Duloxetin 30mg, 11/2017 - CT 3.5.2018 - Milnacipran 25mg, 10.5.2018 - Milnacipran 50mg, 20.5.2018 - Milnacipran 25mg, 24.5.2018 - CT and protracted WD Supplements: none Link to comment
TurkeyCold Posted September 27, 2019 Author Share Posted September 27, 2019 Not a lot has changed since my last post and I still suffer tremendously, but an utterance from a German withdrawal thread got me out of my emotional spiral these days because I felt and feel the deep truth in it. It's simply (but not simple at all) : "You are not severely sick, you are enormously sensitive like all of us here. And yes, it can take years until it goes by." I think that I arranged a lot in my life to deal with my sensitivity but I am still struggling with food and nutrition because old truths (" eat as nutritious as possible") and fear ("otherwise you get even sicker") still block my mind sometimes. Thus, I have to dive in deeper to find out what triggers my swings and worsens my health state. I started to see an alternative practicioner a few weeks ago to deal with that issue but I kind of lost the track temporarily. Time to get back to track. Healing and best wishes for all of you... C. 1 Medical history: 11/2015 - Duloxetin 30mg, 12/2015 - Duloxetin 60mg, 4/2016 - CT 8/2016 - Duloxetin 60mg, 2/2017 - Duloxetin 30mg, 4/2017 - CT 7/2017 - Duloxetin 60mg, 9/2017 - Duloxetin 30mg, 11/2017 - CT 3.5.2018 - Milnacipran 25mg, 10.5.2018 - Milnacipran 50mg, 20.5.2018 - Milnacipran 25mg, 24.5.2018 - CT and protracted WD Supplements: none Link to comment
Mentor FarmGirlWorks Posted September 27, 2019 Mentor Share Posted September 27, 2019 Just read thru some of your earlier posts about food, @TurkeyCold. Great tips and “go green” is a good reminder — just had kale onions beets. Prozac | late 2004-mid-2005 | CT WD in a couple months, mostly emotional Sertraline 50-100mg | 11/2011-3/2014, 10/2014-3/2017 Sertraline fast taper March 2017, 4 weeks, OFF sertraline April 1, 2017 Quit alcohol May 20, 2017 Lifestyle changes: 12-step (ACA, PIR), kundalini yoga "If you've seen a monster, even if it's horrible, that's evidence of divinity." – Damien Echols Link to comment
India Posted October 14, 2019 Share Posted October 14, 2019 On 6/13/2019 at 5:02 AM, TurkeyCold said: If you have the intention to renew yourself, do it daily. (Konfuzius) Food cravings have gone for the moment and I am really thankful for that since they disconnect me from my essence and wellbeing fiercely. Nonetheless, no day/night without a symptom so I have pretty tight hamstrings since 2 days. I will buy a fascia roll today and give it a try. It should give me some release at least if I work on the tight muscles gently. Another author I want to recommend is Prentice Mulford. Time of his life he was kind of an outlier in society and in the literary world but I found his writings to be refreshing and off the usual track of thinking through reality. Unfortunately, his main work "Unfug des Lebens und des Sterbens" (which would be something like "Mischief of living and dying" in English) is only available in German as far I can see but there other options you have, e.g. "The god in you", "Thoughts are things" and "Your forces and How to use them". Furthermore, I wanna recommend the podcast www.oneyoufeed.net. About one year ago I listened to that podcast extensively since they cover significant issues for me: walking the path of healing, what is addiction?, spirituality, personal growth and change among others. Eric Zimmer, the speaker, says about himself: "At the age of 24, I was homeless, addicted to heroin and facing long jail sentences. In the years since I have found a way to recover from addiction and build a life worth living for myself." Fittingly the title of their newest podcast (284) is "Donna Hylton on Healing and Hope". A further measure I adopted on my path: Go into the dirt and arrange your things: Long ago we have been children ourselves who loved to play in the dirt, jumped into wet spots with big joy and collected snails and insects in the sandbox. Children love to do that, adults usually don't. We don't, so over the years there is a literal and imaginary heap of dirt growing in our lifes that we don't manage to cope with, let it be concrete things like furniture, trinkets, rather "dead" friendships with people we don't share anything with (anymore) or abstract things like memories, opinions, fears and worries. We usually avoid that dirt, suppress it and try to cover or compensate. But there is no place called "away" on this planet so that dirt will come back to you sooner or later and disturb you in many ways. And at some point our life itself becomes a mess. There is a great message and it may sound dreamy: Your dirt is your gold. Rainer Maria Rilke, a German poet, said something that goes into the same direction: "Fears are the dragons which guard our biggest treasures." So what did people to obtain their gold in the past? They dug, they washed, they sifted. And that's what you should see it like. So I went into the dirt. Literally, by sorting out things from my tiny household. I sold them, I gave them as a present, I littered them. Whatever appeared useless and/or wasn't used for years became a suspect and I haven't missed a thing so far. Clearing up in the outer world clarifies things in your inner world, that's for sure, and inner clarity is something we really need these days, not only with a bombed brain in withdrawal. Simultaneously, the rather imaginary dirt began to clear up and I began to see this world and the people around me more clearly. Many, many opinions and conclusions I had about my life and my environment turned out to be strong negative projections that came from my inner world. If your inner life is a mess the outer world is a mess for sure. I don't think that we can completely live without projections but when I get the choice I'd rather live with peaceful, joyful and clear projections than the ones I lived with. In this context a friend of mine mentioned Marie Kondō a few months ago. I wasn't familiar with her before but some of her principles of order go into the same direction of implicit thoughts that I had while rearranging things in my life: every thing its place, what's used can stay, and so on. Of course there are other and older traditions dealing with the arrangement of objects, namely Feng Shui and Sthapatya Veda - rather emphasizing harmony in architecture and existence. Something very remarkable my second psychiatrist said - it must have been around June after I had omitted the Milnacipran - was: "You seem to be an intelligent person but you need some order." After that she handed me over a prescription for Lamictal/Lamotrigin which is - fun fact - sometimes used in low doses to compensate side effects of antidepressant withdrawal. Of course she didn't know anything about that and did not have that intention. I never took it but here quote remained since that time. So I highly recommend you to go into the dirt, it's worth it. And the good thing about it: We all have more than enough of it 😀 C. A beautiful post! @intothewoods 1999: Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months. 2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects) 2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram 2mg , approx 16th Sept 4mg , approx 25th Sept 6mg held. 2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg 7 May 22 2.31mg 17/09/2023 0.8mg (Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts) I did not die, and yet I lost life’s breath - Dante Link to comment
TurkeyCold Posted October 18, 2019 Author Share Posted October 18, 2019 Thanks for appreciation! I try to share what I find out on my way and it's even better when people "find something in it" 😉 There is this saying: When you hit the ground make sure to pick something up. Oh I still hit the ground so often ... Healing wishes to all suffering souls out there 🌥️ 1 Medical history: 11/2015 - Duloxetin 30mg, 12/2015 - Duloxetin 60mg, 4/2016 - CT 8/2016 - Duloxetin 60mg, 2/2017 - Duloxetin 30mg, 4/2017 - CT 7/2017 - Duloxetin 60mg, 9/2017 - Duloxetin 30mg, 11/2017 - CT 3.5.2018 - Milnacipran 25mg, 10.5.2018 - Milnacipran 50mg, 20.5.2018 - Milnacipran 25mg, 24.5.2018 - CT and protracted WD Supplements: none Link to comment
TurkeyCold Posted October 26, 2019 Author Share Posted October 26, 2019 Amazing words of wisdom about recovery by the German poet Rainer Maria Rilke (translated by me): "If any of your processes is pathological you have to consider that disease is the means an organism gets rid of the foreign with; you only have to support him being sick, that means to have the whole disease and allowing it to break out because this causes his improvement. In you, dear Mister Kappus, is happening a lot now; you have to be patient like a sick person and confident like a recovering person; since you may be both. And even more: You are the doctor who has to monitor himself. Nonetheless there are many days in every disease the doctor is incapable of doing anything and forced to wait. And this is what you have to do now insofar you are your own doctor. Don't observe yourself too much. Don't jump to conclusions out of what's happening; just let it happen. Otherwise it might happen easily that you blame your past with accusations (in a moral sense) because she lead to everything you face now for sure." (R. M. Rilke in his letters to Franz Xaver Kappus in August 1904) ["Wenn etwas von Ihren Vorgängen krankhaft ist, so bedenken Sie doch, daß die Krankheit das Mittel ist, mit dem ein Organismus sich von Fremdem befreit; da muß man ihm nur helfen, krank zu sein, seine ganze Krankheit zu haben und auszubrechen, denn das ist sein Fortschritt. In Ihnen, lieber Herr Kappus, geschieht jetzt so viel; Sie müssen geduldig sein wie ein Kranker und zuversichtlich wie ein Genesender; denn vielleicht sind Sie beides. Und mehr: Sie sind auch der Arzt, der sich zu überwachen hat. Aber da gibt es in jeder Krankheit viele Tage da der Arzt nichts tun kann als abwarten. Und das ist es, was Sie, soweit Sie Ihr Arzt sind, jetzt vor allem tun müssen. Beobachten Sie sich nicht zu sehr. Ziehen Sie nicht zu schnelle Schlüsse aus dem, was Ihnen geschieht; lassen Sie es sich einfach geschehen. Sie kommen sonst zu leicht dazu, mit Vorwürfen (das heißt: moralisch) auf Ihre Vergangenheit zu schauen, die natürlich an allem, was Ihnen jetzt begegnet, mitbeteiligt ist." (R. M. Rilke in seinen Briefen an Franz Xaver Kappus, August 1904)] 1 Medical history: 11/2015 - Duloxetin 30mg, 12/2015 - Duloxetin 60mg, 4/2016 - CT 8/2016 - Duloxetin 60mg, 2/2017 - Duloxetin 30mg, 4/2017 - CT 7/2017 - Duloxetin 60mg, 9/2017 - Duloxetin 30mg, 11/2017 - CT 3.5.2018 - Milnacipran 25mg, 10.5.2018 - Milnacipran 50mg, 20.5.2018 - Milnacipran 25mg, 24.5.2018 - CT and protracted WD Supplements: none Link to comment
Moderator Emeritus Erell Posted October 26, 2019 Moderator Emeritus Share Posted October 26, 2019 Beautiful, thank you ❤ 2006 : 20mg Paxil+Bromazepam. 2008 : cold turkey of both. 2010 : Reinstatement 20mg Paxil + Bromazepam. 2014-June2017 : Switch from Bromazepam to Prazepam, slow taper to 0mg. 2018 to August 2019 : Paxil 20mg taper (3% every 15 days). 22 Aug 2019 updose to 10mg (was at 8.4mg). 25th Sept 2019 To April 2020 : found SA, holding at 10mg Paxil. April 2020 : Paxil 10mg to Prozac 7mg bridge. Details : topic/21457 Current Supplements : magnesium citrate + fish oil Current medication : * 7pm Diazepam : 0.85mg (15 Aug 2022) / 0.95 mg (24 April 2022) / 1mg Diazepam (since 29 Aug 2020) * 8am Prozac : 6.16mg (25 oct 2022, feel awful, slight updose) / 6.08 mg (9 oct 2022) / 6.24mg (11 July 22) / 6.44mg (22 May 22) / 6.64mg (4 Nov 21) / 6.72mg (8 oct 21) / 6.8 mg (15 Sept 21)/ 6.88mg (14 Aug 21)/ 6.92mg (23 Jun 21) I am not a professional, I don't give medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. Link to comment
Giulietta Posted October 26, 2019 Share Posted October 26, 2019 Hallo TurkeyCold, Es gefaellt mir nicht dass du auch von cymbalta CT in Not bist. Leider ich habe auch 'meistens' CT cymbalta (Dec 2018). Ich werde dein Betraege in Futur lesen. Im Moment ich sage nur hello und 'hang in there' Ich kann ein bischen Deutch. Entschudigen Sie bitte fuer meine Fehler. On 10/18/2019 at 3:32 PM, TurkeyCold said: There is this saying: When you hit the ground make sure to pick something up. Oh I still hit the ground so often ... Very good saying and a way to turn a negative into a positive. Someone told me that through pain and suffering we learn compassion. Tschuess, Giuilietta Link to comment
TurkeyCold Posted October 27, 2019 Author Share Posted October 27, 2019 Hallo Guilietta, what a nice surprise to hear some German on this website, rather unexpected for me. Dankeschön! I've been following your thread vaguely since I'm especially interested in those who had and have issues with Duloxetin/Cymbalta and I hope you do a bit better than me ... I remember being quite impressed about how precise your initial post was formulated. Precision in language and description is grounded in a precision of thinking (which is a really important factor on the long road to healing in my opinion). I also wish you best for your upcoming change. I'm pretty sure it will go well since you are so aware of the whole process. 12 hours ago, Guilietta said: Very good saying and a way to turn a negative into a positive. Someone told me that through pain and suffering we learn compassion. I think I got the saying from https://www.oneyoufeed.net/ For two years I had a lot of time now to deal with websites/podcasts like these. Tschüss, tschüss C. Medical history: 11/2015 - Duloxetin 30mg, 12/2015 - Duloxetin 60mg, 4/2016 - CT 8/2016 - Duloxetin 60mg, 2/2017 - Duloxetin 30mg, 4/2017 - CT 7/2017 - Duloxetin 60mg, 9/2017 - Duloxetin 30mg, 11/2017 - CT 3.5.2018 - Milnacipran 25mg, 10.5.2018 - Milnacipran 50mg, 20.5.2018 - Milnacipran 25mg, 24.5.2018 - CT and protracted WD Supplements: none Link to comment
Giulietta Posted October 27, 2019 Share Posted October 27, 2019 Hallo CT, Es gefaellt mir sehr - wenn es Moeglichkeit ist - zu sprechen einige deutchen Woerter mit ein Deutcher! Verstehst du? Ich muss mein deutsch Langsprache lernen besser. Wann ich nach Deutschland besuchen, nach 10 or 12 Tagen, mein Kenntnisse bessern. 11 hours ago, TurkeyCold said: I remember being quite impressed about how precise your initial post was formulated. Precision in language and description is grounded in a precision of thinking (which is a really important factor on the long road to healing in my opinion). This is hte kindest thing anyone has said to me in a while . It is hard for me to be precise - but I am very detail oriented. Vielen Danken fuer die kinden Woerter. German is a very precise language and the people as well (as a whole). However, when I look at my German car's engineering it doesn't always make a lot of sense. Hope you don't work for a car maker. I will follow you as well. Cymbalta is one nasty drug to get off of. I have been on many ADs sorry to say - it is a vicious cycle as Alto said somewhere on this site. This drug is the worst ever to get off of. Today was my first day with beads. If you wade and through my thread you can read some of the challenges to count the beads. I'm so grateful for the expertise and time @Gridley and @brassmonkey have put in to helping me. Alle Beste. Eine schoene Abend, Giuilietta Link to comment
TurkeyCold Posted December 3, 2019 Author Share Posted December 3, 2019 Hey there, it feels like time for an update. Things have gotten much worse in the last few months. Physically I'm at the lowest point of my withdrawal journey and my whole life of course - I have never been as physically disabled as I'm quite a while now. Most of the time constant headaches and a debilitating mix of severe fatigue and whole body pain takes every energy I have and makes me bedridden. I experience total anhedonia, the only things I find some distraction in are eating and Computer games (although I get pretty bored by those by this time). Eating is complicated as well since I react to mostly anything for a while now, I stay with white rice, corn semolina and chicken these days: I don't have to tell you how bothering this can be actually willing to live vegan ... 2-3 times a week I manage to teach some English or German to private pupils for an hours or so but even this gets more and more difficult for me. The whole process I'm in doesn't feel like healing to be honest, it feels like total devastation. The damage I must have caused to my system must be severe and I have done everything to deal with it: clean eating, little stress, enough sleep, no substances at all, trying to stay active. I was willing to fight and bear what happens for a while now but I think it comes to an end with me, this is more than a human can/should bear in one life (and I was never a person tending to complain a lot). In 12 days it's my 30th birthday, what a great day that will be... Sorry for negativity but I don't want to overload my mother with my suffering C. Medical history: 11/2015 - Duloxetin 30mg, 12/2015 - Duloxetin 60mg, 4/2016 - CT 8/2016 - Duloxetin 60mg, 2/2017 - Duloxetin 30mg, 4/2017 - CT 7/2017 - Duloxetin 60mg, 9/2017 - Duloxetin 30mg, 11/2017 - CT 3.5.2018 - Milnacipran 25mg, 10.5.2018 - Milnacipran 50mg, 20.5.2018 - Milnacipran 25mg, 24.5.2018 - CT and protracted WD Supplements: none Link to comment
Giulietta Posted December 3, 2019 Share Posted December 3, 2019 Hallo CT, Es tut mir Leid, Sie haben miserable Zeit gehabt haben. Es klingt, als ob Sie in einer schlechten Welle sind. Sind Sie in einem sehr schlechten Tag heute? Are things worse today Diese Nachricht ist zerlegt, weil ich versuche, auf Deutsch und Englisch zu schreiben. Mein Denken ist heute auch neblig. Ich hatte einige Vokabeln zu suchen. Ich brauche Hilfe mit mein Deutsch Langsprache. Es ist kein Problem für ' Negativität. ' Es klingt wie Ihre Mutter ist das Verständnis. Dies ist mehr als die meisten von uns sagen kann. It is no problem for 'negativity.' Here we are all in the same boat per se. What we think is negativity helps others to know that we are not alone. Ich denke, dass viele, vielleicht die meisten von uns versuchen, positiv zu sein. Auch wir sind in verschiedenen Staaten von Elend. Ich lese dass Anderen körperliche und emotionale Symptome haben. Sie sind persistent sind und von Zeit zu Zeit variieren. Wir alle sind sehr muede von Alles. 1 hour ago, TurkeyCold said: The whole process I'm in doesn't feel like healing to be honest, it feels like total devastation. The damage I must have caused to my system must be severe and I have done everything to deal with it Have you had some days where you are partly (or mostly?) normal? Has this changed over time? Has the number of improved days or parts of days increased? How is your sleep? Dreizig ist sehr jung. I think even though we are doing everything we can - neurotransmitters jsut take time to heal. Being young I think helps to heal. Im Moment es stink. Big Pharma has a lot to pay for. Dies ist eine weitere stressvolle Zeit des Jahres. Genießt du den Weihnachtsmärkte. Vielleicht Ihre Mutter hat einige Erzgebirge. Wenn ich besser (hoffentlich dieser Nachmittag) stelle ich meine Erzbegirge. Ich muss Geduld zu lernen und mich mit Mitgefühl zu behandeln. {Patience is a virtue and something I am learning.} Sind Sie ein Muttersprachler oder ein expat? Ihr Englisch ist super. Ich hoff dass du ein gutes Tag hast! Dein Freunde, Giulietta Link to comment
TurkeyCold Posted December 5, 2019 Author Share Posted December 5, 2019 Hallo Giulietta, vielen Dank für deine Antwort. Wie geht es dir mittlerweile mit Cymbalta, how does the tapering go? Do you have increased symptoms or is it okay to deal with? With "Erzbegirge" you probably mean the famous wooden handcraft from the German christmas region, the Erzgebirge? We have such things at home, when I was a young boy I loved the german incense smokers. I guess my pattern is 90-95% constant misery with short glimpses of clarity and the absence of pain and anhedonia where I always get reminded why I do all that and don't just leave. It's funny that you asked about windows because yesterday afternoon one started and it's still open. I wish you the same. Die Fenster sind aber auch schwer für mich, weil ich weiß, dass ich wieder in die Hölle zurückgehen muss... We all know it. In the past I could deal with the English language in different contexts (university, philosophy, travelling and tutoring), that's why I enjoy to constantly improve my skills there. I wish you a good day and an even better December C. Medical history: 11/2015 - Duloxetin 30mg, 12/2015 - Duloxetin 60mg, 4/2016 - CT 8/2016 - Duloxetin 60mg, 2/2017 - Duloxetin 30mg, 4/2017 - CT 7/2017 - Duloxetin 60mg, 9/2017 - Duloxetin 30mg, 11/2017 - CT 3.5.2018 - Milnacipran 25mg, 10.5.2018 - Milnacipran 50mg, 20.5.2018 - Milnacipran 25mg, 24.5.2018 - CT and protracted WD Supplements: none Link to comment
Giulietta Posted December 5, 2019 Share Posted December 5, 2019 Hallo C, Es gefaellt mir fuer ein Unterhaltung auf Deutsch! Entschuldigen Sie bitte fuer meine Fehler. Ich denke einige Woerter in dein Langsprache ist nett? Ich habe Eilig - also heute's Notizen sind leider auf Englisch. Und auch ich hoffe dass du verstehen kann. Maybe you can also give me some pointers. Yes, my Erzgebirge handmade - originally - or perhaps still in what was East Germany. When I visited Germany about 25 years ago - I purchased a collection. A friend there also gave me some as a gift. Ich habe auch zwei Rauchermensch und ein Pyramid. Unfortunately the candles were too small for the Pyramid's holder so one tipped over and made a little bit of fire damage to the candle holder. I so love the Weihnachtsmarkts. I purchase Stollen here - I the German baker is now making 1-2 serving size which is very intelligent. I have set out advent candles - LED with flickering flames. They look real and are much safer than candles. I went to Germany for the first time on December 15th some years ago and stayed with a family who you might describe as 'old style'. It was magical. I experienced Gemuetlichkeit. It would be ncie to live like this. Ok. Onto the crappy cymbalta/duloxetine. I rarely have a good day without symptoms. I have decent days - or mostly decent days. That may include fluctuating (hin und her?) anxiety (scale around 3-4?), not feeling 'right', may not want to leave the house, change plans, etc. It's funny - one other person who is in sort of a window has said this too. It is sort of WD normal for me. I still have to push myself to overcome the anxiety and adapt my thinking to be positive. . One tries to forget it and just move on - but there is always something interceding. I had a number of days when I was an emotional wreck. I felt such despair - like I would sink into a major depression. It is maybe worse than anxiety. If you read my thread you might see my fear over this. Do you experience this? Another huge issue for me are auras and also some dystonia now. I have a seizure disorder and probably what I fear most in life is a seizure. I am thankful mine are controlled with a lot of medication. Until WD I had a mostly normal life. In this wave the auras have been intense, last a good portion of the day, etc. This fuels anxiety. Monday was bad. Tuesday OK. Wednsday horrible and almost called the MD. Today OK. The past two weeks for auras have been bad in general. It's upsetting and really stinks. What I have found about WD symptoms is that during waves - aside from anxiety which never leaves - I may experience clusters of the same symptoms during each wave. Die Fenster sind ganz Hoell (hell). We are teased with some good days - think we are past it - then we are hit with some bad days. Ich bin tote muede von dieser ganz WD. That these 'legal drugs' impact people in this fashion means they are as bad or worse than 'illegal drugs'. This is reason to get off and stay off. I wonder if you listen to Bach's Weihnachts Oratorium. I love it. Tschuess G. Link to comment
Giulietta Posted December 9, 2019 Share Posted December 9, 2019 Hallo - wie geht's im Moment? (wo ist dein Gesund - besser)? Link to comment
TurkeyCold Posted December 10, 2019 Author Share Posted December 10, 2019 Hallo Giulietta, I had a few days that were slightly better and managable but since yesterday I'm back to bedridden misery which is hard to bear (that's why I don't write a lot). Wie geht es dir? Hat es an deinem Wohnort schon geschneit? Best wishes C. Medical history: 11/2015 - Duloxetin 30mg, 12/2015 - Duloxetin 60mg, 4/2016 - CT 8/2016 - Duloxetin 60mg, 2/2017 - Duloxetin 30mg, 4/2017 - CT 7/2017 - Duloxetin 60mg, 9/2017 - Duloxetin 30mg, 11/2017 - CT 3.5.2018 - Milnacipran 25mg, 10.5.2018 - Milnacipran 50mg, 20.5.2018 - Milnacipran 25mg, 24.5.2018 - CT and protracted WD Supplements: none Link to comment
Giulietta Posted December 10, 2019 Share Posted December 10, 2019 Hallo C, Einige bessere Tage! Wunderbar! Nur seit (since - I can't remember a thing anymore) gestern ist schlect? Also, dann du ein Fenster gehabt! What do you do in bed? Do you read or watch TV? I have had a bad run of it generally speaking. I have a few good moments in a day - like I have since this ordeal commenced. In early days - the bad times were VERY bad. I have had a lot of symptoms clustered together recently and it is really discouraging. Are you thinking about goals for 2020? I wouldlike to - but honestly I am still day to day....itwould be nice to have a target. Tschuesss Giuilietta Link to comment
Rozon1 Posted March 14, 2020 Share Posted March 14, 2020 hey @TurkeyCold how are you doing. Ran across your thread somehow. You're around my age with a similiar medication and similar circumstances. How do you feel today? I'm 3 months from withdrawls and it's just been a living hell, as I'm sure you could imagine. How are you recovering? Example: 2018 - Started Effexor 37.5 in Janurary of 2018 2019 January, 2nd - Cold Turkeyed from Effexor for 3 days. Reinstated on the third day, then stabilized(It took 3 months to stabilize) 2019 June - I switched from Effexor instant release to Extended Release 37.5 for better tapering. I tapered to 50% in 4 weeks before reinstating my dosage back to 37.5(due to withdrawls). I waited 2 months to stabilize but never did at 37.5 2019 September - continued to taper in to 25% on extended release 2019 October - continued to taper to half of the beads(18.75mg)... WIthdrawls were so bad I tried switching back to the instant release at the same dosage(18.75mg) 2019 November 28th - Discontinued effexor at 18.75 without anymore tapering. 2020 January - Just can't sleep, have constipation, low libido and still lack of full emotion Link to comment
TurkeyCold Posted March 19, 2020 Author Share Posted March 19, 2020 Hello @Rozon1, thank you for asking! Yes, I can imagine the living hell you are and were going through because I have experienced it myself. Keep going although it is hard to bear the unbearable and to accept the unacceptable - it's worth it! I'm nearly 30 months post Cymbalta now and not healed at all. Compared to the last 6 months - my winter was awful and I lived like a Zombie without any feelings and any drive to do anything - I feel much better now. I still have terrible waves that are mostly consisting of physical symptoms (Nerve pain and terrible nausea these days. Furthermore lots of food sensitivities I have to be careful with) but nonetheless I have the feeling that I "grow back into this world slowly". Since I am from Germany the public crisis adds up to my personal condition obviously but concerning the way I lived for the last year(s) not a lot of things are changing for me. Some things that I learned in withdrawal (and these days): Healing is not a passive process that comes to you, it's one of the most active processes I can imagine. We are all stronger than we think. Our bodies are stronger than we think. Medication is usually crap because it's utterly passive. The will to survive and the will to live is the strongest ability we have in us. Keep breathing. If you aren't capable of anything else and in before losing your mind, remember: Keep breathing. C. Medical history: 11/2015 - Duloxetin 30mg, 12/2015 - Duloxetin 60mg, 4/2016 - CT 8/2016 - Duloxetin 60mg, 2/2017 - Duloxetin 30mg, 4/2017 - CT 7/2017 - Duloxetin 60mg, 9/2017 - Duloxetin 30mg, 11/2017 - CT 3.5.2018 - Milnacipran 25mg, 10.5.2018 - Milnacipran 50mg, 20.5.2018 - Milnacipran 25mg, 24.5.2018 - CT and protracted WD Supplements: none Link to comment
TurkeyCold Posted May 18, 2022 Author Share Posted May 18, 2022 Hey folks, it's been a while since my last post in this thread. Since a member has asked me via PM how things have developed I'll try to deliver a summary on how things are these days. First of all I am not healed at all. The relentless hell of the first years has slowly subsided but I'm still experiencing a nightmare on a daily basis. This nightmare is mainly on a physical basis so I can happily admit that the dark, chemical depressive breakdowns that forced me to try committing suicide are gone. I haven't had any suicidal ideation for quite a while despite all the suffering that is still going on on a daily basis. I have found my "yes" towards life and I am working on my comeback to get a second chance to live a meaningful and fullfilled existence. Other symptoms that have disappeared are the massive brain fog (although I can trigger it by consuming spinach or cocoa), constipation, the massive inability to remain in the present (This one is a bit difficult to describe. I would consider it to be a constant mental) and skin issues. The remaining symptoms that make my life tremendously difficult are: Neuropathy/nerve pain in my vegetative centres, fatigue, a strong sensitivity towards stress, noise, cold and heat, strong neuroemotions (especially hatred and rage), on the other hand a strong emotional numbness since it's still difficult for me to feel positive emotions deeply, cognitive constraints, muscle stiffness and some foodsensitivities (I still have to be careful with legumes and some food items that are related to histamine, e.g. my beloved tomatoes). The most awful times of the day usually are in the morning when I wake up with the feeling of being run over by a truck an general excruciating pain in my body. I'm not exaggerating when using the image of being crucified on a daily basis. The other critical time is after having lunch. Afterwards I need to rest 2-3 hours but this is nothing compared to how bedridden I was for a long time. One of the most persistent symptoms is the feeling of a hurt respectively injured brain. It doesn't feel like a headache but as if my brain was literally wounded. In January I made a major change in my life which was definitely for the good. I had given up my single apartment in a large German city and moved to a place for mentally ill people on the country side. I'm not 100% right here since many of the residents are medicated and not understanding the predicament they are trapped in but I like the freedom and the comprehension I am usually experiencing from staff and residents. The surroundings are peaceful here, nature is a footstep away and we have a huge vegetable garden I can engage in. Since I'm still unable to work this place is really helpful and I should have made this step a lot earlier. Financially I am supported by social welfare which was approved by a doctor last year and I am very grateful for that. In February I became sick like never before in my life and I am pretty sure that it's been corona although 2 rapid tests didn't indicate an infection. It took me a month to recover which feels like a miracle in hindsight since the disease ramped up all my symptoms and made me completely bedridden. I haven't received any vaccine or medication and will deny anyof this sort in the future unless it's absolutely necessary. On my path I have discovered many powerful techniques to create some well being, at the moment I am engaging in NoFap (Google will explain...). Whenever I am on a streak without orgasm my social anxiety is reduced or disappears completely and I get some things done in contrast to the severe anhedonia that distressed me for so many years. I still engage in intermittent fasting, eat a mainly vegan diet supported by occasional dairy and/or eggs and do exercise lightly (some foot exercises here and there and occasional pull-ups). Normal workouts are still far beyond my reach, unfortunately. I haven't been able to do proper yoga for about 3 years now. I guess that's been enough insight into the life of another long hauler. I wish you all strength and endurance during this painful journey! Kindly Cornelius 1 Medical history: 11/2015 - Duloxetin 30mg, 12/2015 - Duloxetin 60mg, 4/2016 - CT 8/2016 - Duloxetin 60mg, 2/2017 - Duloxetin 30mg, 4/2017 - CT 7/2017 - Duloxetin 60mg, 9/2017 - Duloxetin 30mg, 11/2017 - CT 3.5.2018 - Milnacipran 25mg, 10.5.2018 - Milnacipran 50mg, 20.5.2018 - Milnacipran 25mg, 24.5.2018 - CT and protracted WD Supplements: none Link to comment
Ariel Posted May 18, 2022 Share Posted May 18, 2022 @TurkeyCold Hi Cornelius, Thank you so much for coming back to post an update! It's great to read your news. 1 hour ago, TurkeyCold said: I have found my "yes" towards life and I am working on my comeback to get a second chance to live a meaningful and fullfilled existence. How beautiful! Brings tears to my eyes. I feel compelled to ask how you found your "yes" ... I realize that may be a very personal question, no pressure to respond if you don't feel like elaborating further. But if you ever feel like sharing about your process of getting to yes, it could be very valuable to hear. I'm sorry you are still dealing with a number of difficult symptoms. I hope these resolve for you sooner rather than later. I feel inspired by the courage and wisdom of your mindset and lifestyle choices. It sounds like you're doing an excellent job taking care of yourself and setting yourself up for success. Thanks again for taking the time to write how you're doing. All the best to you on your continuous healing journey, A. 1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs) 2012-2018 - 10mg lexapro/escitalopram (20mg?) Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg --> July 2018 - 0mg 2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg 2020-2021 - 70mg down to 0mg --> July 2021 - 0mg March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT) --> April 28th, 2021 - 0mg August 2021 - 2mg melatonin August 1, 2022 - 1mg melatonin March 31, 2023 - 0mg melatonin 2024 supplements update: electrolyte blend in water sipped throughout the day; 1 tsp cod liver oil blend (incl. vit. A+D+E) w/ breakfast; calcium; vitamin C+zinc Courage is fear that has said its prayers. - Karle Wilson Baker love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters. - Rev. angel Kyodo williams Holding multiple truths. Knowing that everyone has their own accurate view of the way things are. - text on homemade banner at Afiya house I am not a medical professional; this is not medical advice. Link to comment
TurkeyCold Posted May 23, 2022 Author Share Posted May 23, 2022 Hello @Ariel, thank you very much for these kind words, they really touched me deeply! Thank you as well for establishing contact with a German member from this platform who is in a very desperate situation. Of course I will try to answer your question. It's a very personal question indeed but I don't mind answering it at all if it enriches at least one person - maybe you?! 😉 How to find one's "yes" towards life? A common topic nowadays the same way as in ancient times is and was people's fear of death. The usual behaviour of someone fearing death is getting highly involved in affairs of any kind, getting distracted or having anything else to do except dealing with exactly this fear. I never really understood this conflict and the people who had it and at the same time I didn't understand why I didn't understand. The answer crystallized in the past few years of my ordeal: I did fear life. When I was a young boy I really enjoyed life. I was enthusiastic, helpful, curious, creative, diving into and living within my potential. Like any paradisaic story mine ended rather soon when I got disappointed and hit hard by reality. The charming and cheeky boy turned into an anxious and hostile young man who lost sight of the beauty of this existence and tried to sabotage people and situations around him. My world grew darker and I became darker without consciously knowing how and why. I became involved in drugs, violence, alcohol, cigarettes, sh*tty jobs, the military and toxic relationships. I lived the exact opposite of what I try to live and represent today: simplicity, peace, genuineness, purity, authenticity, strength and compassion (sometimes more, sometimes less). I started turning the corner more than 10 years ago realizing that my life would come to a bitter end if I continued to act the way I did but I still couldn't touch the core of the problem. After my university degree I decided to try out an Antidepressant. The states I experienced were pretty amazing sometimes but I knew that most of it wasn't real. What followed was and is the hell I have described on this platform thoroughly. I think I needed the experience of withdrawal desperately. It is the worst thing that could have happened to me and at the same time it's the best thing. The question why it is the worst thing is easy to answer but how about the best thing? Still being in it this one is quite tricky to answer but if I dared to do so I'd say that it gave me one of the most difficult challenges a human being may encounter. I have grown enormously the past years, I have learned so much about the subtle chemistry that penetrates everything - not so much in an academical way but rather on an intuitive level, I have learned to trust and have faith - not so much in other people or authorities but in the natural forces that are within me and have always been, I have learned to walk on the deepest ground I could and can imagine and I have finally lost my fear of life and I can appreciate so many little things now that I didn't even see before. So where did I find my "yes" towards life? I found it within the strongest "no" towards life I can think of which is embedded in the miserable woes of withdrawal. I had to find it there because otherwise I wouldn't be here anymore like so many others, unfortunately. There are many sources I digged into over the years. I have been reading all my life but the focus of my reading in the past few years was definitely how to find meaning within a crisis, how to survive it and how to grow in(to) it. Concerning time Augustine of Hippo once answered: "If no one asks for it, I know it. If I try to explain it, I don't know it." In a way I feel the same way answering the questions of how to find one's "yes" towards life. I am able to represent the skeleton but the flesh goes far beyond (my) words. I wish you and everyone else who is reading this text that he or she mind find this flesh himself so he won't ever have to starve for meaning again. I wish you all the best for your continuous healing journey, too. Kindly Cornelius 1 Medical history: 11/2015 - Duloxetin 30mg, 12/2015 - Duloxetin 60mg, 4/2016 - CT 8/2016 - Duloxetin 60mg, 2/2017 - Duloxetin 30mg, 4/2017 - CT 7/2017 - Duloxetin 60mg, 9/2017 - Duloxetin 30mg, 11/2017 - CT 3.5.2018 - Milnacipran 25mg, 10.5.2018 - Milnacipran 50mg, 20.5.2018 - Milnacipran 25mg, 24.5.2018 - CT and protracted WD Supplements: none Link to comment
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