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QueenElisabeth: tapering Effexor / venlafaxine from Dec 2018 - how to get off


QueenElisabeth

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On 7/6/2023 at 6:53 PM, Catina7 said:

You will.  You're doing so many proactive things to help yourself.  I hope you have a wonderful trip to see your friend.

HI @Catina7,
I had to cancel in the end. My nervous system was unable to take the excitement and I didn't sleep and had negative visualizations and a bad feeling about making the trip.  I am glad I allowed myself to do it this way.
I am talking to her almost daily and that is the best I can do for now.

For the BP:  I think it's better, but over all strength is better. I took some electrolytes a couple of times and that seemed to help. I have Keltic salt to help a bit sometimes as well.
I am taking the herbs still, 6 mg of Qui Pi Tang. ( a well known Chinese medicinal mixture in TCM)

Sunday I started to take Amanita Muscaria tincture. Illegal in my country but I could buy it abroad and had it shipped to me. 1 drop Sunday, Monday, and Tuesday. Wednesday I took 2.
Monday I felt some energy and sat in the sun. Tuesday was alright too. Wednesday I vacuumed and changed the bedcovers as if it was a normal thing to do. Energy has improved wonderfully. 

Anhedonia in the morning was so much lighter last few days. In the evening down to 2, in the morning maybe 5 max. I hope this will continue.


Is there any other way to taper my Venlafaxine RX, then to take out 1 bead?  I wonder.

30mg Celexa Jan 2012 - Dec 2016 Pooped out, withdrawal syndrome,  tapered in 4  weeks; 1,5mg Ativan from Dec-Apr, withdrawal from May to Dec 2017, severe withdrawal syndrome; 75mg Venlafaxine March 2017. Taper start Venlafaxine: Dec 2018. Scale method. Lowering 1 mg pw, of the weight. mistake after January 2020 reaching 40 mg and below! May 2020 symptoms of serious withdrawal, hold totally on 11 mg. June 2020 crashed on 11mg. Updosed to 14 mg, July 2020 updosed to 15,5 mg, 66 beads, trying to stabilize.
1 Nov 2020: reduced 1 bead. 1 Nov 2021: reduced 1 bead
Symptoms: 1 intense week of emotional instability, fatigue, 3 days late with my period, extremely slow muscle recovery, bad recall, unstable sleep, nauseous.

Oct 2022: brand switch for 1 week, lots of symptoms, nauseous, diarrhea, anhedonia, and unclear thinking, , unrest, anxiety, slow muscle recovery2023:Tapered levocetirizine. Itchiness, diarrhea, broken sleep, heart pulps, anxiety, anhedonia, loss of appetite and weight.Current Supplements: Multivitamin, spoon cod liver oil, 750 mg Quercitine, mushroom supplements with Reishi, Chage, Paria Cocos, and Agaricus Blazei.
I started coaching people as a Taper coach in 2018 and working ever since. So many people getting hurt by meds, with so little support. www.thetapercoach.com


My story

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Hello, Just thought I'd say hi from the UK.

So sorry things are so very tough right now and that your withdrawals have meant you missing out on pleasurable things.

I feel where you're coming from.

I'm just trying to stabilise on 75mg Effexor after a failed taper before attempting any further reduction.

It's so hard.

Hopefully we can all be some support to each other.

F x

Primary and secondary school- struggled socially. I am neurodiverse. Anxiety and OCD. Bullied. Insomnia.

1989 First struggled with severe anxiety and panic aged 16. No meds that I can remember.

1993, At Uni. Eating disorder and low mood/anxiety. Prescribed Sertraline 50mg, took for some months.

1994-97 On and off (mainly on) Fluoxetine 20mg.

1998 First seen by specialist mental health team and prescribed Venlafaxine/Effexor. Soon increased to 150mg, then 225mg.

Have made serious attempts to come off Effexor, too many to remember.

2022 March began reducing from 225mg- went to 150mg and kept at this for 6 months.

Sept 22 reduced to 112.5mg. March 2023 reduced to 75mg. Felt fine right up until this point.

March 2023- current time- I have rushed a further reduction until I was on 25mg.

Went into full panic and withdrawal syndrome on June 18th 2023.

June 20th Reinstated 75mg Effexor. June 27th increased to 150mg. July 9th- have reduced to Effexor 75mg for 6 months

Also going through menopause symptoms- no meds for this.

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  • Mentor
1 hour ago, QueenElisabeth said:

I had to cancel in the end. My nervous system was unable to take the excitement and I didn't sleep and had negative visualizations and a bad feeling about making the trip.  I am glad I allowed myself to do it this way.
I am talking to her almost daily and that is the best I can do for now.

 

Aww I do understand.  I've had to cancel so many things myself.  You made the right choice.

 

I'm glad you've seen some improvements otherwise!

 

1 hour ago, QueenElisabeth said:

Is there any other way to taper my Venlafaxine RX, then to take out 1 bead?  I wonder.

 

https://www.survivingantidepressants.org/topic/272-tips-for-tapering-off-effexor-and-effexor-xr-venlafaxine/

 

 

Disclaimer:  This is not professional medical advice but is based on personal experience only.

1994 - 2017:  Prozac, Cymbalta, Celexa, Paxil, Wellbutrin, Zoloft, Seroquel, Buspar, Lorazepam, Xanax, Ambien

2005-present:  Trazodone 50 mg 

2017:  Effexor XR 37.5 >> 75 mg 

2020 (March):  Began 10% monthly taper of Effexor XR (got down to 12 mg)

2021 (September):  Completely crashed.  Went back up to 37.5 mg but in doing so I kindled myself

2024:  1/1:  35.6 mg (-6 beads)  |  2/1:  33.8 mg (-11 beads)  |  3/1:  32.1 mg (-16 beads)  |   4/1:  (-18 beads)

Reasons for starting psych meds:  PMDD/Depression, Generalized Anxiety Disorder

Other medications:  Levothyroxine 75 mcg

Supplements:  Dr. Berg's Electrolyte Powder on occasion   

 

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2 hours ago, Catina7 said:

 

Aww I do understand.  I've had to cancel so many things myself.  You made the right choice.

 

I'm glad you've seen some improvements otherwise!

 

 

https://www.survivingantidepressants.org/topic/272-tips-for-tapering-off-effexor-and-effexor-xr-venlafaxine/

 

 

Thanks @Catina7

its true we live a life adjusted to all of this 

 

Thank you for the link. I am finding myself lost in this website a lot of times. You are very helpful to me. 
 

From what I read, I could make a liquid from even 1 bead and taper that one down in a speed of my choice. 
I am scared and hopeful again at the same time. I haven’t tapered Venla for 1,5 year and can’t even believe I am considering it. But its so hopeful I can reduce the 1 bead with a water titration. 

 

30mg Celexa Jan 2012 - Dec 2016 Pooped out, withdrawal syndrome,  tapered in 4  weeks; 1,5mg Ativan from Dec-Apr, withdrawal from May to Dec 2017, severe withdrawal syndrome; 75mg Venlafaxine March 2017. Taper start Venlafaxine: Dec 2018. Scale method. Lowering 1 mg pw, of the weight. mistake after January 2020 reaching 40 mg and below! May 2020 symptoms of serious withdrawal, hold totally on 11 mg. June 2020 crashed on 11mg. Updosed to 14 mg, July 2020 updosed to 15,5 mg, 66 beads, trying to stabilize.
1 Nov 2020: reduced 1 bead. 1 Nov 2021: reduced 1 bead
Symptoms: 1 intense week of emotional instability, fatigue, 3 days late with my period, extremely slow muscle recovery, bad recall, unstable sleep, nauseous.

Oct 2022: brand switch for 1 week, lots of symptoms, nauseous, diarrhea, anhedonia, and unclear thinking, , unrest, anxiety, slow muscle recovery2023:Tapered levocetirizine. Itchiness, diarrhea, broken sleep, heart pulps, anxiety, anhedonia, loss of appetite and weight.Current Supplements: Multivitamin, spoon cod liver oil, 750 mg Quercitine, mushroom supplements with Reishi, Chage, Paria Cocos, and Agaricus Blazei.
I started coaching people as a Taper coach in 2018 and working ever since. So many people getting hurt by meds, with so little support. www.thetapercoach.com


My story

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3 hours ago, felinegaze said:

Hello, Just thought I'd say hi from the UK.

So sorry things are so very tough right now and that your withdrawals have meant you missing out on pleasurable things.

I feel where you're coming from.

I'm just trying to stabilise on 75mg Effexor after a failed taper before attempting any further reduction.

It's so hard.

Hopefully we can all be some support to each other.

F x

@felinegaze

Thank you for reaching out. It’s extremely difficult to focus on the end results when the journey is so hard. 
I haven’t had the stamina to try it again since a while. 
1 bead was too much for me already and I felt so disappointed for a long time. 
I am going to see what tapering one singel bead with water would look like. 
 

 

30mg Celexa Jan 2012 - Dec 2016 Pooped out, withdrawal syndrome,  tapered in 4  weeks; 1,5mg Ativan from Dec-Apr, withdrawal from May to Dec 2017, severe withdrawal syndrome; 75mg Venlafaxine March 2017. Taper start Venlafaxine: Dec 2018. Scale method. Lowering 1 mg pw, of the weight. mistake after January 2020 reaching 40 mg and below! May 2020 symptoms of serious withdrawal, hold totally on 11 mg. June 2020 crashed on 11mg. Updosed to 14 mg, July 2020 updosed to 15,5 mg, 66 beads, trying to stabilize.
1 Nov 2020: reduced 1 bead. 1 Nov 2021: reduced 1 bead
Symptoms: 1 intense week of emotional instability, fatigue, 3 days late with my period, extremely slow muscle recovery, bad recall, unstable sleep, nauseous.

Oct 2022: brand switch for 1 week, lots of symptoms, nauseous, diarrhea, anhedonia, and unclear thinking, , unrest, anxiety, slow muscle recovery2023:Tapered levocetirizine. Itchiness, diarrhea, broken sleep, heart pulps, anxiety, anhedonia, loss of appetite and weight.Current Supplements: Multivitamin, spoon cod liver oil, 750 mg Quercitine, mushroom supplements with Reishi, Chage, Paria Cocos, and Agaricus Blazei.
I started coaching people as a Taper coach in 2018 and working ever since. So many people getting hurt by meds, with so little support. www.thetapercoach.com


My story

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On 7/13/2023 at 7:34 PM, Catina7 said:

 

Aww I do understand.  I've had to cancel so many things myself.  You made the right choice.

 

I'm glad you've seen some improvements otherwise!

 

 

https://www.survivingantidepressants.org/topic/272-tips-for-tapering-off-effexor-and-effexor-xr-venlafaxine/

 

 

 @Catina7 Thank you for sending me that link. I was there before and thought I had read it well. Of course, in withdrawal and fear, we are not always capable. This time I read you can dissolve the beads and make a liquid. I will never do that with the total amount, but I thought I could make a liquid from one bead and taper that.  It's the first time in two years I see a way around the impact of one bead taper.

 

30mg Celexa Jan 2012 - Dec 2016 Pooped out, withdrawal syndrome,  tapered in 4  weeks; 1,5mg Ativan from Dec-Apr, withdrawal from May to Dec 2017, severe withdrawal syndrome; 75mg Venlafaxine March 2017. Taper start Venlafaxine: Dec 2018. Scale method. Lowering 1 mg pw, of the weight. mistake after January 2020 reaching 40 mg and below! May 2020 symptoms of serious withdrawal, hold totally on 11 mg. June 2020 crashed on 11mg. Updosed to 14 mg, July 2020 updosed to 15,5 mg, 66 beads, trying to stabilize.
1 Nov 2020: reduced 1 bead. 1 Nov 2021: reduced 1 bead
Symptoms: 1 intense week of emotional instability, fatigue, 3 days late with my period, extremely slow muscle recovery, bad recall, unstable sleep, nauseous.

Oct 2022: brand switch for 1 week, lots of symptoms, nauseous, diarrhea, anhedonia, and unclear thinking, , unrest, anxiety, slow muscle recovery2023:Tapered levocetirizine. Itchiness, diarrhea, broken sleep, heart pulps, anxiety, anhedonia, loss of appetite and weight.Current Supplements: Multivitamin, spoon cod liver oil, 750 mg Quercitine, mushroom supplements with Reishi, Chage, Paria Cocos, and Agaricus Blazei.
I started coaching people as a Taper coach in 2018 and working ever since. So many people getting hurt by meds, with so little support. www.thetapercoach.com


My story

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I feel upset today. Getting out of bed takes a lot of time. Just to find the willpower to start. I lay in bed and breath peacefully towards all my emotions rising and falling in my body. Anxious tension releases while breathing into the belly. I feel a little panic starting, but when I ask it why it's there it has no story and it just releases again. It goes back to peaceful. But  I long for joy and relief.

Anhedonia is back in full force. (9)  Even in the evening, it intimidates me sometimes. (5)


What is going on in my body? I tapered an antihistamine and did not touch the venlafaxine in 1,5 years. How....?

I don't recognize myself in the fearful behaviors I display. Just a shadow of who I really am. Everything needs to be so small. My right hemisphere must be so miserable with all these choices. Or maybe it's my right hemisphere that is offline anyway....

It feels like continuously drowning without a lifeline and no relief from death.

I realize it's not a pretty report, but I wanted to record my perceived experience in the morning. 

30mg Celexa Jan 2012 - Dec 2016 Pooped out, withdrawal syndrome,  tapered in 4  weeks; 1,5mg Ativan from Dec-Apr, withdrawal from May to Dec 2017, severe withdrawal syndrome; 75mg Venlafaxine March 2017. Taper start Venlafaxine: Dec 2018. Scale method. Lowering 1 mg pw, of the weight. mistake after January 2020 reaching 40 mg and below! May 2020 symptoms of serious withdrawal, hold totally on 11 mg. June 2020 crashed on 11mg. Updosed to 14 mg, July 2020 updosed to 15,5 mg, 66 beads, trying to stabilize.
1 Nov 2020: reduced 1 bead. 1 Nov 2021: reduced 1 bead
Symptoms: 1 intense week of emotional instability, fatigue, 3 days late with my period, extremely slow muscle recovery, bad recall, unstable sleep, nauseous.

Oct 2022: brand switch for 1 week, lots of symptoms, nauseous, diarrhea, anhedonia, and unclear thinking, , unrest, anxiety, slow muscle recovery2023:Tapered levocetirizine. Itchiness, diarrhea, broken sleep, heart pulps, anxiety, anhedonia, loss of appetite and weight.Current Supplements: Multivitamin, spoon cod liver oil, 750 mg Quercitine, mushroom supplements with Reishi, Chage, Paria Cocos, and Agaricus Blazei.
I started coaching people as a Taper coach in 2018 and working ever since. So many people getting hurt by meds, with so little support. www.thetapercoach.com


My story

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  • 2 weeks later...
On 7/17/2023 at 7:39 PM, QueenElisabeth said:

I feel upset today. Getting out of bed takes a lot of time. Just to find the willpower to start. I lay in bed and breath peacefully towards all my emotions rising and falling in my body. Anxious tension releases while breathing into the belly. I feel a little panic starting, but when I ask it why it's there it has no story and it just releases again. It goes back to peaceful. But  I long for joy and relief.

Anhedonia is back in full force. (9)  Even in the evening, it intimidates me sometimes. (5)


What is going on in my body? I tapered an antihistamine and did not touch the venlafaxine in 1,5 years. How....?

I don't recognize myself in the fearful behaviors I display. Just a shadow of who I really am. Everything needs to be so small. My right hemisphere must be so miserable with all these choices. Or maybe it's my right hemisphere that is offline anyway....

It feels like continuously drowning without a lifeline and no relief from death.

I realize it's not a pretty report, but I wanted to record my perceived experience in the morning. 

Hey @QueenElisabeth

I know how hard it is in this journey and just wanted to come past to say your not alone in this sufferings. 
Do what you can do and look after yourself . 
 

  • 1995 started Paxil 20mg slowly increasing to 50mg 2014 I decided to tapper myself not knowing how too and crashed , DR added 50mg of Seroquel

  • Through the years made many mistakes tapering

  • Started Tapering Both drugs at the same time 7.5% per month Paxil 9% Seroquel doing daily micro-taper 

  • Guided by Mark Horowitz

  • 31/3/24 Paxil 10.31mg

  • 31/3/24 Seroquel 9.9mg

 

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  • 4 months later...

Hello @QueenElisabeth,

I am wondering where you obtained Amanita tincture. I also live in the Netherlands. Maybe if you don't feel comfortable, you are ok with sharing via private message?

I am very desperate right now and someone pointed me in the direction of these mushrooms, I quickly searched it on this site and your post on the top of the page popped up in my results.

I know its a long shot.

 

I hope you are doing ok

2020:

     - Olanzapine 2 days, 3 weeks of Haldol+Fluanxol, 2 weeks Quetiapine, 1 week Mirtazapine

     - Sporadic use of temazepam, lorazepam, oxazepam and diazepam never for more than 3 weeks in a row - since 2020, last used March 2023

     - Started 25mg Sertraline

2021: 50mg Sertraline

2022: 75mg Sertraline, 5mg Abilify

2023: 50mg (7th Mar), 10mg (20th Mar)

           25mg (17th Apr), 5mg (10th Apr) - fast taper 25 - 12.5 - 6 - 3mg, and 5 - 0mg

           0mg (July), 0mg (May)

 

2024: started supplementation with microdosing amanita muscaria tincture, TUDCA and shilajit (14th Jan) turned into disaster with amanita, be warned

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