direstraits Posted July 8, 2023 Share Posted July 8, 2023 Paxil is what messed me up 9 years ago... still dealing with WD symptoms.🥺 went on Prozac 1994-99,60mg.poopout ct back on 2001-2002,prozac weekly 2002,not working,Effexor 75 mg.?2003-mar.2004 gaining weight 8wk. taper,wellbutrin 150 mg.mar. -may 2004 ctmedfree til july 2005 back to Prozac gaining weight again,back on wellbutrin jan.2006150-300 mg.bad constipation.also was taking aygestin(hormone)perimenopausal irregular bleeding.back on Prozac around sept,?2006,hysterectomy jan30.2007(adenomyosis)off&on Prozac til 2009,citalopram about 1 mo, April 2010 no effect,Effexor again may -mar, 2011.ct,Prozac aug,-dec, 2011 &sept-nov 2012,paroxetine oct,23 2013-may 4 2014 20 mgs.tapered 6 wks.-failed RI in Oct.2014-in protracted WD.started 10 mgs. Fluoxetine May 25 2021 .Stopped fluoxetine May 2022 at 5 mgs. Link to comment
Mountainsky Posted July 9, 2023 Author Share Posted July 9, 2023 I'm so sick I don't see a way out. My anxiety is BAD. I'm so fatigued and cannot calm down. 2009-2018, Paxil 40 mg. Tapered-0mg in 6 weeks. October 2020-May 2021 Zoloft, 25mg, 50mg, then 100mg. Tapered 25mg a week then 0mg less than a month. July 2021- Zoloft reinstated 25mg 1 week , 50 mg 1 week later, 100mg 2 weeks later. March 2022- began taper from 100mg, 10%/ 4 weeks. Got to 75mg around July 2022. Bad fatigue, body pain, OCD thoughts, intrusive fears/thoughts, occasional nightmares, memory loss, tongue tied, more frequent headaches, fear of losing everything, bipolar like behavior, paranoia that everyone is watching and judging me, unprovoked anger/rage, occasional flu like symptoms, dizziness, hair loss becoming the norm in the last few months. Still in treatment for Lyme Disease and Bartonella 4 years later as well as for Mycotoxins, EBV, MCAS with no resolution or positive responses to treatment protocols. May 2023-August 2023 75mg-62.5mg. August 2023-Current 50mg Link to comment
redkite Posted July 10, 2023 Share Posted July 10, 2023 Hi, yes paxil withdrawel is horrific. I am really struggling currently, terrible debilitating anxiety and hardly able to function. My thoughts are with you. Just do your best. Take care redkite Anti-depressant roundabout-2013-2019 ( 5 different ones all effectively CT) Paroxetine-2019-2022- Various from 10 to 30. Reduced from 30mg to twenty over summer, winter 21. Stablized. reduced from 20ml to 12.5 jan-july22. Some holds some reinstate of tiny tiny bit and then hold around 15mg. Last drop from 13.5 to 12.5 18th july . Had to add a tiny bit/ Held on drop day due to stress of invironment, dropped to 12. 7th september Droped to 11.25 gradually threw september picking smaller bits from the left over pot!!! Will stay at 11.25 for a couple of weeks. Shaky and tired. 10.65 28th October. Terrible november and december so uped to 11. slightly better will stick at 11 till spring at the earliest. May 10mg... finally, but what a drama. Totally exhausted!!! Back up to 10. and a bit !! Cant believe how sick I get. 10 mg some time in june? middle of August back up to 10mg and 30th. ( 10.33?) Link to comment
Mountainsky Posted July 30, 2023 Author Share Posted July 30, 2023 Gosh cherry angiomas all over my body, probably seeing the most in the last 2 months. In late May I had Covid so I'm wondering if it's from the inflammation from having it? Even before I had C19 I was noticing them. Luckily the hair loss is slowing done. Wondering if it's from all this mental stress and anxiety of my life and still being in treatment for Lyme Disease 4 yrs later. This has been the worst 4 yrs of my life! I get no break 2009-2018, Paxil 40 mg. Tapered-0mg in 6 weeks. October 2020-May 2021 Zoloft, 25mg, 50mg, then 100mg. Tapered 25mg a week then 0mg less than a month. July 2021- Zoloft reinstated 25mg 1 week , 50 mg 1 week later, 100mg 2 weeks later. March 2022- began taper from 100mg, 10%/ 4 weeks. Got to 75mg around July 2022. Bad fatigue, body pain, OCD thoughts, intrusive fears/thoughts, occasional nightmares, memory loss, tongue tied, more frequent headaches, fear of losing everything, bipolar like behavior, paranoia that everyone is watching and judging me, unprovoked anger/rage, occasional flu like symptoms, dizziness, hair loss becoming the norm in the last few months. Still in treatment for Lyme Disease and Bartonella 4 years later as well as for Mycotoxins, EBV, MCAS with no resolution or positive responses to treatment protocols. May 2023-August 2023 75mg-62.5mg. August 2023-Current 50mg Link to comment
Tigz91 Posted July 30, 2023 Share Posted July 30, 2023 17 minutes ago, Mountainsky said: Gosh cherry angiomas all over my body, probably seeing the most in the last 2 months. In late May I had Covid so I'm wondering if it's from the inflammation from having it? Even before I had C19 I was noticing them. Luckily the hair loss is slowing done. Wondering if it's from all this mental stress and anxiety of my life and still being in treatment for Lyme Disease 4 yrs later. This has been the worst 4 yrs of my life! I get no break Sorry to hear you're struggling. I am also having a hard time. I've also thought about Lymes but have never been tested( can't afford it as I'm unable to work) these WDs are horrific and it shocks me that there is no real help out there from any professionals. Without this site and a forum on Facebook I would be lost, I'm going through withdrawals for about 16 months or so and it's pure hell, I have hundreds of physical symptoms and just worry I'll be stuck like this. Just wanted you to know you're not alone and hopefully we will heal sometime in the near future. Citalopram 10mg sep14-nov14, cit 20mg nov14-jan15, cit 40mg jan15 -jan22, tapered cit 40mg-0mg in 10 days. mirtazapine 15mg then 30mg jan22-Mar22, tapered in 1 week. citalopram 20mg apr22- may22( had a reaction this time, hives everywhere), no taper cold turkey sertraline 50mg then 100mg may22-nov22, tapered in 2 weeks. Link to comment
Mountainsky Posted September 3, 2023 Author Share Posted September 3, 2023 Lumbrokinase for lyme? It's a blood thinner that can assist in healing and I just added it into my protocol. Anyone felt bad flares from this? 2009-2018, Paxil 40 mg. Tapered-0mg in 6 weeks. October 2020-May 2021 Zoloft, 25mg, 50mg, then 100mg. Tapered 25mg a week then 0mg less than a month. July 2021- Zoloft reinstated 25mg 1 week , 50 mg 1 week later, 100mg 2 weeks later. March 2022- began taper from 100mg, 10%/ 4 weeks. Got to 75mg around July 2022. Bad fatigue, body pain, OCD thoughts, intrusive fears/thoughts, occasional nightmares, memory loss, tongue tied, more frequent headaches, fear of losing everything, bipolar like behavior, paranoia that everyone is watching and judging me, unprovoked anger/rage, occasional flu like symptoms, dizziness, hair loss becoming the norm in the last few months. Still in treatment for Lyme Disease and Bartonella 4 years later as well as for Mycotoxins, EBV, MCAS with no resolution or positive responses to treatment protocols. May 2023-August 2023 75mg-62.5mg. August 2023-Current 50mg Link to comment
Mountainsky Posted November 4, 2023 Author Share Posted November 4, 2023 Neurofeedback for bad intrusive thoughts and anxiety? Any positive experiences? I reached out to someone that does it, a lovely practioner. However, due to time constraints with work, and unfortunately finances, I have to put it off a few months. It's too much. Life is too much. Something has to give. Enough with "time is all you need". No, time is doing more harm. I am juggling too much and feel this pain, anxiety is hindering my healing. I'm walking on a tight rope balancing, one wrong move will be it. I'm still in treatment for lyme and on a new drug to treat another coinfection. I feel sometimes I can't get better with the Lyme because mentally I just cannot clear my head. My immune system's probably in the toilet and I can't fight these chronic infections. My mom says I'm on a hamster wheel and can't stop. She's right. Mental pain can absolutely ruin us physically too. She accompanied me to my follow up with my Lyme doctor last month. We both cried in the room, we see no end to this. My Lyme doctor knows my extensive horrific history with psych meds and knows I don't want to be on anything else. Now, going back to the Neurofeedback (I babble alot I know sorry!) a few months back I looked more extensively into it. I know there are members on here who have tried it, as well as some members on Benzobuddies.org and some in the Lyme Disease community. Yes of course there are good and bad in any "treatment" approach, no one size fits all. I But I feel the Neurofeedback might really be a game changer. I can at least try a few sessions. Too many bad things have happened to me in 5 yrs. I haven't been the same, I have no reprieve. Other things are going on in my life non- illness related to boot. I wake up scared, stressed, fatigued, I go to bed the same. I have nightmares. I feel the only positive things in my life weren't meant to be anymore and I'm slowly losing them now. The holidays are coming which can draw even more anxiety, sadness and misery for alot of us. Before all of this I loved them and I want to go back to that. To take it all in and have hope and faith for a better 2024. I hope Neurofeedback can really be a benefit for myself and a good investment for my health and life moving on. 2009-2018, Paxil 40 mg. Tapered-0mg in 6 weeks. October 2020-May 2021 Zoloft, 25mg, 50mg, then 100mg. Tapered 25mg a week then 0mg less than a month. July 2021- Zoloft reinstated 25mg 1 week , 50 mg 1 week later, 100mg 2 weeks later. March 2022- began taper from 100mg, 10%/ 4 weeks. Got to 75mg around July 2022. Bad fatigue, body pain, OCD thoughts, intrusive fears/thoughts, occasional nightmares, memory loss, tongue tied, more frequent headaches, fear of losing everything, bipolar like behavior, paranoia that everyone is watching and judging me, unprovoked anger/rage, occasional flu like symptoms, dizziness, hair loss becoming the norm in the last few months. Still in treatment for Lyme Disease and Bartonella 4 years later as well as for Mycotoxins, EBV, MCAS with no resolution or positive responses to treatment protocols. May 2023-August 2023 75mg-62.5mg. August 2023-Current 50mg Link to comment
Mountainsky Posted November 26, 2023 Author Share Posted November 26, 2023 I cannot calm down. I am on year 5 of this and it is only getting worse. This weekend alone was terrifying and it should have been a joyous festive time with my family an due to the holiday I have so much fear of my future and that i'll never ever recover, this pain, fatigue and misery is forever my life. I am still in treatment with lyme disease with no hope. I feel I am literally going crazy and worried of losing the few things that keep me going. This pain and anxiety never ever ends, physically and mentally. It is breaking me to the core. I cannot do this another year, something has to give. I had anxiety but never ever THIS BAD. I am mourning the good things of my old life that I feel I'll never experience anymore. I have lost so much in 5 years. My relationship with my family is rocky and it is my fault, all my health issues are tearing us apart. I am lashing out at them because I just don't know what to do and I cannot be doing this to them, they are all I have. My biggest fear next to not getting better is being alone. I cannot accept this is my new normal, nope. I have a follow up appt with my therapist tomorrow but it's not enough. 2009-2018, Paxil 40 mg. Tapered-0mg in 6 weeks. October 2020-May 2021 Zoloft, 25mg, 50mg, then 100mg. Tapered 25mg a week then 0mg less than a month. July 2021- Zoloft reinstated 25mg 1 week , 50 mg 1 week later, 100mg 2 weeks later. March 2022- began taper from 100mg, 10%/ 4 weeks. Got to 75mg around July 2022. Bad fatigue, body pain, OCD thoughts, intrusive fears/thoughts, occasional nightmares, memory loss, tongue tied, more frequent headaches, fear of losing everything, bipolar like behavior, paranoia that everyone is watching and judging me, unprovoked anger/rage, occasional flu like symptoms, dizziness, hair loss becoming the norm in the last few months. Still in treatment for Lyme Disease and Bartonella 4 years later as well as for Mycotoxins, EBV, MCAS with no resolution or positive responses to treatment protocols. May 2023-August 2023 75mg-62.5mg. August 2023-Current 50mg Link to comment
Administrator Emonda Posted November 26, 2023 Administrator Share Posted November 26, 2023 Welcome back @Mountainsky, I've just moved your new post back here to your own thread. It's best to keep everything relating yourself in the one spot. I'm sorry to hear things are a bit rough at the moment. I'm heading out shortly, so haven't had a chance to read your thread, or what other moderators have said. Can I ask about your taper history? I can see you got to 75mg in July '22, then I can see 50mg at August '23. How did you go about dropping from 75mg to 50mg? I note you were dropping 10% per month up until July last year...Did you stick the to 10% maximum per month? 37 minutes ago, Mountainsky said: I cannot accept this is my new normal The way we feel right now, is not the way we will feel in the future. These negative feelings are temporary. What non-drug techniques have you adopted to help with anxiety? I look forward to seeing your updated drug signature. Emonda Please don't send me PMs. I am not a doctor. My comments are based on my personal experience with ADs and tapering. Consult your doctor about your own medical decisions. 2017 – 2022: Vortioxetine 15mg, Jan ’22, 15mg->5mg over 4 weeks, Feb ‘22 5mg -> 7.5mg due to WD, July ’22 6.75mg (found SA website), Aug 6.07mg, Sep 5.46mg, 11 Oct 5.00mg, 18 Oct 4.88mg, 25 Oct 4.75mg, 1 Nov 4.63mg, 8 Nov 4.5mg, 3 Jan ’23 4.39mg, 10 Jan 4.28mg, 17 Jan 4.06mg, 13 Feb 3.95mg, 20 Mar 3.85mg, 3 Apr 3.75mg, 10 April 3.65mg, 31 May 3.58mg, 8 June 3.50mg, 15 June 3.43mg, 22 June 3.35mg, 12 Jul 3.29mg, 19 Jul 3.22mg, 26 Jul 3.15mg, 3 Aug 3.09mg, 30 Aug 3.02mg, 7 Sep 2.96mg, 14 Sep 2.89mg, 21 Sep 2.82mg, Oct 11 2.75mg, Oct 19 2.70mg, Oct 26 2.64mg, Nov 2 2.59mg, Nov 23 2.53mg, Nov 30 2.48mg, 7 Dec 2.43mg, 17 Dec 2.38mg, 19 Jan 2.33mg, 26 Jan 2.28mg, 2 Feb 2.24mg, 8 Feb 2.19mg, 29 Feb 2.15mg, 7 Mar 2.10mg, 14 Mar 2.06mg, 21 Mar 1.99mg, 10 Apr 1.95mg, 17 Apr 1.91mg, 24 Apr 1.87mg, Link to comment
Mountainsky Posted November 26, 2023 Author Share Posted November 26, 2023 Nothing for non medicated forms of anxiety reduction. Nothing helps. 2009-2018, Paxil 40 mg. Tapered-0mg in 6 weeks. October 2020-May 2021 Zoloft, 25mg, 50mg, then 100mg. Tapered 25mg a week then 0mg less than a month. July 2021- Zoloft reinstated 25mg 1 week , 50 mg 1 week later, 100mg 2 weeks later. March 2022- began taper from 100mg, 10%/ 4 weeks. Got to 75mg around July 2022. Bad fatigue, body pain, OCD thoughts, intrusive fears/thoughts, occasional nightmares, memory loss, tongue tied, more frequent headaches, fear of losing everything, bipolar like behavior, paranoia that everyone is watching and judging me, unprovoked anger/rage, occasional flu like symptoms, dizziness, hair loss becoming the norm in the last few months. Still in treatment for Lyme Disease and Bartonella 4 years later as well as for Mycotoxins, EBV, MCAS with no resolution or positive responses to treatment protocols. May 2023-August 2023 75mg-62.5mg. August 2023-Current 50mg Link to comment
Mountainsky Posted November 26, 2023 Author Share Posted November 26, 2023 Too sick to measure, cut pills and calibrate scale, gave up on 10%. 2009-2018, Paxil 40 mg. Tapered-0mg in 6 weeks. October 2020-May 2021 Zoloft, 25mg, 50mg, then 100mg. Tapered 25mg a week then 0mg less than a month. July 2021- Zoloft reinstated 25mg 1 week , 50 mg 1 week later, 100mg 2 weeks later. March 2022- began taper from 100mg, 10%/ 4 weeks. Got to 75mg around July 2022. Bad fatigue, body pain, OCD thoughts, intrusive fears/thoughts, occasional nightmares, memory loss, tongue tied, more frequent headaches, fear of losing everything, bipolar like behavior, paranoia that everyone is watching and judging me, unprovoked anger/rage, occasional flu like symptoms, dizziness, hair loss becoming the norm in the last few months. Still in treatment for Lyme Disease and Bartonella 4 years later as well as for Mycotoxins, EBV, MCAS with no resolution or positive responses to treatment protocols. May 2023-August 2023 75mg-62.5mg. August 2023-Current 50mg Link to comment
Administrator Emonda Posted November 26, 2023 Administrator Share Posted November 26, 2023 3 minutes ago, Mountainsky said: cut pills and calibrate scale, gave up on 10%. Thanks for the reply, mountainsky. Does this mean you dropped from 75mg to 50mg in one go? I am wondering about the steps you took and the time frame. Please don't send me PMs. I am not a doctor. My comments are based on my personal experience with ADs and tapering. Consult your doctor about your own medical decisions. 2017 – 2022: Vortioxetine 15mg, Jan ’22, 15mg->5mg over 4 weeks, Feb ‘22 5mg -> 7.5mg due to WD, July ’22 6.75mg (found SA website), Aug 6.07mg, Sep 5.46mg, 11 Oct 5.00mg, 18 Oct 4.88mg, 25 Oct 4.75mg, 1 Nov 4.63mg, 8 Nov 4.5mg, 3 Jan ’23 4.39mg, 10 Jan 4.28mg, 17 Jan 4.06mg, 13 Feb 3.95mg, 20 Mar 3.85mg, 3 Apr 3.75mg, 10 April 3.65mg, 31 May 3.58mg, 8 June 3.50mg, 15 June 3.43mg, 22 June 3.35mg, 12 Jul 3.29mg, 19 Jul 3.22mg, 26 Jul 3.15mg, 3 Aug 3.09mg, 30 Aug 3.02mg, 7 Sep 2.96mg, 14 Sep 2.89mg, 21 Sep 2.82mg, Oct 11 2.75mg, Oct 19 2.70mg, Oct 26 2.64mg, Nov 2 2.59mg, Nov 23 2.53mg, Nov 30 2.48mg, 7 Dec 2.43mg, 17 Dec 2.38mg, 19 Jan 2.33mg, 26 Jan 2.28mg, 2 Feb 2.24mg, 8 Feb 2.19mg, 29 Feb 2.15mg, 7 Mar 2.10mg, 14 Mar 2.06mg, 21 Mar 1.99mg, 10 Apr 1.95mg, 17 Apr 1.91mg, 24 Apr 1.87mg, Link to comment
Mountainsky Posted November 26, 2023 Author Share Posted November 26, 2023 75 to 65.2 in 3 months, then 65.2 to 50 mg in another 3 months. No 10%, just a jump both times. 2009-2018, Paxil 40 mg. Tapered-0mg in 6 weeks. October 2020-May 2021 Zoloft, 25mg, 50mg, then 100mg. Tapered 25mg a week then 0mg less than a month. July 2021- Zoloft reinstated 25mg 1 week , 50 mg 1 week later, 100mg 2 weeks later. March 2022- began taper from 100mg, 10%/ 4 weeks. Got to 75mg around July 2022. Bad fatigue, body pain, OCD thoughts, intrusive fears/thoughts, occasional nightmares, memory loss, tongue tied, more frequent headaches, fear of losing everything, bipolar like behavior, paranoia that everyone is watching and judging me, unprovoked anger/rage, occasional flu like symptoms, dizziness, hair loss becoming the norm in the last few months. Still in treatment for Lyme Disease and Bartonella 4 years later as well as for Mycotoxins, EBV, MCAS with no resolution or positive responses to treatment protocols. May 2023-August 2023 75mg-62.5mg. August 2023-Current 50mg Link to comment
Administrator Emonda Posted November 27, 2023 Administrator Share Posted November 27, 2023 Hi @Mountainsky Dropping from 65.2mg to 50mg is a 23% reduction; your reduction before that was 13%. I dropped 2% the other day, and I feel anxious. Back at the start of my tapering journey, I made a calculation error and dropped 20% in one go. Oh, wow! I’ll never do that again. Fear, doom, anxiety, my chest was so tight I found it hard to breathe. It felt like an elephant was sitting on my chest. I could go on with the WD symptoms I felt...but this is a good summary Daily Checklist of Antidepressant Withdrawal Symptoms (PDF) I’m not surprised you feel the way you do, given the size of your two most recent reductions. It will take time for your body to catch up from the larger than recommended taper. Once you stabilise, with time and patience, I would strongly encourage you to follow the maximum 10% reduction per month. The goal of this approach is to minimise potential WD symptoms. I'm sure someone has already given you the link, but have a look at the The Brassmonkey Slide Method of Micro-tapering. It makes tapering a little more tolerable, in my experience. Tapering faster than recommended is not a shortcut to getting off ADs successfully....it'll likely just set you back time after time. Emonda 1 Please don't send me PMs. I am not a doctor. My comments are based on my personal experience with ADs and tapering. Consult your doctor about your own medical decisions. 2017 – 2022: Vortioxetine 15mg, Jan ’22, 15mg->5mg over 4 weeks, Feb ‘22 5mg -> 7.5mg due to WD, July ’22 6.75mg (found SA website), Aug 6.07mg, Sep 5.46mg, 11 Oct 5.00mg, 18 Oct 4.88mg, 25 Oct 4.75mg, 1 Nov 4.63mg, 8 Nov 4.5mg, 3 Jan ’23 4.39mg, 10 Jan 4.28mg, 17 Jan 4.06mg, 13 Feb 3.95mg, 20 Mar 3.85mg, 3 Apr 3.75mg, 10 April 3.65mg, 31 May 3.58mg, 8 June 3.50mg, 15 June 3.43mg, 22 June 3.35mg, 12 Jul 3.29mg, 19 Jul 3.22mg, 26 Jul 3.15mg, 3 Aug 3.09mg, 30 Aug 3.02mg, 7 Sep 2.96mg, 14 Sep 2.89mg, 21 Sep 2.82mg, Oct 11 2.75mg, Oct 19 2.70mg, Oct 26 2.64mg, Nov 2 2.59mg, Nov 23 2.53mg, Nov 30 2.48mg, 7 Dec 2.43mg, 17 Dec 2.38mg, 19 Jan 2.33mg, 26 Jan 2.28mg, 2 Feb 2.24mg, 8 Feb 2.19mg, 29 Feb 2.15mg, 7 Mar 2.10mg, 14 Mar 2.06mg, 21 Mar 1.99mg, 10 Apr 1.95mg, 17 Apr 1.91mg, 24 Apr 1.87mg, Link to comment
Mountainsky Posted November 27, 2023 Author Share Posted November 27, 2023 Alot of my symptoms or anxiousness is situational. Really bad stuff going on. 2009-2018, Paxil 40 mg. Tapered-0mg in 6 weeks. October 2020-May 2021 Zoloft, 25mg, 50mg, then 100mg. Tapered 25mg a week then 0mg less than a month. July 2021- Zoloft reinstated 25mg 1 week , 50 mg 1 week later, 100mg 2 weeks later. March 2022- began taper from 100mg, 10%/ 4 weeks. Got to 75mg around July 2022. Bad fatigue, body pain, OCD thoughts, intrusive fears/thoughts, occasional nightmares, memory loss, tongue tied, more frequent headaches, fear of losing everything, bipolar like behavior, paranoia that everyone is watching and judging me, unprovoked anger/rage, occasional flu like symptoms, dizziness, hair loss becoming the norm in the last few months. Still in treatment for Lyme Disease and Bartonella 4 years later as well as for Mycotoxins, EBV, MCAS with no resolution or positive responses to treatment protocols. May 2023-August 2023 75mg-62.5mg. August 2023-Current 50mg Link to comment
Mountainsky Posted December 30, 2023 Author Share Posted December 30, 2023 5 yrs off Paxil. I've never ever been this desperate in my life. Thinking this isn't Lyme Disease anymore. But what is it? I'm falling apart. I cried so much at Christmas, I'm so scared everyday. Anyone been off Paxil and felt this bad? I'm talking about Paxil, only. Please God, I need a reprieve. 2024 has to be a better year for me. 2009-2018, Paxil 40 mg. Tapered-0mg in 6 weeks. October 2020-May 2021 Zoloft, 25mg, 50mg, then 100mg. Tapered 25mg a week then 0mg less than a month. July 2021- Zoloft reinstated 25mg 1 week , 50 mg 1 week later, 100mg 2 weeks later. March 2022- began taper from 100mg, 10%/ 4 weeks. Got to 75mg around July 2022. Bad fatigue, body pain, OCD thoughts, intrusive fears/thoughts, occasional nightmares, memory loss, tongue tied, more frequent headaches, fear of losing everything, bipolar like behavior, paranoia that everyone is watching and judging me, unprovoked anger/rage, occasional flu like symptoms, dizziness, hair loss becoming the norm in the last few months. Still in treatment for Lyme Disease and Bartonella 4 years later as well as for Mycotoxins, EBV, MCAS with no resolution or positive responses to treatment protocols. May 2023-August 2023 75mg-62.5mg. August 2023-Current 50mg Link to comment
direstraits Posted December 30, 2023 Share Posted December 30, 2023 I'm sorry, I've been off paxil over 9 years and still suffering It's a nightmare.😕 went on Prozac 1994-99,60mg.poopout ct back on 2001-2002,prozac weekly 2002,not working,Effexor 75 mg.?2003-mar.2004 gaining weight 8wk. taper,wellbutrin 150 mg.mar. -may 2004 ctmedfree til july 2005 back to Prozac gaining weight again,back on wellbutrin jan.2006150-300 mg.bad constipation.also was taking aygestin(hormone)perimenopausal irregular bleeding.back on Prozac around sept,?2006,hysterectomy jan30.2007(adenomyosis)off&on Prozac til 2009,citalopram about 1 mo, April 2010 no effect,Effexor again may -mar, 2011.ct,Prozac aug,-dec, 2011 &sept-nov 2012,paroxetine oct,23 2013-may 4 2014 20 mgs.tapered 6 wks.-failed RI in Oct.2014-in protracted WD.started 10 mgs. Fluoxetine May 25 2021 .Stopped fluoxetine May 2022 at 5 mgs. Link to comment
MrMiyagi Posted December 31, 2023 Share Posted December 31, 2023 I would stop the heavy Antibiotics or herbals and restore gut health. Work with food and start blending veggies and fruits juicingis good also. I think a good spore based probiotic is helpful. Make sure you are getting your daily protein with food or supplements. Wile this is difficult when you are sick please ask for help. You are most likely stuck in fight or flight and have been for a very long time. You need to think about working with a good therapist and maybe think about trialing some medication again. Some people just need medication and it's ok if that is you. I have excepted that with out an antidepressant low dose of Ativan and seroquel I would probably not be here. I have FND more can be found on Neurosymptoms.org maybe as time go's on they discover that we only need to fix a problem with the metabolic system who knows. I am not a doctor this is just what worked bring me back from a body that was destroying itself from a brain gone haywire. 2001-2019 Effexor XR 150mg Cross to Zoloft 100mg. 2003-2004 CT Effexor XR 150 09/18/2020 Zoloft 100mg CT Switch Paxil 20mg /Valium 10mg 2020 Paxil 20mg /Valium 10mg/Gabapentin 900mg. 2021 Paxil 20mg /Valium 6mg /Gabapentin 600mg. Currently: 04/14/2022 Paxil 20mg to 15mg 25% reduction/Valium 3mg/Gabapentin 900mg/Fludrocortisone .01mg Paxil: Tablet/Liquid Switch 10% Monthly Drops 5/16 Paxil Liquid 7.4ml/ Valium 3mg/ Gabapentin 900mg, 6/1 Paxil Liquid 6.66ml/ Valium 3mg/ Gabapentin 900mg 6/18 "Switch back to tablets" paxil 10mg+1.66ml/Valium 3mg/Gabapentin 900mg Supplements: Fish Oil, Melatonin 1.5mg, Luracidin. "Slow Steady Stable" 💚 Link to comment
Mountainsky Posted February 12 Author Share Posted February 12 I've tried to unplug for a while. I don't even watch the news anymore not even for weather now. My anxiety is so bad. In the last 30 days I've cried so much, more than I ever have in my life. I'm terrified and worried about everything and anything. Fear of more loss. Nothing ever gets better, barely any "windows". Just the other day I saw pics on my Google photos with old pictures from 2018 and earlier, very happy pictures. Looking at them I couldn't stop crying. I may have been heavier in those pictures, my face fuller but guess what? That face was more promising. I was happy, I had hope, a high sex drive (sorry if tmi), I loved to love, I had energy, I was excited for my future. My health wasn't in the best form physically or mentally....but I wasn't not even close to this bad. My heath anxiety is too much. Nobody knows what is what anymore. I can't justify all this $$ spent with no answers, not at my age. I want to go back to having fun, living my life and engaging in experiences. Being like everyone else in my life. Sorry I know it's wrong to compare but come on, this isn't normal. I'm actually not going to apologize for that anymore and accept this. I just need a sign of hope, at least. 2009-2018, Paxil 40 mg. Tapered-0mg in 6 weeks. October 2020-May 2021 Zoloft, 25mg, 50mg, then 100mg. Tapered 25mg a week then 0mg less than a month. July 2021- Zoloft reinstated 25mg 1 week , 50 mg 1 week later, 100mg 2 weeks later. March 2022- began taper from 100mg, 10%/ 4 weeks. Got to 75mg around July 2022. Bad fatigue, body pain, OCD thoughts, intrusive fears/thoughts, occasional nightmares, memory loss, tongue tied, more frequent headaches, fear of losing everything, bipolar like behavior, paranoia that everyone is watching and judging me, unprovoked anger/rage, occasional flu like symptoms, dizziness, hair loss becoming the norm in the last few months. Still in treatment for Lyme Disease and Bartonella 4 years later as well as for Mycotoxins, EBV, MCAS with no resolution or positive responses to treatment protocols. May 2023-August 2023 75mg-62.5mg. August 2023-Current 50mg Link to comment
MrMiyagi Posted February 12 Share Posted February 12 When things like mental health go untreated for so long they become worse not better that's why I advised to start finding a great therapist to work with who can accurately pinpoint your triggers. I was unfortunate enough to continue to down a bad path and developed ocd fear of death major health anxiety and ptsd. There are alot of changes the brain is making wile being stuck in such a depressive state that is where a professional can come in and really help. I am certain you can absolutely regain your former happiness and joy for life. Please if there is atleast one thing I can say that helps its you will get better with the right help. 2001-2019 Effexor XR 150mg Cross to Zoloft 100mg. 2003-2004 CT Effexor XR 150 09/18/2020 Zoloft 100mg CT Switch Paxil 20mg /Valium 10mg 2020 Paxil 20mg /Valium 10mg/Gabapentin 900mg. 2021 Paxil 20mg /Valium 6mg /Gabapentin 600mg. Currently: 04/14/2022 Paxil 20mg to 15mg 25% reduction/Valium 3mg/Gabapentin 900mg/Fludrocortisone .01mg Paxil: Tablet/Liquid Switch 10% Monthly Drops 5/16 Paxil Liquid 7.4ml/ Valium 3mg/ Gabapentin 900mg, 6/1 Paxil Liquid 6.66ml/ Valium 3mg/ Gabapentin 900mg 6/18 "Switch back to tablets" paxil 10mg+1.66ml/Valium 3mg/Gabapentin 900mg Supplements: Fish Oil, Melatonin 1.5mg, Luracidin. "Slow Steady Stable" 💚 Link to comment
Mountainsky Posted February 13 Author Share Posted February 13 Thank you MrMiyagi, I received your PM I'll reply back later on it is that ok? Again thank you. 2009-2018, Paxil 40 mg. Tapered-0mg in 6 weeks. October 2020-May 2021 Zoloft, 25mg, 50mg, then 100mg. Tapered 25mg a week then 0mg less than a month. July 2021- Zoloft reinstated 25mg 1 week , 50 mg 1 week later, 100mg 2 weeks later. March 2022- began taper from 100mg, 10%/ 4 weeks. Got to 75mg around July 2022. Bad fatigue, body pain, OCD thoughts, intrusive fears/thoughts, occasional nightmares, memory loss, tongue tied, more frequent headaches, fear of losing everything, bipolar like behavior, paranoia that everyone is watching and judging me, unprovoked anger/rage, occasional flu like symptoms, dizziness, hair loss becoming the norm in the last few months. Still in treatment for Lyme Disease and Bartonella 4 years later as well as for Mycotoxins, EBV, MCAS with no resolution or positive responses to treatment protocols. May 2023-August 2023 75mg-62.5mg. August 2023-Current 50mg Link to comment
MrMiyagi Posted February 13 Share Posted February 13 3 hours ago, Mountainsky said: Thank you MrMiyagi, I received your PM I'll reply back later on it is that ok? Again thank you. Yes enjoy the snow 2001-2019 Effexor XR 150mg Cross to Zoloft 100mg. 2003-2004 CT Effexor XR 150 09/18/2020 Zoloft 100mg CT Switch Paxil 20mg /Valium 10mg 2020 Paxil 20mg /Valium 10mg/Gabapentin 900mg. 2021 Paxil 20mg /Valium 6mg /Gabapentin 600mg. Currently: 04/14/2022 Paxil 20mg to 15mg 25% reduction/Valium 3mg/Gabapentin 900mg/Fludrocortisone .01mg Paxil: Tablet/Liquid Switch 10% Monthly Drops 5/16 Paxil Liquid 7.4ml/ Valium 3mg/ Gabapentin 900mg, 6/1 Paxil Liquid 6.66ml/ Valium 3mg/ Gabapentin 900mg 6/18 "Switch back to tablets" paxil 10mg+1.66ml/Valium 3mg/Gabapentin 900mg Supplements: Fish Oil, Melatonin 1.5mg, Luracidin. "Slow Steady Stable" 💚 Link to comment
Mountainsky Posted February 29 Author Share Posted February 29 2 weeks ago I started something, no not a new med. A different approach. I won't be disclosing what it is as I do not want the unsolicited advice or negative remarks as this does nobody any good and can complicate things further in online forums (no its not illegal either). I hope and pray hard, very very hard do I pray this new approach helps me. It will not cure all my problems and ailments, it will not cure me in a week, or a month. But I do have faith it can give me the assistance, tools and strength to get me back. I will be turning 39 in a few weeks, I want my life back. I cannot be doing this in my 40s. I've lost too much and cannot continue. I hope everyone here in this community is well and hanging in there. ❤️ 2009-2018, Paxil 40 mg. Tapered-0mg in 6 weeks. October 2020-May 2021 Zoloft, 25mg, 50mg, then 100mg. Tapered 25mg a week then 0mg less than a month. July 2021- Zoloft reinstated 25mg 1 week , 50 mg 1 week later, 100mg 2 weeks later. March 2022- began taper from 100mg, 10%/ 4 weeks. Got to 75mg around July 2022. Bad fatigue, body pain, OCD thoughts, intrusive fears/thoughts, occasional nightmares, memory loss, tongue tied, more frequent headaches, fear of losing everything, bipolar like behavior, paranoia that everyone is watching and judging me, unprovoked anger/rage, occasional flu like symptoms, dizziness, hair loss becoming the norm in the last few months. Still in treatment for Lyme Disease and Bartonella 4 years later as well as for Mycotoxins, EBV, MCAS with no resolution or positive responses to treatment protocols. May 2023-August 2023 75mg-62.5mg. August 2023-Current 50mg Link to comment
Mountainsky Posted March 26 Author Share Posted March 26 I have a nasty lyme coinfection that we think has been undetected for so long prolonging my pain and misery. There's a new drug that is literally a miracle for this infection and saving people, but you cannot be on psych drugs esp SSRIs. How the **** do I do a slow taper of 50 mg of Zoloft but fast enough so I can take this new Babesia drug to save my life when nothing else can? Nothing is meant to be anymore. 2009-2018, Paxil 40 mg. Tapered-0mg in 6 weeks. October 2020-May 2021 Zoloft, 25mg, 50mg, then 100mg. Tapered 25mg a week then 0mg less than a month. July 2021- Zoloft reinstated 25mg 1 week , 50 mg 1 week later, 100mg 2 weeks later. March 2022- began taper from 100mg, 10%/ 4 weeks. Got to 75mg around July 2022. Bad fatigue, body pain, OCD thoughts, intrusive fears/thoughts, occasional nightmares, memory loss, tongue tied, more frequent headaches, fear of losing everything, bipolar like behavior, paranoia that everyone is watching and judging me, unprovoked anger/rage, occasional flu like symptoms, dizziness, hair loss becoming the norm in the last few months. Still in treatment for Lyme Disease and Bartonella 4 years later as well as for Mycotoxins, EBV, MCAS with no resolution or positive responses to treatment protocols. May 2023-August 2023 75mg-62.5mg. August 2023-Current 50mg Link to comment
Tigz91 Posted March 26 Share Posted March 26 1 hour ago, Mountainsky said: I have a nasty lyme coinfection that we think has been undetected for so long prolonging my pain and misery. There's a new drug that is literally a miracle for this infection and saving people, but you cannot be on psych drugs esp SSRIs. How the **** do I do a slow taper of 50 mg of Zoloft but fast enough so I can take this new Babesia drug to save my life when nothing else can? Nothing is meant to be anymore. Can I ask what drug it is please I think I have Lyme or confections but just saving for a test Citalopram 10mg sep14-nov14, cit 20mg nov14-jan15, cit 40mg jan15 -jan22, tapered cit 40mg-0mg in 10 days. mirtazapine 15mg then 30mg jan22-Mar22, tapered in 1 week. citalopram 20mg apr22- may22( had a reaction this time, hives everywhere), no taper cold turkey sertraline 50mg then 100mg may22-nov22, tapered in 2 weeks. Link to comment
Mountainsky Posted March 26 Author Share Posted March 26 Tefenaquine, it's still fairly new. I've had ugly depression and anxiety all night and this morning, almost banged out for work. There's no end to this....yea lol time right? Years of this waiting only losing more and getting sick, but yea let's bank all our hopes on time correct? Nobody knows anymore if I have WD or lyme, both or none. 2009-2018, Paxil 40 mg. Tapered-0mg in 6 weeks. October 2020-May 2021 Zoloft, 25mg, 50mg, then 100mg. Tapered 25mg a week then 0mg less than a month. July 2021- Zoloft reinstated 25mg 1 week , 50 mg 1 week later, 100mg 2 weeks later. March 2022- began taper from 100mg, 10%/ 4 weeks. Got to 75mg around July 2022. Bad fatigue, body pain, OCD thoughts, intrusive fears/thoughts, occasional nightmares, memory loss, tongue tied, more frequent headaches, fear of losing everything, bipolar like behavior, paranoia that everyone is watching and judging me, unprovoked anger/rage, occasional flu like symptoms, dizziness, hair loss becoming the norm in the last few months. Still in treatment for Lyme Disease and Bartonella 4 years later as well as for Mycotoxins, EBV, MCAS with no resolution or positive responses to treatment protocols. May 2023-August 2023 75mg-62.5mg. August 2023-Current 50mg Link to comment
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