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Lodp: Invega Sustenna nightmare


Lodp

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Hi

 

I took 3 shots of invega sustenna and was bed bound for a full month with severe muscle rigidity/spasms, burning brain pains, headaches symptoms of parkinsonism/ dystonia. I suffer severe memory problems and cognitive issues.

 

The doc ordered a blood test which show 5ng/ml of paliperidon after 2 months not sure if this is because i've been using st johnswort to clear it out or not if its truly low.

 

It seems like i'm worse than ever on month 3 the only thing i can think of is somekind of allergic reaction to it or maybe its withdrawal..ive been reading recovery stories and they took a year to recover.

 

I'm forced to take 5mg of abilify because i'm on a CTO

 

who can help me..whats going on here?

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  • ChessieCat changed the title to Lodp: Invega Sustenna nightmare

Welcome @Lodp

I am sorry you are going through this and are suffering, but relieved you have found us. This forum is run by others like you who have been through and survived, or are surviving, the negative effects of psychiatric drugs.

 

To help us better advise you, can you please create a signature with all of the drugs that you are taking and have been taking in the last couple of years following these instructions:

How to List Drug History in Signature

 

The symptoms you describe after the injection were most likely a bad reaction to the drug. Either because the dose was higher than you could tolerate or because you cannot tolerate the drug at all. It is not recommended to use St. Johnswort in combination with psychiatric drugs. You may want to reduce the dose and then stop taking it.

Important topics about tests, supplements, treatments, diet

 

Unfortunately medical professionals have a poor understanding of how these drugs affect people. I found this post helpful to understand how these drugs actually work and why healing can take time:

How Psychiatric Drugs Remodel Your Brain

 

Here is some information about withdrawal:

What is withdrawal syndrome?

Dr. Joseph Glenmullen's withdrawal symptom checklist

The Windows and Waves Pattern of Stabilization

 

And about adverse reactions:

Adverse reactions to an antidepressant within a few doses -- how long for recovery?  (also relevant for other psychiatric drugs than antidepressants)

 

Here is our symptoms and self care section, you may find some useful ideas to help manage symptoms as you recover. 

Symptoms and self care topics

 

This is your Introductory topic, where you can ask questions and connect with other members.  We're glad you found your way here.

Edited by Kiasofia

These are my opinions based on my own experience and what I have learned, not medical advice.

 

Drug history

2002-2019 Citalopram/Escitalopram, Lamictal
2019 April Escitalopram, quit at 10mg (withdrawal), Oct Escitalopram 10mg reinstated, quit after a few days (adverse reaction)

2019 Oct Lamictal cut from 200mg to 100mg
2019 Dec Lithium 83x2 mg

2020 Aug-Nov Lamictal tapered to 50 mg

2020 Nov 24 Lithium taper started, 30 Jan off Lithium

2021 15. March-31. May Lamictal tapered to 32.5 mg (holding)

2022 10. Jan started taking 25mg+5mg+2mg+0.5 liquid, 22. Jan went back to taking 25mg+5mg+half 5mg

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