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BBC Panorama June 19, 2023: The antidepressant story


Faure

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Im surprised this hasn't been posted. There is a breif interview with Altostrata, David Healy as well as Luke Montagu. 

https://www.bbc.co.uk/programmes/m001n39z#:~:text=Panorama examines whether the current,made the pharmaceutical industry billions

 

It is also on ABC Iview for Australian members. 

 

https://iview.abc.net.au/video/NC2303H031S00

 

 

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There's already a thread about it here:

 

 

Disclaimer:  This is not professional medical advice but is based on personal experience only.

1994 - 2017:  Prozac, Cymbalta, Celexa, Paxil, Wellbutrin, Zoloft, Seroquel, Buspar, Lorazepam, Xanax, Ambien

2005-present:  Trazodone 50 mg 

2017:  Effexor XR 37.5 >> 75 mg 

2020 (March):  Began 10% monthly taper of Effexor XR (got down to 12 mg)

2021 (September):  Completely crashed.  Went back up to 37.5 mg but in doing so I kindled myself

2024:  1/1:  35.6 mg (-6 beads)  |  2/1:  33.8 mg (-11 beads)  |  3/1:  32.1 mg (-16 beads)  |   4/1:  (-18 beads)

Reasons for starting psych meds:  PMDD/Depression, Generalized Anxiety Disorder

Other medications:  Levothyroxine 75 mcg

Supplements:  Dr. Berg's Electrolyte Powder on occasion   

 

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On 6/25/2023 at 6:42 PM, Erimus said:

I think it would be good to see a programme orientated on 4-5 people in withdrawal, following them over a period of 1-3 years, with updates every 3 months or so. 

I wanted to write a play about this.  5 stories, 5 experiences.  I spoke to a couple of playwrights - but - they didn't get it.  "But I know someone, they need their meds....."

 

Imagine my delight when I accidentally tuned into ABC Four Corners and saw the Panorama show.  OMG - there's Alto on my TV!!!!  And our Website!!!!  Good to see Horowitz and Healy & Moncrieff - I was bouncing up and down on the couch!

 

To address some of the complaints here - YES, withdrawal is horrible, but BBC are just opening a door.  They can't show the horrors yet. (note, it is 2 state sponsored services - supposedly free of pharma money - who have aired this.)    Mark tried to discuss the horrors (hubby said, all the recovered people looked so - normal, I said - because it can happen to anyone!) so their tactic was, instead, "imagine if you lost your sexuality?" also effective.  I think they focused on the stories of professionals.  I'm also grateful that they went to Alto, and not any of the spin-off sites, or Facebook.   Hubby was a bit teary to see this stuff finally discussed over the mainstream.  He knows how hard we have fought.

It's now an open mic.  Keep educating those around you.   It took 40 years from Surgeon General's Report in 1962 to prove that tobacco was harmful, and that they knew all along.  

"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

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Rather than edit my above comment, I'm going to add - 

 

When the former Chief Psychiatrist at the (NIMH?) said sorry - her body language, her face, told me that all she had previously believed had been broken, that she was beaten down.  New awareness.  She is no longer in the office - but - bravo UK for leading the way!

 

SEEING THAT was worth the price of admission.

And, of course, bravo Alto - you presented beautifully!

"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

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One thing I’ve noticed since this documentary was shown, is how my family are treating me with just that bit more understanding.

 

My partner has always supported me 100%, but I’ve always had that sense that other family members - while sympathetic - never really understood what I was going through, didn’t quite get how I could still be experiencing withdrawal after a couple of years.

 

They all watched the documentary when it aired, and it was like a switch was flipped. I think it was probably seeing lots of other ‘normal’ people describing the same thing, and medical professionals confirming it is all real.

 

It just goes to show how important TV documentaries like this are in raising awareness and legitimising those going through it.

Oct 2018 - Jun 2020: 10 mg per day generic Escitalopram in pill form.

Jul 2020 - Aug 2020: Switched to 9 mg per day of Cipralex drops to aid tapering.

Sep 2020 - Oct 2020: Taper to 8 mg.

Nov 2020 - Dec 2020: Taper to 7 mg.

Jan 2021 - Feb 2021: Taper to 6 mg.

Mar 2021 - Apr 2021: Taper to 5 mg.

May 2021 - Jun 2021: Taper to 4 mg.

Jul 2021 - Sep 2021: Taper to 3 mg.

Sep 2021 - Jan 2022: Taper to 2 mg.

Jan 2022: Stopped taking altogether.

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I just wanted to add that this aired in Australia under our ABC channel which operates very similar to the UK's BBC. 

 

I was glad to see Alto and others like Mark Horowitz on there. Also, the apology from the Royal College Person seemed a bit insincere, I mean how could have no body come forward and told her throughout all these years ? However, I will take it as it is better than nothing. 

 

One last thing, it was really good to show my Dad as he had no idea about withdrawal despite my best efforts to explain. He has just seen me go through the works and be unable to leave the house. It was good for him to see other people, who lead active lives, give their experiences into words that maybe family members can understand. 

2008-2012: Cymbalta, Zyprexa, Valium (5 days supply),

2012 - Seroquel x 4 weeks C/T. 

2014 - Seroquel x 2 Weeks C/T. Crossed to Risperidone 3mg for 6months until December.

2014 - Stopped Risperidone. Xfer > Anti-Depressant 200mg Zoloft and 6mg Clonazepam. 

2018 - 150mg Clomipromine changed Anti-depressant. Tapered Benzo to 1mg Clonazepam. 2019 - xfer to 20mg Diazepam. 

 

Currently:

Anafranil: 75mg. 17th Dec 2022 70mg. 27th Dec 22: 75mg, 14 January 23': 70mg. 16-26th January: 50mg (too fast drop no sleep). Jan 28th 2023: 70mg. 20 Feb 2023: 65mg. 11/06: 60mg 9/08: 55mg 15/08/23 : 50mg
3/03/2024: 60mg (Updose) 25/04: 57.5mg

 

        Diazepam (V): 25th Oct 2019' 20mg. 22 Dec 19' 19mg. 04 Apr 2020' 18mg,  30 September 20' 17.5mg , 13 Nov 2020' 17mg. 01 January 2021: 16mg, 13th Aug 21' 15mg. 1st Nov' 2021 14.5mg. 1st Dec' 2021 14mg. 13 January 2022: 13.5mg, 11 Feb: 13mg.  11 April 22' 12.5mg, 12 May 22': 12mg, 6th September 2022: 11mg Valium. 9th October: 10.5mg, 25th Oct 10mg. 12 March 23: 9.5mg 2 April: 9.25mg 23 April: 9mg 12/05: 8.75 26/05: 8.5 12/09: 8.25 21/09: 8.5. 3/10: 8.25 17/10: 8mg 20th Nov Brassmonkey: (7.9.,7.8, 7.75) 5 Feb: 7.25mg. 23 Feb: 7mg 

*.      Have tried to go at faster rate than 0.5mg but is currently too fast. 

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5 hours ago, Ryder said:

Also, the apology from the Royal College Person seemed a bit insincere

I agree 100%. She was just backed into a corner in my opinion. But at least it was an admission. Just glad it helped many of us get more understanding. 

20 yr+ Paroxetine/ Dec2018-May 2022 20 mg/ May 2022 30mg/2022.07.28-2022.08.24 30mg to 0mg/ August 24-29 2022 10mg Prozac/2022.11.28-2022.12.04- 5mg Paroxetine/Dec 5&6/22 10mg Paroxetine/ Dec 8&9/22 10mg Prozac/ 2022.12.07 to 2023.07.01 5mg Paroxetine

TAPER 23.07.02-58mgpw/4.9mgai/ 23.07.21-4.8 mg/23.07.28-4.73 mg/23.08.04-4.65 mg/21.09.23-4.58 mg/27.10.23-4.56 mg/5.12.23-4.54 mg/2.1.24-4.52 mg/9.1.24-4.51 mg/17.1.24-4.49 mg/26.1.24-4.47 mg/6.2.24-4.46 mg/19.2.24-4.44mg /4.4.24-4.43mg

8am-probiotics/9am-paroxetine, 200mg mag bisglycinate/ 1000mg Vitamin D/noon-1000 mg algae oil (500mg DHA/10mg EPA/620mg Omega 3)/5pm-75 mg DGL/200mg calcium citrate/8pm-.25 mg melatonin

"... your strength will be in keeping calm..."-Isaiah 30:15

I am not a medical professional just your peer. The suggestions I give are based on personal experience and/or the well documented experience of others.

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 I think it was hard for Wendy Burn of RCPsych to admit she had been wrong, but she did it, and on the public record.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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  • 2 weeks later...
  • Moderator Emeritus
On 9/6/2023 at 3:16 PM, Altostrata said:

 I think it was hard for Wendy Burn of RCPsych to admit she had been wrong, but she did it, and on the public record.

That means something.  "Sorry" means something, even if you are backed into a corner.

 

How many haven't said sorry?

"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

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On the topic of the Beeb, Radio 4 this morning on their Today programme mentioned our plight, I didn't hear the whole article as I was waking up so half dozing half awake (I really hope I didn't dream it though :-/) .  But I did hear mention of Drs misdiagnosing withdrawal and a very long tapering programme was recommended.  I felt it's good that this was discussed on another platform so well done BBC 👍 

Citalopram 20mg from 2014. Spring 2016 10mg for 4 weeks then stopped May 2016. Sept 2016, 20mg; increased briefly to 30mg but felt worse and dropped back to 20mg. May 2018 15mg. July 2018 10mg. May 2019 dropped to 7.5mg (ish).  Returned to 10mg from mid-June 2019. 16th Nov 19 gradually changed to 100% dissolved tablet over 2 weeks. 

2019 28th Nov 9mg.

2020 13th Jan 8.1mg. 11th Feb 7.3mg. 29th April 2020 6.57mg. 30th May 5.90mg. 21st July 5.31mg. 17th Sept 4.8mg.

2021 7th Feb 4.3mg. 29th Mar 3.8mg. 10th May 3.42mg. 19th June 3.12mg. 29th Sept 2.83mg. 10th Nov 2.55mg.

2022 7th Jan 2.3mg. 15th Feb 2.07mg. 15th Mar 1.87mg. 7th May 1.68mg. 20th June 1.5mg. 24th Sept 1.43mg. 12th Oct 1.35mg. 12th Nov 2022 commenced Brass Monkey method (mg values are those of the fourth drop where I'll hold for a least 2 weeks): 3rd Dec 1.25mg.

2023 4th Feb 1.097mg. 27th Mar 0.988mg.  8th May 0.89mg. 19th June 0.8mg.  14th Sept 0.72mg. 

2024 (commenced lower dose drops) 1st Jan 0.71mg. 8th Jan 0.70mg. 15th Jan 0.69mg. 22nd Jan 0.68mg. 29th Jan 0.66mg. 5th Feb 0.64mg. 12th Feb 0.6mg.  19th Feb 0.56mg. 25th Mar 0.52mg. 1st Apr 0.49mg. 8th Apr 0.47mg. 15th Apr 0.44mg. 22nd Apr 0.42mg.

 

Supplements:  Omega 3 Algae Oil, Vitamin D, Magnesium Citrate 

Non-AD prescribed drugs: Levothyroxine 200mg (since 1988), Amlodipine 5mg and Ramapril 10mg (since ~2005)

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5 hours ago, Mamgu said:

But I did hear mention of Drs misdiagnosing withdrawal and a very long tapering programme was recommended. 

 

Big step forward if this is common knowledge!

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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I think the Radio 4 segment was probably reporting on the news that the only UK support line specifically for people experiencing antidepressant withdrawal is being closed down, and people will be directed to another service that doesn't provide the same service.

 

https://www.bbc.co.uk/news/health-66606405

 

While the story isn't good for those in the UK who need help, it is very encouraging that the BBC continues to place news like this in priority locations. It was on the front page of the BBC News website for all of yesterday.

Oct 2018 - Jun 2020: 10 mg per day generic Escitalopram in pill form.

Jul 2020 - Aug 2020: Switched to 9 mg per day of Cipralex drops to aid tapering.

Sep 2020 - Oct 2020: Taper to 8 mg.

Nov 2020 - Dec 2020: Taper to 7 mg.

Jan 2021 - Feb 2021: Taper to 6 mg.

Mar 2021 - Apr 2021: Taper to 5 mg.

May 2021 - Jun 2021: Taper to 4 mg.

Jul 2021 - Sep 2021: Taper to 3 mg.

Sep 2021 - Jan 2022: Taper to 2 mg.

Jan 2022: Stopped taking altogether.

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Yes @Jon1 you are correct that is what the segment was about. For those interested to listen to it, it is on the 14/09/23 Radio 4 today programme starting just after 54mins in.

Sep 2021: Amitriptyline 25mg daily for Shingles. 

Nov 2021: - 6 week taper to 1/4 of 10mg Amitriptyline.

Jan 2022: Stopped Amitriptyline.

Aug 2022-Now: 1/2 tablet 25mg Diphenhydramine v. occasionally.

Sep 2022-May 2023: magnesium, omega 3, calcium and multivitamin.

Nov 2022-20mg Citalopram for 5 days only.

April 2023-Now: Significant improvement, mild symptoms, 1 tablet certrezine, occasionally.

 

 

 

 

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  • 2 weeks later...

 

On 9/4/2023 at 11:01 AM, JanCarol said:

Imagine my delight when I accidentally tuned into ABC Four Corners and saw the Panorama show.  OMG - there's Alto on my TV!!!!  And our Website!!!!  Good to see Horowitz and Healy & Moncrieff - I was bouncing up and down on the couch!

It was truly amazing and I too was thrilled @JanCarol BUT, I was so disappointed by the cuts taken out of the original Panorama version. Particularly  Joanna Moncrieff’s work surrounding the Chemical Imbalance Theory,  and Tony Kendrick,  stating that in the UK they now train students NOT to prescribe ADs for less severe symptoms. The Australian general public have a right to know. We are one of the worlds highest prescribers after all and I still speak to GPs in Australia who mention a Chemical Imbalance! Here is the uncut version for those who are interested. https://rumble.com/v2wlt7g-the-antidepressant-story-bbc-panorama-documentary.html
 

 

Lexapro Fast Track/ Cold Turkey

Last dose end Dec 2018 

Tapered 1/2 a daily dose a week (20mg) for  14 weeks, last dose was a 20 mg pill!!  

 3.5 times slower than Psychiatrist recommended, I felt proud of myself!! Little did I know!!!!Got too scared to reinstate because I’d left it too long.

On ADs for 20 years (Prozac approx 10 years/ Pristiq approx 3 years/ Citalipram approx 2 years/. Lexapro a approx  5 years/. Last two years 40mgs Lexapro day.

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  • 4 months later...
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Thanks @Katy398 I didn't know we hadn't seen the whole thing.  LOL we burned it to disc, too.  

 

Still - I'm here today because ABC is following on from Panorama, interviewed Mark Horowitz (who is apparently Aussie-born, didn't know that) - and apparently have done other AM shows either with him, or about the "harms" topic.

The interviewer seems clueless, I can hear her thinking "But people need these drugs, right?" and it shows in her line of questioning.

Don't know if this is viewable outside Oz, but:  https://www.abc.net.au/listen/programs/sydney-mornings/horowitz/103383522?utm_campaign=abc_listen&utm_content=mail&utm_medium=content_shared&utm_source=abc_listen

 

Additionally, they featured an article on someone harmed in withdrawal:  https://www.abc.net.au/news/2024-01-29/brain-zaps-and-antidepressant-withdrawal-issues/103233634

 

 

"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

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Thanks for that!

 

I could listen to it here in the UK no problem.

 

I agree she did seem a bit clueless, even disinterested. Confusing other psych drugs with antidepressants at one point.

 

At least a few more people would have heard about it though.

Oct 2018 - Jun 2020: 10 mg per day generic Escitalopram in pill form.

Jul 2020 - Aug 2020: Switched to 9 mg per day of Cipralex drops to aid tapering.

Sep 2020 - Oct 2020: Taper to 8 mg.

Nov 2020 - Dec 2020: Taper to 7 mg.

Jan 2021 - Feb 2021: Taper to 6 mg.

Mar 2021 - Apr 2021: Taper to 5 mg.

May 2021 - Jun 2021: Taper to 4 mg.

Jul 2021 - Sep 2021: Taper to 3 mg.

Sep 2021 - Jan 2022: Taper to 2 mg.

Jan 2022: Stopped taking altogether.

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