Pugknows Posted May 7, 2015 Author Share Posted May 7, 2015 Yes. January 2012 - Prescribed 900mg gabapentin and 30mg Norco for lower lumber spinal stenosis pain. September 2013 - Spinal fusion surgery, 6 levels. Hospital ramped up meds 1500mg gabapentin, 100mg Norco, 80mg Oxycontin, 25mg Fentanyl patch. January 2014 - Sever nausea daily and with back pain every 4 hours. 2 trips to ER. First endoscopy found ulcer. Treated with Sucralfate and PPI. Second endo in May found no ulcers. Doctors said it was the opiates causing the nausea. CT'd Oxycontin, Fentanyl patch. July 2014 - Lost 48 lbs. due to not eating because of severe nausea. GP prescribed Prozac 20mg and Ativan 2mg prn. Tried for 4 days, quit. Two week followup GP said keep taking Prozac. 4 days, quit again. Ativan taken rarely prn for anxiety and appetite. August 2014 - Went to detox. Off opiates. Still nauseous, helmet head, drugged feeling. Doctor CT'd gabapentin. Ended up in ER. Found 2 gallstones. Gabapentin reinstated at 900mg. Tried botched up and down taper to get off Gabapentin. No tapering advice from doctor. Said to just CT again. September 2014 - Coded on table during gallbladder surgery. Developed liver biloma due to CPR by doctor. Had bile bulb inserted for 2 wks to drain. October 2014 - Gallbladder removed. Still nauseous, 3am cortisol surging, drugged helmet head, vertigo, breathlessness, whooshing head, heart palps. November 8th, 2014 - CT'd gabapentin suggested by family and 4 different doctors. Was told no withdrawal is associated with gabapentin. Have been in hell ever since. No windows, just one big tsunami every day with same symptoms for 4 months. December 26, 2014 - Found SA. At least I know I'm not insane. My family thinks I'm doing this to myself. Akathesia has become unbearable. March 10, 2015 - In absolute daily hell with no relief. Currently taking magnesium 200mg before bedtime. Link to comment
Pugknows Posted May 7, 2015 Author Share Posted May 7, 2015 I'm on my last leg everyone. I'm going to the doctor tomorrow. I'll see what she has to say. I'm going to ask for blood tests. Can't hold on anymore. Hope is gone. I'm damaged goods. Is God listening to my cries? Why doesn't he help us?? January 2012 - Prescribed 900mg gabapentin and 30mg Norco for lower lumber spinal stenosis pain. September 2013 - Spinal fusion surgery, 6 levels. Hospital ramped up meds 1500mg gabapentin, 100mg Norco, 80mg Oxycontin, 25mg Fentanyl patch. January 2014 - Sever nausea daily and with back pain every 4 hours. 2 trips to ER. First endoscopy found ulcer. Treated with Sucralfate and PPI. Second endo in May found no ulcers. Doctors said it was the opiates causing the nausea. CT'd Oxycontin, Fentanyl patch. July 2014 - Lost 48 lbs. due to not eating because of severe nausea. GP prescribed Prozac 20mg and Ativan 2mg prn. Tried for 4 days, quit. Two week followup GP said keep taking Prozac. 4 days, quit again. Ativan taken rarely prn for anxiety and appetite. August 2014 - Went to detox. Off opiates. Still nauseous, helmet head, drugged feeling. Doctor CT'd gabapentin. Ended up in ER. Found 2 gallstones. Gabapentin reinstated at 900mg. Tried botched up and down taper to get off Gabapentin. No tapering advice from doctor. Said to just CT again. September 2014 - Coded on table during gallbladder surgery. Developed liver biloma due to CPR by doctor. Had bile bulb inserted for 2 wks to drain. October 2014 - Gallbladder removed. Still nauseous, 3am cortisol surging, drugged helmet head, vertigo, breathlessness, whooshing head, heart palps. November 8th, 2014 - CT'd gabapentin suggested by family and 4 different doctors. Was told no withdrawal is associated with gabapentin. Have been in hell ever since. No windows, just one big tsunami every day with same symptoms for 4 months. December 26, 2014 - Found SA. At least I know I'm not insane. My family thinks I'm doing this to myself. Akathesia has become unbearable. March 10, 2015 - In absolute daily hell with no relief. Currently taking magnesium 200mg before bedtime. Link to comment
direstraits Posted May 7, 2015 Share Posted May 7, 2015 I hope you can get some help from the Dr. so sorry you're in this situation-you're in my thoughts& prayers XO went on Prozac 1994-99,60mg.poopout ct back on 2001-2002,prozac weekly 2002,not working,Effexor 75 mg.?2003-mar.2004 gaining weight 8wk. taper,wellbutrin 150 mg.mar. -may 2004 ctmedfree til july 2005 back to Prozac gaining weight again,back on wellbutrin jan.2006150-300 mg.bad constipation.also was taking aygestin(hormone)perimenopausal irregular bleeding.back on Prozac around sept,?2006,hysterectomy jan30.2007(adenomyosis)off&on Prozac til 2009,citalopram about 1 mo, April 2010 no effect,Effexor again may -mar, 2011.ct,Prozac aug,-dec, 2011 &sept-nov 2012,paroxetine oct,23 2013-may 4 2014 20 mgs.tapered 6 wks.-failed RI in Oct.2014-in protracted WD.started 10 mgs. Fluoxetine May 25 2021 .Stopped fluoxetine May 2022 at 5 mgs. Link to comment
Pugknows Posted May 7, 2015 Author Share Posted May 7, 2015 I keep thinking maybe I'm not praying right. I keep thinking maybe I'm not worthy. I keep thinking God has forgotten about me. why do I have to stay in this torture chamber? I just want things to lift a little. January 2012 - Prescribed 900mg gabapentin and 30mg Norco for lower lumber spinal stenosis pain. September 2013 - Spinal fusion surgery, 6 levels. Hospital ramped up meds 1500mg gabapentin, 100mg Norco, 80mg Oxycontin, 25mg Fentanyl patch. January 2014 - Sever nausea daily and with back pain every 4 hours. 2 trips to ER. First endoscopy found ulcer. Treated with Sucralfate and PPI. Second endo in May found no ulcers. Doctors said it was the opiates causing the nausea. CT'd Oxycontin, Fentanyl patch. July 2014 - Lost 48 lbs. due to not eating because of severe nausea. GP prescribed Prozac 20mg and Ativan 2mg prn. Tried for 4 days, quit. Two week followup GP said keep taking Prozac. 4 days, quit again. Ativan taken rarely prn for anxiety and appetite. August 2014 - Went to detox. Off opiates. Still nauseous, helmet head, drugged feeling. Doctor CT'd gabapentin. Ended up in ER. Found 2 gallstones. Gabapentin reinstated at 900mg. Tried botched up and down taper to get off Gabapentin. No tapering advice from doctor. Said to just CT again. September 2014 - Coded on table during gallbladder surgery. Developed liver biloma due to CPR by doctor. Had bile bulb inserted for 2 wks to drain. October 2014 - Gallbladder removed. Still nauseous, 3am cortisol surging, drugged helmet head, vertigo, breathlessness, whooshing head, heart palps. November 8th, 2014 - CT'd gabapentin suggested by family and 4 different doctors. Was told no withdrawal is associated with gabapentin. Have been in hell ever since. No windows, just one big tsunami every day with same symptoms for 4 months. December 26, 2014 - Found SA. At least I know I'm not insane. My family thinks I'm doing this to myself. Akathesia has become unbearable. March 10, 2015 - In absolute daily hell with no relief. Currently taking magnesium 200mg before bedtime. Link to comment
direstraits Posted May 7, 2015 Share Posted May 7, 2015 I know,Judy;it can get so hopeless-wish I knew what the answer was,if there is one I did feel a bit better today;able to go for a walk,not so fatigued-I did take fish oil & magnesium last night; I don' t know if that helped or not but I'm going to keeptaking it & see how I do. I really hope you can get some relief soon-sending you love & healing. went on Prozac 1994-99,60mg.poopout ct back on 2001-2002,prozac weekly 2002,not working,Effexor 75 mg.?2003-mar.2004 gaining weight 8wk. taper,wellbutrin 150 mg.mar. -may 2004 ctmedfree til july 2005 back to Prozac gaining weight again,back on wellbutrin jan.2006150-300 mg.bad constipation.also was taking aygestin(hormone)perimenopausal irregular bleeding.back on Prozac around sept,?2006,hysterectomy jan30.2007(adenomyosis)off&on Prozac til 2009,citalopram about 1 mo, April 2010 no effect,Effexor again may -mar, 2011.ct,Prozac aug,-dec, 2011 &sept-nov 2012,paroxetine oct,23 2013-may 4 2014 20 mgs.tapered 6 wks.-failed RI in Oct.2014-in protracted WD.started 10 mgs. Fluoxetine May 25 2021 .Stopped fluoxetine May 2022 at 5 mgs. Link to comment
Laura1981 Posted May 7, 2015 Share Posted May 7, 2015 Oh Pug, I wish you so much that things start improving! I always follow your thread. I hope your doctor has any ideas for you tomorrow!!! Feb 2015 Took venlafaxine for 5 days only... experienced withdrawal that made me completely non-functional Mar 2015 took under 1mg of Sertraline for 10 days in an attempt to combat Venlafaxine withdrawal. Got adverse reactions. After stopping Sertraline, withdrawal got much worse. New, horrific symptoms. June 2015 Still non-functional but slowly getting better. Still brain zaps, migraines, sweating, heart racing, depression, crying spells September 2015: 24/7 brain zaps, twitches in the face, no concentration, bad memory, language skills deteriorating. Profile feed: http://goo.gl/3g2GRn Sign this petition for a blackbox warning on Prozac in Ireland: https://www.change.org/p/leo-varadakar-hpra-the-lack-of-a-blackbox-warning-on-prozac-in-ireland-and-its-use-by-the-hse-in-under-18-s?recruiter=63289046&utm_source=share_petition&utm_medium=facebook&utm_campaign=share_for_starters_page&utm_term=des-lg-no_src-no_msg Link to comment
Martina23 Posted May 7, 2015 Share Posted May 7, 2015 Pug, hold. You have come so far, now you would not resignate, I am fighting too. 05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free- symptoms OCD Link to comment
roadback1 Posted May 7, 2015 Share Posted May 7, 2015 Pug, I also read your thread whenever you post,and I would like to join your dear friends who are circling around you and lifting you up. My Pastor likes to say that all the hard stuff that is happening to us has an expiration date.Hang on, Pug! **I started taking Zoloft 100 mg. in 1996 for a panic disorder with agoraphobia and depression, which worsened after a car accident. I have had these symptoms since age 11 . ** In September 2009 , the Zoloft was upped to 150 mg and .5 mg Xanax was added as needed for extreme anxiety due to my Father's illness and death from cancer. Successfully tapered off the Xanax in November 2009. ** I started my Zoloft taper in September 2011,and,in July 2012, reached 75 mgs.(went to 68.5 mgs,but went back up to 75mgs due to withdrawal related depression /anxiety symptoms . ** I started tapering again in September 2014 ,and, as of December,2014, I was holding at 50 mgs. Zoloft until February,2015, when I tapered in two cuts to 37.5 mgs. Due to protracted withdrawal symptoms, have up dosed to 50 mgs. Zoloft on 5/18/2015 and holding there. **Also started .25 mgs xanax at bedtime in September,2015, due to alerting/jolting awake/anxiety and not sleeping because of heart related issues,now resolved.I tapered completely off in Oct. 2015 (too fast ) had withdrawal symptoms and updosed to .12 mgs Xanax once a night. ** After dry cutting till I couldn't do it accurately, I have been on compounded doses. Am on 0.069 mgs compounded Xanax as of 6/21/17 once per night, as prescribed by my Doctor. Link to comment
Frustrated Posted May 7, 2015 Share Posted May 7, 2015 I keep thinking maybe I'm not praying right. I keep thinking maybe I'm not worthy. I keep thinking God has forgotten about me. why do I have to stay in this torture chamber? I just want things to lift a little. You are more than worthy dear. I know it seems God is not listening. I think the same thing often. Please just try to keep faith. We will heal. We cannot stay ill forever. The body is designed to recycle itself and heal. Love and hugs. 2002-put on amitryptiline for fibromyalgia. 10mg.2004-stopped abruptly. Didn't think it helped.2006 approx.-put on Paxil for mild anxiety 20 mg.2007 upped to 40 mg. not sure why.2011- tapered from 40 to 10. went nuts and went back to 20mg2014- tapered from 20mg to 0 from April to The end of June.current meds- Metformin(type 2 diabetic) and low dose aspirin.Take multi vitamin and vit b12, vit. D and magnesium. 5 months off Paxil. Still suffering.recently added 1.2mg of Paxil to alleviate withdrawals.(Nov 30)Dropped to .9mg because having symptoms from reinstatement.(dec 23)<p>taper to .76mg-.8mg (Feb 3) approx. weight .010 to about .008-.009 on scale..6mg (march 19th.) .5mg(April 19th).4mg(April 27th).2 (June 27th) 0mg. done taper at beginning of August. Link to comment
luv2knit Posted May 7, 2015 Share Posted May 7, 2015 (((Pug))) God does not always answer the way we want when we want. If He did, we would all be completely healed. He is listening, though, and His timing is perfect. Praying you feel better soon. Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day). Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired) Link to comment
SelmaLady Posted May 7, 2015 Share Posted May 7, 2015 Pug, God is always with you, always wanting to strengthen you and to comfort you. You will heal in time. Everyone gets better. Try only to get through this day---it isn't wasted. It IS one of healing. This isn't your final destination. You're going to make it through. Lots of people are cheering you on and praying for you. Keep going. xoxo 1971-81 Valium 5mg c/t PAWS 1992- through now Zoloft 25mg 2003-05 Valium 12mg Slow Taper Off 2013 Afrin Exposure to CNS 2013 O/D Val 230mg 2013 Doxepin 50mg Clonidine 2mg Zoloft 25mg 3/15/16 Doxepin 49mg Micro Tapering Zoloft 24.3mg Holding taper 3/15/16 Clonidine mg 0.1 1/2 - Decreasing incrementally. DISCONTINUED 10/9/16 Doxepin 48.9 Zoloft 24.3 Clonidine 01.10 Continuing micro taper on Doxepin. 11/16/16 Doxepin 48mg Zoloft 24.3mg Clonidine 1.30mg 5/4/17 Doxepin 45mg Zoloft 24mg Clonidine 1.20mg Micro taper of Doxepin , Clonidine 01/13/19 Doxepin 45mg Zoloft 21mg Will start Micro taper of Doxepin 2/19 12/21/21 Doxepin 20 mg ? Reducing using water micro taper--Pulling 24ml from 75ml 12/2121 Zoloft .060 grams by weight--HOLDING (info from post added by CC: On 12/21/21 my dosage was .060grams by weight or 20mg. ) 26 Apr 2022 - Zoloft at -0- Link to comment
shelby Posted May 8, 2015 Share Posted May 8, 2015 John 14: 18-20 He is always there Pug. Always. I know its hard to know this when we feel so bad, When are feelings are numb because of a healing CNS. But He is still there. We are connected to Him and Him to us. Ive been told He will respond to the righteous desires of our heart. I guess this why positive thinikng is so important. I know thats hard also, but we must do it even if we think we are lying to ourselves. Do you want to live? Do you want to get better? Of course you do, so thats what ive started doing. Telling myself "i want to live, i want to get better". Even if we dont believe it lets say it anyway. God will respond. He is always a part if us and never leaves. 40 year old male - First panic attack in May 2012 May 2012 Atenolol (beta blocker)25mg, Ativan 2mg August 2012 Rapid taper ativan, started zoloft 25mg Dec 2012... rapid taper zoloft, January 2013 Xanax 1mg for 1 month February 2013 Klonopin 1mg April 2013 to May 2013 Rapid Taper Klonopin to 0.5mg June 10th 2013 jumped from 0.5 Kpin and Atenolol 25mg July 2013 two days of Ativan 1mg b/c of hospital visit September 2013 started Effexor 75mg (this was a mistake i think) July 2014 to October 2014 tapered off Effexor... July 2015 - Reinstated zoloft 50mg Link to comment
Martina23 Posted May 8, 2015 Share Posted May 8, 2015 Pug, I am sorry that I told you "you have to hold". You do not have to, if you dont want to. I think, when you give up, I will also. I am also lying myself already for long time that "there is soem improvement". If you start to take some serokill, please tell me, I will try it also... 05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free- symptoms OCD Link to comment
Martina23 Posted May 8, 2015 Share Posted May 8, 2015 Pug, I changed my mind. I will still try it like now. I think, my head feels easier without medicaments, I have a feeling I am more waken up, more me. Today is not the day of my defeat! 05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free- symptoms OCD Link to comment
Pugknows Posted May 8, 2015 Author Share Posted May 8, 2015 I went to my GP today. She said I've been at this for 6 months and my only options are to go on Paxil or Zoloft. I screwed up my CNS with gabapentin its permanent and I could go back on gabapentin also. January 2012 - Prescribed 900mg gabapentin and 30mg Norco for lower lumber spinal stenosis pain. September 2013 - Spinal fusion surgery, 6 levels. Hospital ramped up meds 1500mg gabapentin, 100mg Norco, 80mg Oxycontin, 25mg Fentanyl patch. January 2014 - Sever nausea daily and with back pain every 4 hours. 2 trips to ER. First endoscopy found ulcer. Treated with Sucralfate and PPI. Second endo in May found no ulcers. Doctors said it was the opiates causing the nausea. CT'd Oxycontin, Fentanyl patch. July 2014 - Lost 48 lbs. due to not eating because of severe nausea. GP prescribed Prozac 20mg and Ativan 2mg prn. Tried for 4 days, quit. Two week followup GP said keep taking Prozac. 4 days, quit again. Ativan taken rarely prn for anxiety and appetite. August 2014 - Went to detox. Off opiates. Still nauseous, helmet head, drugged feeling. Doctor CT'd gabapentin. Ended up in ER. Found 2 gallstones. Gabapentin reinstated at 900mg. Tried botched up and down taper to get off Gabapentin. No tapering advice from doctor. Said to just CT again. September 2014 - Coded on table during gallbladder surgery. Developed liver biloma due to CPR by doctor. Had bile bulb inserted for 2 wks to drain. October 2014 - Gallbladder removed. Still nauseous, 3am cortisol surging, drugged helmet head, vertigo, breathlessness, whooshing head, heart palps. November 8th, 2014 - CT'd gabapentin suggested by family and 4 different doctors. Was told no withdrawal is associated with gabapentin. Have been in hell ever since. No windows, just one big tsunami every day with same symptoms for 4 months. December 26, 2014 - Found SA. At least I know I'm not insane. My family thinks I'm doing this to myself. Akathesia has become unbearable. March 10, 2015 - In absolute daily hell with no relief. Currently taking magnesium 200mg before bedtime. Link to comment
luv2knit Posted May 8, 2015 Share Posted May 8, 2015 Pug, sorry--I know that puts you in a bad spot, but I think it is just another case of a doctor who has no clue what they are talking about. I know of many people who have healed, but not in six months. It takes time. This sounds like another doctor who thinks withdrawal either doesn't exist, or is over in a few weeks' time Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day). Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired) Link to comment
Laura1981 Posted May 8, 2015 Share Posted May 8, 2015 Oh no... it's so saddening that doctors just make random statements if they don't know about a subject. If this came from a neurologist specialised in withdrawal from neuroleptics.... you would still need to take it with a pinch of salt. But from a GP? Ridiculous.... Feb 2015 Took venlafaxine for 5 days only... experienced withdrawal that made me completely non-functional Mar 2015 took under 1mg of Sertraline for 10 days in an attempt to combat Venlafaxine withdrawal. Got adverse reactions. After stopping Sertraline, withdrawal got much worse. New, horrific symptoms. June 2015 Still non-functional but slowly getting better. Still brain zaps, migraines, sweating, heart racing, depression, crying spells September 2015: 24/7 brain zaps, twitches in the face, no concentration, bad memory, language skills deteriorating. Profile feed: http://goo.gl/3g2GRn Sign this petition for a blackbox warning on Prozac in Ireland: https://www.change.org/p/leo-varadakar-hpra-the-lack-of-a-blackbox-warning-on-prozac-in-ireland-and-its-use-by-the-hse-in-under-18-s?recruiter=63289046&utm_source=share_petition&utm_medium=facebook&utm_campaign=share_for_starters_page&utm_term=des-lg-no_src-no_msg Link to comment
bluebalu86 Posted May 8, 2015 Share Posted May 8, 2015 Oh Pug, so sorry you are feeling so bad. What do you plan to do? Are you going to give the meds a try, or try to persevere through this without them? I suffer from depression, anxiety, pure-o ocd, and panic attacks since 2004. Been on multiple different psychiatric drugs since 2006. Never had a significant WD problem before, only brain zaps for a month and then I'd be fine...............Been on Cipralex (escitalopram) 15 mg and Fluanxol (flupentixol) 1 mg since Sep 2014. Stopped taking the Cipralex after a fast 20-day taper.Took the last 5 mg Cipralex on Feb 5th, 2015. Then took Seroxat (paroxetine) 10 mg for a week, and stopped it too. Severe WD started suddenly on Feb 16th. RI 5 mg Cipralex on Feb 18th, 2015. RI worked and was relatively stable for a while................April 7 - decreased Fluanxol from 1 mg to 0.5 mg and took it at this dose for a week. - BIG MISTAKE; April 13 - WD starts creeping in; April 14 - RI full dose of Fluanxol 1 mg => severe muscle twitching and jerking when trying to relax and fall asleep, overwhelming sense of doom, dread, terror, and horror, insomnia, hoping to stabilize.Tried doing a 10% cut off Fluanxol in the end of May for a few days, but quickly updosed to full dose because the twitching returned.Experiencing waves and windows in the following months.Unsuccessful brief taper attempt of Fluanxol by 5% on November 1st. Symptoms hit the next day. Too scared to continue tapering, reinstate full dose.Severe crash in November after stupidly trying a barbiturate on November 9th. Grave mistake. Sense of unshakable inescapable internal torture, like my soul is in hell being tortured, terror/horror/dread/doom (probably akathisia?) that gets especially bad when trying to relax and fall asleep, muscles twitch, jerk and move on their own, shaking, insomnia, can't eat, confusion, disorientation, brain not working normally. Never felt so bad in my entire life. Never experiment with other meds while in WD! Praying to God I stabilize and get back to my baseline.December - things getting even worse. January - unbearable suffering Link to comment
SelmaLady Posted May 8, 2015 Share Posted May 8, 2015 How terrible to have a doctor who knows nothing say such a stupid thing. As Luv said, you will get over this but its just takes so much longer than seems reasonable. I don't ever discuss my brain symptoms with my pdoc (Is a NP--knows -0- about drugs). There's nothing she can do to help me so why discuss it with her? I've been at this brain recovery stuff for a long time and I've only met 2 doctors who believed me. Both were highly educated neuro nerds who were in brain research at UCLA. I hope you won't let this silly doctor upset you and cause you to think that what you have is "permanent" or needs more chemicals dumped on it. I think it can sometimes take us a long time to come to the understanding that the doctors have no idea what these drugs do a brain, they believe only what the PDR says. And sometimes I wonder if they even read that!! I went to so many doctors in the beginning of my c/t w/d from Valium and it did -0- good. Cost me lots of $$$. But what they couldn't do, my brain did for me. Yours will too. Keep up your hope as best you can, Pug. It's won't let you down. 1971-81 Valium 5mg c/t PAWS 1992- through now Zoloft 25mg 2003-05 Valium 12mg Slow Taper Off 2013 Afrin Exposure to CNS 2013 O/D Val 230mg 2013 Doxepin 50mg Clonidine 2mg Zoloft 25mg 3/15/16 Doxepin 49mg Micro Tapering Zoloft 24.3mg Holding taper 3/15/16 Clonidine mg 0.1 1/2 - Decreasing incrementally. DISCONTINUED 10/9/16 Doxepin 48.9 Zoloft 24.3 Clonidine 01.10 Continuing micro taper on Doxepin. 11/16/16 Doxepin 48mg Zoloft 24.3mg Clonidine 1.30mg 5/4/17 Doxepin 45mg Zoloft 24mg Clonidine 1.20mg Micro taper of Doxepin , Clonidine 01/13/19 Doxepin 45mg Zoloft 21mg Will start Micro taper of Doxepin 2/19 12/21/21 Doxepin 20 mg ? Reducing using water micro taper--Pulling 24ml from 75ml 12/2121 Zoloft .060 grams by weight--HOLDING (info from post added by CC: On 12/21/21 my dosage was .060grams by weight or 20mg. ) 26 Apr 2022 - Zoloft at -0- Link to comment
direstraits Posted May 8, 2015 Share Posted May 8, 2015 I know one thing ,I wouldn't take Paxil-geez,I don't know what you should do,maybe Alto will offer advice sorry you're in this mess -praying you get the right help xo went on Prozac 1994-99,60mg.poopout ct back on 2001-2002,prozac weekly 2002,not working,Effexor 75 mg.?2003-mar.2004 gaining weight 8wk. taper,wellbutrin 150 mg.mar. -may 2004 ctmedfree til july 2005 back to Prozac gaining weight again,back on wellbutrin jan.2006150-300 mg.bad constipation.also was taking aygestin(hormone)perimenopausal irregular bleeding.back on Prozac around sept,?2006,hysterectomy jan30.2007(adenomyosis)off&on Prozac til 2009,citalopram about 1 mo, April 2010 no effect,Effexor again may -mar, 2011.ct,Prozac aug,-dec, 2011 &sept-nov 2012,paroxetine oct,23 2013-may 4 2014 20 mgs.tapered 6 wks.-failed RI in Oct.2014-in protracted WD.started 10 mgs. Fluoxetine May 25 2021 .Stopped fluoxetine May 2022 at 5 mgs. Link to comment
alex Posted May 8, 2015 Share Posted May 8, 2015 I went to my GP today. She said I've been at this for 6 months and my only options are to go on Paxil or Zoloft. I screwed up my CNS with gabapentin its permanent and I could go back on gabapentin also. The Doctor doesn't know ****!! Hang in there,IT IS NOT PERMANENT. If you take more drugs there is a high chance to make things worse. I am in the middle of a nasty wave, but I have faith, because I've seen lots of improvement, and that is just the way it is. Hang in there,you'll be having windows soon.Believe it. 4 years aprox. on 150mgs.Effexor for situational major depression.No AD before.Tapered 150-0mgs in 3 months. Tapered Quetiapine,Xanax in the last 18 months.NO med of any kind anymore.First 3 months off acute w/dProtracted w/d ever since.Symptoms:Anxiety,anhedonia,insomnia,tinnitus,PSSD 04/13/2014 Awful Relapse.Recovered fairly fast. 3 years and 4 months off. waves and windows.Very much recovered. November 2015,health issue.Setback. Link to comment
Martina23 Posted May 9, 2015 Share Posted May 9, 2015 Pug, how will you decide? 05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free- symptoms OCD Link to comment
Cdav Posted May 9, 2015 Share Posted May 9, 2015 I'm sorry you're faced with this decision Pug. I know it's tempting to want to try medication when we have been suffering for so long, to try and see if there is any relief. Sometimes this can make everything worse, as it did in my case. But I know other people have done well going back to medication. If I were you, I would probably not go on the antidepressants but reinstate a little dose of gabapentin. If you're suffering so much, maybe this could bring relief and you deserve relief and peace. -Effexor 150 mgs (2001-2009). Severe withdrawal symptoms during and after tapering for 6 months. -Pristiq 50 mg (2009-2012) Tapered over a year. Worst year of my life. -Prozac 20 mg (2012) Tapered over 6 moths to ease withdrawal. Still had severe WD symptoms. - (2012-2014) Doctor tried more than 20 medications for depression and WD, leaving me hypersensitive, and in protracted withdrawal. - Most debilitating symptoms during protracted withdrawal have been deep depression, anxiety, brain zaps, fatigue, akathisia, twitching, headaches and terrible PMS. -January 2015: Started Lamictal 12.5 mg, increased to 25 mg.- Bad reaction when updosed to 50 mg. Stopped. -February 2015: Doctor tried new antidepressant Brintellix - Horrible reaction. Discontinued completely. Severe AKATHISIA started. -March 2015: Started TMS therapy (Transcranial magnetic stimulation) for severe depression. Didn't work. -July 23-August 12: Had 10 ECT sessions which took away my protracted withdrawal symptoms including: akathisia, brain zaps, muscle twitches, fatigue and depression. Stopped medications. -September 2015: Experiencing bouts of depression again and muscle twitching. -March 2016: Started 20 mg Nortryptiline for depression. It helped. -August 2016: Slowly tapering Nortryptiline. Link to comment
Frustrated Posted May 10, 2015 Share Posted May 10, 2015 Oh Pug you poor dear! I have given up speaking to my doctor about anything. Every time he makes a suggestion It gets stupider and I get angrier. Please sit on this for awhile before you decide. I would hate for this doctor's flippant remarks about meds to end up making you worse. 2002-put on amitryptiline for fibromyalgia. 10mg.2004-stopped abruptly. Didn't think it helped.2006 approx.-put on Paxil for mild anxiety 20 mg.2007 upped to 40 mg. not sure why.2011- tapered from 40 to 10. went nuts and went back to 20mg2014- tapered from 20mg to 0 from April to The end of June.current meds- Metformin(type 2 diabetic) and low dose aspirin.Take multi vitamin and vit b12, vit. D and magnesium. 5 months off Paxil. Still suffering.recently added 1.2mg of Paxil to alleviate withdrawals.(Nov 30)Dropped to .9mg because having symptoms from reinstatement.(dec 23)<p>taper to .76mg-.8mg (Feb 3) approx. weight .010 to about .008-.009 on scale..6mg (march 19th.) .5mg(April 19th).4mg(April 27th).2 (June 27th) 0mg. done taper at beginning of August. Link to comment
direstraits Posted May 10, 2015 Share Posted May 10, 2015 just wanted you to know you're in my thoughts ;worried about you. went on Prozac 1994-99,60mg.poopout ct back on 2001-2002,prozac weekly 2002,not working,Effexor 75 mg.?2003-mar.2004 gaining weight 8wk. taper,wellbutrin 150 mg.mar. -may 2004 ctmedfree til july 2005 back to Prozac gaining weight again,back on wellbutrin jan.2006150-300 mg.bad constipation.also was taking aygestin(hormone)perimenopausal irregular bleeding.back on Prozac around sept,?2006,hysterectomy jan30.2007(adenomyosis)off&on Prozac til 2009,citalopram about 1 mo, April 2010 no effect,Effexor again may -mar, 2011.ct,Prozac aug,-dec, 2011 &sept-nov 2012,paroxetine oct,23 2013-may 4 2014 20 mgs.tapered 6 wks.-failed RI in Oct.2014-in protracted WD.started 10 mgs. Fluoxetine May 25 2021 .Stopped fluoxetine May 2022 at 5 mgs. Link to comment
Martina23 Posted May 10, 2015 Share Posted May 10, 2015 Pug, I am also thinking about you. 05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free- symptoms OCD Link to comment
Laura1981 Posted May 10, 2015 Share Posted May 10, 2015 Me too! Hugs! Feb 2015 Took venlafaxine for 5 days only... experienced withdrawal that made me completely non-functional Mar 2015 took under 1mg of Sertraline for 10 days in an attempt to combat Venlafaxine withdrawal. Got adverse reactions. After stopping Sertraline, withdrawal got much worse. New, horrific symptoms. June 2015 Still non-functional but slowly getting better. Still brain zaps, migraines, sweating, heart racing, depression, crying spells September 2015: 24/7 brain zaps, twitches in the face, no concentration, bad memory, language skills deteriorating. Profile feed: http://goo.gl/3g2GRn Sign this petition for a blackbox warning on Prozac in Ireland: https://www.change.org/p/leo-varadakar-hpra-the-lack-of-a-blackbox-warning-on-prozac-in-ireland-and-its-use-by-the-hse-in-under-18-s?recruiter=63289046&utm_source=share_petition&utm_medium=facebook&utm_campaign=share_for_starters_page&utm_term=des-lg-no_src-no_msg Link to comment
LoveandLight Posted May 10, 2015 Share Posted May 10, 2015 Hope your alright pug xxx 2000 - sertraline for job anxiety low confidence (17 years old) ..which turned the next 16 years into nightmare! On/off sertraline severe withdrawals every time. 2014 - felt better as reduced dose of sertraline no more inner restlessness. Doctor rushed off again. Hit severe withdrawal. Lost the little I had in life. Couldn't get stable again on 12.5mg. Was switched to prozac. Had severe reaction to prozac..came off in November 2015 at 6mg as felt more confused and damaged on it..Even more withdrawal ..rage, depression, dyphoria, near constant suicidal ideation, self harm impulses, doom, concrete block in head, unable to do much of anything with this feeling in head..went back on 6mg of sertraline to see if would alleviate anything. It didn't..reduced from December to June 2016 came off at 2.5mg sertraline as was hospitalised for the severe rage, suicidal impulses, and put on 50mg lofepramine which in 2nd week reduced all symptoms but gave insomnia which still have..psych stopped lofepramine cold turkey..no increased withdrawal symptoms new symptoms from lofepramine except persistant insomnia which has as side effect. Taking Ativan for 8 months for the severe rage self harm impulses 1-3 times a week (mostly 2 times a week) at .5mg. Two months (I'm unsure exactly when the interdose started to happen) ago interdose withdrawal seemed to happen..2 days I think after the Ativan. Nightmare that could have been avoided! Link to comment
Martina23 Posted May 11, 2015 Share Posted May 11, 2015 Pug, hope you are alright. You did not post for so long. I am worrying about you. 05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free- symptoms OCD Link to comment
Pugknows Posted May 13, 2015 Author Share Posted May 13, 2015 I don't know if I'm dehydrated from crying so much already, but I just feel dead inside. No hope. I keep praying and I'll never stop doing that. God is all I have. He will pull me up and out of this someday. January 2012 - Prescribed 900mg gabapentin and 30mg Norco for lower lumber spinal stenosis pain. September 2013 - Spinal fusion surgery, 6 levels. Hospital ramped up meds 1500mg gabapentin, 100mg Norco, 80mg Oxycontin, 25mg Fentanyl patch. January 2014 - Sever nausea daily and with back pain every 4 hours. 2 trips to ER. First endoscopy found ulcer. Treated with Sucralfate and PPI. Second endo in May found no ulcers. Doctors said it was the opiates causing the nausea. CT'd Oxycontin, Fentanyl patch. July 2014 - Lost 48 lbs. due to not eating because of severe nausea. GP prescribed Prozac 20mg and Ativan 2mg prn. Tried for 4 days, quit. Two week followup GP said keep taking Prozac. 4 days, quit again. Ativan taken rarely prn for anxiety and appetite. August 2014 - Went to detox. Off opiates. Still nauseous, helmet head, drugged feeling. Doctor CT'd gabapentin. Ended up in ER. Found 2 gallstones. Gabapentin reinstated at 900mg. Tried botched up and down taper to get off Gabapentin. No tapering advice from doctor. Said to just CT again. September 2014 - Coded on table during gallbladder surgery. Developed liver biloma due to CPR by doctor. Had bile bulb inserted for 2 wks to drain. October 2014 - Gallbladder removed. Still nauseous, 3am cortisol surging, drugged helmet head, vertigo, breathlessness, whooshing head, heart palps. November 8th, 2014 - CT'd gabapentin suggested by family and 4 different doctors. Was told no withdrawal is associated with gabapentin. Have been in hell ever since. No windows, just one big tsunami every day with same symptoms for 4 months. December 26, 2014 - Found SA. At least I know I'm not insane. My family thinks I'm doing this to myself. Akathesia has become unbearable. March 10, 2015 - In absolute daily hell with no relief. Currently taking magnesium 200mg before bedtime. Link to comment
WinningThrough Posted May 13, 2015 Share Posted May 13, 2015 Xxx I hope you get relief really soon xx The only way out is through. Aug 2013 - Augmentin leading to akathisia Sept-Nov 2013 - Citalopram 20mg, severe reaction, off at 5mg. Valium 4mg, prn Oct 2013 - 5 zopiclone tablets, 7.5mg End Nov 2013-end Feb 2014, Seroquel, top dose 150mg, off at 25mg End Nov 2013-early march 2014, Zoloft 100mg top dose, off at 25mg End Dec-2013-early April 2014, lorazepam 1mg prn April 3rd 2014 zoloft 5mg for a few days. 18/4/14 - zoloft, 1mg. Came off at 0.35 mg,14th June 2014 29 June 2014 - 1mg lorazepam, last ever 29 June 2014 - med free Link to comment
Pugknows Posted May 13, 2015 Author Share Posted May 13, 2015 Thank you Winning. January 2012 - Prescribed 900mg gabapentin and 30mg Norco for lower lumber spinal stenosis pain. September 2013 - Spinal fusion surgery, 6 levels. Hospital ramped up meds 1500mg gabapentin, 100mg Norco, 80mg Oxycontin, 25mg Fentanyl patch. January 2014 - Sever nausea daily and with back pain every 4 hours. 2 trips to ER. First endoscopy found ulcer. Treated with Sucralfate and PPI. Second endo in May found no ulcers. Doctors said it was the opiates causing the nausea. CT'd Oxycontin, Fentanyl patch. July 2014 - Lost 48 lbs. due to not eating because of severe nausea. GP prescribed Prozac 20mg and Ativan 2mg prn. Tried for 4 days, quit. Two week followup GP said keep taking Prozac. 4 days, quit again. Ativan taken rarely prn for anxiety and appetite. August 2014 - Went to detox. Off opiates. Still nauseous, helmet head, drugged feeling. Doctor CT'd gabapentin. Ended up in ER. Found 2 gallstones. Gabapentin reinstated at 900mg. Tried botched up and down taper to get off Gabapentin. No tapering advice from doctor. Said to just CT again. September 2014 - Coded on table during gallbladder surgery. Developed liver biloma due to CPR by doctor. Had bile bulb inserted for 2 wks to drain. October 2014 - Gallbladder removed. Still nauseous, 3am cortisol surging, drugged helmet head, vertigo, breathlessness, whooshing head, heart palps. November 8th, 2014 - CT'd gabapentin suggested by family and 4 different doctors. Was told no withdrawal is associated with gabapentin. Have been in hell ever since. No windows, just one big tsunami every day with same symptoms for 4 months. December 26, 2014 - Found SA. At least I know I'm not insane. My family thinks I'm doing this to myself. Akathesia has become unbearable. March 10, 2015 - In absolute daily hell with no relief. Currently taking magnesium 200mg before bedtime. Link to comment
luv2knit Posted May 13, 2015 Share Posted May 13, 2015 Hang in there, Pug. I'm still praying too--for all of us! Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day). Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired) Link to comment
bluebalu86 Posted May 14, 2015 Share Posted May 14, 2015 Dear Pug, you are tired. We all have moments like these. It's normal. Don't lose your faith in God - he will help through this and restore your strength. Trust in Him and in your body, which has the capacity to heal but is very stressed right now and tired from working so hard to get things back to normal. Now I say "thank you" to my body everyday. I think now in withdrawal I started to appreciate and love my body much more than I did before. I always thought I was ugly and my body was ugly and now I know this is not true at all. My body is very nice and a beautiful thing. Before I was so mean to it and put it through so much. I feel so guilty about it now and will have a much different relationship with it from now on. I suffer from depression, anxiety, pure-o ocd, and panic attacks since 2004. Been on multiple different psychiatric drugs since 2006. Never had a significant WD problem before, only brain zaps for a month and then I'd be fine...............Been on Cipralex (escitalopram) 15 mg and Fluanxol (flupentixol) 1 mg since Sep 2014. Stopped taking the Cipralex after a fast 20-day taper.Took the last 5 mg Cipralex on Feb 5th, 2015. Then took Seroxat (paroxetine) 10 mg for a week, and stopped it too. Severe WD started suddenly on Feb 16th. RI 5 mg Cipralex on Feb 18th, 2015. RI worked and was relatively stable for a while................April 7 - decreased Fluanxol from 1 mg to 0.5 mg and took it at this dose for a week. - BIG MISTAKE; April 13 - WD starts creeping in; April 14 - RI full dose of Fluanxol 1 mg => severe muscle twitching and jerking when trying to relax and fall asleep, overwhelming sense of doom, dread, terror, and horror, insomnia, hoping to stabilize.Tried doing a 10% cut off Fluanxol in the end of May for a few days, but quickly updosed to full dose because the twitching returned.Experiencing waves and windows in the following months.Unsuccessful brief taper attempt of Fluanxol by 5% on November 1st. Symptoms hit the next day. Too scared to continue tapering, reinstate full dose.Severe crash in November after stupidly trying a barbiturate on November 9th. Grave mistake. Sense of unshakable inescapable internal torture, like my soul is in hell being tortured, terror/horror/dread/doom (probably akathisia?) that gets especially bad when trying to relax and fall asleep, muscles twitch, jerk and move on their own, shaking, insomnia, can't eat, confusion, disorientation, brain not working normally. Never felt so bad in my entire life. Never experiment with other meds while in WD! Praying to God I stabilize and get back to my baseline.December - things getting even worse. January - unbearable suffering Link to comment
Dane22 Posted May 14, 2015 Share Posted May 14, 2015 Hey Pug. Just updating myself on your thread. 6pm every night?! That is incredible news!!! Soon it'll be 5...then 4...then 3... I am soooo happy for you! For me, Things are better. There is a light. My CT journey started last year, but I reinstated, reinstated, CT again, titrated....well, it's been 10 weeks since I decided to just quit, CT. No, it hasn't been a walk in the park. But life is better. Even my darkest day (hmm, that would be today ???? in the past 10'weeks), I am better off. On those darn antidepressants, life was pure hell. Hang in there friend. Sending you water to fill you glass half full! September 2013. Diagnosed depression/anxiety. Start Prozac 10mg and slowly increase to 40mg. October 2013. Lorazepam 0.5mg prescribed for anxiety after complaining about nervous energy November 2013. prescribed a sleeping pill (name?) for insomnia. took once. ineffective. January to June 2014. psychiatrist agrees to lower dose to 15 mg due to side effects. August 2014 first attempt to quit cold turkey Lasted August 1, 2014 until October 1, 2014 November 2014 second attempt to quit cold turkey lasted Novemember 4, 2014 until Jan 13, 2015 January 2015 3rd attempt to quit cold turkey lasted feb 3, 2015 until feb 23, 2015 March 5, 2015 4th attempt to quit cold turkey. Link to comment
Martina23 Posted May 14, 2015 Share Posted May 14, 2015 I am also still thinking about if I should not just quit but when I got harm OCD from first c/t Iam just afraid that it gets worse till the point that I do something. But I do think that just to quit is really best. 05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free- symptoms OCD Link to comment
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