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JanCarol - undiagnosed! Off all "bipolar" drugs!


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Touching base again, hi!

 

So - I'm over 6.5 years out from my last psych drug.

 

I got a thing from my natural doctor (He's an MD, not a naturopath) called a DUTCH test (this is an American thing, rare here in Australia - costs $500 to run, but he gave me a "free sample").  It's an intensive hormonal, endocrine test based on 24 hours of spit and urine at various intervals.  The thing freaked me out - I had to stop some supplements (mostly adrenal support, but also quercetin and a few other things that could tamper with the results), and had to take no coffee, tea, water or fluids so that the urine was concentrated enough to give a reading.  I looked at that DUTCH box for 6 months before I started to run out of thyroid medication, and had to do it.  It was intimidating!  (but I've had worse - I tried to do a pancreas test a couple of years back where you collect ALL your poo for 24 hours, and I just couldn't do that one, won't give you the details as to why - just that pooping is not an easy thing for me.)

 

So - got the results and some things were no surprise.  It's an amazing test, for those who can afford it!  Very low estrogen (well, duh, I have no female organs) - but Doc was good, he asked if I had any symptoms like hot flushes, night sweats, agitation, etc.  I said that was a decade ago.  I squealed that I didn't want HRT, and he was okay with that.    Progesterone is low, but OK, testosterone is fine.

 

One surprise was my melatonin, which was off the charts.  Top of the range was 85, mine was 1300+.  So I guess I don't need that supplement.  (NOTE TO SA PEOPLE:  Sun Walks Are Amazing!!!!)

 

But the big surprise - for a supposedly chill & calm tai chi & meditation teacher - was that my cortisol was through the roof!  Every stage of the cortisol cycle I was well above where it should be, and there was a late-night spike which might explain my delayed-cycle sleep.  In addition to the outrageous cortisol was an enzyme (8-OHdG or 8-Hydroxy 2 deoxyguanosine)  which indicates oxidative/DNA damage.  I'm sure they are related to each other = chronic stress => damage => stress => damage - a brutal cycle.  And I'm sure that the pain is in there somewhere.

 

(note;  seeing  "oxidative damage" did spike my medical anxiety - is it cancer? -  but I can set that aside for now!)(another note:  the last time I took a test like this in 2012, my cortisol was crashed, like a flat line = "adrenal fatigue."  So this is an improvement?  At least I can function?)

This lifted my awareness of what I'm dealing with.  It's true that there is more stress in teaching a  tai chi/qigong/meditation class than just practicing.  And I might increase that stress with the pressure of teaching - so in my own practice I'm pretty relentless and hard on myself, because I want to be good at what I do.  When I take a class to learn, I am working very hard to "get it right," and in my practice at home I don't allow fluffing - if I mess up, do again.  And again.  And again, until it's right.  This is self-pressure, self-stress.

 

The carpenter's house is falling down, the plumber's toilet needs fixing, the psychologist's kid is screwed up - and the tai chi teacher needs to chill!!!

 

So . . . . 

 

One of the things that came to me is - when my thyroid was removed in 2008, they damaged my vocal tendons and I lost the ability to sing to my satisfaction.  I can bellow and roar and croak - but no dulcet tones, and I lost about an octave off the top of my voice, so no soaring, emotional high notes (I squeak and cry when I try, and I can no longer hear harmonies because I can't make my voice go where I want).  I used to sing along with Jon Anderson and Anne Wilson (I was a strong alto), and now I struggle to sing along with Neil Young (and he sounds better than I do!).  So I haven't been singing for my own pleasure for 14 years.  Vagus nerve soothing.  Emotional release.  

 

So I will endeavour to sing more (poor hubby - though he's making me a CD of "sing along" songs in my new range).  In a perfect world I would find a practitioner who is a singing rehabilitation coach - a blend of voice therapy and singing lessons.  But I've been looking since 2008, and haven't found this blend.  I can find singing coaches, and vocal rehab - but not both.  I can speak fine.  A regular singing tutor may not know what to do with my damage.

 

But yeah, vagal nerve tone is now essential to my well-being going forward.  And it will take more than my current practices - apparently my parasympathetic nervous system wants attention!!!

 

Then, as I was preparing for a massage last Saturday, I got in the mag bath.  I usually take mag bath at the end of the day, so when tired, I melt into it.  But this was first thing in the morning.  I slithered into the bath and could feel my fascia, like a tension underneath the muscles that was firm & hard, and difficult to melt.  I've never "felt" my fascia before!  This got me to thinking. 

 

Do I have a mild form of tardive akathisia?  If this were the case, it might explain why my pain is so intractable, why the headaches are so difficult to release with breathwork (or injections, trigger point, manipulation, all the things I've tried).  It would explain the cortisol.  And it does feel like a vibration, underneath everything, I'm the kind of person who shakes her legs, restless, teeth grinding, hand tremors, doesn't do "still" very well - it's why I like moving meditation!   I can be reactive - barking dogs (for example) set me off, and they seem to set me off more than others.

 

THEN I got to thinking - did I have this tendency before I got drugged?  I think back into my 20's, and I was a hyper, stress puppy with delusions of grandeur (no wonder I got diag-nonsensed, eh?).  I had back pain long before I took any psych drugs or lost any organs.  

 

So maybe this is just an emphasized baseline.  The cards I got dealt that got me drugged in the first place.  Or maybe the 30+ years of drugging just made it worse.  

 

Course of action - is to reduce my stress.  Going through withdrawal taught me so much about this.  I no longer beat myself up if I'm late (or imperfect), all I can ever do is my best, and have learned say "NO!" when something is outside my boundaries or capabilities.  I don't take things personally (VERY important to recognise when a thing is "NOT MY PROBLEM" or NMP!)  One thing a day.  No toxic people (really!  I have no toxic people in my life!  How lucky is that?).  But that's not enough - there has to be something more, or I will kill myself with stress.  So - add in the singing, increase my home meditations, be mindful of my breathing, hurry up and relax NOW!  (that's a joke, you cannot use your sympathetic nervous system to activate your parasympathetic nervous system!)

 

Conclusion:  It's a mystery.  Doc offered to send me to an endocrinologist, I refused for now, saying I'd rather he treat me.  (Last time I went to an endocrinologist I got lectured about my metabolic disorder, had my waistline measured & scolded, and told "there is no essential carb."  I really felt castigated after that appointment!)  And when confronted with mysteries like this, I have to conclude:  psychiatrists really don't know what they are doing, do they?  (heck, do medical doctors even know what they are doing most of the time?)

 

I hope you see the sun today!

"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

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3 hours ago, JanCarol said:

One of the things that came to me is - when my thyroid was removed in 2008, they damaged my vocal tendons and I lost the ability to sing to my satisfaction.  I can bellow and roar and croak - but no dulcet tones, and I lost about an octave off the top of my voice, so no soaring, emotional high notes (I squeak and cry when I try, and I can no longer hear harmonies because I can't make my voice go where I want).  I used to sing along with Jon Anderson and Anne Wilson (I was a strong alto), and now I struggle to sing along with Neil Young (and he sounds better than I do!).  So I haven't been singing for my own pleasure for 14 years.  Vagus nerve soothing.  Emotional release.  

 

So I will endeavour to sing more (poor hubby - though he's making me a CD of "sing along" songs in my new range).  In a perfect world I would find a practitioner who is a singing rehabilitation coach - a blend of voice therapy and singing lessons.  But I've been looking since 2008, and haven't found this blend.  I can find singing coaches, and vocal rehab - but not both.  I can speak fine.  A regular singing tutor may not know what to do with my damage.

 

That's great hubby is making you a CD in your range. 

 

Do you play any instruments or have that desire? Just asking because I play a lot of instrumentals and find that so helpful for vagus nerve soothing. While I can sing and do so at times, a lot of the music I'm into right now is instrumental (found some gorgeous renditions of Ludovico Einaudi's piano music written out for guitar). So I'm not singing, but playing this music on guitar makes my soul sing. When I'm finished playing, I feel relaxed and restored. 

 

Even listening to Ludovico Einaudi is calming to the vagus nerve. Music is one of those non-drug coping ways of healing, whatever door you come through to get to it. 

 

3 hours ago, JanCarol said:

I hope you see the sun today!

 

You, too! 

Drug free May 22, 2015 after 30 years of neuroleptics, benzos, z-drugs, so-called "anti"-depressants, and amphetamines 

 

My Success Story:  Shep's Success: "Leaving Plato's Cave"

 

And what is good, Phaedrus, and what is not good — need we ask anyone to tell us these things? ~ Zen and the Art of Motorcycle Maintenance


I am not a medical professional and this is not medical advice, but simply information based on my own experience, as well as other members who have survived these drugs.

 

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Posted (edited)

Hi Shep!

 

Yes, there are instruments all around the house.  The guitar needs repair, though - the whole first fret doesn't work.  The piano is stacked up with stuff (I swore I wouldn't do that).  I found I don't really like the uke - too narrow on the frets.  The drums - ah, I could spend more time with my drums.

 

These instruments can help with parasympathetic (unless I have anxiety about the instrument - and there is trauma involved in music lessons in my life) - 

 

But the thing about the voice, which the other instruments cannot do - is that it vibrates the vagus nerve directly.  When you tone, chant, sing make your chest & organs vibrate with sound, you are vibrating the vagus nerve.

 

If only singing were more pleasurable instead of painful (to my ears, my ego, and sometimes to my throat, too).  I'm sure my breathing needs work after all these years, too.

 

I did find a voice therapist / singing coach - but she's in the UK.  She sounds terrific - has offered to do an online consultation.  I still don't know what she costs.  (I wish I could bill the surgeon who did the damage!)  In some ways, I'd rather do online - nothing like a trip to City (or wherever it might be - up the coast, down the coast) to fill up a whole day.  An online appointment means that I don't have travel to some distant appointment, and can take the appointment in my jammies.  Though - I can only zoom on tablet (not computer) - I wonder about the quality of sound.  

I talked to an artist friend of mine once about online art lessons, and she said - oh.  There's so much you miss online.  Texture, colour, depth, she said she would not teach online for that reason, she needs to be tactile with the student.  And there's an element of that with the vocal coach - especially if the sound quality isn't great.

 

So we'll see.  I'll try and coach myself for a bit, make more efforts to stretch.  There may be YouTube vocal exercises which might help me (confession:  I haven't looked - this is a cutting edge for me!).

 

Thanks for checking in - and I hope you see the sun today!!!!

Edited by JanCarol
drums, surgeon

"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

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10 hours ago, JanCarol said:

But the thing about the voice, which the other instruments cannot do - is that it vibrates the vagus nerve directly.  When you tone, chant, sing make your chest & organs vibrate with sound, you are vibrating the vagus nerve.

 

I did not realize this. Thank you. This makes sense. 

 

10 hours ago, JanCarol said:

I talked to an artist friend of mine once about online art lessons, and she said - oh.  There's so much you miss online.  Texture, colour, depth, she said she would not teach online for that reason, she needs to be tactile with the student.  And there's an element of that with the vocal coach - especially if the sound quality isn't great.

 

I hear you on this. I started taking online art classes during the pandemic and would love to take an in-person class. But I'm still getting a lot out of the online classes and my drawing skills are greatly improving. I feel like while this is my best option, I'll learn what I can and look forward to being able to take an in-person class in the future. 

 

10 hours ago, JanCarol said:

There may be YouTube vocal exercises which might help me (confession:  I haven't looked - this is a cutting edge for me!).

 

I've learned so much from YouTube! It's amazing what you can find there. 

 

I hope you find your voice on your path of recovery. Your words have helped countless people, including myself, here on the forum. Please take good care of yourself. 

Drug free May 22, 2015 after 30 years of neuroleptics, benzos, z-drugs, so-called "anti"-depressants, and amphetamines 

 

My Success Story:  Shep's Success: "Leaving Plato's Cave"

 

And what is good, Phaedrus, and what is not good — need we ask anyone to tell us these things? ~ Zen and the Art of Motorcycle Maintenance


I am not a medical professional and this is not medical advice, but simply information based on my own experience, as well as other members who have survived these drugs.

 

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Hi @JanCarol. I've read your story a few times and wow are you STRONG. I wish to be even an ounce as brave and resilient as you some day.

 

I write you as I have a question regarding your lithium tapering. I see in the your sig that the last 475 of your tapering took about a year

 tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE

 

I was wondering if I was misreading that or if that's accurate. If the latter, I'd love to learn more about your taper schedule in that scenario. I'm honestly daunted by the idea of a 10% 5 year taper for the 450 lithium I'm taking as a hypothesis is that I have these crippling headaches and nausea due to the lithium. 1 year though, I can do so if you were able to do that amount safely in a year I'd love to replicate it.

 

Thanks for hearing me out and apologies if I misunderstood that part of your sig. So happy for how your life is going now...may it remain full of love and peace forever!

Sep 2019 - March 2022 Trintellix | 5mg > 10mg Oct 2019 > 20mg Jan 2021. Taper over 1-1.5months Feb-March 2022 (psychiatrist offered no real guidance)

2020 - July 2022 Gabapentin (on and off) | most recently took 300mg for a few days in July to offset body burning from Effexor 

2017 - 2022 Bupropion (on and off) | 75-150mg. Stopped cold turkey ~ Feb/March 2022

2021 - 2022 Apriprazole | 1mg end 2021 > 2mg 2022. Stopped cold turkey ~Feb/March 2022

May 18, 2022 - June 17, Rexulti | .5mg > 1mg May 27 > 2mg June 3 > 1mg June 10 > off June 17

June 24, 2022 -July 4, 2022 Effexor | 75mg > 37.5mg July 2 > off July 4 (problem drug)

June 2022 - 1 week Vyvanse | 30MG

End June - July 4 Methylphenidate Er | 18MG

------------------------------------------------------

2020 - now Levothyroxine | 75mg @ 6:30am

July 2022 - now Klonopin | .5mg @ 8:30am and .5mg @ 8:30pm (thanks @Frogie!) for Effexor/Lithium adverse reaction/withdrawal

April 2022 - now Lithium | 450mg @ 10pm | 300mg > 600mg May > 750mg June > 600mg July > 450mg August 22, 2022 > 300mg September 22, 2022

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@Bertoh @JanCarol Me too, same question! I'm on 610 lithium...the thought of 7 years is 😞.  Bertoh-, same question to you.. You went from  600 mg to  450 mg in just a month? 

1- October 2011- Wellbutrin. Few months later-Zyprexa. Quite some months later-DepakoteClonapen throughout. November 2014- med free successfully! (Quick doc taper)

 2- November 2015- zyprexa (almost sure) May 2015- Lithium 900 mg throughout, carried over to pregnancy and next baby. Currently still on same lithium.     

3- June 20, 2017- zyprexa refused. June 21, 2017- forced hospitalization. June 2017- risperdal, lithium raised to 1200.

no memory when-zoloft. Got off risperdal with dr- no clue how fast or when.  June 2018- got off zoloft extremely fast resulting in complete dissociation (total disconnect of body), depression & severe fatigue

Around august 2019- lithium 1050. Lithium 975. Lithium 900. January 11, 2021Lithium 825.

February 5, 2021- Found SA 🌞! February 23, 2021- Compounding natural pharmacy 🙂. May 9, 2021- Lithium 750. August 30, 2021- Lithium 675

(will add in more dates when I figure them out)

June 23, 2022- Started brassmonkey slide 💟 June 23, 2022- Lithium 658

>ALL meds were coerced ILLEGALLY< 

CURRENT MEDS- 610 LITHIUM  MG (after 4 week hold. Brass monkey succesful)       CURRENT SUPPLEMENTS- magnesium 350 MG

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Hi HardWork! Hope all is well for you ❤️

 

I tapered 450 > 300 per my psych's rec 

 

Believe their plan is to do 150 every 2-3 months. Being fully honest it's hard to resist when thinking year vs years timleine so this weighs on my mind quite heavily

Sep 2019 - March 2022 Trintellix | 5mg > 10mg Oct 2019 > 20mg Jan 2021. Taper over 1-1.5months Feb-March 2022 (psychiatrist offered no real guidance)

2020 - July 2022 Gabapentin (on and off) | most recently took 300mg for a few days in July to offset body burning from Effexor 

2017 - 2022 Bupropion (on and off) | 75-150mg. Stopped cold turkey ~ Feb/March 2022

2021 - 2022 Apriprazole | 1mg end 2021 > 2mg 2022. Stopped cold turkey ~Feb/March 2022

May 18, 2022 - June 17, Rexulti | .5mg > 1mg May 27 > 2mg June 3 > 1mg June 10 > off June 17

June 24, 2022 -July 4, 2022 Effexor | 75mg > 37.5mg July 2 > off July 4 (problem drug)

June 2022 - 1 week Vyvanse | 30MG

End June - July 4 Methylphenidate Er | 18MG

------------------------------------------------------

2020 - now Levothyroxine | 75mg @ 6:30am

July 2022 - now Klonopin | .5mg @ 8:30am and .5mg @ 8:30pm (thanks @Frogie!) for Effexor/Lithium adverse reaction/withdrawal

April 2022 - now Lithium | 450mg @ 10pm | 300mg > 600mg May > 750mg June > 600mg July > 450mg August 22, 2022 > 300mg September 22, 2022

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Hey Bertoh and HardWork - thank you for stopping by!

 

You are concerned about:

On 9/3/2022 at 4:39 AM, Bertoh said:

I write you as I have a question regarding your lithium tapering. I see in the your sig that the last 475 of your tapering took about a year

 tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE

If you read further you will see:

Quote

 Many mistakes in dry cutting dosages were made.

 

I screwed up so badly that I frightened myself and started Lithium Orotate, which I continued as a supplement for 2 years.  I started on 5 mg, and had it down to a tiny dose of .81 for the last six months.  It's less bioavailable than lithium carbonate, less strong - but my fear of going stark raving mad was very real.  My p-doc had said months prior, that I was "no longer on a therapeutic dose" and I could stop anytime, but I didn't believe her.  Please be cautious about p-doc suggestions about tapering - they have these ideas about "therapeutic dose" and such that they don't understand.

 

Lithium is a different animal to SSRI's and other psych drugs.  I'm not a pharmacologist or doctor, so I don't actually understand how lithium works.  (truth be told, your doctor likely doesn't, either)  Instead of fiddling neurotransmitters like the psych drugs, it does something else.  Like a damper on the whole nervous system or something.  I am not going so far as to say you can taper faster on lithium because I only have my experience to go by.

I got lucky.  I had a big self-care toolkit by this point, so if I did go stark raving mad, I had some options to look to.  Meditation, mag baths, sun walks, supplementation, therapy, tai chi, yoga, karate, music, drumming, community, and a supportive husband.  

 

By the time I got off the lithium carbonate, I was having such severe health problems, that my mood was moot.  I got lucky.  I didn't go stark raving mad (though I still wrestle with depression, and now, apparently, "anxiety!").  I still struggle with the health problems, and it's a complex knot.  Where does the lithium damage end, and the loss of thyroid & ovaries begin?  Could I have saved my thyroid if I hadn't been on lithium (and drinking fluoridated water)?  How much metabolic damage was done by the tricyclics, SNRIs, SSRIs and neuroleptics ("antipsychotics") over the decades, or was that all the lithium?  I don't have any way to untie that knot, so I proclaim: "this is what I have, this is what I'm dealing with, I'm angry that this was done to me so carelessly, but this is what I'm left with," and move forward.

I saw an Abraham Lincoln quote:  "I walk slowly, but I never walk backwards."

 

Lithium is toxic.  I spoke to a friend yesterday about her brother who, at age 21, went stark raving mad in New Zealand and was walking around in singlet and shorts in their winter ("classical bipolar" - I told her about the Quaker model of care for breakdowns, and that the more drugs you take the more intractable the problems are, but she wasn't buying - plus - he was drugged in an era before Prozac and the marketing of "mental health").  He got doped with lithium then, and recently he lost a kidney.  He got 40+ years on the lithium, whereas I was starting to feel damaged by 10.  Of course, my friend believes in psychiatry and is so happy that they switched him to Epilim/Depakote.  "He's so much better now!"  (I think he's in his 70's now)  I warned her that the Epilim would eat his liver.  She said, "Oh, he's stays on top of those things."

I held my tongue, but I was reminded of how, my own p-doc (who really, as p-docs go, was a good one, a "minimalist prescriber" but still a prescriber with faith in the drugs).  She kept telling me my bloods were fine when I was complaining of kidney symptoms (and being a zombie).  I had to educate her that Diabetes Insipidus was a thing, and was a damage/side effect from lithium.  I made her look it up.  And - if his p-doc was watching his bloods - how did he end up losing a kidney?  Really?  Are those blood tests good for anything?  (STILL:  keep taking the blood tests!  It's the only clue you will get about damage, other than symptoms!)

 

So again - beware a p-doc taper.  I recommend sticking to the SA plan as much as possible.  If your symptoms are minor, you may be able to go faster.  I failed to stick to the SA plan, but got lucky and got off.  You might consider my coping strategy and cross taper to Lithium Orotate.  As far as I can tell, from my experience, "stark raving mad" (you know the line from the movies, "she's off her meds") is the main danger of tapering lithium too fast.

 

You are both on fairly low doses.  I don't know your histories, as to whether either of you experienced naked-in-the-streets-stark-raving-madness.  Also - it helped that I had my husband here - p-doc educated him as to what to look for if things went awry.  When I decided to taper, she held a special session with both of us to develop a contract so that if I "got high" or spun out, there was a plan in place.

 

Remember  - if you taper from extended release, you have to take it 2x a day when you break the tablet.

 

I walk slowly, but I never walk backwards.  And I hope you see the sun today!
 

"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

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On 8/29/2022 at 10:31 PM, JanCarol said:

But the big surprise - for a supposedly chill & calm tai chi & meditation teacher - was that my cortisol was through the roof!  Every stage of the cortisol cycle I was well above where it should be

 

wow, it's amazing and horrible what can be happening to us while all the time we keep putting one foot in front of the other. and mistake it for "normal" sometimes? 

I hope you can use what you found out to help normalize your levels! 

 

 

On 8/29/2022 at 10:31 PM, JanCarol said:

I hope you see the sun today!

 

wow, is this what I need. I dread the upcoming winter! 

Currently taking Ramapril (blood pressure) 5 mg twice a day

Omeprazole 10 mg AM and 20 mg PM  (the taper has gone nowhere after the first cut)

Famotidine   once a day (and I still needs tums sometimes)

magnesium 200 mg at night

as of yesterday 2 fish oil capsules "EPA-DHA 1000"

 

off Lexapro as of 5/2018  - last dose had been 5 mg every other day for a couple years

 

highest dose had been 20 mg at which point I was diagnosed with Bipolar II, which went away when I cut the lexapro down to 15 mg. 

 

I spent years on Paxil before Lexapro (can't remember dose), briefly on Effexor and Abilify and others I have forgotten. in fact, when I was diagnoses with BPII I was put on all kinds of things which made me feel so bad I stopped them cold turkey within maybe 3 or 4 weeks, thank goodness. since then I've known these pills were terrible and I weaned down the Lexapro with zero help or support over I'm not sure how many years. 

 

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  • 2 weeks later...
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Just a quick share:  Looking Up.

 

I was driving through my town, and saw a huge billboard that said "LOOK UP!"

 

And so I did a little looking and found this:  http://www.gliderglobal.com/wp-content/uploads//THE-ART-AND-SCIENCE-OF-LOOKING-UP-REPORT_2019.pdf  

 

Looking up

 

Looks good!

 

It's part of what my Sun walks are about - seeing the horizon, the sky.

"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

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