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Melissa5000

Melissa5000: nerve/muscle pain/burning after fast taper

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Melissa5000
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Now that I am 4 weeks post surgery most of the pain has gone. I can cycle again! And I can do most chores around the house. But I can't do heavy lifting or heavier cores like vacuuming and lawn mowing, pruning and so on. I can walk over 3 km now at a speed of 5 km/hour. I have had lots of improvements! I hope to be back at the level I had before the surgery in 2 weeks. I still have a little extra nerverpain since the surgery. Lets see what happens. 

 

Edited by ChessieCat
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Melissa5000

At the moment I am finally a little bit better after the crash a year ago. I did an updose and my withdrawal symptoms are finally calming down partially.

But in a few weeks I have to step over to another med for the amitriptyline as I am allergic to the generic. My last supply of brand amitriptyline is almost up. I have to step over to nortrilen slowly. And it is only 2.1 mg amitriptyline what is left.......but I am very sensitive, so I dread the future..... I fear I will be back in hell soon. 

 

And then there is so much lyrica left to taper! I am tapering since 2016....... I wish I could get off these meds slowly without crashing again. 

 

Next week I have to talk to my painspecialist in the hospital about the change from amitriptyline to nortrilen. I am so nervous!

 

Any advice?

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Altostrata
On 6/24/2019 at 9:42 AM, Melissa5000 said:

But in a few weeks I have to step over to another med for the amitriptyline as I am allergic to the generic.

 

Can you not get a different brand of amitriptyline? What are your allergic symptoms? When did they start?

 

If you can't stay on amitriptyline, I hope the switch to nortriptyline goes well for you.

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Melissa5000

Hi Altostrata, thank you for answering! 

In the Netherlands we had as Brand amitriptyline Triptyzol and Sarotex retard. Both brands are off the market. I seem to be allergic to several generics I tried. 

 

Are there other brand named Amitriptylines still on the market? What brand names could I ask for? My painspecialist had no other brands in his computer to pick from. Only generics. But I would like to know more brand names I could ask for. 

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ChessieCat

From https://www.drugs.com/international/amitriptyline.html:

 

Amitriptyline BB
Brown & Burk, Netherlands

 

Amitriptyline HCl Apotex
Apotex Nederland, Netherlands

 

Amitriptyline HCl Aurobindo
Aurobindo, Netherlands

 

Amitriptyline HCl CF
Centrafarm, Netherlands

 

Amitriptyline HCl Mylan
Mylan, Netherlands

 

Amitriptyline HCl Sandoz
Sandoz, Netherlands

 

Amitriptyline HCl Teva
Teva Nederland, Netherlands

 

Amitriptyline PhP
Pharmaplant Ltd., Netherlands

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Melissa5000

Thank you Chessiecat! Those are generics. I tried several from the list and a few more.

 

Meanwhile I phoned the Pharmacy again. The lady on the phone said that there was no brand Amitriptyline available anymore in this country. That is the usual message I get.

But this time the lady switched the phone to the pharmacist. I asked about Elavil from abroad. He started thinking and searched in his computer. Het said he found Saroten Retard capsules available somwhere abroad. I googled it. It seems that they are from Lundbeck, the exact same factory I had the Sarotex retard capsules from!

 

He might be able to order them for me if I pay for them myself. Yes I would love to do that!  He said I need a new prescription for them from my doctor. I will ask my painspecialist in the hospital on next monday for a prescription! Maybe everything will be all right! 

 

I am shaking now! I really hope that this will work. It would really save me! 

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Melissa5000

The pharmacist is not sure if he will manage to order the Saroten Retard. There are strickt rules for medicine from abroad. Maybe he cannot get them. 

 

I am soooooooo nervous now!

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Melissa5000

Since wednesday I am replacing 0,1 mg Sarotex for 0,1 mg Nortrilen. Till now it goes not so bad. Only some nervepain in my feet. 

But I have my period now and I had been on my feet for hours. First while cleaning and later while fitting swimwear. I ordered many swimsuits online and I had a hard time choosing. So I changed outfits all the time and have been standing in front of the mirror for a long time. I finally chose 2 swimsuits and 2 tankinis. :D I want to go to the beach this weekend. 

 

I really hope that the switch from Sarotex to Nortrilen goes well. When I stopped 25 mg Sarotex in september 2017 and when I tapered 1 bead Sarotex in januari this year I got hit on the 5th day. BUT then I did not replace it fore something else. 

I hope that this time I won't get hit as hard as when I just tapered. 

 

I feel like a guinea pig again. I have to wait and see what will happen. At least I will know on monday when I see my pain specialist  so I can ask for advice in the hospital. 

 

 

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Melissa5000

Today I did a lot of laundry and cleaning. I have 8000 steps on my sportswatch. 

 

Tonight my boyfriend will visit me. I am looking forward to it! :)

 

Today it is day 4 of the switch of 0,1 mg Sarotex to Nortrilen. Mostly I am quite fine till day 4. 

I usually get hit on day 5 when I taper Sarotex. So I am very concerned that tomorrow my life is over and I am back in hell again. I fear that I will break out in nervepain all over. I fear that tomorrow I can hardly walk and use my hands and arms. I fear burning feet and toes and legs. I fear I'll be an emotional wreck!

 

It is so hard to imagine because today everything seems fine. Only a little nervepain here and there. But not too much. 

But in januari it went exactly like this! So I feel this is my last nice evening before I might be for years back in the nervepain hell. 

I hope so much that it won't be that bad this time because I replaced it for Nortrilen....................

 

 

 

 

 

 

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Softcell

Hi melissa.   Currently in heavy withdrawals for the past 8 months. I've been reading all through your posts,  feel like I know you now.  Anyway wishing you all the best and hope all goes well for you.  

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Melissa5000

Hi softcell, thank you so much for your support!

 

You are having a very hard time as well. I wish you all the best!

 

Sunday my boyfriend and I went to the beach. We had a good time! I had more nervepain all over so my boyfriend had to help me in the garden.

I still managed to walk a bit, but my speed was slower.

 

Monday We went to the hospital. My painspecialist suggested to drop Sarotex by only 0,05 mg. 0,1 mg is too much for me. 

He sent a prescription to the pharmacy for Saroten Retard. Later the pharmacist asked for an extra form to be signed by a doctor. He sent that form as well. 

Now I have to wait and see if my pharmacist manages to order the Saroten Retard or not. I have the impression that it will succeed, but I am still nervous and unsure about it.

 

After that my boyfriend and I walked a lot in the city to visit a few shops and the city Hall. I was surprised I could still walk quite a bit. But The speed is a lot slower.

 

Today I went to the gym again for the first time since the surgery. My arms hurt from steering the ebike. Typing also hurts. I managed to walk 3 km at a speed of 4 km/hour. That is a lot worse than just before I switched 0,1 mg sarotex for 0,1 mg Nortrilen.

My arms hurt all day badly. I decided to switch 0,05 mg Nortrilen back to Sarotex.  0,1 mg is too fast for me. 

 

 

 

 

 

 

 

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Melissa5000

Last weekend I managed to travel by train and busses to my boyfriend his place! It has been since early november since I was there for the last time. 

He always travels to my place. He has a car. We spent some nice time together and we made a walk in the forest and hills. 

I just got home this evening.

 

My pharmacist ordered the Saroten Retard from Switzerland! I can get them at the end of this month. It takes a few weeks to get them delivered. 

 

The surgery is six weeks ago now. But I still get pain in the chestmuscles if I do heavier things or if I clean a bit longer. So I still have to avoid all the heavier chores and cycling over 3 km away from home. I hope my breasts and chestmuscles recover soon. 

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Melissa5000

Today the Pharmacist phoned me. He could not get the Saroten Retard as they are off the market. He will order another brand amitriptyline. Tablets. 

I am dissappointed! But maybe this brand does not cause UVA allergy.

 

I don't know how I can ever get off lyrica and amitriptyline. The smallest amount I taper causes big trouble. I am still on so much lyrica. How can I get it down to zero if a tiny amount destabilises me as if I tapered 25 mg in one day!

 

A quick taper looks attractive. But I am very sure I cannot take care of myself then. I wil probably lay in bed in great pain for the next 5 or 10 years, I feel my life is destroyed. A microtaper goes too fast. I can hardly take care of myself after a very small drop. I can hardly walk or use my hands.That is only after one mini drop. What if I would do a second mini drop? I would need a wheelchair. How can I do a micro taper and live a life at the same time? I don't know and am very desperate. I have 2 meds to taper. 

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