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FleeingFluoxetine: trying to get off Prozac


FleeingFluoxetine

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6 hours ago, FleeingFluoxetine said:

The vibration still isn’t going away so I went to the hospital today with my father because the trembling made it impossible to sleep. The ER doc says he’s far more concerned about my endless tears and suicidal thoughts than the vibrations, and recommended I bump my Prozac to 20 mg tomorrow after I have a conversation with my shrink. 

 

Good example of the worst in physician reasoning. Sees a probable adverse drug reaction and wants to increase dosage because you're weepy.

 

Please note that as long as your family and doctors see you overwhelmed by your emotions, they will most likely want to give you drugs because that's the way our culture deals with feelings.

 

Let's see, what happened a couple of weeks ago:

 

On 4/24/2020 at 4:09 AM, FleeingFluoxetine said:

My doctor restarted me on the Prozac I took two years to get off of to help with all the crying spells. They somewhat went away. All the other withdrawal effects like waves of nausea were going away. I thought I was winning. 
 

Then, last Thursday (April 16), I was lying in bed resting and I felt like someone was rocking the bed. I stood up and felt like there was an earthquake because the floor was moving. What’s actually happening is that now my feet have this awful awful buzzing/vibrating sensation like someone has hooked them up to a Diesel engine. It’s scary and o don’t know how to make them stop. I used to lie in bed but now my bed feels like the entire thing is trembling. 

 

What may we conclude by this?

 

Are you headed for disaster? Your psychiatrist wanted to address your symptoms by adding 3 more drugs:

 

On 4/24/2020 at 4:09 AM, FleeingFluoxetine said:

I talked to my doctor over Skype today and she told me it’s an extra-pyramidal side effect. I don’t know why this is happening because I’ve taken both these doses for years without anything like this. She’s prescribed Ativan and Propranolol to help turn off the buzzing/vibrating, but it doesn’t seem to help. 
 

She spoke of a drug called Cogentin to help with this, but google tells me it can cause TD, which I would really rather like to avoid. 

 

Have you asked your doctor how her patients who are taking 5 psychiatric drugs are doing?

 

Now, it appears you might have gone off Seroquel too fast and gotten withdrawal symptoms from that. What do you know from about tapering from our discussions dating back to 2017? When people get withdrawal symptoms, reinstatement of a VERY SMALL AMOUNT of the drug helps them go away.

 

Instead, you chose to go back on 50mg Seroquel and 20mg Prozac. Now you have an adverse reaction from the combination, and you are considering increasing dosage and adding drugs. This is the opposite of tapering drugs.

 

Not sure what kind of information you want here as you've ignored everything else we've told you. You might at least update your signature with your most recent drug changes.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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I’ll reply to this tomorrow. Thanks for getting back to me so quickly. 

As of September 5th, 2022:

13 mg liquid Prozac - Reinstated in March, 2020. Prior to that, 1994-2019

43 mg Seroquel - Started in July 2006

9.375 mg Imovane - Started in March, 2020

20 mg Propranolol 3x a day - June, 2020

0.5 mg Clonazepam 3x a day - June, 2020

 

 

 

 

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Hey, Alto. Thanks for your reply. 

 

I haven’t ignored everything else you’ve told me. I started at 150 of Seroquel and made the mistake of cutting to 100 over a month. When I came out of the depression that caused, I started chopping the 25 mg pieces into quarters and dropping one quarter every two or three weeks and waiting until I was stable (see? Learning). I got all the way down to 50 mg over 9 months and went to see my doctor. She told me I was in an agitated depression and sent me to the psych ward, saying if I didn’t go she’d have me certified for my own protection, so I went. 
 

I saw three doctors and a team of nurses there, and they all said Seroquel withdrawal couldn’t be causing my issues, but I should get off it anyway. They told me to drop to 25, wait a month, drop to 12.5, wait a month, then go to zero. That I’d be off the seroquel by March. It was at the most highly respected hospital in the city so I did what they said. I thought it was all going to be over and I’d finally be free. 
 

instead, about three days later, I was hit with unbelievable crying spells and agitation. I also had crazy anxiety at things I’d never experienced before, like asymmetry, people using their hands, and spots/blotches. It never occurred to me that this could be withdrawal (because I also have minor ocd issues). I went back to my doctor and told her everything. She pulled out my case file and reminded me that the best I’d ever felt in my life was at 50 Seroquel 15 Prozac, so she restarted both the drugs. I thought it would end the crying spells and all the rest. 
 

It fixed the ocd (which I now believe is withdrawal), slowly eased the pacing, and the trembling/buzzing is finally going away. She told me that she thinks the crying spells will go next, and eventually I’ll be back to my old self. But the crying spells are taking forever and the buzzing seems to be a delayed withdrawal from cutting the meds, but thankfully it’s also going. 


It’s clear to me now that the mistake was going to the hospital and having them cut my Seroquel in half. But they said it couldn’t possibly be the source of my problems, that it was repression, that it was my mother, and that it was a safe environment. The admission plan was to cut the drug and monitor me for a week, but because Seroquel depresses me, cutting the dose eliminated a ton of depression overnight. They thought I was fine and discharged me. It wasn’t until three days later that the world fell apart. 
 

The thing about this whole experience is that it’s confirmed almost everything you’ve told me. The professionals don’t know what they’re doing. The real truth is found in the withdrawal communities. 
 

My plan now is to stabilize on both drugs (wait until there’s no more buzzing/crying/suicidal thoughts), then get the seroquel compounded and get off it as slowly as possible, like 5% a month and follow everything I’ve learned here. Once the seroquel is gone I’m going after the Prozac. Had I known the OCD issues were withdrawal I would have kept going. Had I known cutting from 50 to 25 would be so devastating I never would have done it. But I had three doctors and six nurses all telling me I’d be fine and forecasting this lovely future. Instead it sunk me into total misery and I’m honestly lucky to still be alive. 
 

My father is a retired radiologist and so is his father. I’m used to following doctor’s orders without question. But this experience has broken my faith in psychiatry and it’s broken my father’s as well. He says he regrets ever sending me to my first shrink when I was 19 and that every doctor along the way has only ever made things worse. That they haven’t been practicing medicine, they’re just guessing, throwing around chemicals without understanding how they affect the brain, and that this has been a ridiculous price to pay for wanting help with sleep. 
 

So, yeah. Failed taper, but lesson learned. Thanks for sticking with me. I’m getting off everything one day. But now i’m going forward and doing everything this board suggests, to the letter. 
 

Fleeing fluoxetine 
 

 

 

As of September 5th, 2022:

13 mg liquid Prozac - Reinstated in March, 2020. Prior to that, 1994-2019

43 mg Seroquel - Started in July 2006

9.375 mg Imovane - Started in March, 2020

20 mg Propranolol 3x a day - June, 2020

0.5 mg Clonazepam 3x a day - June, 2020

 

 

 

 

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  • 3 months later...

Hey, everyone. I got an email about the upcoming Medicating Normal film and it asked me to post an update, so I will.

2020 has been the hardest year of my life. Things were going okay with my Seroquel taper until my doctor told me I was in an agitated depression and sent me to the hospital. Instead of letting me stabilize at 45 mg, they decided that I was safe in the hospital if something went wrong, so they eliminated the 3/4 of the first of two pills, dropping me to one pill. I went from 45 mg to 25 mg overnight. I woke up the next day and felt much less depressed than I had in ages, so they let me go.

 

Three days later total hell started. Every night as I approached the time of my dose (10 pm) I would get incredibly agitated and have to pace around my parents' basement (they were taking care of me).  The waves were terrifying and gave me suicidal thoughts. My coping strategy was just to let them run their course. Eventually they did (after about a month), but were replaced with waves of nausea, so much so that I carried a big plastic tub everywhere in the house because I was so afraid of vomiting. Then that went away. These two waves lasted about three months. I was crying so much from all the hell and was so depressed that my doctor restarted me on the full 50 mg of Seroquel, and put me back on 15 mg of liquid Prozac, a drug I had successfully weaned off.

 

I thought things were bad, but then they got much much worse.  One day I was lying in my bed and the entire bed started to shake. I didn't know what was going on. I thought maybe it was an earthquake. I got to my feet and the floor was shaking. I still thought it was an earthquake. Then I realized what was really going on: tardive akathisia. My doctor still doesn't know if it's from stopping the Seroquel, or restarting the Seroquel and the Prozac.

 

If you're going to say "I told you so," or "you rushed your taper," don't bother. I made the mistake of listening to the doctors in the hospital who knew nothing about getting me off meds, and it's now one of the biggest mistakes of my life. I should have told them at the hospital that I just needed more time to stabilize, but it's hard to say "so I read on this website about tapering...." when you're facing three psychiatrists and their entire team of nurses, all who are saying "this isn't the Seroquel." They're all wrong, all of them.

 

The vibrating got so bad that I would take my cocktail of meds and go to sleep, then wake up at 2 am with my entire body trembling. The only solution seemed to be to walk it off, so I would leave my elderly parents a note that I was going for a walk, and walk outside for twenty minutes until I stopped trembling. I'd go back to sleep and wake up at 4 am, so I'd write another note and go on another walk. By the time morning came around to start my day, I was completely exhausted and would have to deal with whatever I had planned.

 

This nightly ritual went on for six weeks. I went to see my doctor and she said I was suffering from drug withdrawal (no kidding) and that she was going to treat it as a classic drug withdrawal, which meant a combination of a beta blocker and clonazepam. I know all too well about people who end up on benzos and what can happen. I resisted taking them for a week, but at our next appointment over Zoom (Covid had moved in), I was overwhelmed with tears about how the drugs had hurt me, how I had been suffering unnecessarily, and how exhausted I was.

 

Trigger Warning


[Moderator note: Next section describes situation of forced hospitalization due to presumed suicidal ideation and inpatient experiences in psych ward. May be difficult to read if you are currently sensitive to such accounts.]

 

I wrote a note to my parents (literally right in front of my Mother) on May 28th [redacted content of note] referring to how I was now going to be taking a benzodiazipine and felt that I would become addicted to them and something awful (like full blown akathisia) would be the result.

 

My mother (who suffers from narcissism and depression) decided that she had had enough of trying to help me through the withdrawal, so she ordered my father to take the note to my doctor early on a Friday morning and frame it as a suicide note, when it wasn't.

 

I was lying in bed at 8 am the same day and woke up to two peace officers standing over me. My doctor had read the note, also decided it was a suicide note (again, I was terrified at being put on a benzo) and sent the police to arrest me under Canada's Mental Health Act for my own safety. They told me if I resisted I would be handcuffed, so I gathered a few belongs and they put me in the back of their police car. They drove me to the hospital where they gave me an EKG (my heart is fine) and did bloodwork (my blood is fine). Then they left me in a triage for seven hours while they tried to find a bed for me in one of the psych wards in the city. I was interviewed by two doctors and told them about the miscommunication. They didn't believe me and wrote "actively suicidal" on my "Form 1." At that point all of my legal rights were taken from me. I was escorted by two officers to Ward 49 (General Psych) where they kept me there against my will for an entire month as my new hospital psychiatrist tried to stop all the vibrating/buzzing.

 

She hammered me with vitamins and supplements, including magnesium, fish oil, iron, zinc, vitamin B injections, folic acid, and a bunch of others. They talked about putting me on a drug called Cogentin, but I burst into tears at the idea of being put on another drug. Right now I'm currently on Prozac, Seroquel, Propranolol, Imovane, and Clonazepam. I cry every night when I think of what psychiatry has done to my life and take my mountain of prescribed pills and supplements, so many that the hospital nurses called it my "second breakfast."

 

The doctors wanted to make sure that nothing else was causing the vibrating, so I was fast-tracked to a full body MRI scan to make sure I didn't have a brain tumor or that the titanium rods in my back from spinal fusion surgery five years ago weren't pressing on my nerves. I knew they would both come back negative and that I was suffering because of the drugs, so I told my doctor that. I was right.

 

I spent a month in the ward, pacing the hallways to ease the buzzing, taking long showers, and avoiding patients who had received multiple electroshock treatments and were zombies, a man who would scream at people one day that he was the devil and Jesus the next, and a girl who was suffering a psychogenic fugue and had no idea who she was. She would take showers fully clothed, walk in the hallway with her top off (until the nurses went after her) and pour packets of sugar in her hair. She came in with no ID and when they asked her what her name was, she said "Blue." I never found out her real name.

 

My buzzing has gotten incrementally better, but I still wake up trembling (usually at 8 am), and most days I go for an hour long walk (at least) to help ease the vibrations. I've gone on so many walks that I've lost thirteen pounds and my calves ache.

 

When I finally had a Zoom meeting with my doctor who had me arrested, I swore at her like a sailor. I told her my narcissistic mother was just tired of seeing me pace around the house in tears, and completely played her to have me certified and admitted to the hospital. We talked about getting me another doctor because my faith in psychiatry, my trust in her, and my trust in my parents is broken, and she said I could think about it while she's on her annual six week (!) vacation. I won't see her again until September 12th or so. I told her that when I look back at all the damage her medications have caused my life, it's hard for me to say that she's been a force for good because of all the suffering she's caused (see my other posts for how her Prozac caused me to suffer agoraphobia for over a decade).

 

In the meantime I'm stuck alone in my condo because of Covid. I go for long walks and showers. I'm debating applying for disability because my vibrating legs make it hard to concentrate at my laptop. I won a scholarship to a film school but Covid has forced it all online. Instead of moving to Vancouver, free of all my drugs and able to see who I finally am after being overmedicated for twenty years, I'm now on more medications than ever. I have a follow-up appointment with a neurologist next week who will likely put me on Cogentin to help stop the buzzing. I don't know that I want to take it.

 

My life right now consists of writing a novel, going for long walks, going on long drives all over Alberta, and listening to audio books on Cognitive Behavioral Therapy to help stop my suicidal thoughts when the buzzing gets to be overwhelming. My relationship with my parents has been broken by the arrest, my doctor is on holiday, and I spend my days writing, walking, crying, or driving. For some reason restarting Prozac has all but nullified my sex drive, and the intensity of my orgasms has dropped from 100% down to maybe 30%. My genitals feel numbed and useless, and I have no interest in dating. It hardly matters because of Covid, but this is just another harm caused by the medications. There have been so many I've lost count.

 

If you've made it to the end of this, thanks for reading. I hope the movie goes well. I have to go for a walk now to burn off my buzzing legs.

 

To Altostrata: You were right when you told me the doctors don't know what they're doing. This experience has basically confirmed everything I've read here. That tapering is the only way off, that restarting meds is no guarantee that it will stop withdrawal symptoms, and that I just have to ride it out. I'm terrified of becoming addicted to benzos but I figure if it hasn't already happened it's just a matter of time, because I'm on Clonazepam 0.5 mg three times a day to help with all the vibrating and sleeping. Once the buzzing goes away for good, I'm going to try to get off the rest of my drugs but follow the protocols on this site to the letter. I ordered a digital scale from Amazon that's sitting in my closet for when that happens. But it won't be until the buzzing stops.

 

So, yeah. 2020. Worst year of my life, and all from listening to doctors. Don't make the same mistakes I did. A fancy hospital with highly-paid physicians in authoritative white lab coats is meaningless if they don't know how to get people off of meds. I've contacted two law firms about my case, but as soon as I say "I was prescribed an anti-psychotic off label for sleep" they think I must be crazy and I never hear from them again. I've found multiple articles online about how Seroquel is not a sleeping pill and shouldn't be prescribed as one because it's an unsafe drug (one from Canada, one from Norway) and learned to my horror that in 2010, AstraZenca, the drug's manufacturer, had to pay $500 million in fines for illegally marketing the drug to doctors saying it could be prescribed for all sorts of things, including sleep.

 

I'd go back to bed now, but there's no point. It's impossible to sleep when your back is twitching and you have to kick your legs 150 times like you're in a pool just to calm them down.

 

If you've made it this far, thanks for reading. I'll update my signature.

 

-***** by Fluoxetine

Edited by ChessieCat
Added trigger warning and made small redactions/edits for clarity

As of September 5th, 2022:

13 mg liquid Prozac - Reinstated in March, 2020. Prior to that, 1994-2019

43 mg Seroquel - Started in July 2006

9.375 mg Imovane - Started in March, 2020

20 mg Propranolol 3x a day - June, 2020

0.5 mg Clonazepam 3x a day - June, 2020

 

 

 

 

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  • Moderator Emeritus
4 hours ago, FleeingFluoxetine said:

My life right now consists of writing a novel, going for long walks, going on long drives all over Alberta, and listening to audio books on Cognitive Behavioral Therapy


This sounds like you’re sticking to healthy coping strategies. You’re a terrific writer so it’s great that you’re channeling that into writing. 
 

It appears that a lot of your recent issues started from the Seroquel cut from 45 mg to 25 mg and then reinstating 3 months later to too high of a dose at 50 mg. Not to mention the addition of Prozac, Imovane, Propanolol, and Clonazepam in recent months. 
 

You’re right that it’s a total shame these powerful drugs get marketed and prescribed for so many off-label reasons and that psychiatrists haven’t the least bit of training on withdrawal or how to safely taper patients. We share these frustrations. 
 

I encourage you to continue leaning into healthy non-drug coping strategies like going for walks, listening to soft music, and engaging in meaningful activities. Covid has put a hold on a lot of things, so I wonder if you can ask for a deferral to film school to next year as you heal from these recent onslaught to your nervous system?
 

 I’m glad you are coming to an acceptance about following proper tapering guidance on this site. Perhaps you can look into finding a different doctor given your current psychiatrist’s propensity to throw more drugs at the problem. Remember any doctor can prescribe, it doesn’t have to be psychiatrists. 

 

Can I ask you to update your signature with your drug history (not just current meds)? Remember this helps us get a full picture of when you went on and off drugs or your taper schedule. For more info:

 

 

Apr 2018: Began 10 mg Amitriptyline (for headaches & insomnia from concussion).

Jul - Aug 2018: Fast taper to 5 mg and then 2.5 mg (too fast, hellish withdrawal at 2.5 mg). Sept 2018: Reinstated 10 mg (many symptoms improved). Oct 2018 - Apr 2019: Updosed & stabilized on 11 mg (2 waves at 3 and 5 months post-withdrawal). Apr 2019 - Apr 2020: Tapered 0.5-0.25 mg per month using compounded pills: 11 mg —> 6 mg. (2 waves at 12 and 16 months post-withdrawal.) Apr 2020 - present: Switched to a liquid taper at rate of 0.1 mg per month. Currently: 1.1 mg. No more waves. 

 

Supplements: Omega-3 fish oil, Vit B12, coenzyme Q10, Hawthorn extract (for tachycardia) Tools for insomnia/waves (as needed): Epsom salt foot soaks, 0.5 mg Melatonin, quality time, waves WILL PASS. Lifestyle: Eat real foods, mostly plants; sunlight, walking, yoga; symptom tracking on adapted Glenmullen chart.

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Okay, I'll post a new version of my history. It's just so long now. Thanks for the support.

 

As far as film school goes, I've already deferred it twice because of the withdrawal. I was supposed to be there last September, then last January, and now it starts on the 31st. I don't know if they'll accept another deferral. It's all from home now anyway, so hopefully it will keep me busy without overwhelming me. I won a scholarship (I came second out of 300 entrants) that covers over half the tuition, so this is sort of a once-in-a-lifetime chance for me. I've thought about suing my doctor if I can't attend the school because of my symptoms. I think of suing her a lot, to be honest. But I agree about my nervous system being fried. When I push myself too hard my legs start to tingle, and when I cry they start to buzz. It's a terrible catch-22. I get anxious about all the meds, then I cry, then my legs buzz. That makes me cry more, so I have to go for long walks to cope. I'm pretty sure my neighbors are wondering who's the guy that walks up and down 18th street in tears all the time.

 

The other issue is this weight behind my eyes now that I've never had. I know it's from the drugs in one form or another. It's like I'm happy to be going to school but I have this giant psychological ball and chain behind my eyes that's weighing me down. I'm not suicidal and I've been editing my novel like hell as I race for the 31st. Crying seems to lighten the weight.

 

What bothers me the most about all of this is that none of it should have happened. I "should" (there's that CBT word) be married with a career and a family, but instead I've spent my life battling the drugs alone.

 

 

 

Edited by ChessieCat
Removed last two sentences

As of September 5th, 2022:

13 mg liquid Prozac - Reinstated in March, 2020. Prior to that, 1994-2019

43 mg Seroquel - Started in July 2006

9.375 mg Imovane - Started in March, 2020

20 mg Propranolol 3x a day - June, 2020

0.5 mg Clonazepam 3x a day - June, 2020

 

 

 

 

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  • Administrator

Fleeing, how many times have you been in the hospital for psychiatry issues?

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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For authentic psychiatric issues that stem not from withdrawal or adverse reactions to psychiatric drugs? Zero. 
 

For issues related to Seroquel withdrawal?
 

1. A three day stint in the hospital because my doctor said my withdrawal was causing an agitated depression that put me at the risk of self-harm. That led to ignorant hospital staff cutting the dose in half which led to 

 

2. A six day jaunt where they reinstated my Prozac and Seroquel which led to

 

3. A month long stay where I was certified against my will as they tried to get the adverse extra-pyramidal tardive akathisia under control caused by restarting the meds. It’s only just starting to finally go away and it began in April. 

 

 I’m not crazy, I was made that way. I spoke to a friend who runs a boutique law firm and he says I could file malpractice suits against three different doctors. The first one against the doctor I saw at 19 for overdosing me on 8x the recommended starting dose of Prozac; the sleep clinic doctor who prescribed Trazadone when it’s contraindicated against Prozac and could have killed me via drug interaction; my current shrink for prescribing an anti-psychotic when I have no diagnosis of schizophrenia or psychosis and there has been literature available for a decade saying Seroquel is not a sleeping pill and shouldn’t be prescribed as one because of the harm it can cause (and I have suffered). 
 

Why do you ask?

As of September 5th, 2022:

13 mg liquid Prozac - Reinstated in March, 2020. Prior to that, 1994-2019

43 mg Seroquel - Started in July 2006

9.375 mg Imovane - Started in March, 2020

20 mg Propranolol 3x a day - June, 2020

0.5 mg Clonazepam 3x a day - June, 2020

 

 

 

 

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  • 1 month later...

So, I could use some advice. 
 

I’ve been suffering inner akathisia now since about May 2020. I don’t have any compulsions to pace but my body vibrates, especially when I’m lying down. My shrink has no idea what she’s doing and I told her over the phone last week to get me a list of new doctors because of all the pain and suffering she’s caused me. I’ve even contacted a law firm about suing her. 
 

I’m trapped between the inner akathisia from restarting the Seroquel and the outer akathisia (pacing) that started when I tried to lower it and the psych ward docs told me just to progressively cut the drugs in half three times. How wrong they were. 
 

I was sent to see a neurologist who suggested starting either Gabapentin or Cogentin to deal with the inner vibrating. My pharmacist told me to get the hell off the Seroquel but I can’t go through the nightly pacing again. 
 

I’m doing film school online because of COVID and I really don’t want to have to drop out and go back to the psych ward (4th time) all because I was put on Seroquel for sleep. :(

 

I’m not psychotic or schizophrenic and don’t hear voices. The anti-psychotic was solely used for sleep even though there are now multiple articles saying it’s not a sleeping pill. I even found out there was a half a billion dollar lawsuit against its creators for illegally telling American doctors to use it off label for sleep. 
 

I know this is a site about tapering drugs and I would stop all of them cold turkey right now if it weren’t for the hell it would put me in. Has anyone tried Cogentin for extra-pyramidal side effects? I just want the vibrating to stop. My cousin (who is also a pharmacist) says I can use Cogentin to stop the vibrating and ease off the Seroquel, then stop taking Cogentin. My faith in the system is totally broken and I don’t know who to trust or what to do. Can anyone help me? My legs are vibrating as I write this. :(

As of September 5th, 2022:

13 mg liquid Prozac - Reinstated in March, 2020. Prior to that, 1994-2019

43 mg Seroquel - Started in July 2006

9.375 mg Imovane - Started in March, 2020

20 mg Propranolol 3x a day - June, 2020

0.5 mg Clonazepam 3x a day - June, 2020

 

 

 

 

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  • Administrator

Read this again:

 

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Re-reading my history does nothing to help me. I know what’s happened. 

As of September 5th, 2022:

13 mg liquid Prozac - Reinstated in March, 2020. Prior to that, 1994-2019

43 mg Seroquel - Started in July 2006

9.375 mg Imovane - Started in March, 2020

20 mg Propranolol 3x a day - June, 2020

0.5 mg Clonazepam 3x a day - June, 2020

 

 

 

 

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  • 3 months later...

Hey, everyone. I’m hoping Altostrata reads this and we can mend our relationship. 
 

I’ve fired my doctor and filed a complaint with my province’s physician’s board for the hell she’s put me through. I don’t have a shrink right now. I’m back on the waiting list. 
 

Over the past little while, trying to stop the awful buzzing in my legs, I’ve been tapering my liquid Prozac. I’m almost positive this is the source of it. I don’t know the conversion because I’m using liquid. I started off at 3.75 mL (15 mg) and have have been tapering by 0.05 mL every two weeks. Each time I drop the dose the buzzing gets less. I dropped to 3.55 mL on Christmas Eve and that seems be low enough to start up interdose withdrawal from the 50 mg of Seroquel I’m on. I’m in a cyclical nightmare where I take it at night and I’m feeling okay, but my mood crashes slowly over the course of the day and by 9 pm I’m a sobbing mess, crying at everything. 
 

I found a tapering schedule in the Facebook group Seroquel should be illegal and I’m going to follow it once I’m under the care of my new shrink. It’s incredibly slow. I can’t use liquid because it makes my whole body sweat. If my new doctor suggests more meds I’m going to fire him. 
 

Anyway, that’s where I’m at. 
 

fleeing

As of September 5th, 2022:

13 mg liquid Prozac - Reinstated in March, 2020. Prior to that, 1994-2019

43 mg Seroquel - Started in July 2006

9.375 mg Imovane - Started in March, 2020

20 mg Propranolol 3x a day - June, 2020

0.5 mg Clonazepam 3x a day - June, 2020

 

 

 

 

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  • Moderator Emeritus
13 hours ago, FleeingFluoxetine said:

I dropped to 3.55 mL on Christmas Eve and that seems be low enough to start up interdose withdrawal from the 50 mg of Seroquel I’m on. I’m in a cyclical nightmare where I take it at night and I’m feeling okay, but my mood crashes slowly over the course of the day and by 9 pm I’m a sobbing mess, crying at everything. 

 

If you think that this might be caused by the interdose withdrawal you could try dosing twice daily.  If you decide to do this it is best to move part of your dose earlier by 1 hour each day, keeping notes for yourself of your symptoms to see how it affects them.

 

You might not need to move it the full 12 hours apart.  Just a few hours apart might help.

* NO LONGER ACTIVE on SA *

MISSION ACCOMPLISHED:  (6 year taper)      0mg Pristiq  on 13th November 2021

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

Post 0 updates start here    My tapering program     My Intro (goes to tapering graph)

 VIDEO:   Antidepressant Withdrawal Syndrome and its Management

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2 hours ago, ChessieCat said:

 

If you think that this might be caused by the interdose withdrawal you could try dosing twice daily.  If you decide to do this it is best to move part of your dose earlier by 1 hour each day, keeping notes for yourself of your symptoms to see how it affects them.

 

You might not need to move it the full 12 hours apart.  Just a few hours apart might help.

 

 

I tried this last summer but the 25 mg of Seroquel knocked me right out. I could try it again, I guess. I’m in school now online and don’t want to sleep through it. Mostly I want all the trembling gone. I can’t believe how much I’ve suffered on these drugs and how many people they’ve hurt. It’s staggering. 

As of September 5th, 2022:

13 mg liquid Prozac - Reinstated in March, 2020. Prior to that, 1994-2019

43 mg Seroquel - Started in July 2006

9.375 mg Imovane - Started in March, 2020

20 mg Propranolol 3x a day - June, 2020

0.5 mg Clonazepam 3x a day - June, 2020

 

 

 

 

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  • Moderator Emeritus

Instead of taking half of your dose earlier you could try only taking a small portion of the 50mg earlier.

* NO LONGER ACTIVE on SA *

MISSION ACCOMPLISHED:  (6 year taper)      0mg Pristiq  on 13th November 2021

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

Post 0 updates start here    My tapering program     My Intro (goes to tapering graph)

 VIDEO:   Antidepressant Withdrawal Syndrome and its Management

Link to comment

Hmm. I hadn’t thought of that. Like maybe 5 mg at lunch and save the 45 for bedtime. 
 

I’ll check out your website. 

As of September 5th, 2022:

13 mg liquid Prozac - Reinstated in March, 2020. Prior to that, 1994-2019

43 mg Seroquel - Started in July 2006

9.375 mg Imovane - Started in March, 2020

20 mg Propranolol 3x a day - June, 2020

0.5 mg Clonazepam 3x a day - June, 2020

 

 

 

 

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  • 7 months later...

Are there interactions between Covid vaccines and extra-pyramidal side effects?

 

I’m still struggling with mild akathisia (buzzing legs, trembling back when I lie down) after foolishly restarting my Seroquel over a year ago. Because of this I haven’t been vaccinated yet. I was hoping it would have cleared up yet but with the Delta variant spreading I was debating getting the jab next week. Will I be okay or is this going to land me in the hospital for the fourth time?

Edited by Shep
added title after moving from another intro thread.

As of September 5th, 2022:

13 mg liquid Prozac - Reinstated in March, 2020. Prior to that, 1994-2019

43 mg Seroquel - Started in July 2006

9.375 mg Imovane - Started in March, 2020

20 mg Propranolol 3x a day - June, 2020

0.5 mg Clonazepam 3x a day - June, 2020

 

 

 

 

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  • Moderator Emeritus

@FleeingFluoxetineplease note I moved your post from the other intro you had started. Please continue asking questions here so all of your information is in one place.

 

Here is the SA thread on Covid: 

 

Coronavirus / covid19, and psychiatric drug tapering & withdrawal, Covid19 vaccine.

 

I think this is the first post where a member mentions getting the vaccine, so you could start here to read about how members were affected: 

 

Vaccines mentioned here

 

JanCarol posted here about what Dr. Healy has said about the vaccine not causing problems with people going through withdrawal:

 

Dr. David Healy on the Covid vaccine

 

 

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  • Administrator

Getting vaccinated with probably very mild or no adverse effects is preferable to getting covid-19 while your nervous system is sensitized from withdrawal.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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  • 1 year later...

Need advice on order of drugs to taper

 

Hey, all. I haven't posted on here in a while, but I just made a donation as a thanks for all the help I've had so far. I hope this is in the right forum:

 

Long story short: I made it to 43 mg of Seroquel left in my taper three years ago, but my doctor said it was putting me into an agitated depression and I was at a risk of self-harm (I've never hurt myself), and I was hospitalized. The doctors there cut the dose in half and told me I'd be off it in three months. Listening to them was the second biggest mistake of my life.

 

I was hospitalized twice for what I assume was inner akathisia from them cutting the Seroquel to 25 mg: I couldn't lie down without my entire body feeling like it was being electrocuted. I don't know if this was tardive akathisia from the near 50% cut of Seroquel, or from my doctor reinstating Prozac and Seroquel. The only thing that ever made it feel better was exercise, and I was going for 20 minute walks at 10 pm, 2 am, and 4 am to get it to stop when I would wake up with my entire body trembling/electrocuted. After six weeks of this I was exhausted and hospitalized against my will for a month. I got out, fired my doctor, and filed a complaint with my province's college of physicians and surgeons.

 

I've spent the last two years pretty much doing nothing but hoping my brain would heal, and it has. The electrocution feeling has gone from a 10/10 to like a 0.5/10. The problem is my doctor put me on more medications to deal with the akathisia.

 

Right now I'm on:

13 mg liquid Prozac to "boost my mood" and end all the crying spells from the Seroquel nonsense. I got off it completely years ago but I've been on it now for 28 months.

0.5 mg clonazepam x 3 a day for 28 months to help ease the akathisia, but I feel it's done nothing.

43 mg Seroquel dissolved in water. I think this is the root of my troubles, I was put on it 16 years ago for sleep and have taken it every night.

20 mg Propranolol x 3 a day (60 mg total) to help ease the akathisia. I think it's done nothing. I've been on it for 28 months.

9.375 mg Imovane for sleep to help with the Seroquel withdrawal insomnia. I've also been on it for 28 months.

 

My problem now is not knowing the order of the drugs to taper. The doctor I fired said to taper Seroquel, then Prozac, then Clonazepam to deal with the anxiety created by withdrawing from the other drugs, but in the 28 months I've been on this joyride, I think I've probably developed a dependency to the Clonazepam.

 

Does anyone have any advice? For the record, I'm going to be taking advice from this website over any advice I get from doctors from now on as they've proven to not have a clue about their drugs. I was planning on dissolving my 0.5 mg of Clonazepam in 0.5 mg of water but I see now from this site that that isn't going to work.

 

 

Edited by ChessieCat
added Intro topic title before merging with intro topic

As of September 5th, 2022:

13 mg liquid Prozac - Reinstated in March, 2020. Prior to that, 1994-2019

43 mg Seroquel - Started in July 2006

9.375 mg Imovane - Started in March, 2020

20 mg Propranolol 3x a day - June, 2020

0.5 mg Clonazepam 3x a day - June, 2020

 

 

 

 

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  • Moderator Emeritus

Only ONE Introduction topic per member.

 

I suggest you first check the drug interactions and also the side effects for each drug you are currently taking.  These two checker present the information in a different format.

 

Drug.com Interactions Checker


Medscape Drug Interaction Checker

 

And read the following:

 

Taking multiple psych drugs? Which drug to taper first? (heading is a link to topic)
If you're not having an adverse reaction from the other medications, taper the most activating drug first. This is usually an antidepressant or stimulant (ADHD drug).

* NO LONGER ACTIVE on SA *

MISSION ACCOMPLISHED:  (6 year taper)      0mg Pristiq  on 13th November 2021

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

Post 0 updates start here    My tapering program     My Intro (goes to tapering graph)

 VIDEO:   Antidepressant Withdrawal Syndrome and its Management

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  • Moderator Emeritus
6 hours ago, FleeingFluoxetine said:

I just made a donation as a thanks for all the help I've had so far.

 

On behalf of SA, thank you.

 

Disclaimer:  Please note that you will not receive any extra assistance or special attention if you choose to make a donation (this may not be your reason but there are some people who would expect this).  It is not "fee for service".  The site is completely free to everyone and you will be treated the same as every other member on the site.

 

For any other members wanting to donate there is a link at the top of the page - a blue bar with the words "Support our work - please give today" (you can pay by PayPal or direct debit).

 

This is what the donation money is used for:

  

On 4/21/2011 at 12:49 AM, Altostrata said:

Surviving Antidepressants receives no funding from any source other than its members. It does not make a profit. We are not sponsored by any organization or religious group. We certainly do not receive any support from pharmaceutical companies! We will never run advertising.

 

This site's purpose is only to provide support for people withdrawing, reducing suffering, and bringing the problems of withdrawal to the attention of medicine.

 

Your contribution will go towards expenses such as

 

- Software, server, and Web site registration costs

- Memberships to like-minded organizations, such as MindFreedom.org

- Purchase of relevant scientific publications

 

* NO LONGER ACTIVE on SA *

MISSION ACCOMPLISHED:  (6 year taper)      0mg Pristiq  on 13th November 2021

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

Post 0 updates start here    My tapering program     My Intro (goes to tapering graph)

 VIDEO:   Antidepressant Withdrawal Syndrome and its Management

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  • Moderator Emeritus

Post #1 of this topic has links to Tips for Tapering various drugs.

 

Also see:

 

information-for-making-liquid-benzodiazepine-preparations-by-brassmonkey

 

I have asked the other staff for there assistance.

 

* NO LONGER ACTIVE on SA *

MISSION ACCOMPLISHED:  (6 year taper)      0mg Pristiq  on 13th November 2021

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

Post 0 updates start here    My tapering program     My Intro (goes to tapering graph)

 VIDEO:   Antidepressant Withdrawal Syndrome and its Management

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  • Administrator
7 hours ago, FleeingFluoxetine said:

My problem now is not knowing the order of the drugs to taper. The doctor I fired said to taper Seroquel, then Prozac, then Clonazepam to deal with the anxiety created by withdrawing from the other drugs, but in the 28 months I've been on this joyride, I think I've probably developed a dependency to the Clonazepam.

 

Hello, @FleeingFluoxetine Prescribing all those drugs was certainly a clueless over-reaction by your doctors.

 

What times o'clock do you take your drugs, with their dosages?

 

If I were you, I would taper Seroquel first, it's the highest-risk drug you're taking. The clonazepam and zopiclone should help you sleep. You probably don't feel their effect because they're redundant to Seroquel.

 

 

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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On 9/5/2022 at 4:38 PM, Altostrata said:

 

Hello, @FleeingFluoxetine Prescribing all those drugs was certainly a clueless over-reaction by your doctors.

- Yep. I'm starting to think none of them know what they're doing.

On 9/5/2022 at 4:38 PM, Altostrata said:

 

What times o'clock do you take your drugs, with their dosages?

 

At 10 am I take 20 mg Propranolol and 0.5 mg Clonazepam.

At 2 pm I take 13 mg Liquid Prozac

At 4 pm I take another 20 mg Propranolol and 0.5 mg Clonazepam

At 10 pm I take another 20 mg Propranolol and 0.5 mg Clonazepam, 43 mg Seroquel dissolved in water, and 10 mg Zopiclone.

 

I'm caught between the adverse effects of restarting the Seroquel (waking up shaking, feeling electrocuted) and its withdrawal waves (agitation/tears/rage) that only go away when I walk around 30 blocks. I even bought an elliptical machine for the winter. My last reduction of the Seroquel on January 6th when I went from 45 to 43 mg, and my notes tell me it took about three months to recover. If I ever lower again it's going to be by a milligram. :(

 

I lowered my Zopiclone about a month ago from 12.5 to 10 and I was anxious for no reason for about a week.

 

I should have listened to you when you told me a few years ago that even the doctors and nurses in the hospitals don't know what the drugs can do. Letting them cut my Seroquel in half was what started this mess I'm riding out, but they were so sure of themselves. I had three doctors all tell me I'd be off the drug in three months. Instead it caused two years of electrocution every time I laid down. It still happens, 28 months later.

 

On 9/5/2022 at 4:38 PM, Altostrata said:

If I were you, I would taper Seroquel first, it's the highest-risk drug you're taking. The clonazepam and zopiclone should help you sleep. You probably don't feel their effect because they're redundant to Seroquel.

 

 

 

As of September 5th, 2022:

13 mg liquid Prozac - Reinstated in March, 2020. Prior to that, 1994-2019

43 mg Seroquel - Started in July 2006

9.375 mg Imovane - Started in March, 2020

20 mg Propranolol 3x a day - June, 2020

0.5 mg Clonazepam 3x a day - June, 2020

 

 

 

 

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  • Administrator
7 hours ago, FleeingFluoxetine said:

At 10 am I take 20 mg Propranolol and 0.5 mg Clonazepam.

At 2 pm I take 13 mg Liquid Prozac

At 4 pm I take another 20 mg Propranolol and 0.5 mg Clonazepam

At 10 pm I take another 20 mg Propranolol and 0.5 mg Clonazepam, 43 mg Seroquel dissolved in water, and 10 mg Zopiclone.

 

You're taking a LOT of clonazepam, with zopiclone adding to the benzo mix.

 

How do you feel after you take clonazepam in the morning?

 

On 9/5/2022 at 8:02 AM, FleeingFluoxetine said:

20 mg Propranolol x 3 a day (60 mg total) to help ease the akathisia. I think it's done nothing. I've been on it for 28 months.

 

When times of day did this akathisia show up?

 

Taking propranolol WITH clonazepam is....irregular. Do you have pre-existing blood pressure issues?

 

Please keep daily notes of times o’clock you take your drugs, their dosages, and your symptoms throughout the day. We need to know how you feel before and after taking each drug, and your symptoms in between. Post 24 hours of notes at a time in this topic, in a simple list format with time o’clock on the left and notation (symptom or drug and dosage) on the right. This can show if your symptoms are adverse effects from one of your drugs.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to comment
2 hours ago, Altostrata said:

 

You're taking a LOT of clonazepam, with zopiclone adding to the benzo mix.

- Well, that's great to know. : / My doctor said it was a tiny amount. I was in tears when she told me she was going to put me on it.

2 hours ago, Altostrata said:

 

How do you feel after you take clonazepam in the morning?

- I feel it's done nothing. I don't feel that it's doing anything, just like I didn't feel my hydromorphone was doing anything after spinal fusion surgery, so I cold turkeyed it and ended up in akathisia hell about seven years ago. I didn't even know the word. But I don't feel any less electrocuted when I take it.

2 hours ago, Altostrata said:

When times of day did this akathisia show up?

- So, here's the thing. I need to know what you're defining as akathisia. As far as I've read, there are two kinds (please correct me if I'm wrong):

 

1. A sense of inner electrocution, like you're being tazed or hit with a cattle prod.

2. An uncontrollable desire to walk or an adrenaline spike that you have to burn off with walking or exercise.

 

The first kind showed up 28 months ago. The doctors at a hospital told me to cut my Seroquel in half to get off it, roughly from 43 mg to 25 mg, after taking it for sixteen years nightly for sleep with no history of psychosis or schizophrenia. Cutting it in half brought on racing thoughts that I couldn't process, crying spells that lasted for up to three hours, and terrible pacing every night around 7-9 pm when I was going to take the next dose. After about a month of this, my doctor decided to reinstate the Seroquel at 50 mg and added 15 mg of Prozac to stop me from crying. About three weeks later I was lying in bed and the entire room started to shake. I felt like I had a chainsaw in my chest and bees in my legs. I went to the emergency room twice because I thought I was having a heart attack.

 

From that point on, I couldn't lie down for more than five minutes without my entire body starting to tremble. The only thing that would fix it was exercise. I moved in with my parents and tried to sleep in my old room. I would take all my meds and lie down in bed at 10 pm but my legs felt like they were being electrocuted, so I would walk around the block for 20 minutes. I would wake up at 2 am feeling my whole body being electrocuted, so I would walk around the block again, then again at 4 am. After six weeks of this I was completely exhausted and worn out from all the crying. My doctor said "we prescribe beta blocks and benzos for akathisia" and put me on the 60 mg of propranolol and 0.5 mg clonazepam 3x a day. I was in tears because I knew what benzos do to people but I didn't have any choice. She had me arrested under Canada's mental health act because she thought I was at risk for spontaneous self-harm, and the police locked me in a holding cell for seven hours until they put me in a psych ward for a month. I wasn't allowed to leave. I was given a full body MRI to check for a brain tumor or a growth pressing on my spine to explain the buzzing feeling because my doctor didn't believe it was from the drugs. I was also given a neurological test. I passed both tests.

 

The nurses hit me with everything from vitamin B injections to omega 3s to iron and zinc to try to stop the buzzing feeling, but nothing worked. When I was discharged I felt like it had gone from 10/10 to 3/10 which I think was just from time passing. I fired my doctor. I didn't touch my drugs for an entire year because of Covid and online school. I bought a treadmill so I could walk off my buzzing if I woke up with it. I go for walks every day.

 

2 hours ago, Altostrata said:

 

Taking propranolol WITH clonazepam is....irregular. Do you have pre-existing blood pressure issues?

- No, I have none. Like I said, my doctor told me that the solution for akathisia was benzos and beta blockers. That's why I'm on both.

2 hours ago, Altostrata said:

 

Please keep daily notes of times o’clock you take your drugs, their dosages, and your symptoms throughout the day. We need to know how you feel before and after taking each drug, and your symptoms in between. Post 24 hours of notes at a time in this topic, in a simple list format with time o’clock on the left and notation (symptom or drug and dosage) on the right. This can show if your symptoms are adverse effects from one of your drugs.

 

Okay. I'll start tomorrow. I don't think the clonazepam or the propranolol ever did anything to make the buzzing any better. I just think she created another addiction.

 

Thanks for all you do, Alto. :)

As of September 5th, 2022:

13 mg liquid Prozac - Reinstated in March, 2020. Prior to that, 1994-2019

43 mg Seroquel - Started in July 2006

9.375 mg Imovane - Started in March, 2020

20 mg Propranolol 3x a day - June, 2020

0.5 mg Clonazepam 3x a day - June, 2020

 

 

 

 

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  • Administrator

You're welcome.

 

15 hours ago, FleeingFluoxetine said:

- I feel it's done nothing. I don't feel that it's doing anything, just like I didn't feel my hydromorphone was doing anything after spinal fusion surgery, so I cold turkeyed it and ended up in akathisia hell about seven years ago. I didn't even know the word. But I don't feel any less electrocuted when I take it.

 

Have you had akathisia ever since this event? 

 

How do you describe the symptoms you call "akathisia"?

 

15 hours ago, FleeingFluoxetine said:

I would take all my meds and lie down in bed at 10 pm but my legs felt like they were being electrocuted, so I would walk around the block for 20 minutes. I would wake up at 2 am feeling my whole body being electrocuted, so I would walk around the block again, then again at 4 am.

 

What drugs were you taking then, at what times o'clock?

 

 

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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On 9/10/2022 at 3:24 PM, Altostrata said:

You're welcome.

:)

 

Have you had akathisia ever since this event? 

Yes, almost every day since. It's gotten much much better over the past 28 months, but it still won't die.

On 9/10/2022 at 3:24 PM, Altostrata said:

 

How do you describe the symptoms you call "akathisia"?

- The electrocution feeling I get in my legs when I lie on my stomach. It's like pins and needles x 100. My body trembling when I lie on my back. And when the hospital cut my dose from 43 to 25 mg, every night for six weeks as I approached the time of my next dose, I would get a terrible sense of agitation and fear and would end up pacing through my parents' basement until I took the next hit of Seroquel. This is what I call akathisia.

On 9/10/2022 at 3:24 PM, Altostrata said:

 

 

What drugs were you taking then, at what times o'clock?

- This was about six weeks after my doctor reinstated the Seroquel to stop the withdrawal symptoms I had (racing thoughts, dizziness, disassociation, pacing as I approached the next dose, and unbelievable crying spells). I was taking 15 mg Prozac and 50 mg Seroquel at 10 pm every night. I think my doctor reinstating the drugs kindled my brain. This happened 28 months ago and I still wake up shaking, like today.

 

- I bought a daytimer app for my phone to write down everything, like you suggested. I can send or post a week's worth of data, if you want to try to look for patterns.

On 9/10/2022 at 3:24 PM, Altostrata said:

 

 

 

As of September 5th, 2022:

13 mg liquid Prozac - Reinstated in March, 2020. Prior to that, 1994-2019

43 mg Seroquel - Started in July 2006

9.375 mg Imovane - Started in March, 2020

20 mg Propranolol 3x a day - June, 2020

0.5 mg Clonazepam 3x a day - June, 2020

 

 

 

 

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  • Administrator
14 hours ago, FleeingFluoxetine said:

And when the hospital cut my dose from 43 to 25 mg, every night for six weeks as I approached the time of my next dose, I would get a terrible sense of agitation and fear and would end up pacing through my parents' basement until I took the next hit of Seroquel. This is what I call akathisia.

 

This sounds like interdose withdrawal, probably from Seroquel.

 

On 9/5/2022 at 2:44 PM, ChessieCat said:

 

Please post a link to your drug interactions report.

 

Please post your daily notes here, in a way we don't have to download anything.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to comment
On 9/12/2022 at 9:11 PM, Altostrata said:

 

This sounds like interdose withdrawal, probably from Seroquel.

- Yes! That's what I thought it was. When I told this to my doctor, she just looked at me blankly. The hospital I was sent to did nothing about it, so I left.

On 9/12/2022 at 9:11 PM, Altostrata said:

 

Please post a link to your drug interactions report.

 

Please post your daily notes here, in a way we don't have to download anything.

Here are the last five days.

 

09/10/2022
5:51 am - woke up trembling. Fell back asleep
7:30 am - woke up trembling again. Thirty seconds on the elliptical and it's gone. But the usual bleary eyes
10:00 am. - took 60 mg propranolol and 0.5 mg Clonazepam and feel no different.
10:30 am - legs slightly tingling
1:49 pm - kinda wavy, sad. Lead up to 2 pm Prozac but I've never had that issue ever.
2:02 pm - depressed and tearful and going for a walk. Also feet are buzzy. 13 mg Prozac.
2:56 pm - finished walk. Way less tearful, no buzzing
4:44 pm - took 20 mg propranolol and 0.5 mg clonazepam. Don't feel anything. Crying, angry, buzzing from low blood sugar
4:57 pm - tearful meltdown, went to parents' house. Went for a half hour walk and felt way better.
11:30 pm - 20 mg propranolol, 0.5 mg clonazepam, 43 mg seroquel and 10 mg imovane. As usual, I feel nothing. But I went for two walks today.

 

09/11/2022
6:06 am - woke up, body trembling. Twitching/kicking feet and back to get rid of it.
7:24 am - out of bed, off to guitar to be upright
9:23 am - laid back down in bed, back starts to tremble within five minutes, have to lie in bed and shake it off. Legs start with back shaking.
10:36 am - woke up with major startle response, body still shaking. But getting up and walking around makes it stop.
10:47 am - 20 mg propranolol and 0.5 mg clonazepam
3:31 pm - 13 mg Prozac
3:41 pm - lying face down in bed, electrical storm in my legs, kicking my feet (as usual)
4:48 pm - major thunderstorm, getting up to practice guitar because I can't take it anymore.
5:17 pm - 60 mg propranolol and 0.5 mg clonazepam.
6:39 pm - tears and walking. Sadness for no reason
7:12 pm -finished walk, tears gone
11:28 pm - 20 mg propranolol, 0.5 mg clonazepam, 43 mg seroquel and 10 mg imovane.
12:03 am - in bed, legs buzzing, kicking away

 

09/12/2022
6:38 am - woke up. Little but less buzzy
9:33 am - went back to bed, woke up, not buzzy at all.
10:00 am - 20 mg propranolol and 0.5 mg clonazepam
11:12 am - mild leg buzzing, was sitting cross legged at the guitar. I doubt it's drug related.
11:25 am - random sadness
3:37 pm - 13 mg Prozac, 20 mg propranolol, 0.5 mg clonazepam
10:00 pm -20 mg propranolol, 0.5 mg clonazepam, 43 mg seroquel and 10 mg imovane. Legs buzzing from reading the news on my iPhone while lying facedown in bed.
10:19 pm - three minutes on elliptical to stop legs from buzzing

 

09/13/2022
4:19 am - woke up right on schedule. :( Back trembling maybe 1.5/10
4:41 am - elliptical for 3 minutes to stop buzzing. Should go longer but I'm tired.
5:33 am - got out of bed, can't take the trembling anymore. Guitar for two hours then went back till bed.
8:32 am - woke up with minor electrical storm in back
10:39 am - usual morning dose of 20 propranolol and 0.5 clonazepam
2:30 pm - 13 mg Prozac
3:41 pm - agitated and going for a walk
4:29 pm - home from walk, much better. 20 mg propranolol and 0.5 mg clonazepam
5:30 pm - buzz-free nap
6:52 pm - weird emotional crash
8:11 pm - more agitated depression :(
9:50 pm - 20 mg propranolol, 0.5 mg clonazepam, 43 mg seroquel and 10 mg imovane.
10:50 pm - legs buzzing in bed

 

09/14/2022
5:22 am - woke up, no trembling!
10:27 am - 20 mg propranolol and 0.5 mg clonazepam
1:50 pm - 0.5 mg Prozac
2:13 pm - wave of exhaustion but have to see new psychologist
4:00 pm - 20 mg propranolol and 0.5 mg clonazepam
4:31 pm - agitated eight block walk right after session with psychologist, didn't even make it to my car
10:30 pm - 20 mg propranolol, 0.5 mg clonazepam, 43 mg seroquel and 10 mg imovane.
12:40 am - legs buzzing in bed

 

Here's my drug interactions report:

 

https://www.drugs.com/interactions-check.php?drug_list=1030-0,1979-1274,1115-648,703-0,1956-0

 

If you can't open it, I'll save it and post it as a PDF if that's okay. It's rather long.

As of September 5th, 2022:

13 mg liquid Prozac - Reinstated in March, 2020. Prior to that, 1994-2019

43 mg Seroquel - Started in July 2006

9.375 mg Imovane - Started in March, 2020

20 mg Propranolol 3x a day - June, 2020

0.5 mg Clonazepam 3x a day - June, 2020

 

 

 

 

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7 hours ago, FleeingFluoxetine said:

Here's my drug interactions report:

 

https://www.drugs.com/interactions-check.php?drug_list=1030-0,1979-1274,1115-648,703-0,1956-0

 

If you can't open it, I'll save it and post it as a PDF if that's okay. It's rather long.

 

No issues opening it.  Thank you.

 

Staff prefer not to open attachments, but google docs is okay.

* NO LONGER ACTIVE on SA *

MISSION ACCOMPLISHED:  (6 year taper)      0mg Pristiq  on 13th November 2021

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

Post 0 updates start here    My tapering program     My Intro (goes to tapering graph)

 VIDEO:   Antidepressant Withdrawal Syndrome and its Management

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  • Administrator

Why are you taking propranolol with clonazepam 3 times a day?

 

7 hours ago, FleeingFluoxetine said:

10:30 pm - 20 mg propranolol, 0.5 mg clonazepam, 43 mg seroquel and 10 mg imovane.
12:40 am - legs buzzing in bed

 

The combination of these 4 drugs, all "brakes" is absurd. What is this supposed to accomplish?

 

When you take too many brakes, you can get a paradoxical reaction usually experienced as activation. This probably is what you're calling "akathisia". 

 

Your symptoms are caused by taking too many brakes, at too high a dosage, too often for too long. It's a wonder that you are mobile at all.

 

As explained before:

 

On 9/5/2022 at 3:38 PM, Altostrata said:

If I were you, I would taper Seroquel first, it's the highest-risk drug you're taking. The clonazepam and zopiclone should help you sleep. You probably don't feel their effect because they're redundant to Seroquel.

 

See Tips for tapering off quetiapine (Seroquel)

 

You do not have to change your drugs if you don't want to. Please let us know when you want to taper.

 

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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20 minutes ago, Altostrata said:

Why are you taking propranolol with clonazepam 3 times a day?

- I got off Prozac completely. I was tapering 50 mg of Seroquel and got to 43 but couldn't stop crying. My doctor told me if I didn't admit myself to a psych hospital she'd have me arrested, so I went. The hospital cut my dose from 43 mg to 25 mg and told me I'd be off it in three months after being on it for sleep for sixteen years. That triggered six months of hour long crying spells, interdose withdrawal presenting as agitation, pacing, and crying, and racing thoughts. I moved back in with my parents. My doctor reinstated 50 mg of Seroquel and 15 mg of Prozac to try to stop all my symptoms. About three weeks later the room I was lying in bed and the room started "shaking." I would shake when I walked and whenever I laid down I felt like I was being electrocuted. I couldn't sleep. I felt like I had pins and needles in my legs x 1,000. I went to the hospital emergency room twice thinking I was having a heart attack when it spread to my chest. My doctor diagnosed akathisia and said it was treated with benzos and beta blockers, so she prescribed 20 mg of propranolol and 0.5 mg of clonazepam three times a day to stop the feeling of being electrocuted, then had me arrested (literally sent police to my house) where I was confined in a psych ward for a month. When I was discharged I fired her. I have been on 20 mg of propranolol and 0.5 mg of clonazepam ever since (28 months). I don't feel that it did anything to stop the feeling of electrocution but I'm terrified to stop it.

 

20 minutes ago, Altostrata said:

 

The combination of these 4 drugs, all "brakes" is absurd. What is this supposed to accomplish?

- The Seroquel was prescribed sixteen years ago to help me sleep after I had been prescribed 80 mg of Prozac by my very first psychiatrist who destroyed my life in 1994 by making me suffer incredible waves of anxiety and looping "I have to get out of here" thoughts which I never knew could be created by a drug. I thought it was me. He moved to San Diego and left me to burn.

 

TL; DR: The path was this:

80 mg Prozac at 19 years old to stop anxiety, but it just made it worse. (20 years ago)

50 mg to help sleep (16 years ago)

Prozac taper to zero (5 years ago)

Zopiclone to help with insomnia from reducing seroquel (3 years ago)

Seroquel + Prozac reinstatement -> Electrocution nightmare

Propranolol and Clonazepam added to stop electrocution. (28 months ago)

End result and current dosages:

13 mg liquid Prozac, 43 mg Seroquel, 10 mg Zopiclone daily

20 mg Propranolol and 0.5 mg clonazepam 3x a day.

20 minutes ago, Altostrata said:

 

When you take too many brakes, you can get a paradoxical reaction usually experienced as activation. This probably is what you're calling "akathisia". 

- I know there are multiple definitions of akathisia. There's the inner restlessness and then there's the electrocution/electrical storm. I haven't heard the term "brakes" or "activation" before. What do they mean?

20 minutes ago, Altostrata said:

 

Your symptoms are caused by taking too many brakes, at too high a dosage, too often for too long. It's a wonder that you are mobile at all.

- Yeah, you're not kidding.

20 minutes ago, Altostrata said:

 

As explained before:

 

 

See Tips for tapering off quetiapine (Seroquel)

 

You do not have to change your drugs if you don't want to. Please let us know when you want to taper.

- Believe me, I want to. My entire life has been limited to my condo and all I am doing is waiting for the electrocution to go away while I work on the guitar. I've lost my job and my social life. I'm seeing my GP on Tuesday and I'm going to reduce my Seroquel from 43 mg to 42 mg. I've been dissolving it in water. I tried dropping it by 3 mg back in January and it make my left hell for three months.

As of September 5th, 2022:

13 mg liquid Prozac - Reinstated in March, 2020. Prior to that, 1994-2019

43 mg Seroquel - Started in July 2006

9.375 mg Imovane - Started in March, 2020

20 mg Propranolol 3x a day - June, 2020

0.5 mg Clonazepam 3x a day - June, 2020

 

 

 

 

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  • Administrator

Please add the dates you started each drug to your signature.

 

Please use site search to answer your questions.

 

Personally, if you get paradoxical symptoms from taking too much drugs, which is something you have control over, I call that "activation" rather than akathisia, which is something you do not have control over.

 

You have activation from taking too many brakes. You've been messing with your drugs for years.

 

 

 

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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4 hours ago, Altostrata said:

Please add the dates you started each drug to your signature.

- Okay, I'll try to figure that out tomorrow.

4 hours ago, Altostrata said:

 

Please use site search to answer your questions.

- I will, thanks for this.

4 hours ago, Altostrata said:

 

Personally, if you get paradoxical symptoms from taking too much drugs, which is something you have control over, I call that "activation" rather than akathisia, which is something you do not have control over.

- Right, I understand.

4 hours ago, Altostrata said:

 

You have activation from taking too many brakes. You've been messing with your drugs for years.

- There's been some kind of miscommunication. I haven't been messing with my drugs for years. I'm terrified of meds after what's happened to me. All the changes in my medications were me following a doctor's orders, be it one in a psych ward or my own psychiatrist who I feel was using me as a guinea pig. I've lost all faith in psychiatry, and so has my father who's a radiologist. He says they don't practice medicine as he understands it.

 

The last time I altered a drug was in January 2022 and before that I hadn't touched them in 18 months because I was in an online school during Covid. But there is truth in what you say: *doctors* have been messing with my drugs for years. One of them even wanted to add a sixth drug while I was locked in the hospital for a month to deal with my buzzing (Cogentin), but I refused and told him I'd rather wait it out. Once I'm out of this mess I'm never touching another drug again. I hope this clears things up. Thanks for your help so far - I found a local pharmacy that can compound my Seroquel instead of dissolving it myself. :)

4 hours ago, Altostrata said:

 

 

 

 

As of September 5th, 2022:

13 mg liquid Prozac - Reinstated in March, 2020. Prior to that, 1994-2019

43 mg Seroquel - Started in July 2006

9.375 mg Imovane - Started in March, 2020

20 mg Propranolol 3x a day - June, 2020

0.5 mg Clonazepam 3x a day - June, 2020

 

 

 

 

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