lundeliz Posted April 5, 2015 Author Share Posted April 5, 2015 Oh wow. Thank you. I feel honored that you read my whole thread. Thank you so much for the kind words. It has sure been quite a journey. I will be checking out your thread also. I see in your signature that you have a history with Cymbalta too. Hang in there, we will do this! Thank you again for your words of encouragement. I wish you the very best in your journey off Cymbalta. 2006-Cymbalta 60mg for lyme disease2009-Quit Cymbalta c/tFeb. 2010-Reinstated 60mg CymMar.2010 to May.2012 tapered Cym to 36mgMay 2012-Crossed over to 30mg CelexaMay 2012-Oct.2013 Tapered Celexa down to 2.5mgOct.2013-Switched to 30 beads CymbaltaDec.4,2013-Stopped Cymbalta at 17 beads<p>Akathisia hit at 6 wks off and continuesNow taking melatonin when needed for sleep. Link to comment
luv2knit Posted April 10, 2015 Share Posted April 10, 2015 Thinking of you, Liz. Hang in there! Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day). Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired) Link to comment
lundeliz Posted April 10, 2015 Author Share Posted April 10, 2015 Thanks, luv, I'm trying and I know you are too. 2006-Cymbalta 60mg for lyme disease2009-Quit Cymbalta c/tFeb. 2010-Reinstated 60mg CymMar.2010 to May.2012 tapered Cym to 36mgMay 2012-Crossed over to 30mg CelexaMay 2012-Oct.2013 Tapered Celexa down to 2.5mgOct.2013-Switched to 30 beads CymbaltaDec.4,2013-Stopped Cymbalta at 17 beads<p>Akathisia hit at 6 wks off and continuesNow taking melatonin when needed for sleep. Link to comment
lundeliz Posted April 10, 2015 Author Share Posted April 10, 2015 Feeling so sick, so out of it and disconnected from the world. I've been able to lie on the bed today so far, so at least that is something. I can't stand any stimulation, having to answer the phone gets me too revved up. Talking is too stimulating. So far, the headache hasn't gotten too bad. Trying to find distraction is a problem when everything is too stimulating. Still, I was almost this bad a couple of months ago, and in March I had a good window. It's so hard to be convinced that this will all pass. Never in my wildest dreams could I have imagined that this could or would happen. It is devastating. 2006-Cymbalta 60mg for lyme disease2009-Quit Cymbalta c/tFeb. 2010-Reinstated 60mg CymMar.2010 to May.2012 tapered Cym to 36mgMay 2012-Crossed over to 30mg CelexaMay 2012-Oct.2013 Tapered Celexa down to 2.5mgOct.2013-Switched to 30 beads CymbaltaDec.4,2013-Stopped Cymbalta at 17 beads<p>Akathisia hit at 6 wks off and continuesNow taking melatonin when needed for sleep. Link to comment
luv2knit Posted April 10, 2015 Share Posted April 10, 2015 Yep... Never in my wildest dreams could I have imagined I would be going through this at 60 years of age Hope you get another good window soon, Liz. Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day). Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired) Link to comment
lundeliz Posted April 10, 2015 Author Share Posted April 10, 2015 Thanks luv, I'm 62 and started trying to get off Cymbalta in 2009, finally made it off in 2013. Let's hang in there and keep fighting! 2006-Cymbalta 60mg for lyme disease2009-Quit Cymbalta c/tFeb. 2010-Reinstated 60mg CymMar.2010 to May.2012 tapered Cym to 36mgMay 2012-Crossed over to 30mg CelexaMay 2012-Oct.2013 Tapered Celexa down to 2.5mgOct.2013-Switched to 30 beads CymbaltaDec.4,2013-Stopped Cymbalta at 17 beads<p>Akathisia hit at 6 wks off and continuesNow taking melatonin when needed for sleep. Link to comment
luv2knit Posted April 10, 2015 Share Posted April 10, 2015 Ugh... Guess we really don't have any choice, huh?! I usually try to be more positive, but these last few weeks have gotten to me! Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day). Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired) Link to comment
OnaRage Posted April 10, 2015 Share Posted April 10, 2015 Hey Liz, Just wanted to say I've been thinking about you. I'm sending whatever positive thoughts I have left in this wave battered body to you! :-) Hang in there! Celexa 20 mg from 4/28/11 to 9/28/11 - RESULT - Didn't help enough. Was moved to a new medication. Med prescribed by PCP with diag of GAD and AD. Zoloft 50 mg from 9/29/11 to 10/17/11 - RESULT - Symptoms getting worse not better. Moved to a new medication Prozac 20 mg from 10/18/11 to 11/1/11 - RESULT - It made me homocidal. That was new to me! So fun! :-( Effexor 75 mg to 150 mg from 11/2/11 to 6/9/12 - RESULT - Requested increase in dose as a work situation triggered PTSD and severe depression Zoloft 25 mg to 150 mg from 7/9/12 to 11/6/12 Zoloft 200 mg from 11/7/12 to 5/13/13 - RESULT - Medication not working. Was graduated off this too quickly by an emergency PNP who diagnosed me as BP BUSPAR 30 mg from 1/4/13 to 5/13/13 - RESULT - one 10 mg tab 3x/day - RESULT - Severe hot flashes, lethargy, unable to function Lamictal 50 mg 4/17/13 to 5/13/13 - RESULT - new PNP told me Lamictal could kill me and that we needed to transition me off immediately. Tried again for three days in March 2015. Had severe chest pains on day 2 so quit taking. Dropped all meds after going to yet another psychiatrist who gave me yet another diagnosis of Borderline Personality Disorder and wanted to change meds again. Cymbalta 30 mg to 60 mg to 20 mg from 12/27/13 to 2/24/15 then stopped taking altogether until 3/23 when reinstated 10 beads. Ativan .5 to 1 mg as needed since 2011 (at least). Not a daily med. Used mostly during periods of detox from antidepressants. Stopped taking in March 2015 due to fear of dependency and risk of causing further depression. Link to comment
OnaRage Posted April 10, 2015 Share Posted April 10, 2015 Just came across this post by Morgan Freeman on Facebook - “It always seems impossible until it's done.” -Nelson Mandela Hang in there, Liz! Celexa 20 mg from 4/28/11 to 9/28/11 - RESULT - Didn't help enough. Was moved to a new medication. Med prescribed by PCP with diag of GAD and AD. Zoloft 50 mg from 9/29/11 to 10/17/11 - RESULT - Symptoms getting worse not better. Moved to a new medication Prozac 20 mg from 10/18/11 to 11/1/11 - RESULT - It made me homocidal. That was new to me! So fun! :-( Effexor 75 mg to 150 mg from 11/2/11 to 6/9/12 - RESULT - Requested increase in dose as a work situation triggered PTSD and severe depression Zoloft 25 mg to 150 mg from 7/9/12 to 11/6/12 Zoloft 200 mg from 11/7/12 to 5/13/13 - RESULT - Medication not working. Was graduated off this too quickly by an emergency PNP who diagnosed me as BP BUSPAR 30 mg from 1/4/13 to 5/13/13 - RESULT - one 10 mg tab 3x/day - RESULT - Severe hot flashes, lethargy, unable to function Lamictal 50 mg 4/17/13 to 5/13/13 - RESULT - new PNP told me Lamictal could kill me and that we needed to transition me off immediately. Tried again for three days in March 2015. Had severe chest pains on day 2 so quit taking. Dropped all meds after going to yet another psychiatrist who gave me yet another diagnosis of Borderline Personality Disorder and wanted to change meds again. Cymbalta 30 mg to 60 mg to 20 mg from 12/27/13 to 2/24/15 then stopped taking altogether until 3/23 when reinstated 10 beads. Ativan .5 to 1 mg as needed since 2011 (at least). Not a daily med. Used mostly during periods of detox from antidepressants. Stopped taking in March 2015 due to fear of dependency and risk of causing further depression. Link to comment
OnaRage Posted April 10, 2015 Share Posted April 10, 2015 And one more that had your name on it: Celexa 20 mg from 4/28/11 to 9/28/11 - RESULT - Didn't help enough. Was moved to a new medication. Med prescribed by PCP with diag of GAD and AD. Zoloft 50 mg from 9/29/11 to 10/17/11 - RESULT - Symptoms getting worse not better. Moved to a new medication Prozac 20 mg from 10/18/11 to 11/1/11 - RESULT - It made me homocidal. That was new to me! So fun! :-( Effexor 75 mg to 150 mg from 11/2/11 to 6/9/12 - RESULT - Requested increase in dose as a work situation triggered PTSD and severe depression Zoloft 25 mg to 150 mg from 7/9/12 to 11/6/12 Zoloft 200 mg from 11/7/12 to 5/13/13 - RESULT - Medication not working. Was graduated off this too quickly by an emergency PNP who diagnosed me as BP BUSPAR 30 mg from 1/4/13 to 5/13/13 - RESULT - one 10 mg tab 3x/day - RESULT - Severe hot flashes, lethargy, unable to function Lamictal 50 mg 4/17/13 to 5/13/13 - RESULT - new PNP told me Lamictal could kill me and that we needed to transition me off immediately. Tried again for three days in March 2015. Had severe chest pains on day 2 so quit taking. Dropped all meds after going to yet another psychiatrist who gave me yet another diagnosis of Borderline Personality Disorder and wanted to change meds again. Cymbalta 30 mg to 60 mg to 20 mg from 12/27/13 to 2/24/15 then stopped taking altogether until 3/23 when reinstated 10 beads. Ativan .5 to 1 mg as needed since 2011 (at least). Not a daily med. Used mostly during periods of detox from antidepressants. Stopped taking in March 2015 due to fear of dependency and risk of causing further depression. Link to comment
lundeliz Posted April 10, 2015 Author Share Posted April 10, 2015 I totally understand, luv. OnaRage, thank you for your support. I have read through your posts, and you have had quite a journey. I'm also sending you positive thoughts and wishing you the best. Lets hang in there and never give up. 2006-Cymbalta 60mg for lyme disease2009-Quit Cymbalta c/tFeb. 2010-Reinstated 60mg CymMar.2010 to May.2012 tapered Cym to 36mgMay 2012-Crossed over to 30mg CelexaMay 2012-Oct.2013 Tapered Celexa down to 2.5mgOct.2013-Switched to 30 beads CymbaltaDec.4,2013-Stopped Cymbalta at 17 beads<p>Akathisia hit at 6 wks off and continuesNow taking melatonin when needed for sleep. Link to comment
lundeliz Posted April 10, 2015 Author Share Posted April 10, 2015 Thanks OnaRage, I like those!! 2006-Cymbalta 60mg for lyme disease2009-Quit Cymbalta c/tFeb. 2010-Reinstated 60mg CymMar.2010 to May.2012 tapered Cym to 36mgMay 2012-Crossed over to 30mg CelexaMay 2012-Oct.2013 Tapered Celexa down to 2.5mgOct.2013-Switched to 30 beads CymbaltaDec.4,2013-Stopped Cymbalta at 17 beads<p>Akathisia hit at 6 wks off and continuesNow taking melatonin when needed for sleep. Link to comment
Pugknows Posted April 10, 2015 Share Posted April 10, 2015 I'm 61 Liz. Never thought I'd end up in a mess like this. Everything gets me revved up too, good or bad, doesn't matter. Where's the bubble I need to live in for awhile? You are very strong. Just keep fighting the fight. We'll all make it to the greener grass. January 2012 - Prescribed 900mg gabapentin and 30mg Norco for lower lumber spinal stenosis pain. September 2013 - Spinal fusion surgery, 6 levels. Hospital ramped up meds 1500mg gabapentin, 100mg Norco, 80mg Oxycontin, 25mg Fentanyl patch. January 2014 - Sever nausea daily and with back pain every 4 hours. 2 trips to ER. First endoscopy found ulcer. Treated with Sucralfate and PPI. Second endo in May found no ulcers. Doctors said it was the opiates causing the nausea. CT'd Oxycontin, Fentanyl patch. July 2014 - Lost 48 lbs. due to not eating because of severe nausea. GP prescribed Prozac 20mg and Ativan 2mg prn. Tried for 4 days, quit. Two week followup GP said keep taking Prozac. 4 days, quit again. Ativan taken rarely prn for anxiety and appetite. August 2014 - Went to detox. Off opiates. Still nauseous, helmet head, drugged feeling. Doctor CT'd gabapentin. Ended up in ER. Found 2 gallstones. Gabapentin reinstated at 900mg. Tried botched up and down taper to get off Gabapentin. No tapering advice from doctor. Said to just CT again. September 2014 - Coded on table during gallbladder surgery. Developed liver biloma due to CPR by doctor. Had bile bulb inserted for 2 wks to drain. October 2014 - Gallbladder removed. Still nauseous, 3am cortisol surging, drugged helmet head, vertigo, breathlessness, whooshing head, heart palps. November 8th, 2014 - CT'd gabapentin suggested by family and 4 different doctors. Was told no withdrawal is associated with gabapentin. Have been in hell ever since. No windows, just one big tsunami every day with same symptoms for 4 months. December 26, 2014 - Found SA. At least I know I'm not insane. My family thinks I'm doing this to myself. Akathesia has become unbearable. March 10, 2015 - In absolute daily hell with no relief. Currently taking magnesium 200mg before bedtime. Link to comment
lundeliz Posted April 10, 2015 Author Share Posted April 10, 2015 Oh thank you Pug. I need a bubble too, but with enough room to pace. This wave is so so strong that it really scares me. Thank you for saying we will make it. I'm not giving up and if I reach a window after this horrendous wave, I will feel encouraged. Trying to hang on till it comes. Let's all hang on on and beat this. 2006-Cymbalta 60mg for lyme disease2009-Quit Cymbalta c/tFeb. 2010-Reinstated 60mg CymMar.2010 to May.2012 tapered Cym to 36mgMay 2012-Crossed over to 30mg CelexaMay 2012-Oct.2013 Tapered Celexa down to 2.5mgOct.2013-Switched to 30 beads CymbaltaDec.4,2013-Stopped Cymbalta at 17 beads<p>Akathisia hit at 6 wks off and continuesNow taking melatonin when needed for sleep. Link to comment
Pugknows Posted April 10, 2015 Share Posted April 10, 2015 My bubble has a pacing track. I put 20 miles of pacing on the pedometer daily. January 2012 - Prescribed 900mg gabapentin and 30mg Norco for lower lumber spinal stenosis pain. September 2013 - Spinal fusion surgery, 6 levels. Hospital ramped up meds 1500mg gabapentin, 100mg Norco, 80mg Oxycontin, 25mg Fentanyl patch. January 2014 - Sever nausea daily and with back pain every 4 hours. 2 trips to ER. First endoscopy found ulcer. Treated with Sucralfate and PPI. Second endo in May found no ulcers. Doctors said it was the opiates causing the nausea. CT'd Oxycontin, Fentanyl patch. July 2014 - Lost 48 lbs. due to not eating because of severe nausea. GP prescribed Prozac 20mg and Ativan 2mg prn. Tried for 4 days, quit. Two week followup GP said keep taking Prozac. 4 days, quit again. Ativan taken rarely prn for anxiety and appetite. August 2014 - Went to detox. Off opiates. Still nauseous, helmet head, drugged feeling. Doctor CT'd gabapentin. Ended up in ER. Found 2 gallstones. Gabapentin reinstated at 900mg. Tried botched up and down taper to get off Gabapentin. No tapering advice from doctor. Said to just CT again. September 2014 - Coded on table during gallbladder surgery. Developed liver biloma due to CPR by doctor. Had bile bulb inserted for 2 wks to drain. October 2014 - Gallbladder removed. Still nauseous, 3am cortisol surging, drugged helmet head, vertigo, breathlessness, whooshing head, heart palps. November 8th, 2014 - CT'd gabapentin suggested by family and 4 different doctors. Was told no withdrawal is associated with gabapentin. Have been in hell ever since. No windows, just one big tsunami every day with same symptoms for 4 months. December 26, 2014 - Found SA. At least I know I'm not insane. My family thinks I'm doing this to myself. Akathesia has become unbearable. March 10, 2015 - In absolute daily hell with no relief. Currently taking magnesium 200mg before bedtime. Link to comment
lundeliz Posted April 10, 2015 Author Share Posted April 10, 2015 I like your bubble. I want one! 2006-Cymbalta 60mg for lyme disease2009-Quit Cymbalta c/tFeb. 2010-Reinstated 60mg CymMar.2010 to May.2012 tapered Cym to 36mgMay 2012-Crossed over to 30mg CelexaMay 2012-Oct.2013 Tapered Celexa down to 2.5mgOct.2013-Switched to 30 beads CymbaltaDec.4,2013-Stopped Cymbalta at 17 beads<p>Akathisia hit at 6 wks off and continuesNow taking melatonin when needed for sleep. Link to comment
Pugknows Posted April 10, 2015 Share Posted April 10, 2015 Amazon. Hahahaaaa. January 2012 - Prescribed 900mg gabapentin and 30mg Norco for lower lumber spinal stenosis pain. September 2013 - Spinal fusion surgery, 6 levels. Hospital ramped up meds 1500mg gabapentin, 100mg Norco, 80mg Oxycontin, 25mg Fentanyl patch. January 2014 - Sever nausea daily and with back pain every 4 hours. 2 trips to ER. First endoscopy found ulcer. Treated with Sucralfate and PPI. Second endo in May found no ulcers. Doctors said it was the opiates causing the nausea. CT'd Oxycontin, Fentanyl patch. July 2014 - Lost 48 lbs. due to not eating because of severe nausea. GP prescribed Prozac 20mg and Ativan 2mg prn. Tried for 4 days, quit. Two week followup GP said keep taking Prozac. 4 days, quit again. Ativan taken rarely prn for anxiety and appetite. August 2014 - Went to detox. Off opiates. Still nauseous, helmet head, drugged feeling. Doctor CT'd gabapentin. Ended up in ER. Found 2 gallstones. Gabapentin reinstated at 900mg. Tried botched up and down taper to get off Gabapentin. No tapering advice from doctor. Said to just CT again. September 2014 - Coded on table during gallbladder surgery. Developed liver biloma due to CPR by doctor. Had bile bulb inserted for 2 wks to drain. October 2014 - Gallbladder removed. Still nauseous, 3am cortisol surging, drugged helmet head, vertigo, breathlessness, whooshing head, heart palps. November 8th, 2014 - CT'd gabapentin suggested by family and 4 different doctors. Was told no withdrawal is associated with gabapentin. Have been in hell ever since. No windows, just one big tsunami every day with same symptoms for 4 months. December 26, 2014 - Found SA. At least I know I'm not insane. My family thinks I'm doing this to myself. Akathesia has become unbearable. March 10, 2015 - In absolute daily hell with no relief. Currently taking magnesium 200mg before bedtime. Link to comment
OnaRage Posted April 10, 2015 Share Posted April 10, 2015 The beginning of the week was particularly bad for me. I was suicidal again and couldn't get myself moving at all. I thought I wasn't going to come out of it but I did. It always seems like the waves last forever and you feel like you have no hope. That's what the waves are. They're a hopeless, drowning feeling. But my window came. It's not a big one but I'll take it! As long as I keep my bubble, my window will have a chance. But if my bubble bursts, my window will disappear. Your window will come again, Liz. It's closer than you think. Celexa 20 mg from 4/28/11 to 9/28/11 - RESULT - Didn't help enough. Was moved to a new medication. Med prescribed by PCP with diag of GAD and AD. Zoloft 50 mg from 9/29/11 to 10/17/11 - RESULT - Symptoms getting worse not better. Moved to a new medication Prozac 20 mg from 10/18/11 to 11/1/11 - RESULT - It made me homocidal. That was new to me! So fun! :-( Effexor 75 mg to 150 mg from 11/2/11 to 6/9/12 - RESULT - Requested increase in dose as a work situation triggered PTSD and severe depression Zoloft 25 mg to 150 mg from 7/9/12 to 11/6/12 Zoloft 200 mg from 11/7/12 to 5/13/13 - RESULT - Medication not working. Was graduated off this too quickly by an emergency PNP who diagnosed me as BP BUSPAR 30 mg from 1/4/13 to 5/13/13 - RESULT - one 10 mg tab 3x/day - RESULT - Severe hot flashes, lethargy, unable to function Lamictal 50 mg 4/17/13 to 5/13/13 - RESULT - new PNP told me Lamictal could kill me and that we needed to transition me off immediately. Tried again for three days in March 2015. Had severe chest pains on day 2 so quit taking. Dropped all meds after going to yet another psychiatrist who gave me yet another diagnosis of Borderline Personality Disorder and wanted to change meds again. Cymbalta 30 mg to 60 mg to 20 mg from 12/27/13 to 2/24/15 then stopped taking altogether until 3/23 when reinstated 10 beads. Ativan .5 to 1 mg as needed since 2011 (at least). Not a daily med. Used mostly during periods of detox from antidepressants. Stopped taking in March 2015 due to fear of dependency and risk of causing further depression. Link to comment
lundeliz Posted April 10, 2015 Author Share Posted April 10, 2015 Thank you so much OnaRage. I appreciate your encouragement so much. So glad to hear you are having windows. That's very encouraging. We will make it! 2006-Cymbalta 60mg for lyme disease2009-Quit Cymbalta c/tFeb. 2010-Reinstated 60mg CymMar.2010 to May.2012 tapered Cym to 36mgMay 2012-Crossed over to 30mg CelexaMay 2012-Oct.2013 Tapered Celexa down to 2.5mgOct.2013-Switched to 30 beads CymbaltaDec.4,2013-Stopped Cymbalta at 17 beads<p>Akathisia hit at 6 wks off and continuesNow taking melatonin when needed for sleep. Link to comment
lundeliz Posted April 13, 2015 Author Share Posted April 13, 2015 I can't say I'm in a window, but I haven't had the pacing for four days. I don't feel in a window, because I have debilitating headache and pressure now. I'm very thankful for the break from the akathisia, but wow, can't exactly enjoy it. Has anyone else had wd progress like this, one thing goes away, but replaced with something different but just as severe? Almost makes me afraid to wish the headache would go away. Grrrrrrr 2006-Cymbalta 60mg for lyme disease2009-Quit Cymbalta c/tFeb. 2010-Reinstated 60mg CymMar.2010 to May.2012 tapered Cym to 36mgMay 2012-Crossed over to 30mg CelexaMay 2012-Oct.2013 Tapered Celexa down to 2.5mgOct.2013-Switched to 30 beads CymbaltaDec.4,2013-Stopped Cymbalta at 17 beads<p>Akathisia hit at 6 wks off and continuesNow taking melatonin when needed for sleep. Link to comment
OnaRage Posted April 13, 2015 Share Posted April 13, 2015 Oh, Liz, I'm so sorry. Those headaches are the worst! Celexa 20 mg from 4/28/11 to 9/28/11 - RESULT - Didn't help enough. Was moved to a new medication. Med prescribed by PCP with diag of GAD and AD. Zoloft 50 mg from 9/29/11 to 10/17/11 - RESULT - Symptoms getting worse not better. Moved to a new medication Prozac 20 mg from 10/18/11 to 11/1/11 - RESULT - It made me homocidal. That was new to me! So fun! :-( Effexor 75 mg to 150 mg from 11/2/11 to 6/9/12 - RESULT - Requested increase in dose as a work situation triggered PTSD and severe depression Zoloft 25 mg to 150 mg from 7/9/12 to 11/6/12 Zoloft 200 mg from 11/7/12 to 5/13/13 - RESULT - Medication not working. Was graduated off this too quickly by an emergency PNP who diagnosed me as BP BUSPAR 30 mg from 1/4/13 to 5/13/13 - RESULT - one 10 mg tab 3x/day - RESULT - Severe hot flashes, lethargy, unable to function Lamictal 50 mg 4/17/13 to 5/13/13 - RESULT - new PNP told me Lamictal could kill me and that we needed to transition me off immediately. Tried again for three days in March 2015. Had severe chest pains on day 2 so quit taking. Dropped all meds after going to yet another psychiatrist who gave me yet another diagnosis of Borderline Personality Disorder and wanted to change meds again. Cymbalta 30 mg to 60 mg to 20 mg from 12/27/13 to 2/24/15 then stopped taking altogether until 3/23 when reinstated 10 beads. Ativan .5 to 1 mg as needed since 2011 (at least). Not a daily med. Used mostly during periods of detox from antidepressants. Stopped taking in March 2015 due to fear of dependency and risk of causing further depression. Link to comment
lundeliz Posted April 14, 2015 Author Share Posted April 14, 2015 Thanks OnaRage, have you had this kind of headache? All these symptoms are so scary when you are going through them. My vision is so blurry too. 2006-Cymbalta 60mg for lyme disease2009-Quit Cymbalta c/tFeb. 2010-Reinstated 60mg CymMar.2010 to May.2012 tapered Cym to 36mgMay 2012-Crossed over to 30mg CelexaMay 2012-Oct.2013 Tapered Celexa down to 2.5mgOct.2013-Switched to 30 beads CymbaltaDec.4,2013-Stopped Cymbalta at 17 beads<p>Akathisia hit at 6 wks off and continuesNow taking melatonin when needed for sleep. Link to comment
OnaRage Posted April 14, 2015 Share Posted April 14, 2015 When I went through my first round of withdrawals after my CT jump off, I had those headaches. I still have headaches but they're more mild. I have akathisia too but never so bad that I felt I had to pace. Though, often I just can't get comfortable. I couldn't imagine having it that bad. I really feel for you. All of these symptoms are not only scary, they're horrifying. I'm just incredulous that our experiences are not recognized as a legitimate problem by the medical community. It's the worst kind of betrayal! Celexa 20 mg from 4/28/11 to 9/28/11 - RESULT - Didn't help enough. Was moved to a new medication. Med prescribed by PCP with diag of GAD and AD. Zoloft 50 mg from 9/29/11 to 10/17/11 - RESULT - Symptoms getting worse not better. Moved to a new medication Prozac 20 mg from 10/18/11 to 11/1/11 - RESULT - It made me homocidal. That was new to me! So fun! :-( Effexor 75 mg to 150 mg from 11/2/11 to 6/9/12 - RESULT - Requested increase in dose as a work situation triggered PTSD and severe depression Zoloft 25 mg to 150 mg from 7/9/12 to 11/6/12 Zoloft 200 mg from 11/7/12 to 5/13/13 - RESULT - Medication not working. Was graduated off this too quickly by an emergency PNP who diagnosed me as BP BUSPAR 30 mg from 1/4/13 to 5/13/13 - RESULT - one 10 mg tab 3x/day - RESULT - Severe hot flashes, lethargy, unable to function Lamictal 50 mg 4/17/13 to 5/13/13 - RESULT - new PNP told me Lamictal could kill me and that we needed to transition me off immediately. Tried again for three days in March 2015. Had severe chest pains on day 2 so quit taking. Dropped all meds after going to yet another psychiatrist who gave me yet another diagnosis of Borderline Personality Disorder and wanted to change meds again. Cymbalta 30 mg to 60 mg to 20 mg from 12/27/13 to 2/24/15 then stopped taking altogether until 3/23 when reinstated 10 beads. Ativan .5 to 1 mg as needed since 2011 (at least). Not a daily med. Used mostly during periods of detox from antidepressants. Stopped taking in March 2015 due to fear of dependency and risk of causing further depression. Link to comment
lundeliz Posted April 14, 2015 Author Share Posted April 14, 2015 Yeah, it's hard to believe we are all going through this horrifying experience and nobody even has a clue. Surely one day it will be recognized. It's a very lonely place to be. 2006-Cymbalta 60mg for lyme disease2009-Quit Cymbalta c/tFeb. 2010-Reinstated 60mg CymMar.2010 to May.2012 tapered Cym to 36mgMay 2012-Crossed over to 30mg CelexaMay 2012-Oct.2013 Tapered Celexa down to 2.5mgOct.2013-Switched to 30 beads CymbaltaDec.4,2013-Stopped Cymbalta at 17 beads<p>Akathisia hit at 6 wks off and continuesNow taking melatonin when needed for sleep. Link to comment
luv2knit Posted April 14, 2015 Share Posted April 14, 2015 With Chronic Fatigue Syndrome, I don't have the energy to pace. I can barely stand. I've exhausted one rocker, and am working on another one!! Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day). Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired) Link to comment
luv2knit Posted April 14, 2015 Share Posted April 14, 2015 My bubble has a pacing track. I put 20 miles of pacing on the pedometer daily. Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day). Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired) Link to comment
lundeliz Posted April 16, 2015 Author Share Posted April 16, 2015 Well, it feels like a new wave has hit. I'm seeing a worsening of symptoms, so calling it a wave. I had six days with no pacing, but I had a night with little sleep, pounding headache, nausea, heart palps, and agitation. Diarrhea is back. I feel weak and shaky. The mental turmoil had settled down the last few days, but feeling pretty unsettled this morning. I'm struggling to keep up the hope and trying to understand why I've taken such a bad turn at 16 months off. Time is just dragging right now. I'm so praying that time will see an end to this for us all. 2006-Cymbalta 60mg for lyme disease2009-Quit Cymbalta c/tFeb. 2010-Reinstated 60mg CymMar.2010 to May.2012 tapered Cym to 36mgMay 2012-Crossed over to 30mg CelexaMay 2012-Oct.2013 Tapered Celexa down to 2.5mgOct.2013-Switched to 30 beads CymbaltaDec.4,2013-Stopped Cymbalta at 17 beads<p>Akathisia hit at 6 wks off and continuesNow taking melatonin when needed for sleep. Link to comment
SelmaLady Posted April 16, 2015 Share Posted April 16, 2015 Same thing here: awful symptoms after 6 days of good relief. So disheartening isn't it? But I know that the brain is still working hard on trying to get back to a balanced state even when it seems that its abandoned the effort!! The headaches sound so bad and all the rest that shows an agitated system. But this you can know that you have put in many months towards healing and they are building into a time of secure recovery. Am praying that you find ways to get through this turbulent reconstruction. xoxo 1971-81 Valium 5mg c/t PAWS 1992- through now Zoloft 25mg 2003-05 Valium 12mg Slow Taper Off 2013 Afrin Exposure to CNS 2013 O/D Val 230mg 2013 Doxepin 50mg Clonidine 2mg Zoloft 25mg 3/15/16 Doxepin 49mg Micro Tapering Zoloft 24.3mg Holding taper 3/15/16 Clonidine mg 0.1 1/2 - Decreasing incrementally. DISCONTINUED 10/9/16 Doxepin 48.9 Zoloft 24.3 Clonidine 01.10 Continuing micro taper on Doxepin. 11/16/16 Doxepin 48mg Zoloft 24.3mg Clonidine 1.30mg 5/4/17 Doxepin 45mg Zoloft 24mg Clonidine 1.20mg Micro taper of Doxepin , Clonidine 01/13/19 Doxepin 45mg Zoloft 21mg Will start Micro taper of Doxepin 2/19 12/21/21 Doxepin 20 mg ? Reducing using water micro taper--Pulling 24ml from 75ml 12/2121 Zoloft .060 grams by weight--HOLDING (info from post added by CC: On 12/21/21 my dosage was .060grams by weight or 20mg. ) 26 Apr 2022 - Zoloft at -0- Link to comment
lundeliz Posted April 16, 2015 Author Share Posted April 16, 2015 Thank you so much for the comforting words SL. Yes, it's very disheartening, and I have a hard time just accepting that the brain is working on healing. I'm glad you also had a better 6 days. Thank you for the prayers, and I'm also praying that you find relief soon. 2006-Cymbalta 60mg for lyme disease2009-Quit Cymbalta c/tFeb. 2010-Reinstated 60mg CymMar.2010 to May.2012 tapered Cym to 36mgMay 2012-Crossed over to 30mg CelexaMay 2012-Oct.2013 Tapered Celexa down to 2.5mgOct.2013-Switched to 30 beads CymbaltaDec.4,2013-Stopped Cymbalta at 17 beads<p>Akathisia hit at 6 wks off and continuesNow taking melatonin when needed for sleep. Link to comment
OnaRage Posted April 16, 2015 Share Posted April 16, 2015 I'm back in a window and wanted to tell you that I know yours will come back too. Monday and Tuesday for me were filled with darkness and thoughts that suicide was a good option. Today... sigh... so peaceful! Yours will come Liz! Hang in there! I'm sending some of our fabulous weather and beautiful blooming azaleas and tulips your way! Celexa 20 mg from 4/28/11 to 9/28/11 - RESULT - Didn't help enough. Was moved to a new medication. Med prescribed by PCP with diag of GAD and AD. Zoloft 50 mg from 9/29/11 to 10/17/11 - RESULT - Symptoms getting worse not better. Moved to a new medication Prozac 20 mg from 10/18/11 to 11/1/11 - RESULT - It made me homocidal. That was new to me! So fun! :-( Effexor 75 mg to 150 mg from 11/2/11 to 6/9/12 - RESULT - Requested increase in dose as a work situation triggered PTSD and severe depression Zoloft 25 mg to 150 mg from 7/9/12 to 11/6/12 Zoloft 200 mg from 11/7/12 to 5/13/13 - RESULT - Medication not working. Was graduated off this too quickly by an emergency PNP who diagnosed me as BP BUSPAR 30 mg from 1/4/13 to 5/13/13 - RESULT - one 10 mg tab 3x/day - RESULT - Severe hot flashes, lethargy, unable to function Lamictal 50 mg 4/17/13 to 5/13/13 - RESULT - new PNP told me Lamictal could kill me and that we needed to transition me off immediately. Tried again for three days in March 2015. Had severe chest pains on day 2 so quit taking. Dropped all meds after going to yet another psychiatrist who gave me yet another diagnosis of Borderline Personality Disorder and wanted to change meds again. Cymbalta 30 mg to 60 mg to 20 mg from 12/27/13 to 2/24/15 then stopped taking altogether until 3/23 when reinstated 10 beads. Ativan .5 to 1 mg as needed since 2011 (at least). Not a daily med. Used mostly during periods of detox from antidepressants. Stopped taking in March 2015 due to fear of dependency and risk of causing further depression. Link to comment
lundeliz Posted April 17, 2015 Author Share Posted April 17, 2015 Yay, OnaRage, so glad you are in a window! Hope it's a nice loooong one! Thanks for the kind thoughts and the blooming azaleas and tulips sound beautiful. Thank you. 2006-Cymbalta 60mg for lyme disease2009-Quit Cymbalta c/tFeb. 2010-Reinstated 60mg CymMar.2010 to May.2012 tapered Cym to 36mgMay 2012-Crossed over to 30mg CelexaMay 2012-Oct.2013 Tapered Celexa down to 2.5mgOct.2013-Switched to 30 beads CymbaltaDec.4,2013-Stopped Cymbalta at 17 beads<p>Akathisia hit at 6 wks off and continuesNow taking melatonin when needed for sleep. Link to comment
OnaRage Posted April 17, 2015 Share Posted April 17, 2015 I'm thinking about you every day and sending good thoughts your way! Hey, that rhymed! Celexa 20 mg from 4/28/11 to 9/28/11 - RESULT - Didn't help enough. Was moved to a new medication. Med prescribed by PCP with diag of GAD and AD. Zoloft 50 mg from 9/29/11 to 10/17/11 - RESULT - Symptoms getting worse not better. Moved to a new medication Prozac 20 mg from 10/18/11 to 11/1/11 - RESULT - It made me homocidal. That was new to me! So fun! :-( Effexor 75 mg to 150 mg from 11/2/11 to 6/9/12 - RESULT - Requested increase in dose as a work situation triggered PTSD and severe depression Zoloft 25 mg to 150 mg from 7/9/12 to 11/6/12 Zoloft 200 mg from 11/7/12 to 5/13/13 - RESULT - Medication not working. Was graduated off this too quickly by an emergency PNP who diagnosed me as BP BUSPAR 30 mg from 1/4/13 to 5/13/13 - RESULT - one 10 mg tab 3x/day - RESULT - Severe hot flashes, lethargy, unable to function Lamictal 50 mg 4/17/13 to 5/13/13 - RESULT - new PNP told me Lamictal could kill me and that we needed to transition me off immediately. Tried again for three days in March 2015. Had severe chest pains on day 2 so quit taking. Dropped all meds after going to yet another psychiatrist who gave me yet another diagnosis of Borderline Personality Disorder and wanted to change meds again. Cymbalta 30 mg to 60 mg to 20 mg from 12/27/13 to 2/24/15 then stopped taking altogether until 3/23 when reinstated 10 beads. Ativan .5 to 1 mg as needed since 2011 (at least). Not a daily med. Used mostly during periods of detox from antidepressants. Stopped taking in March 2015 due to fear of dependency and risk of causing further depression. Link to comment
lundeliz Posted April 17, 2015 Author Share Posted April 17, 2015 Oh, thank you, OnaRage. I appreciate it very much. I'm keeping up with you on your thread. Hope things continue to just get better and better! 2006-Cymbalta 60mg for lyme disease2009-Quit Cymbalta c/tFeb. 2010-Reinstated 60mg CymMar.2010 to May.2012 tapered Cym to 36mgMay 2012-Crossed over to 30mg CelexaMay 2012-Oct.2013 Tapered Celexa down to 2.5mgOct.2013-Switched to 30 beads CymbaltaDec.4,2013-Stopped Cymbalta at 17 beads<p>Akathisia hit at 6 wks off and continuesNow taking melatonin when needed for sleep. Link to comment
luv2knit Posted April 17, 2015 Share Posted April 17, 2015 Thinking about you, Liz, and praying you have a window soon! Sorry I haven't been around. I'm going through a rough patch right now, too. Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day). Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired) Link to comment
lundeliz Posted April 17, 2015 Author Share Posted April 17, 2015 Thank you luv. I know you are having a rough time right now. I hope things get better very soon. We have to hold on for the better times. 2006-Cymbalta 60mg for lyme disease2009-Quit Cymbalta c/tFeb. 2010-Reinstated 60mg CymMar.2010 to May.2012 tapered Cym to 36mgMay 2012-Crossed over to 30mg CelexaMay 2012-Oct.2013 Tapered Celexa down to 2.5mgOct.2013-Switched to 30 beads CymbaltaDec.4,2013-Stopped Cymbalta at 17 beads<p>Akathisia hit at 6 wks off and continuesNow taking melatonin when needed for sleep. Link to comment
OnaRage Posted April 21, 2015 Share Posted April 21, 2015 Hey Liz, Just checking in. How are you doing? Celexa 20 mg from 4/28/11 to 9/28/11 - RESULT - Didn't help enough. Was moved to a new medication. Med prescribed by PCP with diag of GAD and AD. Zoloft 50 mg from 9/29/11 to 10/17/11 - RESULT - Symptoms getting worse not better. Moved to a new medication Prozac 20 mg from 10/18/11 to 11/1/11 - RESULT - It made me homocidal. That was new to me! So fun! :-( Effexor 75 mg to 150 mg from 11/2/11 to 6/9/12 - RESULT - Requested increase in dose as a work situation triggered PTSD and severe depression Zoloft 25 mg to 150 mg from 7/9/12 to 11/6/12 Zoloft 200 mg from 11/7/12 to 5/13/13 - RESULT - Medication not working. Was graduated off this too quickly by an emergency PNP who diagnosed me as BP BUSPAR 30 mg from 1/4/13 to 5/13/13 - RESULT - one 10 mg tab 3x/day - RESULT - Severe hot flashes, lethargy, unable to function Lamictal 50 mg 4/17/13 to 5/13/13 - RESULT - new PNP told me Lamictal could kill me and that we needed to transition me off immediately. Tried again for three days in March 2015. Had severe chest pains on day 2 so quit taking. Dropped all meds after going to yet another psychiatrist who gave me yet another diagnosis of Borderline Personality Disorder and wanted to change meds again. Cymbalta 30 mg to 60 mg to 20 mg from 12/27/13 to 2/24/15 then stopped taking altogether until 3/23 when reinstated 10 beads. Ativan .5 to 1 mg as needed since 2011 (at least). Not a daily med. Used mostly during periods of detox from antidepressants. Stopped taking in March 2015 due to fear of dependency and risk of causing further depression. Link to comment
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