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India: withdrawal (dissociation) after 9 years on citalopram


India

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Let us know how the MRI turns out India.  Take care. 

1993-2000: Zoloft few months CT, Prozac 1-2 yrs, Ritalin PRN

2002/2003: Wellbutrin,  Paxil 25mg FT, and Xanax PRN CT (all 3 to 6 months), Adderal 40mg, Strattera 40mg

2003- 2016: Effexor XR 75 mg to 150 mg., Strattera (2002-2008)

2017: Effexor XR 225 mg. Gabapentin 300 mg. Elavil 25 mg.

2018: (Sept.) Effexor XR 187.5 mg, Zoloft 10 mg. (OCT.) FT off Gabapentin (NOV.) FT off Elavil (DEC) FT Effexor to 150 mg.

2019: (JAN.) D/C Zoloft, added Viibryd 10mg (FEB) CT Viibryd, (MAR) Prozac bridge, Effexor xr 112.5mg, (Sept.) Effexor XR 112.5 mg + 0.4 mg (1 bead), (Oct.) Effexor XR 112.5mg, (Dec.28) start 10% taper Effexor XR 101.25 mg, 

2020: (Jan. 25) Effexor XR 91 mg., (Feb. 22) Effexor xr 82 mg., (Mar. 21) 75 mg. 

Supplements:  Vitamin D 5000 IU topical, Probiotic 6 billion CFU, Epsom salt bath 1C 2 to 3 X week, California Poppy 2 droppers, various essential oils 

https://www.survivingantidepressants.org/topic/21446-superwoman-effexor-taper/page/8/?tab=comments#comment-475779

 

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  • Moderator

Hey India, good luck with the scans.  I hope whatever's ailing you is transient.

I am not a health professional - your actions are your own.  

Please do not seek tapering support via private message - "Any reason to hold is a good one"

My taper visualised as a graph   |   My intro thread

Backdrop:  2003 10mg olanzapine | 2004 2-3mg risperidone | end 2014 3wks aripiprazole

2015: olanzapine  10 -> 7½ -> 6⅔ -> 5mg  by crude pill cutter

2018:  Mar 5.00mg -> water titrated taper -> Aug2.5mg tablet and hold

Jan 2019 2.50mg water titration -> Jan 2020 1.214  -> Jan 2021 0.44 -> 2 Oct 0.205 ->3 Oct ZERO🥂

Jun 2023 💉150mg paliperidone "loading" depot shot, 100mg 1wk after Jul 100mg Aug-Dec 75mg/4wks

Jul 2023 2.50mg aripiprazole/day attempt to lower prolactin^

Jan-Feb 2024 cross taper off shots to 1mg risperidone

 

Ask not what you can do for your country, but what your country did to you"  -- KMFDM

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  • 3 weeks later...

@Superwoman and @hayduke just logged in. Thank you so much for your support. As Covid-18 situation really  hit just after MRI, I suspect it may be 6 months before I get my results. Most people in WD seem to come up with a clear MRI. Cognitive struggles still there. As you  all know, it's hard, the grief is always there, the symptoms contain a grief, they keep you locked, they are a continued reminder of the prison you cannot escape. The wasted years that could have been full, full to the brim. Yes, I struggle with acceptance. I think I always will.We all hope for a miracle. Screen too bright, arms detached from brain ( rest of body too).

1999:  Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse  reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months.                     2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects)

2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg  (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram  2mg ,  approx 16th Sept 4mg , approx 25th Sept 6mg held.  2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg 7 May 22 2.31mg 17/09/2023 0.8mg

(Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts)

I did not die, and yet I lost life’s breath
- Dante
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  • 3 weeks later...
  • Moderator

Hey India, hope things start to improve soon.

 

Try not to fixate on physical damage, better to focus on healing as best you can.  Let your body do its thing

 

Upside to covid-19 situation is not having to leave the house much during wds!

 

Have you read

 

I am not a health professional - your actions are your own.  

Please do not seek tapering support via private message - "Any reason to hold is a good one"

My taper visualised as a graph   |   My intro thread

Backdrop:  2003 10mg olanzapine | 2004 2-3mg risperidone | end 2014 3wks aripiprazole

2015: olanzapine  10 -> 7½ -> 6⅔ -> 5mg  by crude pill cutter

2018:  Mar 5.00mg -> water titrated taper -> Aug2.5mg tablet and hold

Jan 2019 2.50mg water titration -> Jan 2020 1.214  -> Jan 2021 0.44 -> 2 Oct 0.205 ->3 Oct ZERO🥂

Jun 2023 💉150mg paliperidone "loading" depot shot, 100mg 1wk after Jul 100mg Aug-Dec 75mg/4wks

Jul 2023 2.50mg aripiprazole/day attempt to lower prolactin^

Jan-Feb 2024 cross taper off shots to 1mg risperidone

 

Ask not what you can do for your country, but what your country did to you"  -- KMFDM

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Wooly brain-fogged head and no worse , yet no better. Life suspended. Beyond good and bad I suppose. This is the new normal of nearly 2 years.

i tend to find i cannot ignore the shadow side and have always tended towards writing it for therapeutic and cathartic reasons. But it’s a bete noire for many, I know. And @hayduke I appreciate you are gently directing me towards a different focus..

I do see the validity in this.

i suppose this is an outlet. The experience is very circular. Part of it all, the nature of it. 

Tiny tiny progress in the sense of not going backwards.

1999:  Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse  reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months.                     2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects)

2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg  (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram  2mg ,  approx 16th Sept 4mg , approx 25th Sept 6mg held.  2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg 7 May 22 2.31mg 17/09/2023 0.8mg

(Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts)

I did not die, and yet I lost life’s breath
- Dante
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In a terrible wave again. 

1999:  Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse  reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months.                     2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects)

2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg  (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram  2mg ,  approx 16th Sept 4mg , approx 25th Sept 6mg held.  2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg 7 May 22 2.31mg 17/09/2023 0.8mg

(Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts)

I did not die, and yet I lost life’s breath
- Dante
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On 4/29/2020 at 3:47 PM, India said:

In a terrible wave again. 

 

Hi India, sending you good wishes and strength, as much as I can through the ether. I can so relate to what you wrote about 'the new normal' of two years, above...similar time frame for me.

And in another two years, there will be another 'new normal.' Life constantly moves and changes. 

Wishing this wave ends for you very soon :) 

January 2008 to April 2015 Citalopram 20mg to 5mg, reducing in 50 per cent leaps. Jumped off at 5mg

March 2016 used MDMA triggered setback

April 2016 Citalopram 10mg October 2016 cut to 5mg, May 2017 cut to 2.5mg

May 2018 used MDMA triggered setback

June 2018 Citalopram 2.5mg up to 10mg, then back to 5mg

July/ August 2018 7.5mg, then 10mg

June 2019 updosed to 20mg Citalopram

August 2019 cold switch to Venlafaxine 75mg XR

Supplements; 1100mg fish oil daily; also 100mg Magnesium Glycinate. Tried Vagifem 10mcg from mid May 2021 to mid June 2021; caused depression, so stopped.

 

 

 

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India, I'm sorry you're having such a complex and protracted experience.

 

I'm writing to thank you for your response to my introductory post in February. You were very kind to do so. Although I didn't fully articulate the medication-related destabilization I've experienced for decades, I did describe the intensity of my reaction to my mom's death last year.

 

In response, you recommended Carl Rogers and a humanistic approach to therapy. It's funny you did so. One day, years ago, c. 1998, I devoured one of his books (metaphorically-speaking) over the course of several hours in a Manhattan Barnes & Noble - a reading strategy I've utilized for decades! His philosophy resonates w/ me to this day.

 

Also, I see you're in London. My mom loved London, as do I, although I haven't thought about it much since medication hijacked my life decades ago. (Throughout high school, a London Tube map adorned my bedroom wall). In fact, I lived there as a child w/ my family (Frognal Lane, Hampstead) and later as a student, several decades ago! (49 Harrington Gardens, SW7).

 

I've scanned your recent posts, so I can't respond to your entire experience. However, your underlying distress is palpable.

 

Q: Have you ever used a compounding pharmacy?

 

They're capable of formulating a discontinuation dose with far greater precision than any individual can from the safety of his or her home. Doing so does not guarantee a smoother transition. Several years ago, I utilized a compounder to manufacture Effexor XR in incremental doses from 150 to 75 mg. However, I still experienced the most violent and destabilizing symptoms imaginable - intense depression, episodic rage, etc. Thus, they aren't a panacea.

 

However, discontinuation is the most destabilizing experience imaginable - akin to illicit drug withdrawal - as you and I can each attest. Thus, removing as many variables as possible is an optimized strategy for approaching the process.

 

Last month, I located a state-of-the-art facility near me. In consultation with my psychiatric resident, they manufactured a batch of 5 mgs capsules - more than 200 - to assist me in titrating from 37.5 mg to 0. Despite their help, I still experienced palpable instability last week when I transitioned from 30 to 25 mg.

 

Yet, I'm certain that asking a compounding pharmacy utilizing modern, manufacturing techniques and scales offers far greater precision than anything I could have formulated myself.

 

Several years ago, I participated in Dialectical Behavioral Therapy (DBT). One tenet I found empowering was the notion that each of us knows him- or herself better than anyone else - including our psychiatrists. Thus, if and when you're ready to reduce your medications - ideally, one-at-a-time - you might consult a compounding pharmacy near you to determine their capabilities.

 

Hang in there!

 

Cheers, Jason

 

C'mon You Spurs!

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  • 3 weeks later...

Gia Carangi:
Life and death, energy and peace. If I stop today it was still worth it. Even the terrible mistakes that I made and would have unmade if I could. The pains that have burned me and scarred my soul, it was worth it, for having been allowed to walk where I've walked, which was to hell on earth, heaven on earth, back again, into, under, far in between, through it, and above.

1999:  Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse  reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months.                     2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects)

2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg  (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram  2mg ,  approx 16th Sept 4mg , approx 25th Sept 6mg held.  2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg 7 May 22 2.31mg 17/09/2023 0.8mg

(Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts)

I did not die, and yet I lost life’s breath
- Dante
Link to comment
On 5/9/2020 at 1:51 AM, JasonBarton said:

India, I'm sorry you're having such a complex and protracted experience.

 

I'm writing to thank you for your response to my introductory post in February. You were very kind to do so. Although I didn't fully articulate the medication-related destabilization I've experienced for decades, I did describe the intensity of my reaction to my mom's death last year.

 

In response, you recommended Carl Rogers and a humanistic approach to therapy. It's funny you did so. One day, years ago, c. 1998, I devoured one of his books (metaphorically-speaking) over the course of several hours in a Manhattan Barnes & Noble - a reading strategy I've utilized for decades! His philosophy resonates w/ me to this day.

 

Also, I see you're in London. My mom loved London, as do I, although I haven't thought about it much since medication hijacked my life decades ago. (Throughout high school, a London Tube map adorned my bedroom wall). In fact, I lived there as a child w/ my family (Frognal Lane, Hampstead) and later as a student, several decades ago! (49 Harrington Gardens, SW7).

 

I've scanned your recent posts, so I can't respond to your entire experience. However, your underlying distress is palpable.

 

Q: Have you ever used a compounding pharmacy?

 

They're capable of formulating a discontinuation dose with far greater precision than any individual can from the safety of his or her home. Doing so does not guarantee a smoother transition. Several years ago, I utilized a compounder to manufacture Effexor XR in incremental doses from 150 to 75 mg. However, I still experienced the most violent and destabilizing symptoms imaginable - intense depression, episodic rage, etc. Thus, they aren't a panacea.

 

However, discontinuation is the most destabilizing experience imaginable - akin to illicit drug withdrawal - as you and I can each attest. Thus, removing as many variables as possible is an optimized strategy for approaching the process.

 

Last month, I located a state-of-the-art facility near me. In consultation with my psychiatric resident, they manufactured a batch of 5 mgs capsules - more than 200 - to assist me in titrating from 37.5 mg to 0. Despite their help, I still experienced palpable instability last week when I transitioned from 30 to 25 mg.

 

Yet, I'm certain that asking a compounding pharmacy utilizing modern, manufacturing techniques and scales offers far greater precision than anything I could have formulated myself.

 

Several years ago, I participated in Dialectical Behavioral Therapy (DBT). One tenet I found empowering was the notion that each of us knows him- or herself better than anyone else - including our psychiatrists. Thus, if and when you're ready to reduce your medications - ideally, one-at-a-time - you might consult a compounding pharmacy near you to determine their capabilities.

 

Hang in there!

 

Cheers, Jason

 

C'mon You Spurs!

@JasonBarton

Thank you for your kind and generous reply. I am too disabled and weak to respond rightfully  right now but I will respond . 

I left the words of Già Carangi which I feel deep in my soul right now . It wouldn't  surprise me if this death  of soul and life will result in my physical  death. In the way heartbreak causes breath.  

As if the universe had conspired, I lost my therapist( 2 weeks ago), my sister and a lover in one day, after I collapsed and fragmented in neuro-terror, in turn causing , what can only be described as  gaslighting or severe invalidation  left right and centre causing more destabilising since I am reliant on these ppl they are all I have left. 

Only a dear confident I met on this site gave me a comfort and kindness I cannot find in my physical life . 

 

I  am in one of the darkest place I have ever been in my life. 

I will simply scream if hear anyone tell me to “think more positively”. This chemical injury has stolen everything and had me on my knees begging. I’ve had to re-experience the trauma and powerlessness of relying on unpredictable and inconsistent caregivers. Never knowing where the next sabotage or abandonment would occur. But still living in the deep love and craving and shame that permeated my childhood . A mixture of damage and pain and guilt, loyalty and love. At once a desperate need to be close and a fear of loss whilst also feeling I simply cannot trust these intimate figures . 

 

I was left for many many months crawling around my flat due to severe balance and executive dysfunction unable to look after myself. No one believed me when I told them I couldn’t get dressed or pick clothes or read or think or get out of bed. The trauma of this despair I will never ever forget. 

 

I am lost right now in deep emotional pain. Terrified of my fate. 

The world is cruel and there are many people, systems and structures willing to exploit the fragile and vulnerable. 

 

I dont think you can make it without true consistent support from immediate family and friends. I have none of that. No one. 

I only have the helpline the Samaritans and my confidant but she has her own struggles . Can you?

 

The worst of it all. I cannot “think”. I cannot make decisions. My brain is disabled .   

 

I am dying. I am dying. A slow and intractable death. With every blow I die a bit more. It’s a fate beyond my control. 

What agency do any of us who are so disabled truly have against the forces we become reliant on. Individualism is a neo-liberal capitalist concept .

 

People really do kick ppl when they are down. I’ve experienced this over and over. They see a way to exploit a disempowered person as if by instinct. It is hard to still believe in humanity when you’ve experienced this so many times. You witness it but you have no power with which to voice yourself- you are silenced .Interpersonally,  this is devastating because you have the least defence. 

 

@JasonBartonI think about parallels between your mother and mine and feel your pain.

 

I spent a lot of time in a beautiful flat ( not mine )  in Frognal Lane by the Heath in 2010.  After escaping a traumatic relationship the years previous. It saved me.. The beauty of that summer. 

 

More anon.

1999:  Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse  reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months.                     2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects)

2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg  (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram  2mg ,  approx 16th Sept 4mg , approx 25th Sept 6mg held.  2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg 7 May 22 2.31mg 17/09/2023 0.8mg

(Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts)

I did not die, and yet I lost life’s breath
- Dante
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  • Administrator

Hello, India. I am sorry you are feeling so poorly.

 

It is highly unlikely you have organic brain damage from psychiatric drugs, however much it may feel like it.

 

What exactly are you taking now, at what dosages and what times of day? Your signature stops in November 2019 at 4.77mg citalopram.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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India, the depth of your distress is crystalline. I, too, have felt bereft, disempowered, profoundly alone and/or suicidal, at many times in my life. In my experience, once you've accumulated as many destabilizing factors as you have - situational, neurochemical - it's profoundly difficult to gain any perspective at all. Thus, it's vital to have someone act as a case-manager, of sorts, when you're feeling as impaired as you clearly are.

 

In your case, I think a well-informed psychiatrist might be helpful, or even better, a psychotherapist to help advocate for you or help you to advocate for yourself.

 

It sounds like you've recently broken-off your relationship w your therapist. Can you reconnect? Or, do you have a psychological referral service you can contact?

 

It's hard to think about your future, much less tomorrow, when you feel as if you're drowning. Ideally, a therapist can offer an organizational framework so you don't feel like you're treading water to survive. When you're in the throes of instability, as you clearly are, it's impossible to make sense of anything.

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On 5/31/2020 at 6:19 AM, India said:

@JasonBarton

Thank you for your kind and generous reply. I am too disabled and weak to respond rightfully  right now but I will respond . 

I left the words of Già Carangi which I feel deep in my soul right now . It wouldn't  surprise me if this death  of soul and life will result in my physical  death. In the way heartbreak causes breath.  

As if the universe had conspired, I lost my therapist( 2 weeks ago), my sister and a lover in one day, after I collapsed and fragmented in neuro-terror, in turn causing , what can only be described as  gaslighting or severe invalidation  left right and centre causing more destabilising since I am reliant on these ppl they are all I have left. 

Only a dear confident I met on this site gave me a comfort and kindness I cannot find in my physical life . 

 

I  am in one of the darkest place I have ever been in my life. 

I will simply scream if hear anyone tell me to “think more positively”. This chemical injury has stolen everything and had me on my knees begging. I’ve had to re-experience the trauma and powerlessness of relying on unpredictable and inconsistent caregivers. Never knowing where the next sabotage or abandonment would occur. But still living in the deep love and craving and shame that permeated my childhood . A mixture of damage and pain and guilt, loyalty and love. At once a desperate need to be close and a fear of loss whilst also feeling I simply cannot trust these intimate figures . 

 

I was left for many many months crawling around my flat due to severe balance and executive dysfunction unable to look after myself. No one believed me when I told them I couldn’t get dressed or pick clothes or read or think or get out of bed. The trauma of this despair I will never ever forget. 

 

I am lost right now in deep emotional pain. Terrified of my fate. 

The world is cruel and there are many people, systems and structures willing to exploit the fragile and vulnerable. 

 

I dont think you can make it without true consistent support from immediate family and friends. I have none of that. No one. 

I only have the helpline the Samaritans and my confidant but she has her own struggles . Can you?

 

The worst of it all. I cannot “think”. I cannot make decisions. My brain is disabled .   

 

I am dying. I am dying. A slow and intractable death. With every blow I die a bit more. It’s a fate beyond my control. 

What agency do any of us who are so disabled truly have against the forces we become reliant on. Individualism is a neo-liberal capitalist concept .

 

People really do kick ppl when they are down. I’ve experienced this over and over. They see a way to exploit a disempowered person as if by instinct. It is hard to still believe in humanity when you’ve experienced this so many times. You witness it but you have no power with which to voice yourself- you are silenced .Interpersonally,  this is devastating because you have the least defence. 

 

@JasonBartonI think about parallels between your mother and mine and feel your pain.

 

I spent a lot of time in a beautiful flat ( not mine )  in Frognal Lane by the Heath in 2010.  After escaping a traumatic relationship the years previous. It saved me.. The beauty of that summer. 

 

More anon.

 

One thing you know , you will get better.

Keep holding .. keep titrating... Keep faith.

I can understand the pain of disability and indecisiveness ,  and also I am not saying I am well enough now.

 

I am struggling every day , more every night. Doing things , then forgetting altogether. 

 

Well, I met many people at SA, they helped... I cannot even call 5 names , unable as my memory serves. 

 

It will get over I believe.

08/13 - 01/14
Olanzapine, petril MD (Clonazepam ), Dicorate ER (divalproex). Soza 10 (Zolpidem)

02/14 - 05/14
Flunil ​20mg , Divaa OD 250 mg(divalproex), Amisulpride 50mg (1-0-2), zolfresh 5 mg , Quetiapine
05/14 - 08/14 Venlafaxine 75 xr ( 1-0-1), zapiz 0.25
10/14 Zaptra 12.5mg , Oxetol xr 150mg (0-0-1)
11/14 - 08/15
Paris CR 25 (paroxetine) , Oxetol xr 600 mg (0-0-1), nitrest 5mg , Quetiapine for a month.
09/15-11 Venlafaxine XR 75 ( 1-0-1), Mirtazipine 15, Respiredal 0.5, Lamitor 25, zillion 10.
12/15-02/16 Off Meds (C.T)

03/16-Mid April Sertraline, Aripropazole, Quetiapine, Etizolam.

After that : CT and on OTC supplements (Roadback), now on Ayurveda
Link to comment

Hi India,

I'm so sorry you're struggling so much right now. I can really relate to how isolating it feels to have such a debilitating condition that is so poorly understood or recognised by medicine and more generally. I agree that without a really strong support network & understanding from friends/family it would be beyond difficult to begin to address any of this and I don't wonder that it sounds like you've reached such a low point. Like Alto I just wanted to reassure you about the possibility of any organic damage, I remember being absolutely convinced of & panicked about atrophy of my frontal lobe, there was pretty much nil activity in there for 6 months or so, it was completely numb & towards the end I remember not knowing how to dress myself because I couldn't work out what to put where in which order. Not only did my MRI/CT show no atrophy but I'm completely fine now in that regard and if there's any difference in my functioning from pre withdrawal its not discernible to me. From what I understand function is a result of homeostasis with signalling pathways etc. You probably don't want to hear this & I didn't either at the time but it took reinstating the full dose of the AD to eliminate the withdrawal symptoms for me & it took a while, I think several months & a few weeks of pretty horrible symptoms from reinstating to get back to my pre withdrawal function (With a few leftover symptoms, I still have visual snow & seizures,  although I had a stroke around the same time so it could be down to that). I'm not sure how you feel you were functioning on citalopram or your reasons for wanting to stop taking it but I just want to emphasise that it is an option you may want to explore if you feel your current symptoms are intolerable. Also I remember reading one of Dr Shipko's books & his observation was that with patients who had windows and waves in withdrawal but showed a general trend towards improvement that recovery was the likely outcome. Its only one observation from what he acknowledges may be a biased sample but I still give it some weight as I think it sounds like we fit into that sample ie. people really struggling with severe protracted withdrawal. In my case symptoms were either stable or worsening over many months so if that's the case it might be worth rolling the dice with another strategy? I don't know & I don't want to give advice ,I know everyone is different, I'm just sharing my experience. I agree with Jason that a good psychiatrist would be invaluable just to give some input and support. Please know that there are people out there who do care and understand although it may not feel that way right now & that your situation is not hopeless! Also I just wanted to say you have a real talent for writing, its very evocative & beautiful. Hope you're hanging in there and feeling a bit better now :)

Over the last two years - Effexor Xr 150 mg daily, ferrous iron, magnesium, zinc, b12and vit d 1000 iu every couple of days. 

Prior to that- 2001 started citalopram 20 mg age 18, switched to escitalopram 20 mg a year or two later: 2011 - switched to paroxetine for several weeks and tapered off, replaced with lexapro. March 2014- prescribed Effexor xr 150mg daily. May 2015 prescribed 10 mg aripiprazole, concurrently with Effexor, discontinued 2-3 weeks later with abrupt taper to 5 mg then stopped. Continued taking Effexor until late November of last year- tapered rapidly over 12 days. Nothing currently.

Link to comment

@India

 

hang in there you’re  in a wave 

I know exactly how you feel I’m also tapering and have had symptoms all the way through. 
 

I know it will get better all our journeys are unique and we have to travel the road of pain to find recovery . There’s only one way and that’s tapering slowly off the med. 
 

you are on such a small dose now. 
 

keep going

stay strong

recovery is just a small journey ahead

 

take care LRH 
 

Nov 2018 Pregabalin 2x50 mg a day to help with Paxil WD. Aug 2019 2 x 25mg a day, April 2020 45mg, May 40mg, June 35mg, July 30mg, end July 25mg, Aug 24mg, June 2021 14mg, Jan 2022 14mg (2x7mg a day), Oct 10mg, Nov 5mg, December 25th 2022 0mg 🎈

 

Oct 2004 - Oct 2018 Paxil 20 mg, Nov 15mg, Dec 10mg,  Feb 2019 7.5mg crashed, Feb 8.5mg, Nov 8mg, March 2020 7.2mg, April 6.5mg, May 5.9mg, June 5.4mg, July 4.8mg, Dec 4.5mg, Jan 2021 4mg, Feb 3.6mg, March 3.2mg, April 2.9mg, Aug 2.7mg, Sept 2.4mg, Oct 2.2mg, Nov 2mg, Dec 1.8mg, Feb 2022 1.6mg, March 1.4mg, April 1.2mg, May 1.0mg, June 0.8mg, July 0.6mg, Aug 0.4mg, Sep 0.2mg, October 6th 2022 0mg  🎈

 

December 25th 2022 drug free 

 

these dates are approximate 

 

Link to comment
  • 2 weeks later...
  • Moderator

*hugs*

I am not a health professional - your actions are your own.  

Please do not seek tapering support via private message - "Any reason to hold is a good one"

My taper visualised as a graph   |   My intro thread

Backdrop:  2003 10mg olanzapine | 2004 2-3mg risperidone | end 2014 3wks aripiprazole

2015: olanzapine  10 -> 7½ -> 6⅔ -> 5mg  by crude pill cutter

2018:  Mar 5.00mg -> water titrated taper -> Aug2.5mg tablet and hold

Jan 2019 2.50mg water titration -> Jan 2020 1.214  -> Jan 2021 0.44 -> 2 Oct 0.205 ->3 Oct ZERO🥂

Jun 2023 💉150mg paliperidone "loading" depot shot, 100mg 1wk after Jul 100mg Aug-Dec 75mg/4wks

Jul 2023 2.50mg aripiprazole/day attempt to lower prolactin^

Jan-Feb 2024 cross taper off shots to 1mg risperidone

 

Ask not what you can do for your country, but what your country did to you"  -- KMFDM

Link to comment
  • 3 months later...

Hi India, just wanted to send some love. Really hear the pain and suffering you've been experiencing. Thinking of you and praying you're OK. Come back and update us soon xx

2008 put on 75mg Effexor XR (Venlafaxine) after breakup with long term boyfriend

2009 Dose increased to 150mg

2010 Dose increased to 300mg plus 25mg Quetiapine added to aid sleep and control hypomania

2011 first attempt to withdraw. Taper much too fast on psychiatrist's advice (300-0mg in 1 month) suffer first and only psychotic episode. Put back on 75mg generic Venlafaxine (no more Quetiapine)

2014 reduce dose to 1/4 of a 37.5mg Venlafaxine tablet during pregnancy. Suffer extreme social anxiety/agoraphobia

2015 Daughter is born. Advised not to breastfeed due to Ven being present in breastmilk. Suffer PND and go back to taking 37.5mg tablet daily. Start to experience heavy fatigue each day after taking Venlafaxine tablet.

14th June 2017 - start 10% monthly taper reduction method. June 2018: 10mg June 2019: 4.5ml June 2020: 2mg June 2021: 0.9mg June 2022: 0.35mg Jan 23: 0.14mg Feb 23: 0.12mg March 23: 0.1mg April 23: 0.08mg May 23: 0.06mg June 23: 0.04mg July 23: 0.02mg

Officially free of all psychiatric medication as of 1st August 2023 :):)

Link to comment
  • 3 weeks later...

Hi India,

 

How are you doing?

 

You've been tremendously helpful to me and others in the past and I hope you are doing a lot better!

 

Hoping to hear from you

 

😘😘 sending hugs

 

Jozeff

Sep- 2016 - Okt 2017 citalopram some months 15 mg some months 20 mg

Nov 2017- Apr 2018 citalopram 25 mg

Apr 2018 -  Jun 2018 citalopram 3 month TAPER too fast  from 25mg to 16.5 mg (0.1 mg per day decrease, felt horrible and crashed)

Jun 2018 - Aug13th 2018 citalopram trying to stabilize at 16.5 mg for 5 wks

- August 14th 2018 - April 29th 2019  citalopram 18 mg (1.5 mg updose).

 

2019 apr 27 : START taper citalopram @ 18 mg: 29Jun 16.4 mg / 19aug 15.4 mg / 25aug 15.2 mg / 30sep 14.0 mg / 4dec 13.1 mg

2020  03Jan 12.75 mg / 28Jan 12.29 mg / 18Feb 11.83 mg, 25Feb 11.68 mg hold.. / 7May 11.33 mg hold...., 4Aug 10.98 mg / 5Dec 10.0 mg 4 month hold...

2021 30mar 9.8 mg / 06apr 9.5 mg /  13apr 9.4 mg / 14may 8,5 mg / 04jun 8,0 mg / 11jun 7.75 mg, 02jul 7.35 mg /  09jul 7.2 mg hold 3 weeks during holiday /31jul 7 mg/ 8aug 6.8 mg / 15aug 6.63mg / 22aug 6.5mg / 1sep 6.3 mg / 8sep 6.15 mg / 15sep 6.0 mg / 22sep 5.9 mg / 29sep 5.8 mg / 04 oct 5.65 mg / 10oct 5.55 mg / 17oct 5.45 mg / 24oct 5.35mg / 30oct 5.25 mg hold 3 wks / 22nov 5.15 mg / 01dec 5.1mg / 12dec 5.0mg / 20dec 4.85mg / 30dec 4.70mg

2022   08jan 4.5 mg / 16jan 4.4 mg / 23jan 4.3 mg / 27jan 4.2 mg / 18feb 4.1 mg / 25feb 4.0 mg / 04mar 3.9 mg / 11mar 3.75 mg / 18Mar 3.65 mg / 09apr 3.55 mg / 16apr 3.45 mg / 23apr 3.35 mg / 01may 3.25 mg / 8may 3.15 mg / 17may 3.10 mg / 28 may 3.0 mg / 7jun 2.94 mg / 18 Jun 2.88 mg / 27 jun 2.84 mg / 05 jul 2.80 mg / 16 jul 2.75 mg / 23 jul 2.70 mg / 01aug 2.65 mg / 09aug 2.60 mg hold 5wks / 18sep 2.55 mg / 25sep 2.5 mg /02oct 2.45 mg / 10oct 2.40 mg / 19oct 2.35 mg / 27oct 2.30 mg / 05nov 2.27 mg / 14nov 2.25 mg / 22nov 2.20 mg / 29nov 2.10mg / 09dec 2.05 mg / 15dec 2.0 mg 

2023  hold 2.0 mg for 5 months / 05may 1.95 mg / 14may 1.90 mg / 24may 1.87 mg / 02jun 1.85 mg / 17jun 1.82 mg / 27jun 1.79 mg / 07jul 1.75 mg / 31jul 1.72 mg / 12aug 1.69mg / 27aug 1.67 mg / 04sep 1.65 mg / 09sep 1.63 mg / 22sep 1.61 mg / 27sep 1.60 mg / 12oct 1.58 mg / 18oct 1.56 mg / 31oct 1.54 mg / 06nov 1.52 mg / 18nov 1.50 mg / 04dec 1.48 mg / 11dec 1.46 mg / 22dec 1.45 mg / 28dec 1.44 mg

2024 01jan 1.43 mg / 06jan 1.42 mg/ 10jan 1.40 mg hold / 08apr 1.38 mg / 15apr 1.36 mg / 20apr 1.34 mg

Link to comment
  • 2 weeks later...
  • Moderator

India good buddy, got yer ears on?

 

How’s it all going?

I am not a health professional - your actions are your own.  

Please do not seek tapering support via private message - "Any reason to hold is a good one"

My taper visualised as a graph   |   My intro thread

Backdrop:  2003 10mg olanzapine | 2004 2-3mg risperidone | end 2014 3wks aripiprazole

2015: olanzapine  10 -> 7½ -> 6⅔ -> 5mg  by crude pill cutter

2018:  Mar 5.00mg -> water titrated taper -> Aug2.5mg tablet and hold

Jan 2019 2.50mg water titration -> Jan 2020 1.214  -> Jan 2021 0.44 -> 2 Oct 0.205 ->3 Oct ZERO🥂

Jun 2023 💉150mg paliperidone "loading" depot shot, 100mg 1wk after Jul 100mg Aug-Dec 75mg/4wks

Jul 2023 2.50mg aripiprazole/day attempt to lower prolactin^

Jan-Feb 2024 cross taper off shots to 1mg risperidone

 

Ask not what you can do for your country, but what your country did to you"  -- KMFDM

Link to comment
  • 2 months later...
  • Moderator Emeritus

Hi India, 

 

How are you doing? Looks like a lot of people are concerned about you. 
 

I haven’t been on SA for ages, and am trying to catch up with different ones again slowly. 
 

I know that you really struggle, and I’m so sorry, just want to send you some big hugs🤗

Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️
2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor.

Link to comment
  • 5 months later...
  • Administrator

@India, how are you?

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to comment
  • 2 months later...
On 6/3/2020 at 10:20 PM, Monty95 said:

Hi India,

I'm so sorry you're struggling so much right now. I can really relate to how isolating it feels to have such a debilitating condition that is so poorly understood or recognised by medicine and more generally. I agree that without a really strong support network & understanding from friends/family it would be beyond difficult to begin to address any of this and I don't wonder that it sounds like you've reached such a low point. Like Alto I just wanted to reassure you about the possibility of any organic damage, I remember being absolutely convinced of & panicked about atrophy of my frontal lobe, there was pretty much nil activity in there for 6 months or so, it was completely numb & towards the end I remember not knowing how to dress myself because I couldn't work out what to put where in which order. Not only did my MRI/CT show no atrophy but I'm completely fine now in that regard and if there's any difference in my functioning from pre withdrawal its not discernible to me. From what I understand function is a result of homeostasis with signalling pathways etc. You probably don't want to hear this & I didn't either at the time but it took reinstating the full dose of the AD to eliminate the withdrawal symptoms for me & it took a while, I think several months & a few weeks of pretty horrible symptoms from reinstating to get back to my pre withdrawal function (With a few leftover symptoms, I still have visual snow & seizures,  although I had a stroke around the same time so it could be down to that). I'm not sure how you feel you were functioning on citalopram or your reasons for wanting to stop taking it but I just want to emphasise that it is an option you may want to explore if you feel your current symptoms are intolerable. Also I remember reading one of Dr Shipko's books & his observation was that with patients who had windows and waves in withdrawal but showed a general trend towards improvement that recovery was the likely outcome. Its only one observation from what he acknowledges may be a biased sample but I still give it some weight as I think it sounds like we fit into that sample ie. people really struggling with severe protracted withdrawal. In my case symptoms were either stable or worsening over many months so if that's the case it might be worth rolling the dice with another strategy? I don't know & I don't want to give advice ,I know everyone is different, I'm just sharing my experience. I agree with Jason that a good psychiatrist would be invaluable just to give some input and support. Please know that there are people out there who do care and understand although it may not feel that way right now & that your situation is not hopeless! Also I just wanted to say you have a real talent for writing, its very evocative & beautiful. Hope you're hanging in there and feeling a bit better now :)

 

How many months took for you to get back to your pre withdrawal condition after reinstantment?

July 2017 - started Zoloft 50 mg, 30 days taking the drug

Cold Turkey interruption after 30 days

Oct 17 - Intrusive thoughts, horrible cognitive deficits, anger episodes, suicidal thoughts appear, horrible akathisia

Apr 21 - Start Zoloft again at 6.25 mg. Then 9 and finally 12.5. 

Mc 22 - Increased to 18.75 mg, stayed 15 days. Increased to 25 mg, stayed 15 days. 

Apr 22 - Increased to 37.5 mg. Stayed 4 weeks

My 22 - Increased to 50 mg. Suffered no kindling. Began to stabilize after 8 weeks on 50 mg, after years of suffering. 

Extra-activities: mindfulness (2-3 hours), yoga (30 min) and physical exercise (30 min) per day. 

Supplements: Omega 3 DHA 250 mg, Magnesium 300 mg, Vitamin D 1000 ui, multivitamin. 

Link to comment
  • 2 months later...

@India Just wanted to say we are still thinking of you. 

Current: Bupropion 450mg, Neurontin 800mg, Klonopin 0.5mg

History:

July 2020: started Cogentin 1mg, Lamictal 50mg, Zoloft 150mg, Zyprexa 5mg (+5mg as needed), Klonopin 0.5mg

November 2020: stopped all meds cold-turkey

February 2021: started Latuda 60mg, Lithium 300mg, Melatonin 5mg, Protonix 40mg, Topamax 25mg

2 weeks later: stopped Topamax, increased Lithium 900mg, started Klonopin 1mg, Lexapro 20mg, Neurontin 400mg

April 2021: started Bupropion 150mg, Revia ?mg

May 2021: stopped ReviaProtonixLexaproincreased Neurontin 800mg, started Celexa 10mg

August 2021: decreased Celexa 5mg (stopped Celexa 2 weeks later), increased Bupropion 300mg

September 2021: increased Latuda 80mg

October 2021: decreased Lithium 600mg for 4 daysLithium 300mg for 4 daysstopped LithiumLatuda

     increased Bupropion 450mg, started Remeron 15mg, decreased Remeron 7.5mg, stopped Remeron

Link to comment

There is no change. I can only say I breathe. It is no life. I am still injured and physically ill. 

Worse because of the accumulation of suffering. 

The only change is that I am on 2.25mg

1999:  Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse  reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months.                     2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects)

2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg  (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram  2mg ,  approx 16th Sept 4mg , approx 25th Sept 6mg held.  2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg 7 May 22 2.31mg 17/09/2023 0.8mg

(Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts)

I did not die, and yet I lost life’s breath
- Dante
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Hang in there, India! Everyone turns the corner at a different pace. It will come ❤️ 
You're getting it done. 

3/21/19 started Bupropion XL 150 mg

3/21/19 started Risperidone 2mg

7/7/19 start Abilify half dose 5 mg. discontinue Risperidone

7/9/19 full dose Abilify 10 mg

7/29/19 discontinued Abilify due to panicky side effects

8/2/19 Began Latuda 20 mg

8/5/19 discontinued Latuda due to similar side effects 

8/10/19 discontinued Bupropion after realizing it was causing the insomnia

From 8/10/19 no drugs whatsoever

Currently taking vitamin C, D, E, a probiotic and fish oil. 
Message me here if you want: 
https://www.facebook.com/morra.lal.3/  I've been getting a lot of fake friend requests, so please send a message before friend requesting me, thank you!

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  • Moderator
4 hours ago, India said:

There is no change. I can only say I breathe. It is no life. I am still injured and physically ill. 

Worse because of the accumulation of suffering. 

The only change is that I am on 2.25mg

 

So pleased to hear from you India.  And still tapering!

 

One foot in front of the other hon, sooner or later the weather's bound to change.  Even if it goes one way it will go the other too

I am not a health professional - your actions are your own.  

Please do not seek tapering support via private message - "Any reason to hold is a good one"

My taper visualised as a graph   |   My intro thread

Backdrop:  2003 10mg olanzapine | 2004 2-3mg risperidone | end 2014 3wks aripiprazole

2015: olanzapine  10 -> 7½ -> 6⅔ -> 5mg  by crude pill cutter

2018:  Mar 5.00mg -> water titrated taper -> Aug2.5mg tablet and hold

Jan 2019 2.50mg water titration -> Jan 2020 1.214  -> Jan 2021 0.44 -> 2 Oct 0.205 ->3 Oct ZERO🥂

Jun 2023 💉150mg paliperidone "loading" depot shot, 100mg 1wk after Jul 100mg Aug-Dec 75mg/4wks

Jul 2023 2.50mg aripiprazole/day attempt to lower prolactin^

Jan-Feb 2024 cross taper off shots to 1mg risperidone

 

Ask not what you can do for your country, but what your country did to you"  -- KMFDM

Link to comment
15 hours ago, India said:

There is no change. I can only say I breathe. It is no life. I am still injured and physically ill. 

Worse because of the accumulation of suffering. 

The only change is that I am on 2.25mg

We are so glad to hear from you! I was so glad when I saw that you posted. I’m sorry your symptoms are still with you. I have been following your journey and been wanting good things for you. Keep persevering. That’s all any of us can do. I hope to hear from you again, regardless of where you are at that time. 

Current: Bupropion 450mg, Neurontin 800mg, Klonopin 0.5mg

History:

July 2020: started Cogentin 1mg, Lamictal 50mg, Zoloft 150mg, Zyprexa 5mg (+5mg as needed), Klonopin 0.5mg

November 2020: stopped all meds cold-turkey

February 2021: started Latuda 60mg, Lithium 300mg, Melatonin 5mg, Protonix 40mg, Topamax 25mg

2 weeks later: stopped Topamax, increased Lithium 900mg, started Klonopin 1mg, Lexapro 20mg, Neurontin 400mg

April 2021: started Bupropion 150mg, Revia ?mg

May 2021: stopped ReviaProtonixLexaproincreased Neurontin 800mg, started Celexa 10mg

August 2021: decreased Celexa 5mg (stopped Celexa 2 weeks later), increased Bupropion 300mg

September 2021: increased Latuda 80mg

October 2021: decreased Lithium 600mg for 4 daysLithium 300mg for 4 daysstopped LithiumLatuda

     increased Bupropion 450mg, started Remeron 15mg, decreased Remeron 7.5mg, stopped Remeron

Link to comment
  • 10 months later...

Hi, @India,

 

long time has passed since Your last update, how are You doing lately?

 

Wishing You a lifelong window!

V.

Duloxetine 2016/17 - 30/60mg/30mg, c/t, light WD.

Sertraline June 2019 50mg ADR

Clorazepate June 2019 20-15-10mg for 3 weeks then sparsely until 2022, 2 times per month max and very low dose (5mg)

Clorazepate Jan2022 10mg 5 days 2,5mg 2 days then off

Venlafaxine June 2019 75mg ADR, 17,5mg, titrated to 37,5mg

Venlafaxine Jan 2022 Covid, hard ADR on 37,5mg, reduced to 20mg ADR, tried ct, crash,

Venlafaxine 22Jan22 reinstated 9,4mg, too low/ 01Feb22- 12mg/ 12Feb- 11,25mg/ 16Feb- 11mg/ 20Feb- 10,8mg/ 24Feb22-10,575mg/ 16Mar22- 10,46mg/ 26Mar22- 10,35mg/ 26Apr22- 10mg/ 01Oct- 9,9mg/ 13Nov- 9,7mg

01Jan24-7,5mg

MAR24

Due to another sudden intolerance had to fast taper venlafaxine to 1,14mg 

Seems like all of this time I was in benzo withdrawal, because when I took it now in desperation to help it made me feel worse, tried reinstatement first 1mg, then 0,05mg both made me feel worse.

Link to comment
  • 5 months later...
  • Moderator

Hope things are ok there @India

I am not a health professional - your actions are your own.  

Please do not seek tapering support via private message - "Any reason to hold is a good one"

My taper visualised as a graph   |   My intro thread

Backdrop:  2003 10mg olanzapine | 2004 2-3mg risperidone | end 2014 3wks aripiprazole

2015: olanzapine  10 -> 7½ -> 6⅔ -> 5mg  by crude pill cutter

2018:  Mar 5.00mg -> water titrated taper -> Aug2.5mg tablet and hold

Jan 2019 2.50mg water titration -> Jan 2020 1.214  -> Jan 2021 0.44 -> 2 Oct 0.205 ->3 Oct ZERO🥂

Jun 2023 💉150mg paliperidone "loading" depot shot, 100mg 1wk after Jul 100mg Aug-Dec 75mg/4wks

Jul 2023 2.50mg aripiprazole/day attempt to lower prolactin^

Jan-Feb 2024 cross taper off shots to 1mg risperidone

 

Ask not what you can do for your country, but what your country did to you"  -- KMFDM

Link to comment
  • 4 months later...

Hello all,

 

I wanted to thank those who supported me through those first few years @jozeff @intothewoods and many of you.

 

I've come back to update .. Perhaps at some point, I will re-read and reframe my posts from a further place of healing. It is no secret that it has been a brutal journey, as many of my posts reference. Many of you know and have suffered in parallel. Most of the posts here are a reflection of what it is like to be immersed in  that suffering-- to be in the neurological storm of limbic kindling, the litany of symptoms created by the chemical injury, neurological hypersensitivites, to experience the nervous system shattered. Just how isolating it can be to experience what is mostly unrecognised . The unbelievable  nature of it-- both for ourselves and for others. It's profound shock.  What I have spoken less of are all those moments of healing I have experienced on this long road, even if not fully healed. All those moments are a cause for hope. 

 

In the words of George Harrison:  'It's getting worse/and it's getting better'. I think for me, that's the arc of all of this. That I keep walking towards the sun even if the sargasso ( sea weeds) envelops me.

 

Very simply my story is-- I had suffered life trauma , I took SSRI's for it , after 12 years, I  withdrew suddenly,  6 years ago and my body and brain went into shock. I believe also I am suffering from legacy effects. I had some preexisting physical health issues. All created the perfect storm.

 

I believe my journey has been such a long one because of a very simple reason--- I have experienced a very bad trauma on top of trying to recover from this ,  that has impacted the damaged neuro- pathways-- and slowed healing.  I lost much of what I call  'the material world'. I do grieve that profound shattering. 

 

I do not think others will experience such a long ascent to heal. It's possible to heal. We all have to try to believe that even if we hold the truth of what it is to know hell, what it  is to grieve, as we try to retrieve our lives, like Orpheus, who descended the underworld to find his wife.

 

My main news is that I am however down to 0.8mg of Celexa or Citalopram and I'm still here.

 

Cold water therapy helped me immensely throughout this-- especially in nature, even when I couldn't balance-- I could float. It probably saved my life. Just like nature has-- the stars can be seen from the bedroom, the moon too. Like Sylvia Plath said, 'something else hauls me through air'

..the sea, the moon, the stars, the forest, magnetic

We are hauled by something greater than us.

Something that knows, more than us.

 

All the healing to you all.

 

For now that's all I can write.

 

 

 

1999:  Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse  reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months.                     2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects)

2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg  (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram  2mg ,  approx 16th Sept 4mg , approx 25th Sept 6mg held.  2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg 7 May 22 2.31mg 17/09/2023 0.8mg

(Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts)

I did not die, and yet I lost life’s breath
- Dante
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and thank you every one for your messages of support. In this liminal world where strangers become confidants.

1999:  Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse  reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months.                     2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects)

2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg  (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram  2mg ,  approx 16th Sept 4mg , approx 25th Sept 6mg held.  2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg 7 May 22 2.31mg 17/09/2023 0.8mg

(Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts)

I did not die, and yet I lost life’s breath
- Dante
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  • Moderator Emeritus

How wonderful to hear from you again @India, sending you the biggest hugs🤗🤗🤗

Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️
2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor.

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@Carmie thank you I appreciate that and hope you are healing too. 

I've come back with a healing resources list which I will post separately.

1999:  Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse  reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months.                     2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects)

2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg  (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram  2mg ,  approx 16th Sept 4mg , approx 25th Sept 6mg held.  2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg 7 May 22 2.31mg 17/09/2023 0.8mg

(Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts)

I did not die, and yet I lost life’s breath
- Dante
Link to comment

Here is a list of some of my healing resources that have kept me going over the years.

 

Podcasts:

Norman Dodige- Neuroplasticity ( book available) https://www.normandoidge.com/

-The Ghost in my Brain—youtube—professor who recovered from a brain injury

https://www.youtube.com/watch?v=mvoKA6NnsSs

The Brain Recovery Coach—Nathalie Kelly youtube ( Shares tips from Hawaii Neurological Centre)

https://www.youtube.com/c/NathalieKelly

Heal Documentary and Podcast (Gaia and YouTube) Kelly Nonan Gores

https://www.healdocumentary.com/

Netflix documentary—My Beautiful Broken Brain https://www.youtube.com/watch?v=VSfpA3AEKmY

Hay House—

Louise Hay, meditations https://www.youtube.com/watch?v=Cubm1bJ90Hs&t=2231s

Wayne Dyer,  https://www.youtube.com/watch?v=Cubm1bJ90Hs&t=2231s

Joe Dipenza  https://www.youtube.com/watch?v=yiz14yIuBZM

Meditations- various – forest walk etc…….

Spiritual : Ram Dass talks on youtube and Spotify

https://www.youtube.com/watch?v=KgaZ5Fqt2Ds

Chanting OM etc, hits some somatic place of release.

Prayer to some other spiritual force beyond me ( when need to find way out of the vortex of trauma/neurological shattering).

(The perennial philosophy (Latin: philosophia perennis),[note 1] also referred to as perennialism and perennial wisdom, is a perspective in philosophy and spirituality that views religious traditions as sharing a single, metaphysical truth or origin from which all esoteric and exoteric knowledge and doctrine has grown.)

‘Stutz’ on Netflix—Jonah’s Hill therapists— lots of superb tips on how to recover in the face of existential factors beyond our control. https://www.netflix.com/tudum/articles/stutz-the-tools

----short term – ‘string of pearls’—momentum—tiny actions have as much weight as larger ones.

Dr. Rangan Chattergee ( British Integrative Physician) Youtube podcasts

https://www.youtube.com/@DrChatterjeeRangan

Will Hall DipIPW various podcasts--- Jungian body centred somatic perspective—various—see website

Dr. Kelly Brogan—A mind of one’s own.

Wim Hof podcasts ( and The Goop)—Cold Water Therapy. This has been best when done in the wild though when not possible—cold showers.

https://www.wimhofmethod.com/cold-water-immersion

I have also used intense warmth ( creating a sauna by using hot baths/steam).

Vidyamala Burch

https://www.youtube.com/channel/UCcU2so8bqB8CP7XD-892_Xg/featured

Movement—free movement of my own—closest to yoga—somatic regaining of my own body.

Art therapy—Pinterest—various art sites—documentaries on artists such as Frida Kahlo, Georga O Keefe, Marina Abramovic, abstract expressionists. Immerse my brain in this as much as I can.

Gardener’s World—Monty Don documentaries on world gardens—see youtube ( or BBC)—immersed myself in the world of nature

‘The school of life’ philosopher-Alain de Botton both youtube ( and brief articles). https://www.youtube.com/user/schooloflifechannel

I removed ‘news’ from my life- I rarely watch any. Refocused on the healing properties of creativity—and life’s beauty: art, poetry, music. Dancing to music or laying down and listening.

Red light therapy—bought home bulb

Movement—in green space ( luckily have access to a tree fringed garden part time)..

Focus on healing and what flows, inspite  of grief—refocusing helped me focus on WIN ( what’s important now--- what can I change)—not lessening the trauma—but empowerment where you can. Victor Frankl—Man’s Search for Meaning – a Holocaust survivor who lived this philosophy.

Like all the spiritual greats spoke of--- I had to recommit to a process of forgiving—--- it was – a need to free up all my energy for my own healing and to accept the human failings of those around me. Maybe oneday I will revisit the legitimate anger I hold,  in a therapeutic space,  but for now it’s boxed whilst I try to heal, or at least now I try to transform it into a healing action. I think it could be called a re-orientation of perspective, like gratitude.

 

 

1999:  Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse  reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months.                     2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects)

2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg  (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram  2mg ,  approx 16th Sept 4mg , approx 25th Sept 6mg held.  2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg 7 May 22 2.31mg 17/09/2023 0.8mg

(Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts)

I did not die, and yet I lost life’s breath
- Dante
Link to comment

How do I change the tags that keep appearing on each posts. I feel there are more relevant ones to add and some need to be omitted. Many thanks.

1999:  Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse  reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months.                     2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects)

2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg  (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram  2mg ,  approx 16th Sept 4mg , approx 25th Sept 6mg held.  2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg 7 May 22 2.31mg 17/09/2023 0.8mg

(Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts)

I did not die, and yet I lost life’s breath
- Dante
Link to comment

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